More Ostomy Bag Leaks... | Let's Talk IBD

[@deborahkoss6342]

I feel your pain. I have a Foley catheter. Sometimes "Fred" Foley and "Larry" Legbag have been practicing "social distancing".😰

[@RDC1946]

Beautiful, courageous, brave, incredible, so incredibly strong, you make me cry of being so proud!

[@LetsTalkIBD]

Thank you

[@patriciagasser464]

All what he or she said

[@patriciagasser464]

You are such a trooper I sure could never be as brave

[@abbycat2142]

So cool seeing you driving around in my neck of the woods so often. (Quakertown). I see a lot of familiar sites. I am getting excited for you as the barn comes together. It’s going to be beautiful. I hope you are doing well. xoxo

[@karenkramer83]

I know what your going through. I'm 69. Your so young. We just have to be patient. Take good care of yourself.

[@p.s.l.115]

Thank u for your bravery concerning this most intimate subject matter. Prayers up for every one. Stay healthy, strong and safe.....I accidentally pleasantly found your site. I currently am a stage 4colon cancer patient. I' m sorry I should' not say "accidentally". I have been thinking about the other surgical procedures colon caner patients may have to undergo. Sorry so long winded. I am so glad u r here, just in case I may need the much needed info. and positive spirit brought forth from u. Thank u again. Nothing is "accidental"....

[@lisalove511]

It’s so nice to see the beautiful hills of Pennsylvania as it makes me homesick! Also to know I’m not the only one getting bag leaks from time to time as well 😆 Can’t wait to see the barn when it’s done! Tysm for the updates!

[@grafenr.3405]

God bless you and Zach. Keep up the good work. 🙏👍

[@LetsTalkIBD]

Aw thanks so much!

[@grafenr.3405]

@@LetsTalkIBD you are welcome I dealt with issues with diverticulitis and fistula last year. I had 3 surgeries and I loss at least 90 pounds I became sepsis. I had my ilsecomy reversal back in 28 April. I'm doing wound care now. I was glad I found you on KZbin. I enjoyed your journey and your story telling. I thank you so much 🙏👍

[@hollymck2256]

I recently found your IBD videos following my Google search of all things ileostomy... Thank you for normalizing my "new normal" and sharing your life with the world. While I'm 12 inches on this side of a barbie butt that I hope I never need to experience, I've often wondered if GI surgeries can create phantom pain like limb amputations can... there is simply no need for the sense of GI urgency felt at times. Just the ponderings of this occupational therapist and ostimate. It's fun to tag along with your wedding venue progress and green thumb. Your wedding will be so beautiful! So exciting!

[@brianrainey1864]

Maggie, I want to tell you and everyone about a tip that I do that helps tremendously with getting an extra day or two from a wafer annndddd helps out with holding the wafer solidly intact when it gets wet in the shower (I don't double bag) and helps a little with full balloon load. (as you experienced.) What I do is, right when I get the bag on, I put 3m Micropore (blue text inside roll) 1" wide tape all the way around the wafer sealing the outside edge. in other words... 6 - 3" strips only covering the outside edge of the wafer. half on the wafer, half covering the skin. the tape is porous and lets the skin breath!! water does not get to the wafer glue. It has been so successful with me that I will not go without it anytime. even sweaty, the tape still holds great. my other comment is that I have only had a few situations in the night after eating gassy prone foods. Only one time in 3 years I rolled over and popped the bag off. Keep up the great videos.

[@jovviii]

For whoever is reading this RN Just remember u r beautiful or Handsome and stay strong in anything you do Love ya all💕💕

[@jovviii]

OMG thank you so much💕💕

[@sarahmorley1031]

That's so sweet. The same goes for you friend 💞

[@gerardwebster1251]

Your demeanor in your videos is exceptional! Let it flow over into your wedding venue business and I feel you’ll have great success!!!!! Great video and sorry you’re getting bag leaks again. Like you said that you just gotta sometimes watch what you eat! That’s why I’m giving up black beans! Too much gaaaaas!👍🤣😁

[@patriciaconstantino4669]

Enjoyed this video very much👍 Love the variety of chairs you have chosen. Barn is looking great!! You are so inspiring and have such a great attitude Maggie. You keep moving on with your life no matter what medical setback you may have. I always say if I had even 1/4 of your attitude I’d be feeling much better.. looking forward to your next video😊. Love to both you and Zak ❤️❤️ and your fur babies too 🐾🐾🐾🐾

[@lisalatour5517]

I surely enjoy your videos Maggie. I do not have an Ostomy but I suffer from UC since 1997. Trying the Humira now to see if it will help. I’m trying to be patient with it. I’ve been on Remicade too but that only worked for a very short time. Your wedding venue is going to be so nice! I cannot wait to see the finished product! It’s got to be hard with managing your GI issues etc. You keep smiling through it all. I try to do the same.....the wedding clock is ticking! So much to do but I think you will get it done!

[@ILOVEMEW10]

I’m loving all of your beautiful earrings Maggie ❤️ You guys are doing so well getting everything organised. Congratulations. You are such a trooper Maggie.

[@astrol64]

I sooo love the way you do your eyes! So natural! I brings out your beautiful blue eyes :) I love your earrings too...they kinda look like petals. You're a flower!! You might want to consider a water proof cover on the cushions, then a regular cover over it all for looks. I wish I could be more help, but having had babies with blow-out diapers, I can't sort of identify. Do they have ostomy bags for overnight? I'm ignorant of this, just throwing ideas out there. Love you sweetie!

[@MrVladteples]

ramps are great and small lifts are used for difference in levels sometimes

[@nancystewart2063]

Find out what days your local towns have trash day and drive around them because you might be able to find mismatched chairs. Taco Stacks on you tube is always finding them but he has trouble selling them at local flea markets. Local flea markets would be a great place to look too. It would help to have a truck to haul them. I can't wait to see the barn finished and decorated.

[@robertganley313]

Incredible beautiful young woman and RN. They are a great couple and I wish them the very best!

[@Joyce-dd3fm]

Brave and beautiful. God bless you Maggie! Hi Zak!

[@rosemarieweber862]

Wow, love the new chairs!

[@violetsanders3684]

I have the Bessel pet cleaner and I LOVE It. It works great. Saved our life during potty training and my daughter having a stomach bug. Also helps when I was having crohn’s accidents before having ostomy surgery!

[@denisethames7065]

Also, some show up that didn’t RSVP ! We had that problem with my daughters wedding 👰! It will all work out ! Nice chair collection!

[@patriciaconstantino4669]

Forgot to mention that I love your earrings!!!! They are so pretty ❤️👍

[@virginniaperry8257]

I love your channel. Also, you’re always wearing the most beautiful earrings xx

[@beautywearsboots6458]

I'm so sorry Maggie! This is entirely my fault for asking about the bag leaks in the first place, i didn't even cross my mind that I might be jinxing you! Nice chairs though!

[@tonyaraburn1537]

The area where you guys live is so pretty. Hope your leaks stop soon.

[@ashtongoodlad4174]

Your such an inspiration! I’m currently in the middle of been diagnosed with ibd! Waiting too have a transit study and colonoscopy then going from their, they’ve established that a part of my bowel has died

[@LetsTalkIBD]

Good luck! Hopefully you can get treatment for this ASAP!

[@sarahmorley1031]

Thinking of you friend x

[@gildahorwitzsoto9876]

You are an amazing woman so joyfull so positive so funny so strong and full of live God bless you child keep on going i love your videos because you inspire me to live to feel to do things to be thankfull for being alive we love you from mexico❤💚🧡🙏

[@sarahbelmonte8888]

Are you going to paint the chairs?? (Amy 2cents worth is they would look fabulous all white but sanded back - you know shabby sheik... or even a pale green to balance the warm tones of the bricks and red). I used to be a wedding planner before health took precedence. I loved the decorating side of things. But ignore me, just chatting xx you guys are doing SOOO great 💜

[@maryhill909]

Beautiful place.

[@yomama8873]

Carpets look great 🤩🤩💜

[@sarahbelmonte8888]

Love your eye makeup at the beginning of video today 😍

[@Lorenaa.713]

Love the earrings!

[@tammylowe4047]

Always love your video"s. You always make me laugh. Feel better

[@kellyolson7083]

Leaks. Yeah. Had one yesterday. I didn’t even realize until I was getting ready for bed, just a tad itchy at the bottom of it and then I finally pulled off one barrier extender and saw leak. Argh. And when I changed it I saw it leaked all over my skin under but my ostomy wasn’t wet at all and it was a Hollister with the afabric barrier. Ostomies are so not glamorous.

[@patrickchambers5999]

Were they mushrooms(!) or mushrooms(?). You are safe with the former but unsafe with the latter. Have fun and continue smiling. BTW the first ones usually cost $1/pound wile the latter go for 5 cents/pound.

[@sarahmorley1031]

I was told to never eat mushrooms now I have an ostomy? Mushrooms were my FAVOURITE food, I miss them soooo much. Was I misinformed??? 😱

[@tammypatten5138]

I eat them all the time. And was told the same. If you chew them good they are fine with me.

[@michellebabcock7794]

I thought you would explain more on how you took care of your leak and ways to prevent it and maybe what to do in the moment. Was coming to your page for advice, it’s seems more Vlog based. Which is cool, just wish there was more info about the ostomy bag and how it relates to the title

[@LetsTalkIBD]

I've done many videos on my channel for stoma/peristomal skin care without the vlog portion. Feel free to look back!

[@melaniepoulton6738]

I had this happen for the first time while I was sleeping last week-what a mess, I didn't know what to clean first-myself or the bed. Can you recommend anything to get the "stains" out? I've soaked my sheets and pre treated them with a product and they are still stained-any recommendations are greatly appreciated.

[@amedamed417]

أنت إنسانة مكافحة وصامدة حينما أرى فيديوهاتك أقف إحتراما لك

[@elainehardy3502]

Maggie, I love your eyeshadow. Would you mind sharing brand and color ? Thanks.

[@LetsTalkIBD]

I think in this video I used a Mac color - amber lights I think! ♡

[@elainehardy3502]

@@LetsTalkIBD Thanks ❤

[@distillg]

Maggie i can feel your pain, those cramp / pain where the sun don't shine can be baaaad they can floor me literally, then you get mad because you cannot have a pain where nothing is! correct well no because we get them and although they not so regular now after 40 odd years of them, earrings look good which chicken did you borrow the feathers from LoL, barn looking good

[@LetsTalkIBD]

I'm glad someone can understand this unusual sort of pain! Hahaha luckily spared the chickens on this pair of earrings! Not a bad idea though - may have to steal a couple of feathers!

[@JustAnotherBuckyLover]

I get bad pain in that area - not as a result of IBD, but from endometriosis doing a number on my rectum and pelvis (among other things). Sometimes it feels like I have a tree branch impaled where the sun doesn't shine, it's pretty awful. The trouble is without even having organs, there are still nerves and muscles, and that can be enough to cause these horrible pains, as can spasms/cramps in or dysfunction of the pelvic floor muscles. It's horrible, and it can feel unbearably like I have to go to the bathroom even when I don't. No fun, so I sympathise with you and Maggie (and anyone else having that kind of pain).

[@gaylelizabeth]

@@JustAnotherBuckyLover , I know this pain. How do you deal with it ? The pain is so intense !!! I can’t function and it’s awful. Any tips would be appreciated greatly 🙏🏼

[@JustAnotherBuckyLover]

@@gaylelizabeth Honestly, I am on super strong pain meds, and even those don't stop it. Sometimes heat helps, but other times I just have to dose up and wait for it to pass. I wish that I had an answer, but unfortunately, it's just something that I have to deal with. Sorry that I couldn't offer you any real tips.

[@gaylelizabeth]

@@JustAnotherBuckyLover , the only pain meds I can get right now is one that doesn’t really help but it’s because I’m on anti anxiety medication. I spend most of my time laying down because I can’t walk or stand very long at all. This all started with sepsis from a simple hemorrhoid banding procedure two and a half years ago. I agree with you it’s unbearable ~ especially the pressure and feeling that impaled feeling which right now is just about 24/7. I almost died in march because I hemorrhaged after they had to redo my stoma because of necrosis which I later found out was due to loss of blood supply to begin with, once they did the redo , that’s when I hemorrhaged needed blood transfusions and icu. I’m trying to get well to get back to my children and grandchildren in MD. I’m in Arizona. The picture you see was me two years before my sepsis. I wish you the very best. I truly understand and if you ever want to chat , Let’s !

[@84953]

Maggie, I think it's time that you get some cloth bed pads, and I don't mean chux. If they are picking up most of the stuff, maybe it won't spread so much.

[@LetsTalkIBD]

We have a mattress protector:) still not happening enough for that move yet!

[@84953]

@@LetsTalkIBD I wasn't talking mattress protector like the ones you cover the the whole mattress, but the fabric bed pads with the waterproof lining that hospitals use. Maybe this is just semantics. I've also worked in hospitals but not in nursung and have always heard them referred to as bed pads, and the disposable version of that as chux.

[@janetlambert371]

Sweet deal 👍❤️😷

[@SQUEAKS818]

Nice Video Zak and Maggie 😀😀😀😀

[@kathymiller9351]

Best bet- get rid of carpet . Tile is so much easier to keep clean.

[@lrussell5496]

Love your earrings.

[@ljimzlj8079]

My ostomy always leaks because the surgeon had the great idea of putting in the middle of my stomach.

[@laureentaylor8437]

It's almost like bag leaks come in waves. I'm in a no leak period thank God. My stoma is finicky.

[@tattymax1]

Hi I am new to your channel , hope ou don't mind me asking but which state do you live in as it looks so pretty. thanks

[@LetsTalkIBD]

I'm in Pennsylvania!

[@littlemrpinkness295]

I put a chux under me when I go to bed. You probably want to have some handy if you lay down on the couch too.

[@LetsTalkIBD]

Most of the time (knock on wood) I now know when it's leaking. No more eating and falling asleep in weird positions! :)

[@libbygibson5612]

❤️❤️❤️❤️

[@sojanjoseph2447]

Your soul and mind is more beautiful than your body...... God bless.......

[@kevindawson1280]

Could your bag leak be becuase of this super hot weather your havin, just a thought, and is this the wrong time to reveal i'm a bus driver lol 😆

[@LetsTalkIBD]

It could be! Haahaha 🤣 I'm sure you don't floor it in reverse if you miss a stop!

[@daviahumphrey3249]

Kevin Dawson I agree I get more leaks in the summer . 💩

[@kevindawson1280]

Nope i generally flaw it/drive past at a sensible controlling speed 🤫in drive especially if a customer hasn't alerted me they want the next stop in time i digress ,but in my "pro" opinion no bus driver should be reversing a bus without someone to watch them back the bus up so to avoid incidents and generally running people down...ya know ....so my point the bus company hasn't a peg leg to stand on if saay a claim was bein made ...🤐

[@iremsuurun]

hey, what is your phone model ?

[@LetsTalkIBD]

Its the Samsung note 10 plus 5g!

[@aafiahrahman7503]

Is this ostomy bag life long???

[@LetsTalkIBD]

Mine is! Some people can have them temporarily

[@bryanchaps3647]

I didn’t know you were a Lehigh valley girl

[@elizabethdoran7626]

You are a beautiful couple,so caring and loving your husband is,I wish to find someone like him one day

[@rae1957tn]

Y’all really need a truck

[@LetsTalkIBD]

Agreed!

[@emilyarbec]

Are you going to have a videographer for your wedding?

[@LetsTalkIBD]

We are!

[@kirksmith3440]

Im sorry, but what does any of this have to do with ostomy leaks? I wanna see a video of you hauling shingles up a ladder on your shoulder for a roofing job! Sweating all day, sore and tired. Work my ass off so I can get money to support my little leakey buddy. Talk about dehydration! And you can eat all the banannas and oatmeal you want, it dont work. A few kidney stones a month now! Sometimes I wish chrones would just kill me.