Another great video Tobes.. Love that your becoming a role model for people and hopefully helping those with the same condition..
@jweu233 ай бұрын
So, I'm 24 and I have developed an unknown retinal degenerative disorder. In my case, the central and peripheral vision is affected but it's currently mostly in my right eye and the vision between the macular and peripheral is still somewhat okay. Anyways, the tunnel vision is kind of hard to describe. I can't see anything real in these blind spots, for example if there is movement or an object there, I just can't see it at all. However, I still "see" stuff in these blind spots. It's not real imagery but I guess it's hallucinations that help fill the visual void. These blind spots regularly flicker and have weird patterns and shapes moving through them, kind of like if you rub your eyes a little too hard. Excellent video by the way!
@scrennager2 жыл бұрын
Thanks for sharing your story Tobes ! My sister in law is becoming blind as an adult due to an accident. Her diagnosis sounds very similar to your RP description, so for me it is particularly interesting to understand some of the phases you went through, both physically and mentally. Also thumbs up to you (and I suppose your gf) for putting these together and acting as a model for others.
@jakezyx Жыл бұрын
Your positivity about your condition is honestly inspiring. You’re a role model for everyone, sighted or not. If everyone (myself included) could be a bit more like you in our outlook and approach, the world would be a better place. I’ll be trying to channel my inner-Tobes more from here on out.
@JDizzle962 жыл бұрын
Great video mate 😊💙 I was at Great Ormond Street hospital too when I was younger. Such an amazing place, Thank you for sharing as always. 👏🏼
@blindtobes75772 жыл бұрын
Cheers bro! It’s such an amazing hospital
@chris107232 жыл бұрын
Very interesting. I have had RP since birth actually, but it wasn’t formally diagnosed until I was about three-ish when I got my first pair of glasses. Wow. It’s like I knew you were going to say RP before you said it. So many don’t even know what it is and it’s amazing to meet someone with this who is also able to find a way to cope, much like I try to do. More power to you and much love from across the pond!
@jackclarence2 жыл бұрын
Another great video, thanks for sharing your story
@marcosandrawes3641 Жыл бұрын
Thank you for sharing this with us ❤️❤️
@HayleyLFraser2 жыл бұрын
Thank you for sharing your story.
@nachovesta20242 жыл бұрын
Great vid tobes , love the content mate keep pushing through life! Top bloke ❤
@helenaadams11262 жыл бұрын
Loved the video! I think you are doing such a good job trying to spread awareness about this topic ❤️
@blindtobes75772 жыл бұрын
Thank you so much!
@Handsomeblindguy Жыл бұрын
I have RP as well. It was relatively stable until I was 38. Now my vision is deteriorating rapidly. I still post positive content to help others.
@ahmedmeabed69932 жыл бұрын
Awesome video Tobes! Love your content! Cheers from Egypt 🇪🇬
@talithapenny48002 жыл бұрын
Such a great and informative video!
@blindtobes75772 жыл бұрын
Thank you!
@GIDDOFPL2 жыл бұрын
Great video! Great to hear your story. I can relate to the lashing out and getting angry! I still flip a lid when I walk into stuff now. Nice call out to Molly Burke too! You and her were probably the first two ppl I found online recently while looking for other people with RP. Looking forward to more videos! I’m 36 but I am currently looking up to you because of the positive message you are putting out there and how you come across is inspiring…. And you are pretty funny as well mate 😂 keep the humour 🫡
@blindtobes75772 жыл бұрын
Cheers mate, I really appreciate it!
@niamhp3132 жыл бұрын
Love this so much ❤️
@nathanross21462 жыл бұрын
Great video!
@Chris640622 жыл бұрын
Great vid mate!
@joebro40172 жыл бұрын
Suddenly needs photos of toddler Tobes!! Haha
@nutshellreadsandwrites Жыл бұрын
I have RP too!
@paranlaskar23867 ай бұрын
Joined the channel brother 🤓
@donovan2723 Жыл бұрын
Did youuuuu... steal that other blind guy's gym story and made it your own in some tik tok video?!