Liver cirrhosis what do you mean?

[@chp6489]

Hey Neil! How you doing today? Hope all is well. Keep spread the important information! ❤

[@Redneckkenobi]

I’m ok. Trying to figure some stuff out but I’ll get there. Thanks for asking! And I hope you are well 😊

[@Converse-o4d]

​@@Redneckkenobi Have you researched the living liver transplant?

[@ChrisBInPhilly]

Hi Niel, I was given the typical 6 to 24 months to live without transplant. A will was drafted and I planned for departure. The DR. stated due to my age, lack of sobriety, and an all around dearth of liver supply my chances would be slim. I had close to 100 para's every say, 10 days, for 3 years. 2 to 3 liters would hit again in just 3 days. The tips shunt was unsuccessful the first time. The second TIPS attempt was to place 2 shunts. This worked for say 9 months with maybe 1 para a month. The 3rd revision is somewhat perfect. No para for 9 months. I would generally hold 6 liters and the IR DR. stated a miniscule amount of say 100 mil's tops on 3 occasions. It's been 4 years total hoping I can salvage just enough liver for a peaceful 10 years foregoing. Also, most all Doc's are dual GI and Hepa in this area.

[@Redneckkenobi]

I’m glad the fluid build up got better. After my chest tube I had in for a month and a half, finally it stopped building up. They think mine is due to the neurological issue they are working on diagnosing. It may take a year to get tested for Ehlers Danlos syndrome. It’s a connective tissue disorder that causes full body pain and some of the types attack the collegian in the organs. The hernias, and swallowing problems and stomach issues as well. They did a biopsy and found the whole liver is cirrhotic with no evidence of disease. lol thanks for the confusion. That would make sense if that disease attacked the liver. It wouldn’t show up in normal ways 🤷🏻 that’s why I always say everyone’s situation is a bit different. I hope you get your 10 years! Hang in there and keep fighting

[@michellecrawbuck1198]

You seem like such a sweet, caring, genuine man ❤

[@Redneckkenobi]

That’s sweet of you to say. I’m just a regular guy 😊

[@JamariusJackson-yg5ui]

You say that you had confusion and mental issues but you seem to be very sharp in this video. Lots of information, great job.

[@Eros13adios]

Yes,it comes and goes.

[@Redneckkenobi]

That comes and goes. If you notice (hopefully you didn’t 😂) I lost my place about 3 times and rambled till I remembered lol. I got good at covering the small stuff up. But the big confusion or change of personality. They are flair ups. When they do you should go to the ER. I’ve never forgotten where I was or nothing like that. The meds really do help

[@janetstadius1684]

Hello Neil always nice to see you.😊

[@garretmount8409]

You’re a great guy my friend. You are helping so many people. Side note, look into liver cirrhosis/damage AFTER Covid 19 vaccine 💉 it’s really alarming. I prayed for you my friend, you are very positive and creating a lot of awareness and helping save lives and give people hope. God Bless 🙏

[@RiosChavez-qz2yr]

You look better now man

[@Redneckkenobi]

I appreciate that. But I’m definitely not lol. I keep loosing weight. I can’t eat. Everything including water gets stuck when swallowing and I don’t get hungry. But there working on getting me into a specialist to figure out the neurological issues I’m having. I hope you have a great day

[@ErikVanScoy]

Hey man. I’m 51 years and have ESLD from wilson’s disease. I was never a drinker, socially at most. My biggest issue has been the tiredness and digestive issues. I’m on the transplant list and my latest MELD score was 17 in June.

[@prasadnagnath]

hey Neil nice to see you... thanks for imp information . you looks good now. keep fighting 👍👍

[@freerider7064]

God bless you brother

[@suefantastic4584]

You seem to be the nicest person... xo

[@Redneckkenobi]

That’s sweet of you. But I’m just a regular guy 😊

[@RobHughes-oh3yg]

Thank you for the video

[@TheToe-ii2kd]

I'm not here to call you a Liar, or go against your truth and your experience in any way at all. I'm sorry that you're going through this and Hope for the absolute best. Hopefully something is figured out for you and this doesn't wind up a death sentence because everybody deserves a chance imo. So I Just watched a few of your videos back to back. I'm touched and you're part of the reason I'm thankful that I stopped drinking. However, Something doesn't seem right. I Know Auto-Immunity can cause other systems in our bodies to fail and not work properly. My mother has a myriad of Health conditions stemming directly from Autoimmune disorder. She, luckily only has to have her thyroid removed and she may get her second change (Hopefully and I'm praying for her), but what doesn't make sense to me is that it takes Most people years, sometimes Decades of daily, heavy drinking to wind up in Fibrosis and ultimately, Cirrhosis. Not the case with you and I'm wondering if it's just because of your Auto Immune issues ? or did you take a lot of Medication in the past, your diet ? maybe ? Because I Know a lot of alcoholics and problem drinkers who have been drinking for years, some of them since their adolescent Years, Including myself. I Just cannot believe 2 years of drinking with month long breaks would be the sole cause of your Cirrhosis. No offense. I'm no doctor either and maybe you are just the acception/Outlier. Forgive me if I sound Questioning of you.

[@Redneckkenobi]

My liver doctor finds it odd too. They did a biopsy and the entire liver is burnt out as they put it but no signs of disease. He has given up on looking for the cause. I have it so that’s that I guess. I do have neurological issues as well that they are trying to get me into a GI that specializes in rare stomach disorders. I have dysphasia to liquids and solids and no reason for that. It may be a form of EDS. I check all the boxes on that. Hyper mobility, full body pains, intolerances to cold and heat. Stomach issues not related to the liver and 3 hernias. Not a fun life. lol. The drinking was just like throwing gas on the fire. And keep in mind, everyone’s body is different. The alcohol related cirrhosis has gone up a lot since co vid.

[@TheToe-ii2kd]

@@Redneckkenobi Oh man. that sucks ! Any news of whether or not you can get/or are steady enough for a transplant ? other than that.... I guess there's always something and first time for everything brother. I'll keep an eye on your channel and check you out more/listen to you. God bless you on your Journey and I have high hopes.

[@Jsppydays]

There is a genetic code in some families that your liver has a short life. I paid $500 for my health code, and my family has it and we don't have to drink to have liver failure. Some liver genetically are stronger than other genetic codes. I'm sure I will die of liver failure. I also have autoimmune disease, Lyme's. Everybody's physical health conditions are completely different and cannot be compared. At least that's my life experience

[@thewatchman3918]

Eat lots of dandelions try drinking Pau D Arco tea if you're still alive God can heal you 🙏

[@valerielock2374]

Lean protein! Good to see ya Neil❤

[@Redneckkenobi]

Good to hear from you. Hope you are doing well

[@Coffeechat1979]

I think if maybe it was just a fatty liver fasting might be okay but when you get to cirrhosis stages your already losing so much nutrients due to the liver failure it will just get worse. I couldn't imagine fasting my son he's already maybe 100lb's soak and wet. Before all this he was about 170 maybe a little bigger. I hope your doing okay 😊 Tyler's birthday is Fri 27th and we're hoping maybe doing something fun but I'm not sure the weather is gonna hold out sadly. Anyways I wanted to say hi 😊

[@Redneckkenobi]

Hey good hearing from you 😊 I’m getting by. Glad to hear you all are looking to do something fun. I think that’s important

[@jesusis1459]

I'm having left side pain that will radiate to the right, with nausea, ect. A CT scan only showed hypodense foci lesions on my liver, but they are too small to characterize. I've never drank in my 48 yrs. 2 yrs ago showed a normal liver...drs telling me not to be concerned?! Mine is probably not cirrhosis. It looks like cysts, but they can be malignant or benign

[@Redneckkenobi]

Sorry to hear you are having liver problems. It’s a crazy organ that can do many things. I’m not a doctor and I couldn’t comment on what you have going on, but I hope you get the help you need

[@jesusis1459]

@@Redneckkenobi I am having a endoscopy and colonoscopy on monday, after complaining to my dr for over a year...a grievance was filed on behalf?! My aunt recently died OF colon cancer that spread to liver. The liver is what ultimately what took her

[@valerielock2374]

🙏🙏🙏

[@eulissanders3279]

what lvl of cirrhosis were you diagnosed with, what was your kpa for any fibroscans when you first found out

[@orionxtc1119]

Have you tried Milk Thistle? I only just came across your channel

[@Redneckkenobi]

So there may be benefits in it before your liver turns cirrhotic, but it can cause major problems using it after it’s cirrhotic. The liver is having trouble producing nutrients, and those type remedies like milk thistle will make the liver work to hard and it can’t process it. It can cause blockages. Do some research on it. Be careful who you recommend that too. You probably didn’t know that. And there’s nothing that can help a liver when it turns to cirrhosis because it’s all dead scars tissue. The only thing you can do is stay away from the bad stuff and maintain a healthy diet to keep up on the nutrients (especially protein) that the liver isn’t processing correctly

[@rochellemilnac1548]

How do you feel about dandelion root, ginger and turmeric?

[@thomascraig6814]

What were your ALT levels when your liver failed?

[@jerryhatrick5860]

I struggle with appetite and eating is that. Normal. At stage one fatty? Man I can lay in bed almost all day most day for years now and just diagnosed and had a biopsy in December. Dr didn't follow up and won't give me another appt? With is that? The biopsy was painful. Wounds on my skin won't heal right. No yellowing yet. Im trying to handle it with supplements.

[@Christian-qu9ml]

Do you have siblings or parents? Have they passed away?

[@Redneckkenobi]

No I do not. It’s just me 😊

[@DianeDuvall-m8e]

Hi Neil I have been watching your videos Love to talk to you and ask you some questions

[@stuboyd1194]

Did quitting booze at the time you did, do anything to improve your health or was it too late by then?

[@Redneckkenobi]

I only drank about two years. I had quit a month or so before going in. Without the poison I was putting in it definitely made a difference. Many things cause this disease, but whatever the cause alcohol does nothing good for the liver. The damage was done. The doctor said due to the amount of damage that my liver had been failing for a long time, drinking was just like throwing gas on the fire.

[@zaraz5130]

Just saw hemotologist for low iron Will get transfusions. Not sure how low iron is related to liver.

[@ValentinaKajcinovska]

It's all related to liver...I had blood transfusion in 2020 due to iron deficiency.It saved my life

[@zaraz5130]

@@ValentinaKajcinovska ty scary stuff..just found out this July about my Autoimmune hepatitis.

[@Redneckkenobi]

The liver has a part in processing it. And in hemochromatosis the iron con build up to much in the liver and damage it. So they take the blood that has too much iron and replace it with blood with normal counts

[@dumbass3770]

​@@ValentinaKajcinovska I have had to get 2 separate iron infusions a total of 6 doses. It really helps.

[@jerryhatrick5860]

For 5 years I wondered why I wake up with a sick stomach every morning until I had a bowel movement. First sign I believe was pain at y gal bladder but came back negative. Im stage. On fatty it's not cure able but I can stop further damage but I like drinking. One or two a day. I believe mine is induce by opiate abuse years ago all that Tylenol in the pills I abused prescribed by Dr's for a Legit reason. Not that I didnt have a bad bad drinkg issue years ago. Vodka. I havnt drank hard liquor in years and don't like beer anymore for about 10 years.

[@jerryhatrick5860]

Dr put it down on my paperwork alcohol induced. I came clean about the past alcohol and opiate abuse before obtaining him as my pc 15 years ago. I had a biopsy amd the Dr never followed up with me on it. And my memory suck for immediate. Things confusion forgetfulness short term. ..but I remember much of my past. No major confusion.

[@simpleman2]

✌️👍

[@campbelloflongbranch]

Could you please geek out some time and talk about the models in your background! Maybe you have Neil! Let me know if so! X-Wing & a Venator Class). What else is there?

[@Redneckkenobi]

There’s the mandalorians N1 and ashokas Jedi star ship from the show. And a trade federation star fighter, and mace windos crosser. I got some from temu. They aren’t legos but there the same and way less.

[@campbelloflongbranch]

@@Redneckkenobi Really enjoy your frankness and honesty and your telling of the experiences and the challenges you're facing. Keep it Up! You look Great, Hope you're Feeling even Better! Obviously the next question is: which one do you want to fly?

[@lilitudeamnocte248]

Hey there, i have stage 1 cirrhosis due to autoimmune primary biliary cholangitis. And im wondering which stage you felt the most fatigue at bc ive heard the fatigue is worse at stage 1vs stage 4. I hope so bc i am only 39 and am absolutely disabled by exhaustion that i can hardly manage to shower. I can deal with the other symptoms, i just need the fatigue to go away. Thanks for your insight!

[@valerielock2374]

🙏

[@colleenpeck6347]

I had the same as you in 2015. As an OR nurse, all I could do was sleep and work. I had to stop working because I felt so drowsy that it was unsafe for me to continue working. I had a fever and chills, rash with itching(puritis) , and yellow loose /liquid stools. I had to wear female incontinence fitted diapers at work and keep changing them and my scrubs. No one knew that I had hcv. They just thought that I had food allergies or stress diarrhea. I went to the liver specialist for 3 8:56 , e kept telling me that I needed the Harvoni 12 we12-weektment whic, was $125,000 at the time. My viral load of the hcv infection was 1 million whi, was the highest that my Infection Specialist & he had ever seen in their 40 years. All that I could hold down were protein shakes, saltines, toast with peanut butter, bananas, and flat ginger ale. My stomach pain was brutal from the inflammation and the diarrhea. I was so weak, but every time that I ate the diarrhea came an hour afterward. I had been an RN for 35 years and just wanted to be well again to work without detriment to my health. All I wanted to do was sleep. But, on the other hand, I felt like the treatment would make me even sicker. I'm a widow and lived alone and had a pomeranian. My parents were both deceased, and I did feel comfortable sharing my diagnosis with my psychiatrist, brother, who was very busy 2,000 miles away. My doctor's nurse was very supportive and told me that she would set it up to be paid for by my hospital insurance and delivered to my house. All that I had to do was get my blood drawn and come to the office every 4 weeks. I tolerated the whole 12 weeks, but I did feel much worse. The treatment was successful at killing the virus, and my liver would start rejuvenating itself. My viral load was zero and continues to be 9 years later. It was what I had to do to survive.

[@Redneckkenobi]

I had end stage when I was diagnosed. I fight with exhaustion a lot. I’d say for me it’s worworse now than it was 2 years ago. But it seemed to fluctuate at times. I have a hard time driving anymore then 40 minutes cause I get so tired. I brought it up to my liver doctor he said with it being that severe there may be an issue with sleeping. I do go through times of days with out being able to sleep, and that’s common with this disease. I’d be so tired yet couldn’t sleep. I will also get 8 hours and I’m so tired when I wake up I can’t stay awake. That’s been really bad this last 2 months. I do know that when some of the chemistry (blood numbers) in your body is off it can mess this up too. I’d bring it up to your liver doctor. Mine digested doing a sleep study to see if when I’m sleeping if I’m actually getting rest. I haven’t done that yet. I wish you luck and I hope it gets better for you. I will say this. Staying active as I can does seem to help. Just walking or up and moving. A body in motion tends to stay in motion. Like a river it flows and breeds life. But a pond is stagnant water and nothing thrives there. I hope that makes sense. Take care 😊

[@jerryhatrick5860]

I'm stage one fatty my fatigue is horrible and people don't understand they think I'm being lazy especially family. . .I can't do all day motorcycle rides anymore.

[@garretmount8409]

You’re a great guy my friend. You are helping so many people. Side note, look into liver cirrhosis/damage AFTER Covid 19 vaccine 💉 it’s really alarming. I prayed for you my friend, you are very positive and creating a lot of awareness and helping save lives and give people hope. God Bless 🙏

[@Redneckkenobi]

I never got the vaccine thankfully