Liver cirrhosis and not giving up

[@lynnepaquette4124]

I'm really glad you're still alive and sorry you're going through this. I have liver disease to and it's so incredibly painful. I cry a lot and can barely get out o bed. I'm missing the summer. I only go out to go to meetings and meet my new sober friend and my mother who's real absolute angels to me. I want to live. Sorry one of my typing keys isn't working good excuse the spelling mistakes. It sucks doctors don't have many answers. I'm glad they helped you but angry they weren't taking you seriously at first. What a nightmare. Please keep seeing your doctors. I'm going through the same thing. I can't hold anything down and my intestinal track isn't functioning. I'm getting really scared. I got sent home too and I was shrieking in pain begging for help. I felt like they wanted me dead! My mother lost it threatening to call the news. I was IV-ed for the entire day. I'm hoping we both get better.

[@Redneckkenobi]

I’m sorry you are going through that. Sounds all to familiar. Congratulations on staying sober! That awesome. Keep going. And I understand not having many people. I’m on my own. I recently made a friend here locally. You are always welcome to email me if you need to talk. [e-mail] Put liver friend in the subject line. Oh and I can’t spell good even with all my keys 😂 but stay positive and hang in there.

[@MrBigyax]

Sounds like you've been through a really tough patch, hope you get the answers you need soon and start feeling better

[@Redneckkenobi]

It definitely has its moments. But I am happy cause it could be worse

[@kathleenortiz4152]

Wow... Such similar stories with you and I. I've had this disease for about 4 years. Meld score three years was 38 and I was only 42. Listening to you brings peace and I'm sure it helps others as well . Meld to date is 11. Thank you for sharing 🤍

[@Redneckkenobi]

Thank you for your comment, recently it jumped to 20. I wasn’t happy about that 🤣 but I’m not yellow anymore so bonus lol. I appreciated hearing your story there too. I hope you are staying positive and keep up the fight. 😊

[@odettehokemeir4425]

You are doing an amazing job Neil, keep believing 🙏🙏🙏

[@Redneckkenobi]

That’s so kind of you to say. 😊

[@suepeterson168]

Praying for you Neil. My hubby is going through the liver transplant evaluation. We hope to know soon if he will be a candidate.

[@Redneckkenobi]

Fingers crossed 🤞 and my prayers any thoughts are with you both. And thank you for your kindness

[@nipondeel9940]

Thank you! Thank you! You’re so brave and such an inspiration!

[@RonsMom40-pu1en2gj4p]

Wishing you all the best. It sucks that you had to see that many "professionals" to still not have an answer!

[@tonilarson8891]

Thank you Neil! You are an inspiration and helping so many to know they are not alone!❤

[@zhaezz84]

I just found your channel. I have been drinking a lot for around 20 years, but i always had breaks, and newer got morning shakes. I started feeling sick everyday, nausea, dizzy, and lost apetite. Some other symptoms aswell. My doctor think i have alkoholic dammage on liver. I need to wate one week for blood tests becouse they have hollidays :x pretty annoying, i have not really eaten for a week now living off milk. Best regards from Denmark!

[@Redneckkenobi]

I hope you get answers

[@zhaezz84]

@@Redneckkenobi Yes i hope so my friend. been gradualy getting more sick for a year now, have had blood tests done no more than 3 months back, and they where fine. Doctors keep sending me to cancer scans and tests, and keep saying my liver are healthy and normal. Not sure those liver blood tests will show anything, in all cases? Thank you mate and god bless you !

[@debbiem5837]

I appreciate your videos so much, Neil. ❤

[@Redneckkenobi]

Thank you. I hope it helps

[@visam28]

Very sorry! Esp for the hospital that called you a hypochondriac wow! Hope you are feeling better.

[@Redneckkenobi]

Hey just more reason to push on. And thank you for your kind words

[@visam28]

@@Redneckkenobi Exactly & of course!

[@Rebecca-bb6od]

Thank you Neal! ❤

[@animalnannymom]

Thank you for sharing your journey

[@Rebecca-bb6od]

I too, have liver cirrhosis NAFLD. I have diabetes, autoimmune illness. But it is true that everyone at some point will be living or dying from something, cancer of various kinds, M.S. M.D. Parkinsons, there's just so very many many diseases. We are bound to be hit by one or another, some people get lucky and live a long long life. ❤ we just keep our love and trust in Jesus and do our very best. ❤

[@Rebecca-bb6od]

I have NAFLD cirrhosis stage one, with a meld score of around 6.

[@valerielock2374]

I have gastritis. I always have to sleep sitting up.acid reflux also.

[@Redneckkenobi]

It’s fun ain’t it lol I’m just getting used to it.

[@ChrisBInPhilly]

Hey Neil, My ammonia was once up to 168 when TIPS failed; 200 can sometimes cause brain damage or death. I believe average ammonia should be 50 . Also, upon arriving to the ER I weighed 249 lbs. Within 2 weeks into ICU I was back down to my 178 lbs self after para's.Yes, 70+- loss of water retention. In short how confused did you become when your ammonia was elevated?

[@Redneckkenobi]

So most liver doctors will now say they don’t base it on the ammonia level anymore. Because I’ve been as high as 300 once and was acting pretty normal. And I’ve been at 90 and was having mood swings. I forget often, but that’s mostly brain fog. But they base HE on the symptoms now more then the numbers. Some liver doctors won’t even pull the ammonia. That’s why they look for the hand flaps. I’m always at about 60 to 70 but I also spent about 3 months at about 150 normally. I was more experiencing the mood or personality changes. Like I would become angry. Or a feeling of hopelessness. And I used to get the hand flaps 2 years ago but don’t know what the level was back then

[@ChrisBInPhilly]

@@Redneckkenobi Well I guess we are not all created equal. I never experienced flaps, jerks or shakes. MY biggest HE bout sent me to the ER where I didn't even recall the month we in, nor the year, or even the president's name. My body was flushed with saline and other solutions for ammonia build-up,. I was top of my game, say within 3 days. The best lesson I learned was to watch my diet of say fast and processed foods, high salt in general, and to limit sugar the most you can. This alleviated many potential HE reoccurrences. I eat like a bird and as healthy as possible now. Water is pretty much my only beverage. Take care.

[@Redneckkenobi]

@@ChrisBInPhilly this disease effects everyone a bit different. Episode you had with The ammonia I never had like that. In my case the area that got hit the hardest from the disease was my right lung. It filled up over and over again. I had a chest tube in for a month. I don’t know why it did affect my brain when the number was so high. The liver dr had said that’s why they don’t use ammonia level as an indicator. Sorry you went through that. And I hope you never have to again.

[@zhaezz84]

How much can you see on bloodtests (normal liver pannel) ? Did you ever have all normal NRs, while being sick? Thank you

[@lovingit1538]

Can you take serrapeptase and nattokinaise?..these are enzymes.

[@Redneckkenobi]

I still don’t have all the info and what my progression is yet. My doctor was on vacation 🤷🏻 so I should be getting a call Monday or tuesday

[@amydavis7706]

How old are you? Just curious. Thanks!

[@Redneckkenobi]

I’m a healthy 44 year old 🤣

[@alansmithee4895]

i was diagnosed with fatty liver, today...fuck.

[@Redneckkenobi]

Fatty liver can be reversed in many cases, stay away from alcohol (obviously) a home cooked diet or less processed foods. More water and exercise are important. I wish you the best. Stay positive

[@matthewwhittaker478]

Fatty liver is nothing. Can be reversed in two weeks