The Boy Who Can't Stop Biting Himself | BORN DIFFERENT

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HOLDEN SISAK from Ontario, Canada, has a rare condition called Lesch-Nyhan syndrome - that means he can't stop biting himself. This neurological disorder affects muscle control, and causes eight-year-old Holden to constantly try to injure his body. His father Devin ensures Holden is unable to hurt himself by using special arm braces, but also wants Holden to live his life to the fullest. Devin told Truly: “It was scary at first when you read up and see pictures of kids and they’ve gnawed their lips off and their fingertips are raw. I think that’s pushed me to get him out there and get involved in stuff.” Holden is just like any other eight-year-old, and loves playing games with his friends, and has even taken up rollerblading in his special sledge hockey sled. Devin added: “I want to show Holden that he can do all the things his friends do, his disability doesn’t define him. I just want him to prosper and achieve all he wants to in life."
To donate to Holden's equipment fund, visit:
gofund.me/7fcb...
Follow Holden at:
/ holdens_dad
highfivesforholden
Holden's GoFundMe:
www.gofundme.c...
Videographer: Dennis Porter
Producer: Camile Rocha-Keys, Ruby Coote
Editor: Sebastian Heseltine
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[@jjonesl172]

What an amazing father. The patience and self-awareness he has is inspiring.

[@jjonesl172]

Side note: mark rober and him should definitely meet up!

[@rubina7186]

Je

[@shekinahfrancois4293]

kzbin.info/www/bejne/r167nmOkesmUd6M

[@JamesJimmyMcGill]

LOL yeah seriously, casually dropping "I adapted this for him" BRO!

[@savannahm5529]

Too bad it's not about the kid . Oh, wait.

[@kaitlynk4615]

He is a lovely little boy, my son has autism and during times of anxiety he hurts himself. As a parent it's heartbreaking to watch your child go through that. Stay strong you are doing a good job.

[@rosiebrooks7685]

❤🌹I also have a son with autism. I love my baby to death.

[@Mango-cz2st]

Holden, you are so amazing and lovely, grab your dreams and soar! You couldn’t of gotten a better dad!!

[@michaeltrabulsi6633]

❤️

[@babGss]

if he wants to die let him die. whats wrong with people

[@joannabanana8431]

This type of behaviour in autism (and could be for any of this type of conditions/ syndromes) is called SIBS ~ Self Injurious Behaviours. With autism they seek pressure even if they hurt themselves. There are support groups and BT's (Behavioural Therapist) that can teach you to modify or distract autistic kids from SIBS. I find as our boys got older, they do outgrow this behaviours if you intervene it early enough. T & J rubber pieces are among other things like biting rings can help. Direct the biting in another object. Hope this has helped. There are currently 1,019 genetic markers for autism. So if you can also get your child(ren) genetically tested, this helps your directions of care better. Our 2 boys have different types of autism we learnt. Here where this boy lives, Hamilton, Ontario, Canada has many places for testing autism ~ Dr. Stephen Scherer at Sick Children's Hospital in Toronto, Ontario Canada is testing for free as he is doing a research piece on diagnosing. Hope this has been of help. :~)

[@margitkeresztes1163]

It's Lesch-Nyhan syndrome, a very rare metabolic - neurological genetic disease presently without proper treatment. It is amazing how much patience the father has - I wish them blessings...

[@livmarlin4259]

Maaargit, te nóóórmális vagy????

[@lasenoritacometa1977]

What would marijuana do?

[@amandahudson431]

I had the honor of working with a student that has this syndrome

[@katelinkeller9016]

The fact that his father made games accessible to him. Makes me cry as a mother. It’s such a beautiful bond between a father a son no matter his condition.

[@babGss]

if he was a great father he would let him die

[@ahmad6228]

@@babGss wow you are so edgy and cool

[@ClearwaterKB]

That dad... 💜💜💜 I wish more kids had this support. Dad needs a fully stocked workshop donated to him.

[@caraghlumpp1068]

EXACTLY!!!

[@vanessakoehler5686]

Yes

[@freyamariano106]

Omg yes

[@Livyloo19]

I’ve watched so many documentaries on severely disabled children and their parents and I am in awe to how parents adapt and create ways for their children to live more comfortably.

[@tyc1Z.Z1]

Always wonder how much do kids with mental & developmental challenges really understand / feel the effort being put in by their parents . Is it all just one sided - all about parents hope, aspirations & love ?

[@littlerubiesadventures]

Grandma:How's our relationship like? Holden: Good (with the biggest, brightest smile ever) Such a heartwarming exchange. I am in love with all the adaptations Holden's dad has made, to ensure he experiences independence, excitement, and competition. With all the love and support you have my friend, you can achieve anything💕

[@caraghlumpp1068]

I AGREE!

[@caraghlumpp1068]

Thank you for the like. Be safe and God Bless!

[@maryjs4878]

That's his great grandmother.

[@RelatableQuote]

My brother too has Lesch Nyhan. His name is Simon and just turned 17. We are from Denmark so we are very lucky the Danish healthcare system pays for sugerys and helps with stuff as wheelchairs, home helpers all day and our own van with a lift. Even lifts in our roof so we don't have to carry him around and hurt our backs. Hes a big boy around 6'2 (190 cm) Its funny how much Holdens movement is similar to my brothers. The arm movement is exactly the same and the crossed legs too. I love that you made it possible to race with him with the toy cars. Simon loves driving in the van and when he is most in peace its in the van in his wheelchair, its like all his symptoms disappear and he can just chill. I loved this video and totally love Holden. Big ups to you guys for making Holden have as great a life a lesch nyhan kid can have

[@kristenlash2639]

Holden's dad is a badass, adapting toys and things for his son! ❤

[@JojoGirl-kx8xb]

What amazing father and family, such a sweet boy.🙏💙🙏

[@everywhereigooo]

that little boy is so blessed to have a father like him 🙏

[@WhispList]

Feel like crying, seeing that grandmother. She reminds me of my Nan. I miss her so much. She was always so vocal and enthusiastic about how much she loved me. This lady seems to have the same silly sense of humour as her too. Both wonderful ladies ♥️

[@caraghlumpp1068]

Here, you can cry on my sholder💁‍♀️

[@rosiebrooks7685]

@@caraghlumpp1068 aww that's so sweet of u. I loving seeing and hearing about unconditional love.

[@ValenciaH]

That’s exactly what I was thinking! Her love towards him instantly reminded me of my grandma. There are no words to express how much I miss her 😢

[@caraghlumpp1068]

She is watching you from heaven I am a medium

[@maryjs4878]

That's his great grandmother.

[@jessicagrover402]

His father is INCREDIBLE. Holden you sweet boy are so lucky to have him♥️♥️

[@beefwellington9371]

That dad is going to the afterlife with a platinum medal. Everyone deserves a father like him.

[@jeanalzaidi908]

What an amazing father that child has so devoted to his son to give him such a normal life I can't imagine how much strength and endurance it takes each and every day but that's definitely called unconditional love you should definitely be father of the year if you have such an amazing beautiful little boy

[@SB671]

This dad is so heart warming, he doesn’t shield his son for what he wants to do, but gets him out there to achieve everything and anything.

[@alyssajoyblack5007]

Wow you are an incredible dad! Having been disabled since childhood myself and not having a father who accepts me for what I am this just brings tears to my eyes.

[@ariadnaestrada884]

No matter what disability’s you have , the love that your families give you , it’s all that matters.

[@Karen-hl4lx]

That sweet boy has the best dad and grandma. He is so lucky! And they are so lucky as well! You can tell how much love there is in their home.

[@tonipilgrim9984]

What a fantastic father so dedicated to making Holden’s life as normal as possible

[@gabriellaflynn7708]

Every child deserves a father like this one. Who loves unconditionally just as his child does. It’s a sorta giving for the sake of giving not taking. This love is what our world needs. Stay strong everyone. ♥️

[@chadinetaylor8748]

He is the definition of super dad 👨‍👧

[@thatchangedmylife7764]

His father is absolutely amazing person: caring ,kind,loving.

[@KatrinaKrantz]

This little guy hit the jackpot with that cool dad.

[@karens4925]

I am balling right now. My brother, Richard was also born with LNS. I miss him so much. He was my buddy. I always used to play with his matchbox cars and weather permitting his favorite was whiffle ball. Which was dangerous if I had to retrieve the ball by his chair. What was amazing was seeing you play with the racetrack. My dad used to do that with my brother also. It takes a special kind of person to take care of someone like Holden. Devon, you’re an amazing person. Holden’s is blessed to have you as his dad as my parents were with my brother. Thank you for sharing.

[@bpbloom]

I still have his matchbox cars at my house in the original case.

[@timmatthews9317]

What a devoted father. You truly are an awesome dad!

[@GA-hu6qm]

Holden you are so loved. What a beautiful example of a father.

[@MadAxolotl010]

Aww he’s so cute I just wanna hug him. I feel bad for him having this condition. I hope he lives a happy life ❤️

[@liamwatson5125]

You can’t hug him, he will hurt you.

[@MadAxolotl010]

@@liamwatson5125 idc

[@liamwatson5125]

@@MadAxolotl010 You should care. That’s like hugging a wild animal.

[@MadAxolotl010]

@@liamwatson5125 well I mean. I wouldn’t care less cause I’m suicidal lolz ( not saying being suicidal is a joke. It’s actually very serious.)

[@tyc1Z.Z1]

All looks good in a few minutes clip. But to take care of every need + at all times being alert to every need must be physically & mentally draining

[@katelynn8519]

He lives on my street, he's a wonderful person and father. ☺️ Way to go Devin and Holden!

[@devinsisak3826]

Thank you. Hope things are good with you.

[@katelynn8519]

@@devinsisak3826 I'm doing good hope you are aswell 🙂 and no problem at all ❤️

[@OddlyStrangeBeauty]

Reading the comments and so many ppl just jump to the conclusion. That his mom isn't in his life after watching a 6 min video. Love 💘 how the father has made it clear to anyone who asked. That she is very much a big part of his life. Such an amazing child, His parents are so blessed. We can all see why you were choosen to be his dad.

[@devinsisak3826]

Thank you. Yes Holden's mom actually just picked him up and he's off for his time with her. It actually benefits both of us to have been a break and I know I like to use it to prep for the next adventure that Holden and I get on.

[@natashasmigelski707]

I’m right here 🙋‍♀️

[@OddlyStrangeBeauty]

Hi 👋

[@camarojai6832]

Dad is AWESOME!!!!! All the modifications so his baby can enjoy all things... reach for the sky! Grandma’s love, nothing like it ❤️🥰

[@heatherjunker967]

What a great Dad! He accepts his son for who he is and adapts things so his son can participate and have new experiences. You never know the dad just might come up with something that could benefit others too.

[@JW-iw9ot]

What a precious, beautiful boy and an absolutely amazing father. Wow. I wish them the very best always.

[@carlycharlesworth1497]

What a wonderful father that boy has. He puts his whole mind and heart into helping his son have a great life. His son has a full life because of his father. What a beautiful child and what a wonderful smile he has. He exudes charm and also an impishness which shows in his eyes. I think the father, son and grandmother are a special group. They are an amazing family. There was so much love there bless em. God bless them always.

[@indramami9080]

This father is LOVE & everything good in the world. 🥺😩 His pizza shirt is proof of this! The little boy is gorgeous! Every child needs a father like this. God Bless them! 🙏🏼❤️❤️❤️

[@lukestash7346]

The father is so patient and loving. I can't imagine having that constant responsibility but he handles it very well.

[@cherrywilson6267]

That family is so blessed to have him...they are truly amazing.

[@Ari6lle1nWonderl2nd]

Devin has selflessly risen to the challenge of being a full time single parent, caregiver, and provider for Holden, and it’s really heartwarming to behold the love shared between Devin, Holden, and Holden’s grandmother. Even though it appears that the mother isn’t in the picture for whatever reason, it’s clear to see Holden is going to be just fine and still has plenty of people who love and advocate for him. Thank you for sharing this beautiful little boys’ story.

[@devinsisak3826]

Holden's mom is still in the picture.

[@americangirl6654]

@@devinsisak3826 That’s great to hear. I guess I’m just confused about why she wasn’t mentioned in the video at all.

[@devinsisak3826]

@@americangirl6654 we aren't together and this was shot at my home. She was here for it and brought Mallory who is Holden's half sister along. She just isn't an in front of the camera person. They also filmed for 11 hours to get this 5 minute video. They were focused on showing the things that I had adapted for him.

[@americangirl6654]

@@devinsisak3826 Oh, I see. I didn’t realize you’re the father! I’m sorry, I totally didn’t mean to pry into your private life. Regardless, what you are doing for your son is amazing, and it’s really heartwarming to see a parent go so above and beyond for their child! Your inventions and modifications are genius, and I suspect that many other parents who have children with disabilities will try implementing some of these ideas themselves.

[@devinsisak3826]

@@americangirl6654 no worries at all. There aren't any bad questions and yes hopefully this inspires others to try and push themselves the same way.

[@pyrokretic1620]

I've been watching videos on this condition and all the kids seem so happy. Yes they hurt themselves but that doesn't define them, their personality defines them it's heartwarming.

[@prettyinpink8349]

My son has cerebral palsy as well and I’m just impressed with the parents and how they do everything to normalize their child’s life! You guys are so wonderful! May God always bless all of you for your hard work ❤

[@heididelarocha5317]

such a handsome buy. what an amazing father, grandmothe( I love how the grandmother interacts with Holden) , sister and friends this young man has to help support him and encourage him. Holden's father is truly what every man should be, loving, commited , unconditonal love, creative in trying to help him participate in sporting activities with others, and to be able to experience the joy of movement, you can just see the true love this father has for his son

[@1979Rockstar1]

An amazing father to love his son so much.god bless his son and his family.He’s a true inspiration to all of us no matter what difficulties that his son faces he’s giving his son a sense of normality.

[@raincoleman6305]

What a adorable young man. The dad is such a amazing father. I'm loving seeing him involved with his son. They have a amazing family. The grandma is so in love with her grandson. Thank u for sharing.

[@martinmonette7114]

Devin...you are a real dad...what you do is pure love...keep up the great work my friend🙂

[@kimboots1]

I am an impatient, imperfect anxious person. Grandmother and dad deserve praise for doing what they can for this young man.

[@maryjs4878]

That's his great grandmother.

[@kimboots1]

@@maryjs4878 That's even better. What a great team.

[@d.o.y.vcaninebehaviour.hea1558]

He’s gorgeous. And dad. You are a super hero. Seriously. ❤

[@BossQueen]

I worked with children like him, and I loved it. One of my most rewarding jobs in life.💯💕

[@ZakHesse]

I’ve always wanted to be a Dad and I haven’t been blessed like that but I hope that one day I will be and I hope that I’m half as amazing as this Dad is to his son!

[@quinnyeager6693]

Love how dad adapted all his toys so they worked for him. So inspiring 🇨🇦❤️

[@datpsychobytch]

2:10 his grandmother 😭 the love this kid is surrounded by is incredible ❤️

[@devinsisak3826]

That's his great grandmother. That doesn't even capture the whole relationship they have. Sometimes they are too much together.

[@datpsychobytch]

@@devinsisak3826 you guys are literally so amazing! The advocating you do for you son and the way you make all his games Accessible for him is incredible.

[@Noplacecalledhome]

God bless this little fella ❤️❤️❤️🙏 Father you're doing great!

[@SarahJeanCole]

Wow my heart is so full watching this father with his son. All my love from Michigan ❤️

[@tcull1216]

What a family! The dad, the great grandma! Theyve really nurtured and helped him to be the amazing little dude he is!

[@triplea5618]

Mr. Devin, you’re truly an amazing father. Thank you for stepping up & taking good care of your boy.. I’m sure you have your days when it all hits u and u break down but just know God sees all ur hard work & has big plans for u one day. Much love to u & ur son

[@evakoyanagi1812]

Seeing how happy Holden is when he is interacting with his fam & friends is beautiful, what a gorgeous happy and blessed boy, It's nice to see they producers are showing people from Canada, my daughter lives in Hamilton, it's a wonderful place it's known for the waterfalls in Ontario

[@jackycook64]

I worked with a young man with this diagnosis. I used to take him out to different places and play games (skee ball was a favorite although I had to hand over hand so he didn't chuck the ball at me or some unsuspecting person. We had a lot of fun. He had a fun and mischievous personality. I ended up moving to a different state to finish my degree. Miss him but I feel so fortunate to have had the opportunity to meet, work and learn with and from him. He taught me a lot and helped make me a much better person and professional.

[@devinsisak3826]

What's his name we might know him.

[@christinehallett7973]

This father is an inspiration... I have no words for the compassion this man has. He has managed his challenges in such a way that shows his true kind caring nature. Bless him and his family

[@karendunn3590]

What can I say there’s not enough praise or anything I can say about how awesome this dad and family are. Theres not enough words

[@raytas9140]

Dad of the year I love how he changes the toys to help his son ❤️❤️❤️❤️

[@itsliz2004]

God bless this kid, he’s so lovely and cute. One day, I’m gonna help him and others…♥️♥️

[@leonaleona1628]

It's such a rewarding field to get into! (I've done it for many years and I'm a mom of a son with Cerebral palsy. )

[@sydniaunderwood2000]

That's great!! I'm going into education and the school I go to we cover all different areas and different types of children and my roommates are in special ed or have plans to become specialist.

[@newyorkusa9155]

Good we need more kind people in this world ty

[@tinaplourde2]

That's awesome 👌 👏

[@itsliz2004]

@@leonaleona1628 Yeah, but I’m not gonna work on that field. I’m gonna study languages. But I’m a rookie athlete (Shooter), if I go to competitions or even the olympics I’ll earn money to donate to them. But if I don’t make it, I can be an air hostess, and with the money I’ll donate. 🥰♥️ If my dream doesn’t come true is for a reason. 💗

[@ecuadorexpat8558]

Now..THATS A FATHER..God bless you

[@jennifer2185]

Wow, so glad he has such an amazing support system! His dad is incredible for adapting his toys and activities so he can play!

[@SoCalJellybean]

What a beautiful little boy! It makes me happy to see he has such a supportive, amazing family! ☺️

[@LadyInner24]

Holden has a beautiful spirit and family.

[@mizzkrizz2045]

This family is amazing! Holden is so lucky to have you all! The lenghts you will go for him 🧡. Wishing you all the best. And Holden, you're an incredible dude with the cutest smile! Keep beating everyone in all the games!

[@sengarmajeed3906]

You are best Dad Gods give you more power and blessing.

[@g.w.hampton5525]

Uplifting... that's all I can say. Wishing you all the joy and wonder the world has to offer.

[@sadfiremccraven4579]

You have such an amazing son . It's really good to keep him active instead of shield him under that condition . Stay positive cause it's a hard job to take care of your son when he can't do it himself . Much love

[@tajhayes7841]

MAJOR KUDO'S 2 this Dear child's Daddy!! N'stead of run'n away from his child like a coward, he IS GRAVITATING TOWARDS his handicapped child, HELPING him, PLAYING w/ him, CREATING not only memories but also ways 4 his child 2 interact with his peers & PARTICIPATE in activities w/ them as well!! THIS man is a SPECIAL HERO not only in his children's eyes but, mine as well!!

[@maryannewebster4278]

Hi everyone its Maryanne yes i agree with you what an amazing father and that his little 8 year old son Holden is such a sweet boy god bless all of the family and friends❤

[@katmc7803]

He's is always happy as to smiling .Thank you.

[@Ap9leJacks-wy3pq]

He is a doll. Playing with grandma. He's so cute. Daddy is a saint & great father.

[@mmendez2579]

You’re an extraordinary dad! God bless you and your handsome son!

[@Asdfgqedfglo]

That’s an amazing father. God paired that father and son so perfectly.

[@loveiskind23izamar]

The father was the most sweetest soul. God only gives you what you can handle. He evolved into a angel for his boy. Just the way he speaks and what I saw in this short clip moved me to tears. This man is such an inspiring person.

[@devinsisak3826]

Thank you.

[@karencampbell2410]

Go you Dad! It is sad that Holden has these challenges but Dad, you are exceptional on giving him as many opportunities as possible.

[@kelsieauger33]

His dad was matched for him in this world god bless you both 🙏❤

[@amygaouette9667]

You lottery are the dad of a lifetime. You both are so blessed.

[@perniesweemmer51]

What a lovely father and granny...bless you people...you're an inspiration to many!🌻🌈🌻

[@stevenqbosell]

God bless this dude and his kid holy moly, makes you grateful for everything you have

[@katmc7803]

That's so wonderful to do this your a great father bless you both so much .Thank you.

[@migueljosemontecillo1858]

He is just Built Different

[@adablack4239]

He's such beautiful cute little boy God bless him and may God watch over him

[@Knight_Mode]

What a fabulous human. And incredible father.

[@Iamwoman21]

You and your family are rare gems. Your love for your son is palpable. You’re perfect for each other. And we just give mad props to the pizza shirt 🤣

[@melodysearcy4831]

Wow this dad is amazing! He goes above and beyond for his son and Holden is a lucky boy!

[@allaboutherterritory]

Situations like this you question where is the other parent? The father has lots of patience some Dad’s couldn’t even handle this. ❤️

[@devinsisak3826]

Mom's there she's just as involved. He is lucky and has two great homes.

[@succurin8541]

She probably just didn't want to be in the video.

[@devinsisak3826]

@@succurin8541 you're exactly right. She's just not a camera person.

[@tp8077]

Little boy is so lucky to have such a wonderful father

[@kimtodd1803]

His father is inspiration teaching his son to go above and beyond n his son true warrior and inspiration

[@evanmcnamara3704]

best dad I didn't have. ur amazing to bring your child to safety in helping his disability by having the arm yolks.

[@joeywinn2234]

I seen your story on snap chat and came to KZbin to see if there was more info about his condition or if you know how rare this condition is I’m asking for a loved one you are an amazing Dad!!! The amount of effort you put forth is amazing as well as you being able to modify or make life more comfortable for you son God bless you and Holden

[@boogiemonstermom677]

My son has autism, and sometimes he does what I call, "self punishing", and will slap, punch, or hit his head against something when he feels he's done something wrong, or not as well as he thinks he's capable. It breaks my heart when he does this, because I understand how hard he tries, and he doesn't deserve the abuse he puts himself through sometimes. I know what my son does isn't the same as this, but a part of me can empathize with how he might feel seeing his son do these things to himself. He's such a wonderful dad though, and you can tell he's bringing his son as much happiness as possible.

[@Mels1125]

His father is so amazing!! I am inspired by him.

[@leannabrenner]

How truly amazing for you to share. The adaptations are incredible! You are the perfect father- God made Holden just for you!

[@momc6972]

You are an amazing father..... hats off to you .... you are doing a great job

[@cee_el]

The boy will grow up with a loving family which is more important than anything else

[@rebeccashuman6199]

He’s such a sweet adorable little boy! His family is lucky to have him. God bless this family 🙏🙏🙏

[@sinkvenice857]

What an exceptional father. If I were wearing several hats, I’d take them all off to him 😊

[@walkingenmity]

I love all of the adaptive devices the dad put together. So happy that Holden can fully participate in the world around him, just like he deserves.

[@Platotoolate-o]

Love this. Showing how no matter the disability people are people. ❤️❤️ love everyone