Do I have lipedema? Signs, symptoms, and getting help

[@sakurifears859]

I had breast reduction surgery in January 2024. In my post surgical notes, the surgeon noted, "Stage one lipedema legs." I never heard of it. Did some research, and yup! The issues with my legs (swelling and weird fat deposits) and too big for my body arms. I just thought I was built badly, and it was exacerbated by my Lupus disease. Nope, lipedema. My rheumatologist and primary care doctors told me there's nothing to do about it except to lose weight and exercise. They were wrong. Lymphatic massage, dry brushing, low carb eating, and castor oil massages are starting to make an improvement. Keep healing ladies!

[@sblb9852]

@sakurifears859 while many people with lipedema have swelling, there is no edema in lipedema = just a poorly named condition. Please get checked for venous insufficiency because that is usually the culprit.

[@Robin94123]

I'm ready to cry. I had no idea. What a complete list, Calves, boots, even at 16 and 125 lbs and 5'8", flexibility (I can palm the floor at 52 with no streatching, , people my knees hyperextending my knees, TSA, hips and arms, I also had swelling once after a long flight, but it lasted for days, huge quads, a nodual on my arm, dogs walking on me., bruising, blood pressure cuff issues, .. doctors never said anything .. :( I'm so sad I lived so long not knowing and feeling. I've lost 45 lbs and I'm currently fighting to keep Mounjaro. Now that i know this I know that I'm 100% the body type. It is so noticeable. I can't believe that Doctors really ignore people who have weight issues. I'm literally crying right now. There were signs 30 years 150 lbs ago. Years of paid, struggle, guilt. I really can't believe that not a single doctor knew.

[@sturdywoman]

We know exactly how you feel @Robin94123! Lipedema so common you see it everywhere once you know the signs, yet doctors just don't know and, if they do know, they don't think there's any hope. Have you found my conservative treatments playlist? kzbin.info/aero/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS There are a lot of things we can do at home to start feeling better. Let yourself have as many good cries as you need to first, though. I certainly had grief over "what could have been my life" at the beginning of my journey. The good news is you found your Sturdy sisters ❤❤

[@colleenovo1084]

I agree. Totally me too. Everything resonated. Even the flexibility which had caused knee issues.

[@mags8749]

I know how you feel 😭 I’ve never worn shorts due to the insecurity..hate it!

[@karenpartin9130]

At 67 years old and just now finding out about this...I know how you feel. All the years of beating myself up for being "thicker" than everybody else, all of the sparky remarks about my weight and my big arms etc., all of the sadness at what could have been especially now since I'm older and feel like I'm climbing an uphill battle to try to fight for myself while feeling awful every day.

[@askew9976]

Me too! I just discovered it, for me. I’ve heard of it from others. Never considered myself. I’m in tears.

[@raedarden9830]

Boots. Yup. Wings. Yup. Blood pressure cuff. Yup. At 80, it's most likely too late for me to pursue the remedies. But will begin investigating. So psychologically freeing to finally understand... after decades of fat-shaming...from doctors and elsewhere. Thank you!

[@JanetMacCallum]

Even if you wear compression stockings, this may relieve your pain and manage it - particularly made to measure stockings (but they are expensive)

[@raedarden9830]

@@JanetMacCallum Thank you for your thoughtful reply. God bless.

[@lizstuartgunn8551]

​@@raedarden9830oi 3:11

[@alexr6114]

There are people in their 80s that start a keto or carnivore diet who lose large amounts of weight and who reverse diabetes and autoimmune disorders. It may be worth a try even if you simply lose some weight and are less sensitive to pain.

[@sturdywoman]

@raedarden9830 it makes a huge difference doesn't it? Just knowing that you aren't crazy and there IS something wrong with you. Sending you big hugs. As others have said, there are still things you can do that will improve the quality of your life quite quickly. Have you found the videos in my Conservative Treatments playlist? kzbin.info/aero/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS 💕

[@Emblem3Fans]

Great info! I cant believe at 62 after years of body shame, I am just learning I have lipedema.

[@sturdywoman]

@Emblem3Fans welcome to the club! You found your people! The good news is that now you know there is a lot you can start doing that can improve your symptoms. My conservative treatment playlist provides some inspiration kzbin.info/aero/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS

[@cate17]

I’m 68 and have spent my entire life hating my atrocious legs and upper arms I now firmly believe I have lipedema. The mention of the pain when pressure is applied ie a cat or puppy walking across my lap has me utterly convinced.

[@metalbarbie7226]

I just found out that I have this condition at 53 years of age

[@bxxmb80]

Same here.. Im 59 and i scoured the Internet and found out about lipedema only to have Dr confirm it with just one look!

[@libbysmithstudio]

Same!

[@SisterPatGoad]

OMG this is what I have !!!!! I almost scream with pain when getting b/p checked!!! I have all the symptoms.

[@dawnking2662]

me too i nearly hit the roof and i got lyphadema in both legs

[@obedirect5491]

7:18

[@virginiabaker4471]

Yep and bruising afterwards 😮

[@holistic.health]

Me too... and worse... i have had my skin pop from a tourniquet for drawing blood...

[@Katiediddance]

It's not for everyone, it's expensive and has risks however, the thing that has worked for me (my "thunder thighs with extra saddle bags") was liposuction. I know this is a controversial idea but I decided to try it. It took 3 proceedures and has helped me enormously physically and emotionally. Again this is only my personal annecdotal sharing and is not for everyone but maybe can help some. Love to everyone here, the challenges are real and difficult but you are an entire person, not how society perceives you to be. Be well.

[@Oyuki-Mayonesa]

How much did you pay?

[@lisafreeman2810]

I'd consider lipo. Were they even able to get down to the "cankles"?

[@gloriagi9499]

There's also nonsurgical lipo - cavitation. It might be helpful for some folks and it's also cheaper

[@lisafreeman2810]

@@gloriagi9499 I hadn't heard of cavitation, so I looked it up. In the description, it says it can leave an uneaven, dimpled effect due to the fibers that hold the fat in place. In addition, it says that cavitation isn't very effective for cellulite. I'm wondering if anyone can report with personal experience using this method for lipedema.

[@vespersongs]

I'm trying hard not to cry through this whole video. Thank you.

[@sturdywoman]

@vespersongs belated welcome to the club! I hope learning the word "lipedema" has helped you start finding answers and start feeling better ♥♥

[@HumanGoodOne]

All signs and symptoms you are describing are about ME! I'm new to it and I'm 58 I just opened this whole lipedema planet for myself, and I'm thrilled that it is not just me doing something wrong or eating, not healthy, or being lazy towards exercising, etc. Thank you, thank you for being so open about yourself. I signed up for your channel, and I'll be watching your videos now backwards 🎉😂❤ P.S. My mom had it and never knew about it. I wish I could tell her that now. She lived with pain her entire life. RIP mommy...I miss you. P.P.S. my bruises, pain during BP measuring, my small pooch walking over me or on me, pains during ultrasounds from touching me with pressure. People grabbing me by hand above my elbow can here me scream a mile away...I will yelp from sharp pain. Some people think I'm a drama queen... my thumbs are very bendy, so is my legs( I can lift my leg up to my counters even when I was very pregnant and I'm not a gymnast). 14:28

[@dixiechic60]

Thank you for linking the lipedema with Ehlers Danlos. I never knew the two were connected. Thank you!!

[@susant8555]

I need to ask you and others about going through menopause. I went through menopause in my mid fifties, no hot flashes, no night sweats. Now, ten years later, I am overheated and have night sweats. Again, I am at my heaviest weight now but I had lost some weight, gained it back very quickly and started having more problems with my right leg swelling, no it totally matches my left leg. Thank you all for letting me post this much. I am blown away.

[@MelanieFromCanada]

I wanted to make a second comment. Most people (it affects not just women) have it at quite a young age. When I was 24yrs old I quit smoking and it changed my hormones enough to trigger my lipedema that was laying dormant in my body. Before that I had a really nice figure with no pain or issues.

[@megbeller7981]

It wasnt quiting smoking. It was just your hormones changing as you age.

[@babylemonade000]

Wow this sounds like me

[@doreencappello1530]

@@MelanieFromCanada I was very young now that I think back. My dad took me to every shoe store around, and no one had boots to fit my legs. I was diagnosed just a few years ago and I am 63. The doctor said there is nothing that can be done

[@kellyanng2215]

My mind has been officially blown. This is me. This is me! I'm not crying you are...

[@sturdywoman]

@kellyanng2215 you found your people! Thank you for being here. Knowledge is power

[@skru2476]

same. i am blown away, overwhelmed and almost in tears.

[@carrikartes1403]

Lipedema has to do with estrogen stored in fat. The liver can not break down and eliminate estrogen without the mineral selenium. I suggest supplementing selenium and staying away from soy products, grapefruit and seed oils. Increase your saturated fats Edit Someone in comments pointed out that you need to take the correct dosage of selenium and I know it is true for zinc that taking too much will cause cells to close down and not accept zinc (probably has to do with cofactors we haven't identified that are deficient) With zinc you need to take around 50mg daily. The standard dose in literature for selenium used to reduce your risk of breast cancer is 200mcg. Please do not take mega doses hoping your body will heal quicker. It will take time for your body to break down estrogen as it accesses fat storage. There is not an overnight cure. God bless "What blocks absorption of selenium? Smoke cigarettes. Drink alcohol. Take birth control pills. Have a condition that prevents your body from absorbing enough selenium, such as Crohn disease or ulcerative colitis."

[@gerahuey3706]

Thank you!!

[@jadefr7518]

Very good advice, Carrikartes ! Maybe taking some iodine might help too, as the thyroid need it for your hormones to balance. Dr Eric Berg and Dr Mindy Pelz both have some good ressources on their channels to help with eating right and balancing the hormones. Maybe you should also try to avoid pollution in your home, all the products that wreck the hormones are everywhere. (mostly plastics, ban them from your kitchen at least)

[@Therianwolf-sophie]

This is really interesting. Where did you get this information? Google isn't helping me! I have Gilbert's Syndrome which means my liver doesn't break down estrogen properly and I'd love to find out more

[@carrikartes1403]

@@Therianwolf-sophie my husband had interstitial edema and I was researching about that. It took 3-4 days to find out about that. I have found and along the way I found out about lipedema. I usually start with the problem listed first and deficiency listed next (edema is related to what vitamin deficiency?) Gilbert syndrome is related to what vitamin or mineral deficiency? "Vitamin levels Studies conducted so far suggest that subjects with GS may have lower levels of vitamin D and folic acid than control subjects, having these levels inversely correlated with bilirubin levels." In that case I would start by getting methylfolate (you probably have the MTHFR genetic variation also that slows down methylation and taking the unmethylated form might actually make things worse). Recently I have been researching a little on using pure lanolin topically instead of oral supplements but I need to research that more, for now it is a theory. Calciferol is the activated form of Vitamin D and I am wanting to get that for my husband or maybe some transdermal patches. I believe I heard a doctor on KZbin mention that the liver uses selenium to break down estrogen in the liver

[@carrikartes1403]

@@Therianwolf-sophie I heard a doctor mention it in a talk/lecture. I was researching my husband's interstitial edema (took me about 4 days to find a solution) and along the way researched lipedema. The doctor mentioned a deficiency in selenium in relation to lipedema and I knew about the storage of excess estrogen in fat for a long time already so I researched more on it. I usually start with the problem and look for deficiencies related to the problem. This has greatly reduced my research time. For you I found this "Vitamin levels Studies conducted so far suggest that subjects with GS may have lower levels of vitamin D and folic acid than control subjects, having these levels inversely correlated with bilirubin levels." So supplementing with methylfolate would probably be best. You probably have the MTHFR genetic variation which impairs methylation (@60% of the population has it). All non organic grains are fortified with folic acid by law which can further slow down methylation in people with MTHFR. So only organic grains or better yet cut out all grains. I would also buy calcifediol the active form of vitamin D. It can readily be used by the body. You probably also have trouble converting vitamin D to it's active form. Always good advice to go as low carb as possible when dealing with any health issues and avoiding all seed oils. God bless

[@kaitteachout3633]

YES! On especially the boots. I have the other symptoms too but it was a kid of fun affirmation when you mentioned the boot thing. I’m 66 and still remember trying to find boots when I was in high school. I appreciate you and this group of women that are helping us find our way through this.

[@sturdywoman]

Hi Kait! I am happy to report that about a year ago I bought my first pair of knee boots. Torrid has nice extended calf ones with some elastic that makes them forgiving. I honestly cried. When I lost weight previously through the cut-calories-and-exercise routine it hadn't changed the size of my legs... but keto did. Now I want to go put on my boots and prance around my living room *right now* :D

[@lillian9221]

I found a pair of ankle boots size 9 the previous winter, this winter I couldn't zip them up, with no weigh gain. Greetings from South Africa

[@notagain1952]

Thanks for the education and your pleasant and humble presentation.

[@ClaireWill71uk]

My late father was part of the engineering development team of TSA SCREENING and Whitehouse Security equipment. You're correct, the machines have fluid sensitivity sensors. It's usually a percentage. I raised the issue of my hip reconstruction setting off old-style TSA and not with New. But then the development of my Lipedema it started again. My Dad explained the engineering and software ranges.

[@JenDoe1]

That’s very interesting. I wonder if that’s why every dehydrated person whom I know (like my Mom, who is extremely dehydrated!) more often than not gets a beep. I wonder, is it a visual map or is it a percentage of fluid by weight?

[@kristineweber8084]

I am wondering if there is also an outline component....? Since there are such abrupt changes at the ankles, wrists, and knees? Looks like you packed something tight and wrapped it up, even though it's just your own fat.

[@jumble513]

Amazing.

[@janetpeters1]

What can you do about it?

[@sanie1au]

37, just found out about this because for the first time I am actively going to the gym multiple time a week, walk kilometres every time, increasing my pace and the incline and the scales are not shifting and I want to cry. Everyone keeps saying to change this and that but I have done all the things, I have changed all the things.

[@enatashadunn]

Thank you, thank you, THANK YOU! Watching your video is like hearing a bio of my body. I am blown away as I have always just thought I was fat. I am so incredibly defeated as my legs look so disformed. I only wear pants as a dress, skirts or short expose, way more than I am comfortable with. We put in a pool last summer as it was a dream for my husband and our daughter, but all it has been for me is a nightmare as I am constantly trying to figure out how to hide my legs and my "wings" that jiggle constantly. Your video has encouraged me to find a doctor who deals with lipedema, as NO doctor I have seen has ever brought this up. I look forward to learning more from you!

[@knemo-ette6039]

I’ve discovered my lipedema does not like squeezing or heat. Before I was diagnosed with lipedema, I was diagnosed with it’s buddy lymphedema. And was signed up for lymphatic therapy. And we did the tight wrapping on my legs. Which after an hour would become very painful. Heat along with a really horrible burning sensation would take over my legs. And although my therapist urged me to keep the wrappings on anywhere from 1 to 3 days, I only made it one day a few times because I couldn’t take the pain. And stranger still, my leg measurements “to see how much liquid we squeezed out” barely went down. That was when my therapist remembered another therapist who visited the hospital and talked about “lipedema - the painful fat disease”. And after some research, she told my doctor about her findings. And I was diagnosed with lipedema officially. All that aside. For most of my life, I’ve always had a lot of discomfort when the sun came through the window and rested on my legs during car rides. It felt like my flesh was sizzling and I couldn’t sit still until I found something to cover my lap. My family always teased me about it no matter how much I insisted it really hurt. Now I know why. And why getting too hot makes my legs and back hurt. I hope someday I can get treatment for the lipedema. Keto does not agree with me. 🤷🏼‍♀️

[@okaycola2]

Eat less

[@knemo-ette6039]

@@okaycola2 Lipedema is resistant to dieting. Although some have success with Keto, which as I said in my comment, doesn’t work for me. If you’re going to troll, please know about the subject.

[@kdkay4039]

@@okaycola2educate yourself more! Keep BS statements to yourself! Remember the golden rule about saying “nice things or nothing at all”!

[@blackdog1392]

​@@okaycola2...crawl back under your rock & shut up.

[@sherrimoliverthompson8388]

I haven't had a pair of boots that fit my calves since I was 9 years old...😢. This explains a lot

[@terribolander6742]

Me too

[@jackiemorrison2661]

Me too

[@cathyhodge2799]

Me too

[@KarenWard-r7v]

I am so glad you shared this. 100% on all of the signs. I feel so much better when eating well, 16:8 fasting and self lymphatic massage. Thank you for sharing!

[@patriciagreathouse9840]

After being told that diets don't work with lipodema, I have succeeded in losing close to 30 pounds through 16:9 fasting, riding my bike, and eating a plant-based diet. I am 5 ft 6 inches and weigh 115. I know other people have been successful with Keto. Don't give up hope!

[@patriciagreathouse9840]

I want to add that in spite of all that, I have had cellulitis lately, so although my weight and size is "normal", I still have lipodema!

[@almaburns6562]

​​@@patriciagreathouse9840This could make one feel hopeless, if after all this, you still have lipodema. Maybe there's still too many carbs in your plant-based diet?

[@almaburns6562]

​@@patriciagreathouse9840 Perhaps your plant-based diet contains too many carbs and maybe try keto instead for the lipedema?

[@askew9976]

This is all me. I’m in tears. Ty for sharing.

[@sturdywoman]

Hi @faafo1976! Welcome and you are so welcome 😊 It doesn't seem like it at the beginning, but it gets easier ❤

[@lindsay3995]

I've had a doctor in a weird mood (very rude & brash) do all of the hypermobility tests -- I knew what they were -- and I DEFINITELY am not hypermobile which other doctors have confirmed -- and he just kept saying I am. I'm literally not. Some doctors are great, other are capricious psychos for no reason and it's scary.

[@theworldofjuniperthecat1307]

Yes. Agree.

[@marcydrake9159]

This just blew my mind. I clearly need to do some homework and make a doctor’s appointment. I can’t believe this…to think I learned this from a random KZbin suggestion 🤷‍♀️

[@emz33]

I always approach those conversations like “I found this on the internet, my symptoms line up. I’m not diagnosing myself but these symptoms are a concern for me and I’d like to discuss this possibility”

[@angellove2911]

I figured out a rare disorder by watching a TV show....my surgeon said it was the 3rd time he heard that in a month😢

[@marty114]

Ditto!!

[@denisejobe3950]

Don't know if you're going to see this, but so very helpful! I've been setting off the TSA machines for a while now. All I can say is thank you!

[@ForeverEdsGirl]

Hi Rebekah, I just found your channel and I absolutely love it! I'm a "Sturdy Woman" too, I'm 65, and highly suspect I have Lipedema. I have an appointment with my Primary Care Doc next Tuesday, and I'm going to ask her about it. Thank You for starting this channel, what an absolute Angel you are. God bless you✝️🙏.

[@elainefaubert332]

Did you find out from your Dr. If you do have Lipedema? I’m 66 and going to ask my Dr next Monday about it. ☃️

[@vimontie8683]

LOL the boot story. there are many of us with this problem. You, my dear, have become my best Bestie! thank you so much.

[@sturdywoman]

Right?! I know that September/October fall feeling when everyone suddenly comes out in cute knee-high riding boots and all you can do is dig around for some wide booties 😆👢❤❤

[@bjbrownbob]

OMG YOU ARE AN ANGEL FROM GOD, I'm crying real tears!!!😢😢😢 Thank you for sharing your story and helping the world. Much love from Houston, Tx!!❤❤❤

[@sophiabright8371]

I really like your vibe. It's personal and hope-based! Go you!!!

[@CKP1956]

I am 67 and have had painful lumps under my skin for a very long time. I can't have children sit on my lap or allow my cats to walk across my thighs. They always hit the sore spots. I have RA and fibromyalgia, so I always thought the lumps were because of fibro. When I have my bp taken, I have to clench my teeth to keep from crying out because of the pain the cuff causes. I am supposed to wear prescribed thigh high compression socks, but I had to stop because the pain was so severe. I never thought of it being anything with a name, just one more thing I had to endure. So glad this came up on my feed. Maybe I can do something to get rid of some of the pain in my life. Thank you so much for this video.

[@bluemoon472]

Ck out Dercum’s Disease

[@grammienoob2997]

Recently self diagnosed at age 51, followed by educating my PCP she did additional research and concurred. Airport security always means extra attention. Wouldn’t it be great if their technology could be used as a diagnostic tool.

[@excusesbegone7251]

Yes Airport security gets touchy Because of my inner thighs😮

[@melissadelucca7629]

*long comment alert* Wow! You explained it better than any website or seminar I have watched. I’ve had a bigger lower body for as long as I can remember. And bigger arms. But I just recently discovered what is called lipedema and I have almost all of the symptoms. Especially the part about the blood pressure cuff (it hurts sooo bad and always raises my blood pressure!) And an animal on your lap. My dogs are under 30lbs but when they jump up on me when I’m sitting on the couch I am like ow ow ow please don’t stand on me … because it is so painful. I have been trying to get to the bottom of why my weight won’t go anywhere fast (unless I take extreme measures) and I finally think it’s time for me to find a new general Doc that can help me. I have a hard time getting through to my current doc. There are so many more things I am looking back on now that all of a sudden make some kind of sense. Thanks so much for this, I am so glad I came across this channel! ❤ subscribed!!!

[@sturdywoman]

Hi Melissa! Thank you so much for your kind words and welcome to the sisterhood 😆 It's so wonderful to finally know what's going on and even better when you start to find other people who can relate. Good luck with your doc. If he or she isn't helpful... next! Keep looking until you find someone kind and supportive. You deserve that. Welcome to the channel and keep us posted as your journey progresses

[@TaraDodson-x4x]

This was the most practical video i have watched on Lipadema. Thank you so much ❤

[@stormwalker321]

Really a nice young woman,....and a super video about this condition....

[@meslaura]

Omg, I checked the first few boxes you listed off, but when you got to pain with small animals walking across your lap... I never suspected I had lipedema because I have just always been overweight, and fairly proportional. But now I think I do have it. As I have gotten older, the hypermobility has become more problematic. Thank you for bringing awareness to this!

[@sturdywoman]

@meslaura you found your people! Welcome to the sisterhood

[@jade.green111]

These symptoms definitely don't sound like me, but before seeing your video in my suggestions I didn't know what lipedema even is, so it was good for me to learn something new today! 😊

[@breealexander3924]

Holy moly!! This explains a lot! I thought this was so normal!!

[@SashaHali]

Yes! I’m been check at the airport and I never knew it was Lipedema!! 😮 so glad you confirmed this!

[@kathleenthomas1971]

i was diagnosed last week, it's very scary, so any info is helpful. everything you are saying about clothes, boots and such is absolutely spot on for me as well, i have had sensitive skin all of my life! very painful to the touch.

[@sturdywoman]

Hi @kathleenthomas1971! They do make it so scary, don't they? I really had some good cries at the beginning of my journey, but I hope Sturdy Woman can give you some light at the end of the tunnel. Sending big hugs and hoping you continue getting answers and feeling better day by day ❤❤

[@GenRN]

BP cuffs and the tourniquet used for blood draws absolutely kills me.

[@Kim-ri1hg]

Same

[@RACHELLEflo]

Do they work though? My legs are too much. I don't care

[@atk_1]

I have asked the doctors many times about the nodes and they just told me to lose weight. Now I know and I now have them on my legs, arms and abdomen.

[@Albertsolelady11]

I never knew this I have felt so defeated about my body thank you for this information

[@MelanieFromCanada]

Yes. Liking and commenting for awareness. I have had 1 surgery already and would really like it if it was covered by medical.

[@RosieTheRiveter07]

Thank you so much for being here and sharing your journey thru lipedema. Your heaven sent! So I showed my family doctor of my discovering lepedema, she had no idea what it was either. So I had already done my research on it. I called my insurance to see if I was covered and to find a Therapist in my network. So once I was in front of my doctor she said they had to find a therapist and the assistant would have to check for in network bla! blah! blah! I had it all in my had and I handed it to her. Within to weeks I was seeing my therapist. Going on 3 months now and the numbers are declining significantly. So all that you’re talking about makes a lot of sense to me. Thank you! And yes I would get padded down which was so embarrassing. Oh and btw I found the book on Audible for $4.86 thanks again Rebekah

[@MalikaBourne]

Thank you. Lipedema was mentioned 3 times in my cardiologist's notes today. Well, if that is correct, it explains my bat wings, the big fat butt bustle, and my legs hurt when touched... I was getting upset with the first diagnosis on the list 'Grossly Morbid Obesity due to overeating". I can gain weight and not eat anything or drink anything but water.

[@angelicacervantes4563]

Omg! Sounds like you're talking about me.

[@gloriagross8120]

I had a doctor years ago (1963) tell me to quit dieting when I weighed 140 lbs. He said if I kept losing I would be emaciated on the top, but still be heavy on the bottom. I didn't really realize that I had Lipedema until last year (and I'm 86) what it was. The boots are another factor. I never could find any that fit over my calves. I have blamed myself all my life for not having "what it took" to lose enough weight to get rid of the heavier legs. At last I have learned that it has never been my fault.

[@dawsie]

Yep, had one Dr recommend gut banding, I eat once a day if that, sometimes I can go without food for a week and only drinking water or coffee, never losing weight. So I told the Dr no deal, why would I gut band myself when I virtually starving myself and still don’t lose weight.😳 I am just learning about my hyper-mobility and the connecting issues that comes with it, wish I had known about this 30-40 years ago but it was not a thing then. All us grandchildren had hyper-mobility they knew something was not right when I broke my right leg in ‘76 once I got back to school after a year off I was band from all land based sports which only left swimming. I’m for ever tearing my the tendons in both ankles just reaching up to get something of the top shelf, Dad got a foot step to stop this now😹😹 this has to do EDS something to do with collagen lacking in my joints and tendons without the collagen they can not stretch. I have started ozempic injections and funny enough I have already lost 2kg this is a last ditch try to get the weight of me so I can have a full knee replacement and hernia surgery. I have been bouncing between 130-135 kg for the past 4 years can not walk far without pain or getting so tired I have to sleep to recover some energy. When I went into menopause I went from 153kg right down to 130kg in the space of 18 months, no diet, no exercise nothing just working out in the garden like I have been doing, but I am not even able to do that anymore. Now I have the top half of my body size 18 waist and size 20 bust(normal for me) but from my waist down it’s 22 butt area up to 24 hips I have never worn boots off the shelf I had to have motorbike boots hand made to fit me.(cost a fortune) I started puberty at age 9 I was already 5’10 and well endowed wearing adult bras, was nicked named the Jolly Green giant after the ad that came out around ‘72-3 in the UK. Now that I’m 60 I’m learning so many things that have impacted my life that they are only just figuring out in the past 10 years

[@marilynpreen7339]

The big fat butt bustle - please explain what that is

[@lindamcgrath3027]

⁠@@marilynpreen7339It’s having a big bum that looks like the bustles Victorian women wore under their dresses. My bust is 36 waist is 30 but hips are 44. I have trouble getting boots to fit my calves & discomfort when my cats walk on my lap. If I knock my legs accidentally I know I’ll bruise. It hurts when my blood pressure is taken. I’ve recently started setting off the scanner at the airport! I’ve booked liposuction for my legs. I’m 65 & fed up with it all as I don’t over eat but recently the butt bustle has increased & I might need liposuction for that too. My granny was the same so I know I’ve inherited it all from her.

[@viviennedove6308]

I always set the machine off at the airport! I never put this down to lipoedema! I have every other symptom! Thank you for information

[@bonnarlunda]

Wow. This explains sooooo much... I don't have to buy any book to understand this is what I have. It's been bugging me since forever. It's got so bad that I can often just look at someone and tell they are not "fat" fat, but that its just something else going on.

[@venusiandesigns]

Didn’t know about this, learning something new today. Thank you

[@beatap8698]

It feels so good to find out what is going on in your body when you're not sure what is happening. I expect lymphatic massage would help with this issue, as it helps the body remove excess fluids from body tissues. The lymphatic system distributes lipids/fats, so it makes sense to get hard fat deposits/lipomas in areas where the lymph system is congested. I'm a massage therapist and lymphatic massage is a favourite in my practice, it's very gentle and relaxing. And the best thing is you can do it yourself. I would recommend learning this easy technique to add it to a self care routine. Also , emotionally, the lymph fluid stores unprocessed emotions. Don't know if that helps, but I thought I'd mention it. When you clear out the lymphatic system you feel great. It's a fluid system so hydration is very important so lymph fluid doesn't stagnate. Good luck to all the ladies here.

[@celestewatson4874]

Commenting 3 months after you posted this, wondering how your clients perceive the pain of lymphatic massage? I can hardly tolerate touch on my legs and bruise easily all over but especially on legs - long lasting, painful bruising. I'd love to try lymphatic massage but wonder if I'd a) tap out from pain b) end up looking like a plum c) both

[@mysticalmisfit1332]

Wow…I suffered from abuse and neglect as a child. I have a ton of unprocessed emotions. Wonder if that has something to do with it

[@karins6634]

Omg!! Thank you for this information. #5 TSA pat down always happens to me. All this time I couldn’t understand why this always happened. I was diagnosed with lymphedema 30 years ago and just recently was told all this time the legs and thighs are actually lipedema. So glad I found your channel and to learn there are others like me. ❤

[@rosasantillo3806]

Hi! Thank you so much for sharing your story! Today was a really bad day for me…. I’m overweight ( about 220 pounds) and even if I lose some weight is very easy to put it back in a snap! Plus I have big flappy ugly horrible arms with a “fold” in the upper part which I understand why it is here! Today I went to the plastic surgeon for a consultation to see if I finally could get them fixed with a lipo! He told me he couldn’t help me, not through the airsculpt procedure I was hoping for. He told me that probably that fold couldn’t be fixed at all! I don’t wear sleeveless shirt, I don’t even look at me in the mirror if I’m naked, I feel so bad all the time and I feel guilty about the way I look… you gave me the explanation nobody did and I feel exactly like you describe, even about the airport ! I cried a little bit in the car on my way home but I didn’t want to accept a “there’s nothing you can do”, so I started to dig online and after a couple of hours I found you! Please help me to solve this problem! Now I know that I always had it even when I was a thin and nice girl. Now I’m 60 and I’m tired to live with this myself. I really hope you can give me some confidence and hope to change my life! Thank you. PS Forgive my bad English! I’m an italian who has been living in the States for 7 years now but I really need to improve it!

[@sarahalderman3126]

I think your english is excellent! Best of luck in your search❤

[@trixie9777]

Your English is beautiful. All the best for you 🙏🏼♥️🙏🏼

[@KiwikimNZ]

Firstly your English is fantastic! Secondly your comment really saddened me. You sound so very very sad and you are exceptionally hard on yourself. I have been over weight in the past and struggled with bulimia throughout my life, I hated the way I looked and was so self conscious, depressed and embarrassed of my shape, I am a pear shape. So I really felt so sad hearing you be so hard on yourself. If I can give you advice, I put on a lot of weight after an accident, it was horrible, but after I did some healing and worked really hard on myself, I finally came to a place of acceptance. Since then, my weight has dropped significantly and although I will never be thin, I’m Ok with that now.I’m 54 soon and I am never going to have the body of a 18 year old and I will never be blessed with the perfect figure! That’s ok, I’m at peace with that now. I had to let it go and find peace and acceptance with myself. Once I let that negative self talk go, the weight came off and I was able to focus on the things about myself that I never had time to think about before as I was too busy hating myself. I took 49 years to learn to live myself and be content with who I am. I may not have a model figure, but I am a kind person, I’m great at my job as a nurse, I care about my family and I am a wonderful mother. Find things about yourself that are good about yourself, I bet you are a kind and empathetic woman with a lot of love in your heart, wouldn’t you rather be that than someone with a perfect figure and a terrible personality? Please be kinder to yourself, try to accept that you are who you are and focus on the positive things about yourself. I bet you are beautiful and you don’t even know it! We are both getting older, I pray that you can find peace in ourself and happiness with who you are. Start with a small walk each day, even 5 minutes! It will be good for your mental health x good luck lovely lady. ❤

[@kvadams9538]

I’m 70 & was diagnosed with lipoedema last week, not by a Dr per se, but by a remedial massage therapist who specialises in lymphatic massage. Since then I’ve been down the lipoedema rabbit hole. I’ve experienced everything you mentioned in your video even trying to buy boots in my teens in the late 1960’s and nothing fitted because of my calves! I’m now at stage 3. Compression garments are ordered and I’ve an appt with nutritionist next week (she has lipoedema too) for a program that’ll be age and disorder appropriate. The Dr will be educated next week!

[@23daughters]

The nurse in the hospital couldn't understand why I was fighting not to cry from the pain of the blood pressure cuff. Next day, my arm was purple all the way around. I never knew this wasn't normal. All of these symptoms is me exactly, apart from the airport one. I've never been abroad so never been through TSA. It's lifechanging knowing what is wrong with me thanks to this video. Thank you.

[@liverbrist1]

So sorry that it even bruised with you. It does feel really uncomfortable for me too, the 4 seconds before it deflates are very unpleasant

[@thedum8ss]

My mom has lymphedema in her legs. Lipedema in her arms. I’m her 15 year old daughter and I’m experiencing all of this… I got my symptoms a few days ago and I went to the doctor. It turns out I do indeed have Lipedema, based off of a pinch test. It’s so crazy to me how long I’ve thought I was just fat and unable to lose the weight. Now I know why. My mom is helping me through all of this and I am seriously so thankful. ❤️ This video helped me understand more about this disease as well.

[@r0zugorudo]

This is the best explanation I’ve heard! Thank you so much. I’m glad I finally have an explanation to strange issues I’ve been dealing with my body since puberty. I fit basically all of the signs you mentioned, but the blood pressure cuff is the dead giveaway for me. That is excruciatingly painful for me. And I’ve always had bat wings that I’ve never been able to get rid of no matter how much weight I’ve lost. I have a consultation with a plastic surgeon next month for an official diagnosis and so I can hopefully move forward with surgery. I’m very much looking forward to it ❤️

[@gbarnett9470]

How did your consult with plastic surgeon go?

[@robinm.2246]

So funny you mentioned TSA!!! Ever since they started using the machines I always got patted down…BUT since being on Keto for a year and my inflammation has reduced a lot, the machines have stopped going off (in the last two months)!!! When I finally learned about lipedema I thought that was the culprit…and now we know the rest of the story!!! 😊

[@claudiacanales2662]

Did keto help the lipedema?

[@PamelaParker-m1e]

I refer to my flight security pat-downs as "full service" and almost feel cheated when they don't happen 😂

[@preciousgem881]

I just got diagnosed last week but have been suffering for 23 years. Your channel is a great source of information and help 😊 My signs were a lower body that was so much bigger than my top half, I'm talking a size 22 vs size 10/12 on top. I always had "bumpy" thighs and bum and couldn't lose weight at all there. I was always embarrassed that my legs didn't look "normal." As my condition progressed I experienced a lot of pain and couldn't even have my children sit on my lap. I am hopeful for the future that I can control this and reduce my swelling

[@sturdywoman]

Welcome to the sisterhood, Gemma! I'm glad you are starting to get answers. Knowledge is power and you can start feeling better. Just be patient and take it one step at a time :) I'm so glad to hear the channel is helpful. I try to include the things I wanted to know when I was just starting. Keep us posted on your progress!

[@carolecoffman4276]

I just got diagnosed also… The thing so far that has helped me the most was getting hooked up with a certified lymphedema massage therapist… She also has helped educate my primary care and get the equipment I need..

[@preciousgem881]

@@sturdywoman thank you ❤😊

[@preciousgem881]

@@carolecoffman4276 I should look into a therapist. Thank you 😊

[@sturdywoman]

Gemma, this directory could be a starting place depending on where you are in the country: directory.klosetraining.com/ I struggled to find somewhere near me even though I live in a big city. Finally I found a regular physical therapist near me who mentioned lymphedema on her website. I've also talked to women who find massage therapists who list MLD on their websites and have good experiences with them. My insurance paid a portion of my bi-weekly sessions for about six months. Good luck

[@MarlenevT]

I don't have Lipedema, but this was very interesting. Your presentation was very thorough. Thank you for sharing this.

[@sturdywoman]

@MarlenevT thanks for watching!

[@beachbobbijo]

I work at the airport!!! 😳😳😳😳😳😳,, I just literally fell out in the floor when you said this about the airport! And oh my gosh!!!! It's become a running joke how much I set off the full body scanner!!! I have already had a total knee replacement (the week of my 49th birthday) , so I have to go the full scan every day at work and my thighs and upper arms set it off All the freaking time!!! I know I'm using a ton of !!!!'s but I can't help it right now, you just blew my mind in so many ways,, BEFORE,, you even said this part!!!!!!!!!

[@obedirect5491]

9:24

[@pamreynolds7334]

My Lipidema started about 20 years ago. I was married to a terrible narcissist and the trauma caused it. I wondered why I had the nodules on my arm "wings" and thighs, and why they were so much bigger. And, the pain was so severe! I'm working on it now by going on bio-identical hormones and eating carnivore.

[@joanneclark8256]

why carnivore?

[@NAVIOROLtd]

Carnivore with lots of bonebroth ( I make a lots of in my biggest size of Instant Pot)❤️

[@evab2274]

Bio identical hormones? Which hormones and what for?

[@pamreynolds7334]

@@joanneclark8256 Mostly because clean meat (grass-fed, grass-finished, organically-raised chicken, etc) has no hormone disruptors in it and is the healthiest way to eat.

[@pamreynolds7334]

@@evab2274 I've just started using bio-identical estriol and progesterone from Platt Wellness.

[@jeansonnichsen7807]

Thank you for your wisdom ✨

[@skullingtonfly]

I found this video very helpful. Thank you

[@Sssilentlaugh]

You have the best attitude

[@sturdywoman]

Thank you! 🥰 I have my "days" too 😉

[@elizabethtanith8961]

The subject of lipodema is similar to domestic violence in that it has been unmentionable. Generally men don’t get it so if it doesn’t affect them it’s not worth talking about. The whole issue of women’s bodies have been undervalued or not deemed necessary to explore due to gender bias. Well done, Rebekah

[@wingnut71]

Sigh. Here we go again with the misandry crap. It's getting really tiresome. Maybe you should do a bit of research into how many medical advances have been invented and developed by men in the last 300 years as compared to women. Get that chip off your shoulder and stop blaming men for your problems.

[@mizzperkins1906]

@@wingnut71 I think you missed her point. No doubt that men have made beyond count advances in science and technology and every other area in human existence. That was not in question. Pretty much every science, medical or institutional study has been done on MEN!! Yes! There heart, liver, brain, energy, hormones etc etc etc. There have been more studies done on women but this is in the infancy compared with men studies. Some women studies were conducted off of the men’s studies. Look them up. We need to catch up.

[@nanananatalied]

​@@wingnut71women were bullied in STEM fields into the 1980's.

[@lightskitty]

@@wingnut71 I agree the initial comment is dramatic, domestic violence isn't really comparable to gender bias within medical practice although they are both very real issues. However your argument is a double edged one, men also suffer from gender bias when they have a typically female associated disease, furthermore OP's comment that diseases effecting women are typically under-researched is correct, while making no comments that suggest they are upset that men have developed medical advances, rather the opposite that more medical advances are greatly desired! No doubt the gender of these pioneers is less important than the research they contribute to society.

[@margarethinderlich6263]

I have Lipedema, I have been through physical violence 50 years ago from a (many years ago divirced) x-husband . They are not the same thing! I am so sick of brain washed women whining that it's all men's fault, NO IT ISN'T! We as women make BAD choices...wanting the bad guy because they are exciting! We as women & men as well need to RESPECT OURSELVES! Realize, God loves you He made you to love Him and find respect for yourself, because you are LOVED by GOD!!

[@locasiare]

Thank you so much for sharing this important information with us 🙏🏼😊

[@sophiabright8371]

A late (self) diagnosis is better than nothing! My doctor confirmed it. Health history: Auto collision brain injury in 1999, but no diagnosis until 2012. Diagnosis of Fibromyalgia in 2001; hypermobile EDS in 2011, but last few months I stumbled across lipedema. Learning that lymphatic drainage treatments are very helpful!!!

[@dudemorris7769]

As long as you’re doing your lymph drainage monthly, you won’t have actual lipodema problems or issues later on.

[@sophiabright8371]

@@dudemorris7769 uhhhh, I am already in BIG trouble. Hoping to turn the tide.

[@MrsK976]

@@dudemorris7769how do you do it?

[@prettypete58]

Wow! I am 65 and thought I knew a lot about my female body. I had no idea about lipedema (apparently, neither does my spellcheck). Thank you!

[@kc-a7907]

I just started hearing more about this diagnosis. I definitely have this!!!! Wow. Also, worked at TSA. The body scan does NOT detect water weight or water in our bodies. The technology is created to scan a “Normal” size outline of a male or Female body. There’s a button officers select depending on gender. If the officer (by mistake) selects female for a male, the person would alarm between the legs, because the system expects to detect a bulge in the crotch area. Any abnormalities outside of that outline will alarm. Most overweight people alarm in the stomach, legs and back area if there are creases, folds or bulk skin. (Please don’t take this as insult to overweight people). I’m overweigh and when I fly out I alarm in the legs area.

[@claram.8910]

Yes, the airport alarm thing happens to me all the time. My thighs set off the machine. So happy to know what this could be and more importantly, that this can go away.

[@deanierobinson2089]

Wow! This video fits me to a tee. Thank you for all the valuable information.

[@Skyblue-jj9sw]

Yes .. thank you for sharing

[@libbysmithstudio]

Omg! Yes, to all the above! The pain when touched (especially by my sweet cat) is the worst!!

[@elizabethmohammed4664]

Thanks for the information.You educated me.🙏❤️

[@summersoul9816]

You are amazing!

[@liane95]

I'm late to this video, but I'm so glad I found it! Learning a lot about this and realizing that I also have this condition. Great information for someone discovering the issue. Thank you for sharing, there's not a lot out here but through your platform and a couple others, I'm learning a lot and this has really been eye opening. Ty!

[@bridgetd2453]

What are treatments for lipedema and lymphardema. What is the difference? Can anyone explain please ?

[@GraziellaBinello]

Wow! Most interesting. Thank you for sharing!

[@Alale6000]

Omg I believe this is what I have I checked all the boxes. Thank you so much for sharing awareness. 🙏🏽

[@sturdywoman]

@Alale6000 you found your people! Knowledge is power and you can start feeling better. Check out my conservative treatment playlist for some ideas to get you started: kzbin.info/aero/PLGrmXtIzhSGJ8yMVrvzsS0IlDdZisLuKS

[@CaptainUnconventional]

I have saddlebags that wont budge and abnormal cellulite that covers 3/4 of legs. Overwieght but not obese. And I don't have kankles. Just want to share as we who have lipidema can look different from each other.

[@sturdywoman]

Yes, great point! There are several different "types" and lipedema can show up in many different ways. Thanks for sharing that :D

[@cheryldawson7841]

This is my problem too😢

[@sturdywoman]

Big hug, Cheryl! Do you have any swelling in your ankles? Getting into good compression reduced my ankles pretty quickly, but it will depend on what else you have going on

[@robloxnews2670]

Me too, iv spent years YoYo dieting and I always end up regaining the weight again because I end up really skinny up top and there is barely a change in my saddlebags. So I still have to dress the same trying to hide my hip dips because my thighs are soo wide for the rest of my body. I bruise there like a peach.

[@CaptainUnconventional]

I am hoping to get just my saddlebags liposuctioned in a few years. Lymph sparing lipo is the best procedure they say. @@robloxnews2670

[@deborahpaul5307]

I hit all those markers! Thank you for giving it a name for me to call it and tell someone!!,

[@cynthiamason2716]

Great video.

[@theresaparker9791]

Thank you so much for the video - I have every symptom you describe. I am always screened by TSA. I am getting the brochure to share with my GP.

[@whitninapier9400]

I used to think all people had lumpy nodules as fat too since mine always felt that way, especially in my arms, legs, and rear. However, although they’re not large, my breasts have this type of fat in them too, which makes me nervous for not being able to tell the difference between a concern for cancer or just fatty tissue. I’m in my 30s so I’ve not reached the regular mammogram checks yet which usually start at 40. Since having my children I also now have some of the nodular lipedema fat in my stomach too. I’m down 28 pounds now with carnivore and I’m feeling better. I’m determined to fight this as much as possible naturally and avoid surgery. It’s good to know I’m not alone. Thanks for doing these videos!

[@sturdywoman]

Hi Whitni! I've heard other women talk about having it in their breasts too, so I don't think you're alone on that one. I'm also in my 30s so not sure what all our lumps and bumps will mean for mammogram checks. I guess that's the one upside of my small chest...?! Ha! So glad you are feeling good on carnivore. Feeling good has been the game changer for me far more than the weight loss. For the first time in my life I feel alive and have energy! Glad to hear you are still enjoying the channel

[@Breeandfree]

You should look into thermograms.

[@sarahjensen2473]

Dense breast tissue is one qualifying factor for insurance coverage of annual mammograms, rather than the normal 2-years. When to start is based on risk factors. Getting a good baseline and using the same facility each year can mean fewer callbacks. I had to have ultrasound after my hospital switched from 2D to 3D, but once they have a good map, they can tell your normal from anything new. Always make sure that you are comfortable asking questions during your routine women's exams. A good provider won't blow off your concerns.

[@whitninapier9400]

@@sarahjensen2473 Thank you for the advice!

[@thiaco6203]

At my last mammogram, I was told I was lucky to have fatty boobs as they are easier to see through unlike more muscular breast tissue. I do have beads on my thighs and have since I was 25. I also remember looking at my legs down by my ankles thinking,” I don’t have Kankles but why does my skin look so weird…as in lumpy? Now I know. thank you to all the sturdy women who have suffered as I have! Trying to not care about my lumpy lookin legs!

[@tripurabatchu908]

Thanks for publishing this video. I have all the symptoms you mentioned and also have been stopped many a time at the security.

[@sturdywoman]

@tripurabatchu908 you found your people! welcome! I see you posted this a few months ago - how are you feeling now? Have you made any progress?

[@VBCLR]

You are a bright light. Thank you!

[@Wanna.Wander]

Thank you! I appreciate youifting up woman💜 subbed

[@sherryturner4745]

OMG‼️ All my life I’ve just thought because I let myself get so fat, that was the reason why my legs were so gross and my arms too. I hit everyone of the symptoms you mentioned except hyperextending. 😳🤷🏻‍♀️

[@terribolander6742]

Me too

[@deb86100]

I cant believe that I am 37 and just now I am finding out about this!!! Everything you are saying is me!!! Ever since I can remember I have had bigger arms and legs! I have never worn a shirt, I have never bought a boots if not ankle boots and even those are a bit tight at the ankles!!! I always felt like it was not normal but everyonnnneeee including docotor tell me I just need to diet and exercise! No one understands

[@singjenn]

THANK YOU for pronouncing it right!

[@colleenovo1084]

OMG! That is why I constantly get patted down at the airport!? It’s gotten to the point where I hate flying because of having to get felt up every time I go through security.

[@leelahickman3820]

I’m just learning about this disease and really think I might have it! I am right around the line of being considered “overweight”, but kind of read as thinner. However, I’ve always felt like my body/fat is more dense than I would expect for my size (I usually describe it as being like a pitbull, small but dense haha). I have found certain things to be quite tight around my ankles/ lower legs and arms, and I’ve always had thicker thighs and butt. I have a little bit of a wing under my arms as well and the tissue is lumpy. I recently started noticing that marbley texture in certain areas of my body and have been freaking out! I went to my doctor and she said it’s just what “normal connective tissue” feels like. I really don’t think it’s normal because my partners fat tissue doesn’t feel like that at all. I don’t consider myself very hyper flexible, but can put my hands completely on the floor without bending my knees and I’ve been stopped at TSA a couple of times. Now that I’ve discovered Lipedema through my own research, I’m going to return to my doctor with more confidence. Thank you!!!

[@sturdywoman]

Bravo to you for being persistent @leelahickman3820! Doctors know so little about the lymphatic system that we often have to help educate them. I have a book linked in the comments and also a brochure (free!) that I like to take with me to new doctors. Good luck! It certain sounds like you could have some of the symptoms. Have you seen this video from FDRS? I found it very helpful kzbin.info/www/bejne/imixp6WdgbGfjrs 💕

[@debbeattie605]

I'm in the same boat. Maybe finding a Specialist in this area for eval.

[@marcelabadim]

Thank you so much for sharing these symptoms and your experience. I've always thought there was something going on with my lower body, but was never diagnosed. It's gotten a lot worse once I turned 36. I need to check out your videos and follow a few of the tips - including giving keto a go. I appreciate your thorough explanation 🙌

[@sturdywoman]

@marcelabadim knowledge is power and you're on the path now. Welcome to the club! Let us know how it goes and come back anytime you need motivation or support from your sturdy community

[@primusinterpares99]

wow. Thank-you for this !

[@mitzimadness4548]

Omg this is crazy they always pat down my hips at TSA. I'm not 100% sure I have lipedema but I'm pretty sure, I'm currently working on getting an h-EDS diagnosis because of how much joint pain effects my life but I may work on this diagnosis next, but I had no idea this was a sign. My nodules don't touch my ankles and only recently started on my calfs, so growing up in the 2010s kardashian era everyone just thought my shape was enviable/ desirable, but I'm realizing now how much of my life has been defined by disproportionate fat on my hips, thighs, and arms. The number of puff sleeve blouses that don't work for me is so sad cause I love whimsical aesthetics, and trying on curvy pants from Madewell and loft that still weren't curvy enough for my hips has made my body dysmorphia rather intense at times in the past. Thanks for making this video, I feel like I'm not going crazy hearing and seeing symptoms that I absolutely experience on another person.

[@inapugseye4578]

Thanks for the video! I'm a Rebekah too! I now know why I kept setting off the machine when I was much heavier, lol. So glad I saw this, I have answers now.

[@lilybugslibrary]

Thank you so much. This was really helpful.

[@thundercake2432]

Oh. My. God. 😢 I want to vomit. You just solved my mystery.

[@bluestripes6037]

Big hugs. You'll get through with getting better. I realised that this is what up with me when I stared tracking my calories a few years ago for fun.... I naturally undereat apparently. I was closing out the day at about 500 calories short of the deficit they set for me. I hit me that this fat must be something else because I'm actually pretty active and I don't overeat... So what gives. Now I'm looking for what mineral I'm probably short on, or what toxic mom drama I need to release because those are like suspects.

[@jaelfaulcon]

Thank you for this post. I am learning so much. I believe I was hit at menopause. Was scratching my head asking, "Did this happen overnight? Why is this sack of fat here that I don't remember?" Laying on side for colonoscopy was painful and my leg goes numb. Never mind the doctor's face of disgust when touching affected areas. Really, thank you for the description of the marbles.

[@sturdywoman]

@jaelfaulcon it is not in your head! Menopause is a common time it hits women with symptoms coming on really fast. The good news is knowledge is power and you found your people. We get it! The Lipedema Foundation's FIrst Look Report might provide some other interesting clues. It is a compilation of other patient's self-report experiences www.lipedema.org/registry-first-look-report

[@sarahh.9717]

A symptom or sign you forgot to mention is the "BRACELET EFFECT" lipedema doesn't effect the hands or feet so your legs are drastically larger than your ankles. You may have Lipedema if your body is shaped like a Christmas tree or a triangle, my measurements for example, are 31-28-43 little waist with big hips and bottom. I was diagnosed with Lipedema and Lymphedema 5 years ago. You can also have both Lipedema and Lymphedema. Make sure when you buy compression garments they fit properly or it will make your symptoms worse. And always use coconut oil on your legs.

[@virginiabaker4471]

I'm allergic to coconut. What else can I use, castor oil??

[@sturdywoman]

@sarahh.9717 great point about the "bracelet"! It is more pronounced on some people than on others and becomes more obvious as the disease progresses. Lipedema Foundation has some helpful pictures for anyone who wants to see examples: www.lipedema.org/staging

[@StephanieDefinitely]

@@virginiabaker4471re: coconut oil - I’m not sure why they are recommending this? Maybe to help get the garments on? If so, I would use bodyglide or something similar made with dimethicone. Or a “no chafing gel.” I have seen various companies selling them now at the big box stores like monistat, etc.

[@letshomesteadinstead7772]

I was diagnosed with Ehlers danlos syndrome and I definitely have lipedema. My doctor never even mentioned the word lipedema to me and it is quite evident I have it. I am unfortunately constantly taking hibuprofen for pain and some days I can’t walk. I am not morbidly obese but a little over weight. My lower body is so much bigger than my upper and I call myself the Queen of cellulite and varicose veins…I was ridiculed about it all my life. I am Happy to find this community! Thank you for sharing ❤