Chronic Urticaria Update 2022

[@theiammike123]

Hi again Ms Sonja. Like my recent comment from your original vid, as of typing, I am 10 months hives-free since Jan 6 or 8 2022. The fact that you are hives-free for around 5 years now is giving me such high hopes, and to other people like us. God bless you for doing this update. Thank you so much. ❤️❤️

[@jeans4723]

Thank you for sharing your story and updating! My life has been falling apart while I wait for my Xolair to be approved (in the states). This has given me hope that it might end eventually. 💜

[@sonjasleator7582]

I really hope you get sorted and start to feel better soon! ❤️❤️

[@prabindascl9496]

Hello how r u now?

[@FelltheBlackWolf]

Getting my fourth shot this week. I'm in the US and I have to rely on a foundation to help me pay because when they came back (after four years free) I had no job and no insurance. My doc was giving me samples until the foundation approved me. Still no insurance so I pay for my visits out of pocket. I'm afraid of how much it will cost when I finally have insurance again. Hopefully it will just go away like yours. 🤞🏻 I've found that if I fast and don't eat anything at all, I have no hives. And if I avoid certain foods it's not as bad. Not sure why but maybe that will help someone.

[@kimberlybarnett1994]

I'm also in the US and saw a dermatologist that tried to put me on dupixent but my insurance denied it. What foundation did you go thru to help you?

[@jonnygaynon8861]

@@kimberlybarnett1994 Find a homeopath. This is a condition likely caused by drugs and drugs absolutely cannot, and will never, cure anything. They just suppress the symptoms, leaving the disease untreated at the root cause level. It'll come back 100% for anyone taking injections along with side effects of the injections themselves.

[@hrujutamehta6579]

I can help u wth diet plan, let me know if u stil need it

[@peteandresenfamilyadventur8742]

You are SO INSPIRING!!! I am 4 days after my first Xolair injection laying in bed applying ice packs to the hives. Good to know it may take time! Bless us all!

[@youngcench23]

how are you now ?

[@janeshipley6993]

i just watched this and your initial video - i’m so happy for you that you’re doing so well! happy life to you☀️

[@cornman1433]

I am happy you don't have this. I am in America, Colorado. I am 32 years old and have this disease for almost a year. I feel bad for anyone that has this. Thanks for the video

[@sonjasleator7582]

Yeah I’m glad I’ve been able to get it under control. I hope you start to feel better soon xx

[@mindfulmomlife1812]

Thanks for the update. I’m happy your still well! I’m sure you can remember the hopelessness.. I’ve been dealing with this for six months now. Also, came out of nowhere. It’s been an extremely depressing and miserable six months. I just had my third shot of a Xolair. It seems like I’m starting to turn a corner but I still take all of my antihistamines and a small dose of prednisone just to live my life. It gives me hope that it took you four months to feel better because now I can look forward to my next shot and hopefully see results. I found you because of chronic urticaria and I occasionally check back to see if you’ve posted anything on your status. I’m so happy that you’re still doing well after all of this time. 🎉❤️

[@sonjasleator7582]

Thank you so much! Its honestly such a horrible thing and I dont wish it on anyone. I really hope that by your next few shots you will start to feel better! I will be wishing you all the luck xxx

[@aperez7768]

I also had CUI out of nowhere. It was horrible. I started the Xolair as well took a few months to work. I had to change my diet completely low histamine. No red meats. after strict diet lots of water daily, started walking minimum 30 minutes a day and sauna for 20 minutes. The sweat therapy helped my tremendously. Everytime i was having a break out when to gym sauna and my cui started getting better. I watched Cam Banks videos on KZbin. He shared his experience and helped me . Took me 8 months. But this helped and watched numerous videos of other CUI suffers use heat therapy and helped them .

[@aperez7768]

My body went into shock first day of sauna but it started helping after a few trips.

[@kamab6538]

Great to hear you are perfectly well and very positive through out. Really thank you for the update. I just came across and made comment on your 1st video and glad to also watch this one. ♥︎

[@CharlotteLane-we3fj]

Thank you so much. I got CU 15yrs ago for 12months (including hospitalisation for it) it disappeared then returned 6 weeks ago, waiting on NHS immunology appt, I will asking for Xolair!! ❤

[@tmsup439]

Can u tell me how did it went away?

[@qu33niemonroe64]

I’m watching this because I’m getting the xolair shots soon

[@cynthiabatista4168]

I’m new with Chronic Urticaria since end of March this year. And it’s been rough, been trying to figure out what helps and what doesn’t help. Antihistamines are what I’m on for now. I’m questioning injections because antihistamines aren’t fully taking affect. 😞 I’ve never had anything like this ever in my life, same out of the blue. 🤷🏻‍♀️ hope I’ll be alright on day like you.

[@sabs6080]

I’ve had chronic urticaria and angioedema for 5 years. I’ve had the injections once in 2019 again in 2021 and now again in 2023. The injections seem to work for me for about 1.5 year and then it comes back again :/ I would say it is worth trying it out!

[@alicemuddiman3490]

Hi lovely, glad to see you’re still feeling better! I’ve had a long and complex journey with my own skin and have been suffering from an undiagnosed condition since June 2020. I saw many dermatologists and recently saw an allergist who suggested I have spontaneous chronic urticaria. The problem mainly affects my face so I’m not sure this is my problem but agree that my immune system is probably overreacting to something. I will ask about the Xolair injections as they could be an option for me. Thank you!

[@sonjasleator7582]

You are very welcome! If you decide to go for it I hope it will help! Keep in touch sure and let me know how you get on ❤️

[@danal7666]

Thank you for your very informative video. Great job!

[@sonjasleator7582]

Thank you 😊

[@MsDylan32]

Sorry so much typos even my head goes. Meant to say the injection didn’t work The doctors just stopped it . Amazing news … hopefully I will be you in the new year. 🙏🏽

[@ambermitchell3434]

I get my first injection Monday! I am praying it will be my answer.I have been on so many steroids and they clear my skin then they come back it has been horrible. I am in the USA which required 6 month of steroids prior to cover the drug!

[@sonjasleator7582]

I wish you all the luck! 💫

[@brianbanks3044]

side effect of Xolair...$30-60K a year in the US if you don't have insurance

[@mytourandtaste1277]

Hi Sonja hope you are fine any updates on urticaria I hope and pray that urticaria is all cured now after the xolair injection. Even in this winter nothing has triggered I believe. Let me know any updates my dear I am trying to get one. I am also suffering from angioedema I am not sure if that xolair helps curing that aswel along with urticaria. Do let me know thanks

[@sonjasleator7582]

Hello, yes I am still doing okay! Everything is still settled and the cold weather hasn’t bothered it either. I just continue to hope I stay this way 😊 I hope you are doing okay x

[@kuldeepkumar-pm7zf]

​@@sonjasleator7582 hey what if you get those hives again will it willl safe for going xolair again?

[@regiz5358]

We have exactly same problem with chronic urticaria. but I need to go see an immunologist

[@sonjasleator7582]

Give it a go and see! Fingers crossed they can give you some answers x

[@regiz5358]

@@sonjasleator7582 i did go several times with tests and blah blah blah and asked, begged family doctor to give something else other than Claritin because wasn't helping and guess what she said? Zyrtec and i never went back to her. I switched pratictioners.

[@regiz5358]

@VIRTU G. so funny that you text and said that because I just met someone and he told me his friend had hives like me symptoms and doctor gave XOLAIR as well. Making an appointment with family doctor and getting referral for an allergist for SURE!!! 💯 CORRECT! I also heard that hidroxycloriquine is amazing as well. Thanks 😊

[@maria000111tiger]

So I'm supposed to start xolair injections soon. Are they a cure to the hives for most or is it a monthly injection for the rest of your life?

[@babybluecheeks]

I've had urticaria angioedema for 3yrs now and I've been on Xolair for nearly 2yrs, it's not as bad as it was before the injections but it's still bad.

[@star-fh4ck]

I don’t really know if I have chronic urticaria, 4 four months ago when I ran the mile for my gym final, I started getting crazy red and itchy hives EVERYWHERE. It hurt so bad I didn’t know what to do. It only really happens if I sweat or just heat up in general, can’t take warm showers or get to excited anymore or I’ll risk having an attack. Do you know what I should do for this, it’s really upsetting! But I’m so glad you’re all better :)!

[@sonjasleator7582]

I have heard from other people that their hives only come out due to heat. I hope you can keep them at bay and keep cool whenever you can x

[@avishaigutman8056]

Hi this type of urticria called cholinergic urticaria and its almost the same but it easier that you know what causes you the hives and you can avoid it, do you take antihistamines?

[@star-fh4ck]

@@avishaigutman8056 no I don’t take anything for it, as of late. I haven’t had much hives anymore despite it being very hot. I think it might have been a fabric I was allergic too or maybe dust.

[@regiz5358]

I deal with urticaria daily since 2001

[@jojo63920]

thanks Sonja

[@TheMinimalistMom1]

Thank you

[@qu33niemonroe64]

Same I change everything still got them I even stop wearing makeup

[@HarrisMukhtar]

Thanks for the info, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria/angioedema was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!

[@Oogieone]

Have you had Covid? When I had it it really flared my angioedema and urticaria because of my mast cells.

[@giskenamanda]

Do you have Mcas?

[@kingmulahoo4925]

I have type two diabetes and I experienced the same symptoms of itching that you do I guess the itching might come from a hormonal imbalance , diabetes is a hormonal imbalance toO, the itching must just be a part of the disease progression of diabetes

[@MsDylan32]

Do u think I should let the doctor to let me take the 4 injection. Maybe it might work for me. But he seems it not for me. As I still erupt thru injections. I am so happy u free from this horrible disease. It’s been since June.

[@MsDylan32]

Hi I just got to see ur video. And I have had the same diet, on steroids for months now. I got my 3rd injection of Xalior. Spelling.😊, but it’s it healing me. I now have the same as you but unfortunately the injection is not working . I now have to go a different route as the consultant says. He just stop my injection. On steroids , antihistamines Fexofendane . Only steroids help . Any advice. Cause I know it help u the injection. In agony. Danielle , thank you for the injection

[@manishchoudhary2014]

Dear sonja, i get itching and once i start itching skin starts getting long lasting rasehs....but whn i take a tablet (Montaire LC) this itching get suppressed within 10 minutes but the entire circles starts in next 2-3 days... i mean to say i am on montair LC( 2 to 3 tablets a week, since last 4 years). Does it( such long use of montair LC) have a side effect? Best Wishes from India.

[@qu33niemonroe64]

I had hives for 2 years

[@sandy-us6ig]

How did you apply for xolair. And is it free

[@ridhisudha3424]

I am suffering from thi past 3 months and i am not getting cured any suggestions on this?

[@sonjasleator7582]

Try speaking to an immunologist doctor x

[@sandy-us6ig]

Total how many injection did you take

[@Justmeluv-f6i]

How did you get off the xolair and not get rash back. I went without it for two months and it started coming back

[@pepsiman4418]

She got 6 injections, how many did you get

[@Justmeluv-f6i]

@@pepsiman4418 I been going to get them for 4 years two injections every month and suddenly the copay assistance didn’t want to cover the copay so I didn’t get it for a month and hives came back

[@sandhyanarendra4965]

Name of the injection?

[@KishBish]

Xolair

[@regiz5358]

21 years of hell

[@CharlotteLane-we3fj]

Thank you so much. I got CU 15yrs ago for 12months (including hospitalisation for it) it disappeared then returned 6 weeks ago, waiting on NHS immunology appt, I will asking for Xolair!! ❤