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Watch host Steve Jones and our inspiring guests discuss the importance of support networks and their unwavering commitment to the pulmonary fibrosis (PF) community.
The episode features:
• Steve Jones, President of the European Pulmonary Fibrosis Federation, who is hosting the conversation.
• Jennifer Wescoe, Executive Director of the Wescoe Foundation for Pulmonary Fibrosis, who set up the foundation following her father’s diagnosis of idiopathic pulmonary fibrosis in 2003.
• Nurjanah Bruggeman, who is living with scleroderma with interstitial lung disease, and thriving in life as she shares her motivations and love of singing.
• Monica Holmner, living with scleroderma and interstitial lung disease, who founded the Swedish Association for Scleroderma, telling us how she used her skills to set up the association, creating something beautiful out of a negative situation.
Subscribe to our KZbin channel and to the ‘Journeys Through Pulmonary Fibrosis Podcast’, available on all major podcast platforms.
The links to organizations featured in this episode are listed below. We encourage you to reach out to them to get in touch with your local PF community.
Wescoe Foundation for Pulmonary Fibrosis: wescoe.org/
Swedish Association for Scleroderma: rss.reumatiker...
European Pulmonary Fibrosis Federation: www.eu-pff.org/