My child is diagnosed with Autism - How to move on after autism diagnosis

It’s really scary when you find out that your child has Autism. What can I do? Where do I go? So I thought it would be helpful if talked about a few things that you can do after a diagnosis.
An autism diagnosis can be difficult to come to terms with. You may be coping with a condition you know very little about, and trying to find new ways for everyone to live together and feel supported. Many parents aren't given any guidance on what to do next. Moving on from a diagnosis can seem daunting, but we’re here to help. When a child receives a diagnosis of autism, Asperger syndrome, or other pervasive developmental disorders parents and family members may experience a range of feelings. These feelings can include grief, denial, anger, fear, and confusion. If you are a parent, you may feel or have felt these emotions.
This is important for autistic children, who can benefit from appropriate, sometimes intensive, support from an early age. It’s also important for families, who may benefit from services such as short breaks. A diagnosis can help your child to get autism-specific support, but this doesn’t happen automatically.
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Website - cominghometoautism.com/
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Video Producer:
Tiara Westlake www.kamukami.com/
Music:
Tenderness by Bensound www.bensound.com/
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[@miahammonds525]

I’m 17 and autistic. Where the topic of autism was taboo at the time, my family still knew that I had some things going on with me. They did provide me with ABA therapy, speech therapy, physical therapy as a toddler and at school, I had special education services, more speech, and mainstream. I’m grateful that I have parents who learned to understand me, support me and get me the help I needed because otherwise, I wouldn’t be typing this comment right now. ❤

[@jennypetch]

I cried with your message ❤

[@benk9947]

Same - this comment really made me feel some sincere hope for my son. Thank you!

[@BeeGees2012]

I am a parent of a newly diagnosed autistic child. I feel like I'm in a state of mourning. I have cried. I am stressed. In Africa, Kenya my country these conditions are shun upon. Therapies are expensive and specialists are few. And these are urban centers. Rural areas is far much worse. I am so afraid for my child and family in general. God help us. All you have suggested is great but it is of high cost here. I am trying to be strong. Never in my life did I ever think I will raise a special needs child. As of now I'm inconsolable. 😭😭😭😭

[@nathalienieva2443]

I saw this video right after my son got diagnosed, i remember crying in the car and looking for answers , your video made me feel so at peace and reminded me that everything will be ok . Thank you for your video .❤️

[@ilaisaanemahe6363]

My princess is on the spectrum. Me and my husband took it very well. She is her own person and will learn her own way. All we can do is love her and get her as much support as we can. We never had any sad feelings towards it. We accepted it as soon as possible and kept it moving. She is the most loving the smartest little girl, and honestly we wouldn’t change it for anything. We love how she is and who she is. If anything she has made us change and be better people. I know it’s hard and difficult for everyone, because we deal with it our own way. But all I can say is parents love your children no matter what. They are our little blessings and it might be harder for some, but know they love us and we do what we can as best as we can. Keep at it, our kids deserve everything and more. Be strong but ask for help if u need it, cry if you need to it will all be ok, and never stop showing them love and how courageous mummy and daddy are.

[@Zeiby90s]

👏🏼👏🏼👏🏼👏🏼

[@enriqueeaglesigns1154]

Today me and my wife where confirmed that our son indeed has level 3 autism. Thank you so much for the help. We will learn to listen to his intrist and use his intrist to help him grow more.

[@katelynsteen1563]

My third child was just diagnosed this week. I have 3 autistic children aged 8,7 and 18 months. Thank you for reminding me to breathe.

[@ComingHometoAutism]

you got this mama. its the hardest job. I have two on the spectrum i am not sure about my little one yet as she is only 2 and they show autism in a different way so we shall see. Sending you much love xox

[@gk5063]

Keep breathing Katelyn and take care of your beautiful children.

[@maryamkhurram5386]

God give you strength and your kids will b Norma kids InshAllah

[@alfydarkdeadly]

How autistic? If they are mild then u don’t have a tough task.

[@jowillard2373]

Love the comment Tara that we as caregivers need to change, not the child. So true. It’s so hard not to get caught up with the main stream expectations and comparisons. Yes just breath and experience your child.

[@ComingHometoAutism]

big love to you x

[@nallelyescobedo1347]

Thank you for giving me such a hug with your words. I am trying to accept this even without being diagnosed. Have seen a few red flags and they are evaluating her soon. Thank you for bringing me back down to earth.

[@ComingHometoAutism]

You are so welcome

[@michaellacoopman2303]

I’m waiting too. God Bless you!

[@paru155]

Great motivation 👍 My son is diagnosed with autism and am taking all this therapy for the past 3 years. Still hoping to hear first word from him.

[@AshleyLaine]

Thank you so much for posting these videos! This was the first channel we found after Jesse was diagnosed and it was such a relief to see that are son is not the only one who does these things! It was such a comfort to watch these, know we're not alone and give us idea on things that might help our son. I'm so happy we found you guys!

[@tylermanuel1623]

It’s been 3 years since my sons diagnosis and I still have a heavy heart about it, he’s my baby and I want the best for him and I feel so much guilt and sadness because he has to live with this diagnosis. He’s still a blessing and I love his with every once of my being. 🙏💙

[@DarkAngel-cj6sx]

Oh I thought it will get easier. My son used to talk and in June he stopped. I am so sad that when I open my eyes my heart hurts.

[@tylermanuel1623]

@@DarkAngel-cj6sx yeah that would be tough, how old is your son? My guys 6 🙏

[@DarkAngel-cj6sx]

@@tylermanuel1623 my son is 3.5 years old. It is just crazy from talking to no talking. He made up his own language and he is frustrated that I cannot understand what he is saying. I hope your little guy is progressing

[@lachellewade5330]

Diagnosis with I have autsm to My name is lachelle

[@shengbacayo3102]

Hi!Me and my husband love all your videos.Im looking forward to watch more.You have a very awesome family.Thanks for all your tips.God bless you more and family!

[@elizabethwilson110]

When you were talking about doing too much, almost for them, that’s what I’m doing now and I’m trying to change that myself. We are working on him dressing himself or putting his socks and shoes on. It’s hard to watch him get frustrated since his hand strength isn’t there yet. Thank you so much for these videos.

[@rociopadron2329]

My 3 year old son has just been diagnosed with autism and seen your videos has been a huge help. Thank you.

[@eeyasky]

I'm so happy I found your channel. Thank you so much for your amazing and inspiring vlogs. More blessings❤

[@daniellehyatt3733]

My youngest son has recently been diagnosed and I have to tell you I feel like my heart is breaking in his report was in my opinion all negative and to me I was devastated and thought all my visions I have had for him in the future was just crushed and what to do now But I have stumbled across your channel and it has brought some peace over me to know as long as I’m unstoppable and never give up my son has a chance to talk to make friends to maybe one day have a job or fall in love Thank you for your videos they help tremendously

[@desireejohnson-flemister9947]

Somehow I can’t get past the reality without crying . But I’m praying for the acceptance and all of the grace needed to see That I am enough to do this bc he’s the purest blessing even though it’s hard

[@TheWeeFamily]

So much good information. For us, it took a while but once we started viewing autism in a positive way, it changed our lives for the better.

[@ComingHometoAutism]

The Wee Family a small positive change in the way we think can make a huge difference. I refuse to live my life feeling sad ❤️❤️

[@juliemadden6857]

I love your comment Tara on how Autism does not take over your child...it's still your child..your baby. Also, how you were the one that had to change. This is a beautifully well thought out video and watching it is so relaxing and comforting.. I know you make it look easy, but you have had some hard times and have learnt the hard way. These videos will be such a comfort to parents with recently diagnosed children.

[@ComingHometoAutism]

Julie Madden thanks mama I love you xox

[@djiwodiallo1118]

9⁹8

[@jituyt]

Thanks for putting efforts to document your experience!

[@ComingHometoAutism]

Thank you so much your so sweet 💕

[@lauraprince1944]

Thank you so much for this video. My Son is waiting for his assessment which is on 3 weeks time and we are hoping if he gets the diagnosis that it may lead to us getting more help. He has started in mainstream school 6 weeks ago and has done amazing well but is not struggling in these last 3 week. It is comforting to know we are not alone and communities like this provide great support. X

[@ComingHometoAutism]

Laura Prince definitely not alone we all here to support each other x

[@TruthTeller_24]

Thank you for this from the bottom of my heart ❤️

[@LD-if3vq]

Thank you so much! You have no ideia how much you are helping me on this insane process!!!

[@ComingHometoAutism]

Thank you so much xox

[@priscillasanchez2242]

This is so helpful to many families. I felt the same way with my little one. I was so lost. Had thousands of questions and concerns and thoughts. I know better now. 🥰

[@ComingHometoAutism]

Priscilla Sanchez ❤️❤️❤️

[@My89Rhythm]

I really love your videos. Thank you, as always for sharing. I have been afraid to put my son into swimming classes but you have made me realize that my attitude towards trying activities with him is also holding him back (I keep thinking that something is going to go wrong or he won't like it).

[@ComingHometoAutism]

My89Rhythm that’s awesome! I’m so happy your going to give it a try ! You got this xox

[@gk5063]

Another amazing video with helpful tips. I could listen to you all day. I will just add that sometimes doctors in the UK are not very helpful so people can try ( for speech therapy referal, autism or not ) health visitors or even self referral. Also going private sometimes helps while awaiting for the NHS to take over as the waiting list can be so long depending on where one lives. Early intervention is key. Thank you again and keep them coming. I now feel part of your family 😊.

[@ComingHometoAutism]

ginette pamela this is great advise. I had to literally bang my dr door down , three times before I made him refer me. Thank you for your comment and advise xox

[@hanaechiar7563]

love your video and so happy to find your youtube channel

[@ComingHometoAutism]

Hanae Chiar thank you so much x

[@ScottKS14]

Thank you my son was diagnosed last week he is 3. 💙💜

[@ritak3499]

This is very insightful! Thank you so much

[@ComingHometoAutism]

thank you x

[@Proteinpapi210]

Thank you for this video my son just had his three year appointment yesterday and his pediatrician recommended that we go see a specialist given that our son is showing some characteristics of autism it is definitely a hard pill to swallow in the first person you wanna blame is yourself but I know that God has my son in his arms and is going to be with him all the days of his life thank you so much for posting this video this is something my wife and I need to see God bless you

[@ComingHometoAutism]

Thank you xx

[@glowmorales447]

Thank you for all the information when my son got diagnosed with autism I just black out and I couldn't make any questions

[@Waltaberhane]

Thank you.

[@theeverythingkid]

Just remember every autistic person is different, what one person likes another may dislike.

[@theohanamomma8497]

My 5yr old son was Diagnosed with Autism at the being of the month. This has been in the works for over 2yrs now. For me and my husband and I it was a sigh of relief getting the diagnosis. We now can come up with a plan of action to help him. We are now in the paper work stage to start getting him more sevices for him. Thank you for this video it is so nice to hear what others went through and being able to relate to them. I loved your horse story! It made me giggle. My son started talking when we got a cat he would hold her and just talk to her for as long as she would let him.

[@ComingHometoAutism]

thats amazing, animals can really be a calming influence on our children thank you for sharing x

[@faizaelaz2978]

Thank you so much for all your videos I always go back and rewatch them. You are an inspiration to us all. Thank you for giving pure genuine advice xxx

[@sophiaberaki3269]

May Good bless you 🙏🙏🙏

[@Chrriekay907]

Honestly we were extremely happy to learn that our son has Autism, he's extremely smart, sweet, and reliable.. I couldn't be more happy to have a child who sees the world with different eyes than the rest of us boring people :) I can't wait to see what he does in this world with his intelligence and love! I mean how freaking lucky am I that my son is this amazing special person. I have no doubt in my mind that he's going to do amazing things, he will feel things differently and it'll be my job to help him navigate that.. and I understand what it's like to be on the outside and considered weird.

[@saidohersi7652]

Thank you very much

[@bettyam9917]

Thank you for your videos💖. When I became aware of my son's symptoms that is all I started to see. My grieve didn't let me see my child but thankfully my friends and husband helped me realize my son is still him just like you said and eventhough I didn't have an official diagnosis I started the process of getting him the help that he deeds. He was finally diagnosed last month and I now know that that does not define my child. He is still my happy goofy smart little boy.

[@ComingHometoAutism]

Bettys Eyeson this is wonderful to hear. And great you are starting the process even without an official diagnosis ❤️ well done you x

[@whitneymason406]

I love "The Horse Boy" it was one of the first movies and books I read once I got my son's diagnosis :)

[@whitneymason406]

@Ignace Alli riiiight

[@Hala-vd2yl]

Thankyou ❤️

[@jacobclayton1995]

Hello thanks for the video it has really helped me I have autism to. What cams me down is coulring. Can I just say your videos are good.

[@user-kt4du7vp4p]

Neurofeedback is the best therapy that changes the life of autistic people its the most modern therapy nowadays in neurosciences

[@ComingHometoAutism]

thank you x

[@sandyasama9697]

Thank you for your helpful video. I have also heard many benefits with hippo therapy ( horse riding). Here in USA we got to wait until two years of old. In next we are gonna try.

[@ComingHometoAutism]

horse riding can be so great good luck with it all x

[@theunscriptedsuccessstory8898]

I still mourn occasionally. I looked forward to conversations with my child. It is still a hard blow that my child doesn’t speak. Each day though, I try to learn how to communicate with him as he does with me. I’m that crazy lady whose having exaggerated animated conversations with her child. It works and I’m glad.

[@leeson44]

agreed...when we noticed our child wasnt speaking only saying 1-3 words at 2 1/2 and i mentioned it to other friends/relatives... their usual comments were..."roll their eyes... when your child starts you wont get them to stop its gonna annoy you" ..to which i responded...it may annoy YOU but not me...the day my child says a few more words im going to be so overjoyed i may just cry...hes 3 now...they just told us yesterday he has a mild form of autism i became very sad but at least we know why he behaves how he behaves....the outside world wont understand what happens in your home with your child and thats ok you dont gotta explain it to anyone...definetly get your child into speech that will help a great deal....mine has been in speech for lik e4 months and now speaks like 10 new words...he repeats them often and gets excited when the chance presents itself for him to use his words ....having those animated conversations with your child helps their imagination...i never did that before with my kid but i noticed when i change my tone of voice and use high pitch sounds and pretend voices of little kids he is very interested and more likely to follow me and play together......it is important to learn from others many people have different but similar experiences with their autisic children ..ive watched many videos..in fact go on netflix and watch "dating on the spectrum" it is very interesting...all those poeple are autisic and are adults but so very intelligent...

[@thedoctorsassistant1]

i have just subed to the channel love the videos

[@ComingHometoAutism]

Thank you so much. Love hearing feed back x

[@queeneyl2852]

Thanx my son waz diagnosed 2 day and my first ? waz watz nxt? I then found ur video and I must say it made me feel 💯 percent better.

[@ComingHometoAutism]

Wonderful thank you so much for taking the time to comment x

[@leannehallett4716]

Thank you it's been a verry long process my son does speach and language theropy and we are trying to go down the pecs route. Could you do a vid about toilet training a non verbal autism child my son has lost interest in going onto the toilet but I know it can't be rushed :) love your channel everything with the hearing you went thru we did aswell but deep down I knew it was more likely autism.x

[@ComingHometoAutism]

yes i will thank you for the feedback. If it helps in my book Coming Home to Autism we have a whole section on toliet training and my co author who is a speech therapist she speecifically talks about helping potty training your child who is non verbal x

[@jaimereynolds258]

My son didn't get diagnosed with autism until he was 7. He is 11 now and nonverbal. Kept seeing a bunch of different people, and they just kept saying that maybe he was experiencing PTSD or just being stubborn...I wanted to scream at them. Finally, I saw a great behavior therapist that gave me the diagnosis and information we needed. Was the best day because then I knew what roads to take.

[@ComingHometoAutism]

sending you a big hug x

[@leannehallett4716]

We might be getting our son diagnosed on Thursday after a long wait. Love your channel been thru alot of what you have been thru my son is 4 non verbal. When did your son start to talk. Scott is becoming more vocal slowly so we have hope. :) x

[@ComingHometoAutism]

hi there, such a frustrating time for you that long wait, Dylan didnt start talking really until he was about 5 and even then no one could really understand him. his speech came on when he was about 7,8,9 . the woman who is talking at our even Ros Blackburn was 10, 11 before she started speaking. please keep the hope . sending you much love x

[@corrigana1]

I have pdd nos which is under the autism spectrum umbrella

[@kelseywall7455]

My autistic son absolutely loves water and he is fearless. He gets so upset when we have to leave. If he could live in the water I believe he would do it.

[@isbeliasaladinharter9897]

Were you referred to see a Neurologist also? We were told to start ABA which is great, but also to see a Neurologist.

[@lucleciajsantos]

I am still new on this... and some days i cant stop crying. I look at my little boy and i am so thankful for his life but i am scared 😔. He is only 2 and has been 3 weeks since the diagnosis

[@brightstar3892]

My daughter is two and has said as many as 30 or more single words when she wants . I know she can say them because I’ve heard it but any tips on how I can encourage her to speak more often?

[@rdhami7639]

Hi could u please tell us more about aba therapy? I couldn't find any aba therapist in uk

[@priyasrinath3426]

I feel so calming listening to you ... when did your child actually speak

[@ComingHometoAutism]

thank you ;-) Dylan started to speak when he was about 5 but only the odd word couldnt really understand him. He started to really speak well when he was about 8 -9 years old. x

[@hanaali8191]

@@ComingHometoAutism that's amazing after age 5 most parents lose hope.My son's 3 still not speaking hopefully soon.

[@ComingHometoAutism]

Never loose hope keep trying and trying and trying! Xox

[@dominiquegordon8813]

@@hanaali8191 🙏

[@DarkAngel-cj6sx]

My 3 years has been diagnosed on September 2 and when I am not crying, I am looking for information on how to help him. I am worried about his future that is what makes me cry. What I don't understand though: 1) he still smart like before except he can't express his words. He used to talk and suddenly stopped

[@secretangel2302]

Hi, what if my child doesn’t want to go to school in the morning, but he is very happy at school after he is in there. I literally force him to put him inside the class. It’s just 2 mins of crying then it stops. Lunch time I bring him home (feeding issues) and after lunch he is happy to go back to school. It’s just the morning time that he cries to get into. I tried giving his favourite toy with him or headphones nothing stopped him from crying in the morning. Thanks 🙏

[@h_s8802]

Tnx for your vedios❤️ it’s really helpful for me. Could you plz tell me about your son nursery and school? Did he go to any specific nursery or school for start? My son is 3 years old now he is going to normal nursery but today educational psychologist saw him and told me to decide where should i take him for pre school , she told me if i agree to put him in especial schools for some one who need extra help, or normal schools , my question is , is it good to put him on normal school or some where els with other children who need help.

[@ComingHometoAutism]

Tamana Aria I had the same concerns myself. But the best thing I ever did was put Dylan into a specialist nursery he was there for two years and then for reception he went to an autism base unit he was only there for a year and made such great progress we then moved him to a mainstream school with one-to-one support. My advice to you is get him into a specialist setting first and then he can transition into a mainstream school later. The trouble if you put into mainstream school now if he is struggling he may revert backwards where is getting him the help he needs every single day lace such a great foundation for him xox

[@catharinegrantham3300]

He is so cute

[@ComingHometoAutism]

thank you so. much x

[@jenniferya2267]

Yesterday I found out my twins, have Autism one mild and the other one severe. I'm scared, I'm nervous, I don't know anything about, I'm afraid to fail them 😢 it's 2!!!

[@ComingHometoAutism]

You won’t fail them. Trust your self and your mama bear instincts . You won’t give up you will fight for them . All will Be ok. I’m Sending you a huge hug x

[@michaellacoopman2303]

My son is 20M old and I’m waiting for a diagnostic test. I know in my heart he has it. I’m scared, I’m confused, I blame myself. I’m disabled myself I use a wheelchair so I feel extremely overwhelmed. Do your autistic children enjoy life? Is it going to be ok?

[@TheSpaniardAussie]

In Australia is pretty awful accessing to these services cost a fortune and wait lists everywhere...the allied health industry is really bad...

[@merinbabu1760]

Did Dylan hand guided you before he started to talk? My 22 months old does that a lot. He grabs my hand and take me to the fridge/pantry..

[@ComingHometoAutism]

yes he did a lot of this. thats a great sign . keep going with this xx

[@rivertheservicedoodle1730]

I just got my diagnosis I’m 17. I’m trying to figure out what now because I don’t know how to go forward with school and everything

[@arameelengel7546]

I hope you are doing fine. We are all different. That is what makes us beautiful.

[@lamiadoumandji7712]

It's hard ...I am dating someone who is having 2 kids severe autist8c Am not sure if I can make it .. He dies not live with them... But I will deal with it at certain stage.. Am worried

[@MerriMom]

I’m helping myself to change. My daughter is already 7. What can we do now?

[@heythere6983]

look into ketogenic diets and its relation to this, look into gut health

[@jelenajurkovich]

I dont know if you already talked about this in your previous videos (you can link it to me if you did) but i want to ask, if you did any genetic test for your son, yourself, or your husband, before you decided to have another child. Just to come with some answer why he has autism. More than anything i would like to have one more child, so my boy can have friend for ever, but i m still in accepting phase that something is not right with him, we are still waiting for diagnosys, but he is already receiving speech t, and ot. I m so scared for his future and if he is ever going to be verbal, so i dont know how i would live if same thing happens if we decide to have one more baby. One more question- how old was your son when he started aba? We live in US, so we talk to some doctors that recommend as soon as possible, but some of them think its better after 3rd birthday :/ thank you for your time and answers, you have amazing family

[@ComingHometoAutism]

we decided not to get tested, there is a genetic test you can do, but to me it didnt matter. i wanted another child no matter what. so happy with my three babies. if you want another baby , go for it. it will all work out the way its meant too oxx

[@DarkAngel-cj6sx]

I have decided not to change what I had planned to expose him to because he is autistic. If he doesn't like it then we look for something else he likes. Do you parent an autistic child differently?

[@ComingHometoAutism]

I try not too but with all children its important to take their personalities in to consideration when parenting oxox

[@sarssi23]

What are your thoughts on ABA Therapy?

[@ComingHometoAutism]

we used it for a few years i think its all down to the teacher but we found it very useful x

[@alfredojrdelacruz1]

I appreciate these video my child has been diagnose with autism and have tried to bring him to therapist who teach motor skills for several months I don’t see any changes when we bring him back to the doctor who diagnose my child the doctor suggested we the parents should try interacting with our child more not bring him to the therapist it’s been a year now and we get frustrated see no changes my child now is turning 4 this year and we are concern that our child is not being able to interact with anyone. Hope you could be able to give us guidance in this matter?

[@MsCherylB183]

I’m in the U.K... how did you access ABA therapy? x

[@ComingHometoAutism]

i foudn some one locally i searched on line. unfortunately it is not funded yet x

[@MsCherylB183]

@@ComingHometoAutism ok thank you. I have looked online but don’t think there was anyone local. I’ll keep looking x

[@SvanhildurSvavarsdottirMScEinh]

use developmental approach -

[@christinebett4677]

My son loves to lay in the bath on his back with his ears in the water which I always thought funny but he loves doing it

[@ComingHometoAutism]

Christine Bett it must be so calming for them. Dylan loves to do this also x

[@samanthasanchez8323]

My son does that too in the bath

[@suesmith4360]

The diagnosed are the lucky ones. Autism didn't used to exist, only bad behaviour or crazies and people unable to conform were misunderstood and punished.

[@dumbty344]

Can someone let me know how is autism diagnosis done ??

[@ComingHometoAutism]

go to your doctor and they will help you in the right direction

[@childwithautism7585]

Hell mam can I use your 2 mints this clip ?

[@afsahfarooq710]

did you not try CD?

[@abbystephens9766]

I have high functioning Asperger’s and luckily I got diagnosed at age 2 so my family caught it early.

[@Samantharichie1986]

ABA is horrible! I do not recommend it, and I actually encourage stimming. Stimming is how autistic people regulate emotions and it is essential for them.