Memories of POTS Part II: Illness & Bereavement

I'm now giving consultations - see www.patrickussher.com
** For more about the 'What POTS Really Is' project and book, see www.whatpotsreallyis.net **
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In this video, I talk about the hardest two months of my life: being very unwell with POTS and at the same time attempting to cope with the emotional upheaval of my mum in palliative care.
This video has not been compiled by a medical professional. Please always consult your healthcare provider for any concerns you may have.

[@lisakaylanemorris]

Patrick..... 🤗 ♥ 🌟 You are a special person, one of a kind! Your Mom was obviously a Wonderfully beautiful person and she brought you up well! Pots is definitely a nightmare and you are providing much understanding and hope to many. Blessings upon you always! 🍀

[@me-cfs-strategiesforhealing]

Thank you Lisa from the bottom of my heart for these words - Namaste!

[@lizc5205]

Patrick, thank you so much! thank you for entrusting us with your videos, even though sharing them likely meant revisiting painful memories and experiences. You have been fortunate to have had a special relationship with your Mom. That is a great gift ❤. Blessings and Hugs!

[@me-cfs-strategiesforhealing]

Thank you Liz for these very kind words. I am glad that these more personal memories of recovery were of help to you.

[@laurag.7521]

Patrick, today was one of the worst days of my life. I’m still in complete shock over the events that occurred today. Even though I’ve been diagnosed with Vasovagal Syncope and not POTS, (they’re very similar, including the Rx treatment protocols of Midrodrine and Fludrocortisone) my symptoms have taken a turn for the worst due to the trauma over the last few days and specifically today - similar to your situation of losing your mom while being sick and also when your illness wasn’t being supported or validated. I feel like I’m going to lose consciousness while laying down in bed. The excessive surge of adrenaline is horrendous. This particular video of yours is extremely reassuring and comforting and gives me hope that this nightmare that has been my reality for the last 3 years will get better. My sincerest gratitude for sharing the obstacles of your journey.

[@me-cfs-strategiesforhealing]

I am sorry for the nightmare of what you are going through Laura. We have to go through more than the ringer as humans sometimes. Please do consider the DNRS program as a recovery option for POTS and check out the rest of my videos / book for why that program arguably can work for treating the underlying cause of POTS. Good luck and I hope you are bearing up as well as can be.

[@laurag.7521]

Thank you, Patrick. I’m currently halfway through your book and I have the DNRS system; however, they’ve advised me not to start it yet due to the difficult and traumatic times I’m currently going through. But I will be starting it soon. Your work is remarkable. You book and these videos are life changing. I underwent open heart surgery exactly one year ago (2/16/18) and my weakness and faintness became much worse afterwards. Then the emotional upsetment of my recent traumatic experiences also made my fatigue and fainting spells much worse as well. So you’re absolutely correct that both physical trauma (open heart surgery) and emotional trauma affect the limbic system impairment that is dysautomia. Thank you for all of your research and work on promoting the success of the DNRS system. You’re also an excellent speaker and marvelous storyteller. 🙏🏻

[@me-cfs-strategiesforhealing]

Hi again Laura and sorry for my slow response (only check this channel every week or so). Thank you for your kind words about my work and research. I really wish you every success with the DNRS program. Another helpful book is Dan Neuffer's CFS Unravelled which might also give you additional helpful ideas at least in terms of physical strategies you can also employ. Good luck.