MECFS Alert Episode 42: Interview with Dr. Kenny De Meirleir

[@RaymondsRants]

thank you for this update...I agree it certainly presents as an auto-immune disease..And a very difficult disease to live with .

[@suepete]

8:01 He's absolutely right! "Of all diseases you can get, this is one of the worst!"

[@Fjaulnir69]

The 'stress/coping' patients have already been 'weeded out' mostly, afaik - if any part of the 'regular med system' can help you,you'll never end up going to prof DML's clinic - most if not all of these patients have already seen every other doctor in the country possible Regardless to say that even then there's a whole bunch of different underlying mechanisms in those who go to see him, ranging from thyroid, autoimmune over infectious (mainly tickborne) to other possible causes I am unaware of

[@willowithywindle]

As always, many thanks for your compassionate efforts. An interesting interview. The first I believe referring to ME as an auto-immune disease.

[@leperson7]

Llewellyn King did an excellent job, as usual, in his interview with Dr. Meirleir! Thank you so much.

[@NikkoYM]

interesting comments about this on the PR site...some serious, and some quite amusing as well. 1 cute one was "is ME karma for all the pillaging etc. etc. from our Viking ancestors?" !

[@PrairiePlant0]

Viking disease, that is an interesting comment from Dr Merileir

[@Fjaulnir69]

Either way, he doesn't see/treat patients as having a generic illness ME (nor CFS), but just based on whatever individual things tests show are wrong, and meds/supplements may be overlapping to some extent but none of the other patients I know gets the same as I do. Regardless of what 'label' you have, he'll do his best to help you. (so he is not strictly a "ME-doctor" in that regard; mostly just tries to find causes for whatever 'medically unexplainable symptoms' the person comes with)

[@mrsmike5799]

I didn't think he said much of anything....did you ?

[@DayMcCArtSapphireandIron]

he is full of crap it sounds like.

[@mclaughlinjilld]

What patients is he treating or talking about? Every patient in his practice? Infectious, autoimmune, stress, coping. There is no such disease as ME/CFS. Yes, diagnosis is made based on fitting *some* criteria. This disorder? Which one? ME is not CFS or another name for CFS. Why so little understanding? Probably due to this confusing garbled mess.