I have EPI. You really hit home with me. No one is following up on me. I probably call the gastroenterologist and set up an appt. Been taking Zenpep for 2 months. Cost is outrageous. Thanks again for a clear, concise presentation on EPI❤
@gothafloxacin8 күн бұрын
I have EPI and none of my doctors know why. I was diagnosed while i was having fatty diarrhea 40+ times a day. My elastase was 82. Essentially I had a severe presentation and developed severe complications from it. I am J tube reliant and relisorb is incredibly important and crucial for my survival. I am glad to be alive.
@willgordon57372 ай бұрын
You are right doctor, I got use to frequent bowl movements, and steatorrhea that.. once the pain progressed and I start loosing my eyesight at night, that I realized its something wrong.
@arthurtheartist Жыл бұрын
excellent video. one of the best I've seen on this topic.
@reardontapia Жыл бұрын
Very thoroughly explained. Thank you.
@lillianraker642911 ай бұрын
This video is so well done, thank you for providing clear and compassionate information!
@larco63173 ай бұрын
Thank you so much! This was so informative. Have never had the condition fully explained to Me and was recommended this video through support groups. Thank you for explaining it so accurately and helping us fully understand what is happening within our bodies!
@BARF_FACE_9000 Жыл бұрын
Thanks for more info. I just got a test result back that mine is quite low… I have struggled with issues of IBS and only now finally charting a path to recovery / treatment.. to be continued but- I guess knowledge is power and I’ll have to get some more enzymes somehow someway!
@maryreichelt31942 ай бұрын
Excellent job ! 10/16/2024
@RyanMcGirr-bu4qr Жыл бұрын
EPI tested twice well below normal range of 200-1000. All symptoms except flatulence. Five or more stools per day. If I eat fat they float. Before PERTs foul smelling sometimes. Have tested fat soluble vitamins levels and bone density. Dental health has declined greatly this last year. Was put on FODMAP diet and many lab test. Before EPI test my mental health was questioned and was drug tested. Still having issues.
@eliderobot6209 ай бұрын
me too, I go like 6 times to the toilet, anything I eat immediately comes out, anything liquid triggers diarrhea, I have type 1 diabetes, osteoporosis, severely underweight
@sandymutert84957 ай бұрын
I tested out at 58 per the test…out of 200.
@janetfrank31854 ай бұрын
Thank you so much, the information you offered is very valuable.
@antoniocognato50233 ай бұрын
can stem cell theraphy help?
@bm42125 күн бұрын
I’ve been wondering the same. I read a study that MSCs helped pancreatitis. Mission cure is currently doing trials where they take stem cells from bone marrow from the patient, grow more stem cells, then inject back into the patient. I worry that IV stem cell therapy will just get trapped in the lungs and be a waste of money that I don’t have. EPI sucks though.
@dottiedavis3553 ай бұрын
I’ve had chronic pancreatitis and EPI for 10+ years, and have a different issue lately: weight loss, little appetite, and muscle wasting (sarcopenia-Thanks for the new word!). My Gastro APRN says take the enzymes, but no other advice. Would a nutrition consult help? The RD’s in my area have no experience with EPI, so I’m also asking where do I look, please.
@DietitiansinNutritionSupportАй бұрын
Thank you for your question. If you are experiencing new nutrition related problems, you may benefit from speaking to a Registered Dietitians Nutritionist. If there are none in your area who are experienced with EPI, telehealth consultations may be an option to consider. To search for nutrition experts by topic or area (including telehealth), you might find this search page from the Academy of Nutrition and Dietetics helpful: www.eatright.org/find-a-nutrition-expert. Experts listed on this search tool also include short biographies where you can identify a provider who can best serve your needs.
@earleneschmitt33264 ай бұрын
Porcine Pig source of PERT unfort contains alpha gal protein. which many are allergic to..I wish the GalSafe Pig CO, Revivicore would make PERT w their GalSafe pigs.. Im going ask Mylan Viatris abt GalSafe PERT R&D
@ninadperiodon8 ай бұрын
bile sludge and gallstones .
@bm42125 күн бұрын
Has anyone had luck using over the counter enzymes rather than prescription?
@francesholliday542717 күн бұрын
Yes, I found Pancreas Glandular (by Allergy Reasearch group) worked well if you don't mind pork enzymes ( the worked better than veg enzymes for me)and i only have to take one per meal!
@bm42117 күн бұрын
@ thank you
@francesholliday542714 күн бұрын
@@bm421 You're welcome! Forgot to mention I trialed a small bottle first, then looked for more economical bulk deals (here in the UK but I think available elsewhere). I found this tip through a facebook support group, and a member who had been recommended this by an alternative practioner.
@bm42114 күн бұрын
@@francesholliday5427 I ordered some from Amazon and should have it this week. Thanks again, really appreciate it!
@ninadperiodon8 ай бұрын
Just add Ox bile and treatment plan is complete. Thank me now.
@bm42125 күн бұрын
I have found ox bile to help more than the pancreatic enzymes but I’ve only used over the counter ones. Ox bile stops the diarrhea for me but not sure long term if it’s causing more harm than good to pancreas
@Perry-qs6fx6 ай бұрын
I have a question ! Recently diagnosed but instead of losing weight I blew up and need to start losing weight -the bloating is real! Any suggestions ?
@DietitiansinNutritionSupportАй бұрын
Thank you for your question. If you have started on PERT, you may experience weight gain as the enzymes are formulated to help the body break down and absorb nutrients. Some common side effects of PERT include bloating or other GI distress. Changes such as limiting carbonated beverage intake, not drinking from a straw or chewing gum and eating smaller, more frequent meals along with limiting gas-producing foods may help reduce bloating. It would be encouraged to speak with a registered dietitian nutritionist about your concerns to get personalized nutrition guidance.