Do I Still Have ME/CFS?? [how I'm doing now, what worked for me, plans going forward]

[@caseyj1144]

Living alone is good for my health because there’s less stimulation and I sleep significantly better. Thankfully we have a big place so we spend a lot of time quietly or in different rooms - I will always need to have as many bedrooms as people I live with or more so I can always manage to be alone and quiet

[@PXORY]

it feels so inspiring you're able to pursue your creative passions and record and talk us through what you have been battling chronically ! i have two autoimmune disorders and it just feels like my life has to stop bc of it sometimes but the feeling of being on "pause" doesn't have to be forever! excited for your barcelona life and sending healing energy your way 🤍

[@chantalbaptiste9900]

Been watching your videos for years, I have CFS too and recently got the visible app which measures heart rate variability, I'm finding the connection between the heart and CFS very interesting. I'm glad to hear you are moving towards feeling better.

[@mattrobinson3947]

So great to watch you again after a few years. Both of us are in different places. My me/cfs was very bad at the time. And now I'm starting to do a lot better and going out socialising again, walking further, as well as doing other more normal stuff too with greater ease. Go us 👏👏, and long may it continue. And funny you say about your family link, my mum has it too and she has never got completely rid of it either but manages it

[@mattrobinson3947]

You look amazing btw!

[@mattrobinson3947]

Also, is there any chance that you could put a link for this veggie PA stuff and some more info about the dosage you were initially on etc

[@wyrdwitch13]

I have wondered how you are doing, I subscribed to you a few years ago after searching here for others with me/cfs. I have had me/cfs for over a decade and I am recovering well using nervous system techniques and some other things! Congratulations on your progress, wishing you continued success with health and all other endeavors too.

[@caseyj1144]

This update video was reallly great to hear by the way- thank you for the video

[@rqbecky]

Super interesting video, am grateful for the update. Recovery is /so/ nuanced but stories like this give me hope. ty and well wishes

[@ChrisGroggyCreaser]

More £££/$$$ Needs raising for CFS/ME/FMA Cures!!... :)

[@MOONBATHING98]

Couldn’t agree more 💕

[@me-cfs-strategiesforhealing]

Have been watching your channel for a few years, I remember your very helpful ME/CFS pacing video at the time. The phrase seeking 'small dreams' stuck with me. I have ME/CFS well. You might be interested in my channel which talks about the research. Hope you can continue to improve.