Meningioma Brain Tumor | Pat’s Story

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Johns Hopkins Medicine

Johns Hopkins Medicine

8 жыл бұрын

After years of experiencing minor health issues that she dismissed as part of the aging process, Pat found out she had a large meningioma brain tumor that had been growing for 10 years. Pat faced a two-day surgery by Johns Hopkins neurosurgeon Dr. Jon Weingart to remove the benign tumor. Hear how the experience has changed her life. Learn more at www.hopkinsmedicine.org/neuro.
For appointments, Maryland residents should call 410-955-6406, and out-of-state residents should contact 1-855-884-6754.

Пікірлер: 168
@cfbrinson
@cfbrinson 3 жыл бұрын
I had surgery 2 weeks ago to remove a golf sized meningioma in my brain..I am recovering well, seeing this video just made me feel that I am not alone in this journey!
@bukia2968
@bukia2968 3 жыл бұрын
@chris Brinson Hi how are you doing now? Howz recovery going?
@beepboop9519
@beepboop9519 2 жыл бұрын
How are you now? Glad it went well
@janlmontgomery
@janlmontgomery 2 жыл бұрын
Mine was a grapefruit or softball
@donnamallory5561
@donnamallory5561 Жыл бұрын
Where was your meningioma located? Mine was located in the frontal lobe and it was also the size of a golf ball.
@CrystalSizemore
@CrystalSizemore 7 жыл бұрын
3 1/2 weeks ago I had surgery to remove a very large Meningioma just like yours on my left side. It pushed my brain over 1"... the swelling of my brain was so bad, and the tumor damaged my skull.My Doctor, Jim Robinson was wonderful, he repaired and removed the tumor. I am having a very quick recovery that Doctors and nurses are amazed at! I consider the tumor a blessing, because I became closer to God, and all of the same feelings you felt, I felt as well. God bless you and your journey in life.
@Sayfsnipe
@Sayfsnipe 5 жыл бұрын
I hope you are feelling well, my dad has one and he is going for surgery soon. Would you please let me know if there is any side affect after your removed how long it take you to return to normal
@diannariley8430
@diannariley8430 4 жыл бұрын
Crystal Sizemore I wish that I could say the same for me! I had my surgery April 11 of 2019 and they couldn't get all of it without killing me. So now, I'm weaker on my left like I had a stroke! The tumor has returned and is now the size of a pea! That's fast growing to me! Now, I m left crippled, in a wheelchair, losing my hearing in my left ear, numbness on the left side of my face, can't taste on the left side of my tongue and my left eye is weak. They said that if they can't shrink the tumor with radiation, they're at a loss as to what's next! I could lose my life! And yes, it was a meningioma!
@nicolekelaher1979
@nicolekelaher1979 4 жыл бұрын
I have the same problem had my operation on 26th October 2019. Had seizures on 28th October put me back in icu for two days. My tumor was on the left side causing me to be temporary loose my right arm. The tumor was thought to be the size of a golf ball but it ended up being in my sinus cavity and was the size of an egg the one on the left was very small
@wednesday567
@wednesday567 4 жыл бұрын
@@nicolekelaher1979 besides the operation, did you need to do radiation or chemo? was your tumor benign? and how are you feeling now
@nicolekelaher1979
@nicolekelaher1979 4 жыл бұрын
bmf 456 I still have my good days and bad days tumors benign no I didn’t need radiation or chemotherapy thank the lord that’s a good thing I geuss😀
@nehadhamija683
@nehadhamija683 10 ай бұрын
It gives me strength for my mother. Detected 2 days ago, am already in tears
@mastakilla_2k218
@mastakilla_2k218 5 ай бұрын
How is your mum now?
@dianetrummer2491
@dianetrummer2491 2 жыл бұрын
had mine removed last week. 3 days after recovery & im good. bless you
@Borderose
@Borderose 2 жыл бұрын
How are you now?
@DaShawnCorporan-wr4um
@DaShawnCorporan-wr4um 10 ай бұрын
A procedure scheduled the 24th to see if my heart is strong enough to handle the surgery scheduled for the 30th to remove my tumor. Only God's grace led me to push for my brain to be examined. Jesus Christ is a living healing loving God and I'm trusting Him with my life. I still don't have anyone to take me to the hospital for the surgery. I've prayed and I know My Saviour will work that out too. I cast the burdens of my heart on him daily. Everything about the journey with my health has caused me to believe in miracles and opened my heart to feel safe and at peace while my spirit is joyful and free each day. Thank you for sharing your story. I'm not scared and I'm ready to overcome this too in Jesus Christ Mighty Name. The Power of the Holy Spirit is Real and I know My God loves me. I'll be fine 😊 My faith is in Him 💕💕💕
@msoda8516
@msoda8516 3 жыл бұрын
The doctors at John Hopkins removed my meningioma. I’m grateful that I’m still here with me kids.
@afsheenimran4c515
@afsheenimran4c515 3 жыл бұрын
Hi have u done ur radiotherapy .? After surgery?
@celiamoreno9114
@celiamoreno9114 3 жыл бұрын
I am here crying...! My mom got this, however we live in Honduras, a surgery here...is very expensive, but we believe in God, we just need a miracle..
@Charlotteraz
@Charlotteraz 2 жыл бұрын
Did your mum end up having the surgery and were you able to pay the expenses?
@LissetteRozenblat
@LissetteRozenblat 8 жыл бұрын
Glad it all worked out for you. I also had a meningioma brain tumor that had been growing for 10 years. I love your line, "The head opened the heart." Beautiful. Be well!
@beepboop9519
@beepboop9519 2 жыл бұрын
10 years???? What were your symptoms
@shanayafernando6385
@shanayafernando6385 2 жыл бұрын
10 years??? please tell me what were your symptoms?
@plutostarr8605
@plutostarr8605 2 жыл бұрын
Yes‼️
@najlaelemrabet6153
@najlaelemrabet6153 2 ай бұрын
What were your symptomes?
@brookelucas3365
@brookelucas3365 2 жыл бұрын
I’ve been dealing with extreme migraines, nausea, vomiting, spinal pain, dizziness, vertigo, and seizures, for the last 3 years, but the last year has been really awful. I had a bone scan two weeks ago and it defected a tumor in my left frontal skull area. I have an MRI scheduled this week and meet with my neurologist in a week and a half to figure out treatment options. I’m so tired of not feeling well and I ultimately just want to feel like myself again. It’s taken over a year to figure this all out so I’m really grateful I stumbled upon this video knowing there are treatment options.
@glamupwithmahi9154
@glamupwithmahi9154 2 ай бұрын
How are u now?
@mtioran
@mtioran 2 жыл бұрын
This is encouraging to me I am 71 years old and I'm facing similar situation
@michaelb41
@michaelb41 2 жыл бұрын
I wonder are you taking hormones for hot flashes? I think those hormones cause meningiomas.
@miaB0330
@miaB0330 8 ай бұрын
My mom will have her surgery in 3 weeks. Praying that everything will be okay and everything will go back into normal after. With God nothing is impossible 🙏🤍
@Jdoe560
@Jdoe560 23 күн бұрын
How’s your mom? My mom just got diagnosed with it
@miaB0330
@miaB0330 22 күн бұрын
Mom is very okay now. Only took her 3 months before she was able to go back to work, as if nothing happened. God is good. I hope your mom is okay too. Be strong for her. Keep the faith.
@asmacherif5866
@asmacherif5866 21 күн бұрын
Happy for your mom dear ❤️ my mom discovered her tumor 3years ago and decided not to have surgery because there are risks such as not to be able to walk again normally or maybe loses her sight, the ability to speak ... Too many risks ​@@miaB0330 the tumor is in very sensitive position , it'svery hard to go in there and not to damage the nerves that's what the doctors said
@asmacherif5866
@asmacherif5866 21 күн бұрын
​@@Jdoe560i hope your mom will be fine ❤
@ntinakitsou8270
@ntinakitsou8270 2 жыл бұрын
Her bright eyes just add up to the courage I wish I had for my own forthcoming operation.
@denisereay3498
@denisereay3498 4 жыл бұрын
I have a pre-admission appointment tomorrow to have a 3.5cm tentorial meningioma removed. Your story sounds just like mine in that I didn't really have any symptoms other than what I could put down to age/hormones. I actually took part in some medical research scans which is how it was found - thank goodness! Thank you, Denise (Washington, UK)
@martinahernandez9053
@martinahernandez9053 5 жыл бұрын
Love your story! I’m scheduled in 6 days to have my meningioma removed. Your video gives me courage! I have a husband a 7 kids (ages 20 months to 15 years) so I’m looking forward to the future and a rapid recovery.
@nitakate10
@nitakate10 5 жыл бұрын
Martina Hernandez Hi I'm Anita I live in Perth West Australia and I'm now 48 years old. I was diagnosed with a grade 1 Maningiomas 4 years ago. I had bad headaches for weeks,finally got a ct scan and my dr said go straight to emergency dept. I'm lucky not to have had a seizure. I had 6 tumours but they took out 3 as the biggest one was nearly 10 cm X 3 cm. And taking out 3 was a lower risk for a stroke. Anyway I looked real pretty with 49 staples in my head. I left the hospital after 2 weeks. The first week on steroids to take down the swelling of the brain. I had NO pain in my head! I now have 7 more Maningiomas ,but that's ok,they are not cancerous. One Irish dr said to me,ohh so you have 7 little friends in your head,so long as they don't talk to you,you will be ok lol . Goodluck love,if you want to chat I'm here 🌅🤗
@wednesday567
@wednesday567 4 жыл бұрын
@@nitakate10 were the tumours benign? did they tell you why they happen? ive read that its caused by untreated breast cancer that spreads, i hope you are feeling well, and did you have to do chemo, blessings
@krishnapriya2877
@krishnapriya2877 3 жыл бұрын
@@nitakate10 hi dr am from Kerala ,india I really want to know about your health .am sure you are absolutely happy and healthy but still I really want to know about your health condition dear.
@nawelbenhadda4655
@nawelbenhadda4655 3 жыл бұрын
How r u doing , my mum is going through the same thing and I could use a talk about this
@martinahernandez9053
@martinahernandez9053 3 жыл бұрын
@@nawelbenhadda4655 Hello! Thanks for asking about me. I can say the whole ordeal was life-changing and eye opening. My surgery lasted 18 hours and since the tumor ran through a major artery, I lost a substantial amount of blood (I received two blood transfusions during surgery and two more while recovering in ICU). The tumor was compressing my optic nerve so as a result, I lost vision in my left eye (which is permanent) and I find that even a year post surgery, the fine motor coordination in my left hand is not as good as it used to be. It took me a year to feel completely normal again. I wouldn’t be surprised if your mom experiences some depression (I did) and some emotional ups and downs (especially if she is put on steroids). But I’m glad to say today I have never been happier in my life. I’ve returned to college to finish my biology degree and have maintained a 4.0 in all my classes! I also enjoy and appreciate my life and all the beauty in this world so much more. It took my experience to realize that life is like an hour glass. I’ll never get back the sand that has already run through and I don’t know how much I have left. I’m sure your mom will come through just fine! Just keep in mind that recovery can be a long road. I feel that I recovered more quickly physically than emotionally. It is not very fun to go to physical therapy and such, learn to tie your shoes again, or just finding a way to climb into your bathtub. I wish your mom the best!!!!
@donnamallory5561
@donnamallory5561 Жыл бұрын
My meningioma was the size of a golf ball. It was removed at Shands hospital in Gainesville Florida on July 29, 2022. My tumor was a Grade 2, so I had 30 days of radiation to clear up the lesions. I’m back to doing the things I love to do!
@martintovar6666
@martintovar6666 3 жыл бұрын
i am a Meningioma survivor. on September 2nd 2019 while going to the store i fell down, it was like my legs were being held, lost my balance and down i went... on September 3rd i fell in the bathroom could not get up again... ended up in the emergency room. the doctors gave me the 411, it turned out that i had 3 strokes, and that's when they told me you have a tumor in your brain. i said ok am i going to die or how long... they showed me a picture of my tumor and it was big, it had been growing for maybe more than 20 years, and part of it was wrapped around my optical nerve. i had never been sick in my life, i was a delivery man for 22 years, very active, not an incredibly healthy diet, whataburger every day. my surgery lasted 15 hours on September 8th 2019 here at University Medical Center El Paso Texas, by some amazing Hindu neuro surgeons. my brain today looks like a taco shell. i feel some what ok . the doctors moved fast, i am grateful to them. i agree with this lady that it opens up you emotions, i guess i feel reborn. it fills my heart with happiness to hear a fellow survivor tell their story... by the way the pathology report came back no cancer.
@Lbehti
@Lbehti 3 жыл бұрын
I too am a benign meningioma survivor. I had difficulty expressing myself and one doctor diagnosed me with dementia. After the MRI they found a tennis ball size tumor that has been growing for 9 years. No headaches except the last few months. It was removed last New Year’s Eve in 2019. I started radiation in Feb but developed an infection and they had to operate again. Luckily the infection did not go to my brain. My bone flap was infected and they had to throw it out. Covid came and my cranioplasty had to be put on hold. Finally had that done in June. I did 6 weeks of radiation and feeling great and back to normal. I was given 3 chances in life and so grateful.
@Lbehti
@Lbehti 3 жыл бұрын
@Yaritza Collazo Go see a neurologist.
@martintovar6666
@martintovar6666 3 жыл бұрын
Hello Lita... i hope you are doing great. for me, so far so good, i take precautions because the corona virus can kill me, as i said so far so good. i try to take care of my self, i have put on some weight, NOT good. we have been in lock down for quite a while. with time i do things that i could not do right after the surgery, like bending down and picking up things, i don't know about you but i have noticed fevers that come and go, also i am sleepier more than usual, my left eye never recuperated i am at 50% on my left eye, that is though for me, i can't drive, i was a truck driver for 22 years my tumor was warped around my optic nerve. like i said, so far so good. bless you and cherish your 3 chances to life... the lord gave me another chance to life, like i said so far so good. God Bless you and may he keep all of us meningioma survivors alive on this earth for a long time to come. wouldn't it be nice if we all could get together so we could share stories, tears, and support
@Lbehti
@Lbehti 3 жыл бұрын
@@martintovar6666 Hi Martin, so sorry to hear about your medical issues and side effects. Your fevers are concerning. I hope you were tested esp since covid has increased in the El Paso area. I did not experience this. I slept a lot too during the day after my surgeries but bec of my anti seizure meds, I had trouble sleeping at night since Jan. I had 3 focal seizures after my 1st surgery in the hospital and was on anti seizure meds for 10 mos. Wasn’t allowed to drive. I’ve been seizure free since and now allowed to drive. Haven’t driven yet, no rush. Family members are there to help. I also gained weight bec of meds but finally off it. Walk for 30 min each day to keep active. I can feel the implant in my head when I sleep on my left side, can be a bit uncomfortable but have to live with it. Radiation made my head super itchy, thank God that went away. I’ve got an MRI next mo. and another every 1-2 years possibly for the rest of my life to monitor any returning tumors. Ask your doctor about a support group via zoom. I pray for your recovery and take care! We are the lucky ones!
@martintovar6666
@martintovar6666 3 жыл бұрын
Hello Lita, thank you you are so nice... i read and try to learn as much as i can about what happened to me, i know that the fevers are a result of going thru 3 strokes, all i can do is to bear and grin it. it is embarrassing for many of us El Paso natives to see Mayor Dee Margo exaggerate the way he is doing about the pandemic, YES we are going thru a pandemic, YES people have died but not to the fantastic way that Mayor Dee Margo and CNN are make it look, " a thousand people in one day??????", one person every 8.6 seconds????. every news you see from old El Paso Texas take it with a grain of salt. i hope you are more than ok, i hope you are feeling good, i wish you and yours the best, and most important be safe. thank you for the reply, you made my day
@kaystill3843
@kaystill3843 2 жыл бұрын
Thank you for sharing your story.
@williamshreeve3195
@williamshreeve3195 2 жыл бұрын
Fantastic to hear your story. That just diagnosed me with a Brain tumor. Know very shortly I go for the surgery.
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How are you doing?
@teresajohnson5135
@teresajohnson5135 10 күн бұрын
My husband is recovering from his surgery that was done on 12-7-23. He still has some headaches but can walk, and his body isn't locking up.
@jacquelineskeen9750
@jacquelineskeen9750 8 жыл бұрын
Dear Pat, I just had a fr. frontal lobe meningioma removed 7/22/16. I can relate to how opening the head opened the heart. Glad you came through ok; I only needed one surgery and tumor was behind my right forehead, close to the surface. Immediately in the ICU my vision was so much better, and the list of things returned to me was extensive. Quite profound. Had my surgery at Overlook Hospital, Summit NJ, with expert Dr. Brian Beyerl. Thank you for your video.
@WintaTime
@WintaTime 7 жыл бұрын
how long did it take u to fully recover and get back to normal chores or duties after your surgery
@WintaTime
@WintaTime 7 жыл бұрын
and how big was ur tumor? glad u came through ok too, all the best
@jacquelineskeen9750
@jacquelineskeen9750 7 жыл бұрын
Hi Pat, tumor was the size of an average lemon. I had a weak night in ICU, then came home 2 days later. When home I had a lot of Decadron Psychosis for about a week, and also was unable to sleep for over a week. Then also had post surgical intestinal troubles! After that week, I was tired, but very overjoyed my surgery was a success. I got back my intelligence, problem solving, sense of smell, sense of humor, love of music, ambition and vision. All in all, it was a very profound experience. I spent 1.5 months in my nightgown, just doing things around the house, being careful on the stairs and not really going anywhere. I also stayed off of the computer, limited phone calls to 2 or 3 a day and kept texting to a minimum, which I think helped with stress levels, as in I was able to just relax and focus on staying calm and rested.
@mootje537
@mootje537 5 жыл бұрын
@@jacquelineskeen9750 how was ur intelligence exactly affected like calculating wise or personality wise or imagination wise?
@diannariley8430
@diannariley8430 4 жыл бұрын
I had surgery on mine and within 4 months it grew back to the size of a pea! I'm dizzy all the time like I'm still under anesthesia and I'm weak on my left side like I had a stroke. I'm in a wheelchair and am very carefully using a walker. Now I'm going to have radiation therapy to shrink the new tumor. They weren't able to get all of the tumor, only 85% of it. I'm trying to be hopeful about my prognosis!
@FarnazIransoul
@FarnazIransoul 4 жыл бұрын
Dianna Riley, CHHC, AADP You will be fine and gain back your abilities again....🙏❤️
@wednesday567
@wednesday567 4 жыл бұрын
did they recommend chemo for this tumor or just radiotherapy
@diannariley8430
@diannariley8430 4 жыл бұрын
bmf 456 no, no chemo, but radiation because the stupid tumor returned!
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How are you doing? I had mine removed about a year ago and I'm worried it has returned. I will get an MRI next week to find out! Blessings.
@diannariley8430
@diannariley8430 2 жыл бұрын
@@SarahSmith-ql6zg hi there. Mine did return, so you really have to remain on top of things by keeping up with your MRI'S. I had to have a very strong dose of radiation to try and stop the growth. But I'm still in a wheelchair. Mine started to return within a year. I really wish you the best.
@letstalk-misc3575
@letstalk-misc3575 4 жыл бұрын
Jeez.. 10 years... Glad she's ok!
@cpecpecpe
@cpecpecpe 4 жыл бұрын
Thank you. Was just diagnosed with 3x3x2 cm tumor on the front left side...
@Dakittygirl12
@Dakittygirl12 2 ай бұрын
I will see the neurosurgeon Monday
@pinteng87
@pinteng87 Жыл бұрын
I am the sister of the one who was operated on for a 3cm meningioma and it's always funny when it comes back. I also watch her food and movements. last July 2022 she was operated on, radiation ended September 2022 I thank the Lord that she did not abandon us especially Dr. Carlo Barredo of st lukes medical here Philippines
@em3rgyproduction979
@em3rgyproduction979 4 жыл бұрын
I hope this will the case for my mother 🙏🏾
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How is your mother doing?
@shirleyhenning4060
@shirleyhenning4060 4 жыл бұрын
I sure can relate to this !! On 1/28/18 I had a "small grapefruit" sized benign meningioma removed from behind my eyes. I endured a useless cataract surgery first with no improvement in my vision before they did an MRI. They removed it during an 11 hour surgery and I'm almost as good as new. My eyesight improved somewhat, but damage to the optic nerve is permanent. The olfactory nerve was severed during surgery so I no longer can taste or smell. I am thankful for each new day...
@wednesday567
@wednesday567 4 жыл бұрын
did you have to do chemotherapy along with surgery?
@shirleyhenning4060
@shirleyhenning4060 4 жыл бұрын
@@wednesday567 No, it was non-cancerous as meningiomas typically are. Those were the first words I remember being spoken to me as I woke up from the long surgery..."It's non-cancerous" !
@wednesday567
@wednesday567 4 жыл бұрын
Shirley Henning oh so they didnt know before the surgery? didnt they do a biopsy or mri to find out?
@michaelb41
@michaelb41 2 жыл бұрын
My heart goes out to you.
@rebeccagorman-lykken1472
@rebeccagorman-lykken1472 3 жыл бұрын
I had the same type of brain tumor with out knowing my whole life till I was 30 yrs old and last year I had a seizure and blacked out while driving and than after acoma I woke up to find out I had a brain tumor the same kind as this. It was very scary. I have 4 kids very young age and it has left me with alot of scare and medication because of the PTSD and anxiety I know have. I never knew till that seizure i had a tumor I had headaches my whole life and was told by doctors it was allergies and that i needed to wear glasses. I still have headaches and pain where the tumor was. Its very scary to find u have a tumor and to worry about seizures... Its been hard.
@Borderose
@Borderose 2 жыл бұрын
How are you now?
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How are you doing?
@YY-ef5ro
@YY-ef5ro Жыл бұрын
In general, how long you got your first appointment with Neurosurgeon after diagnosis?
@heatherbutcher6735
@heatherbutcher6735 7 жыл бұрын
Dear Pat , thank you for sharing your story it inspired my mum before she had her surgery last week March 2017 , she had a 10cm meningiomas , 90% successfully removed . She is the same age as you pat could I ask you how long it took for you to recover ? And how long for your mobility to improve ? Kind regards Heather , Sheffield UK
@afsheenimran4c515
@afsheenimran4c515 3 жыл бұрын
Hi Heather .how is ur mom.? Radiation therapy after surgery ?
@meusepierre8501
@meusepierre8501 2 жыл бұрын
My cousin has a brain tumor, it seems as if her doctor in France has given up on her. He pushed her surgery date 3 times, she is having seizures, she cannot work, the prescribed medications are making her sleepy and drowsy so often. I don't know any doctors in the US will be able to take her case. Her doctor lied to her and told her that her tumor is not growing but in fact, it is visible and growing.
@shreya1902
@shreya1902 4 жыл бұрын
What medicine is about ❤️
@ohmeowzer1
@ohmeowzer1 5 жыл бұрын
Mine isn’t big but causing a lot of trouble ,,my balance and dizziness and headaches are the worst part and I have fatigue
@plutostarr8605
@plutostarr8605 2 жыл бұрын
Same
@atomicblonde2180
@atomicblonde2180 2 жыл бұрын
I was just diagnosed with a 3cm. Left side. I don't know how long I have had thus but in the past, oh I'd say 7/10 years...I have severe Fatigue and experienced severe Vertigo for a long period of time.
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How are you doing?
@atomicblonde2180
@atomicblonde2180 2 жыл бұрын
@@SarahSmith-ql6zg No Surgery yet, awaiting an mri in may so the Doctor's can see how it's growing! Very frustrating
@ntinakitsou8270
@ntinakitsou8270 2 жыл бұрын
Poor thing! Did you operate it? I hope you are not just better, but well. I have 2 on the left side and only the one is operative. I have been having 15-20 vomits per day once every couple of months and the advice before Mri was "see a shrink" (!) brain MRI's are life saving, I recommend it to all regardless of age.
@romeoblackmountain9879
@romeoblackmountain9879 2 жыл бұрын
My wife are diagnosed right now., did u experience headache at night?
@atomicblonde2180
@atomicblonde2180 2 жыл бұрын
I had headaches everyday. I started drinking Mushroom Coffee and headaches are gone. Still awaiting MRI in may for growth.
@romeoblackmountain9879
@romeoblackmountain9879 2 жыл бұрын
Anybody experienced laser abblation surgery? How much is cost ? Thanks appreciate it
@wednesday567
@wednesday567 4 жыл бұрын
ive read that tumors that grow in this area(meningiomas) can be caused by untreated breast tumors, is there any truth to this?
@cmauro6827
@cmauro6827 Жыл бұрын
I don't think people who have tiny ones must wait. They should be nipped in the bud. Why wait ?
@Borderose
@Borderose 2 жыл бұрын
I want this to be the case for my mom.
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
How is your mom doing?
@Borderose
@Borderose 2 жыл бұрын
@@SarahSmith-ql6zg Guarded, but she's doing fine now. Thank God.
@chazjohnson73
@chazjohnson73 5 жыл бұрын
My Meningioma was the size of a tangerine...and malignant. They removed it 4 years ago, and radiated the tumor bed as if I had Glioblastoma. They found a new one last month. I undergo Cyber Knife at Stanford this week. Does anyone have a malignant meningioma story?
@bluNgold32
@bluNgold32 5 жыл бұрын
I hope you're doing ok... 😊
@jeanc6295
@jeanc6295 3 жыл бұрын
I just found out a day ago I have meningioma. I am so scared I have to schedule a MRI
@caribbeansinger
@caribbeansinger 2 жыл бұрын
Have Faith, you’ll be alright.
@laurajurek4065
@laurajurek4065 Жыл бұрын
Mine is rge size of a blueberry I'm watching it like a hawk
@sunsetseason
@sunsetseason Жыл бұрын
My mom has a meningioma but doesn’t want to go get it removed. We don’t know what to do.
@Dakittygirl12
@Dakittygirl12 2 ай бұрын
To live is to fight. She to get it done or sumptoms will get worse and the procedure will in turn be more complicated
@gwenbelecina3404
@gwenbelecina3404 4 жыл бұрын
Anyone here? I need help my mom needs to have surgery with same tumor and we don't have money
@benjovionejma4848
@benjovionejma4848 4 жыл бұрын
Same as me in had one surgery but I need another one no find money to do it God bless us....
@nicolekelaher1979
@nicolekelaher1979 4 жыл бұрын
Go through the public hospital if in Australia it’s covered on Medicare I’ve just had the same operation
@myachannel1292
@myachannel1292 4 жыл бұрын
Apply for Medicaid, idk where your located
@Sammygb6
@Sammygb6 3 жыл бұрын
We know that my mom had meningioma at the last day of her life after she had been infected with COVID 19 and she is dead now at 22/11/2020 can’t imagine her suffer of this benign tumour she had I couldn’t see her or tell her that she had this tumour ...
@yenlam1080
@yenlam1080 4 жыл бұрын
I have a meningioma on the left side that measures 11 mm. I do experience weakness in the arms (I cant write legibly now). I was referred to a neurosurgeon who seems to encourage surgery (oddly enough, he doesn't think the arm weakness has to do with the meningioma); so I'm a bit disappointed... Why have this major surgery?
@JohnsHopkinsMedicine
@JohnsHopkinsMedicine 4 жыл бұрын
Hi Yen, if you are looking for a second opinion, please call us at 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.
@myachannel1292
@myachannel1292 4 жыл бұрын
You can lose your vision temporarily or permanently
@l.swethaswetha6249
@l.swethaswetha6249 4 жыл бұрын
Hey, if you can please reply to this. My mom had her tsm meningioma removed in July 2018. She still faces the 'cant write legibly problem'. Is there a cure to this. She gets itchy every night and has leg pain every night. Are these all related. Our doctor is great but we are from india.. even if we get to see our doctor it will be for maximum 1 min and we can't ask all of our questions.. even when we do they say it's nothing. Also we don't get to call or see our doctor for the next few years because we don't have appointment with him until then.
@l.swethaswetha6249
@l.swethaswetha6249 4 жыл бұрын
Please help..
@SarahSmith-ql6zg
@SarahSmith-ql6zg 2 жыл бұрын
I was also told that my symptoms and muscle weakness had nothing to do with my tumor. I was even told they don't cause headaches! I got a second opinion, had the tumor removed and all my symptoms are gone! Please get a second opinion, we know our bodies!
@michaelb41
@michaelb41 2 жыл бұрын
If you are a woman take a hard look at any hormone replacement medications. There is a reason more women than men are afflicted with menigiomas. I suspect Hormones prescribed by Doctors for hot flashes is a major factor in Meningioma brain tumors, growth and recurrence. God Bless you in your struggles for good health.
@elizabethqueen8784
@elizabethqueen8784 2 жыл бұрын
Hi. I went through menopause...did not take any medication. But l still got a meningioma...a mass brain tumour they said. 10 or 15 years slowly grew. Until l had a seizure...CT scan showed the tumour...got operation...a complete success. But l am left with epilepsy...and painful scar etc. That was 2008. Then in 2016 VT scan showed another Memingioma. I am on monitoring and MRI scan due in March 2022. It is true more women than men get meningioma....due to hormones reduction...or due to smoking...or toxins injested in food or liquids. And Environmental...technology....radiation exposure.
@michaelb41
@michaelb41 2 жыл бұрын
@@elizabethqueen8784 "Eat like your life depends on it."
@ntinakitsou8270
@ntinakitsou8270 2 жыл бұрын
Hormones (and extra fat) are main responsible for meningiomas I was told yesterday. If menstrual stops, maybe these could stop growing too. As per hormone replacements, no thank you.
@michaelb41
@michaelb41 2 жыл бұрын
@@ntinakitsou8270 Thank you for pointing out excess fat as a factor in meningiomas.
@ntinakitsou8270
@ntinakitsou8270 2 жыл бұрын
@@michaelb41 I was too sorry to hear it. Under this logic, all fat women would have meningiomas, which is an erroneous theorem. I would like to further explore Neurofibrosis possibility in multiple meningiomas (my case).
@vbrar82
@vbrar82 Жыл бұрын
After the post surgery brain tumer menioma headache is normal symptoms or its serious
@krishnapriyal5118
@krishnapriyal5118 2 ай бұрын
😊its normal
@cristianacebuche8833
@cristianacebuche8833 4 жыл бұрын
my mom have meningioma and she is 62yrs old. it is safe to her to proceed a surgery!? or they have option
@myrenecalzado6519
@myrenecalzado6519 3 жыл бұрын
How was your mother now?
@consciencewhisperer6976
@consciencewhisperer6976 7 ай бұрын
I was 78 when I had my tumor removed and doing great.
@karolm9911
@karolm9911 2 жыл бұрын
My mother has also a huge meningioma on her left side of her brain and maybe Covid 19 make it swell. But we can’t afford to have an expensive surgery like this😔
@donnamallory5561
@donnamallory5561 Жыл бұрын
My meningioma was the size of a golf ball. It was removed at Shands hospital in Gainesville Florida on July 29, 2022. My tumor was a Grade 2, so I had 30 days of radiation to clear up the lesions. I’m back to doing the things I love to do!
@YY-ef5ro
@YY-ef5ro Жыл бұрын
How long you got the first appointment with neurosurgeon after diagnosis?
@donnamallory5561
@donnamallory5561 Жыл бұрын
@@YY-ef5ro I had my follow up with my neurologist to go over my MRI results. He made all the arrangements for my second opinion, and my surgical consult with Dr. Friedman at Shands hospital in Gainesville Florida. I got a call and was scheduled the following Friday. At that appointment, they concurred with my neurologist and scheduled me for the following Friday for surgery, which was on July 29, 2022.
@donnamallory5561
@donnamallory5561 Жыл бұрын
On 29 July 2022, my surgery took place at 1 PM and I was told it was gonna be a two hour and a half operation. I woke up and I see you on Saturday and was moved to a private room Saturday afternoon where I was supposed to spend the next four days. I was doing so well but I was released and home Sunday at noon.
@donnamallory5561
@donnamallory5561 Жыл бұрын
@@YY-ef5ro after I got my first diagnosis I had an appointment a week later and a week after that I had my surgery.
@YY-ef5ro
@YY-ef5ro Жыл бұрын
@@donnamallory5561 thanks a lot for your reply and information, glad you are doing well after surgery!
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