Long COVID condition gets a new definition

[@sd1660]

4 years later. Fatigue, brain fog, almost no smell or taste, autoimmune issues. Before Covid I never missed a day of work from illness. It is a daily struggle.

[@dermotfitzpatrick5045]

Betaine TMG 500mg one to two times per day taken 1/2 an hour before eating. Take with vitamin B12 and vitamin C. It can temporarily lower blood pressure and increase circulating testosterone that helps regulate systematic inflammation so consult with your doctor before considering

[@Gigi89427]

Lactobifido probiotics+ zinc - support adrenals. Check your Iron, ferritin, b12 levels , B6, thiamine, alpha lipoic acid , glycine + above

[@Jimmy009-st8mm]

Self pity is a terrible affliction

[@ibtissemder8887]

I know ! Same here !

[@Shaolin91z]

Thanks Lord for your peace Thanks Lord for your salvation Psalm 91

[@davidwyant9905]

My friend died from COVID in February, he was healthy and fit and just couldn’t shake it. He was only 28.

[@lisaadams42]

I’m sorry for your loss.

[@davidwyant9905]

@@lisaadams42 thank you. 💕💫

[@ro9831]

Sorry for your loss

[@MD-oy4gv]

Bot!

[@evilsharkey8954]

Poor guy. That’s some rotten luck

[@andyalmeida8356]

2 - 1/2 years long covid, headaches daily, migraines almost as often... Never had a headache in my life before covid. Ruined my life.

[@drew2fast489]

I'm sorry. How have the headaches changed your life?

[@scarlettyarborough5499]

You are not alone ..

[@druidsongevergreens]

If you do not have any mushroom or gelatin sensitivity, people with long covid migraine due to neural inflammation can try this: 1 cap of lion's mane 1-2x day with 12 oz water. Jarrow brand and Solaray are typically reliable. Hope it helps and of course, if you have any negative reaction please stop taking it immediately.

[@real12thwoman]

As a migraine sufferer I know your pain. Your primary doctor should be able to prescribe a triptan medication, but if you’re suffering daily, you’ll want to find a neurologist that can put you on something like Emgality. I wish you the best of luck and I’m sorry you’re part of the headache club now.

[@CricketGirrl]

Have you been evaluated for ME/CFS?

[@Lacie870]

4 years later I am still suffering. Can hardly walk more than a room or 2 away. I was only 31 years old when this started. It RUINED me.

[@xXxtoodeeepxXx]

Were you vaccinated?

[@fluffyanne1177]

Did you have the clot shot

[@Lacie870]

Nope. I got sick before it ever came out & wouldn't have gotten it anyways

[@Lacie870]

Every time I type NO, it won't post it. W t f this is my 5th attempt

[@Meileehere]

Are you taking vitamin D, k2, magnesium?

[@Dandelion-32]

I know nurses who are still affected 4 years later.

[@DCGreenZone]

Immunoseb and Immunbio, Palmitoylethanolamide, CoQ10 and Lipoic Acid.

[@PoeLemic]

@@DCGreenZone Could you reference the peer-reviewed studies that give the efficacy in large-scale clinical trials from medical journals for that regiment along with dosages?

[@DCGreenZone]

@@PoeLemic I could, but YT will vanish them, let me see if just the titles alone will float.

[@DCGreenZone]

@@PoeLemic Don't hit me with that peer reviewed nonsense, that's exactly what pharma uses to hawk chemicals and fraud. If you aren't aware of the role of systemic, proteolytic, fibrinolytic enzymes is, do some research. >>A Randomized Controlled Trial of the Efficacy of Systemic Enzymes and Probiotics in the Resolution of Post-COVID Fatigue

[@DCGreenZone]

@@PoeLemic >>Coenzyme Q10 + alpha lipoic acid for chronic COVID syndrome

[@megapixies]

Took long enough to define it, now let’s get down to how to treat it! My life stopped when I got covid four years ago!

[@dermotfitzpatrick5045]

Betaine TMG 500mg one to two times per day taken 1/2 an hour before eating. Take with vitamin B12 and vitamin C. It can temporarily lower blood pressure and increase circulating testosterone that helps regulate systematic inflammation so consult with your doctor before considering

[@megapixies]

@@dermotfitzpatrick5045 Thank you… I’ll take a look at this.

[@Cyber_Cowboy]

​@@dermotfitzpatrick5045 dunning kruger

[@gabrielalizarazo2491]

I know of a clinic that treats and help manage symptoms of long covid, if anyone is interested lmk!

[@sourlemon3337]

Some actual studies say covid RNA survives in the body, causing all the problems. I’m only 20 and got covid 2 years ago, I’ve been ill ever since and haven’t been able to live life. It’s horrible, I want actual treatment to be researched

[@AdrianneFluet]

It's like having cronic fatigue syndrome

[@mosheridan7016]

You mean lazyitis?

[@socialjusticeworm3820]

@@mosheridan7016go f a tree

[@BoiseLou]

​​​​​@@mosheridan7016Today it is known that the vast majority of people with ME/CFS have a neurovascular disorder known as dysautonomia. ME/CFS and dysautonomia are common in long COVID. I have had dysautonomia for my whole life and developed ME/CFS starting around age 12 in the late 90s. I also developed CPTSD in response to the complex medical and complex social trauma related to intense gaslighting and medical neglect by those around me. I drove my health into the ground from decades of trying to overcome what was seen as issues with my personality, including laziness, to the point that I am now mostly house and bed-ridden. It feels like salt in the wound seeing comments like yours. I do wonder what kind of insecurities drive your judgement and the satisfaction you get from this. Please, show some self-insight and take a good look in the mirror.

[@Cyber_Cowboy]

​@@mosheridan7016 not exactly. Everyone with CFS has lazyitis, but not everyone with lazyitis have CFS. For example, fat people might not have chronic fatigue, but they definitely have lazyitis

[@raloufen4292]

You have both?

[@Gina-dn6xm]

ME/CFS has been around for a long, long time. It has just been ignored for years and years. I have been diagnosed with chronic lyme, reactivated Epstein Barr, ME/ CFS, and long covid.

[@Echo81Rumple83]

Rare and seemingly unimportant conditions tend to be ignored until it rises in cases at an alarming rate. Especially when it affects the bottom line for megacorps :/

[@Sweetlyfe]

@@RiDankulousThen bring in universal healthcare, we have subsidised prescription medications, once you hit the threshold I hit it last month $277, now all my prescription medicines are free.

[@Sweetlyfe]

In Scotland no one pays for prescription medication.

[@mranster]

@@Echo81Rumple83 me/cfs is not rare at all. It's extremely common, since it can occur after almost any viral infection.

[@ellenh278]

Wow all those are EXACTLY what I had/have. Exactly. Interesting to know there is someone else out there that has a similar story.

[@deborahbarber1510]

4 years later and my daughter is still suffering.

[@Properdoseofinsanity94]

NAC is the only thing that has helped me. I wish your daughter the best of luck!

[@deborahbarber1510]

@Properdoseofinsanity94 thanks

[@SrnDpT-ti1xs]

The long term economic costs from ongoing medical complications are a big reason why we try to prevent pandemics from getting a foothold in the first place. The loss of life and chronic illness is horrible for the individuals and costly for the nation. Preparedness and prevention are critical. Please vote wisely. Our lives depend on it.

[@kismypencek6185]

Perfectly worded!

[@oakmaiden2133]

Totally agrees. How much could have been averted if One person had enacted, endorsed, encouraged masks from the very first. I believe we could have continued to work and not shut down socially, if everyone had cooperated 100%.

[@SrnDpT-ti1xs]

@@oakmaiden2133 If it had been publicly announced as soon as we knew and if we had been more selective about shutdowns, absolutely. They also mismanaged the monthly allotments, imho, by dispersing payments to people who were able to continue working during the pandemic. Imagine how much inflation could have been mitigated by simply being more discretionary about how people qualified. I knew a guy who was working full time with overtime, refusing to pay his child support and keeping all the monthly allotments including what should have gone to provide for his son (who was living with his mother that was laid off). Made me sick to watch. There are so many ways it could have been better managed if we had intelligence in the WH at the time.

[@Wayoutthere]

Trump 2024 you monsters! You killed millions in excess deaths. No forgiveness.

[@Wayoutthere]

KZbin keep blocking. TRUMP 2024 you monsters.

[@Tf03]

Thank you for discussing long covid!!

[@Doesitmatter-by3xb]

Got covid 2 months ago, it went away fast but ever since I've had a sinus infection Sinus pressure, headaches, horrible brain fog and fatigue Anybody else in the same boat?

[@annedawson8555]

Yes same all those things. Never had sinus issues before covid. I hope you recover sooner rather than later

[@Doesitmatter-by3xb]

How long has yours been going on for??

[@annedawson8555]

@@Doesitmatter-by3xb just over a year so far

[@tehnoobgamer]

Kinda embarrassed to admit, but I'm not sure if I got COVID during the pandemic. Anyway, I've noticed that I've been getting frequent sinusitis (which I only get once a year before), so yes. I think we're in the same boat.

[@Doesitmatter-by3xb]

Mine has gotten to the point that I'm worried I'll develop chronic fatigue, everyday I'm so exhausted to the point that I feel sick

[@Rebecca-zq5jb]

Thanks to all the people herein who shared their stories and to all who, including professionals who shared advice to those with long covid. Kind heros.

[@CricketGirrl]

A lot of long covid patients meet the ME/CFS diagnostic criteria.

[@sebastianaminoff9703]

A lot don't. I have severe neurocovid and MCAS, but do not suffer from ME/CFS.

[@CricketGirrl]

@@sebastianaminoff9703 that's true, I think about half don't, but long covid is undeniably related to ME/CFS, which is also triggered by an illness.

[@tracysmith-yv5lt]

autoimmune can be a lot of conditions that is just 2 of them i have lupus which is when the body attacks itself lucky it is more skin, not the other one organs any organs god know how im nearly 50 Seeing a lot with Fibro/POTS/MS/ME/Chronic Fatigue. ME is worse post-exercise like I am with my lupus or in the sun I feel like I'm 90 some days. Lyme is another one.

[@spvillano]

And I've been bitching because COVID badly damaged my mitral valve and I'll occasionally flood with histamine (usually after drinking). My youngest kid (she's pushing 40 now) has long COVID, fatigue, some depression, but is slowly recovering from the long COVID symptoms. Leaving her with her old friends, metabolic syndrome that's secondary to PCOS. Part of the problem is the sheer volume of damage to the circulatory system that the immune response caused, but that's only a part. The immune system was attacked by the virus first and well, roll the dice to see what else took offense or got mistargeted...

[@Mantaray911]

V-AIDS?

[@kelseas5180]

I want my life back.. covid took so much from me. Mom guilt is heavy 😭 I miss helping others, I miss having a career, I miss having energy, I miss being able to race my kids, I miss waking up feeling ready to conquer the world, I miss providing, I miss running my dogs.. I am still so grateful for life tho. And the blessings I still have. Even tho my body feels like I’m fighting a current every day. Invisible illness.. people do not understand

[@TreasureDeal]

I do understand. I'm in that boat with you.

[@ConnectFork]

Are you vaccinated? How many times?

[@mylifepostcovid]

I'm here and I understand. It's been 4 years of my life slipping by while my body attacks itself. It affects every aspect of my life. I'm so sorry you have it also.

[@TeasLouise]

Everything. You. Said. I'm sorry. This is so freaking impossibly horrible.

[@hareinferno]

I’m here too. I understand.. fellow survivor

[@emilyfeagin2673]

When will the social Security Administration recognize it as a disabling condition?

[@InnerGiggles]

The ADA does. So they should too.

[@kelseas5180]

This!!!! 😭 I’m at 2.5 years with LC. All my credit cards are about to close & go to collections, my car repo’d.. numerous shut off notices & late rent… need to buy my kids things… I’m drowning.

[@InnerGiggles]

@@kelseas5180 I’m so sorry. How awful! Your whole life has flipped inside out due to a virus. I hope you get some relief soon. 💕

[@down-to-earth-mystery-school]

When will they recognize fibromyalgia as a disabling disease? That was officially identified in the early 1990s.

[@ConnectFork]

Pfizer has 75 years immunity granted to them by the government. You’ll never be compensated.

[@evonne315]

I am seriously affected over 4 years now and STILL cannot go vack to work. It completely ruined my life. The world is sick of hearing about it but were still here SICK FOREVER and can't even get disability or other help.

[@dermotfitzpatrick5045]

Betaine TMG 500mg taken 30 mins before eating and taken with vitamin B12. Start with 1 dose before breakfast gradually increasing to 1 dose before breakfast and main meal and finally 1 dose before breakfast, dinner and evening meal. Please consult with your doctor before considering as it can lower cortisol that can then lower blood pressure and can in high doses (4mg or more per day) increase cholesterol.

[@gabrielalizarazo2491]

I know of a clinic that treats and help manage symptoms of long covid, if anyone is interested lmk!

[@5-waymusic421]

Did you end up getting the ”cure” like the government told us?

[@FranRidder]

I got Covid in January, and had 2 huge seizures. I woke up in the hospital 4 days later, without my memory. Now it’s 5 months later and I’m missing 25 years of memories. I wonder if that’s because of COVID or the seizures? My neurologist thinks COVID is a big contributor. Crazy stuff.

[@Sweetlyfe]

Oh my goodness, that’s awful you poor thing, Covid is not just a respiratory illness it’s a circulatory illness, so I would believe your Dr, I had epilepsy as a kid and I would be a bit confused and exhausted when I came too, and a bit foggy for a couple of days, but the exhaustion was more, and I couldn’t tell you how many seizures I had, and 2 of my cousins, and none of us lost our memories only for a short time before and after just about what we had been doing before.

[@Rebwell]

I’m so sorry that happened to you. I wish you love and peace while you navigate re learning yourself. ❤

[@B-RadzYT]

Same happened to me, never had seizures my whole life, after having covid I had 2 huge seizures as well. One while driving, lost my license, then the other while in the bathroom at the emergency room

[@B-RadzYT]

I’m currently on seizure meds because of this & wanted to ask, are you on any as well or if those 2 were the only ones that happened?

[@MM-tg1xi]

​@@B-RadzYThave you taken the jibby jabby?

[@JianLakerson]

We got covid last October, took the Paxlovid and got over it, but we haven't been the same since. Months later we have similar symptoms, pain, respiratory issues, digestive problems that weren't there before, fatigue, and so on.

[@stonerubber]

Yes, I have family who have had this same experience after taking paxlovid.

[@amberandrews6842]

I didn't take the paxlovid, and have the same ongoing issues.

[@Orchidaceous1]

@@stonerubber Remember, correlation is not causation. It’s far more likely the Covid is the problem, not the medicine.

[@stonerubber]

@@Orchidaceous1 Yes, I know that very well. But as a shiny rhetorical device it has lost its luster.

[@canned-gatorade]

I have an autoimmune condition and I took paxlovid and honestly it made me feel as if I didn't even have covid because it was so mild. The only symptom paxlovid gave me was a weird taste in my mouth but that's normal for it

[@crystalhearteddragon4197]

If you had listened to the M.E community you would have been ready. There should already have been a cure for post-viral infections.

[@vintagelady1]

That's just ignorant---no one had ever seen this virus before, there was no suspicion about long covid until about halfway through the pandemic, to this day there is no real definition of the symptoms, every case is different. But maybe one of your crystal dragons can DM you a cure? Oh, and it's not a post-viral INFECTION---they don't even know yet what it is, may be a disruption in DNA replication that causes disruption in multiple organ system processes. But I'll let actual exerts figure it out. Not dragons.

[@lowandslow3939]

“On the path to the correct treatment” Oh really. What treatment would that be?

[@evilsharkey8954]

They’re still trying to figure that out

[@Observer-p7u]

Something the pharmaceutical companies can make money off of, I'm sure.

[@cooki47]

I know this sounds crazy but look up Brain Retraining on KZbin. Thousands of people recovering from ME/CFS and Long Covid. The cure rate is really high!! I've been practicing the strategies and already feeling much improvement! And it doesn't cost anything unless you want some coaching.

[@dermotfitzpatrick5045]

Betaine TMG 500mg taken 30 mins before eating and taken with vitamin B12. Start with 1 dose before breakfast gradually increasing to 1 dose before breakfast and main meal and finally 1 dose before breakfast, dinner and evening meal. Please consult with your doctor before considering as it can lower cortisol that can then lower blood pressure and can in high doses (4mg or more per day) increase cholesterol.

[@AlexanderLisitsyn]

"BC007" - Read about it !

[@MistrettasMedia]

16 months long hauling, we will get through this guy's

[@vidviewer9727]

I hope so. I'm on 10 months and I'm losing hope

[@jdbasseater6826]

It's Been a year today. Going slightly better but not that much.. they need to find a way to recover from that thing

[@sourlemon3337]

Been 2 years for me, still suffering from crippling anxiety, brain fog, fatigue, and digestive system issues.

[@jacquelynemartin6353]

It's one of the worst things to get because you just don't have a life anymore. No joke.

[@3DJapan]

We can't forget it because it completely changed our way of life, even today in small ways. Some places still require a mask. Jobs changed. A number of stores that were open 24-7 near me now close at night.

[@vacafuega]

People, don't give up, keep trying stuff. I was really really bad and kept reading the research and the stuff people were posting on the lc fb group, a lot of stuff didn't work but the stuff that did got me through. Keep pushing! You deserve this!

[@instant_mint]

what worked for you?

[@mybachhertzbaud3074]

Covids propensity for mutation makes it possible for it to either get worse or mutated out of danger.🤔 As someone who has MS and had a touch of covid, I can tell ya that a lot of the symptoms were damned near the same.

[@theresehopkins1581]

Simply, covid makes any weaknesses worse... like enhanced allergies and sensitivities. Over time, your body gets stronger..... but it takes time. My doctor told me that I was going to have to get used to a new body. I asked her if it could be a 20 year old body? 😅..... but..... being alive is everything!!!❤ And I will never take the taste of food, or the smell of flowers for granted again!!!😊❤🙏🎉

[@sigsauer7929]

It was the uncontrolled spread of the spike protein that caused inflammation throughout your body, get another doctor and try to treat your spike protein poisoning.

[@jasoninflagstaff]

​@sigsauer7929 get a life.

[@blackpalacemusic]

Almost like it was engineered to cull the herd.

[@jrrarglblarg9241]

@@sigsauer7929 Cite your source

[@truthwarrior2727]

Exactly

[@maryscarpa229]

It’s still here and chronic and people need to be educated about long COVID many people are suffering and it’s terrible and many doctors are not helping the least they could do is be supportive

[@tammyg8031]

The government needs to compensate those individuals 🙄

[@cindybitter8396]

Hospitals are still in crisis - staff shortages, prolonged waiting times in the ED, boarding…

[@eyoung1683]

Why is it okay to talk about this, now? Why was it we could not talk about this before now?? What's up?

[@magnoliaflower3310]

Mainly because it was non-stop on the news for so long. People got tired of hearing about it.

[@Mostly_Harmless99]

About time! Now can we get some serious research and actual help for people suffering with it??

[@ro9831]

I had covid Nov 23, still tired.

[@jill6979]

Get a B12 blood screen, covid completely drained me of it and vitamin D. B12 deficiency can cause body aches, exhustion, etc. Feel better.

[@vidviewer9727]

Yep thanksgiving 2023. Been a mess since

[@mddell24]

I will always think of USA as the slowest learners ever. The "Long COVID" definition applies to the common cold, influenza and many common infections in the world.

[@PyroGothNerd]

Yeah, but that doesn't make headlines, does it? That's what these news stations are looking for.

[@Brett_S_420]

​@@PyroGothNerd Doesn't mean this isn't real.

[@ConnectFork]

It’s vaccine complications. Check the NHS data.

[@katz6582]

You are not wrong.

[@lynettewhite9462]

AMEN!!!

[@reppi8742]

How many "long covid" victims were vaccinated and how many were not?

[@Lacie870]

Not! 4 years later. Shots weren't out but wouldn't have gotten it anyways.

[@Rutabega_NG]

I was wondering how long I would have to scroll before I got to the conspiracy theorists.

[@lillyluna9049]

How ignorant do you have to be to still be calling the known, verified vax-injury a conspiracy? Stop that!

[@reppi8742]

@@Rutabega_NG Seriously? What's the conspiracy? Explain that to me. The CDC and health organizations in countries around the world have lied about their statistics? Research. It's good for the brain. Parroting talking points is not. Namaste

[@reppi8742]

@@Lacie870 the first shots did roll out 4 years ago. With that said, my question wasn't rhetorical. Has the CDC or other comparable health organizations throughout the world compiled this information?

[@PATHAN_writes19]

This long covid ruined my life since 3 years

[@Crazy-Times.]

Long Covid last longer people, I’m still dealing with it after 4 years 🤦‍♀️

[@artificial-stars]

Long covid is also known as a hidden disability now. My aunt has it, she hasn’t gone to work in ages. I feel so bad for her and everyone/anyone else who has this. I really hope your not stuck with it for life :(

[@kikijewell2967]

COVID attacks the circulatory system. So exhaustion is caused by the blood vessels unable to expand to provide oxygen - NO exercise, as this causes a more acute need for oxygen, and can cause deeper damage.

[@gr8dvd]

NO exercise sez who? I’d expect exercise to be a struggle but someone else reported discernible albeit slow improvement with consistent intense exercise (2-1/2yrs).

[@Sweetlyfe]

Yes everyone forgets it’s not just a respiratory illness, but a circulatory system illness.

[@kikijewell2967]

@@gr8dvd says the ME/CFS community that has decades of experience before COVID with viral injuries that cause exhaustion - a condition that medicine has told them for decades was all in their head. I've seen many reports of people who got COVID, were told by their doctor to exercise, and became bedridden because of it - and lots of folks saying, "yeah, the doctors don't know what they're talking about, that happened to me," and that rest is far more important to recover, and they strongly recommended against exercise. It makes sense because if lack of oxygen due to blood vessel damage is the problem, then exercising - _which increases the NEED for oxygen_ - could starve the body of oxygen, which could inhibit healing, and even cause permanent damage, as healing is done in an anaerobic state rather than aerobic state. The thing is that exhaustion is seen as laziness instead of the injury it is - like telling someone with a broken leg they just need to walk on it more. And note that there was a study early on that showed that people who had had COVID had blood vessels that were 25% stiffer/inflexible than those who never had COVID. _And this included people who'd never had symptoms but tested positive!_ Meaning you can even get this injury without realizing it was caused by COVID. So if one day you're suddenly tired without knowing why, and the doctor tells you to do more exercise...you could end up bedridden long term like Physics Girl.

[@kikijewell2967]

@@Sweetlyfe yep. I think of it like polio. Polio symptoms are similar to COVID symptoms - sniffles, fever, flu-like. It's the "long polio" that we think of as polio - the nerve damage. But that's not the symptoms of getting polio. Same for COVID - the real damage comes later and isn't just a continuation of the acute COVID symptoms. That's because what causes the flu-like symptoms is a different mechanism than what causes long covid. Same for polio and "long polio."

[@gr8dvd]

@@kikijewell2967 Thx for info. "ME/CFS community" wasn’t previously familiar, tho should be b/c have chronic fatigue (insomnia) for decades. This rang true too… "exhaustion is seen as laziness instead of the injury it is".

[@TravKidd]

COVID three times, once in December 2019 after a flight before we really knew what it was, again in Sept 2021, ironically after an ER visit for unrelated pain in my side, and again in 2022, relatively mild but I've had fatigue, horrible pain in hands and fingers since then, brain fogginess, migraines, and other symptoms like lack of stamina for long walks or runs since then. I'm lucky I work at home and don't have a very physical job or I'd probably have to be on disability now. I did get all vax and yes it did make it milder the second two times than had I not.

[@persephonewolf]

Im sort of glad , not that people are suffering but that there will be more studies and testing, i got me/cfs plus mcas from epstein bar virus causing mononucleosis when i was a kid. The symptoms never had markers, they were severe and no one was doing any studies on it at the time. This looks like the same constellation of symptoms with a similar trigger. The studies from this could shed more light on a lot of poorly understood illnesses.i wish the people suffering from long covid comfort,and the doctors inspiration.

[@mm-ln9sw]

i have fibromyalgia since before the pandemic, and i got covid before the vaccine came out, i was asymptomatic besides no taste or smell, i did get the first 2 vaccine shots and 1 booster and i’m still fine and i know i am very lucky for that, i’m sorry for those who have developed or worsened conditions as a result of this 😢 i hope they’re able to recover at least a little someday

[@christineellengalbraith2215]

There is a blood test. Dr Bruce Patterson of IncellDX’s 14 cytokine profile blood test, differentiates diagnosis between several chronic fatigue syndromes including acute covid, long covid, ME/CFS, fibroneuralgia and Lyme’s Disease.

[@gr8dvd]

This is very encouraging.

[@ADHJkvsNgsMBbTQe]

Thank you for reporting on science.

[@rohinihyde4766]

I have not been able to walk without a walking aid for the past 30 months. Neurological problems started a few weeks after my first and only jibby - never had covid - could damage be attributed to the wrong cause in many cases?

[@pascalevite1136]

Could you please conduct a survey to compare vaccinated and unvaccinated people hit by long covid, PLEASE?

[@5-waymusic421]

They won’t do it. They can’t reveal the truth

[@pascalevite1136]

@@5-waymusic421 I do know...

[@amdeichgescheitert5779]

@@5-waymusic421 which truth, I know people (in my long hauler group) with serious Me/CFS after Covid that are unvaccinated, I know vaccinated and there are also people who got from the vaccination. btw the unvaccinated are still the majority

[@philrabe910]

I got covid in March of 2020. In May I got a special surprise. And my doctors were and still are like, "meh. You're just getting older. Let's do some tests."

[@signsofplay]

There were no Covid tests in March 2020

[@ace.45-g8e]

I got it 2020 April 7 my brain felt like it was shutting down and inside my skin felt like it had electricity running through i still have symptoms and I’m in shape last heavy bench 335 I do 12 rounds 4 days a week workout 6 days. Every year is a little better which sucks but at least it’s getting there I also know what I went through took a chunk of living years away from me so I’m trying to get everything done faster before my now early time is up. Good luck from 1 long hauler to another.

[@dkamaru]

We typically already have underlying conditions. We can heal thru improving qi-energy circulation, recovering energy balance- water up fire down with qigong, energy yoga.

[@CreativeArtandEnergy]

I have been learning about Hara breathing and breathing into the sides/ kidneys in general. It’s helping me to reset from long term exhaustion.

[@Lucky9_9]

@@dkamaruCan that cure AIDS? Because Covid destroys T cells - your immune system - just like HIV.

[@COOTER18]

A friend of mine is curious as to how many people with "long COVID" are vaccinated vs unvaxed.... 😳

[@AllysaMuller]

I got 2 vaccines (forced on me, and is my biggest regret) and i have chronic long covid with POTS and multiple Autoimmune diseases. I literally cant even stand long enough to make myself food. My life is useless now and i often feel like giving up the fight

[@COOTER18]

@AllysaMuller Sooo sorry to hear that. That's awful. 😕 But, NEVER give up!!!! Look to Jesus and read his word! I will pray for you. 💕

[@socialjusticeworm3820]

Plenty of people on both sides. Long covid was defined and identified in 2020 before the vaccines existed.

[@Labousy]

You worried about Trump's vaccine?

[@COOTER18]

@Labousy Me? NO!!! My friend... I know FOR SURE the Vax is 1000% "SAFE AND EFFECTIVE"!!! 😳🤪🤠🤡🤦🏻‍♂️😆

[@LadyLithias]

I had Covid in November 2022 (confirmed) and again in June 2023 (not confirmed).... My ability to detect smells is at about 9%..... as in every once in a while my nose works, and I usually regret it. But I'm effectively nose-blind since getting covid. Most of the time it's only foul odors that I can detect. Body odor on my students. Manure in my barns. cigarette smoke. Rotten food. The irony, for me, was that the olfactory symptoms were the thing that bothered me the most. First time I had it (after being vaccinated), everything smelled like what I envision Hell would smell. Fire and brimstone. Particularly plastics. They just reeked. Then when I had it the second time, same smell, but I also found that everything tasted like I was eating one of those dry boullion cubes. That and a persistent cough are my only symptoms, but they persist. Wonder if that's Long Covid.

[@Will-j8q1w]

It's possible but could also be related to any medications you might be taking.

[@Echo81Rumple83]

I can't even imagine the lacking ability to smell or taste. My nose is very sensitive like a dog's, which might be an ASD sensory issue, but I think not being able to smell even the worst odor, like an angry skunk outside my window, would cause me so much dysphoric misery.

[@evilsharkey8954]

Have you seen an ENT or a neurologist for it? It might be worth looking into.

[@darrellcook8253]

I lost my hearing in my left eye and now I have to smell out of my ear.

[@InnerGiggles]

I’ve had similar experiences and I was a super smeller. I always wished my sense of smell can decrease a bit. But like you mentioned, I smell all the foul smells. Even if it’s something nice, I smell only the bad parts. Have had Long Haul COVID since October 2021. In addition I have been experiencing heart palpitations, high sensitivities/allergies to nearly everything, chronic fatigue, dizziness, and brain fog. Everything I already had has been amplified, like migraines and sinus issues. But, the cognitive issues are the worst. I have actual pain in my head when trying to add numbers. It’s exhausting.

[@maramclaine830]

Three years. Horrible jab reaction then diagnosed with Delta two weeks after. Totally disabled me. I was a Hospice Death Duola with Hypermobile Ehler Danlos syndrome. Ot acted like a Accelerant for Hypermobile Ehler Danlos, Tethered Spinal Cord and Ménière's disease. There are over 4 million of us on SSDI and Many still waiting

[@CourtneyNoble]

I struggle with fatigue for 4 years and I feel so tired, I still don't know what to do... work has been very hard for me and exercise doesn't help...

[@giraffeelaffey]

longcovid.physio/

[@ArtherAndrumedArtur]

Same thing happening to me.

[@janetpryor1243]

4 years now with Long Covid. Heart, Brain, Liver Nervous System damage is on going

[@InnerGiggles]

Wow. I’m so sorry. I’m going on to year 3 and feels like it’s never going to get better.

[@kelseas5180]

Hugs LC warriors!

[@ArtherAndrumedArtur]

if you permit me sir .would you like to explane to me what is your problem with nervous system ? Thanks

[@cj-bd3ql]

Everyday of my life I will talk about COVID.

[@SpikeJonesTheCr0oked]

Good luck with that

[@sensimania]

I wonder if taking L-glutathione or NAC during the virus helps to prevent long covid (since its primary purpose is to prevent oxidative stress of the cells in the body) 🤔 I know some people saying they took NAC (which generates L-glutathione in the body) when they had the virus and they recovered within a good time frame. They also did not get long covid...

[@kimgriffiths5328]

I took NAC , during covid , with no vaccines and i didnt contact covid , my husband got covid in our same apt and i still didnt get sick

[@sensimania]

@@kimgriffiths5328 Awesome. I wish I knew about NAC back then

[@kimgriffiths5328]

@@sensimania well not to late to grab a bottle to keep on hand , who knows when they are planning another bs lockdown, im hearing Sept or Oct

[@PAPIKen0728]

I have long COVID with 4 systems affected....cerebral, cardiac, respiratory, and vascular. Since January 2021.

[@visamedic]

My question is will insurance now cover its treatment? There’s a clinic in So Cal that’s treating this with success…lasting results, but it’s very expensive.

[@lisay8070]

It’s a post viral syndrome. We get this after lots of viruses. The concept is not new. MCAS has been around for decades, and C19 virus and the C19 shots are creating a situation very similar to that. Its ‘name’ should be more akin to “Spike Protein Syndrome” as that is what the actual offending culprit is.

[@Rickettsia505]

Blood sugars are worse for me since covid. Had to quadruple BP medication dose and add 2 more diabetes medications.

[@KendraEMoyer]

been a licensed nurse over 60 years. sounds a lot like the mononucleosis that was prevalent in the 1970s

[@evilsharkey8954]

Mono is an Epstein-Barr virus, a group notorious for causing long lasting fatigue symptoms and not quite leaving some people.

[@gr8dvd]

Except that seem to run it’s course in months (3-6mos. for me) or 1-2y max. as I recall.

[@down-to-earth-mystery-school]

@@gr8dvdnot for me, I had mono in 2018 and still suffer with daily chronic fatigue

[@lmiller1413]

To me, that is what it feels like

[@poormanagement1722]

Doctors say there’s nothing. I’ve been exhausted with green balls and fluid flowing 4xs a day since February of 2020,unable to focus or accomplish damn near anything. Dr gave me vitamins and antidepressant!

[@Echo81Rumple83]

Get off the SSRIs; you probably do not need it if you've never had depression, and the long-term side affects from that is even worse if you consider yourself a sexual person (it kills the libido drive IIRC).

[@gnostic268]

It's about time!

[@Timothy--vb7rr]

Bravo Sierria!

[@joepaolinelli7696]

We need our Physics Girl back!

[@jprej5836]

How many long covid victims had been vaxxed?

[@KatePuckey]

The turn to app has been invaluable for me

[@Awesomes007]

Thank you all for working on long covid. I’m 4.5 years in and if I’m lucky, and I can recover fully on my own, it will be another 5 years before I’m ok.

[@IMeMineWho]

We now have 2 more variants thanks to the media's practice of moving onto the next hot topic AND people choosing to block out things they do not want to look at and pretend bad things do not exist.

[@Brett_S_420]

I'd say more the anti-vaxxers.

[@123gp1833]

Lost my sense of smell and taste with COVID. 4 1/2 years now. Nothing has helped.

[@Gator777]

Why did all of this happen?

[@KanyaKanya-pj4qe]

Vax injury?

[@ConnectFork]

Obviously.

[@socialjusticeworm3820]

Long covid was identified in 2020 before any vaccine was developed

[@giraffeelaffey]

Unlikely.

[@5-waymusic421]

Honestly, you never know

[@3tI8P-lj2lo]

How do you distinguish this from viral onset asthma? I had Covid in 2023. It took 3 months to fully recover. But if I get the flu it takes me 2 months or more to recover. Viral illnesses always kick off my asthma. The only symtom I have is fatigue, but it's caused by my lung inflammation.

[@gr8dvd]

Another posted this (looks promising as approved in Europe)… IncellDX’s 14 cytokine profile blood test, differentiates diagnosis between several chronic fatigue syndromes including acute covid, long covid, ME/CFS, fibroneuralgia and Lyme’s Disease.

[@laurenparsons6755]

The new definition states that it effects multiple symptoms. Not to downplay asthma- had outgrown it pre Covid and it came back- just hoping to answer your question.

[@jaywalker3087]

I've had it since 2020. It's ruined my life....

[@Good_Trouble]

Same here. March 2020

[@KirisutonoNeko]

What is new about that definition? It sounds like it’s just new that the definition was officially adopted.

[@eyoung1683]

What is new, it seems, is that we are being allowed to talk about things... But why? Why now?

[@ChillPigeons4]

@@eyoung1683There’s been a new Covid wave recently, it’s not a very pretty one, and it has finally seemed to make headlines since everyone’s catching it again.

[@EnjoyingLife2024]

TY for the news report. Several business leaders have pointed out that the economic impact of long COVID sufferers will be felt by society at-large for many years to come. Long COVID victims will require greater healthcare support as they age. Insurance companies must develop actuarial tables specifically for coverage of people with Long COVID. Workforce productivity may decline as more long COVID sufferers are identified. Etc, etc. This will be a continued tragedy that will go on for decades. I'm so very sorry that the news on all this isn't getting better. 😢

[@BeautyPasi-c8v]

This long covid has make my life so difficult. Brain fog, i can't think straight, im forgetting names of people . When talking i quickly forget what we talked about. I can't do job interviews, because even if i prepare for the interview i will forget everything . I am tired of this kind of life. I used so many different hebs , medicine. I was infected by covid three times.

[@5-waymusic421]

Did you get vaxxed?

[@BeautyPasi-c8v]

No i didn't. I get scared because of, I was already having problems with my chest pain. So i didn't get vaccinated.

[@5-waymusic421]

@@BeautyPasi-c8v if you have money look into long covid EAT treatment. It’s only in Japan. There was a great video on KZbin for it, but it got taken down (probably the government) but idk

[@ArtherAndrumedArtur]

same thing happened to me .what the opinion of your doctors if you permit. What did they tell you exactly?

[@BeautyPasi-c8v]

@ArtherAndrumedArtur my doctor said they is no cure for the long covid. But I have to at least 7 hours or more. Get enough sleep. Avoid sweet beverages,stay health . I have been following the instructions. I can see some changes.

[@ventilator98]

I've had LONG COVID so many times now! I have right now! I HATE COVID!!! It's destroyed this already horrible country!

[@moonchild2020]

My daughter only 36,got covid 19 sars,last December and has lost the ability to work,and has permanent heart damage from it..she almost died.Has breathing issues from the heart damage..it's been nine months 😢

[@TITANN-117]

I've had long covid for over 2 years now. I will still occasionally Smell Smoke where there is none, and now when I do catch the common cold I will have a prolonged cough for weeks after I'm better.😢

[@InnerGiggles]

Same. Smoke and sewer gases. Always thinking there’s a leak somewhere.

[@Gigi89427]

@@TITANN-117 check for h phylori ! that smoke smell I had was bleeding ulcers ! iron - ferritin is low

[@alyce6217]

I thought it was a type of post viral syndrome. It presents in ways any post viral syndrome does- it’s different in severity and presentation person to person. My husband had it 15 years ago and it lasted at least 3 months. He’s a physician so couldn’t miss work, so he slept whenever he was home! That was the most weak and tired I’d ever seen him.

[@colorbugoriginals4457]

yup. i've been disabled since 2016 bc my body responds this way to colds. but no colds since then, masking up since that year already. 👍

[@Echo81Rumple83]

I feel like this was something Sis has experienced since she was a kid and never got over. She's 41 and we STILL haven't figured out why she's so damn tired all the time despite tryna sleep enough hours...

[@Lucky9_9]

Covid does a lot. It destroys T cells- like HIV. It destroys epithelial cells- they are the cells that line your blood vessels. It can pass the blood/brain barrier- losing your senses like smell/taste is literal brain damage. It isn't "just from being sick". It actively destroys every major organ. I could list research literature, but KZbin won't let me. Have your husband look up the studies.

[@michaelplunkett5124]

I also am a physician and developed a cold in September. Tested (negative) on day three hoping for a positive to be able to skip fall booster. Cold slowly went away but not really but was chilled to the bone for 3 months. 24/7. Could not stay warm. Severe fatigue. Kept usual exercise up but not myself. Even canceled a ski trip. Brain fog horrible in last part of it. Thought I would have to retire because of the brain fog. We ran every test known and I was perfect on paper. Stayed in bed most of Christmas. Suddenly, after >3 months, it all went away. Totally gone. Went skiing in Alps in February and in Breckenridge in March. I’m eternally grateful but think it will take us years, if ever, to understand this, much less successfully treat it.

[@alyce6217]

@@michaelplunkett5124 wow, that’s really scary! This was around last Christmas? Glad you are not only better- but well enough to hit the slopes! Let me give u a bit of- let’s call it informed consent- about these vaccines. I’m an RN and I work psych/detox for a non profit that has units all over the state. Since the very first vax I witnessed many people have strokes and weird benign tumors within a few months. My husband is a radiologist, he lost a close friend to literally a sudden death heart attack. My husband has seen crap on films like never before, and has said he’s never ever goi to take any other vaccine again. BTW my husband’s friend was in his 40’s and ironically had a full cardiac work up the year before. After boosters I saw young patients again and again with serious depression- it was consistently in 5-6 cases- post stroke and ev one of them had been vaxxed and boosted. I have personally known many people who had serious effects within an HOUR of the vax and not 1 was reported!!!!!! My nurse friend stroked out and was in ICU! My aunts heart stopped! My aunt has a pacemaker because she fortunately hit the ground still at the clinic. I’ve got a sister and another close friend with same f ing cancer that were diagnosed last fall within 3 weeks of eachother! Turbo breast cancers and it’s bad. My friend has been diagnosed and had 3 cancers removed since the first booster. I was there for the breast, and then a couple months later I took her to get a big melanoma that had grown fast on her leg removed. What do these people all have in common? And that’s the tip of the iceberg. A good friend of 20 years is a biomedical patent attorney for the Karalinska institute. All vaccines will be rolling out using this MRNA tech. I’m sure u have seen the studies about how they work. Because I understand the science I REFUSED any vax! Thank God! We have wonderful studies out there explaining reasons for the MRNA vax dangers. They are legitimate and life ending or altering for many people! I just give information to people. I’m the only nurse I know that gives/gets informed consent to patients anymore! Your body your choice, just know risks outweigh benefits. Plus there’s treatments for COVID.

[@Properdoseofinsanity94]

Idk how heart palpitations is not on this list. I get super dizzy out of nowhere, weird circulation issues, feeling out of breath randomly, and more. NAC is the only thing that has significantly helped me.

[@MrSupercar55]

2 years after I had COVID-19, I’m still coughing like crazy from time to time, even though I am no longer infectious. I also still have changes to my sense of smell and taste. Gasoline smells like onions, and diesel smells like garlic. The other day I noticed that some wild flowers randomly smelled like new car smell.

[@AngHemenway]

I got diagnosed 2 years ago and started treatment. I see several specialists. Some treat it very seriously, others are dismissive. Because of this though I found out about a genetic condition I have so hopefully because of that I will see improvements in some of my health issues. I'm so sick of going to the doctor though and meeting my out of pocket on my insurance every year for the last years straight. And getting poked with needles. Really sick of that one.

[@jeffmoodie6144]

So, is it long covid or long shot? I’d be curious to see the stats as to long covid in shot Vs unshot groups. Based on what I have seen, as anecdotal as it may be, I know lots of people who have have many rounds of covid and a few log covid but they all had shots. I haven’t had covid or any side effects due to just not buying into the madness and opting out, as was my right of medical autonomy as unpopular as government made that choice.

[@SweetStuffOnMonarchLane]

They just said in the report that most long covid patients got the virus in the early days before the vaccine was available. 🙄

[@artstrology]

My wife and I had covid for about 6 months and still had the symptoms, pain, exhaustion, and brain fog. we took the Johnson shot, and immediately felt better, but the covid lasted 3 years total. I think the covid is a nasty pervasive bug, that attacks the nerves and at the end of long covid it messes up the digestive and evacuation system nerves,.

[@kelseas5180]

A fellow coworker was infected pre- vax times, she has long covid. I had one vax, maybe 2? I can’t remember lol. But I also have long covid. So it’s really up in the air 🤷‍♀️

[@lynettewhite9462]

Before the so called COVID people died of THE FLU !!!!!

[@edwarddeal3127]

C0vid is Hebrew word spelled backwards(divoc)

[@lambertbane4390]

Brainfog, headpressure, fatigue, chronic fatigue syndrome, chest tightness, pem

[@KIttythaclown420]

I've had it 7 times and battle getting better And it makes it harder to maintain work

[@MyHumanSuit]

I got covid a couple years ago. I'm just now starting to feel better. Could it have been long covid? The doctors are around here don't know anything about anything. You could go to 20 different ones and then I'll tell you it's stress. 🤷

[@ghassenbohli4056]

What lingering symptoms you have

[@KonradCurz3]

Great, so this is why I have felt like rubbish since I had those damn jabs and got Covid, last time I let the government bully me into anything, I am so exhausted constantly, I want to rage and get angry but I can’t generate the energy to do so

[@rebeccaslater1398]

Exactly

[@UTUBE3JC]

I never got the vaccine and basically one time felt a little like I had the flu. BUT, My dad has gotten covid and felt very bad all times and his sense of taste never came back still and it’s been about 2 years

[@Lucky9_9]

Loss of taste is literal brain damage. Covid inflammation harms the olfactory system. I'd link a study but KZbin wont let me. Google it though.

[@MiguelDLewis]

Just getting diagnosed is a struggle. Even if you go through all their tests and rule out any other possibility, they will still not diagnose you, even if they diagnose you with a history of COVID and have a positive blood sample with COVID present.😔

[@miomine3527]

Why dont you make a long cure..

[@cherylkiley6373]

My daughter got Covid in 2022. She had her vaccinations but got them to late to help. We almost lost her. She now has long covid that has affected her chest & back muscles. Coupled with having asthma, her breathing isn't right. She has had several neck injections for pain, which hasn't helped. She has been to 14 different drs. who say she's a puzzle to them cause they don't know how to help her. She went from being a healthy 33 year old to carrying all her medications with her in a plastic walmart bag every day, everywhere. She can only smell horrible smells, & can taste the salt or sauce in foods. But not the actual food. She eats to survive. She is seeing a chiropractor and he provides some relief from pain. She also gets deep tissue massages. She works full time in retail in a very demanding job. She is in constant pain. Im sorry this is so long, but no one around our town, knows how to help her. Meantime, she gets no financial help, other than some insurance, but she's paying alot of it herself.

[@Mau365PP]

4 years and all we got is a "definition". Wow.... progress.... 🤣💀

[@Crux161]

I don’t miss a single booster - and was lucky enough to not get COVID before getting the vaccine.. so it was very different from the people who got it early on. Sometimes I wonder if my sense of smell has changed because some things I kinda just can’t smell anymore? Life is so weird.

[@drunkensquirrel7545]

My husband's sense of smell is now 100% wrecked. Mine returned, but it took many months. Sad that he can't enjoy my perfume or cooking anymore, but we always thank heavens that we're both still alive.

[@Sweetlyfe]

Yes me too, I didn’t get it until April 2023 for the first time, when I flew overseas and I wore a mask but I took it off to eat. Thankfully I had the booster’s too, so I felt rough and stayed in bed it wasn’t as bad as it could of been given I’m an asthmatic. I had been still masking and the work I do it was a requirement, I stupidly didn’t wear a mask this April and I got it off a client who had just flown, and we were in my car daily all day. It hit me a bit harder, both times I get a really tight chest and my asthma plays havoc they are the first symptoms both times and then the next day I get other symptoms as well.

[@drunkensquirrel7545]

@@Sweetlyfe I'm a lifelong asthmatic, and my husband's a Type 1 diabetic for 40+ yrs & just found out he has MGUS. We're still careful to wear masks even though we do get strange looks. Too afraid of another infection & the havoc it might cause.

[@sarahs5340]

I did the same thing you did: It was actually a difficult decision for me. I worked in an administrative department at a local hospital. Our area’s Covid infection rate had just started skyrocketing. At first I was against the shot. Then my coworker came down with Covid and I panicked! I realized that it wasn’t worth the risk since some people react very badly to Covid. It could be a death sentence. I chose to get the vaccine and then got three boosters, including the last booster I got only eight months ago. It might seem excessive to some, but this past winter, at a new job/workplace, I had a coworker come down with Covid. She was gone for six weeks. The effects of getting Covid are too great especially some of the lingering symptoms. I’m not sure if the shots have affected my health because I am aging, but it wasn’t worth the risk of reacting badly to a Covid infection as an unvaccinated person. Not an easy decision to make, but ultimately I never got sick from Covid and I never missed work. I have to work to support myself, so it was important that I stay functional.

[@miguelangelo7970]

Jab related...

[@paige7596]

Has anyone else suffered from the eyes burning, dryness, floaters, strains just uncomfortable eye feelings after getting covid? It’s ruining my life man

[@vidviewer9727]

Floaters have gotten bad. Highish eye pressure. Had blurry vision for a while but that got better "so far"

[@rab6453]

Now do a report on the shots that Kansas is sueing phyzer over the side affects ,was it covid or was it the shots ? In november of 2019 my wife and i both had covid she recovered i did not ,i still have long haul syptoms ,now COPD ,emphasema ,no energy ,

[@Lucky9_9]

The thing is, Covid is extremely dangerous. 10%-30% of non-hospitalized Covid cases and 50%-70% of hospitalized Covid cases develop long covid. The risk is estimated at 10%-20% even in vaccinated people. The risk of developing long covid increases substantially after every infection. By the time you have been infected ~7 times, it is statistically unlikely that you do not have long covid. The ONLY way you can protect yourself is to wear a mask respirator mask- N95 or KN95. Vaccine alone does not protect you.

[@evilsharkey8954]

Unless you lived in Wuhan, China, you did not have covid in November of 2019. You had that something else. There was an awful cold with a persistent cough that was making the rounds in fall of 2019, but it was just a cold, not insanely contagious, and not killing otherwise healthy people.

[@vidviewer9727]

​@@evilsharkey8954 that's not factual

[@jackdhillic7400]

Is long COVID related to TDS?

[@cev12]

The pandemic still exists. An early study showed that mice who were infected with Covid-19 ten times, all died... will that hold true for humans too?

[@sigsauer7929]

You got infected confused with booster shots.

[@jrrarglblarg9241]

@@sigsauer7929 Your antiscientific assertion is objectively pro-virus. Don’t be an enemy of humanity.

[@evilsharkey8954]

A mouse doesn’t live very long, anyway.

[@beggerking]

i just got covid.. .work remotely and i had all vaccines... only place i went the last few days was gym .. i think i got it in the steam room because that was the only place i couldn't wear a mask yes the pandemic still going on

[@cev12]

@@beggerking Sucks... at least you tried to avoid it. Feel better. And thanks for being a decent human being.