Cystic Fibrosis clinic! The good..and not so good

[@dakotahajipour7303]

I am an MT, meaning I run bloodwork at my local hospital for a living. They are not elevated enough to worry right now. But you are right take it easy on things that will damage your liver since the meds do that already. When you get up in the 100s or more than you want to worry and think about liver failure. Good luck and it’s amazing how far you have come!!! ❤️ from Florida!

[@jennifercottrell7991]

I am an MT too and I agree. Just something to keep an eye on but not life threatening. Alot of medications can cause liver damage.

[@jennifercottrell7991]

Please don't panic. You are OK!!

[@jlcollins7673]

So glad to see someone on here comment about the levels! I was hoping someone would know more about that!!!! My mom is a FNP, and when I asked, she wasnt comfortable telling me one way or another, as these levels would mean something different in certain circumstances.... I'm so glad you commented!!

[@brandonluna5889]

1:56 the way he said four was so funny to me!!

[@blondechick9804]

I’m praying you stay healthy and only keep getting better! You deserve to finally live . You have spent your whole life waiting to die now you don’t have too you can spend the rest of your life living . I love when you said I wanna do something with my life that my friends couldn’t do because they died and I’m the last one left. That’s awesome of you and you need to do exactly that. Btw I think you look great with the weight you really do!!

[@sadie4me2]

I don’t know if you’re religious or not but I am and therefore I am going to say a prayer for you that you can continue to succeed and stay healthy.

[@TheNoonie50]

Yay! me too.

[@springalingading]

Me three

[@mari0nhYT]

Dude! I so envy you right now. I have asthma and I only blow 75%. But at the same time I'm very happy for you. I wish you all the happiness in the world and just keep them lungs going :D

[@gwgwalexandrou]

asthma squad 🌻 Some day we will be okay ✨

[@kittenspuppiespsychictarot3873]

Do you ever have abnormal gas exchange on your test or just abnormal fev1?

[@Bluef1re]

Hey Morgan, I'm in the same boat with the bone zone. You mentioned working more vitamins in, try checking out Vitamin K2, or definitely look into it. A bunch of positive research on it for bone health. It's role is to take calcium out of places you don't want it and directs it into the bone. Taking 120mcg myself. Great job on the videos!

[@christopherforder8966]

I think your attitude on life is amazing.

[@michelledodge6739]

Morgan! "Don't worry about a thing, 'Cause every little thing, is going to be alright"! I am sending you all the healing power the universe has to offer! Your fans are here if you need us! 💜

[@zoedean5435]

I am so happy to see you continue to thrive and enjoy your life!

[@TarotandArtbyCharity]

Sending you good vibes and positivity for your liver enzymes to go back down to normal. Loving the vlogs. ✌️❤️😊

[@G3NK5T42]

Charlotte has the absolute worst fucking traffic I've ever experienced! Dumbest roads and fwy on/off ramps as well!

[@amyt4ever2]

You got this man! Sending positive vibes your way!

[@sinjon]

Just go for a walk with Stephi and Ember a couple times a day. There’s your cardio

[@cyasoon8766]

Im praying that it was Just a bad day.... keep being positive. You got this. Much love to you and Stephi!!! 🙏🙏💖

[@christierella]

“I need some more confidence, than that.” Roflmbo

[@MrGigihp]

You're doing great! So proud of you!

[@barbarahenninger6642]

I'm so glad you're doing well. A fun cardio is Zumba. In California, we still can't do it together in person, but when we can, I'm going back for sure. I'm 73, and I have osteoporosis.

[@toiyablair1678]

Sending good vibes your way man!

[@jlcollins7673]

I love that they were able to tell you that you had gained a little too much weight!! You spent your life thinking that would NEVER happen!!! (Also, that is a very health professional opinion. Lol....Most everyone here would agree that you look amazing!) I was breathing with you and kept thinking...dude...he breathes better than I do!!! Keep it up!!

[@chloepoudrier9309]

My biggest hopes and thoughts go out to you, Morgan ❤️

[@GamingNinja1998]

I have high bilaruben after trikafta, my doctor said to not worry the worst that will happen is you take a slightly lower dosage.

[@franim4368]

Sounds like some good news, some diet and exercise tips that you can work on, and now just see what the doc says about the rest. Maybe those numbers fluctuate. Prayerful and positive. Live life, handsome young man. I have kids your age. Love seeing how you and Stephi have set up such a nice home. Keep going, honey.

[@dixieh5555]

Love and light coming your way!

[@Stephlovesnapping]

I feel ya, I HATE that machine!! Always dizzy & ready to pass out when I’m finished. I have PAH & haven’t blown better than 74% in over a year. Not being able to breathe properly sucks! Glad you & Steffi have Trikafta. Hopefully someday soon they can find a cure for PAH as well! Keeping you both in my prayers. ♥️♥️

[@tracymurray7314]

Wishing you good health!

[@CysticFibrosisFit]

08:15 ... this almost brought me to tears... I got you there the full 100% Happy to see you're way better now! Greetings from Belgium! ✌👋👋

[@CysticFibrosisFit]

Btw, to lose weight, You might want to check out ; " Greg Doucette calories" Funny how all of a sudden you need to lose weight right? Still waiting for trifecta

[@joepoppenhagen5694]

Have severe C.O.P.D. Need to do a neb. every 6 hours. I could never do a test like you did. Good for you!

[@megshafer3961]

May you be blessed with a medication like Tricafta.....afterall, COPD has only been around since the 15th century....time for COPD patients to be given some breath....take care, stay safe!!!

[@amyrushent8400]

Good luck Morgan! I'm sending good vibes your way and hoping that all works out with your tests and medication. Your outlook on life is very inspiring for me, and I love watching yours and Stephi's videos! Keeping being awesome

[@riaavelar8491]

I am so happy that your health has improved so much. ❤️

[@ksmith7402]

You’re doing great Morgan love y’all!

[@vibrant_vinyl1586]

Bro your getting 95% on your lungs! Thats super good i can barely pass 50% in school. XD

[@mmmmlllljohn]

Prayers for your health - take care. ❤️🇨🇦

[@asalwaysali]

Sending you positive vibes Morgan!

[@laurajanebradford4104]

You are doing amazing! Great job!

[@TheBrannagan]

Bro, you're a fucking hero in my book.

[@MrGigihp]

Was literally blowing with you!

[@jlcollins7673]

Same!

[@jodiemorgan8063]

Every time I watch you do your lung function test I breathe with you. One day I’ll pass out and scare the shit out of my spouse, lol 😂. Good luck with you liver function test results. I’m 46 don’t drink or do drugs and have cirrhosis (I’m a Coeliac with diabetes - yahoo), so I understand why your doctor is concerned.

[@redeemedbythegraceofgod9244]

@Jodie Morgan I was thinking the same... nothing like having empathy 😊💜

[@jlcollins7673]

Omg! I wondered if I would find this in the comments! I was doing the same thing...thinking...this guy breathes better than I do!!!! I stopped exhaling SECONDS ago!! How is he still going!? 😂

[@hayleymarse2853]

Do you have type 1 or type 2? (I’m type 1)

[@jodiemorgan8063]

@@hayleymarse2853 I’m a type 2 diabetic

[@susanmargaretwills6432]

Hi Morgan I'm a 65-year old lady... I went into menopause extremely young due to surgery (36yrs) - I took no hormone substitute and spent years worrying about osteoporosis 4 no reason! Have recently been told that my bones r hard as rocks (not that I advocate not using hormones etc if prescribed by ur Doc); young people, especially girls, during their growth years should drink plenty of milk etc (no silly diets) cos the calcium helps in ur later years - but even 4 who is older "keep on slurping those milkshakes"! Best wishes from Italy

[@myssakay]

I also have a congenital chronic health condition and just had my levels tested yesterday. I got not-great news today too. Not panicking but I am upset. I hope you find a good compromise!

[@mikaela3628]

NAKE NULA WAUN WELO! 'IM READY FOR WHATEVER MAY COME'! You got this Morgan 👍

[@ioannah.]

Weight training actually increases bone density, and also weight bearing exercise, so go for runs!!

[@jlcollins7673]

Does it? I have friends who developed horrible stress fractures from running. Interesting to know it strengthens bones! I had no idea!!

[@ioannah.]

@@jlcollins7673 yeah it does! I have CF and when I developed osteopenia a while ago running and weight training was recommended to see if we could put off medication, cause the medication for osteoporosis is quite hectic. weight training and exercise where there is some kind of impact is good, like dancing, running, boxing etc. It seems like it should do the opposite but putting some stress on your bones actually strengths them. Did you friends not have really bad osteoporosis maybe? Cause running shouldn’t to my mind cause that kind of damage with just osteopenia (I’m not doubting you! Just asking)

[@ioannah.]

@@jlcollins7673or I’ve heard that going too hard too soon can cause fractures

[@jlcollins7673]

@@ioannah. this happened while we were in HS. They were on the track team, so it may very well have been from going too hard too fast....I just remember how absolutely miserable they were!!! Thank you so much for sharing all of this info!!!!

[@ioannah.]

@@jlcollins7673 definitely must have been from that then!😂😂 Pleasure, glad I taught you something new😋

[@ChevieBabySalvatore]

Blessings and Prayers Morgan 🤘🏽💙

[@tinyghost90]

You got this it will all be fine!

[@saraschutz812]

My son had his PFT today. I need to check the results. He has bronchiectasis. At 13 years old and does 75 minutes on the treadmill daily.

[@saraschutz812]

FEV 1 was 💯!!

[@emmaberndtsson4229]

Hi from Norway, I love your channel💖

[@zenseed75]

Time to research everything liver and take care of yourself, food wise. There has to be a way to stay on Trikafta and lower the numbers.

[@shelbyvanhulle6047]

When I went through my cancer treatments one of the drugs I was on the side affects are full body spasms and it only happens when I'm trying to sleep. So right when I'm just about to fall asleep I will have a spasm and then it wakes me up. Also doing those breath tests sucks. I had a tumor in my right lung that took up 80% of my lung capacity.

[@bridgetobrate5685]

You look really happy!😁💪

[@tomgreen5701]

What camera do you use to video

[@MorganSolo]

Canon G7X Mark I

[@MorganSolo]

But I also use my IPhone, GoPro Hero Black 5 and for “sit down” bits in my stream room, Sony A5100

[@melissacoburn6873]

I'm sending positive positive positive positive positive positive vibes...❤

[@alyssawssinging4039]

Hey very happy for u with ur chronic illness mine is taking a turn for the worst I have gastroparesis

[@ServiceDogRosie]

Morgan, with those slightly elevated they will probably change nothing and just monitor the ast and alt with weekly or biweekly labs

[@MorganSolo]

Yeah, that’s looking like the plan.

[@ServiceDogRosie]

@@MorganSolo mine were 2xs normal last labs 2 weeks ago.. 2 drs flipped out and I was worried but I get new labs tmw

[@tiredandcaffeinated]

Hoping for the best for you, Morgan! 💜 Hopefully with some diet changes and maybe some liver meds in addition, you'll be just fine. 🤞🤞🤞

[@tima3]

Weight bearing exercise helps counteract osteopenia. Just try to keep the benching under 400 lbs. Good luck with the liver!

[@MorganSolo]

Damn. I was gonna try and hit a PR of 500 on bench! I think I could make the jump from 165. Easy! 😂

[@abbykuusisto9902]

@@MorganSolo I Hope you, have a great weekend!

[@claragiraud2280]

Thank you for this video ♡

[@cassandrahughes2897]

You got this !! And if it helps break the ice a bit I was scrolling and at glance your thumbnail looks like your recording a really badass song at a recording studio .. lmao your rap name can be chocolate daddy (anyone who hasn't seen get him to the Greek to appreciate that joke we can't be friends sorry not sorry I have standards lmao)

[@riju3184]

I have a new dx (well 6 actually) of eds and the osto is kinda the same for us.

[@courtneywalker3610]

Why doninalways feel the need to hold my breath when you do these? I don't have cf... Strange

[@evad8262]

You can get your bonedensity back to perfectly normal: D3 (>=50ng/ml), + K2 + Magnesium+ Boron. All the best to you!

[@TW10Si]

I hate that box for pft’s when I was a kid I always used to think I would get stuck in there lol

[@ronedwards2584]

When you drive from Ashville to Charlotte, Do you pass through Statesville, NC.? From I-40 to I-77.

[@abstractswirls]

A whole food plant-based diet with lots of raw fruits and veggies helps the liver heal 😊🌱 along with herbs great for the liver such as milk thistle, burdock, dandelion, yellow dock root, ect. There are great liver support herbal supplements one can buy at a health food/natural supplement store. A healthy diet and lifestyle (especially plants and no animal products) along with no alcohol is key to supporting the body feeling better 🥰🍇🍓🍊🥬🌱🌿 sending love!

[@docsspeakeasy4796]

@Cystik1 hey man I just got my liver enzymes tests back and mine were very slightly elevated but they weren't too concerned. So you know how you're not supposed to eat grapefruits because of the way your liver metabolizes it blocks certain pharmaceuticals from being broken down the right way and spikes your liver enzymes, well it turns out CBD does the exact same thing so when you're smoking pot or eating and edible you have to make sure it doesn't have CBD in it because it will fuck you up!!! I made the mistake of starting CBD and Symdeko on the same day without even realizing the effects and after a week my liver actually became swollen and my enzymes shot up like crazy so I had to stop taking it for almost a year, you and Steph be weary now

[@michetrue-aspoonielife4me389]

Sending you positive healing vibes Morgan. I know with med's they affect the body & throw the liver out of wack. At least with me it did, my ALT was 180 & AST was 98 cause of my meds. 🙏☮🌻💜 📿🕉 positive intentions & light so it gets sorted.

[@diddydougles]

I had the same my drs told me I was fat. I kinda liked it. Like you I never thought I would ever be told to loose weight haha. Good blows though pal 👍

[@SassyUnicorn86]

NC represent!!!

[@QEnKA1989]

I had problems with my liver and started taking a supplement called choline which I bought on amazon. Obviously speak to your dr before but it helped me and bought my liver test to normal. Let me know if you need any other help finding it 🙂

[@Eltupper]

What was your fev1 before? Mine didn't really go up with Trikafta.

[@robertedge6902]

Live life to the fullest every day. Today is all we have. Just keep kicking butt. Tmro......?

[@debbiebowen9834]

What were your numbers pre tricafta? Just curious

[@catloverKD]

Alternate beer and water on stream. Make Stephi and your liver happier.

[@stephansieber4963]

Also have the same story regarding bone density. Started bisphosphonate shots two years ago every three months. Those are not funny, felt like 70 for two days but got used to it after third shot.. Hope you can avoid that. I would also not stop weight lifting, it can increase bone density.

[@CysticFibrosisFit]

Just finished the video... And I want to add something; IF Tricafte is the cause, maybe it's a possibility to take it a few weeks,stop it, and start again etc? Just thinking out loud, but maybe that way you can restore your values and still have the benefiets? Just ask the doc pls, also good to know for me for in the future (hopefully)

[@dominiquedion2443]

Ugh. I hate pfts. Drooly, hot, and lungs are on fire. :(

[@donnaingle5479]

Great news

[@pattyfluegel7816]

Hope its all okay. I wonder if there is any middle road with Trikafta practically speaking. Like if ones liver could not handle it wouldnt taking it every other day make you feel better than not at all?

[@tamberjune]

Loved "some boring doctor talk" lung function drops from fat! Hahaha I know! I'm here losing weight and stuffing my face cause I have COVID-19. I have osteoporosis too. It's not fun but I danced on it for years! My mental health was/is important. I didn't even get 95 since I was so young. My Alone phosphatase is always high ALK all mine do too

[@allalone1461]

much better? lol, now I will check the furniture.....and that PFT would be hard on a well set of lungs, always keep in mind how you feel, doctors are great but they are for profit and so is the hospital's diagnostics....that's revenue. be well

[@kerrimccauley3683]

So what does that mean though? Talking about your liver, is that reversible?

[@Kanaloli]

Man I freaking wishhhh it took just an hr for the yearly check up it takes like all day for me😂 Edit: I don't wanna brag buuuut😗 I normally get around 100 and recently it was 119 with the new meds ya know the trikafta

[@kathymcintire6182]

That's really awesome 🥰💚🥶💞

[@GamingNinja1998]

gg you seem to breathe in super fast at the start, try breathing in for a few seconds before blowing out, really fill them lungs brother. I think you got 100-105 easy.

[@claudiaallison75]

So hoping your call is an okay one, just small mods. And it will improve. 🙏🙏

[@CanadianMum444]

I know you said you’re not panicked and you mentioned not praying etc but is it okay i I pray for you? I’m just a different kinda weird 😉 lol. I don’t have cf but I do have liver issues. There are things that you can take to make sure your liver can work optimally and clear out as much of your new med as it can and yes, even though you don’t look even “chubby” lol to me(I’m a wee bit chubby(I think but others tell me I’m not so maybe my knew glasses r wrong lol)) but being within your Bmi range helps your body too so just clean but enjoyable eating and then tolerable cardio ((I’m NOT a healthcare provider. I’m just sharing what I’ve been through. And nobody thinks I look my age but I’m decades older than you lol so.))You don’t need to freak out in my opinion(speaking as a mum with kids in your age range) when my bilirubin is elevated due to the enzymes, I’ll get yellow in the whites of my eyes and my face and skin, etc. And I don’t think I’d see that thru a video on you myself but just guessing you seem like your a good colour if the camera you use is fairly good. But again, that’s something to just take a peek yourself once in awhile and it can just be a sign you may need a checkup sooner. BUT I’m praying you don’t have to go through that!💜 take care hon.

[@paulrush4545]

BRO I LOVE YOU, I APOLOGIES FOR SAYING SOME REALLY MEAN THINGS, SORRY GUYS I HAD THIS CRUSH ON STEPHI AND I GOT JELOUS . I REALLY SORRY BROTHER

[@tysontickner3655]

Start taking milk thistle if ur having liver issues it will help

[@KateCarew]

DEXA scan is correct Osteopenia is also correct Don’t doubt yourself, you’re very well versed and competent. Trikafta is one of the most mind blowing drugs I’ve ever witnessed 👀

[@darbonixmaximus338]

Please no snap bones but live the life you love love the life you live

[@stinkfloyd1]

You should've started singing into the tube.

[@razz4taz]

Just had to do this last week. Feel like I'm gonna pee my pants! Lol

[@trindashort1545]

Hi I’m stephi lees friend Trinda lee 😀

[@Hannah-hx5sp]

Uneducated doctors though... damn. Not every session in a weight room is like what you see on WSM with the dudes popping a nosebleed. Lifting weights will increase bone density and can help improve disease like OP, arthritis etc. Strong muscles support your body better leading to less risk. Doing it wrong, or too much will injure you of course but that shouldn't be a reason to forgo entirely. You can fuck your spine up doing almost anything...heck, I slipped 4 discs getting out of bed... I've been on methotrexate before and its very hard on the liver. Hopefully there is something they can do to help it.

[@donnataylor980]

I'll be praying for you. You need to drink a lot of water. I'm a firm believer in that. I love your videos. take care

[@chelscidpfighter5980]

I also have osteopenia, it’s no biggie. Just take your calcium and vitamin D

[@mygirldarby]

This might be of interest to you. www.hopkinsmedicine.org/health/wellness-and-prevention/calcium-supplements-should-you-take-them My moms friend was diagnosed with osteopenia and put on calcium supplements. She developed a kidney stone and they think the calcium supplements were tthe cause. In countries where very little dairy is consumed, like japan, they have very low rates of osteoporosis. There is some evidence pointing to calcium supplements causing more harm and no good. Drinking cow milk and eating aa lot of cheese also seems to cause osteoporosis rather than treat it.

[@madie72451]

💙🙏🏻🙏🏻🙏🏻💙

[@zscalescottie4061]

Can we still smoke B's and breathe. Lmao. Respond to my I'M. My home stomping ground is on the other side of the mountain in Gatlinburg.

[@rebeccamartin1858]

Guess it's time to get back to being vegan. Everything I've read about lowering those liver levels pretty much suggests less alcohol, fish oil, and not eating mammals and processed foods. So, wanna go get tacos? ,🤪

[@ahoward3819]

I get not living your life worried about ‘what if’s’ but there is such a thing as using some common sense.

[@jlcollins7673]

What? Isnt it evidence he uses common sense? He has made it this far and is doing amazingly well!!!!!

[@ahoward3819]

@@jlcollins7673 Just him saying whatever is going to happen is going to happen as a response to his doctor saying he should not power lift heavy weights as he could crush a vertebrae. So he will continue to powerlift against doctors orders. If you crush a vertebrae you could lose the ability to walk! And if you crush a vertebrae because of low bone density odds are your bones are too soft for most repairs to be done easily so you are screwed- because you did not use common sense and listen to your doctor. I agree tho- I am super happy for him that he is doing so well!!

[@zscalescottie4061]

Turkey stuffer.

[@janina8559]

Try switching to Edibles 🤣