Impact of Long COVID on Day-to-Day Life

[@nowhereghostblues]

Thank you for this. I feel seen.

[@JuliaTaylorSoprano]

Thank you so much for this clear, explanatory video. I hope to send this out to my friends and family so hopefully they better understand what’s going on.

[@LongCOVIDPhysio]

Glad it was helpful!

[@LongCOVIDPhysio]

Glad it is helpful! Let us now how it’s received by those you share with ❤

[@FionaEm]

As a person with ME, I appreciate your efforts to educate ppl about these types of conditions. May I suggest that you minimise the sound effects in future videos, as they can be physically triggering for patients with sensory issues 🙂

[@LongCOVIDPhysio]

Thank you. We have responded to your feedback and provided audio only options on our website. longcovid.physio/long-covid-video-series/impact-on-day-to-day-life

[@francescachristy8761]

@@LongCOVIDPhysio I was going to make the same observation. It's the pops, zooms and other sound effects that I found very difficult. It would be great if they could be removed. Listening to audio only doesn't resolve this problem. My sensory problems are not normally that bad, but these I found very problematic and exhausting. Otherwise, a great video. Though I have now realised that removing the visuals also removes the background sounds, thank you. Could it be possible to post the audio only version on KZbin as well?? Thanks for your commitment and great work you are doing.

[@LongCOVIDPhysio]

Thank you for your comments. We provide closed captions, text as audio, audio only without noises, and translating the videos into 12 languages. We hope this helps. Access our website for a full range of disability inclusive responses: longcovid.physio/long-covid-video-series/impact-on-day-to-day-life

[@francescachristy8761]

@@LongCOVIDPhysio thank you. Great job 👍

[@sophieguillot9730]

Thank you, so well put, and exactly what I am going through since 9 months now.

[@clinton5538]

*Thank you* for these clear concise explanations of how Long Covid affects us. In example: The power level indicator being depleted took me so long to figure out how to explain "the tank is empty" In that I tried but the drama I encountered drained me too far, I'm done for today. It also explains how quickly things change and we have to adapt, delay or work differently to accomplish what we need to. Trying hard to control Long Covid makes us appear *normal* when we are really just barely hanging on, this is the cruel part. It leads to disbelief, skepticism and patronizing by others on the "real effects" of this disability...yes it is a disability and I have serious doubts if I can ever recover most of what I lost, or ability to adapt everything that has gone wrong. I am tired of this condition, tired of the uphill battle put up by friends, family and the world. When things go South, the stress of it drains my energy and I become instantly fatigued and must sleep. Days and days of sleep do not replenish me and I'm saying it can be 22 out of every 24 hours, and still never enough sleep, a vicious cycle on itself.

[@rramirez3555]

Thank you so much for this video. My personal experience with Long Covid since March-April 2020 has been extremely difficult. Many don't believe you, as your video explains. Even many NHS staff don't want to believe you. And having lost my employment, now trying to navigate the benefits system is a mammoth task believe me! Again, thank you for the video, and let us hope many will see this type of resources so that understanding from others may grow.

[@Rose_19911]

did you ever find a cure mate? i'm struggling at the moment, always short of breath, my muscles always feel tight & irritated, my mind always feels skatty

[@rramirez3555]

@@Rose_19911 Sorry to hear you are so unwell!! I tried Ozone Therapy in 2021, which help me improve substantially for several months. However, it seems that more sessions were needed to avoid relapsing. At the moment I am quite unwell, but at least not as unstable as initially in 2020. Having said that, I have a friend who was able to afford different sets of sessions of this therapy during 2022 and 2023 and she is nearly 100% back to her normal self. I also met others who improved very substantially with Hyperbaric Chamber Oxygen Therapy. Again the improvement was nearly 90% back to normal. If you can afford any of these 'alternative' treatments, maybe you can research them a bit and see if they could be an option for you? Every blessing in the recovery process!!

[@Zweev]

Thank you so much for this video! The first video that 100% and very clearly explaines my new life. 🙏🏼

[@LongCOVIDPhysio]

You're so welcome!

[@bubblebakingbunny3258]

Thank you for this. I’ve been suffering with long covid since March 2020. Over 3 years

[@cas9065]

This is one of the most helpful things I have seen. Thank you.

[@LongCOVIDPhysio]

Glad it was helpful!

[@cas9065]

@@LongCOVIDPhysio Truly. Half of my family is German and does not speak English. The German versions are so helpful as well!

[@LongCOVIDPhysio]

We are so pleased to hear this. We will continue translating into other languages as well.

[@carolinesser-miles6608]

@@LongCOVIDPhysio But only after the final German one, please. My dad needs that!

[@realgirl2704]

This is so accurate and insightful. It helped me understand myself and others who may not even realize they have long Covid. I am passing this video on to my friends who need it. Well done and thank you.

[@joyfulexpansion]

Fabulous. Thank you. It is so nice to feel seen and to see information like this which is supportive and informed by people living with LongCovid.

[@corinewitvliet-penning2668]

Thank you so much for another very informative episode, your efforts are much appreciated. Please be aware that the amount of visual and sound effects may be too much to handle for LongCovid patients with cognitive issues. Keep up the good work!

[@LongCOVIDPhysio]

Thank you. We have responded to your feedback and provided audio only options on our website: longcovid.physio/long-covid-video-series/impact-on-day-to-day-life

[@corinewitvliet-penning2668]

@@LongCOVIDPhysioWow, thank you! 🤗

[@keithmockett3810]

Many Thanks for posting

[@MyqueenCaro]

Although I know myself. It is very usefull to show others. My boss for instance. To hope they understand the inpact.

[@muhammadfarooq5197]

Well explained and good advise for Long Covid Patients

[@opalemel]

Thank you .

[@mountainsoul1111]

Thanks for informative video. I am suffering by long covid since 20 months. I am from india.

[@priyanshu-se9bx]

Am also

[@priyanshu-se9bx]

Hlo plz send me contact no.

[@Zeepjeliefs]

I have this and after a normal activity I crash down and in bed for days. I feel lazy but if I don't rest I feel myself getting sicker. It's horrible. I was actually doing better for months and I just fell back out of the blue.

[@rebeccabryant6804]

Great videos. Please include 'education' as relevant for children & subtitles need edits as not consistently accurate transcription of spoken word.

[@LongCOVIDPhysio]

Thank you for the feedback. This video was created in partnership with Long Covid Kids. You are correct, it is applicable to people of all ages. Automatic closed captions are created by KZbin.