My Endometriosis Story

[@kaylatodd3561]

This is an amazing and educational video. Thank you for taking the time to post this. So many women have this, including myself. I have pain about 75% of each month. It comes whenever it wants and I never know when it’s going to come. My doctor recommended surgery or birth control.

[@hannahlindoo]

Hi Kayla! I’m so sorry to hear that you suffer as well. Birth control can help to mask your symptoms but it will never make endo go away. Some women find relief with it and some don’t. The gold standard is always excision surgery. It’s expensive, depending on your insurance, but preferred over an ablation surgery because it gets to the root of the disease. If you need help finding an excision specialist, join Nancy’s nook on Facebook. They have tons of resources about endo and related illnesses and you can find an international list of excision specialists.

[@kaylatodd3561]

@@hannahlindoo thank you so much!

[@natalieayala2008]

Oh wow I was getting to this. Most of my endo symptoms was just painful on the day of or a couple days before w the day of. But about a yr ago it started being the whole week before and most of the period week. Then two weeks before p. plus the week of (3 weeks straight). I just recently found relief but it wrked. I also had started getting extreme PMS that was like being pregnant every month. That has mostly gone away. I still have a horrible day of but the other days of the month the pain went away. Sometimes I get the pulling sensation or sore bloating a few days before period but thats it. What I did was go from meat 3x a day and goat dairy 1x a day, regular butter use and occasional ice cream and eggs to no dairy and eggs, meat no more than 1x a day (like just dinner), increased water to 96oz and added a lot more plant based foods and whole grains. I have done this 4 mo and has progressively gotten better each month. I did veganuary this month and added Dr. Goldner's hypernourishing smoothie. Look her up here on youtube (shes under Goodbye Lupus Dr Goldner). This whole month I have been fully plant based with the smoothie and have had no mid month pain or body aches. Period has not come yet so cant tell if pain of the day of has decreased. I plan on still eating meat on occasion but being mostly plant based but I do not miss eggs or dairy. If you do anything I definitely recommend starting with the smoothie (its not any old smoothie its strategic), 96+oz water, and getting consistent good sleep. Then if you can move towards being mostly or fully plant based.

[@hannahlindoo]

Wow that’s amazing! I’m so glad that you found something that really helps to relieve you of your symptoms! 💕

[@adriannajade987]

i’m on my journey to getting diagnosed and it’s the most frustrating process i’ve ever been through. I just have done so much research and watched so many stories I know this is what I have and I feel like no doctor cares about me it’s so frustrating and they’ve mentioned it but keep pushing me off and told me to research it.

[@hannahlindoo]

I’m so sorry to hear your are struggling through this! I know how it feels to have doctors not care and push you off. I highly recommend that you check out Nancy’s nook on Facebook! I put a link in the description of this video. It’s an educational page for endometriosis. I think one of the best resources on the page is an international list of endometriosis/excision specialists. Not all doctors or gynecologists are educated and trained in how to correctly treat endo, so it’s so important to find a specialist. Even if you have to travel for care, I believe it’s so worth it.

[@lokirexsid37]

I'm in same boat

[@hannahlindoo]

It’s such a hard place to be! My advice is always to Join Nancy’s nook on Facebook. There you’ll be able to find lots of credible info about endo and surgeons who are in your area. I’m sorry to hear you are struggling! Know that there is help out there and you are not alone 💕

[@kaylatodd3561]

You have great video and editing skills. I hope your channel grows much larger.

[@hannahlindoo]

Aw thank you! I appreciate that ☺️

[@GrootLoops76]

Great video Hannah! It was very interesting hearing your story and learning more about Endometriosis :)

[@GrootLoops76]

Also first time I watch your video where I was the first viewer haha

[@hannahlindoo]

Thanks Groot!!

[@Quit3Cut3]

Finally getting surgery next month, but it showed up on my mri. Deep infiltrating into my bowels. I’ve been dealing with pain since I was 10 and I’m 34 now. There are days I can’t walk.

[@hannahlindoo]

I am so sorry to hear you have been struggling so long, but celebrating your future surgery with you!! It may be a long journey to feeling better, but I really hope your surgery brings you so much relief!

[@janlindoo506]

Love you too!

[@ProfessorDesiree]

I also have endo. I also just accepted the pain as if it were normal. It would help if more doctors would listen.

[@hannahlindoo]

Ugh! I’m sorry to hear that you struggle as well. Are there any specialists in your area?

[@ProfessorDesiree]

@@hannahlindoo Yes, I was able to get excision. I'm near Austin where we have a few good specialists, so I feel fortunate.

[@hannahlindoo]

So happy to hear that! I know excision doesn’t fix everything though. I’m right there with ya. Wishing you the best and better, pain free days to come!

[@JazminRosita]

You’re so positive

[@hannahlindoo]

Aw thank you! I appreciate that ☺️💕 I try my best!

[@JazminRosita]

Hannah Lindoo good job! I’m considering surgery I’m so scared but I’m gonna decide soon.

[@hannahlindoo]

It’s okay to be scared! Surgery is a big deal. While there’s no cure for endometriosis, the best treatment is excision surgery. In the long run, it will be soooo worth it. Please do your research and find an excision specialist in your area! If you aren’t already part of Nancy’s Nook on Facebook, there’s a link in the description of this video. I highly recommend becoming part of the group. It’s an educational page for endometriosis and You can find a list of excision specialist in the files. I hope you can find a great surgeon in your area so you can start feeling better!💕

[@JazminRosita]

Hannah Lindoo omg youre an angel thank you!!!

[@hannahlindoo]

Of course! Best of luck to you! 💕

[@simrandeepkaur5743]

Hello dear,is ultrasound a good way to figur out endmetrosis?

[@hannahlindoo]

Hi! Unfortunately, ultrasound will not show endometriosis. It may show if you have cysts, or endometriomas, but it will not show endometriosis itself. The only way to properly diagnose endometriosis is through surgery, unfortunately. 😔

[@simrandeepkaur5743]

@@hannahlindoo I have ultrasound 2 days ago... There was no signs of cysts...but I HV excruciating pain throughout cycle... nauseated... indigestion .... totally in fart zone....n weaknesses...she prescribed me pain killers n she said that if u consume pain killers n pain soothes...then it isn't endometriosis...can u guide above is correct??

[@hannahlindoo]

I can’t diagnose anything because I’m not a doctor, but I think you should find an endometriosis specialist in your area. You don’t have to have cysts to have endometriosis and pain killers help some people, and some they don’t at all! It’s so important to find someone who is specialized in endometriosis. A lot of general gynecologists aren’t fully educated on the disease. I’d recommend that you join the group “Nancy’s nook endometriosis education” page on Facebook! There you can educated yourself better on the disease, and they have a file that has an international list of endometriosis specialists. There you will be able to find the closest specialist to you. A lot of times, people will have to travel to find the closest specialist to them, but I hope there’s one near where you live! There’s a link for the page in the description of this video. I hope this is helpful! You deserve to have someone that will advocate for you and take care of you!!

[@simrandeepkaur5743]

@@hannahlindoo ty so much:) God bless you

[@hannahlindoo]

You’re welcome! God bless you too, and best of luck! 💕

[@meganlaurel218]

Getting diagnosis with endo was so hard. It’s so frustrating.

[@hannahlindoo]

It’s so hard! We need to spread more awareness so it doesn’t have to take so long in the future. Thanks for watching ☺️ hope you’re having a good day!💕

[@meganlaurel218]

@@hannahlindoo it took so long. I just posted my own video about my process and had surgery almost 2 weeks ago confirming my endo

[@hannahlindoo]

Wow! So glad you were able to finally get a diagnosis. I’ll be sure to check out your video. I hope your healing process is going well. 💕 I know it’s not easy.

[@meganpiper625]

Hey! I have Endo too 😢 you do know that endo can grow back time and time again even after surgery? You may need to go again xx

[@hannahlindoo]

I’m sorry to hear you struggle as well! And yes unfortunately 😔 unless my symptoms become unbearable before this happens, my doctors recommend I wait until I’m ready to get pregnant. So I definitely see at least 1 more surgery in my future!

[@meganpiper625]

Hannah Lindoo awhhh I’ll keep everything crossed for you, don’t loose hope as I’ve got 2 beautiful healthy babies! ❤️❤️ I desperately need the surgery and it seems to be getting worse, just toying with the idea as I can’t be out of action for so long with the babies and we’re in lockdown in the Uk so no support for my husband! Xx

[@meganpiper625]

Hannah Lindoo thank you so much for your video though. I randomly came across it whilst in bed suffering from extreme fatigue and horrendous ovulation pain and it just made me feel that little bit better, even after my diagnosis it can still seem like it’s all real or just in your head as hardly anyone takes it seriously and your video helped me to realise I’m not on my own ❤️❤️

[@hannahlindoo]

Thank you! That is so sweet! 💕 were in San Diego and currently shutdown as well, so I know how hard it can be! I’m sorry to hear you are in need of surgery. That is such a hard place to be, especially when the world is turned upside down right now. Are you a part of the Facebook page Nancy’s nook? It’s an educational page on endometriosis and you may be able to find some bits of helpful information to get you through this time. I don’t know if you’re seeing a specialist or not, but they have an international list of specialists on the page, and I highly recommend finding a specialist if you can! I hope you’re able to get the care and relief that you need soon! 💕

[@meganpiper625]

Hannah Lindoo thank you so much! I never knew it existed! I’ll join ASAP ❤️❤️

[@budjoyandbird]

Mona Vand explain how endo is not treatable but IUD can help u from heavy bleeding and decrease your pain over time. Doctor makes a lot of money for people who have endo problem. Check the video on youtube about IUD and endometriosis maybe u guys can find relief and understanding.

[@hannahlindoo]

IUD can be amazing for some with endo! I personally had an iud for a year and it was not a good option for me. But that doesn’t mean it won’t work for someone else! ☺️ I’d still be happy to check out that video though!

[@lillypage9879]

How long would the pain last for your period? Like a day of your period or the whole time you had your period?

[@hannahlindoo]

Hey Lilly! The worst of the pain would happen on days 1-3 and then it would slowly calm down during days 4-7 or 8. I wouldn’t say I ever had any days of my period that were pain free, but the pain became more manageable after the first few days.

[@lillypage9879]

@@hannahlindoo thank you, so much! Earlier today I had just booked and appointment to talk with my doctor. Though with me I always had heavy periods but not much pain But the last 6 months my periods have gradually gotten more painful... just the other day I literally sat on the couch all day and the pain just wouldnt go away, I felt so nauseous, but other than that I havent had much syptoms. So I'm really not sure if i have it or not, but your video is definitely helpful.

[@hannahlindoo]

I’m glad to hear you found it helpful! And I’m also very sorry that your periods are becoming more and more painful. I know the struggle and it is no fun. I highly recommend that you become a member of Nancy’s Nook on Facebook. There’s a link in the description of this video. If you’re concerned that you may have endometriosis, it’s really important to find an endo specialist. Most general obgyns aren’t always the best equip to treat/diagnose endometriosis. It’s complex, and going to someone who isn’t a specialist can be discouraging, and you can end up being given inadequate treatment that can lead to more issues. Nancy’s Nook has lots of educational resources on endo and has a file of endo specialist and their contact info. PLEASE consider finding a specialist in your area, if possible. They can be hard to get in with sometimes, but it’s worth the wait. Sorry for the long response. 🙃 just want you to have the care that will advocate for you and your health!

[@lillypage9879]

@@hannahlindoo thank you sooo much I will definitely check it out, that's really helpful. Thank you for sharing your experience!

[@hannahlindoo]

Absolutely! Best of luck to you!!💛

[@joellealger7604]

God if this doesn’t sound like me the past 3 years.. 😳

[@joellealger7604]

I’ve had the waking up thing happen like 5 times in a year. It’s literally the WORST PAIN I HAVE EVER BEEN IN. Along with everything else you’ve mentioned.

[@hannahlindoo]

I’m so sorry to hear that you struggle with this pain! I highly recommend that you see an endometriosis specialist near or in your area. You can find a list of specialists on the Facebook page called Nancy’s nook. There’s a link for the page in the description of this video! There you can find a list of specialists and lots of other helpful, educational tools. 💕

[@joellealger7604]

@@hannahlindoo thank you, I am now about to have a laparoscopy to diagnose and a Hysteroscopy because I just found out I also have a bicornuate uterus (heart shaped).

[@hannahlindoo]

Wow Joelle! I am so happy to hear that you’re getting the help that you need! Praying everything goes well for you and that this helps you to feel better! I will say, it does take a bit for your body to heal after surgery, if they end up finding and excising endometriosis. It can be discouraging to not feel better right away, but know that it’ll come! I’d love to hear how everything goes. Feel free to dm me on Instagram if you have any questions 💕

[@tawanacalamari5712]

funny in Australia if you go in and say pain in periods they say surgery.....if u say i have been trying to have a baby for over 6 months no luck, they'll say surgery.... so its quite shocking over there they try and avoid surgery....is it inexperience with the surgery

[@hannahlindoo]

From my experience, it seems that they won’t do the surgery because it’s the most invasive option and because of lack of experience with endometriosis. As soon as I found a specialist, it was totally different. She recommended surgery at my first appointment!