Have you recently been diagnosed with Fibromyalgia? What now?

[@patriciajarrard2738]

Great video and information. ❤

[@fibrowarriors]

Thank you so much. I really appreciate that ❤

[@Marcia_Toms]

Thank you CJ. My pain management team have offered me an online “body reprogramming” Course. It’s weekly and lasts a couple months I think? I’ve not much faith in it and am rubbish in the computer but if I don’t do it I’m worried I’ll be thought of as not trying to help myself. I had the famous fibromyalgia leaflet and was promised help but none came. I can hardly stand up or sit up some days. I think your channel is wonderful and the best help and information I’ve come across. Thank you so much. X

[@Bearkingforever]

Hope your well

[@fibrowarriors]

I'm down with another UTI! But at least the sun is shining 😊

[@fibrowarriors]

Aw Marcia. Thank you so much😊 Please could you tell me if your Rheumatologist did the trigger/tender point test on you? Thanks so much for your kind words about my channel. You've no idea what that means to me. Much love CJ ❤ & Puppy Dog 🐕 xx

[@Marcia_Toms]

@@fibrowarriors hi CJ yes I think she did the tender points on me. I hurt in other places though ( possibly from old injuries ) so I sure how helpful that may have been. After the appointment I had an mri scan and x rays on knees, back and feet, ( they were also checking me for psoriatic arthritis) x

[@fibrowarriors]

@polarskye Thanks so much for your reply. I wasn't sure whether they still did it or not. I also had xrays after. I've got osteoarthritis right across the base of my spine. Did they give you the diagnosis whilst you were there? Please don't worry about replying today if you're busy xx

[@Bearkingforever]

God bless fibromyalgia warriors…..

[@fibrowarriors]

Hi Bearking I hope you're doing as well as possible. God bless. CJ 😊

[@Ez2beholli]

It’s great to see you putting out a new video my dear! Lots of good information, especially for those who have recently been diagnosed and having them keep a log of their symptoms to show their doctor! You look wonderful sweetheart! ❤😘

[@fibrowarriors]

Hi my friend. I made this video a while back and have just realised that I hadn't uploaded it. Thank you for your kind comments and the lovely compliments! I hope you're doing as well as possible. Much love CJ xo

[@english3542]

just saying hi catch up soon x

[@fibrowarriors]

I am sooo relieved to hear from you! I've been worried sick about you. Thanks for saying hi 😊 Catch up with you soon honey ❤️ xx

[@english3542]

@@fibrowarriors hi there been hospitals lots carnt walk one leg serios pain having lots tests catch up soon xxxxx

[@ritaarmitage9287]

Evening hope your okay x

[@fibrowarriors]

​@english Hi love I'm planning on doing a Live this weekend. Will you be around? xx

[@fibrowarriors]

​@Rita Armitage Hi Rita I hope you're doing as well as possible. Love CJ ❤️

[@lorimiller4301]

I sure understand wanting to make use of the struggle. Most days it feels like such a waste to have Fibromyalgia. Ive been forced to have a new doctor now who wants to take me off the painkillers ive been on for 20 years. I can barely hear him, barely understand what i do hear and i dont feel like its a good fit but there are no available doctors in my city that are taking new patients. He was supposed to give a refill last appointment and he didn't. Now im left wondering whats going on. I guess i have to find someone new. You sure dont look like you're in your 60s, wow wee !! ❤😊

[@fibrowarriors]

Hi Lori it's lovely to see you. I'm so sorry to hear about your painkillers not being renewed. They're trying to do the same thing here. It's very worrying. If the doctors suffered with the pain we do, they would think again. I really do hope you find a doctor who will give you what you need. Is it worth travelling elsewhere to find someone? ❤️ Thank you for the kind compliment 😊 I feel 162 most days!

[@BumblebeeTeeUK]

Hiya CJ thanks for the information for new spoonies don’t forget about pacing is important, EDMR Eye desensitise movement R ( can’t remember the right word due to brain fog) is used in people with post traumatic stress disorder, over 90% of fibromyalgia is caused by trauma, mine was a car accident and losing my stressful job. I was diagnosed by pain clinic in 1999 who gave me a trial on. TENS machine and acupuncture on nhs, amitriptyline and pain relief and anti inflammatory , they offered me a pain management course but I wouldn’t be able to go daily due to a different health condition from aged 11. My meds were changed bout 3 years ago and I’m comfortable most of the time but I’m in a wheelchair can just about stand, due to several health issues.

[@fibrowarriors]

If you go back and watch previous videos, hopefully I've covered most of what you've discussed. I'm very aware that trauma, especially in childhood, causes Fibromyalgia. I've been diagnosed with CPTSD. It's very hard to discuss everything in one video. Most of our friends here don't like the longer videos. This particular video was simply discussing where do you start after a diagnosis. I've been to 3 different Pain Management Clinics, after moving, and I really wouldn't recommend them, but that's just my own thoughts & opinion. I've done over 80 videos, so hopefully I've covered quite a lot. I hope you find some of it useful and 😊 Btw we are not allowed to discuss any type of medications. It's new Rule that YT have brought out.

[@BumblebeeTeeUK]

@@fibrowarriors thanks I wasn’t sure if you knew EDMR was for, that’s why I answered and give my experience, lived experience has helped me a lot with dealing with fibro as all as my own research. I’m sorry but I haven’t got time to watch everything I’m subscribed too , life is stressful and I need to sleep a fair bit at the moment

[@fibrowarriors]

@@BumblebeeTeeUK I wasn't suggesting you watch all of my videos. I apologise if my reply came across that way. I was just saying I've tried to cover as much as I can, but obviously others comments are very valid and appreciated 😊 I did know what the Eye Desensitised Movement was for, but obviously my brain fog kicked in. I live in severe pain 24/7 & so I don't edit my videos. I'm just not well enough