Lorraine Johnson, JD, MBA: Presentation on MyLymeData Highlights

[@l.tallmadge6536]

My heart goes out to all of us with Lyme. I still am so sad about all of us who were told it is all in my head.

[@lindalane7341]

However, I was still denied standard or care for late stage Lyme which is IV antibiotics.

[@CaponeCabin]

I have excellent insurance and still am fighting with Doctors to get a diagnosis

[@lindalane7341]

Because doctors are reluctant to diagnose or treat it as they say antibiotics are overused, and commonly misdiagnosis as virus or flu. Mine was virus. I was even left over a year with meningitis. ERs still refuse to test for Lyme. I went to 3 different ER s several times , several doctors. We need changes. It also passes in utero.

[@lindalane7341]

I was purposely denied testing as discrimination. I immediately tested positive when I finally found a medical professional who ran test.

[@foryou9134]

Linda Lane

[@foryou9134]

LYME is pandemic! They won't tell you that.

[@lindalane7341]

Oxygen or hypobaric oxygen chambers are supposed to be good but no access.

[@lindalane7341]

Discrimination as two of my doctors said they were not going to waist Masshealth money even though I had a known tick attachment.

[@lindalane7341]

Genocide for woman, because I left an abusive marriage and was on temporary assistance. I was denied timely diagnose and proper treatment.