Maya Kowalski's Conversion Disorder Theory | 'Take Care of Maya' Trial

[@CourtTV]

Catch up on the FACTS here: www.courttv.com/tag/maya-kowalski/?

[@shelanjaypreston2072]

I was diagnosed with fibromyalgia by doctor . I went to hospital and I was diagnosed with costercondritus and told it was part of fibromyalgia. Then I saw another doctor months later and was told that fibromyalgia doesn't exist . I know this is far from being on the pain level of complex regional pain syndrome but my pain was excruciating. I could not push myself up from laying down I had to roll off my bed each day to go to work. My argument here is only the person in pain knows how much pain they experience. I had it for over 2 years and used ibroprophen cream and tablets . These caused kidney disease. Every now and again I flare up with the nonexistent conditions. Some doctors believe they are almost omnipotent. They believe if you are not rolling round writhing you are fine. My heart goes out to all whom have the worst pain ever .

[@NurseSue425]

I have fibromyalgia. My pain is daily since 1994. It’s all over pain head to toe. Mostly in my legs and low back but it is all over. Some days aren’t too bad some I am so fatigued and in pain I can’t do hardly anything. I had same kinda treatment by some crappy doctors. . But I do take Vicodin around the clock which helps greatly. I know costrochondritis is painful and can be mistaken occas for heart attack. Fibromyalgia is generalized all over pain plus fatigue and a bunch of other weird stiffness etc. if your pain is just in chest wall I’m doubting fibromyalgia. If I were you I’d go to a rheumatologist. Believe me it’s hard to find a good one. They are usually best diagnosticians for hard to pinpoint pain.

[@NurseSue425]

The other reason you should see rheumatologist is because costrochondritis is sometime symptom of lupus. I think a two years of chest wall pain is along time. I wish you luck. Be careful with dose Motrin

[@Angelamb1987]

I have Lyme disease and had rocky mountain spotted fever. It showed on my test results and I was sent to an infectious disease dr. She had never treated a tickborne illness and called the game department to ask if it existed in the area. For some reason they told her no so she told me there was nothing wrong with me although I literally had the results in my hand. I was so sick I thought I was going to die. They also didn't contact CDC about it which they're required to. Apparently that's part of the problem. It's not getting reported so Drs don't realize it's such a problem. I was a taxidermist and got a lot of business. I would say a good 30% had a tickborne illness. Funny thing was my dog got sick around that time and I took him to the vet. He was immediately diagnosed with Lyme and a co infection and we started treatment right away. My dog got better care than I did... It's difficult dealing with Drs who think you're a hypochondriac. I feel for anyone who has gone through this. The stress that these Drs cause usually causes flare ups and makes our symptoms worse.

[@msc8663]

I'm sorry for your pain. Bless you.💕

[@shelanjaypreston2072]

@@NurseSue425 my pain when in flare up is in collarbone,breast bone ribs,elbows wrists, shoulders, fingers the slightest touch or brush of my affected areas is so painful . It is such an insult to be told that fibromyalgia doesn't exist. Yes I thought I was having a heart attack when I had costercondritus . It was supposed to clear up in 6 weeks , I had it for 2 years .

[@sonyaparkin7841]

God help you if you’re a little kid in severe pain and the docs don’t believe you - poor Maya 😔

[@joech1065]

“It wasn't CRPS” “Name one diagnosic criteria for CRPS” “I can't” This case takes medical gaslighting to new levels. If you have a rare disease with unusual symptoms, and selection bias creeps up in your medical records, you enter a Twilling Zone episode on the medical system as the main hero.

[@sunshine22723]

There are criterias and pain all over the body isn't one of them.

[@jlob5296]

When asked to describe symptoms and criteria for conversion disorder, she couldn’t recall. But for CRPS she managed to recall. So for the diagnosis she supported and her medical documentation, she can’t remember anything. But for the one she didn’t support, she remembers things. This is making no sense. I feel terrible that the hospital is parading these providers as pawns in defending a mistake

[@sarahshaw5749]

Didn’t even know the definition of allodynia.

[@joech1065]

@@sunshine22723 Can you explain to me the pathology or the mechanism of action of CRPS and why that is not possible? Even if we were to look at the criteria for the disease -- and those criteria can change as our understanding of it changes -- even there I don't see anywhere that it must be confined to one part. To the contrary, we have there criteria like “unexplained diffuse pain” (in Velderman criteria). It seems almost as if it is some Johns Hopkins PR talking point to latch onto “regional” in the name. But CRPS was previously known as RSD, and causalgia before, and it might have some other name in the future, as understanding improves, so that is kinda like arguying that you're faking a Swine Flu because you don't have a pig tail.

[@SinkFla]

a doctor who treated THOUSANDS of CRPS is positive and testified to it Maya Kowalski’s symptoms, nothing showed she had CRPS

[@Kirsten_is_cursed10]

They literally BILLLED THE INSURANCE FOR CRPS. How on earth do they expect to defend themselves? Absolute insanity

[@destroyingtheworksofthedev9349]

No they actually didn't bill the entire 600K for just CRPS, it was an itemized bill that had a multitude of items that totaled that amount. That was on Friday I believe.

[@shelanjaypreston2072]

By claiming that they only offer the same care irrespective whether it was CRPS, Conversion or facticious Disorder. However, this is still falsely claiming for a diagnosis that they did not believe the child had. As the claims dept head pointed out that the insurance company had vetted them multi times re coding, so in reality to their own witness they had multi times in the latter months to change the code to the diagnosis they claimed she had. I think they were just edging their Betts , as they did so right til up to last week. Surely it doesn't take more than 3months to change billing codes.

[@shelanjaypreston2072]

@@destroyingtheworksofthedev9349 they wouldn't say how much they had charged for it though. Plus they are on a good thing putting her in a specialised ward rather than just a general one because the bed per head costs reflect this too.

[@aaronmurdoch7362]

That was the part that really blew my mind. Ridiculous!!!

[@11aauser]

⁠@@aaronmurdoch7362 “the part of the documentary on Netflix “? Because if you watched the trial the said again and again that they treated her for that. Everything they did to her is the SAME treatment that they now offer to patients in the CRPS program

[@Mickeyflowerz]

Smh. I also was diagnosed at a young age. Just because you can tolerate something one day doesn’t mean you can another! The drs don’t even know what to expect tomorrow. They try to treat symptoms. That’s it. There is no cure yet. Distraction is one of the few ways of coping. They need to relax on that. Strength is there, but so is the pain.

[@AlohaNLight2All]

My son had myositis and it is very painful and prolongs. I really do feel for Maya and her family. Not all disabilities can be seen.

[@rachelb4235]

This lady was out of residency 1 month and can't name symptoms without looking but felt she was more informed than other people who had seen Maya? You can see from the videos that Maya couldn't move normally. What in the absolute lunacy! These doctors need to be fired.

[@jennifersantos7307]

Literally dismissing doctors who had been dealing with cprs for YEARS & who had been treating maya for years it’s like this hospital hired the most arrogant self righteous bullies they could find

[@GetSicRiCH]

40:31 *_”In patients with significant pain, in general, they are not able to stop crying in order to answer questions.”_* - Dr. Elizabeth Byrne ↑ that is pure bull honk quackery 🚨

[@Naheenmather]

As an indigenous woman with generational trauma related to separation of mother and child is incredibly disastrous. This will last generations if they are lucky. Family assessment isn’t something that happens in United States. We aren’t that evolved. Individual health should always include the family and removal should always include reunification care on the continuum of care. I can see how this happens in our healthcare system.

[@Ieezeca]

Family assessment absolutely does happen in the US-in fact it's one of the factors that must be in the treatment plan in order to bill most insurances. It would be useless to treat a child with a mental disorder and not involve the family. I'll tell you that it's real hard to make that happen, parents will often pull their children from therapy until it's court ordered. It must not be a hospital standard though, and I'll guarantee there are loopholes for different agencies.

[@Ieezeca]

And I will tell you that separation was always taught to me as a last resort because it causes the most long-term devastation to the most people, as it usually results in someone dying and someone going to jail in any number of different family combinations. I never 100% believed that until seeing this unfold. I have never worked with children's staff so grandiose and arrogant and unconcerned about children.

[@fjbffb2141]

@@Ieezeca unless you live in a state that allows minors to get puberty blockers/surgery without parental consent..taxpayers are burdened with the cost

[@Ieezeca]

@@fjbffb2141 Of what? I may be missing your point but do you know more people own turtles as pets than there are actual transgendered people? The % is miniscule, there aren't any Drs. performing surgeries on preteens, and it's all a distraction from other huge things like missing indigenous woman and trafficking. It's 3% of the population, we don't need to be in their business-we're not living it. The amount paid for the meds by us as a collective is insignificant and I bet you pay much more $ for much more offensive things. I wonder how much you pay to keep kids who don't need it on adderall or methadone. We've all paid to endlessly bomb Syria and supply all the world's fighting military. Thanks to fox news people think drag queens are rapists, every 11 year old is transitioning to the opposite sex, we all need guns to defend our own children from the homosexuals as we trash their future. It's a distraction from the real harm. Hopefully, i just interpreted you wrong.

[@t.l.1610]

@naheenrobinson5926 Spot on. And I’m so sorry about what you & your family have endured. ‘60’s scoop’ in both US & Canada has gotten a little coverage in recent years - but it’s not even close to enough. Downright criminal state sponsored abuse. When I bring it up now maybe 1 in 5 people knows anything about it.

[@angelal7068]

This Dr had no idea what she was doing. She couldn’t even tell you a symptom of crps yet she was sure Maya didn’t have it 🙄

[@Gabriel-hf1yy]

Yea im shocked at these doctors and nurses they seem to act different when the plaintiff is asking the questions.. they kinda act dumb... but these people are intelligent people....

[@twocents7495]

She knows what normal is.

[@usakiwi1986]

I was diagnosed with GBS in 2016, I was paralyzed and spent months in the hospital with OT and PT, At PT they tried to distract my mind and were able to get me to move a bit more. Not to say I was fine or lying, shame on them for treating Maya that way and her parents

[@glynn2023]

I am sorry you were in that situation and pray for your recovery! Please listen to the podcast “nobody should believe me” and then let us know what you think , they cover more than what you heard in the trial…

[@BoringTroublemaker]

My husband was hospitalized for months (two stays of a couple of months each) over 6 months with toxic encephalopathy where he couldn’t feed himself or even recognize me, and ended up in a medically induced coma. I BEGGED them and then finally demanded they test him for bismuth toxicity due to the amounts of an over the counter medication he had been taking and some research I had done regarding his condition. When the test result came back, his levels were higher than the Poison Control testing limits could read. He was treated for heavy metal poisoning and is fully recovered, but it was a traumatizing time. When I was looking through his medical records, the were several doctors who had written that they believed it was some form of conversion disorder. I was f***king furious. I still am.

[@GetSicRiCH]

Conversion Disorder used to be called hysteria. Patients and their caregivers, their families and loved ones, know a lot about what is going on. In my experience, more than not, doctors do not take this into consideration.

[@GetSicRiCH]

SOo happy for you and your husband that he is recovered. Prayers continuing…. ♿︎℞𓂀

[@MarciaDurkee-pk7sx]

Whoa this doctor made alot of " noise" about a condition she's completely ignorant about.

[@MarciaDurkee-pk7sx]

That makes her dangerous to patients.

[@jennifersantos7307]

Once her mother was accused with munchausen by proxy that was it every doctor at this hospital said maya was lying it didn’t matter what maya said or presented she could of been in the fetal position sweating visibly in pain & they would have accused her of lying once one doctor came up with that it spread like wild fire gang mentality they all gained up and bullied this lil girl & her family

[@debi909]

She makes no sense to me and appears like someone getting caught lying or trying to lie. I have Temporal Lobe Epilepsy from being run over by a car when younger. When I don't feel well sometimes I try my best Not to show 'if I can help it' how I feel. Sadly you get used of it, don't want to bother anyone or No One Will Believe You/me 😔🙏🏼

[@GetSicRiCH]

🙏💖✨

[@mad_scadd89]

“I charted everything.” What about babinski reaction? “I did not chart her physical reaction to the babinski test.”

[@carriekennedy5903]

The thing no one is clearly saying is Maya and her mother were literally following doctors orders. The did not rely solely on ketamine infusions. Doctors seem to forget that complex pain disorders are not the same for every patient. These treatments were for flares and were being done under supervision. It’s not like Beata was getting street ketamine doing her own thing. Dr Smith completely dismissed the patient history and let her ego take over. The old adage about if you’re holding a hammer everything looks like a nail. It stinks that the jury isn’t getting a full picture of this case but if any jury can see through the JHACH smoke & mirrors it’s “this” jury. I hope the effects of the stress of this trial aren’t too hard on Maya. Chronic pain is something you can’t understand until you go through it. Maya is an absolute warrior for bringing this story to the public. She might not always feel strong physically but she is an inspiration to those of us fighting chronic pain daily.

[@anglophils645]

This whole trial is ridiculous. No matter the child's diagnosis or treatment, the doctors did not kill the mother; she did that to herself. The mother's emails, and her suicide, indicate that she was a nut.

[@t.l.1610]

@@anglophils645You’re joking right? This entire case highlights the arrogance & mismanagement of pain conditions in medicine. Leaving aside Maya’s mother entirely, there’s also the behavior of the social workers, one of whom had a prior charge for child abuse, sally smith & her complete dismissal of specialists who’s opinions differed - it deserved a lawsuit. Filming a minor toileting without her or her parents knowledge, holding her down & stripping her to take pictures, denying her rosary beads & a crucifix of all things.

[@anoukamina9888]

How come that doctors don't get that there is always a wide spectrum with every disease and that knowing one patient does not mean that they know all patients?!? It is frustrating and really scary to see all these medical trained persons being so uninformed thinking that their opinion is more accurate then diagnosis by experts, the patient's pain etc.?!?

[@dawnatkinson7704]

Doctors like this are so unhelpful frankly. I have suffered with chronic pain for 18 years and am now at the stage i am ready to end it all. And many, many of us commit suicide. Those very same people i guarantee you dealt with doctors who were dismissive of their pain. Its really sad and so misunderstood.

[@SinkFla]

I’m sorry for what you went through. And listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. also, Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@emotionalsupportpaintbrush]

God bless you. I have crps. I see you. Thanks for your comment

[@jennifergannuscio6086]

HUGE HUGS🌹!

[@pandayy8865]

So sorry to hear that, if it helps, imagine that pain is just energies that pass through the body just keep inhale and exhale to relax. My mom has chronic pain as well, it helps her a little.

[@GetSicRiCH]

it is _impossible_ for anyone to understand what it feels like to live in severe pain on a daily basis. My heart goes out to you, sister. i am there with you, knowing your affliction. We are being left behind…. to die. The weakest of the weakest, the disabled people, we are being forgotten about, thrown to the wolves. The addicts are getting their lime light in the Opioid Crisis. But the real suffrage, _the real crisis,_ is in the chronic pain patients’ plight. We are quiet. We are weak. We are hurting. And the government nor the media nor the medical industry…. They do not care about us. We are dropping like flies…. Swatted by the very ones who were sworn to protect us. 𓄰 𓂀℞ ♿︎

[@primo1331]

I hope this family gets 2 billion dollars from this unethical company and these hopefully soon to be unemployed doctors...

[@maryem8263]

Wow. I’m happy Maya won and I hope she can move on and make new memories and live a good life. RIP to her strong and smart mother.

[@susanbrown4137]

Do drs realise that people with long term chronic pain can still move and often have a strong pain tolerance due to the constant level of pain. Even people with cancer in serious pain can move.

[@deniseweber1339]

Initially I wondered why shebsaid that too but then it sounded like the issue - as I heard it here - is Maya said she couldn't move body parts and then was observed to move them with full strength and coordination. Also that she would say she had 10 out of 10 pain and not be able to tolerate any touch, even light touch but would go play, be OK with clothes, toys, pillows, blankets etc. touching her body. I still believe she felt pain, and the hospital and cps handled this horribly, but I also think she may have been misdiagnosed with crps. It's going to be interesting to see what the jury says.

[@GetSicRiCH]

it is _impossible_ for *anyone* to understand what it feels like to live in severe pain on a daily basis… unless they themselves are experiencing it.

[@faithwagoner9203]

I'm a senior & has to push myself out bed w/ weak arms when I had pinched nerve lower back.

[@GetSicRiCH]

🙏💖✨

[@markbaz]

She had a month of experience at the time of treating Maya. “I’d have to reference the manual” . . . That’s like doing math with a calculator! ! ! 😂 😂 😂 Some of these doctors are OUTRAGEOUS with their “knowledge” & “expertise”. You are almost better off going to a website and typing in your symptoms and get an answer that has NO human emotion or bias attached to it.

[@thatkajunguy8029]

I prefer to use web MD than go sit for a dr thats late for appointments only to be rushed out the exam room to make room for the next sucker..

[@Carolina404ATL]

Are you a doctor yourself? Because to me she sounded competent enough not only to do residency in that hospital and graduate the program but they hired her to be one of their Hospitalist physicians right after passing her final medical board exam.

[@Kirsten_is_cursed10]

Medical. Gaslighting. This is called medical gaslighting.

[@usakiwi1986]

LET'S NOT FORGET THE HOSPITAL BILLED INSURANCE FOR CRPS!!!!

[@alphonsebladergroen619]

This case is as sleazy, if not sleazier; than the Paltrow lawsuit. Thanks to Netflix! 6:49

[@beverlyallison4768]

My sister, has a pain level of seven at all times … at night. Her pain level goes up to a nine. Therefore she takes gabapentin for seven years now…. And she has a physical job she bends she moves freely. She smiles all day because she is used to living in in pain. this case is ridiculous because all they had to do was some test for malingering. And a parental exam for the parents. This didn’t have to linger on for three months plus after three months the judge was still going to put her in foster care. . You don’t take a child unless there’s eminent danger. Meaning the child might die immediately from parental abuse. I you had a perfectly normal father, who would not let the mother kill a child so the case is just ridiculous. If one doctor believes another doctor is giving a child too much medicine that’s when you write the board of examiners and they immediately investigate those issues.. there was no danger to leave the child with her parents and not calls her mental harm while this case is being investigated over a period of months with different doctors

[@jennifersantos7307]

Yeah I was just going to say that like most people with chronic pain have a much higher pain tolerance than people who do not deal with pain all day everyday & they can live normal lives for the most part but when they get flare ups it’s unbearable & they end up in the hospital for pain levels that are at a 10 where we would be in the hospital for a pain level at 4 this whole case is disgusting one doctor believed that maya was lying because of her mother & that instantly spread like a wild fire amongst the staff no matter what maya was presenting they would have come to the conclusion that she was lying just gang mentality

[@jlob5296]

I feel terrible that the hospital is parading these providers around as pawns in defending a mistake. Every single part of the system failed here. They should’ve settled

[@SinkFla]

Beata Kowalski was telling people online and in person that her daughter, Maya, was TERMINAL. listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. it is truly disturbing. Beata Kowalski demanded JHACH to install a INTERTHECAL PUMP into Maya and risk spinal meningitis-a risk that good doctors will only take on terminal patients for that reason. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@SinkFla]

and there wasn’t any billing mistake-Maya and her lawyers misrepresented by only entering the Aetna documents in part, so, they were caught for doing that, and it was revealed to the jury. Beata Kowalski was telling people online and in person that her daughter, Maya, was TERMINAL. listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. it is truly disturbing. Beata Kowalski demanded JHACH to install a INTERTHECAL PUMP into Maya and risk spinal meningitis-a risk that good doctors will only take on terminal patients for that reason. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@faithwagoner9203]

🎯 Smith smirking on stand when she knows Maya lost her mother.. no empathy!! Sad for Dr

[@jennifersantos7307]

I can’t even imagine being in pain like maya being removed from my parents being surveillanced by cameras or by a social worker like Cathy who is creepy & controlling having to urinate / defecate on myself to prove I am lying & any kind of movement I make I must be lying because I am making movement being told I am lying is so crazy

[@Astute-recruit]

Having spoken to many colleagues in medicine and followed this case, There appears to be numerous inconsistencies in Mayas presentation from a medical viewpoint. Addendum: No need for the judgements and negative criticism. I'm not talking about the case, I'm talking about Mayas symptoms! If you have a comment keep it classy. Thanks!

[@chelsea3564]

That has nothing to do with the way she was treated! She was also diagnosed from about 6 different doctors, that have said she has CRSP. I think i would trust people that specialize in her diagnosis, before any of your colleges. 😂

[@meganbaldwin1699]

It’s a terribly complicated case. I see faults on both sides. That being said at this point after watching everyday of this trial I don’t care what Maya has or didn’t have. What this hospital did to this family is unthinkable!

[@daniellealexander7392]

Agreed, but that is completely irrelevant to the charges of this case.

[@jackki6869]

Dr has no e experience, is she even a neurologist specialized in neuromuscular disorders??? Did she see a genetics specialist, tested for malabsorpsion of vitimens/ deficiency,, it takes one close minded, sw and student doc to destroy a child.... she needed a proper dx,, her mom is a nurse... these hospitals f up daily them call deficiency to cover their asses... sickening... my heart aches 4 this gurl... I has MG and it took my drs 20 yes, to find their mistakes,, I suffered alot... but of it...

[@joech1065]

CRPS it not well-understood, so I'm not sure if anybody can know what can or cannot be consistent; we are not even sure about the mechanism of action, let alone being able to tell whether certain symptomatology is congruent with that pathology. To take migraines as an examble. We don't yet have a medical instrument that can measure how big of a headache somebody is having. We have to believe the patient, because the alternative is horrible neglect of somebody's suffering. Cyclic migraines are well-known now. But imagine doctors not believing that somebody is having them, because they are not accustomed to the idea that they can come and do, yet be chronic. Imagine how neglected a patient would feel.

[@jackki6869]

Did she hav MYASTHENIA GRAVIS( Autoimmune neuromuscular disease) and fibromialgia??? Arthritis?? This poor child has suffered physically, and abused mentally..i hope they win this case...

[@jackki6869]

23:36

[@SinkFla]

Beata Kowalski was telling people online and in person that her daughter, Maya, was TERMINAL. listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. it is truly disturbing. Beata Kowalski demanded JHACH to install a INTERTHECAL PUMP into Maya and risk spinal meningitis-a risk that good doctors will only take on terminal patients for that reason. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@Idonotcommentanymore]

Never trust a PhD 100%.

[@TP-jt2cm]

That’s right. Many people tend to trust academic titles almost blindly.

[@t.l.1610]

Every single JH professional who’s testified has displayed an amazing level of ignorance about how chronic pain presents. It’s not just them either. Ridiculous.

[@alexghous]

i am curious.. if a child or human stubbed their toe, and someone started talking to them, is it common for humans to focus on the speaker and not the pain. do you consider this a jedi mind trick or a lack of pain for stubbing your toe?

[@alexghous]

also curious, is it then your assessment that all humans whom stub their toe are not in pain, or specifically Maya? I am still curious. Is it common for folks in the ER to be able to be in great pain and still tell a doctor where it hurts? If you are in pain, but not at a level where you are incognizant of events around you, doctors, family, friends... the fact that you can speak to them, is clear evidence they are not in pain? It is odd, because I consider being incognizant due to pain a requirement for level 10 pain. Where you consider the lack of it, to be a lack of pain. so what you are actually saying is, that you refuse to treat anything less than a 10? There is no pain between 1 and 9? An 8 for me, being where I can vomit from pain. Vomiting from pain is not a high enough level to be treated by you?

[@alexghous]

do you know what comes after 10? what symptoms present?

[@alexghous]

have you ever experienced a level 10 pain where you were incognizant? Is it then your assessment, that most medical doctors are like little children, telling other little children about sex, when they have never experienced it themselves?

[@bodhi1462]

I don't care what maya or her mother did or didn't do, they didn't deserve this. Like her lawyer said, they need to be child welfare INVESTIGATORS, not child welfare PROSECUTORS. they were the ones abusing her!

[@GetSicRiCH]

*_….it is possible to distract from pain._* *Thank God*! 🙌✨ Chronic Pain fluctuates drastically. How people react to long term severe pain varies…. from time to time…. from moment to moment. The most difficult thing happening right now is that people in power, _who have never experienced pain before,_ are making judgements and decisions on patients’ pain management. This includes doctors, pharmacists, even secretaries, but on a larger scale, it’s the CDC and DEA who are on a mission to establish and enforce the *_Opioid Epidemic._* Addiction for addicts is one thing. But people in chronic pain, disabled people, are _not_ the problem. _The Disabled _*_ARE ViCTiMS_*_ of the problem._ The disabled people are being left behind, forgotten, shamed and blamed, ignored, mistreated, and literally now, left to die. F☆Ck “Conversion Disorder” and, really, any kind of pain “disorder”. If a person is experiencing _physical_ pain, there is usually a _physical_ reason. Prayers for all the hurting people. ♿︎ This is a human rights issue. 🙏

[@bearbait7405]

Amazing how physicians/administrators/risk managers use “distracting” injury to save them when they are negligent with multi-trauma patients, but “distractable,” documentation to denote conversion disorder or functional movement disorder.

[@shannnonbinford7969]

I'll never take my kids to LCH. I live in Illinois and I would rather go out of state then deal with this hospital.

[@usakiwi1986]

My Drs gave me my pain meds about 30 minutes prior to PT

[@usakiwi1986]

I remember wearing dress pants and the feeling on my skin on my legs was so painful and same with trying to shower

[@GetSicRiCH]

🙏💖✨

[@rayannab2314]

Was her muscle strength in question? I thought this was about pain, not strength?

[@deniseweber1339]

They discussed that Maya would state she couldn't move and didn't have control over her muscles but then would be observed moving with good strength and coordination and in a manner not matching the level of pain she had stated she was experiencing.

[@beverlyallison4768]

@@deniseweber1339. Movement and strength does not indicate the amount of pain. My sister has a pain level of seven at all times and at night it can go to an eight or nine and she hast to take gabapentin for it.. she is 41 years old and has been like this for seven years now it is miserable but guess what she smiles she walks freely. She has strength and has a physical job, but she is in pain..

[@marytesta3003]

Connected. There is no pain till it hits the brain. Typically, severe pain causes some weakness. Not always but very often.

[@ladygreenlife]

Could someone please tell me where this esteemed Dr is now? I want to avoid that state altogether! Thank you!

[@GetSicRiCH]

Florida.

[@ladygreenlife]

@@GetSicRiCH Good grief!

[@MichelleEskew]

That smart joint factor is. I got skin tear. Phycology factors are. Work slow easy and as long as you can. A mom do.

[@pepperprovasnik]

Unwitnessed.. she was put in a room with cameras secretly. They moved the toilet away from her and a phone that they would call to see if she would answer. Bastards

[@MarciaDurkee-pk7sx]

Yes which is unbelievable since maya,was " a fall risk"

[@reidnlorikincaid9683]

The people who worked for this hospital were people who had put in incredible TIME AND MONEY, years of their lives, training to take care of seriously ill children. These people are motivated to lie, harm, disable children, or damage their families??? Do you understand that these are people who have trained for years to try to help children???? THEY HAD NO MOTIVE to HARM MAYA OR HER FAMILY. They were acting as COURT MANDATED REPORTERS to report suspicions they had regarding possible child abuse, which clearly existed with Maya, as many of her providers doubted her diagnosis, and were very uncomfortable with the treatment her parents were relentlessly pushing for. THESE PEOPLE WERE NEVER SEEKING TO DESTROY THIS FAMILY. THESE PROFESSIONALS WERE INSTEAD PUTTING THEMSELVES ON THE LINE, TRYING, IN THEIR VIEW, TO PROTECT THIS CHILD. Get down off of your armchair high horses and think critically for a second. Why would all these good people who have spent their careers trying to care for gravely ill children and their families suddenly change into soul sucking, incompetent, evil beasts when it came to Maya and her family? There was NO MALICE. I'm not God. Were they right, or not? Who knows. It's very muddy whether she ever even had this syndrome or not. Reasonable people, highly trained medical professionals, can even obviously disagree. It's all clear as mud. But understand, these professionals are working in incredibly difficult circumstances, trying to do their best for their patients and families!!! Don't believe that? Then keep your children at home and employ your crystals, and voodoo cards the next time they develop an infection, or horrible pain syndrome, and spare us all, especially your children's MEDICAL providers, your obviously supreme sense of all knowing sense of self righteousness. EVERYONE LOST THE DAY6 BEATA CHOSE TO TAKE HER LIFE, INCLUDING ALL THESE PROFESSIONALS WHO WAKE UP EARLY AND STAY LATE, giving up precious time with their own families in order to better serve other children and their families because they are dedicated to the children they care for day in, and day out. The EASY PATH, would have been to do whatever the Kowalski's wanted them to do. Less documentation. Less litigation. Less NOISE. Did they do that? NO! They took the hard route. The route THEY felt was best for a child viewed as vulnerable, and likely a victim of child abuse. But you know better, right? Nail them to the wall, right? And then complain, COMPLAIN, MOAN, and scream, when NO ONE WILL ADMIT YOUR CHILD TO THE HOSPITAL for uncontrolled, inexplicable pain because the risk of litigation is too high. I wouldn't touch your kid with a 10 foot pole, but then they are better people than me.

[@marytesta3003]

What would you do to see if your kid was faking something? I'm glad the family won, but I think this little gal knew what she was doing for attention, and I bet she is manipulative as an adult. I think some things she claimed were not factual. But it doesn't excuse John Hopkins or the judge who determined it was abuse not doing further investigation 1st. They clearly dropped the ball, but also likely saved this girls life.

[@anunciata]

A functional neurological disorder ("conversion disorder") is very likely in this case with the absence of objectifiable symptoms and signs. I think this doctor is right.

[@Annasgardenparty]

Me too. Also a lot of people on the internet commenters are projecting their own illnesses into this case: ie “. I have CRPS etc, therefore Maya must win and the hospital is the devil incarnate”

[@Prin_Cess_007]

No, absence of an obvious physical reason, not symptoms. It is neurological because There is disconnect between the brain and the limbs. Pain is not actually felt in the body it’s felt in the brain. More and more is being understood about the body’s connection to the brain.

[@marytesta3003]

I agree not as a medical professional at all, but so many of these disorders have cross-over symptoms. Pain is very hard to quantify.

[@GetSicRiCH]

More and more is being _hypothesized_ about pain, but the truth will be revealed in time.

[@melanysmith3023]

The took away her parents , her pain medicine, put her on Haldol and then judged her behaivor its sickening

[@msc8663]

The questions are Bing answered by her writing statement. Expensive double talk.

[@SinkFla]

sure, couldn’t be that she’s an educated medical professional

[@bon9410]

I get so angry listening to these people who clearly seem not to believe Maya and discount her previous diagnosis by qualified doctors. Chronic pain varies in each patient. Body strength does not determine her pain levels. Many doctors clearly have bias when it comes to patients with chronic pain. The worst thing you can do is treat them like the caregivers of Maya did. Just to note, amputees can suffer excruciating pain even though the limb is gone. People with fibromyalgia and many conditions that are using pain medications are often judged as drug seekers. This is so damaging to people who struggle everyday to have the best life they can. My heart goes out to Maya and her family for all the pain both physical and emotional inflicted on her and her family.

[@PennyxXxDreadful]

I'm not sure I would call doctors like Kirkpatrick and Hanna qualified. Those who don't believe she has CRPS aren't saying she doesn't experience pain, just that it stems from a psychological place and is exacerbated by her mother. Are we supposed to pretend that never happens? Personally, I'm angry watching people demonize mental illness and argue this case like it's an attack on chronic pain. No one is saying chronic pain doesn't exist and that it isn't oft overlooked in medical settings. They're saying, given the evidence we've been presented, they don't think that's the case here.

[@Ehday294]

Maya’s family went to 3 dozen other qualified doctors before they got to Dr. Kirkpatrick, an ANESTHESIOLOGIST, who runs a pain clinic. He specializes in one thing. They went to him after going to over 30 other doctors. They didn’t get the answers they wanted until this one guy. It’s this obsession with the opinion of Dr Kirkpatrick over 30 others that is disregarding the opinions of prior qualified doctors. But you didn’t know that because the documentary chose not to include a LOT of relevant information.

[@libertyna933]

Omgosh the court ordered and sent her to a specialist in Rhode Island. An independent specialist in crps diagnosed her there. Beata was sent to a court ordered psychologist and she was not suffering from MBP.

[@GetSicRiCH]

No one can comprehend what severe chronic pain feels like unless they have experienced it themselves. If someone is in real physical pain, there is a real physical reason.

[@bon9410]

@@GetSicRiCH Not always. Chronic pain can begin after a severe trauma altering a persons brain and neurological response to pain. The pain is very real even though the event seems resolved. For example following chemotherapy and radiation treatments. Even though the patient no longer has cancer , they continue to have chronic pain for a lifetime.

[@lainemeadows]

This is a very competent doctor. I am a psychiatric nurse and her conclusions are spot on, her consult requests were appropriate as were her recommendations for treatment.

[@lealovesthesea]

Really? She hadn’t the experience to dx Conversation Disorder. She makes assumptions re: the child’s ability gather herself to answer questions. Etc, etc.

[@Ieezeca]

​@@lealovesthesea Agree with you-she couldn't define conversion or pronounce ideaology- I have never seen a more self-aggrandizing set of Drs. Working with Children. I would have reported several people in this case. The did try a lot of the correct measures/SOP but interpreted so much inappropriately.

[@GetSicRiCH]

Conversion Disorder used to be called hysteria. Maya said on the stand that she is still in chronic pain. Real physical pain means there is really something physically wrong. Too many doctors these days are denying patients’ pain reality.

[@missyette]

Is this a repost? Cause im pretty sure i watched this the other day?

[@lesw3803]

Yes, this is just a clip

[@dianalibster796]

I only wish doctors and nurses cared this much when I or my friends or family went to see them. I think you all are out of your minds. You can’t make someone commit suicide. Did her mom think this was the best way to care for maya for the rest of her life? Let dad handle this mess? The family is a mess. Trying to score.

[@brendamatafahi7834]

Are we going to ignore the fact that she has been well without ketamine?

[@jldowland]

the ketemine coma is a reset that helps the body to heal. it can be used for chronic pain. bit rhe relief she got from the original ketamjne coma therapy lasted a full year before she had a relapse.

[@robertokeefe2357]

We’re going to need a bigger jail ..

[@usakiwi1986]

I had a neuroological optomitrist

[@kmaj9767]

How is this person a doctor is beyond me. Lack of organic ethiology, how she drew this conclusion? Yet, she PT/OT - for what if there is no problem?

[@marytesta3003]

All she said basically was that there weren't textbook reasons for her complaints, so let's see if PT/OT and a psychological evaluation will help make a determination. This doctor didn't discount anything. She absolutely made the right recommendation. But a 9/10 year old ordered her mother to buy a ticket to Florida. As I posted elsewhere, John Hopkins made terrible decisions handling it. On the other hand, this child would be dead had they continued that wacky Mexico treatment. And had it been child abuse and didn't do anything, this family would still be suing. I just hope this young lady can move forward and use some of her 261 million to advocate for other families. Advocate for better protocols. Kids die every day from ignored abuse.

[@Knitswitty]

My opinion: Maya was pre-programmed by her mother. Maya is a victim of her mother's mental illness and her father's delusional push the monkey on the back's of the hospital. He was complacent and mostly unplugged from his child being abused because the mother's illness is confusing showing lots of love and care while all along she's destroying her child. Even though he admitted to his wife's bad judgment a time or two. I also believe the mother saw her own demise unfolding to be shown in the light then ended hers to avoid accountability of what she has done. Maya is a victim of child abuse in many many ways. By the way, 250 plus millions of dollars can make folks say most anything to get the money they think they deserve. Not only did the father unplug from his child he unplugged from his wife. His Gerber baby hair cut tells a little bit of his persona. Maya deserves justice, the truth is part of that. I believe her father should pay for his daughter's rehabilitation of abuse. Her poor mind is so distorted, she’s going to need tons of psychiatric help to make it in this cruel world. As if her parents haven’t done enough to contribute to that. Just one more thing, Maya is a brilliant child. I pray she becomes well enough and able to help children in these situations.

[@toni3901]

Exactly!!, Sally Smith paid 2.5 million to the family, also I know Netflix paid them for the documentary. The father is retired. I wonder who else could they be suing. A judge placed the court order, not the hospital. They were ready to transfer her to another hospital. This reminds me of this case where the mother was who had this disorder doctor shopping with her daughter. SMH

[@melanysmith3023]

Maya still has crps and her mother has been gone, also he mother did what drs told her to so she is innocent

[@destroyingtheworksofthedev9349]

Maya's mother was good intentioned to the point of lunacy - she was neurotic about getting this girl Ketamine, even going to other countries to get it, when she exhausted legal means to get it here, then she hung herself for her son to find her lifeless body hanging from a rope in his own garage. On the other side Dr Sally and Cathy Bedy were just awful women.

[@lealovesthesea]

@@toni3901 ​​⁠1. The only thing that talks in this society when it comes to wrongdoing is money. 1. The only thing that talks in this society when it comes to wrongdoing is money. 2. The judges base their decisions on DCF’s recommendation. They don’t do an independent investigation.

[@toni3901]

@lealovesthesea Exactly!!, waiting for the family lawyer to say the judge made the wrong decision. Since everyone else is wrong. Dr. Hanna, on Friday, he referred to the family to JHAC. I listened to the tape twice

[@usakiwi1986]

No Pediatric Neurologist?????

[@EffSharp]

Ugh it’s painful to watch this lawyer with this witness. He could have used that doctor to establish some great stuff, she did NOT diagnose maya with conversion disorder! She just said she had concerns about it. There was no reason to treat her as a hostile witness.

[@ads2686]

She was a witness called by the defence of course he is going to go after her. she is protecting her fellow doctors who fuxked up

[@MichelleEskew]

You should come out later about pharmacology therapy. I woul like your view without private.

[@lainemeadows]

Conversion disorder does not mean that the child is faking it. It means that the child is experiencing emotional distress that she lacks the ability/awareness/insight or skills to communicate verbally and so the distress manifests itself physically. Perhaps the soothing or response she needs has not been forthcoming in earlier attempts to express for distress but has found soothing responses when physical pain has been communicated. The unconscious mind has seemingly found a way to obtain soothing by converting the emotional distress into something physical. It is not a healthy response but it has worked and been reinforced. This doctor was brave enough to stop reinforcing this maladaptive response. Bravo to her. It is the doctors who continue reinforcing who created the opiate epidemic. It is easier to give patients what they want than it is to do the right thing.

[@lealovesthesea]

🤣

[@Astute-recruit]

Very well said!

[@John-kv7jo]

Maya is a habitual liar and she never had CRPS.

[@toiletresin]

It looks to me like Maya has severe leg pain, regardless of any other issues that may or may not exist, and I would prioritize relieving her leg pain before resorting to time-consuming psychological analyses that would likely not help until and unless she's physically well enough and wants to explore her emotions with a professional therapist. (I think those can be useful as long as the person receives medical care too, but it doesn't make sense to resort first to psychological care when the person is physically unwell and has basic, urgent, unmet medical needs that would necessarily have to get pushed to the backburner by the time and energy required to do a thorough psychological assessment.) I doubt she would have had all of that trauma and drama if they'd given her pain medication at least temporarily so that she wouldn't suffer while awaiting test results and if they'd run more useful physiological tests and controlled her pain before expecting her to use higher mental functions for things like therapy.

[@John-kv7jo]

@@toiletresin Maya is a liar, a deceiver and a faker. She never had CRPS.

[@ange4048]

Given it’s not even called conversion disorder anymore and it’s no longer classed as a mental disorder this doctor is far behind the current understanding of FND or Functional Neurological Disorder I don’t think this doctor should be taken very seriously….. 🙄 some patients can FND triggered as a result of a mental disorder but others it can be a physical reason like after a surgery etc. I started to get symptoms after my 8th surgery, and the trauma to my body and the resulting chronic pain.

[@GetSicRiCH]

Conversion Disorder, or FND…. was originally termed *_hysteria._*

[@GetSicRiCH]

🙏💖✨ Praying for your pain to uplift and your body to heal. i have been in chronic severe pain since an accident in 2010. It is my belief that, for the most part, if a patient is experiencing _physical_ pain, there is a _physical_ reason.

[@usakiwi1986]

Was that the witnesses son saying MOM in the back ground? time 25:03? lol

[@sallymj8957]

So why didn’t the hospital tell the family, and, especially Beata, that Sally Smith had changed her diagnosis. She decided mom did not in fact, have Munchausen with proxy. It was Maya who had a conversion disorder. So rather than telling the family, the hospital continued the way things were. Beata was not allowed to see her daughter for that last of the three months- which very likely would have led to her not committing suicide. Yet the hospital has claimed, they had delivered “life-saving” and “compassionate” care to Maya and her family. LIFE-SAVING? COMPASSIONATE? And the Kowalski family was not their enemy.

[@edw8889]

Mayas mom was unstable.

[@linajams]

Blame falls on both sides, the hospital went too far with separating the family and the Mom clearly had mental issues/was obsessed with the child's real/fake condition IMO

[@WalkandTalk30]

Her daughter was in constant agony, it would be deranged if she wasn’t ‘obsessed’ with her daughters care. It’s called being a good parent. My heart goes out to this family, I hope good things come their way.

[@SinkFla]

the hospital didn’t separate the family, the judge did. it’s all in evidence it wasn’t up to the hospital

[@debi909]

I've been thinking the same👍

[@SinkFla]

@@WalkandTalk30she wasn’t just obsessed-she tried to demand the hospital to install an interthecal pump into Mayas spine- terminal patients with 6 months left to live have those, not children: Beata Kowalski COMA DAY 1-5 emails to herself, a journal account of it wherein she revels in how close her daughter came to death numerous times-read them, it isn’t obsessed, she was seriously mentally ill and that JUDGE who ordered she remain separated from family saved Mayas life. listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. also, Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@divacassandra1]

But they had Sally Smith all up in Maya's records BEFORE she had legal authority@@SinkFla In addition, Dr Major lied in the dependency hearing about the care Maya was receiving, which is off topic but horrendous.

[@deadmanswife3625]

Maya's lesions are back. Stress.

[@wrmlm37]

I am AMAZED at how little those who DON'T work in healthcare, actually know. I wonder if I would make all the same assumptions without the experience I have had...everyone is in their "feelings"...these peoples' jobs are...much, much more complicated by regulations than you will ever realize... I have seen the Netflix show. It was a show, not a documentary, not even remotely. Shame on Netflix. The loss of Beata was the direct result of Beata. I wish the family well. I am curious to see how the Jury understands this. This doctor's testimony is due in large part to her ABSOLUTE need and requirement, to give only testimony she can factually recall-hence her complete and total reliance on her OWN documentation. I am quite certain she vividly recalls this experience-it would be impossible to forget after all the resulting drama.

[@GetSicRiCH]

i am amazed at how many people in the medical industry [and otherwise] are discounting chronic pain patients’ experiences.

[@jackki6869]

Did she have myasthenia gravis, a ms related/ autoimmune- neuromuscular disease????

[@susanyamini]

Oh lord another one that needs her medical license taking away from her.

[@reidnlorikincaid9683]

The people who worked for this hospital were people who had put in incredible TIME AND MONEY, years of their lives, training to take care of seriously ill children. These people are motivated to lie, harm, disable children, or damage their families??? Do you understand that these are people who have trained for years to try to help children???? THEY HAD NO MOTIVE to HARM MAYA OR HER FAMILY. They were acting as COURT MANDATED REPORTERS to report suspicions they had regarding possible child abuse, which clearly existed with Maya, as many of her providers doubted her diagnosis, and were very uncomfortable with the treatment her parents were relentlessly pushing for. THESE PEOPLE WERE NEVER SEEKING TO DESTROY THIS FAMILY. THESE PROFESSIONALS WERE INSTEAD PUTTING THEMSELVES ON THE LINE, TRYING, IN THEIR VIEW, TO PROTECT THIS CHILD. Get down off of your armchair high horses and think critically for a second. Why would all these good people who have spent their careers trying to care for gravely ill children and their families suddenly change into soul sucking, incompetent, evil beasts when it came to Maya and her family? There was NO MALICE. I'm not God. Were they right, or not? Who knows. It's very muddy whether she ever even had this syndrome or not. Reasonable people, highly trained medical professionals, can even obviously disagree. It's all clear as mud. But understand, these professionals are working in incredibly difficult circumstances, trying to do their best for their patients and families!!! Don't believe that? Then keep your children at home and employ your crystals, and voodoo cards the next time they develop an infection, or horrible pain syndrome, and spare us all, especially your children's MEDICAL providers, your obviously supreme sense of all knowing sense of self righteousness. EVERYONE LOST THE DAY6 BEATA CHOSE TO TAKE HER LIFE, INCLUDING ALL THESE PROFESSIONALS WHO WAKE UP EARLY AND STAY LATE, giving up precious time with their own families in order to better serve other children and their families because they are dedicated to the children they care for day in, and day out. The EASY PATH, would have been to do whatever the Kowalski's wanted them to do. Less documentation. Less litigation. Less NOISE. Did they do that? NO! They took the hard route. The route THEY felt was best for a child viewed as vulnerable, and likely a victim of child abuse. But you know better, right? Nail them to the wall, right? And then complain, COMPLAIN, MOAN, and scream, when NO ONE WILL ADMIT YOUR CHILD TO THE HOSPITAL for uncontrolled, inexplicable pain because the risk of litigation is too high. I wouldn't touch your kid with a 10 foot pole, but then they are better people than me.

[@Do-U-Know-me00]

Kid is faking it, probably for her mother's attention. Notice she was sitting up just fine in the chair/wheelchair until her mother started to leave the room, then she slumped over, commenting to her mother that she wasn't supposed to leave. She has plenty of strength one moment and complains the next.

[@sweetds1]

You have to be kidding me?

[@carinabarros135]

Why the hospital bill Maya's insurance as pain syndrome since day one at JH if was not like you said?

[@justsaying318]

Sure, I hope karma doesn't come after you

[@chloesotiriou1646]

And she has CRPS the whole point is that from one day to the next she can have no pain to not being able to walk that is part of the disease u twat!

[@SilentThundersnow]

You clearly have never had a chronic pain disorder. You are what is wrong with compassion in medicine. I hope you never get in a car wreck or suffer a pain disorder that you sometimes are able to push past to do something occasionally that you can't normally do, and then get judged for trying. It's horrific and very isolating. People could get pain relief and actually accomplish more before the FDA decided that pain patients were the cause of the street drug fentanyl deaths. After taking away pain medicine, leaving people suffering, deaths have increased as prescriptions have decreased. Because of people like you, who refuse to believe that people in pain can be believed and that they matter, and that pain changes over time, constantly.

[@annmariemarin5513]

Definitely has conversion disorder. Dozens of doctors agreed something was wrong here.

[@marytesta3003]

I think there are so many inconsistencies in this whole story. However, at times, things aren't easy to diagnose. I think this doctor was honest. She gave her opinion and ordered further evaluation. I believe Maya was in pain, but in every video she presented differently. And I think Maya knew how to play her mother. In my opinion, this doctor referring to RIC was a good idea. I'm certainly am not an expert in any way, but RIC(now Shirley Ryan Institute) does amazing work and likely would have made a diagnosis . But Maya ordered her mom to go to Florida. Kids will be kids, but it sounds to me like she cooperated when she wanted to cooperate. I'm certainly not defending the John Hopkins bunch. But going place to place, including Mexico and demanding a diagnosis and very dangerous medication, does put up a red flag. Moving a child multiple times, going to top medical institutions, and ultimately, Mexico....this family did no favors for this little girl. But JH definitely went the wrong direction big time. And what does Maya do now? She manages her pain. Just like these doctors and therapists recommended all along. PT,OT, art and music therapy, pain management. Not one of the unproven and most dangerous drugs. Maya is likely alive because of the intervention. I just wish her mother had gotten help.

[@toiletresin]

Not an expert either, but I think most people cooperate when they want to cooperate and not when they don't. She may have had an idea of what helped vs. what didn't help and/or made her feel worse, and it may have been very upsetting for her to repeat unhelpful treatments while not being heard by JH staff. I'd only cooperate with unhelpful treatment if I were masochistic, but since I'm not, I'd likely say: "Um, yeah, thanks but no thanks; how about some medical imaging and willingness to listen to the Mexican doctors who actually helped? "If not, then honey, we're gonna end up on COURT TV. "This is your last chance to make this easier on yourself by doing your job and treating my pain appropriately before I get Gregory Anderson all up in your malpractice business. Okay, thanks."

[@babs3652]

The defense's worst witness.

[@JerseyEagle52]

Is this psycho-somatic?

[@John-kv7jo]

No Maya is a liar and a faker. She never had CRPS.

[@Jessica-hk5qt]

Since mum died, Maya had no more ketamine and today is a beautiful healthy girl. With no evidence of CRPS at all, The school nurse was not even aware of any medical history at all. She did unfortunately have an eating disorder hospital admission in 2020; the other kids at her school were concerned as she was not eating. However, she had not had any further evidence of this possible CRPS diagnosis since beata died. CRPS does not present the way maya did, and in fact her mother decided she had CRPS without a doctor, she told dr Kirkpatrick the first visit that was what maya had as a friend had it. Beata was raising money for Mayas ‘CRPS’ and also posting when maya was in a ketamine coma. Not a simple case. Please read a little more before judging. Sally smiths report was not flawed, it was dropped due to the unfortunate death of Beata.

[@lpeacelovefaith9566]

@@Jessica-hk5qt agreed. People need to look further. I have been in the medical field for 35 yrs and this does not look like CRPS. I saw the documentary and the girls actions and reactions were inconsistent.

[@reidnlorikincaid9683]

The people who worked for this hospital were people who had put in incredible TIME AND MONEY, years of their lives, training to take care of seriously ill children. These people are motivated to lie, harm, disable children, or damage their families??? Do you understand that these are people who have trained for years to try to help children???? THEY HAD NO MOTIVE to HARM MAYA OR HER FAMILY. They were acting as COURT MANDATED REPORTERS to report suspicions they had regarding possible child abuse, which clearly existed with Maya, as many of her providers doubted her diagnosis, and were very uncomfortable with the treatment her parents were relentlessly pushing for. THESE PEOPLE WERE NEVER SEEKING TO DESTROY THIS FAMILY. THESE PROFESSIONALS WERE INSTEAD PUTTING THEMSELVES ON THE LINE, TRYING, IN THEIR VIEW, TO PROTECT THIS CHILD. Get down off of your armchair high horses and think critically for a second. Why would all these good people who have spent their careers trying to care for gravely ill children and their families suddenly change into soul sucking, incompetent, evil beasts when it came to Maya and her family? There was NO MALICE. I'm not God. Were they right, or not? Who knows. It's very muddy whether she ever even had this syndrome or not. Reasonable people, highly trained medical professionals, can even obviously disagree. It's all clear as mud. But understand, these professionals are working in incredibly difficult circumstances, trying to do their best for their patients and families!!! Don't believe that? Then keep your children at home and employ your crystals, and voodoo cards the next time they develop an infection, or horrible pain syndrome, and spare us all, especially your children's MEDICAL providers, your obviously supreme sense of all knowing sense of self righteousness. EVERYONE LOST THE DAY6 BEATA CHOSE TO TAKE HER LIFE, INCLUDING ALL THESE PROFESSIONALS WHO WAKE UP EARLY AND STAY LATE, giving up precious time with their own families in order to better serve other children and their families because they are dedicated to the children they care for day in, and day out. The EASY PATH, would have been to do whatever the Kowalski's wanted them to do. Less documentation. Less litigation. Less NOISE. Did they do that? NO! They took the hard route. The route THEY felt was best for a child viewed as vulnerable, and likely a victim of child abuse. But you know better, right? Nail them to the wall, right? And then complain, COMPLAIN, MOAN, and scream, when NO ONE WILL ADMIT YOUR CHILD TO THE HOSPITAL for uncontrolled, inexplicable pain because the risk of litigation is too high. I wouldn't touch your kid with a 10 foot pole, but then they are better people than me.

[@hahna77]

Perfectly said

[@GetSicRiCH]

The medical staff overstepped.

[@MichelleEskew]

I fell asleep to. In bed is special it really does happen just different. A uniform bug is just as hard. Good luck. Watch that going out party.

[@richardlord9616]

What am seeing here alot of people not doing there jobs proper failing young kids who dont have the credits to be in there jobs alot of people who work in that hospital are dismissing kids pains and shud not be working in a place where they meant to help people this hospital needs a proper rewiew about what there doing and getting away with is sickening i would take any child there for care the amount of people i see in jobs in there not even proper doctors or nurses working with children they dont care about its starting to make my blood boil now main doctor woman i over rule over doctor the social worker that women there there all covering each other jobs think some protests need doing outside the hospital also did you see the differance some the first solicitor to the second solicitor see was on the back foot with him she didnt like the questioning alot of i dont knows did anyone in that hospital know what was going because i think other people can do a better job they sont seem to enjoy working with real funny if you ask me that hospital b b killed mayas mum rest in peace god bless you will be remembered alway i hope they get there justice there deserve i am following this case good luck from england from me lord pray for them

[@jldowland]

she's shouldn't be seeing patients

[@justbystander770]

Ok can somebody tell me why someone would fake a illness and let her family spend a lot of money and endure the treatments she got? Cause it is possible that children can grow over things. It has to do with a body who changes during the growing process. I am not a dokter but isn’t that a possibility? I mean she was used as a lab rat by all these dokters and nurses , she was humiliated by taking foto’s and all the so called experts. I have a great respect for dokters if they now what they are doing . And if that means a medical investigation fine but people are no lab rats for a dokter who wants to make a name for themselves. Hope I make sense It’s a difficult case for the jurors and I hope they could follow thru all this medical mambo jambo.. so many experts but no- one has a definite answer

[@SinkFla]

conversion disorder

[@SinkFla]

﹠mental illness is real: of course it isn’t logical, this mom and daughter were very disturbed

[@SinkFla]

Beata Kowalski was telling people online and in person that her daughter, Maya, was TERMINAL. listen to Maya’s testimony, she says nothing about wanting to change the system, nothing, she isn’t in it to do good, she had the pettiest arguments. So, that was disappointing. Mayas lawsuit isn’t about chronic pain this is medical child abuse. Read the ketamine coma emails Beata Kowalski sent to herself where she revels in how close her daughter Maya was to death. it is truly disturbing. Beata Kowalski demanded JHACH to install a INTERTHECAL PUMP into Maya and risk spinal meningitis-a risk that good doctors will only take on terminal patients for that reason. and since when did a mandated reporter decide how long a child is separated from parents-it’s the JUDGE who decides that﹠why won’t the Kowalski’s and Maya blame the JUDGE, bc they can’t get millions in damages for punishing who actually separated the family.

[@John-kv7jo]

Maya is a liar and her non existent CRPS is on fire. All evidence points to this fact.

[@11aauser]

And she needed the drugs

[@louise5906]

💜 🦘

[@madfingers72]

So sick of malingering people with their vague and fake ‘illnesses’, although in this case Maya was the victim of her nutty mother. At first, at least - now we see how the apple doesn’t fall far from the tree.

[@toiletresin]

Dude. It's severe leg pain, not malingering.