Stage 4 Endometriosis Diagnosis at Age 34

[@SerenaBee]

oh Laura, I'm so sorry to hear you've been dealing and going through all of this :( i was crying along with you while watching this. I can relate to you thou, not the same health issues but I've been in pain since 18 when I got diagnosed with Crohn's (IBD) and I have other mystery body pains now that all come back normal in scans and MRIs yet I'm in chronic pain daily :( I can relate when you say your quality of life makes it hard for you to become the parent you envision, I also have these fears and worries but yet I hope one day to become a mom, as well. I'm happy to hear you managed to get your trauma and anxiety under control!! I'm currently in trauma therapy and have tried emdr as well but not much. Medical trauma is a real thing and these doctors really can effect us negatively when we just want answers yet they pile on top of the trauma we already have. I know the numbness from going from appt to appt saying the same story over and over again and doctor's not taking you seriously, it's a real mind fuck! Anyway, there's probably so much more we could commiserate over and talk for hours but I'm glad you finally got the answers you've been searching for, a DR who listened, and hopefully your quality of life can finally start to turn a new leaf

[@laurarahelbailey]

Thank you so much for the kind comment, Serena. And for watching all the way through! ❤️❤️ It really is astounding to me looking back, thinking of every medical professional I paid who dismissed me and now having a surgeon say there's so much damage I'm looking at losing several organs in my next surgery. All these years of pain and symptoms and if anybody had believed me sooner, I could have gotten treatment sooner and it might not have progressed this so badly, this quickly. And goodness, Crohn's a beast 😭😢 I'm so sorry for you! I really hope you get continued answers and help soon. If I could cheerlead every woman to see as many doctors as it takes to be heard, I would! It's crazy to me that after 22 years it took one doctor believing me only a month to figure out my stuff. It's the believing piece that so many doctors seem to be missing. I'll be praying for you, that you experience some relief from pain and get connected with the right, compassionate care team! As hard as it is (because I don't think God cherry picks who gets miracles and who doesn't), I've been trying to practice more faith by praying for relief and a great care team for myself. My first surgery didn't result in any relief from symptoms, if anything, it pissed my Endo off 😂😭😢. But I am trying to cling on to hope that it will get better with the right treatment. It won't ever go away because it's a progressive disease, but I might experience some relief if I find the right medicine, surgery, and lifestyle changes. I pray your journey leads to some relief for you, too. It is truly exhausting and emotional telling your story over and over after being dismissed so many times before. But so necessary, because no one will look without us insisting. My MRIs were also clear, as were X-rays and hormone testing and so many other things. They might not see it yet, but there is something there for them to find for you, too. It sucks how sneaky some of these diseases and chronic/autoimmune conditions are! Sending sooooo much love to you, Serena! I really hope we both find relief and become the people we want to be, with our conditions managed. ❤️🙌💛💛💛 With chronic pain it can be so hard on our worst pain days to show up as the best version of ourselves. I get so cranky and exhausted and emotional. But knowing what's wrong with me now is a tiny help that my body is fighting something enormously damaging and no wonder I feel this way. It allows me to have grace and patience for myself in moments when I don't have the kind of patience to others I would like to. It's all a journey of us trying to grow. 💛💛💛💛💛💛💛 Our journey is just challenging in a way a lot of others can't see. But you are facing a challenge every single day, and that shows your resilience. 🌷🎉🙌 sending you so much love and care.

[@carolescharacters]

Listened to your story Laura and it made me so sad to think that no one ever took your symptoms seriously. So glad you now have your diagnosis and are moving forward processing all the emotions xx

[@laurarahelbailey]

@@carolescharacters thank you so much. 💛💛 Unfortunately, it's all too common for so many women. I hope a better quality of life is in the future now that I have a medical team who knows the problem! 🙌

[@shueysmissus]

I had a similar journey to you, apart from the infertility. I finally had a full hysterectomy, bowel resection and bladder surgery last year. Hearing you talk about the pain made me sob. I remember. It's a cruel disease. Sending you a hug, thank you for sharing xx

[@laurarahelbailey]

@@shueysmissus I'm so sorry you were so drastically impacted by endometriosis. That's horrible. Thank you for sharing your story. 🫶💛 I hope the past year has been a much better quality of life for you! I'm very excited to one day have excision surgery and hope it leads to an improved quality of life! ☺️🥰

[@vilma9774]

I live in Finland and when i was about 20 gynecologist said i have probably superficial endometriosis and i should use pills. Years after i got problems in my digestion and blood coming wrong places. I also got period pain without periods. Problems with urinating like urinating 5 times per night.I went to doctors and gynecologist who said everything is fine. It is probably irritated bowel. Diarrhea was sometimes constant. I went to gynecologist again seven years after that ans she said my uterus could be stucked to bowel and there is probably lot of adhensions. I feel health care system betrayed me. I was also many times in emergency because stabbin pain(knife on my sides and stomach) but usually doctors yelled at me that there is nothing wrong with me! One doctor said that it is probably just period pain even though i just have them. We pay taxes here a lot and doctors dont even seem to know this disease. I also look very healthy and young outside. I suspect this is also one reason it was hard to get help. This is not mens disease so doctors or researchers are not interested about this. Also deep endometriosis is quite rare i think.

[@laurarahelbailey]

@@vilma9774 I'm so sorry you went ignored for so long! I'm reading the book "Beating Endo," and it's been so helpful. In the book they talked about why Endo goes undiagnosed for so long. Only 1/3 of gynecologists know the top three symptoms of the disease, which is crazy. Of the 1/3 who know it, about half are confident in treating us. Which means only 1/6 of gynecologists could actually help us. And unless they specialize in the disease, most don't know all the other smaller symptoms like frequent urination. My whole life I thought it was just because I drank a lot of water. I'm so glad I know now what's been happening inside of me. But I totally feel your anger, too, that Drs ignored us for so long as the disease got worse. I hope you've found some relief for your pain. 💛

[@emilycwik4970]

I wish I could hug you 😭 I’m so sorry you had to live so long with this and lose a huge chunk of your life to this terrible disease and largely because many doctors did not listen or care and let you down. I am 26 and I’ve been to the ER multiple times with severe pain, and not being able to even walk. Not just on my period but even ovulation and times in between. I can’t do things I enjoy like ride my horse without getting off of him and feeling like I have scrap metal grinding in my abdomen. My case is a little different with insanely heavy periods where I feel like I’m bleeding out, huge clots, pain so bad I will black out without pain killer to help. Ongoing severe depression and exhaustion. All my adolescence years and into adulthood I thought it was normal because that’s what everyone told me. I am married to a man in the army and I know very well about medical system on bases. Was told I was just exaggerating. It wasn’t until one emergency room trip where they found a ton of strange free fluid in my uterus that they listened and sent me to a specialist that suspected endo after explaining all my symptoms and I am now setting up surgery with my doctor. It’s been ongoing pain all my teen and adult life and it’s getting worse as I age, I’m getting to the point of not having energy to even take care of myself or anyone around me anymore. Still not have gotten pregnant. That has been almost more painful than the physical pain. Looking forward to hopefully getting some results. I pray you fully heal mentally and physically and don’t have to be in pain any more. What a awful disease.

[@laurarahelbailey]

@@emilycwik4970 thank you so much for watching and for the kind comment, Emily. It feels so much better knowing we aren't in it alone and our struggles are not isolated but rather a collective experience that many women are fighting to change, to have our pain be heard, believed, and investigated. I'm so glad you finally found someone willing to investigate! Amen for that! I hope your surgery brings you answers towards a healing path. 🫶☺️💛🙌 My pain is still very much the same as it was when I was diagnosed, but I have a plan to help that I've been working on, and honestly, just having answers is so helpful. Now when I throw up from pain or spend 6 hours in the bathroom a day I'm not upset or shaming myself, I'm able to say "scientifically XYZ is happening in my body right now, it makes sense that it causes pain." Knowing what's wrong with us and what's causing pain, infertility, exhaustion, anxiety, and depression is so helpful for validating that we indeed, are not crazy, we have a disease that's damaging our internal organs- of course we are in pain! And chronic pain and inflammation causes so many of the other symptoms like anxiety and depression. I really hope you get your answers soon. If it is indeed Endo, I can't recommend the book "Beating Endo" enough. It's been so helpful for me to formulate a plan for trying to live better with this disease and has been so validating and informative explaining all of the little known symptoms of Endo.

[@SelenaMendoza213]

I feel the same way with the laziness. I use to be a gym person but somewhere in time my body was just tired and exhausted and the frustration of things as simple as eating or walking . Talking and irritation of going out in public . And let’s not talk about my crazy weight gain . !! So much to say . I keep saying I’m gonna make a video on my story here on KZbin when I have my count down to surgery

[@laurarahelbailey]

@@SelenaMendoza213 good luck with your surgery! ❤️💕 And absolutely, it's hard to not have the same capacity as others, or even the same as we used to have. 😢

[@dianatebraake3614]

@Laura, I am so terribly sorry you have had to go through all that. I cried along with you through most of that. I know how so much of that feels and I just really feel like giving you a hug. I wish there was a way to take away all that pain and trauma - because thats what it is, being dismissed and gaslit like that constantly. It sounds to me like I come from a home similar to yours where my experience was dismissed and that sits so deep in me now even in adulthood, even after being a psychologist for 6 years...its a trauma that not only messed me up then but transferred into the medical system, where I was also not taken seriously and I thought I must be crazy, I must not be trying hard enough, I must be lazy, you name it...turns out I have stage 4 too, found out yesterday and its invaded at least my bowels and bladder and uterus...and thats what they can see from the MRI, they still need to go in for rhe laporascopic and find out the real extent of the damage. I already know, I'll need another surgery at some point for a hysterectomy, but they'll leave in my uterus for now to see if I can have babies. Its just all a huge slap in the face. What if they'd taken me seriously earlier? What if Iiiii had taken my own body seriously sooner and said enough was enough earlier...? What if that was something I'd even been taught how to do...? Unfortunately this is operation #5 in my life as I have 2 other chronic illnesses next to this, which only makes things worse. I've been there, crying after surgery from relief and it confusing everyone...and the overwhelmed feeling from my partner not knowing what to do with all the intense emotions...You are not alone and your feelings and your experiences are 100% valid! My point of sharing is just to say: I really feel you and I'm just so glad for you that you finally got your diagnosis, even though your abdomen is also in such a bad state. I know that the journey is going to be extremely long but I hope you manage to have your surgery soon and experience the relief post-op that others have experienced. I know I'm genuinely excited (like a crazy woman, because this is a freaking intense surgery!) for this op - I want to know what life's like on the other side. - See you there, girl! We can do this! If we've survived all that so far, ain't nothing/nobody going to get us down now! Again, because I know you need to hear this over and over again too: You are not alone and your feelings and your experiences are 100% valid! ❤

[@AZCardsFan-x1x]

Hi Laura, thank you for sharing your story & being so candid. Your story made me very mad that the theme of so many women I'm hearing over & over again being dismissed & not taken seriously by countless medical professionals. My heart breaks for the women who don't feel they are strong enough to advocate for themselves & have been made to feel stupid over & over again (myself included). That makes the anxiety of even seeking help even harder. There is such a disconnect with modern medicine these days it seems. I want to believe these Drs set out on a path to originally help people. I'm only just beginning on this pain journey & came across your video. By women sharing their stories it can bring more knowledge, understanding & validation to this truly horrendous disease ❤

[@laurarahelbailey]

@@AZCardsFan-x1x hello! Thank you so much for watching and for the kind comment. It is so maddening and confusing how professionals who want to help people accidentally keep them from getting answers because they don't think their symptoms are as serious as the patient thinks they are. If I could tell other chronic pain ladies something, it would be to not give up. Go to as many Drs as it takes to find one that listens to you. I wish I hadn't been so quick to dismiss myself when Drs told me I was fine. I now know I was indeed, never fine, always in pain, and the long-term damage becomes increasingly significant, deforming my interior as I was ignored. We know our bodies and our pain better than Drs. If one Dr thinks you're fine, find another. 💛💛 wishing you all the luck and resilience and strength on your journey to trying to get answers and help for yourself. It feels impossibly hard when you hit road blocks, but getting answers is essential. 💛☺️🫶

[@AZCardsFan-x1x]

@laurarahelbailey Thank you so much! ❤️ We are for sure our own best advocate & know our bodies so well. I hope you can also find the correct specialist that will be able to help you further your healing & recovery to get the best quality of life you've been dreaming/hoping for! 🤗

[@laurarahelbailey]

@@AZCardsFan-x1x thank you!! 🙌✨🎉😄🫶

[@indumoon]

Thank you so much Laura for making and sharing this video. May God bless you with good health 🙏

[@laurarahelbailey]

@@indumoon thank you for your kind words and for watching 🎉🥰😊

[@Liminal_Galaxie]

Im 42 and have dealt with this, increasingly painful and more symptomatic every few years. So much in common with you. I had a lot of medicaid doctors, i have a short and very regular cycle too. I have many useless ultrasounds and gaslighting by doctors who basically treated me like im stupid. Progesterone and birth control pills did nothing for me except cause nausea and weight gain. Now that im getting older my energy levels have dropped significantly and i can no longer do a lot of activities I used to love , like dance. Ive never wanted biological children, but fertility was always top priority to OBGYNs who it seemed just wanted to make sure id keep making them money by becoming pregnant. (Incidentally Ive always wanted to adopt, but i struggle with finding a partner because I havnt found anyone who can be supportive through my pain and emotional dysregulation.) Im once again trying to advocate for laparoscopy as ive expatriated to a new country, and Im praying to finally get some relief. It has literally been over 25 years of suffering and sometimes im just get somexhausted with all of it.... I empathize with you so much, including being married and divorced young as well. Sorry for oversharing... But want to add that your pets are so beautiful and so are you! And im grateful youve made this vid because its helping me feel less alone. Thank you x a million ❤

[@phoebenapier2120]

Thank you for sharing this, I am so sorry you have been through all that. I am currently discussing endo with my GP, I relate to feeling fatigued and suffering with awful menstrual pain. However, I worry about being told nothing is wrong with me. I have heard other people like yourself have worse/more symptoms, which makes me feel slightly guilty about being given the opportunity for a laparoscopy on the NHS. I know I am entitled to a diagnosis if I have it, but I am struggling with the possibility of being told I do not have it and think I will feel embarrassed or ashamed even. I hope this makes sense, I think this should be spoken about more

[@pinkwheels1313]

You poor thing!!! Thank you for sharing your story and being so open. I'm so sorry for all that you've experienced. It's so traumatising to be treated this way by the health system. I can relate to some stuff you've shared and know how isolating it can be. Although the level of pain/sickness you've experienced sounds especially difficult and I really feel for you. I wish you well in your journey 🙏

[@laurarahelbailey]

@@pinkwheels1313 thank you so much, that's very kind of you! 💛🫶 I'm really looking forward to a day without this kind of pain and sincerely think and hope it's in my future with another surgery at some point!

[@TheTayoofa1984]

thank you so much for sharing your story! Im so sorry that you went through so much. Im praying for you to heal and be able to conceive.

[@laurarahelbailey]

@@TheTayoofa1984 oh, thank you. That's such a kind thought! 💛🤗☺️🥰

[@laurarahelbailey]

@@TheTayoofa1984 and thank you for watching and leaving a kind comment! The more people who understand this disease and symptoms, hopefully the sooner people who have it can get proper help and diagnosis. 🤗

[@Thefitalchemist]

Big hugs... You so much for sharing your story with us. Your story is extremely close to mine. I've been trying to tell the doctors for years that I believe I have endometriosis I have 2 full weeks of cramps that are debilitating. I recently gotten a ultrasound done that shows I have 8 fiberoids 1 large one sitting in the middle of my uterus.. I started passing thick huge blood clots and when I told my doctor they suggested to get a partial or total hysterectomy. They said if they just removed the fibroids they will eventually come back. I am really thinking about going ahead with the surgery because anything is better than the pain that I'm in on the monthly basis. But I still would like them to check my body for endometriosis so that I can feel validated for what I've suspected all these years. I totally understand the pain and fustration you feel. How noone believes you. I have been feeling the same way for 20+ years too. I am hopeful after surgery I no longer have to deal with such pain. Im excited to feel what normal life feels like. Thanks again for sharing I no longer feel alone or crazy. Bug hugs❤❤❤

[@amaliamaria4147]

Laura, I've cried listening to you! You need to look for an OB specialist that will be able to have in the operating room other specialists that can remove all the scar tissues. Trust me, you'll be able to be a mother one way or another, but it's important that your organs are ok, your digestive, urinary systems are ok and that your life in not in danger in your 40s, 50s. You have a whole life to be a mother and a wonderful wife! Find support in local communities, facebook groups, read other women's stories and you'll find the support you need. I am getting ready myself to be a parent, but I know it'll probably take a surgery to get things right, so please look either in US or EU for specialists to treat this. France, Italy, Romania for example. You got this! Both you and your husband got this. You'll win this and everything will be OK!

[@laurarahelbailey]

I'm so sorry you're dealing with it too! And yes, my health and wellbeing is my number one priority. A baby is second. So if my next surgery will require me to lose reproductive organs in order to be well, it's a loss I'll have to be okay with to get my quality of life back. You're right, there are different ways to become a mom. 💛🙌 thankfully, my next surgical team is already getting peiced together with different surgery specialists for different areas that have been damaged (mostly my reproductive and digestion organs). Fingers crossed I'll have a successful excision surgery later this year. And hopefully you get the surgery you need, too. Have you read "Beating Endo"? I'm about 1/3 of the way through the book and it's been so helpful in me understanding my best routes to feeling well one day. Sending lots of care your way for your journey to become a mom!

[@MauraNLydon]

Thank you for sharing your story, there was so much in it that I could relate to. I'm so glad you have your diagnosis now and are learning more about how this disease works. I really hope you continue to get better and heal from all the pain this has caused ❤

[@laurarahelbailey]

@@MauraNLydon absolutely, even having answers about the diagnosis alone has been so hopeful. Instead of crying about how I'm always in pain and why does everyone else seem to not have it, I can work through the science of "this disease and scar tissue is attacking my reproductive and digestion organs, no wonder I'm in pain!" Answers help the mental part of it. I've also been reading a book about all the physical changes that can be made to help and I'm really looking forward to having another surgery and have already implemented a lot of things like organic fruits and veggies and gentle movement instead of intense workouts, etc. ☺️💛 thank you for your sweet thoughts!

[@MauraNLydon]

Good luck with those changes and future surgery, I really hope it goes well! I am slowly trying to make some changes to diet and lifestyle as well to find ways to improve my quality of life. It isn't easy but I'm optimistic that things will get better eventually ❤

[@kiripiri4000]

Wow, I feel like i have some similar experience to you! Thank you for sharing.

[@laurarahelbailey]

@@kiripiri4000 you're so welcome, I'm glad it was helpful or ressonated. I'm sorry you're going through similar things! 💛💕

[@akalessi]

Thank you for sharing your story, I have and still do deal with very similar issues trying to navigate it myself so your story makes me feel like I’m not crazy and these things are true and happening to more people than just me. So thank you 💖 and take care ! Ps your fur babies are adorable! 😍

[@laurarahelbailey]

@@akalessi oh, thank you! They'll be so happy to hear you think they are cute 🥰🙌. I'm glad the video could provide you some comfort and support knowing you aren't alone. Advocating for ourselves is so exhausting, but necessary when we are suffering and they don't see it. Hoping you find answers for yourself soon! 💛🫶🙌🎉

[@SelenaMendoza213]

31 just got diagnosed, I have 2 kids, but currently infertile .

[@laurarahelbailey]

@@SelenaMendoza213 I'm so sorry you're currently going through this. So tough! Sending well thoughts your way

[@sassysashy9577]

So helpful, Thank you for sharing

[@laurarahelbailey]

@@sassysashy9577 absolutely, thank you so much for your kind comment. Hoping you find the help you need 💛🙌

[@RANJITHA.PAI.]

It's really sad that u went through all that.. I don't understand why they took everything so lightly.. I am suffering from similar symptoms and I've been seing docs every single month after my periods but they don't seem to do anything.

[@laurarahelbailey]

@@RANJITHA.PAI. I'm so sorry you're currently going through something similar! I wrote a blog post about my diagnosis and encouragement for finding the right doctor. It might be helpful if you start to feel discouraged when they don't take your concerns seriously. lightenwithjoy.com/stage-4-endometriosis-diagnosis/ 💛🫶 Sending you hope and well wishes that you find a great doctor and answers for yourself soon! Thank you for leaving a comment! ☺️🥰

[@rachealfaucher4520]

I hurt bad bad like her but her story scares me cuz I just started this journey but my pain is unbearable at times and this girl sounds even worse than me and still took her so long im mid video, currently in pain

[@jolanda3692]

Hoi Laura, ik weet wat je doormaakt, heb zelf ook endo stage 4, ik droeg zelfs kraamverband, maar het bloeden stopte niet, liep gewoon langs mijn benen, en sliep van mijn 39ste tot aan mijn 51 ste 18 uur per dag. Sterkte meid😘

[@فرحالرشيدي-ح6ع]

Please do ONLY Excision surgery for that find Endo specialist doctor and update us about surgery & pain hope you will get better soon

[@laurarahelbailey]

Thank you. Yes, my next surgeon will be an excision expert. 🙌🎉 We aren't sure when that will be yet, but I've already had my first consult with her and she's great.

[@vivianchudi]

@@laurarahelbaileyHi, dear, I had my excision surgery already. Have you done yours yet?

[@laurarahelbailey]

@@vivianchudi I have not. My consult concluded that I'll likely lose several of my reproductive organs when I have the excision surgery, so we are trying IVF first. Now that I have an official diagnosis, insurance covers some of our fertility treatments. At least twice a month I tell my husband though, I'm so excited/hopeful for excision surgery! I need to be out of this amount of pain on a regular basis. I'm hoping we can have a baby and then I can do the excision surgery!

[@vivianchudi]

@@laurarahelbaileyOkay, dear, I wish you the best of luck. I had fibroid and endometriosis ( stage 4) but I had surgery in July. We have started trying for babies. Please keep me in your prayers, I will keep you in my prayers too. We will conceive very soon.

[@laurarahelbailey]

@@vivianchudi best of luck on your journey to baby!

[@taymicastro2749]

Does anyone have had pain in the left side of the abdomen after eating ? I do

[@laurarahelbailey]

@@taymicastro2749 Yes, my pain is almost always coming from my left side. Post surgery I found out it's because my left fallopian tube is fused to my colon with scar tissue. Restricting my colon and making all parts of the digestive process painful.

[@taymicastro2749]

@@laurarahelbailey thank so much for responding me ,another question do you have urgent to void “pee “” and bladder pain omg 😳 I have a lot of symptoms I feel so drained fatigue and so much pain in my abdomen,thank you I hope u are feeling better

[@gracelight216]

My painful side is the right side. I hope that surgery helps 😌

[@laurarahelbailey]

@@gracelight216 I hope surgery helps, too!

[@laurarahelbailey]

@@taymicastro2749 I don't have that symptom but it is mentioned in the "Beating Endo" book I'm reading. My sister has it and it sounds awful. I am not feeling better yet, but I'm hopeful that another surgery will help! We are trying to have a baby first though (with IVF) because I'll probably lose my ovaries and maybe my fallopian tubes during my next surgery.

[@cctv318]

Thank you for sharing

[@cctv318]

consider leaving reviews for all the doctors that failed you, and of course the ones that saved you

[@laurarahelbailey]

@@cctv318 I'm glad it was helpful! And yes, I do need to leave a review for my favorite doctor! She's the best and I would recommend anyone to her!

[@rachealfaucher4520]

@@laurarahelbaileyplease what is the doctors name I’m in so much pain

[@gracelight216]

Thank you for sharing your powerful story. I just found out that I have endo. 23 years of agonizing pain. I only have one son because child birth was a nightmare and recovery. I think the more we talk about it the more we can help each other. Once again thank you 🙏🏼🤍

[@laurarahelbailey]

@@gracelight216 I'm so sorry you've been suffering so long, too. ❤️😢 it's such a tough road. And absolutely, I agree! The more we talk about it, the better off we are for identifying it sooner and advocating for ourselves when Drs don't listen. 🙌

[@UnathiGalada]

Hey laura were your periods still short when you got diagnosed?

[@laurarahelbailey]

@@UnathiGalada yes, they were most cycles. Usually only 2 days periods, with a few more days of spotting.

[@UnathiGalada]

And how long do your periods pains last?❤

[@laurarahelbailey]

@@UnathiGalada they start several days before my period and my pain currently extends to post ovulation, so it lasts about two weeks of every month being at a level 6 or higher pain. The other couple of weeks I'm at a 2-4 level pain. When I was younger I only experienced pain before and on my period. As I've lived with the disease unknowingly for so long the damage has extended and now my ovaries are largely affected which causes me to now have the pain with ovulation, too.

[@laurarahelbailey]

@@UnathiGalada some women with the disease have no pain though, so I think everyone's experience with it is a little different 💛

[@victoriakatofficial]

I’m currently suffering from the same type of symptoms. I have been trying to get the laparoscopy exam and it’s like pulling teeth. It’s making me angry hearing how these doctors didn’t take you seriously. Like as if you would purposely choose to go through all of these hassles to be “dramatic”. I am so sorry that they failed you like this.

[@laurarahelbailey]

@@victoriakatofficial thank you, Victoria. I'm so thankful for the one doctor who finally listened, I still cry when I think about it. It taught me a lot about advocating for myself and realizing the health system is designed to fail us. We have to actively fight, for years, with professionals minimizing our reported pain, before getting surgery and a diagnosis, and it's insane. I really hope you're able to find a doctor soon who believes you and is interested enough to look deeper. If I could talk to younger me, I'd tell her to keep meeting gynecologists- as many as it takes to finally find one who believes us. If one doesn't believe me, on to the next, instead of listening to them that nothing is wrong. It only takes one doctor to change our whole life, but it's so hard to find that one! Praying that you find answers and relief soon. 🙌💛

[@vibes811]

❤❤❤

[@laurarahelbailey]

@@vibes811 🫶💛

[@aquariusguard]

Newyork endometriosis center

[@laurarahelbailey]

In regards to what? I live in North Carolina so all the providers I see are local ☺️💛

[@aquariusguard]

Ok, if you was looking

[@Eijik_]

im 19 years old with very very bad period since 2019 what i remember i always got gaslight by the doctor and my own mother, recently i went to gynecologist for the first time the consult firstly she said i have possible endometriosis from the symptoms i be having these years, next month i have ultrasound she gave me a pill see if the pain could be a little bearable the last option if the results of the ultrasound doesn’t have nothing i will do the surgery . I think im lucky ?? My doctor making the actual action very early. Im very scared and nervous whats gonna happen in the future i really dont want whatever condition i have could get worse . Big hugs and love the girls who are suffering you are strong 💪 🤍

[@laurarahelbailey]

@@Eijik_ thank you for sharing your story! Good luck with the ultrasound and medicine! I wish I'd had a proactive Dr when I was younger. I totally agree with you that it's important to know so the condition doesn't just keep getting worse and causing more internal damage 💛😌

[@Eijik_]

@@laurarahelbailey thank you so much for your words!! 🤍 much love to you, how much you been through its absolute rough and upsetting. Have great day take care 💕