My 24/7 Ventilator Keeps Me Alive | BORN DIFFERENT

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DESPITE being told by doctors she would ‘just be a pair of eyes’ a young girl is defying odds and following her dream to act and sing. Maddison Sherwood has been using a wheelchair since the age of two, she cannot breathe unaided and needs 24-hour care due to her rare muscle and respiratory condition. The 10-year-old from East Leake, UK has an extremely rare condition called spinal muscular atrophy with respiratory distress type 1 (SMARD1). It is thought she is only one of between 40 to 60 known cases worldwide. Follow her story here:
/ maddie_zebedee
/ @smardandme800
Video Credits:
Videographer / director: Marcus Cooper
Producer: Gareth Shoulder, James Thorne
Editor: Athina Chatzidaki
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[@smardandme800]

Thank you for all the lovely comments about Maddie and our family we are extremely proud of her. ( Lidia, mum) xx

[@happyhorse1028]

Smard and me deservedly so too. Maddie is a sweetheart and your family is truly lovely. Much love to you all.

[@kittikoko]

You're a great mum. 😊 👍

[@smardandme800]

kittikoko thank you xx

[@nancysouder5111]

She is such a beautiful young lady! Her smile is amazing and lovely personality. She won my heart with the first smile.

[@alicialeon9447]

You are a very lucky person to have that angel.

[@dorawilson3986]

She’s beautiful and I can tell she has awesome parents

[@Bummer1980]

What an awesome young lady. She’s got a beautiful smile and spirit for life. I’m sure she will continue to accomplish great things in her life!

[@azazello1784]

Maybe... But how much of taxpayers' money are gonna have to be spent on her care?

[@williamwong4040]

God bless her for her courage and optimism

[@aaravgulati2]

​@@azazello1784 Can you give me a better place where this money could have been spent? Also, this money also helps in the advancement of medical science so that lifespan of every individual can increase

[@kateking8820]

Maddison what a lovely positive girl she is??!! I have Cerebral Palsy so know all about standing out. A lot of what was said in this video rang true with me made me head a tear.

[@Lankynibs]

There's something about when she laughs and smiles, she just seems like a wonderful person.

[@chaylaparker4896]

I love that this film is about her and her amazingness. This series just focuses on the kids not their disabilities.

[@lily-louise8936]

That’s my bestie go girl thank you so much for letting me be in the video and I love you Maddie xxxxxxxxx

[@deseraeward9618]

You are a great friend

[@briannakilgannon5912]

You’re an incredible friend and It is truly amazing to help this beautiful girl with everyday by giving her a amazing friend to stand by her

[@torimccool4413]

Always be her bestie. Dont hurt her. Always be there for her!

[@iammarinarasauce5107]

Poppy Vlogs don’t be a hater 😑😤🙄

[@iimxblslife6282]

Sedoor Because she is lying

[@NezukoKamado-we2rd]

Its okay to be different! Maddie is a strong girl, if she had SMARD since she was born and she was diagnosed with it later in her life, it shows her body is actually pretty strong! i hope she lives a long happy life with supportive friends

[@alwa6954]

She has got the best smile ever. It is so infectious. What a beautiful young girl with the ability to just take over your mood. I can't look at her without smiling.

[@mairjones6437]

Wow she puts me to shame very pretty little girl and so brave wish you all the best and all your family

[@norawilliams2606]

I just see a totally awesome and very beautiful little lady that also has wheels to get around. She doesn’t allow this to stop her and seems to be so joyful. There are so many other precious kids out here that may not feel the same or have the support she does. I just want to send love, hugs, and encouragement to everyone. You all matter to me. ❤️🤗🙏🏽

[@karaclarkwoodhouse6530]

3:52 “it’s okay to be different” You are an amazing human being Maddison and I hope that you get better!❤️

[@The_therian-o8y]

❤❤❤💔

[@GailOwens]

Well said!

[@ellieanneauthor]

Her smile is contagious, I love it. 💗💗💗

[@EyesShineBIack]

Loved the dragon part! Amazing attitude.

[@aspiechan420]

That was cute!

[@Prickly_Cactus_1993]

Hope she is doing well, especially during covid.

[@blossomtology1018]

I absolutely love how comfortable and positive she is in her own skin ,❤️❤️❤️ such a beautiful girl. I love how she has the James Charles Makeup palette in the corner awwww😍just a young girl trying to love a normal life with her friends.

[@nikkisovain9429]

James Charles doesn't even like black people, and yet here you are shouting him out and giving him free publicity. Sad.

[@zaixai9441]

I don't think she is trying to love a normal life, she is.

[@blossomtology1018]

Nikki SoVain i only seen the palette in the corner lol and I mentioned it , just a young girl loving makeup sis. No hard feelings , and I didn’t even know about him not like our people. 😂

[@ceeemonaee6579]

@@blossomtology1018 me either 💁

[@ceeemonaee6579]

@@nikkisovain9429 sis not everyone keeps up w what these celebrities do calm down

[@taniasmith619]

This girl is going places and putting smiles on faces. What a strong and brilliant young woman. Amazing mommy.

[@katandpapa]

She is such a sweet little girl! What a beautiful smile!!! She's definitely an inspiration to young and old alike!!! What a blessing you are!!! BE SAFE,GOD BLESS!❤🙏

[@JuMaRi615]

I know a girl who died of SMA before the age of two. I'm glad this beautiful child was able to go beyond expectations and have a good life

[@WAKE-UP-BRITAIN]

Bless this child, It really grips my heart and twists my stomach to see a child in a position like this! Her attitude her confidence is bang on, smiling and cracking on with her friends blending in and bonding perfectly...I wish you all the best of everything possible to you god bless ya, your more normal than most of the people you will ever meet trust me anyway stay safe all

[@aimeescott2268]

This little girl is spectacular! She's smart, spunky and funny! I have no doubt that despite having this deadly health issue, there is nothing she won't be able to accomplish! Kudos to mom and dad for raising a warrior!

[@OopsExposed]

*she is absolutely amazing. I love her heart, I love how she doesn’t let her condition effect her! 🥺❤️*

[@Watchmyspiritrise17]

I like your comment it very nice you to say that

[@Damn.Jalicia]

Gosh i hate that kids all over the world have to suffer with disease and illnesses without a cure. It truly breaks my heart. . I love how she is still so positive and upbeat. I pray she gets well and keep fighting

[@q20000]

So your saying that your hate children with diseases woww

[@Damn.Jalicia]

@@q20000 learn how to read and comprehend!

[@GailOwens]

​@q2000 No she is saying that she/he/they hate that there isn't a cure.

[@GailOwens]

I havd a terminal condition with no cure, I didn't take offence.

[@q20000]

@@GailOwens did I ask

[@richardwanamaker9080]

Ex military, career law enforcement, competitive powerlifter, I think I'm pretty y tough. But seeing the Raw Deal this child got in life tore me up. To see her smile through her disability and be happy is awesome. Let's hope and pray the smart people in medicine can find a way to make her life ever better.

[@courtneygrier2015]

She is so so cute and she just lights up any room she's in and I see this just from behind a screen. What a lovely gem!

[@foxwoodjones9831]

Maddison has a beautiful spirit that just radiates throughout her. Maddison, you are a brilliant girl and I know you make a positive impact on everyone around you. Keep standing out!

[@Vasquez19781]

I LOVE THAT!! I was born to stand out not blend in!! ❤️❤️❤️ You’re amazing!!! Also, mom??!! You ROCK!! ❤️❤️

[@CriminalPsychologyChannel]

Wow! What a wonderful smile and laugh!!! LIVE LIFE TO THE FULLEST beautiful young lady!!!! God bless you and your family and friends!!!

[@lunchroombologna9617]

She’s such a fighter!

[@roxans5853]

Ikr 😊 and she seems so positive too.

[@roxans5853]

@Aeronautical NIBBA I haven't watched the hobbit... 😐

[@anthonyt425]

Thanks for sharing her story, this is very heartwarming.

[@emilymoore4287]

She is the most beautiful little girl I've ever seen. She's so strong and full of life. I wish her all the best and for her to have a full happy life

[@KCsFunHouse]

She’s amazing!! Her attitude and sass made me smile!!

[@eduardopadilla5505]

She has a beautiful smile and a brave attitude in life!

[@sheenagriffith2635]

Madison you're such a sweetie. You've inspired so many with your strong and courageous attitude towards your illness. So many of us can learn from how you smile through it all. You're truly an inspiration.

[@nor4277]

I love her smile ,she is the most amazing young lady ,nothing is going to stop her ,she is a very happy child ,I never heard her complain ,just that amazing smile,I wish you well ,I got a feeling you have lots of friends

[@shirleyappel9162]

I was having a bad day today..how dare I complain! This beautiful child reminded me what really matters. Count our blessings!

[@LoCat13]

love that i can tell she’s into makeup; i saw that James Charles Palette ;)

[@zenith5702]

Lol

[@laurac86]

I noticed too!!

[@Sarah-dk8je]

Just saw it, I'm her age and I wish I could have makeup

[@nightshadowone2989]

@@Sarah-dk8je Honey,I'm sure if you had what has ,you would be able to wear a little make-up🙄

[@joyceknight5981]

@@nightshadowone2989 Me to lol and dont even have lol

[@jennifer9084]

She is living life to the fullest while some of us aren't :/

[@logicluna9038]

Jennifer A that’s on them.

[@MiZoLuCieNe]

Yeah but honestly none of us will get help if we say „I’m having a bad day“ if she says it everyone will stand up and encouraging her. I don’t want to hate, it’s just a fact.

[@jay-sd1it]

Your pfp 👌🏼🏳️‍🌈

[@Msbuddy08sej]

Ain't that the truth.

[@grayolsen8769]

Jennifer A mental illness isn't a joke.

[@julieg6858]

This young lady is THEE most incredible, inspirational, AMAZING, Young Gal I have ever seen!!!! Keep up the beautiful work young lady! Show em whose boss!!!!

[@shakelliadaniels2]

Blessed child she is. God has kept her all these years and she is awesome and beautiful full of life

[@believeinyourself8895]

Such a beautiful soul this girl is. Doesn't allow it to define who she is as an individual

[@ps6474]

Wow, what a truly amazing girl. What a genuine and wonderful spirit she has, so full of like to truck ahead. She´s also beautiful and what a great mum, as well as her dad. Luckily she has true blue friends. Loved her...¨I was born to stand out, not blend in¨ Perfectly said young lady. Best of luck to you Maddison

[@misstinahamilton5714]

What a beautiful spirit this girl has ! And God bless her mother - as a mom it is so hard to see your child suffering and I can't imagine having to care for a child with such a serious medical condition !

[@crystalbolton8133]

I thought this video would make me sad... it was the complete opposite. She makes me smile.

[@victoriahull8852]

What a tough little cookie. She is darling so pretty. Great brave mom to

[@frezurmind]

Oh boy does she stand out... like a star... absolutely amazing soul ❤

[@19irving]

I LOVE the mother's hair. How she looks good, lets it stay gray and puts it in natural styles--thought i was the only woman south of 60 who did that who wasn't "letting herself go " as my mother would say.

[@charlotteharknessyear7302]

She's doing so well from what I have seen on her videos, she never gives up. Well done Maddie!!!

[@lindseyglover4705]

Your smile could lighten a room love, your so inspiring! The world needs more people like you.

[@anonymozanonymouz9323]

She deserves inspirational child award many a times. She has a positive energy and a lovely smile . .

[@roxans5853]

I really admire the strength of people with disabilities 💛💛

[@sneepsnorp1404]

Thanks 💕

[@azazello1784]

I admire how they drain money from the taxpayers

[@theboujieproletariat]

@@azazello1784 I hope you realise that more of us are taxpayers than not- I'm disabled and probably paying more tax than you ;)

[@angko-pe]

Wow, I couldn't stop smiling throughout this entire video. What an outstanding young lady, and family!

[@isthatyoursandwich]

What a brave, courageous young girl.

[@stephaniecamplin9212]

This beautiful,courageous young lady is amazing! Love her personality and her smile!

[@joziahmommy]

What a beautiful spirit she has. She is the meaning of a true blessing

[@blairariavanderkamp3405]

This is horrific, poor child!! But she is such a beautiful and happy soul; so courageous and outgoing it's really heartwarming to see. Thank you for sharing her with the world. Hugs!

[@amos1482]

"born to stand out and not blend in" I love that

[@aylinncar]

She's wonderful, those are the type of people that we should admire, what an inspiring child, and the dragon thing is so cool!

[@an8652]

What a beautiful, contagious smile.

[@nightslayer6951]

I admire Maddison determination, not letting her condition get her down. Showing the world anyone can do anything

[@bsure745]

She is amazing with a smile that lights up a room. But also her parents are very amazing as well ❤️

[@Sarah.Riedel]

"What do you have to do if you don't know what something is?" "Google it" 😂

[@elainegaudin6557]

BRAH!!!!

[@marycancino8406]

Aww, she's so cute!! Beautiful smile and awesome attitude! How inspirational.

[@neeta_jenks]

She's so sweet and cute! She has great friends I pray they continue to see her and not her disability 🙏🏾. Everybody deserves happiness and to be surrounded by 💕

[@jozelynnn]

HER SPIRIT IS GOLDEN ⭐️🙏🏽

[@randomvintagefilm273]

She is so beautiful. I hope she lives a long time. I only saw her in a short video and she inspired me and made me smile.

[@stephanielimongelli1156]

God gives His toughest lessons to His strongest soldiers. Keep smiling Madison for you are here to show others that a good attitude is more important that any circumstances that we must face. I love you. Blessings to you and your family.❤️🙏❤️

[@georgiebeer5765]

What a brave girl and stunning mother and father 🥰 x

[@laurazander3012]

She's beautiful and amazing very strong and positive

[@kaitlinhannah442]

Her friends are amazing, they were brought up right :)

[@junbh2]

She also just seems fun to be around!

[@carolynlazzell5316]

What an amazing and awesome young lady. God Bless her and her family.

[@andreaschneider9818]

What a positive girl she is! I hope she keeps living her best life. A girl as young as her can pass on her wisdom to adults!

[@gracemcdowell8521]

I hope she stays safe during covid 19 😢❤️

[@wikedcircle6398]

Awesome kid best mom this story touched my heart people complain every day over the stupidest things .this kid has every right to complain all she does is smile and make the best of her situation ...that's living

[@nanskinner5000]

You are VIBRANT!!! Keep active & involved!!! You have many people praying for you! You also have a mom &others as a good support team! I enjoyed watching you!!!

[@candaceg005]

She has some really great friends, who sees her just like them ❤

[@southernoregoncatmom6519]

What a precious girl! She has lots of spunk!

[@Schenley85]

What a beautiful girl. She seems so wonderful and fun to be around and has great friends. It's amazing to see her doing so much, acting!?!! She's more active than I am, and she's a Friends fan, so we're BFFs already. Keep it up Maddison!!!!!

[@bettemimi4951]

She's Absolutely Beautiful and So Sweet! What an Amazing Inspiration to Everyone!!! God Bless Her to the Moon and Back!!!

[@MichaelThomas-we2zp]

She is an amazing child. Sky's the limit for that one.

[@gwendolyn0515]

This girl is amazing, she seems so happy all the time despite her condition.

[@altaylor3988]

Wow this young lady could well have just given up BUT she has tremendous personality and is showing the World she is motivated and is intent on staying motivated !! A truly inspiring young lady with LOVING parents. SHE is making sure she plays the Hand she was Dealt to WIN!!! Love you Precious.

[@junbh2]

I don't think I've ever seen a child give up. It's just the natural thing for children to do, to keep living and having fun however they can.

[@sforza209]

I totally dig the girls NASA sweater and the mums hair color!!! Double thumbs up! 👍👍

[@browniepee6555]

Oh God take good care of this child. Feel for her sickness. She sweet little girl and wont let things bother her ways. She has a lovely parents that's very important...God bless them. I'd read many from youtube those that born different. I feel sad to see this and wish for everyone out there that are born different will still continued to have that strenght and dont give up and smile.....

[@teniellenugent6277]

What a amazing girl her friends are so beautiful for treating her the same hope all 3 of them are doing well 💖

[@hayleylewis2399]

She is really inspiring so thank you.She seems like a really sweet girl and a great friend to have.

[@Toyos-yk3ri]

What a beautiful young lady. Bless her heart. And her parents.

[@gabz6940]

She's beautiful and very strong. Also, her friends are great!

[@montygerome7925]

One of the strongest ladies in the world you are amazing

[@rhiannaa.s7029]

Oh but she is different to everyone else, because she has such an incredible aura and shining confidence about her. Very rare to come by, beautiful Littleton girl.

[@LectronCircuits]

Breathtaking story. SMARD could happen to anybody, so let's count our blessings straight away. Cheers!

[@flexilexih9935]

Maddie is so kind! She goes to my school and she is so sweet ❤️

[@valeriagiese976]

I am from México, she is so beautiful, strong and admirable girl. Congratulation for been an example for everybody.

[@sorayacollins532]

I wish I was 10 again and and lived where’re she live so I can meet her and be her best friend she seems a joy to be around

[@lily-louise8936]

Soraya Collins she really is a joy to be anround and hi I’m Lily her bestie xx

[@mirjanamuzar716]

This girl Is my hero,respekt,and lot of love From Serbia

[@m4rrvz]

1:27 my God!! The machines besides her bed!! This girl's really stong!!!! ❤❤

[@lms4712]

Omgosh she is just adorable. Her smile can illuminate a room ❤

[@annegreenwood3624]

such a shinning personality she is so beautiful blessed with an amazing mommy

[@cutecakeroblox7653]

I love how she acts like nothing is wrong with her and she smiles a lot!🤗😊I tbh would cry 24/7!

[@ryanwebb9710]

What amazing little lady great inspiration to others , and someone we can all learn from . I hope she has a wonderful life full of love and happiness x