Is Healing Chronic Illness Even POSSIBLE?!

[@Aimee_Esther]

We discussed this as a group in my online community, join to watch the replay! *FREE 2 WEEKS in my program!!! aimeeesther.podia.com/community/114514/monthly/buy

[@LOLOLala-d6x]

I could not see the page. I used the link

[@Aimee_Esther]

@@LOLOLala-d6x oops! I fixed it :)

[@jamesmcconnell2473]

Could send your MRI cd. To Fiengenbaum neurosurgery . It's free. Just don't go for the surgical approach.. if you do turn out to have Tarlov cyst. A phone consultation with him also will be gratis.

[@lametron]

$240 a year just to talk to people with what you've struggled with for life is kind of extremely fucked up 😂

[@focusup8797]

Have you heard of or tried the "supplement" called Emma? It's supposed to heal the gut by removing the bad bacteria and parasites and regrowing the good bacteria.

[@Lou-y9u]

Acceptance is hard but losing all hope is disheartening. I think we all just have to keep going at a pace that we can deal with and stop if we need to, but that doesn’t mean we can’t try again as things are always changing. I’ve given up on thinking I will be cured but I live in hope I’ll find things along the way that helps me even if for a short time. I pray you find your place of peace.

[@Leeni7]

I think some sort of acceptance that we will always need to manage our health is freeing. What may work for one stage of life may not work for another stage of life. With the sheer amount of illness we both have, total healing may not be possible, but we adapt to a new way of living. A small improvement to us may be life changing. However; always manifest for total vitality and wellness. The mind is an incredible thing and so is faith.

[@Tinyteacher1111]

Your first sentence hit home with me, and I appreciate the insight. It really is freeing to accept that I’ll always have to deal with this in some respect. I’ve had overlapping illnesses for 21 years, which began with breast implants, and cascaded down from there. I’ve had everything imaginable, and now it Lyme and resurfaced autoimmune diseases and viruses I didn’t even know I had. The pain is horrible every day, and I feel like if I could just get rid of that, I could think clearly and do more things besides being homebound. Thank you. 🙏

[@thursaheiner8256]

Hi Aimee! Just want to send a big thanks for taking the time, the energy, and the effort to post all these videos on chronic illness. I have been exploring my chronic illness for over 30 years and your wisdom and insight regarding how to live with a life that is giving us these physical challenges is amazing! ❤

[@robinartemis8695]

For me, I wouldn’t go all in. Things work for a time for and then stop working. Usually because my body has changed. I can dial down the pain and get to a point where flare-ups aren’t so bad. But bodies do change. Our needs change. What works for one person won’t work for another. You do you.

[@davidnunes9147]

I'm in the same place and I'm not sure what I'll decide to do either. I'm not sure there's ever a solid answer whether to keep seeing more doctors or save your time, money, and energy. I've dealing with a similar illness (orthostatic intolerance and other post-viral syndrome symptoms) off and on since I was a kid. Sometimes it goes (mostly) into remission for me, but then some virus reactivate it again at some point. Some doctors have been helpful but most of them have been a waste of time. I've lost count of the doctors, 30 or 40 I think over the past 27 years I think. I enjoy your videos, it's nice to hear from people who understand what it's like. I hope you find the right path for you, God bless.

[@Bela.r.20]

You're the only person online that shows a life that looks just like mine. Thank you!!! ❤

[@gezondnaarhonderd]

I decided to assume I stay this way. Especially in future plans. My nr 1 goal is being happy the way I am and somtimes that means acceptance, sometimes it's symptom management and sometimes is trying things that could maybe give me a little more energy. I stil try things that could make me beter but I assume they don't work so I won't get disappointed and if it ends up giving me a little bit more quality of life than thats what I was going for in the first place anyway 👌 I also only use my extra energy for treatments because assuming it doesn't work I don't want to be miserable just trying a thing you know.

[@amandalininger-bortko1616]

Definitely keep having hope. I do. Holding onto hope helps me. I got healed from the chronic Lyme (seizures, so many neuro symptoms), but left with MCAS, POTS, and I just saw my doctor for the mcas. She told me straight up that she thinks I have EDS, have I heard of it, etc. I told her I have been suspecting for a year now. So I get the frustration! But she thinks that's why I'm not healing from the hysterectomy in February. I was actually validated yesterday!

[@Truerealism747]

Seams the heds is In most of us it's the autism causation in most of us I have fybromyalgia CFS I've had pots now ok doing sleep apnea next

[@marybethmacnulty3500]

and what if Im getting better in a whole bunch of different ways? .love that you brought that up ...62 yo zebra

[@robyn_marie]

SO many people have healed by applying Medical Medium information. It sounded crazy to me at first, but it has helped me so much.

[@Truerealism747]

Helped pain?

[@street_girl]

Hi! I just found out that the type of POTs I have is autoinmune POTs after checking for it by recomendation of a POTs group in Spain. I checked for alpha 1 and beta 2 adrenergic receptors and I'm positive on both. There are more than those 2, celltrend from Germany has a complete list. I recommend the beta 2 adrenergic antibodies for people with hypermobile ehlers danlos since it seems to be common in this condition.

[@olesiasmith3810]

Hi there! I totally understand that you are going through! Am on the same page😢, started to try LDN hopefully it will work for me, Don know if you did try that before, but it doesn't work for everyone

[@sarahvda4787]

Im looking for a pharmacist to get me LDN, hopefull it Will work out ❤

[@robintisabird1566]

I think it’s fine to go after things as long as you keep your expectations low😂 help is a keyword, not cure.

[@oliviahose8545]

I relate to this so much

[@decodr-ring]

Hi Aimee, this is kind of a random idea - ask your primary care doctor for a prothrombin test. It’s a finger stick blood test just like a glucose/diabetes test. Prothrombin test measures how quickly your blood forms clots. If it clots too quick then that could be an inherited problem that will make you feel poorly all the time, but can be improved by not eating dark leafy greens and maybe taking warfarin. Vitamin K1 (phylloquinone) in dark leafy greens is a problem for people whose blood clots quickly. I was thinking back to last year about July I was in a bad way, low energy, high inflammation and upper gut pain, and a ultrasound found a blood clot mass. I was put on warfarin to reduce the clot problem and after that I had slow improvement of all of my symptoms and my energy got better and I am able to think through problems and games like chess better. I also started taking high quality B vitamins like Benfotiamine, methyl-cobalamin, and methyl-folate, because the help with a inherited condition called MTHFR variant, which has to do with production of ATP for energy. Anyway, forming blood clots too quickly was a hazard during the COVDemic. I feel more than 20% better than the same time last year. I didn’t even know about it - the ultrasound technician saved my life. But the prothrombin test is quick and cheaper than an ultrasound. Cheers

[@mathewchristmas7187]

yes it is but as long as your still sick we still love you

[@ruby3200]

I went to a holistic doctor for a year. She helped me figure out food sensitivities and is the reason I can cope with eating. I couldn’t eat anything without getting very sick, she helped me heal my gut with extremely gentle tinctures by getting rid of bacteria I had in my body that caused severe cramps during my period and when my stomach was upset. Now as long as I stay away from my sensitivities I don’t get sick from food and that pain during my period is gone. Another thing is she found out that my vitamin D levels were extremely low. I stopped going to her when I felt like she did all she could. My takeaway is that holistic doctors are great for helping with sensitivities/allergies digestive issues, and gentle treatment of things like bacteria. They are not the doctors to go to if you need a diagnosis and medication for things like POTS. Holistic doctors are not the answer to severe issues when medication is needed. She didn’t help my (ME/CFS) fatigue in anyway despite her best efforts. My holistic doctor never diagnosed me with anything new which was important because I didn’t know I had POTS,MCAS, and EDS. I am so glad I went to her because I don’t know if my digestive system would be where it’s at without her. She did blood,stool,urine,food sensitivity, and a month long DUTCH test, which were all very helpful. If you think the holistic doctor would be helpful for certain problems you have I would definitely try it. I have the attitude of being hopeful and open for improvement but being guarded. I never go in expecting a doctor to heal me no matter what promises they make. All my doctors have flat out told me they can’t help me with my ME/CFS and fatigue which is my biggest issue. I’ve been going to the Metrodora Institute in SLC since September and that has been the best and biggest help in all my three years of being ill. They diagnosed and have given me needed medications for POTS,MCAS, and EDS. They have never promised that they could fix me but have hoped that they can add all the little fixed issues up to help me improve even 5%. If you are ever looking for a good neurologist and you live close to SLC I highly recommend Dr. Goodman at Metrodora. He is an autonomic and neuromuscular neurology specialist. I just started seeing him in February and he takes my situation very seriously. He actually has a plan to try to help my ME/CFS and try to help improve my fatigue. Since seeing him and Dr. Berman my low energy from POTS and EDS has improved some, which is a good sign because that means progress. Everyone is different and has different things that will help. I hope you can find what’s the next best step for you.🫶

[@val144sr]

Do you follow Rachel Elizabeth? She had EdS and was every ill. She also went through a bunch of neurosurgeries without success. She has recovered mostly with DNRS brain retraining. May be look into it.

[@eddieross6037]

Pots is connected to SIBO. SIBO is a MOTILITY ISSUE not a BACTERIA ISSUE. Stimulate motility in the small bowel. Ginger extract and artichoke extract in the morning on an empty stomach. MOTILITY PRO. Use magnesium to stimulate the large bowel to keep it moving.

[@budgetforsuccess835]

With God all things are possible.

[@amandalininger-bortko1616]

YES 🙌

[@viviansousa4194]

Have figured out this morning there's something called stellate ganglion block that you can do in clinic. Never heard of it since I've been sick for 8 years. Nobody talks about it, at least in my country. Maybe check it out?

[@jamiebottomley1422]

I have fibro hEDS mcas pots etc…LDN has been my biggest help, not cure but help

[@ShannonMThomas]

I did LDN for a while and it did help some.

[@Truerealism747]

Helps fatigue IBS but not pain in muscles

[@drzeworyj]

science is focusing on it increasingly as the crippling effects of a chronic illness become apparent. there's hope. we had many diseases in the past that were mortal and are now a distant memory. I think it's reasonable to at least hope for progress, if not a cure. I wish there could be an international association of chronically ill people for effective lobbying and better financing of research.

[@georgiabeardsley4013]

Amy I want to give up it hurts so bad

[@Aimee_Esther]

I am SO sorry you feel this way. :( It is so difficult. What I have realized is that chronic illness is a rollercoaster and sometimes we have seasons of struggle, when we don't have the mental strength to try new things. Give yourself grace. You are doing your best. I saw you cancelled your membership. Let me know if I can do anything. I'd love to talk with you in the community to get you the help you need! :)

[@r.m5883]

Yes, through Liver Flushing YES

[@Truerealism747]

What with I do have some fatty liver

[@soletakenrt2920]

look into medical Qi gong worked well for me

[@partharoy6077]

I have Cusack protocol its help me hyper mobile eds

[@Cheeeroke]

After watching some of your videos. and how you not only interact with your books,courses,and merch. I've come to a quite evident conclussion ive never meet a bigger narcissist in my life when it comes to making money from youtube about other's people serious illnesses. imagine.

[@LOLOLala-d6x]

Hello dear, Do you have fibromyalgia group or something like that? I want to join you.

[@Aimee_Esther]

I was diagnosed with fibromyalgia but we now know I was misdiagnosed. I have EDS. But many people in my online community have true fibro. :)

[@LOLOLala-d6x]

​@@Aimee_Esthertwo years ago, I was watching you and your description of your health problems is like mine. I hope you find way to recover. ❤❤❤. I need to use herbs, vitamins, food free from gluten, dairy, eggs. I noticed the wrong food caused for me vitamins deficiency, and that made my body weak. It is not easy problem. After hard activity I becam sick, so I stopped this with drinking clove tea in thermal flask, and myrrhea. I got the health problem in late 20s. I became like old 🧓 woman, sleeping mostly, I do not like sleeping. Lazy during the day. I am not happy buying this much of treatments, but I do not want to stop trying. I hope for you speedy recovery.

[@Truerealism747]

​@@Aimee_EstherI have heds asperger's now no but my heds specialist says heds causes fybromyalgia

[@lametron]

Why are we make auto immune diseases an exclusive club behind a pay wall what have they done besides offer friendship and coping skills? Like are we paying to make friends or paying for coping skills. It doesn't sit right with me.