ME/CFS Expert and Long Covid Patient Advocate Share Insights during WDAF TV Interview Segment

ME/CFS and Long Covid expert Dr. Peter Rowe and Long Covid patient expert Cynthia Adinig were interviewed by WDAF TV and spoke to the devastating personal and economic impact of Long Covid, and how more research for Long Covid cures and treatment will also benefit ME/CFS and associated disease communities.
Dr. Rowe is a member of Solve’s Research Advisory Council
and Director of the Chronic Fatigue Clinic at Johns Hopkins Children’s Center, as well as Professor of Pediatrics at Johns Hopkins Children’s Center. His clinic at Johns Hopkins is one of the country’s leading centers for ME/CFS, and he has treated Long Covid patients at his practice, many of whom meet the criteria for ME/CFS. Dr. Rowe was the first to describe the relationship between ME/CFS and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and ME/CFS.
Solve board member Cynthia Adinig is a patient advocate
for both ME/CFS and Long Covid, and has been featured in a multitude of national news media and asked to speak at international conferences in this capacity. In addition to her work as a marketing specialist and equity policy advisor, she also created a digital guide for medical care for longhaulers of color.

[@clairenaylor8346]

Nice little piece, thanks to all for taking the energy to do this 💙🙏💙

[@denisebanto3185]

Congratulations! Cynthia, I thank you immensely! I saw you struggling. Thank you thank you for your drive and voice. ❤❤❤❤

[@kathymcmc]

Many of us have these symptoms without having COVID. People do not have patience for people with "invisible illnesses". Cynthia will discover that soon. I have been suffering for 10 years. The first 5 years were the worst. You stay in denial that your life is ruined. You keep thinking of you do something things will get better. No... It doesn't. Good luck Cynthia!

[@kathygreen6043]

I had and still have MECFS after light virus, summer 2022. Was house and bed bound for over 100 days. Same fatigue she is describing. Legs wouldn’t hold me up. I had previously been very physically active. Developed first time psoriasis over my entire body. Had more dizziness in one year than 32 years combined (have Ménière’s). Body felt like it was on fire.