My first experiences of TN pain symptoms, and the pain 2 years on

[@laurakelly8624]

This is super useful, thank you 🙏 listening to you talking about TN reminds me I’m not the only one going through this !

[@Letsfaceittogether]

That's good Kelly, because loneliness is the worst thing about it.

[@miajackman525]

Soooo I’m VERYYY early in my journey with TN. I was only diagnosed last week really and I still have some other tests to do of course. But ever since, I’ve been doing some research and within the first 2 minutes of this video you’ve described EXACTLY what it’s like for me. That means a lot right now. Please keep sharing 🙏🏾

[@Letsfaceittogether]

Thank you, Mia, that's so encouraging 😊 💖

[@michelleschneider3220]

Love this,and you are right, I was lucky to have a primary dr. who knew TN. He always told me I am the boss. I know my symptoms and know what works. I am sensitive to many medications and was allergic to Epitol early on. It worked great and so was disappointed when i was allergic to it. Topirmate has been my main and cybalta,but dr. lowered when i developed liver issues. Frustrating as i began to have intense pain , more pain than i had in a very long time. I have had TN since 2013. Severe ear pain, jaw pain and spasms and throat--all on my left TN side. An occasional zap under my tongue too. My pain was a 10+ on a lot of days. Still i went to work as we were short staff. I am a preschool teacher. I finally reached out to my dr., switched schedules with a coworker and they said go to er. No , no time. I had my appointment and given pain medication and steriods. I am a caregiver to my parents also and have other chronic issues. Your right, having to care for others and function daily with pain is hard. I may be smiling outside,but insideI want to scream out, this sucks--stop pain! Thank you for sharing your journey!

[@Letsfaceittogether]

You have had a very tough time, Michelle. I hope you can find new ways of coping and that things stay stable enough for you to be able to function. Thanks for watching

[@debvoso9490]

Carbamazepine helped me too But I did get a RFA ablation and went off of it But now it’s starting on other side sporadically Praying it doesn’t get worse Love to hear your messages

[@Letsfaceittogether]

Praying it won't worsen for you too. As long as I feel well enough I will keep going with the channel!

[@debvoso9490]

@@Letsfaceittogether Please do

[@dorisyuen3507]

Thank you for sharing ❤️

[@Letsfaceittogether]

You are welcome Doris

[@margaretschuler7338]

I am sorry I do not know what she started on.

[@chhuanpuia6388]

i'am my right face very pain. 5 year.

[@Letsfaceittogether]

I'm sorry for you 😔