I have been using LDN for well over a year, prescribed by my GYN (a very enlightened GYN) it started giving me relief within the first month and no noticeable side effects for me. Wish it was a covered RX.
@moviemakerwannabe5 күн бұрын
i was hoping you would talk more about long COVID and fibro. I have had chronic Lyme disease and was diagnosed with Fibromyositis. I realize many people use Fibromyalgia and Fibromyositis interchangeably but my doctor said this was Fibromyositis because of inflamed spots in my muscles not just soreness. I had had Chronic Lyme disease for 16 years when I was diagnosed with it and also with Lyme disease caused MS. When I heard people talk about the Long Covid symptoms I thought it seemed very similar to what I'd been having for a long time.
@thefibroshow4 күн бұрын
We are definitely going to talk much more about long covid and fibro, just want to be able to devote several episodes to covering it as it’s complex.
@joyhradecki65413 күн бұрын
Thanks so much for acknowledging that fibromyalgia IS a real disease and that we’re not all crazy!😂😂 Keep up the good work ladies!!!!
@thefibroshow3 күн бұрын
So welcome! Thanks for your comment🫶
@manondeslauriers26458 күн бұрын
I was prescribed Flexirol 10 years ago when living in Canada. It was one of the best thing I ever had to help me sleep, relax and reduce pain. When I moved to the UK, I was told it was too dangerous and had to insist for months before I was finally prescribed metacarbamol…! I hope Tonix will soon be approved in the UK. Thanks for all that great info! ❤
@thefibroshow8 күн бұрын
Thanks for sharing your experience and you are welcome!🫶
@georgianasstudio8 күн бұрын
I would love to know with both of you what a typical day and typical week looks like for you. I’m struggling to function in a way that would enable me to work and it’s been almost 13 years now. I seem to get spurts of almost normal functioning but both of you seem to be able to maintain consistency and I’d love to know how you do it.
@thefibroshow3 күн бұрын
Excellent question. We will discuss it in a future episode. The long of it that we will go into on the show are the various strategies and the short of it is we face the same challenges as you and there are times the consistency has not been there for us. We will share what we do in those times. Thanks for watching 🫶
@thefibroshow8 күн бұрын
Hi. Thanks for your comment. So sorry to hear that your Fibro is very bad. Please check out all of the videos in this channel. It’s a great place to get more information on treatments and strategies that may help you. Also, Dr. Ginevra’s book, The Fibro Manual, is a great resource. Sending you some Fibro Family love 💜
@elio222229 күн бұрын
Dr. Liptan, thank you for all your great advice on LDN. I just started taking it. Fingers crossed! Also these new treatments look really interesting!!
@ishantyadav38859 күн бұрын
How is LDN ?
@elio222229 күн бұрын
@@ishantyadav3885 I only just started taking it a couple days ago so I'm not sure yet! I'll try to post an update in a few weeks!
@lorianthony48928 күн бұрын
Cost for the Alpha Stim M is impossible for me because I live on a small fixed income from SS disability. I am very grateful to have the Disability pay though. I had to hire an attorney to take me through all of the denials that I was first given, but after two years and going before a SS Disability medical board and judge, I was awarded full disability and of course, Medicare. My attorney helped me by explaining we had to present all of my diabilities including long term depression. I had about 6 years of medical records to give the attorney at our first meeting. I was given disability at age 44, 17 years ago.
@thefibroshow6 күн бұрын
Thanks for watching and sharing your story. Hopefully someday products like Alpha Stim will be covered by insurance🙏
@moduqueRN5 күн бұрын
Can you explain (maybe in a future show) how lipomas can coexist with fibromyalgia? I have these but nobody has explained the connection. Thank you.
@michelleadcock48063 күн бұрын
Hi, I’ve Been on gabapentin for about 4 years my brain fog is getting much worse. I’ve heard that gabapentin could be making this worse. I would like to know what’s your views on this. Also a great show you do. I’ve learnt so much. Thanks for reading.
@thefibroshow3 күн бұрын
Medications can create brain fog. It’s hard to say as everyone is different. Thanks for watching and commenting🫶
@lorianthony48928 күн бұрын
This is a great way to present medical info. Thanks so much for this podcast.
@thefibroshow8 күн бұрын
You are welcome and thanks for the feedback!
@emilymercadante20749 күн бұрын
Thank you - will you be doing another episode to cover more on the current thinking about overlaps between fibro and long COVID?
@thefibroshow8 күн бұрын
Thanks for the question. Yes, we will address it soon in a future episode. Have a great night.
@mariannegiblin13288 күн бұрын
I've been pain free from low dose naltrexone though it took a few weeks to load. Also Alpha Stim has been very helpful for isolated areas.
@thefibroshow8 күн бұрын
Wonderful news - thanks for sharing!
@georgianasstudio8 күн бұрын
I’m using low dose naltrexone too.
@Crazyleigs4 сағат бұрын
I was hoping it would work for me. But I can't say it did. What dose are you on? I may try again.
@georgianasstudio3 сағат бұрын
@ 4.5 mg
@Crazyleigs4 сағат бұрын
I would like to know why so many get fibromyalgia after surgery? Im reading it happens often.
@DanF3009 күн бұрын
Interesting stuff. Thanks !
@jolenebauser4089 күн бұрын
I have issues with Fkexeril. It really knocks me out. When I took it, it made me extremely tired. I took while I was still employed and I would literally fall asleep standing up. It was awful. It would be great just taking it before bed and I’d be able to sleep at night.
@doje21788 күн бұрын
AT 20 minutes I got the 'notice' that you didn't ask us to subscribe and the video ended but we hadn't covered everything you said you were going to cover. Is there a sequel. I was especially wondering about is long COVID Fibro? Thanks.
@thefibroshow8 күн бұрын
Thanks for the question. Yes, sorry we meant to wrap up the conversation a bit more on Long Covid and Fibro. We will address it soon in a future episode. Have a great night.
@doje21788 күн бұрын
@@thefibroshow Thanks. I thought I was not missing something. Appreciate these videos.
@Pascale56259 күн бұрын
Hi, there have been studies about SAMe and fibro. They did see improvements for pain, mood and joint health. It has fewer side effects than antidepressants (no weight gain or sexual problems). I would love your opinion about SAMe!
@thefibroshow8 күн бұрын
Interesting, thanks for sharing. I don't have a lot of experience with SAMe. Thanks for watching - From Dr. G
@zurielvanbelle40279 күн бұрын
Thank you for another great episode! I am so glad you are both doing this-it's very exciting! A question on the Quell research: in the study "Higher Pain Sensitivity Predicts..." (10.1111/ner.13463), it looks to me like Quell was found to be no more helpful than the "sham" TENS unit and both were only helpful for patients with high pain sensitivity. This is interesting because it seems to indicate that TENS (possibly in that location, but possibly not) is helpful, but doesn't tell us much more. Do I have that right? I personally don't respond well to TENS units in general (but have not tried Quell), and I think I am probably not in the high pain sensitivity category (assuming that means acute pain sensitivity to external stimuli). I wonder if people who DO see benefits from TENS units would see any additional benefit from Quell. My guess, based on my reading of the study, is they would not. If that's the case, it is disappointing on the one hand since this Quell may not be additive for them, but it also means that if you already have a TENS unit you like, you probably don't need to try Quell? Maybe just see if your own unit works better behind the knee and save the money? I am so happy when I see products and treatments for fibromyalgia but I am even happier when there is quality research that can help us figure out where to spend our money and where we can skip it.
@thefibroshow8 күн бұрын
The slide we shared is what a doctor with neuromodulation expertise shared at PAINWeek. According to his data, there was a significant difference between the active and control group, in the higher pain sensitivity subgroup. You are welcome and thanks for the feedback.
@cherylsmith25314 күн бұрын
I have high intensity pain and was looking at the quell device I have to take opioids at night and want to taper off I do have a tens unit that also is an interferential and a neuromuscular component I'm wondering if I try this behind the knee might I see more benefit? Can you forward me the journal article that you researched to find out about this information? Thank you
@cherylsmith25314 күн бұрын
I think I will try my TENS unit behind the knee first and save the $600
@cherylsmith25314 күн бұрын
How do I contact Quell? Many sites want $599 for Quell
@thefibroshow3 күн бұрын
Unfortunately it is not currently covered by insurance and $599 is the price. You may be able to use FSA or HSA to pay for it - contact the company and your FSA HSA provider to learn more. Here is their contact - quellfibromyalgia.com
@grannyevon93089 күн бұрын
Thank you! Both for doing this video. But i don't see y'all on here every Friday why? And I have Fibromyalgia since June the 19th of 2019 and my pains are so very bad that I need some help! Pleaseeee let me and everyone that have it know what we can take to ease the pain.And my sleep is just bad i gt woke 👆 up i am back in pain 😢but when i am a 😴 sleep i don't be in pain but to be honest I really don't be asleep.HELP! PLEASEEEE! And I have other health issues too! And my friend daughter have Fibromyalgia now and I try to keep her the mom informed and tell her to let her daughter know.Please email with any help that y'all can give me.And Thank you both.
@sandrasampson5749 күн бұрын
So great to hear fibromyalgia is getting more attention and research is promising. Do you have views on the grounding sheets and mats or experience with them. The advertisements on my facebook feed are never ending and they promote good sleep and help with pain.
@thefibroshow8 күн бұрын
Hi. Sorry neither of us have experience with grounding mats. Thanks for watching.