Embracing Change: Thriving with Multiple Sclerosis

[@steveb1155]

It's kind of weird commenting now after so long following your work, but I want you to know you really helped me. I'm a gay man living with MS who was diagnosed in 2016. I remember coming across your videos back then, in much worse a state than I am now; I was in the hospital and had become obsessed with the worst case scenarios (a situation which probably-prednisone-induced mania wasn't helping). Running across some of your videos made me stop and think, and helped me listen to someone who actually understood what I was going through when my mind needed to be quiet and allow me time to adjust. During the past few weeks I've been going through a relapse. Actually my first relapse; I've been lucky. It's strange how different yet familiar it is. I'm afraid, sure, but I'm not panicked. I know there will be a time after this, regardless of what it looks like, and part of coming to that place with my diagnosis was hearing people like you talk about it from a place of understanding. So, genuinely, thank you Seb.

[@LifeofSebMS]

You’re most welcome, Steve, and thank you for sharing with me how this channel has helped you 🥰 I hope your relapse resolved soon (it will). Stay strong buddy and remember that we’re all in this together 💪🏻🧡

[@lilianadoval8927]

My mom used to say: "Even if you go for it and it doesn't work out, you still win. You still had the guts enough to head straight into something that frightened you". Seb your words are a beacon that puts light where there is darkness. Always dare to go for more. And take all the time you need to appear here, from this other side we will always be waiting for you. Peace.

[@LifeofSebMS]

Thank you Liliana 🤗🧡

[@marksimons4108]

@@LifeofSebMS Have you tried celery water a glass every morning blended and sieved through a strainer it has amazing benefit for motor neurone and other ailments and thousands of testimonies from complete cure to revitalising energy yet no proper scientific studies to prove one way or the other!

[@drawingtom]

Your vids helped me so much, 3 years in and I’m still doing good, but the mental turmoil is exhausting.

[@LifeofSebMS]

It really is, that’s why we need to keep reaffirming the positivity 🙏🏻🧡

[@michaelineshadman844]

You are doing so good Seb❣️ You shine with wisdom and strength. Life is sweet when we allow ourselves to stop and be in the moment. God bless you Seb❣️My prayers are with you always.❤

[@LifeofSebMS]

Thank you so much for the support, Michaeline 🤗🧡

[@ExploringMS]

That’s a good strategy Seb. I have started creating videos on my MS Journey myself and at times I don’t feel motivated enough to do so. Hence when I’m good, I create multiple videos and store it to publish later so the flow doesn’t break. Your videos are really motivating. Keep up the good work.

[@marisazanella4235]

Keep going! 💪💪💪🤟🍀

[@LifeofSebMS]

🙏🏻🧡

[@anonymousgirl799]

How about using a shower chair? I take a vertical bath on mine. I can take my time bathing safely. I use a walker to steady my coming out and over tub. You're looking very well, Seb!

[@LifeofSebMS]

That shower chair does sound appealing, but I’d rather not cause I keep my showers super short instead 🙏🏻🧡

[@mikemoon8037]

Once again your words have true meaning. Im amazed how your expressive nature makes me constructively agree with you!!! Keep doing this!!!!

[@LifeofSebMS]

Thank you Mike 🤩🧡

[@homagold69]

❤ thanks for bringing that up! Indeed, we MSers do have a magical instinct to find new and different routes to achieve more balance and less stress in our lives 😃 reducing the daily MS focus has helped me so much! Thanks again for reminding me of that. 🙏🏼

[@LifeofSebMS]

Great to hear buddy 🤗🧡

[@janbarriault4494]

well done seb!! you could do videos about seb the person as opposed to seb the person with MS.. i think that you had an epiphany!!

[@lilianadoval8927]

Totally agree with you. Getting to know him a little better would be very interesting. He has a gift.

[@LifeofSebMS]

Thank you so much for this appreciation!! It really means a lot that you receive my openness so well 🥰🧡

[@soaad1983]

I agree. I love your videos about MS but I am also curious of YOU Seb ❤❤❤❤

[@lindseymcmullen-vickers4257]

Love just listening to you because you understand the life we live. X

[@LifeofSebMS]

We’re in this together! 🤗🧡

[@marksimons4108]

Godbless you brother have you tried the power of prayer and being prayed over by born again Christians as Tom Loud,Richard lorenzo jr,Peter Cabrera,Thomas Fischer all on youtube and doing amazing healing as street evangelists! Amen Godbless you brother in Jesus name Amen🔥👑🕊

[@LifeofSebMS]

🙏🏻🧡

[@theresabyess6754]

❤😊 your not alone. Thanks.

[@LifeofSebMS]

No we’re not 😉🧡

[@britsluver]

Onya babe all the positives you gotta just do xxx❤

[@LifeofSebMS]

🤗🧡

[@jude4896]

Thank you for sharing, buddy.

[@LifeofSebMS]

🤗🧡

[@danielklementi]

Thank you, Dear friend, yours videous - it a grate support in my daily life. 💓❤🙏🙏

[@LifeofSebMS]

Thanks to you Daniel 🤗🧡

[@Tyzek435]

I’m living this same journey at the moment. Except I’m still trapped at my house.

[@LifeofSebMS]

🙏🏻🧡

[@golub1marko]

How old are you now ? I've heard that you are diagnosed with MS in 27 but I cant' watch every video just to see your age and I am sorry about that but I have MS as well,very mild form since 2015 and I got it in my 17...I have tremors also but my doctor says it is unusual form that can be seen in 1 out of 20 cases or sometimes when I reach for my doors lock my hand is just shaking,nothing else or when I am counting money but that shaking related to money can't be seen 🤔 but I can feel it so good ...I was feeling so normal and good until I got my medication (rebif) in may last year and everything went downhill after that drug. Blurry vision is constantly here or until I drink a bit of beer...after beer or few everything is normal again,no blurry vision or anything else. Are you on some medication ?

[@LifeofSebMS]

Hey there, I’m currently 36. Beer is actually something I avoid because of the gluten and the alcohol makes my walking too unsteady. I am on Ocrevus since 2020. It’s really weird that rebif is making you worse! Have you told your doctor about this? 🙏🏻🧡

[@1Dakashi]

Hey Seb, just found you. I'm curious are you still able to work while having MS?

[@LifeofSebMS]

Hey, welcome! Yes I am 💪🏻🧡

[@1Dakashi]

@@LifeofSebMS Ok thanks, I have been struggling at work lately. I'm waiting for a diagnosis, but all symptoms point to MS.