My Face: Waardenburg Syndrome (Part Two) | Stef Sanjati

[@Celestial_Cyn]

A girl with waardenburg syndrome came into the store I work at the other day and was shopping for makeup and had such low confidence. She kept saying she wanted to wear fun colorful makeup, but it wouldn't look good on her. I told her "All you need is confidence and anything can look good with that. You're unique and beautiful. Do what you want with your makeup." and she seemed so happy and bought all the things she at first was scared to try.

[@jonaerakua1]

That's nice of you. Everyone should know this. You also shouldve told her bout this channel :)

[@Mimi-sf5sq]

Good for you. You probably made her day.

[@genderchaotic]

I was about to say, you should have told her about this channel! maybe next time. :-)

[@fellinluvv]

that's fantastic. thank u for encouraging them 💖

[@staybasedandpositive]

You're awesome for saying that!

[@itsOllardo]

I always get stunned by your knowledge or the way you speak. You are like a wise elder elven mom who loves to bake bread for her children.

[@anthozoaz]

You're so right

[@SnickyNicky96]

She is my pretty elven mom.

[@dianewetford1675]

Wise? She thinks all diseases are contagious lmao

[@cceloful]

ignorance on some things doesn't equal stupidity (:

[@abeedhal6519]

it contradicts wisedom though

[@im2Oldddd]

I have facial palsy that has caused the left side of my face to become completely paralyzed and idk man but the end of this video started to make me tear up. You have such a beautiful soul.

[@StefSanjatiOfficial]

Love You I love you! 💕

[@BanthaTube]

Former Canadian Prime Minister Jean Chrétien used his facial palsy as a strength. He came to power with the slogan that he was "One politician who didn't talk out of both sides of his mouth." Stay awesome, Love You!

[@emmabuhr6764]

Love You 🍞💚

[@superrrVivi]

Love You you are beautiful!

[@beckywiththegoodhair5244]

lies

[@RobFalcon141]

I really, really wish your videos had existed twenty years ago. Hearing this would have helped both me and my sister a great deal back in grade school. We both have Waardenburg, and drew our share of comments from our classmates. I think that those who find themselves in a similar situation today could be helped by the strong, positive message you send in both of these vids. Thank you for making them, and you keep rocking on!

[@AngelWolf905]

Robert Falcon me too

[@nuggwife7162]

Robert Falcon this is exactly the comments I love to see! Where a random awesome beautiful stranger is able to reach through the internet & give comfort & confidence to others. reminding _everyone_ that their beautiful, no matter you’re differences.

[@florenceellis7126]

Awesome message!

[@hoanghai9978]

Robert Falcon Hi Friend Yesterday My Family got the news My 17 months old Daughter have Waardernburg . Now she can't listen anything around Her. We hope She can listen normally and enjoy herlife in near future.

[@kekekat212]

Stef would make such a wonderful mom honestly

[@patrickm2894]

Cat Waterman Righttt her future children (if she wants children in the future) will be so educated and so loving it would be amazing

[@eluegl7006]

IKR!

[@alainadoeslife8834]

she did say that she wants children

[@dulcerodriguez3950]

I have a condition called hyperhidrosis and I hate my body for producing so much sweat, but I know that I was born with this, and it's something I'm going to deal with the rest of my life, so I need to learn to love me for who I am, thanks for cheering people who doesn't fit with the standards, I love you.

[@Triaanx28]

Dulce Rodriguez i have this too! it's a pain in the ass haha. everyone time i shake someone hand i have to wipe it off but i think i've gotten to the point where it doesn't bother me. it sucks trying to wear cute heels though and always slipping down or out of them... i feel ya!

[@annah3008]

I have it too, and worst of all I sweat from my head and face... But I have found help for myself. I take now this medication that stops my excessive sweating completely. It is called Ditropan (Spain), do look for it. It really has helped me. A life saver!

[@horizonmoonrise7128]

Dulce Rodriguez I have it too, and there are ways to train yourself to almost not even have it. Meditation helps too, I don't recommend any of the medicine or medication for it though. In my experience it has too many side affects and dehydration scares. best of luck and love~

[@ojwaffles4669]

Dulce Rodriguez woah I never knew there was a diagnosis for sweating too much. I'm going to look into it and see if I have it

[@Jess-Rabbit]

Dulce Rodriguez i have that too!

[@oepcjshe8eiofuh42h85]

woah that lighting is so ethereal

[@car0libus_623]

True ! very pleasing to the eye

[@silasnauxmal5548]

She's a fairy 😚

[@meikoblock]

Livinglife21 it's literally like her aura

[@supersparkley123]

Yessss!

[@hannahfear5278]

"it's just my face is cute ok" I love you

[@kenacarl6246]

Woooord 🤣💕

[@kikiza123]

omg i went from the first part to this and your voice has changed so much

[@asialynbailey]

um.... over a year and a half difference and she finally started hormone therapy? lol.

[@maggiewaden8274]

AnnaOverThere The answer is hormones therapy.

[@lobotomy__]

YESSS

[@MLCelaya317]

AnnaOverThere right?!?!?!? so pretty too!!!!

[@boramisbarsayahh9152]

IKRRRR

[@Sugaplumnoja]

"Your differences make you important and special" I just wanna say that This video got me so emotional and she is so beautiful for telling all of us that we matter no matter what cause we really do! and used to have absolutely disgusting acne and I've never really felt beautiful and this acne comes back occasionally and I just wanna crawl into a hole whenever it does and seeing someone who truly believes that your beautiful no matter what tell you that and they're not even lying .. Wow thank you

[@Sugaplumnoja]

I used to**

[@Nyxide]

What a beautiful comment!

[@Projecthypocrisy]

I was diagnosed with Bipolar and I always get: oh, but you look normal. It's the most insulting thing. I've accepted my diagnosis as part of me and celebrate it as a difference. People just try to normalize everyone so that they can feel better about themselves.

[@StefSanjatiOfficial]

projectHYPOCRISY exactly. 💚

[@hedwigandtheangrybitch7338]

projectHYPOCRISY i have borderline personality disorder and psychosis, and people constantly say "But you don't look crazy!" Like wtf

[@PsychosisFun]

I am schizophrenic. I revel in the interesting personality it has given me. Because I can comprehend so well, people think I am lying when I tell them that is why I can not hold down a job. They seem to not realize if not for meds and and my amazing support group, they would see how uncontrollable I am as a schizophrenic. My episodes are very unpredictable and anything can trigger an episode.

[@Rae.Rat311]

happens to me all the time too with bipolar and psychosis. I got used to not letting it get to me as bad anymore, and to just educate them instead. Plus, with my disorders i haven't been able to work for almost a year, and now it's pretty obvious to people that I'm not lying, since I've had 20 jobs this year that all failed lol. As unfortunate as that is. I've also learned to defend myself by saying that I am not ashamed, and I'm not striving to be "normal", that is fine to accept who you are, and deal with it in a positive manner. I don't like when people try to make me feel better by saying i'm probably normal cuz i don't act crazy, it's just tiring. I'd rather it be accepting

[@PsychosisFun]

When I was in college, one girl in my drawing class kept asking all sorts of questions of what it's like to "have a mental disorder". She was fascinated and wanted to understand intellectually. It bothers me when people do this. They want to understand, but they ask in completely the wrong way and still don't understand me in the slightest when I try to break it down for them. But, I digress. I love myself. This "disorder", which merely means not organized, is something I have accepted as a part of me and I revel in it. It just happens to be extreme, keeping me from being able to even apply for a job.

[@citrinedragon1466]

You have a stunning face... regardless of your sexual identity, orientation, or even hair colour... I had no idea what Waardenburg Syndrome was... I am grateful for your videos because I learned from them. Thank you. And I agree... it is the differences that make us beautiful.

[@abracadavra]

That video was the first I saw of you. Before that, I never knew about this syndrome. You educated me. Thank you for that. I stayed and subscribed because you are a wonderful person, I like your personality, I love seeing your journey and I thank you for all the down to earth, frank education that you provide for us.

[@rainydaylady6596]

+

[@dinfavorit]

Same!! ❤️

[@djmidori]

same!

[@DanielleCateley1]

What HellCat said! :) x

[@Bee-rs5oq]

HellCat Same! :)

[@Beeba10]

Your original Waardenburg video was the first video I saw by you (a while ago now), and honestly, when I looked at the thumbnail I could tell that yes, you did have different looking features from the people I know. You looked strange to me - not in a bad way, I never thought it was ugly or horrible, it was a . . . good strange, if you know what I mean? I was kind of just like "woah, that's new. This guy's gorgeous, though" (as you said, you didn't realise you were a girl at the time, so my thought was "male" - definitely still drop dead gorgeous and rocking it as your true feminine self, hun). And you're absolutely right. You shouldn't need some sort of validation like "oh no, honey, God, no, you look so normal!!!1!" Normalcy is boring, yo, who wants to be normal?

[@SixtySecondYoga]

BeebaLazyVlogs normal is a very prejudiced/ableist concept anyway! I hate it.

[@emily.aponno]

I think she looks like a beautiful elf 🌻

[@FizzyNightShade]

That video was also my first video by her. I also thought she was a woman in to thumbnail and was thrown backwards by her male voice like "oh, shit. This is a dude". In my defense, it was the first video I saw by he so, I wasn't aware yet that she was mtf transgender.

[@AndelinaMarie]

Honestly, y'all look like elves. Or like pixxies. Im a little jealous cause ur just universally cute. Just wanted to put that out there. I don't see why people blow it out of proportion.

[@iloveupapi07]

xx ForeverAndyMoon xx That's exactly what I thought! like fairies! beautiful!!! 😍😍

[@SixtySecondYoga]

xx ForeverAndyMoon xx People use “normal” as a way to control people and fear what’s different. No one needs to adhere to their rules. If we spend our lives fearing being ourselves we’ll never be happy!

[@frankboogaard88]

Elvis had it. Bruno Mars has it ;-)

[@ryleee8205]

If I had W Syndrome I would be so sexy I just have the wide set face no wonder my forehead is so big 😂😂😂

[@cindysueminshewcarter74]

Stef, I am so incredibly impressed by YOU! Your outlook on life is fabulous especially considering what you've been through. You choose to use this as a means to educate; educate the everyday people on Waardenburg Syndrome as well as educating those also with the Syndrome. I could go on and on but will refrain, for now and I will close with Stef, I am not easily impressed, yet you have gone above and beyond and impressed me deeply.

[@TreneiroVlog]

Love the way you speak - it just appeals to me, can't tell why, just think you are really authentic in what you are saying

[@noahdelp7837]

My dog has waardenburg syndrome, it effects dogs a lil differently but it's mostly the same. He has all white fur one blue eye and is totally deaf, he's a super cool dog and we chose him for his differences he's a dope lil dude.

[@StefSanjatiOfficial]

Noah Delp you're dope

[@MyCutiepututie]

Fun fact: Animals with white coats are usually deaf in some way :D I like fun facts

[@MyCutiepututie]

Which now that i think about it may be connected with Waardenburg syndrome with the white forelock of hair and hearing loss. nature is something

[@hannahandrews3473]

I'm albino and I'm half deaf :p

[@annas7847]

Noah Delp Is he deaf on the same side on which he's got a blue eye? In cats, the side on which an eye is blue, usually corresponds with a deaf ear on the same side.

[@rhiannonenright4458]

Just saying, Waardenburg Syndrome is not a disease, but not all diseases are contagious. That misconception can be problematic in itself; when I say I have an incurable genetic disease, that doesn't mean you can "catch it" by being around me, drinking my drinks, sleeping with me, etc. It just means, "An interruption, cessation, or disorder of a body, system, or organ structure or function." My blood is screwed up and trying to kill me, basically, but you have no chance of getting that from me unless you are my biological child.

[@rhiannonenright4458]

When you associate diseases with "contagious illnesses," you perpetuate the toxic stigma against people who have diseases. I really like your videos, and I know acceptance and being informed are both important to you; but this one part disappointed me.

[@aspenswaser4205]

in the description she has a note acknowledging this mistake and apologizing.

[@rhiannonenright4458]

Siobhan Larsen She didn't have one yesterday; I made this post before she acknowledged her error. But my point does still stand.

[@w1975b]

I just wanted to share with you and everyone else, that genetics isn't a guarantee that anyone will show/develop that disease, either. Genes are just a blueprint, and can be activated or deactivated by outside factors such as stress, nutrient deficiencies, toxicities. If anyone is interested in more info, I suggest researching "epigenetics" and Dr. Joel Wallach gives so much info on "diseases" and the nutrient deficiencies involved. Many videos from Dr. Wallach are on youtube, also Dr. Peter Glidden can give great info. It makes me sad to think of people suffering when they don't have to, there are solutions.

[@rhiannonenright4458]

***** This "doctor" they mentioned claims that all natural deaths are caused by "mineral deficiencies" which can be "cured" by taking a daily regimen of vitamins. This has been disproved so many times over, but he is just a quack. Sure, incurable diseases can be treated, but they don't just go away by magic. I will always be at higher risk for blood clots, no matter what I do with diet or exercise or "toxicities."

[@lauraromdeussen864]

Interesting that you use "person first" language--a "person with fetal alcohol syndrome." It's rare that you hear someone do this, even in the field of special education where it's beaten into our heads of "don't say "the autistic kid" but "that kid who has autism." Always recognize the person first. Awesome. Makes a huge difference.

[@lauraromdeussen864]

By the way--what is causing the background sounds--is that part of the light? Do you know whom made that? I think that would be amazing in my classroom.

[@jklroxmysox111]

Not everyone agrees with person first language

[@Amber-zg4zo]

Some people prefer not to use person first, so I think it's important to find out how people choose to identify themselves as well. I always go with person first initially and change my phrasing if someone indicates they have another preference.

[@chromesthesia]

Laura RomDeussen i hate people first language. autism is a part of me. not baggage. most autistic people hate people first language deeply.

[@resveries_]

Laura RomDeussen nope! A lot of autistic people hate person first language. I am not a person with autism, i am autistic. That's who I am. My autism does not make me less of a person, you don't have to compensate for it. I am autistic, it makes me who I am.

[@shelbytull2281]

I have trichotillomania, which basically means I pull my hair out. I have no eyelashes, and my eyebrows are patchy. What you said about being in a shell and coming out of it later is so so true. For the longest time, I was in my shell. Now that I'm out of it, it feels amazing. It's okay to protect yourself, as long as you can open up down the road.

[@FizzyNightShade]

For some reason, seeing that word in your comment hit me hard. I also have trichotillomania and I've never met anyone else online who has it besides Becky from Trich Journal.

[@Hannah_Z]

Shelby Tull I have it as well! I wear a beanie to cover most of my hair, and I fill in my eyebrows & wear eyeliner to mask my lack of eyelashes. I never even realized that it was somewhat common until I met people I knew in real life with it.

[@nefertitimontoya]

I have it too! We've got this though 💛

[@davidmayberry3190]

My daughter also has trichotillomania.

[@r5ndom527]

I bet y'all are beautiful! Work that shit! Hugs from us who don't judge ❤️

[@giuliapugliese1507]

The first video of this was the only one I had seen of you. Your voice is so different form then.

[@antran-hy6xk]

i think estrogen affected her voice

[@ematarrr6452]

She has a video addressing that- after puberty, taking estrogen isn't going to change your voice, since testosterone will have already changed the shape of your voice box. She's put a lot of work into getting her voice to sound more typically feminine, and gives a demo in the video :)

[@Beery1962]

When people say you "look" normal, it also implies that you "aren't" normal - that you're defined by your syndrome. I think that's really the annoying thing about it. People with any syndrome ARE normal. I think people often fail to see that a person is not the syndrome that they happen to have.

[@NotAnotherKuromi]

+Aura Redwolf I think you are 'normal' just disabled. A lot of people use the word normal to mean acceptable, relateable, not equal, different in a bad way. I have to use a wheelchair but I am still me, a normal person, I want others to treat me as such, not to ignore my disability but to treat me with the same respect & dignity that they would use with any other healthy person. If people really used normal to mean the majority they would say that redheads are not normal, people working at Mc Donalds are not normal, having a pet horse is not normal, but I have not heard anyone say those things because it is usually used in a negative sense with negative connotations attached to the 'normal' label.

[@emeritusx5488]

The original video is actually what made me subscribe to you. :) And made me watch the rest of your videos! You're too perf.

[@MsDoxma]

Exact same here!

[@olivethepugs6093]

Same

[@marandabeautiful10]

same!!

[@eddyandgoliath6469]

me 2

[@domesticgoddess1663]

Xion Sunderland SAME! That's how I found her! She's amazing!

[@theferalboy9563]

Bless yer heart you perfect girl. Seriously. I have kyphosis which makes me feel like a disgusting wreck most days, But you reminded me to just rock it.

[@Julescoming]

Wow I loved the end where you talked about how you shouldn't be blind to differnces

[@courtneywhite6939]

Julie Brady me too! I cried! Such a wonderful message

[@jacquelineavery]

+

[@blushingb0nes]

I found you through the first waardenburg video and i'm so glad I dd. you're honestly such an inspiration to me and I admire you so much. You're great.

[@rmeloveslife]

I want to let you know, you are amazing! I know you know... but you are. I've never seen your videos before. A friend of mine showed me and I'm speechless. I love how courageous and proud you are! You rock! And you inspire me! Thanks for being you!

[@naomiw4874]

I have a syndrome called Tourette's and basically I have tics which causes me to twitch and muscle spasm during times I don't. For me it's kind of severe and I make loud noises when I don't want to and during times when it's quite or something. A few people suspect that I am autistic but that is not the case. In fact nobody knows and they just think I'm weird but I don't care because that is why I am known for. At least some people don't notice that and they think I'm just the humouristic (I don't care if that's not a word) girl who loves to smile. Just smile and embrace your differences.

[@JockoJonson17]

OMG have you seen sweet Anita? She is funny. 😃

[@morganmccleery4496]

Your personality and your fave are so fudging gorgeous. You are just a lovely gal, and I wish the best for your life.

[@morganmccleery4496]

*face

[@kellyabbott8623]

Reminds me a bit of Anna Farris .....I hope you think she s gorgous and sweet....because I do

[@NurseD82]

I first clicked on your original Waardenburg video because I hadn't heard of it before & was genuinely interested. (I'm a student nurse & love learning about new things about the human body). I really enjoyed your personality & clicked on your other videos. You come across as an amazing kind hearted woman.

[@karsynlemley]

dang you posted three days ago so you probably won't see this but you're eyes are STUNNING every time i watch your videos i think of how pretty they are!

[@karsynlemley]

also probably teared up when you said religion matters because so many people nowadays want to hide religion. thank you!

[@BandersnatchRider]

Watching these 2 videos actually made me realize that I went to elementary school with a girl who must have had Waardenburg Syndrome. I remember thinking how freaking COOL she looked, ( a lot like Rogue XD ) and telling her so. I wonder how she's doing nowadays.

[@Kam_Eshu]

She looks like a katana wielding anime character who is part of a team of beautiful female super heroes.

[@Kam_Eshu]

In fact she looks like the leader.

[@FlyGurlie2010]

Kamiyo Adams what an amazing comment lol

[@Koeminu]

Kamiyo Adams Yup, my new favorite comment

[@firebreathingchickenduck4936]

Kamiyo Adams yesss.

[@LuisaD93]

You're a very well adjusted, very gorgeous person inside and out . You're video is outstanding and so important. Keep up the good work and keep being you .

[@sophieowen6448]

This was so good to watch, "Embrace your differences" Instead of "Become someone else" Best message ever

[@dianahancock3499]

So.... your face is undeniably beautiful. But I think your real beauty simply radiates from your soul. Your ability to not only seek out the good in your own life's struggles, but to genuinely wish for everyone else to have that same strength and confidence makes you so very beautiful. Also, I love the super dark eyeliner, and love that you've left that beautiful white stripe of hair natural. You are an inspiration.

[@tredfxman]

I have Aspergers Syndrome diagnose, but of course that has nothing to do with looks. Just saying, there are an insane amount of syndromes out there. And what its about, is seeing the good things that come out of it instead of drawbacks from what you are going through. And this could apply to any person, with or without a syndrome or sickness.

[@tredfxman]

leechlover4life​​ So yeah, were at least 2 with this. Dont forget, see it as a power, instead or a disease Man! Iknow alittle bit of what your going through Brother... Just keep focusing on what you do best in life allright... Thats how i do it Bro, put no shame into it so! You deserve all the Respect my Bro... :)

[@CptShelby]

Embrace the difference! We can learn so much from others. Diversity makes us stronger. IDIC

[@tredfxman]

CptShelby True that! Well written! :)

[@Luca-le2rw]

3DFX i've also got aspergers syndrome and i have to say that what you wrote is completely right. i got my diagnosis about 1 1/2 years ago and it really GAVE me confindence because the moment i knew it i was just like "hey, that's it. There are other people like you. you may be different, but you're not wierd at all". I think that this is also very important for everybody to hear because it can be hard to accept yourself but this is about the MOST important thing in live.

[@Luca-le2rw]

Hope that was kinda understandable... my phone dislikes english xD

[@shutupandletmego8941]

people with waardenburg syndrom is so beautiful.

[@shutupandletmego8941]

you look unique, and better to be unique than looking boring and average.

[@stevekossouho8012]

Well there's unique and there's unique. As "unique" as the condition is, she's pretty normal (which you conflate with boring and average).

[@poisonXbuXmusic]

Stef I love your videos because you are so graceful with your explanations, and you make a connection with your viewers. It feels like you're just chatting with each and every one of us one on one and that is special. Keep being you baby girl, you're an amazing person and your message of equality and love needs to be heard by everyone.

[@TheSheGoz]

"None of us need to fit into a box to be beautiful." Full STOP, right there. You ARE beautiful in and of yourself. 'Nuf said. The MOST beautiful people are the ones who DARE to be their own true and authentic selves. Thank you! ♥

[@DrArtemis117]

I'm so glad you don't dye your white forelock. 100% badass.

[@andjela7847]

ItsAudge, you're wrong, she specifically said she DOESN'T dye it.

[@B66zl6]

angiepigiotto actually this person isn't wrong they said that they're glad she doesn't dye it and you said "you're wrong" and basically repeated what they just said

[@brittisaacrossman]

She addressed that in another video... (was it the first WS video?) Something about how the pigments from dye doesn't stay there very well anyway. IIRC, that's another trait of WS...

[@moneyscreamsyes]

Yes yes yes 🙌🏼 My daughter has Down syndrome and every day I hear from strangers "oh she looks so normal I couldn't even tell". I AM NOT OFFENDED BY MY KIDS FACE. SHE'S GORGEOUS. Gonna fly kick some folks

[@OOMMBeBackLater]

This is the first time I have ever watched any of Stef's videos and it is a tragedy. Stef, you are gorgeous in both your first and second videos. It was cool to see how your experience and learning made you grow stronger and smarter, inside and out. You are beautiful AF, hands down!

[@hellothereinternet]

She’s literally got the cutest presence I love her such a sweetie

[@misscoco3487]

You're so pretty. You look like lindsay lohan when she was younger

[@lpssugakookies1500]

Miss Coco omg yes I see it but stef looks better😎😁😆😂

[@aprilreece4835]

Miss Coco Ikr?!

[@queenwizzard1853]

Miss Coco SHE DOES

[@katk7505]

this is exactly what I was thinking AHHHH

[@dubdi6985]

Omg, I totally see that after you mentioned it

[@Hannah-lr6lq]

Thank you soooooo much for this

[@Hannah-lr6lq]

I kinda passed out xD

[@SliceLifeTVEditor]

You're beautiful inside and out. You make me feel secure and confident. Stay amazing. Stay you.

[@BlessedArts]

Oh my gosh. I am so proud of you for your bravery and the way you encourage people. You made me cry.

[@girlie294girlie]

Ignorance isn't only a plague. It's encouraged. That's why you found so many stupid comments on your feed.

[@yuhturtles2818]

"its not a disease, it's just my face is cute" Slay.

[@Fati-ly6tl]

Omg you're voice has changed so much

[@Fati-ly6tl]

*your

[@NaBa.O3O]

You are a beautiful person. And a beautiful woman, yes. I said the first sentence without specifying gender because even if I was to judge things through what's considered beautiful on female or male standards you still look beautiful anyway, in a way that actually (positively) baffles me. Plus you seem like a very nice person in personality too, which is even more important and beautiful about anyone. You're a great human being and that's the best way I can describe it. Keep being yourself, girl, the world is a better place with people like you in it.

[@djbananaphone]

When my brother started showing symptoms of the really rare syndrome he has, doctors thought that he had the same thing as you (mainly because he's deaf.) Turns out he has something else that's much rarer but I still think it's all really interesting. (PS I love the green hair, you literally rock every color wtf)

[@djbananaphone]

(btw, I didn't mean "interesting" in an insensitive way, I'm just interested in genetics since it's had such an impact on my family ☺️)

[@GinaTonik]

Just curious because I find genetics interesting too: what does your brother have if you don't mind me asking? I wikipedia all these sorts of things just to learn more :3

[@djbananaphone]

HeightofMediocrity he has Brown Vialetto Van Lehre Syndrome (I probably messed up the spelling but it's BVVL for short.) it's like a riboflavin deficiency.

[@GinaTonik]

Allison Fitzgerald Wow that's a mouthful lol. Cheers and I hope you and your brother are doing well :)

[@icouldnthelpit2957]

"It's just my face is cute" STEF YOU'RE WONDERFUL

[@livelongandprospermary8796]

"I don't see X (color, syndrome, etc)" I recognize you have X and it is different from me but it's beautiful and I am not bothered by it.

[@Lunadare]

I came here from the first video. I want to thank you for educating us. I had no idea this syndrome ever existed. Also, I have such a high respect for you for coming out here in order to educate. I adore the way you impress about embracing our differences, and loving our faces 😍

[@teenspiritrox]

"A disease is a pathophysiological response to internal or external factors. A disorder is a disruption to regular bodily structure and function. A syndrome is a collection of signs and symptoms associated with a specific health-related cause."

[@haioemma4]

god YES, that last thing you said, it's so bloody important. it's the same when people tell fat people "you're not fat, you're beautiful" well i'm gonna blow ur mind->>> they can be BOTH beautiful and fat. i am chubby and i'm great, i have acne and that's fine, this is just me. if i feel bad physically i like thinking about this short quote "i am not this hair, i am not this skin, i am the soul that lives within" coz ur just a person, it doesnt matter. ur lovely

[@KC-gf3ct]

I found you from your waardenburg syndrome via random youtubing but I stayed because you are amazing!!!! I think you are amazing and you are beautiful, know you are loved and accepted :)

[@crissyd3836]

I came across your video while doing a project and I have never heard someone speak with such conviction. Not only are you talking about waardenburg syndrome, but you're also conveying such an amazing message that every person in this world should hear "your differences make you beautiful" This video left me speechless for a very long time. You're a beautiful person Stef Inside and out ❤ much love and respect

[@Lilsweetings]

People can be absolutely vicious, ignore them Stef, someone always has something to say about things that have nothing to do with them. Not your problem. Keep your head up!

[@cindiseidl2665]

Your message is kick ass, I totally understood your first video. I too was wondering if you transgender or transitioning

[@cindiseidl2665]

Now I know. You rock the whole woman thing very well.✌️ 😊

[@pugsrkewl]

bread momnyou may not read this but when you talked about having a shell. I did that. i was crying because finally I have someone i can relate too

[@catherinepeloza6041]

ChubbyDino sending hugs to you

[@jonicooper2279]

Love ❤️

[@Skinnymarks]

"no body should say they are blind to your difference" Love the message you went into in this video. I've been mulling this idea for a while and i want to thank you for putting it into words.

[@SixtySecondYoga]

“It’s just my face is cute that’s the only thing” 😂

[@frankboogaard88]

No it isn't. Up to you to guess if it is cute or the only thing

[@enevy3165]

Frank Boogaard........................ You do realize she was literally just quoting the video..... 1:58

[@frankboogaard88]

No he wasn;t

[@enevy3165]

Frank Boogaard Boi sushiroll speaks just commented a quote of what she said in the video. I even posted the time for ya. Did you not see it? 1:58 1:58 1:58 1:58 there.

[@finleygray417]

I laughed so much 😂♥️

[@erikae6183]

love you girl!!! i found your channel through the original waardenburn syndrome video popping up in my reccomendations. subscribed straight away and haven't missed a video since in over a year :)

[@poropiropii]

Today is my birthday, and im glad that you uploaded a video! ilysm

[@MusclesandBooks]

Mine too! High five and happy birthday!

[@countessada9530]

Happy Birthday!!

[@carolinec9308]

YOU. ARE. A. QUEEN. Not only because you're absolutely stunning but also because your confidence rubs off on me. I have trouble with feeling confident and now I am starting to embrace the bump on my nose and love the way I am. I LOVE YOU

[@BannerThePonyboxer]

Also I am loving the one strand of hair as bangs, it's super cute!

[@laurasosweet]

"what is different about you is most certainly integral from who you are as a person" daammn true

[@julierocketqueen1477]

I love the positivity you put out into the world 💚💚💚.

[@cmm4449]

I don't even know how I got to your videos but I'm so happy I did. You're such a wise, confident young woman. Your videos are uplifting, inspiring. Young people like you restore my faith in humanity.

[@jenniferlopez5181]

I was literally about to say "that bitch from splice looks cool as hell" just as you said it lmao

[@Nyaaaaa14]

I always thought that splice girl looked badass. lol

[@TheRisingIcarus]

Rightt, I'm terrified of aliens so I've never watched that movie 😂 But her face is gorgeous

[@kailyngregorash9447]

I love that movie XD

[@super.tales117]

Most of my family have Waardenburg Syndrome and i'm so glad that you're talking about it so openly. Most of my family are also deaf so when they ask me why they are and I say that they have Waardenburg Syndrome and deafness is really common with Warddenburg Syndrome they never know what it is. People can often be judgemental about Waardenburg Syndrome and it annoys me.

[@super.tales117]

* when people ask me

[@leoniesauter2248]

"It's not a disease. It's just that my face looks cute." That indeed is true ;) Love you Stef :*

[@joworrall4956]

I've just watched both of your videos on your face and they are amazing. My daughter after many genetics tests regarding her micro deletion chromosome disorder is now being tested for Waardenburg syndrome. Your videos on it are so enlightening. My daughter has a beautiful and unusual face which shares so many of your traits that everything now seems to make sense, from her facial structure to her deafness right down to the quick hair growth which has always astounded me. When her diagnosis is confirmed I'll certainly show her your videos so she understands how fabulously cool and original she is. Many many thanks Jo

[@martarez6348]

omg your so pretty you look like a magical pixie ahhh

[@avaeasley4364]

marta rezk Yeah she does.

[@stef5929]

Thank you. I have a syndrome too and sometimes it's very hard to deal with it. Your video gave me a little more self-confidence

[@miranda4life792]

,

[@r5ndom527]

Y'all are beautiful ❤️ fk em! Do you! Work that shit!

[@silversss9619]

when she said 'its ok, its ok, its ok' all i could think of is Here Comes a Thought lol.

[@silversss9619]

truly, honesthly

[@jordanlp02]

Lol yesss.

[@crybabyattwentynefandms8193]

I love that song

[@halleann100]

You have a gorgeous face and I love your attitude towards life. I did not know what Waardenburg Syndrome was... and I'm glad and appreciative of your videos because I learned from them. Thank you. We are all unique and I wish more people would go with their individuality instead of trying to fit into a mold. You go girl!

[@jennaorlowski9228]

I'm @ 2:02 "My face is cute!" You are fucking awesome!!! and now, to watch the rest 😋 soo, just watched the rest and you seriously got to me, I love your positivity!❣️❣️❣️ Seriously, you made me cry! I sooo needed to hear that right now, you are such an amazing beautiful human being!❣️❣️❣️🤗 For the first time ever I'm getting a completely fem haircut💇, I am soo nervous because of the unknown results... but I have always wanted to try coloring my hair, but have been too scared to do it. Plus I have always donated my hair for cancer kids. I feel selfish "having some fun" instead of donating my hair next haircut. Idk why, but for some reason they don't accept died hair? idk y? Girl! You have given me validation that I should just be be me! I love you... not in a creepy way... but the love of a good friend.☺️☺️☺️ I'm totally going for black with a hot pink streak... may seem simple to you, but for me its revolutionary 💋 You are soo real, I seriously felt like we where just sitting and chatting! I wish I knew you in the real! p.s. I'm not stroking you, I seriously thought you were a woman in that first video... "the more you know" I feel like an idiot now, lol😋

[@jennaorlowski9228]

You have just inspired me to start my own youtube thing... I just hope I have the gull to go through with it.

[@jaysonbickel671]

There are some places that accept dyed hair!! I forgot the name of it, but theyre better than locks of love actually

[@7M3LLiS7]

I think it makes you look like an anime character and that's awesome!!

[@kyrastube]

Oh God, the first point! I have Aspergers syndrome and I get that ALL THE TIME. People think it's a disease, when it is in fact the normal state of my brain. so I hear you on that sister!

[@markpike5008]

I've just stumbled onto a couple of your videos. Syndrome pr no syndrome, trans or no trans u r a breathtaking young lady. Surpassed only by you wit and how you try to get others to see their own beauty regardless of what others may say. I'm no longer a young man and there's a lot of wisdom in your videos. God bless you Stef

[@taylamaloney2820]

Omg you're actually goals; you're so beautiful inside and out 😍💕

[@olivia.l6627]

I think your face is very interesting and beautiful! I like your nose and bright blue eyes. And that white streak is super cool!

[@drinkallthesunshine]

Diseases don't have to be contagious... Many aren't.

[@unFayemous]

I think the word "disease" carries a negative connotation because people misuse it a lot. It basically just means anything that causes your body to be in any state other than "healthy".

[@georgeisaak5321]

What I admire about you Stef is your inner strength , that energy you radiate and makes you so special !

[@perfectlyhopeless]

On a totally unrelated note, and I apologize for this weird question, what is causing the pretty lights in your room? Do you have a filter or is it actual light? I'm curious because my delightfully ADD addled brain likes to focus on the way that your white strip of hair changes from blue to pink

[@hereismia]

Kyla Elena she uses mood lights from a Halloween store!!

[@perfectlyhopeless]

Ooh thank you ^___^

[@Cutegirl12316]

Kyla Elena it's so pretty I wanna do that

[@Faymysticreations]

that was my frist video I saw of you. and I first thought oh my gosh your so beautiful and strong I was inspired by you. for loving who you are.

[@rosalina4852]

I isolate myself because I'm just scared of everyone and hate myself :)

[@KirstenBii]

same

[@user-nm8zc6iw5p]

**hugs** I used to be terrified of everyone - like I had AWFUL social anxiety. I ended up in CBT (cognitive behavioral therapy) and it helped me SO MUCH..still have anxiety, it's part of who I am, but it's no where near as bad as it used to be. I recommend looking into CBT, sometimes it's even offered through the school. And it's usually covered by insurance. I dunno I don't want to sound preachy or like someone with a savior complex so sorry if I come across like that but I just wanna help if I can, because CBT improved my life SO MUCH. See if there's a school counselor you could talk to- thats another thing that's helped me so much. Good luck

[@fatalimmortality801]

Nebulous Killjoy a) gErArD b) CBT helped me so much and, just to add to your comment, I've found GPs are usually the best place to go for a CBT referral (in Britain at least)

[@Riannejeffries]

Thank you girl!!!! Why would anyone want to look like everyone else? Uniqueness and individuality is what makes you you. It should be celebrated and embraced!

[@NoOneReallySpecial]

I honestly find your genetic birth defect pretty damn cool looking. Your eyes are beautiful and you definitely stand out among the crowd. I just recently found out I have genetic deformities 25 years and 5 surgeries later. Basically, mine is hard to tell unless you stare at my elbows which bend at weird angles. My joints are supposedly squared off and grind down as they move. I gained bone disease, arthritis, nerve damage, and lost rage of motion and strength thanks to mine. It makes me feel at least 10 years older than I am. >.

[@recynd77]

No One Sadly, most people's "syndromes" aren't cute at all. Or fun, or "embraceable". I guess it's nice that some are, but...most aren't. Good luck and much strength to you. ❤️

[@NoOneReallySpecial]

recynd77 Such is the cruel fate of life. I definitely feel for all who are born with one and definitely look up to people who can deal with theirs or embrace theirs. I'm glad to see her talking about hers. I hate mine since it's bad enough to make me lose jobs and always make me be in pain, but not bad enough for me to get taken seriously. Thank you very much! I could definitely use all the good vibes and luck I can get. :)

[@lexell21]

Your voice sounds so much more femenine now compared to the other video...

[@lexell21]

I should have watched the whole vid before I said that...

[@Patriikc]

ikr

[@lexell21]

***** true

[@lexell21]

yeah that makes a lot of sence

[@icepalmhearthgold338]

+betru2urself07 Hormone treatment doesn't change your voice or even the pitch. You can tune your voice by practice as said Stef herself at her video "Voice training for trans girls".

[@amayayoungblood7031]

she is the most gorgeous thing I've ever seen in a while and I really mean that looking at her makes me rethink beauty comes in all forms wow😍😍😍😍😍

[@vicp6205]

Hey Stef! I stumbled upon this video while learning about genetic anomalies in medical school. I just wanted to thank you for being such a wonderful advocate! This video helped me to mentally address the term "normal" etc. You seem like such an awesome person!

[@lelouchvibritannia6979]

"is just my face is cute" >_< I love you so muuch

[@livfeataliens7628]

this video is awesome 😊❤️ so well spoken and informative

[@livfeataliens7628]

also your eye make up gives me life

[@angethedumbone]

Honestly, I always thought your "unique" (bad wording I know but still) face made you look like an elf or faeiry. It does look unique, but not in a negative way, in fact I'd say it makes you look charming. It's just a part of you, not your whole being. Also wow that shirt is gorgeous on you! 😍

[@emelygarbe4501]

I actually can't even tell you how right you are with this video. You probably know that already, but id like to mention it. You really give me the inspiration to embrace myself and just be the person I am no matter what some peoples say. thank you a lot