Clinical History - Cushings Remission | UCLA Pituitary Tumor Program

[@AB-83]

My sister has been struggling to find a doctor that will listen to her. She is 39 and has almost every symptom of Cushing's. 3 doctors so far and they dismiss her as a fat girl. She is to the point of not wanting to live anymore. She has 2 beautiful boys that she wants to be healthy for. Please, do you know a doctor that will listen to her? I can't watch my sister live like this anymore.

[@AB-83]

@@justsimplyme7488 My sister lives in California.

[@justsimplyme7488]

Angelique Barsby Dr. Theodore Friedman believe he is in LA. He is number one or two in whole US

[@AB-83]

@@justsimplyme7488 I think she found him awhile ago. He does a 30 min skype consultation for $300. She will save up and do that I believe. Thank you.

[@justsimplyme7488]

Angelique Barsby good deal he is the man

[@justsimplyme7488]

Angelique Barsby God Bless you and your sister and your family!

[@mememe123]

I'm 22 and currently being tested for this. I cannot leave my precious daughter 😭

[@aminalokhat9401]

I have all the symptoms only tested once i gained a lot of weight type 2 diabetes hypertension and lots of other issues

[@Traditional_Foods_Across_World]

Why cant we check the cortisol level directly in blood to know about cushing syndrome

[@Texasishot105]

I have so many symptoms of cushings. My Diabetes nurse practitioner feels strongly that I have this, but my thyroid cancer Doctor did 1 suppression test and said no. I have diabetes #2, autoimmune disorder, thyroid and 3 tumors removed due to Hashimoto's & cancer, I've lost considerable muscle mass, thin legs/arms, fat belly, stupid hump... the list is ridiculous. Any suggestions? 😳

[@justsimplyme7488]

Christine Kilpatrick keep searching for an Endo that will exhaust every test. They are out there. I found one

[@lorenalovesya5089]

It was a pit tumor..recovery has been really hard ..everything hurts

[@justsimplyme7488]

Lorena lovesya I know what you mean! I was adrenal but joint pains and stuff! Wow

[@lorenalovesya5089]

@@justsimplyme7488 Hi am glad your feeling better..am still very weak..my body aches horribly..in bed most of the time ..my swelling on my legs n feet hv gone down ..my buffalo hub as well..am physically and mentally drained..its hard to have a good day when yr in so much pain..i can smell and taste a little ..my nose is still a little cloggy ..lol..have to use nasal cleaner everyday..I never imagined my recovery to be this bad ..there is times where you wonder till when??

[@lorenalovesya5089]

I wish there was more information out there about the recovery on cushings afterwards...because all I get is everyone is different and it just depends...omg..lol..we have to hv somethings in common..

[@nopainnogain7358]

Caffeine?

[@icekng456]

Just found out about this disease, i have most symtoms, round face, hump, thin arms etc, but i always looked like this lol, i dont know if i have it

[@Marilyn88-]

Where are you located? I had Cushing's Syndrome and had an adrenalectomy in late October 2019. I am getting back to regular things now. I started yoga about 6 weeks post surgery. My hair was thinning since early October. I had hyper-pigmentation on my neck, chest and upper arms, i started gaining weight in May / June and ballooned-up in July 2019, bloated all the time to the point of being uncomfortable. Had to urinate all night, and I could not sleep. Started having muscle weakness in my legs in June, i still have some weakness and my skin is different now. It's going to take some time to get back to normal. It took a while to diagnose. My cortisol levels were elevated but my GP did not suspect anything until i started showing him my buffalo hump and pointed out my moon face and the other symptoms. He sent me to an endocrinologist and in August, we started down the rabbit hole. The problem with every step of the way, was getting authorizations to see the right doctors and having them go "in network". I am 54 years old and i've never been through anything like this before. I hope this helps anyone who needs it. Good luck. My surgeon was wonderful. I am in Oceanside, and so is my doctor, if anyone would like a recommendation.

[@cccs4856]

@@Marilyn88- can you tell me if it was steroids or a tumor that caused yours I've had the buffalo hump since a kid and always felt sick never knowing what's wrong now I'm 25 feeling god awful I researched my buffalo hump and I have every symptom of cushings I see my endo the 15 of this month to get the ball rolling

[@Mithridates_7]

@@cccs4856 did you get checked? I got the damn hump to man hahsh

[@cccs4856]

@@Mithridates_7 not yet, 12 more days. I f'ed up, thought my appointment was the 15th of last month. It's the 15th of this month. Hopefully it's not a long process trying to figure all this out. Yeah man, my hump is huge. 🤣 joke & serious. Damn neck feels broken

[@Mithridates_7]

@@cccs4856 yeh could be anything but if it's this syndrome it be nice ro fix it. My dad, brother and mom have the same damn hump. But im tryina check myself now. In 2 days