ME/CFS Stole My Life: This is how I got it BACK (Rashlin's Story)

[@RaelanAgle]

STRUGGLING THROUGH LONG VIDEOS? Subscribe now for a bullet-point summary from our latest interview! - mailchi.mp/3bd95045319b/raelan-agle

[@Dylan-od2mp]

Isn’t it all a hyper vigilant nervous system causing all systems out of whack? Severe burn-out / CFS / long covid. They all have the same pattern. Howard Schubiner is an expert in this and is healing a lot of people with cfs with his methods. He talks about this in Dr. Rangan Chatterjee’s podcast. Really interesting. The data and research also suggests he is right. Becca Kennedy also is a strong believer and learner of Howards treatment methods and view on this. Becca was also on your podcast. I think it’s all a hyper vigilant nervous system issue.

[@stevebarlow1959]

So grateful for this especially touching fearlessly on the issue of 'scared to be well again' phenomena. It's almost the kind of thing we say in a whisper because on the surface it sounds bonkers. But when you realise that humans cling not necessarily to what is good for them but to what is known and familiar, it makes more sense and can be applied to so many areas of life. Such a relief to hear this talked about. Now I know it's not just me!!! x

[@SD-uk1pp]

Thank you for sharing that at times the recovery process seems harder than being unwell. It brings up so much in terms of past trauma and anxiety. It's only in the last few days that I am afraid of being well. Rebuilding a whole new life after 14 yrs is daunting and by no means a straightforward process. Good on all of us for continuing to persevere despite the anguish at times.

[@deelicious1610]

It feels like every cell in your body is dying. Only those who have experienced it can understand that. Insomnia is so hard. Stay strong folks.

[@Waves353]

@@deelicious1610 felt compelled to reach out I hear you And I love you for you I need to love myself

[@freya1188]

I’ve booked a call with Rashin for next week, thanks both for the work you’re doing. When I first fell ill there wasn’t a single person talking about recovery (8 years ago). I spent alot of years feeling like it was hopeless and it’s pretty amazing to feel like that full recovery is really possible. I feel like I’m a long way there but still have a long way to go if that makes any sense at all. But your channel and others like it have made such a difference, keep up the amazing work!

[@RaelanAgle]

Thank you so much, Freya! 🧡🧡 It may be a long way, but it's worth it!

[@viviennebrown3255]

Omg Rashlin, you made me cry, I’m watching what I eat, I’m doing yoga, I’m meditating, I cut out alcohol…but I still feel alone. And your talk brought it home, I need someone who understands and can offer some reassurance that headed in the right direction. Thank you

[@freya1188]

Hi Vivienne, I feel the same way! I’d be happy to connect to talk about recovery with someone on the same path- if you’d like too!

[@cdv2244]

​@@freya1188 same here...

[@darrend2035]

What are your symptoms? What’s been the most challenging emotion or situation your in right now ?

[@IanMaddx110]

Thanks Raelan / Rashlin, fascinating, thought provoking interview with ideas that extend to people well beyond those recovering from ME/CFS, although many don't realise it. I actually find it harder to explain the approach to people with ME/CFS as many aren't yet in the place where they can engage with the ideas, understandably hoping for a simpler solution (which is why your channel is so valuable Raelan). Using analogies like the overloaded cargo ship due to an accumulation of life events leading to illness does help when explaining it to others who haven't been ill (although I'm sure plenty think I'm slightly mad)

[@RaelanAgle]

Such a great analogy, Ian! 🧡🧡

[@katiegolding6491]

How eloquently explained by Rashlin. Brilliant interview Raelan.

[@RaelanAgle]

Incredibly well thought and insightful - so much to learn from Rashlin! ❤️❤️

[@czestochowa519]

I resonate with this story. I’m still healing and hoping to be interviewed by you one day when I recover 😊 Thank you for these ❤

[@DottieBengo]

Most people don't see us when we are really ill so don't understand how bad it gets.

[@dommccaffry3802]

This lady is fantastic. I really resonated with her. If i could afford it ( which i ca'nt ) i'd work with her. She seems so authentic and insightful. This was a superhelpful convo

[@fringeparnell9272]

Thank you so much Raelan for this video. Rashlin has really opened the doors to some things I have been battling, especially the fear of getting well and it’s not just me but it’s something I can work on. Before you even mentioned how to get in touch I had paused the video and found her page from the details in the description. So again, thank you.

[@RaelanAgle]

I'm so glad, Fringe ❤️ ❤️ Rooting for you!

[@alicerees5134]

Thank you!! Such beautiful ladies 💜

[@reginalotz6520]

Thank you Raelan , I have been going thru this for over a year and trying everything to get better. I have spent over 20,000 but still struggling. I need to work on my nervous system. I am 70 years old and feel I don’t have years to work on getting better. I have learned alot listening to your interviews. Thank you

[@Truerealism747]

Do you have hypomobility does your CFS cause much muscle pain

[@reginalotz6520]

No. I have no pain. Being so fatigue , Brain fog, dizziness and can’t function

[@Truerealism747]

​@@reginalotz6520pain my worst symptom

[@themiddlewaycoach]

@@reginalotz6520 so sorry to hear this - if you think you need to work on your nervous system, I'm happy to have a conversation about it with you. It can often be simpler than we think, no matter how many thing you've tried. Self-compassion can be something that naturally arises and doesn't have to be a practice! Sending you love.

[@DottieBengo]

I am 70 next year and feel like I want some time feeling well. I have had ME on and off for many years and am still looking for the missing piece of the jigsaw.

[@regina6838]

Very important discussion. I find it overwhelming to think about starting a whole new career and a whole new full and fulfilling life.

[@judyprm]

Thank you Rashlin. Really helpful interview.

[@jayg4424]

This is an extremely difficult day. This video helped.

[@RaelanAgle]

I'm so glad that it resonated (and helped)! 🧡

[@viviennebrown3255]

@@jayg4424 hang in there

[@wallywallace5616]

Brilliant interview! Really resonated. Thank you both so much. 😊❤

[@RaelanAgle]

So glad that you found it helpful, Wally! 🧡 🧡

[@honorburza9110]

So true, so much energy was used up and stress caused to my partner with LC due to lack of understanding. From employers, family, doctors...imagine how much less bad it could have been without this on top.

[@germanside7890]

Such a great interview with a cute and smart Rashlin 🙂

[@katydonna6015]

16:30 tunnel vision when thinking about recovery. Years of stress, not just one virus. For those reading, this is true for me and many others about the copious amounts of stress etc in the years beforehand. I havent yet met or spoken to someone with me/cfs who hasn't had that same experience. Was this your experience too?

[@moggygibbo8318]

Great interview with new inspiring questions and answers. Keep up the great work, both of you

[@jackiegroden416]

Such a great calm interview.. And I love when Raelan curses!! 😂

[@joannesaunderson4506]

Thanks both. Interesting perspective to look back and wonder what on the lead up to fatigue has caused this to happen. I think our behaviours and environment definately create stress which in turn makes us shut down. ❤

[@RaelanAgle]

Agreed 100%, Joanne! 🧡🧡

[@BrianHThayer]

I’m not sure if I missed this in the video… did Rashlin specify how often she received Perrin treatments? Weekly? More than one a week? Every other week? Did they taper off over the months? I’m just curious as I found a practitioner about an hour away. But I just don’t think I could financially or energetically make it weekly or more than once a week. Thank you in advance. And many thanks to Raelan for doing the work to bring us these inspiring journeys!! ❤❤

[@deberebor]

Yes: the word "fatigue" is one of our biggest barriers to communicating with loved ones, colleagues, and medical professionals. Doctors consider chronic fatigue something like malaise, I think. I've spent a lot of time in the last 12 and a half years finding metaphors to offer people: 1)Remember the WORST jetlag you ever had and your whole first day is touring around when you are really only partly aware and can't wait to get to sleep? That's my average day. 2) Remember when you had the flu that was so bad that you could barely drag yourself out of the bed to go to the bathroom? Could you have gone to work "anyway"? That's me on an average day. And so on. People do start to get it when you find something they can relate to. As far as the term chronic fatigue, I generally don't even use it with people. I will say, though, that with the advent of long covid doctors suddenly perk up and when I say I have chronic fatigue ... they sharply pay attention to sharp covid whereas before the covid era they would just grunt in response and talk about something else. They didn't even make a note of what I had said. I tend to tell people I have mitochondrial dysfunction. They generally respect that as real. I don't even know if I really have it.

[@angelina8303]

Great video. Really good to have the validation!! I’ve been struggling on for 11 years and now would like to find a Perrin practitioner… can I ask who you saw Rashlin?? Thanks. Angela

[@RaelanAgle]

Hi Angelina, there's Rashlin's contact under the video, so you can reach out and ask! ❤️❤️

[@cdracos1]

And absolutely stunning might I add !.

[@Samsomani77]

How long dis it take you to recover when you started regulating tour nervous system ? All that you say resonates with me !

[@falibaba]

Same with me. I totally feel it how she describes her symptoms

[@jessicanilsson5941]

Its like the symptoms been more worse and i dont now why

[@alexandrecouture2462]

Thank you!

[@francescam.6999]

It would be so nice to have a better name. I never use chronic fatigue syndrom when I am asked what I have. I mumble something about a dysregulation of my autonomic nervous system, fibromyalgie, pots and whatever symptom is the strongest at the moment. sometimes I add migraine, sometimes other chronic things. Fatigue is just one symptom. And for me it isn't even the worst. With cfs everything can become chronic. So my struggles changed very often. For some months the fatigue was bad. But most of the time my exhaustion and lack of energy didn't feel like fatigue at all. I was so so so exhausted and wired at the same time. My body was always buzzing and I couldn't relax at all. Insomnia was a big struggle. That was way worse then the fatigue. Whenever the fatigue kicked in it was a big step forward. Being exhausted and tired feels much better then feeling about to collapse. For some people beeing tired is the biggest struggle and I think most of us struggle with a lack of energy and exhaustion. An amygdala in overdrive and beeing in fight and flight all the time can result in feeling tired, but also in many other things

[@katydonna6015]

23:18 society's expectations and unsustainable ways of living.

[@kuldeepsingh-xl4zo]

Dr. What abt nerves pain due to central sensitsaion

[@danijeanes5078]

Anyone catch anything that she actually did to recover? I didn't hear anything specific

[@Mandance]

Yeah, felt like a waste of time and in the end just another guest selling coaching.

[@danijeanes5078]

@@Mandance exactly.

[@jessicanilsson5941]

Yes its like me press /push and now its total crash 😢❤️

[@jessicanilsson5941]

For how long you was sick ❤️

[@Mandance]

Honest question: it seems like many of the guests on this channel recovered and now sell coaching but could it be possible some of them are faking it and see a business opportunity in selling people expensive coaching? It just seems odd like so many of them are ultimately trying to sell something.

[@RaelanAgle]

Hi Mandance! If someone's looking for a "lucrative business opportunity," they'd definitely stay away from the ME/CFS community. It's a tough illness with no easy fixes. Many who recover share what helped them and what they have seen that works for most people they serve, but it's super important to be discerning and find support that resonates & feels right for you so you have the best chance to implement it. ❤️ ❤️ Wishing you all the best on your recovery journey!

[@fwdflashwebdesign]

The truth is that once you had this condition yuu are always predisposed to it and ad some point it will return, I was 100% recovered and covid put back in the worst black whole....

[@jessicanilsson5941]

Whats is inflammation about

[@Mandance]

Flames

[@fwdflashwebdesign]

No sure if you read this comment dovid did the same thing to me the issue is that I had it 25 times in 3 years and everytime it went in my lungs

[@meganobrien1019]

🙏💕

[@AnrupB]

Since medical researchers are checking out your channel, here is a new name for this illness: Post Exertional Myalgic Encephalomyelitis

[@KathleenKörner]

Great. It sounds as if it was me. Liķe my story. I am also struggling with pacing and I desperately want to get better. All these old beliefs... How can I find inner peace so that the magic can happen?

[@RaelanAgle]

You'll get there, one step at time! 🧡🧡

[@djVania08]

There was nothing specific in this video, right?

[@37895]

Any links to proven regulation techniques? Surely this vast community can find some between us.

[@themiddlewaycoach]

There are so many different ways to regulate your nervous system. And plenty of ways that are supported by the research.

[@37895]

@@themiddlewaycoach thanks for your reply… I understand what you say.. and I’ve tried many things..but have you actually been through this shit?

[@mrjackolanterns]

Long exhales.. Deepest inhale through the nose as long as possible and be mindful of doing so without any tension in the body and let your belly be completely loose and relaxed and let it fully expand. Then, exhale as long as possible through the nose by doing an ujjayi breath exhale. Hard to explain, but you know how you use your breath to fog up a window? Kind of like that, but your mouth is closed. Your exhale should be as prolonged as possible without gasping for air at the end of it. Your exhales will grow longer the more you do it. DO this for like 10-20 minutes. Your nervous system will love this. This is a lifesaver for me. Look up Ujjayi exhale if it is hard to grasp. Hope you are well.

[@lemuelwilliams1205]

Any technique you use be sure to keep consistent... your gonna have set backs and discouragment... throw it aside

[@jessicanilsson5941]

Did You have like inflammation in Your brain

[@Mandance]

Flames

[@jessicanilsson5941]

Can i contact u ? Where i find u ?

[@jessicanilsson5941]

Can i contact you❤️

[@juliegoff1731]

Had this all my life ,my mother too ,like you Raelan and your mom .Ive heard the good experts say that fatigue is a symptom of whatever this monster is .Drs who are western call it CFS but the better functional drs say it’s a smaller part of a bigger reality ,that fatigue is a symptom of a bigger root cause .I just love it when someone says to me “ oh I know ,I get tired too “ most of the time ,I don’t even correct it .i just say oh ya ,um hm .Pretty aggravating.i have had more good days in recent years ,due to good Whole Foods ,supplements and rest .some days I even feel like I’ve never felt sick ever.But have I gotten rid of it completely? No ,never ! I’d like to get there , to feel like I do on the good days all the time .I do know if I don’t eat right and take supplements then I go into the rabbit hole of severe cfs ,absolute horrors ,and never feel good if I don’t eat well and take targeted supplements so that is a big clue .My mother used to say I swear what we have is a thyroid problem but for years we were told no.eventually found out that’s what it is ,hashimotos .Dam drs .in1995 I went to a cfs specialist ,all my blood work came good ,so the secretary who gave me my blood work results said you must be depressed .Complete ignorant insult .I also know I have hypoglycemia ( low blood sugar ,which feels awful ) and sometimes anemia which is no fun ,I know this because I was getting out of work one day ( feeling hideous / I always forced myself to go to work and forced myself to stand up feeling hideous ) and out side was a Red Cross truck ,I said well I’m here I might as well donate .they refused me and said I was anemic .so I associated feeling awful That day which I felt this same feeling alot and thought maybe I have chronic anemia ( which is a thing ) when I feel like that I think I need b12 and iron .i heard you say you felt pinned down ( a phrase my mother has used ) ,and like you have poison in your blood ( a phrase I have used) .when you described locking the door and laying on the desk at work ,boy do I relate to that .I am now a landlord and do door dash ,if I’m having a bad day when picking up food while dashing the minute I get to restaurant,first thing I do is sit down / and tell them the name of person who’s order I’m after .love your channel raelan .also I heard you say upon waking you haven’t felt good at times .I have a big problem w that , ( even if a have a good day ,I usually wake up feeling like crap At first ) also a racing heart which drives me nuts .thanks for listening ,you have helped me,led me a lot Raelan

[@multiversomental6893]

I’ve heard about that technique. But I could not find any specialist that practices where I live 🫤

[@leaperrins8373]

The Perrins technique is quite expensive just to bear in mind. There are some Perrin self massage techniques on youtube, and Dr Perrin recommends placing icepacks ( I believe, please check?) on a certain point of the back. If you watch the interview on this channel, it goes into this and probably other advice that I can't recall.