Fibromyalgia life hacks!

[@isabelbecerra3881]

Recently got diagnosed with fibromyalgia at 20 after being told for a decade that I was just lazy . Thank you!!! ❤️

[@LordandLordettes]

Oh my goodness! I bet you are glad to finally get the diagnosis.

[@sleepinglioness5754]

Sweet young Isabel, how heartbreaking you had to endure that attitude. You are still young and now is the time for you to spend your time beating this. Look into diet and teach yourself a whole new way of preparing food and eating. Become an expert at what you have been dealt and that will give you the strength to educate people around you who are ignorant of the subject. Did you ever see the Cinderella movie with Lily James? At the end, despite all the grief and cruelty her stepmother gave her, Cinderella turned and said..."I forgive you". Now is the time for you to do that Isabel and take back your power. God love you Isabel and find some comfort knowing that others know the challenges you live with.

[@isabelbecerra3881]

@@sleepinglioness5754 My wonderful husband and his family have helped me so much with diet. It’s a hard change, but the little amounts of sugar and gluten I’ve been cutting out have been life saving! Thank you for your kind message. It brought a smile to my face. May God bless you too! ❤️

[@sleepinglioness5754]

@@isabelbecerra3881 xoxo

[@glynnisthomas9165]

I hope you are doing ok Isabel. I know you aren't lazy! Love from Texas. 💕

[@theskyisonfire]

As a 14 year old with fibro I really appreciate this. I just got diagnosed in November and it's been getting a lot worse so anything that can make doing things easier is really appreciated ♥️

[@LordandLordettes]

Sorry to hear your diagnosis at such a young age. Please watch my past Fibro sections as they may help you. I can't say I can wave a magic wand, but it's trying to live your best life while managing the Fibromyalgia. Am always on my social media if you need to ask me anything. 😉

[@1purplerose]

Poor thing. I've had Fibro for nearly 30 yrs. I'm 57. My advice to you is just be extra kind to your body. Drink plenty of water, eat a well balanced diet. Try to limit sugar and bad carbs. Find out what your body can tolerate as far as exercise. This condition is manageable, with lifestyle changes. So if you need any advice or have a question, I will try to help you. (I'm a nurse, as well, so I have lots of info.)

[@theskyisonfire]

@@1purplerose Thank you!! I really appreciate it. I'm sorry u have it as well. Have a great day ♥️♥️

[@cyyoung9175]

Youre a lovely wit ...tough topic but you make it doable. All good ideas.

[@junehulbert2337]

Slow cookers save me ! So do heating pads ! I have a long handle pan and broom, and they are very helpful. Aroma therapy also is great. I am going to try your recommendation for a cooling pillow ! I agree that lists can be stressful. I try to keep my list small. Thank you. This video is awesome !

[@LordandLordettes]

Thank you! Great ideas!

[@laurenamitchell2346]

I WAS DIAGNOSED WITH FIBROMYALGIA 9 MONTHS AGO I FIND IT DIFFICULT TO COPE WITH.. AND I NEED TO FIND A GROUP TO JOIN ***I FIND IT LADY VERY INTERESTING I NEED TO FIND SUFFERS WITH FIBROMYALGIA TO SPEAK TO THIS LADY IS VERY INTERESTING AND INFORMATIVE MANY THANKS

[@LordandLordettes]

I find Twitter good for discussing Fibro problems. Hope my videos help. If you watch the video on lack of support it mentions some groups in the description.

[@Hanannn2.0]

I don’t know why but your voice is so calming

[@LordandLordettes]

Thank you! 😊

[@gloryshouse5198]

Very informative a lot of useful tips. The main thing is to simplify everything and learn to pace yourself. Enjoy the journey through life. Slow down a bit. I have a wheelchair also that I use to do my floors or when I am having bad days. That way I don’t have to stay in bed all day. I have a cordless vacuum mop that I use while in my wheelchair. When you sweep or mop do not use your arms back and forth so much. Just follow the dust mop as much as you can and let your body weight do the pushing. I have several things I use to help with cleaning. Long handles help so I do not have to stretch or bend. Lightweight vacuum cordless. Dyson is great. I also use a spill proof cup by my bed. Lots of pillows heating pad. The works! It is not easy to deal with. For the toilet get a bidget. If you have IBS you will thank me for that advice. It sprays your bottom and clean up is much easier and cleaner. Buy a suction cup hand held holder for your shower so you can have the water hand held close to you. You don’t even have to hold it that way. There are a lot of things to do. Have everything you need close by in every room. Organize and simplify.

[@LordandLordettes]

Lots of good tips thank you! 😊🌞

[@michelleslifeonrepeat]

Nice to find another fibromyalgia who gets it.

[@LordandLordettes]

Thank you! Glad you like my videos!

[@lifewithfibro553]

I have fibro too!

[@csyt4404]

I do 2 lists; 1 is for decent days, the other is for bad days.... A job on the 2nd list may be jst to text someone to let them kniw I am not feeling great. If it is a really bad day I don't even open the notebook to look at the list... And that's okay! 👌

[@inda8540]

Another tip on the cutlery - I use round handled utensils because the square angles really hurt the skin on my fingers.

[@LordandLordettes]

Thank you, good tip!

[@Omegan613]

For hand warming I use a regular 500 ml water bottle filled with hot tap water and tuck in the pocket of my hoodie. It lasts 20-30 minutes.

[@hendrikawehrmann8031]

❤just found your utube channel. Thank you! Horray someone else who understands fibromyalgia. I have learned so much from your hacks it has ta,en me quite sometime to come to terms with this diagnosis as ist's not very well known in Australia.

[@djpatt81]

I cannot peal potatoes but I discovered you can buy ready pealed potatoes from some supermarkets in fresh vegetables area or frozen end

[@AuntieBoosCrochet]

I just wanted to say thank you so much for you sharing your experiences with us. I'm 19 and I've just been diagnosed, fibro has put a complete halt in my life and I'm hoping to get to the point where I can cope. So thank you for showing me these hacks that I can use to achieve some form of normality

[@LordandLordettes]

You are welcome! I have so many videos which could help you. We can live a good life, we just have to listen to our bodies and adapt. 😉

[@DisabledandPrepping]

I suffer from fibro and dystonia among a few other things. I really found this video kind of by chance and I'm very grateful I did. You just got a new subscriber I'll be checking out other videos as soon as I can.

[@LordandLordettes]

Welcome aboard! 😉

[@silverlining1973]

Lovely tips! I try to bulk cook meat & bag it up by the pound in the freezer. I gave up on bras a couple years ago. I mostly wear bralettes or shelf bra camis. Victoria’s Secret makes one that’s a glorious cross between a silky soft sports bra & a “normie” bra. No hooks, wires, ect. I can’t have the clasp on my spine so these are a God send! Epsom salt Baths are lovely, too!

[@silverlining1973]

Body by Victoria Lightly Lined Plunge ^^^

[@AlexxWretched]

My heated blanket is ESSENTIAL once autumn hits. Works best underneath a quilt if you need a lot of heat.

[@flowersstorms8863]

Excellent haul of tips there, Nicola, thank you so much for all your work digging these out for us, and also showing us so many of the bits & bobs that make your life easier. LOL! You and I have almost the same sofa setup 😊 my Hubby calls it my nest 😁 I knew about most of those excellent suggestions, but you've reminded me to get an automatic can opener: cans are getting progressively harder for me to open as I can't put pressure on them and open them properly, so end up with a sharp edge/partially open tin which is dangerous. I adore my slow cooker! I also have a rice cooker (about £15 on Amazon IIRC) and that's fab too - I cook rice & quinoa in it too. The chillow can go in the fridge/freezer, but I never bother with mine as it's already plenty cold enough. I put mine in my pillowcase, just on top of the pillow. You can also put them under your laptop to stop it overheating, apparently LOL! I batch cook too. I'd highly rec a steamer (mine was about £5 in Asda). I batch cook veggies in it (just top in bags of frozen stuff),, then transfer it to takeaway boxes in portions. I do it twice a week & then just microwave as needed. Re: potatoes - If I have loads left over or 'on the turn' I chop them into roughly 1 inch cubes (with skins on) and chuck them in the oven for about 30-40 mins. No oil, no nothing, just the tatties. Once they're cooked & browned I freeze them, then they're ready to go when needed (20 mins in oven from frozen & they're cooked). You can add stuff to them but they taste really nice & soft/fluffy with nothing added too. Thanks for all your vids! You're content makes me smile & really helps me remember that there are others out there who truly understand what a challenge the Spoonie life is. Love ya, Spoonie Sister x 😘

[@LordandLordettes]

Thank you! All your tips are really good too! I tend to use steam micro veg as contains more vitamins and so easy to use! Potatoes is a good tip! Laptop idea is good mine often overheats!

[@danag3225]

You have the most beautiful hands.

[@LordandLordettes]

Thank you! 😊

[@vivianpennington5330]

I’m in Florida here.,just found you and am so relieved to hear I’m not crazy that I turn my clothes (at home or for sleeping) inside out. I often feel pain just from a strong breeze across my skin . Love your info. You may be talking about a Spoonie bag. It’s used for supplies for people with chronic conditions. I keep mine in my car. I also have Crohns and OA.

[@LordandLordettes]

Hi! Thanks for watching, you may like my Allodynia video too as you suffer from it. Love Florida by the way, my favourite place! ❤

[@babygonda1226]

Lets win souls for JESUS CHRIST🌱🙏 The world needs a hug from HIM🙏 Repent, confess and accept that HE is our only HEALER🙏❤️🌿

[@LordandLordettes]

Fibromyalgia life hacks! I have tried to link all the things I mentioned, but I ran out of room on a couple!

[@meepmopp]

I’m in the process of acquiring a 10 in 1 cooker. You can make a wide varity of foods in them. They are also easy to clean. As a visually impaired person i need to be able to hold thing closely to my face to see them so I traded in my laptop as i had to either jold it upbor bend over to read the screen even with magnification. I traded my laptop for a lightweight tablet that s only weighs 1 pound. I switched all my dishes from ceramic to lightweight heavey duty plastic. I use a customized ski pole as a white cane as it has shock absorbing technology in the joints and handle and a rubber tip to help reduce jolting. It too is a very light weight item.

[@LordandLordettes]

Great tips! Thank you! Someone said to me about walking poles. 10 in 1 cooker sounds great!

[@irmam8577]

Hello dear I want to thank you so so much .for giveing us these tips I will tell you this you have given me more information on how to make my life a little better. Liveing with fibro more then my doctor has in years .I really need to find me a rumotologist but I live in n.w. Indiana and in the country but I'm willing y travel to Tim buck to to get some relief from this fibro. To be honest I'm a single mom with a 10 year old child and my husband abandon us because of my fibro .I can't do alot of movement I'm actually in a fibroflare cause I baby sat my 1 year old grandson and he wants to be carried and I got stressed out and know I'm in bed extremely pain full to move.cant walk my legs feel extremely heavy. And I hate to depend on my child for help. And with your advice I'm very happy to try .I have trouble putting on Sox undies and pants shoes just bending is excruciating do you have any advice on that any tips thank you.

[@LordandLordettes]

Firstly, thank you for your kind words. All I want to do is help people live the best life they can like I do! Secondly, I am so sorry for your situation it must be really hard. I have researched myself to get help as no professional has helped me! Check out my other videos which should help. As for putting socks on, I know there is a gadget you can but for that. Do you have amazon there? I always have to sit down to put things on but sometimes get help from my family. I think, it's about treating us as a whole no miracle cure tablet will work or one thing, it's a multitude of things that help. Counselling has helped and herbal meds i researched. Also, singing and seated yoga you can do on You Tube. Like I say, watch some of my other videos to get some more ideas! Hope that helps! Much love.

[@irmam8577]

@@LordandLordettes hello thank you for the tips. It's good to have an idea of what to use and what to do I will definitely look at your other videos .and yes we do have amozon here it comes in handy . Only thing is since I last message you I unfortunately had 2 disk in my lower spine ruptured 🙁 it's as you can imagine excruciating agonizing pain .I can't walk if I try it's smaller then baby steps. No pain meds will help. So I'm actually waiting to hear from the spinal surgeon to see when I can be seen and what he can do for me. I'm actually scared of surgery.cause I had a hysterectomy 4 years ago and the pain was unbearable no words can describe it more then that. But I keep praying all goes well and I can get back to moveing . Thank you darling 🌹 have a great and healthy loveing day.

[@LordandLordettes]

@@irmam8577 oh no! That sounds awful! So sorry you have to go through this. Hope you get some relief soon.

[@irmam8577]

@@LordandLordettes thank you. Have a wonderful day

[@nettygallagher2724]

I bought a fan like you're from qv c it was £10 . I all have fibro. I have 4wheel walker got to go to have face to face all with doctor to be referd to have MRI I have had lower back have been from the hospital I have spinal stenosis. I asked the doctor to have one in Jan wen I spoke to different doctor she said it was not reqested. So now I have to go to doctors mon for face to face so I can get a federal for MRI. I am suffering with walking it's affecting my hips and legs carn t walk it's so painfull. I fell in Dec face down I have been so bad with pain. My hand are bad at the moment I find it hard to text I try not text all the time .

[@petaharwood2381]

Excellent video! I use many of these, but now have more to add to my fibro arsenal 👍🏻

[@nashd8005]

With regard to lists…. I keep ongoing lists. For example when I go to the chemist (pharmacy) to get my prescription meds, I grab the chemist list and don’t need to remember all the other things needed from that shop. Likewise if my DH is off to the hardware shop or stationers, he can grab my list for that. As for to do lists, I often write a long list of everything. Then each day, depending on spoons, I will pick a couple of things off the list to do. Because the big list is ongoing, it is like a dream list and I don’t feel the compunction to complete it. (Actually, every now and then I review it and things can be crossed off even though they aren’t done, because they are no longer important. Yay.)

[@glynnisthomas9165]

I use the heat pad and super soft blanket and I have a place on my sofa just like yours. Only the fibro patient understands how important these seemingly small tips really are. 👍 Much love from Texas.

[@michelleslifeonrepeat]

I love my 5% ladicane patches with prescriptions. Awesome relief

[@charissebolch1507]

Me too! Sometimes even those aren't enough!

[@thereseengtro1701]

I am having problems opening my med bottles so the first one i will try😁

[@hrusewif]

Regarding the go-bag, I have a VERY tiny little backpack I got from Walmart that I started carrying in lieu of my purse ages ago, mostly because it's easier to keep hold of, but it's come in really handy as a go-bag or sorts. It's not terribly bigger than my old purse was --- JUST large enough for my wallet and phone (since it does double as my purse now), a little snack bar and some hard candies plus a tea bag or two, my inhaler and a tiny bottle of Tylenol (which is full of various tiny ring baggies of different clearly labeled meds instead), my mask, a small bottle of hand sanitizer, my "Two Old Goats" lotion (use it for my neuropathy in my hands since it kicks in whenever I use them too much), a little portable hand fan (in case I get the sweats or need to cool off quickly), and my Kindle Oasis (waterproof in case I drop it, yeah baby), some extra hair pins and hair ties (always loosing the bastards), plus a few other tiny things if I need / want to switch it up. And then it has a clip I've added if I want to add on a water bottle to carry with me (which I have a mini one for). I definitely recommend a go-bag after carrying mine for so long, but they really don't have to be huge- let alone full of full-sized items, either ... I really only keep enough with me for a single use kind of "emergency" or a "tide me over" kind of situation.

[@dominique8233]

Really appreciate your hacks I will have to look at them from your list as I am in the middle of a flare and the music is so loud.

[@cathyxox3999]

Thanks for practical tips presented in a funny way.

[@judithhopes151]

The wireless tens are so much easier to use. The large butterfly shapes on the back can ease the bad aches all the way down to hips thighs down knees.

[@aruallauraarual]

Hi! What brand do u use? I have somehow only really heard of these now. I am absolutely desperate for some pain relief for my back, so think this be very helpful.

[@lifewithfibro553]

I have had fibromyalgia for 2 years and omg that flower thing is genius! One of the first things I noticed was how weak my hands got so that will be so helpful!

[@LordandLordettes]

I'm glad you found it useful! 😊🌞

[@mariabernardes5119]

Thank you for the tips 🙏🏻💪🏻😘

[@LordandLordettes]

No problem! 😉

[@shannonweatherill5290]

Vegetable chopper has been a lifesaver. Thought it was silly but it makes dicing veggies so much easier.

[@LordandLordettes]

Might have to invest in one! 😉

[@tanit7741]

Just putting the tens on works cuz it releases endorphins

[@sabbath2112]

this video is just what i needed. i've currently been relying on weed for my pain and it's not the most practical option for me because i can't use it before work or driving. i need those patches asap lol.

[@LordandLordettes]

Definitely try patches, there is also a gel that is really good that I mention in other videos. Look at my Fibro flare up essentials and other more recent Fibro sections. It's made by the motorbike cosmetic company.

[@nashd8005]

Your videos are such a blessing. You seem to capture Joie-de-Vivre-avec-fibro, and with a healthy sense of humour. Thank you!

[@LordandLordettes]

You're welcome! 😊

[@MorgansTutorials]

Thank you so much for sharing. I have considered for a long time getting reusable plastic plates because carrying to the table hand washing heavy ceramic plates seems so difficult at times. I felt like I was just giving into things and I can just do it, but it really is exhausting and painful most times. Seeing you show the lightweight silverware is so validating. Little things can be so difficult with fibro. Thank you again for this video ☺️

[@LordandLordettes]

Ah, thank you for watching! There are plenty more videos to help if you need them. 😘

[@Omegan613]

We switched from heavier dishes to Corelle, and it has made a huge difference as we do not have a dishwasher, so I can wash more dishes at a time.

[@djpatt81]

I do to do lists I put lists in order with most important priorities at top I pace myself rest in between each list

[@LordandLordettes]

Best way!

[@silverlining1973]

I do something very similar. I pick my top 3 things that must get done that day, aside from dailies. I’ve been decluttering as fast as I can. Less to clean. Less to do. 🤷🏼‍♀️

[@theyoutubeanalyst3731]

I haven't finished the video yet, but what about pop sockets? I got myself one after one day that I didn't have my pain medication, and couldn't call the pharmacy to buy them because I couldn't hold my phone, so I just suffered for a while laying there.

[@LordandLordettes]

Yes, good idea, or they sell phone holders you can clamp onto your bed too!

[@estacanida7104]

I just got diagnosed with fibromyalgia I really enjoyed your video and found It very helpful thank you so much

[@LordandLordettes]

No problem, I have many videos so hope they help! 🤞😊🌷

[@JosieJo54]

Thanks for the tip about the heat pad it has been such a help to me with my pain across my shoulder blades. I also purchased the fan which I was so surprised at how powerful it is. Once again thanks for the advice xx

[@LordandLordettes]

No problem!

[@BlackWingParanormal]

Thank you 🙏 so much sweetheart for this really helpful and informative video, Many of your hacks and tips really will be helpful for me. I’m going to have to write down the tips you have shared that I feel will help me. I’ve saved this video for all the awesome tips. Also I’ve just subbed to you and rung your bell 🔔 See you again soon. Thank you for your help. Much Love 💕 Light, Blessings & Comfort to you. Xx xx xx xx

[@meganleibee2202]

I've run out of spoons every day for at least a month. It is invisible so I often feel like I am overreacting but it has been so challenging recently.

[@djpatt81]

I love lavender

[@cindisims5917]

You are lovely and I love watching all your videos. How are you able to do so much with fibro.

[@LordandLordettes]

Don't forget you only see part of my day! A lot of time is spent resting! 🙂

[@cindisims5917]

@@LordandLordettes Im just jealous!! Lol

[@nettygallagher2724]

I have short chair I have a wet room in my flat I have !off in my building also if the lift is out of order there is a stair lift on the stairs.

[@donnabeard9344]

On a good day with help you can even make slow cooker meal kits that you put in the freezer and then all you have to do is thaw them out the day before

[@Kimifer15]

I’m on fentanyl pain patches from gp

[@LordandLordettes]

I tried those but they made me really poorly. 😔

[@Kimifer15]

Sorry about that I’m ok on them x

[@jayneprice7227]

Please can you please tell me where to get that hand held fan I need one

[@LordandLordettes]

I listed it all in the description. If you can't see it let me know!

[@jayneprice7227]

Thanks for getting back to me I looked but it's not there I have fybromialga and osteoarthritis plus a underactive thyroid so what with my fybromialga and arthritis I and in pain permanent ly so I know what it's like I watched your tips and saw the fan it's just what I need I am suffering from sweats all the time so am wet through and its embarrassing I have to keep a hand towel in my car for when I am with my husband in the car so please send me the link back to me xx

[@LordandLordettes]

@@jayneprice7227 www.amazon.co.uk/VersionTECH-Portable-Foldable-Rechargeable-Travel-Black/dp/B07BT18FFP/ref=mp_s_a_1_3?dchild=1&keywords=hand+fan&qid=1622236585&sprefix=hand+f&sr=8-3

[@delindaberryhill3610]

So helpful, thank you 😊

[@ilovemyjayhawks]

I was told that we tend to run hot because our muscles are so agitated and inflamed. I literally sweat in 34degree weather. Fibromyalgia warrior for almost 6 years.

[@LordandLordettes]

Check out my Hyperhidrosis video. 😉

[@prettywomenswag]

I'm def getting pain patches I never heard of them

[@LordandLordettes]

They are good for an area of pain, but mine usually travels.

[@prettywomenswag]

@@LordandLordettes right now it's in my hip xx it does travel downwards where you buy them, can I get them local

[@LordandLordettes]

@@prettywomenswag I bought them online just google pain relief patches. I will look tomorrow to see if there is a brand name.

[@elizachern7165]

Thank you a lot! There is so little content about fibro, this helped a lot!

[@LordandLordettes]

No problem! 😘

[@djpatt81]

Suitcase 😂

[@sleepinglioness5754]

Maybe you've already discussed this on previous videos, but food can have a tremendously negative affect. The nightshade plants, such as potatoes, tomatoes, eggplant, etc. (sweet potatoes are ok, but remember the skin of vegetables, which unfortunately has the most benefits, is hard on the GI system if you have any abdominal upset/pain) of course the #1 culprit is sugar. Certainly beats medications and all the anti-depressants doctors try to push (because they don't know anything about the subject). I wear shoulder and waist braces when going shopping = pushing shopping cart, lifting. Also orthotic (orthosis) hand braces. Big difference.

[@JoAnneMOwens]

I thought I just had osteoarthritis, but now I am thinking I may have fibro. I suffer from hot flashes even though I am way past menopause, and have terrible pains in my hands and muscle weakness. Sometimes I cannot open jars and lose my grip. This has all happened over the last 6 months or so. Also, my shoulders feel weak and I have theses random pains that move about and exhaustion. Think I will chat with my doctor and see what he thinks. Thx for this video! X

[@LordandLordettes]

Yes definitely speak to your GP. Check out my other videos to see if they can help.

[@glynnisthomas9165]

Oooh. Sounds like fibromyalgia to me. You need to get diagnosed darling. Not that my diagnosis helped me medically but it did help a bit mentally as no one believed me until I got diagnosed. 25 years later and I do still have to explain to my loved ones why I can't...(whatever it is that I can't do that day.) The hardest part is the mental part, in my opinion.

[@tinalewis9880]

Thank you so much for these useful life hacks. I am terrible with peeling, kills my hands so I will try just chopping, one way of getting extra nutrition!

[@LordandLordettes]

Exactly! 😉 In my latest weekly vlog, I share a new potato chopper which crinkles your potatoes and I found easier. 😊🌷

[@sleepinglioness5754]

I've started using one of those veggie spiralizers, like you see on tv. It doesn't give you chopped veggies (eg. sweet potatoes or zucchini) but it twirls it up so you can then boil the veggies. Better to boil or steam them rather than frying; frying hard veggies can cause stomach/gut upset.

[@kathybrewer3182]

Where did u find the patches again. Thanks great life hacks

[@LordandLordettes]

This is the website on the back www.naturalpatchesofvermont.com

[@pr3072]

In America here … to touch the more shallow pain edges … I use Aspercreme with Lidocaine , the patches left me with some skin irritation. The roll on. I was diagnosed 25 years ago.

[@carolgreenlee1100]

The salonpas patches are really good

[@obvdisaster]

Great ideas!

[@LordandLordettes]

Thank you!