My First Parkinson's Symptoms & The Levodopa Test

Рет қаралды 11,114

Жыл бұрын

In other videos I have discussed My First Parkinson's Symptoms but haven't gone in to greater detail about the Levodopa Test. My next video I think will be a deeper dive into it. It is also referred to sometimes as the Levodopa Challenge or by the brand name Sinemet Test. If you are struggling with getting diagnosed this is a diagnostic tool that can be used and you should look into it and discuss with your doctors or Movement Disorder Specialist.
www.mayoclinic.org/diseases-c...

Пікірлер: 96

@janetedge2358 Жыл бұрын

Good video thank you but as a retried nurse/nurse prescribers and now learning all about Parkinson's it's not logical to me. they put a huge list of symptoms under a 'Parkinson's disease' then treat all those symptoms with the same medication! My PWP has mainly non- motor symptoms even now 6 years on. many others I see Motor dominant symptoms so why treat all with LD! They say no Parkinson's patient is the same- hence they should not be the same. We have had a horrendous journey with LD- did. nothing but now dealing with the consequence of side effects.

@keitymarley733

Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms••My Dad is completely okay and healthy now💪🏼…

@JeremyMcdonald Жыл бұрын

You are so right! My road to diagnosis was full of dead ends and doctors scratching their heads. In a way, it was a relief to hear what I had suspected for quite some time. Thx, Jenn for all you do and share with the Parkinson’s community!

@donindusted Жыл бұрын

In a way I'm lucky I self diagnosed before seeing the Neurologist, but still it took a long time to accept what it was and many glasses of bravery to begin searching for answers. Lack of arm swing, loss of a sense of smell and a change in gait (my shoes wore differently) were pretty definitive symptoms.

@jibberoverjava

I have several significant symptoms of Parkinson's but my neurologists do the emg and although they see something they decline to consider my several other symptoms that they have witnessed saying I don't have Parkinson's or als but and claim they THINK a muscle biopsy is too INVASIVE but upon my reqest to do it anyway the decline to, none have ever done one for me. I've never been able to see a neurologist that specializes in movement disorders. Despite witnessing my other symptoms, they also make no notes of them in my record. The last neurologist I saw initially said yes he could try the leva dopamine test for me but on my return visit reneged saying it couldn't be done because it could kill me and focused the entire visit on how much money all of it would cost despite I reminded him I had already asked my Medicaid about the expense coverage and they'd told me they cover everything, every bit. Every visit after those first two he heavily Gas Lighted me almost yelling at me and only questioning me hostily about my mental health which the depression and anxiety that had come on suddenly I was defensive about due to his histility that he carried on even in front of his co-doctor. On a video visit I set up a camera and recorded his hosile gaslighting, questioned him about why he wasn't willing to consider my several symptoms or note them in my recods to which he responded with his gas lighting that I aimed to capture in the recording and when I addressed his unprofessional and unwarranted hostility he visibly struggled to restrain himself and I concluded it that I was uncomfortable seeing him any further to to his behavior. After that visit he began harassing me, made appointments for me on days and times that I had at the first visit made clear I was not able to make appointments on . I'd get notified 1 hour before the appointment time and written as a No Show for not giving 48 hour notice which he knew very well could affect my Medicaid. He has his nurse and secretary calling me multiple times a day throughout the weeks untill I told him that I was reporting him to the hospital and I immediately began receiving a barrage of spam calls and texts, some with links I never clicked, I think he was trying to spyware my phone to see whether I contacted the hospital about him. Anyway, for the sake of storage space on my phone, I uploaded my video of him on KZbin as a unlisted video so nothing could cause me to lose it and this was I could share it with the hospital easily in email and have further documentation of my reporting him. My right hand now has subtle resting tremor added to my several other symptoms but still no official diagnosis. My adult daughter now in her mid 30s has Parkinson's. She had REM sleep disorder and anxiety that we noticed at 11 years old but we never knew it was a Parkinson's symptom or that she would ever get Parkinson's. My son is almost 40 and he has so sense of smell since he was about 12 years old but so far no further symptoms. My other 2 children have no Parkinson's symptoms so far.

@elizabetholiviaclark Жыл бұрын

I have essential tremors, so I thought for a long time those tremors were just getting worse, but there were a couple of new kinds of tremors, and that wasn't all. ET wasn't a disabling problem for me, but these changes aren't the same. I can tell the difference now. I sort of knew by the time my neuro confirmed it. It was still another thing to actually hear it from her.

@lalittl Жыл бұрын

I love your videos, they are literal life savers. So comforting and more importantly informative. Please never stop doing the good work

@davidhughes5998 Жыл бұрын

Wonderful place you film/live in . My handwriting is also changeable and very small and untidy at times. I first noticed my fingers being erratic on the keyboard. Thanks for another helpful film. David

@astrozoo

Parkinsons is deficiency in dopamine/serotonin production, all functions that rely on them are affected. Ussualy, the brain cell that produce dopamine/serotonin die off for some reason, the key is to prevent further die off and regenerate new cells. Doctors attribute the die off to stress, but it's unclear what the stressor is, often some kind of chemical exposure like pesticide, mercury, or methamphetamine use. Lifestyle stress would be extreme situations like trench warfare, drug addiction, or people who are not sleeping enough and overworked drinking diet colas

@rosemaryclarke6250

Good Lord. Calm down. You have Parkinson's and so do I. Just stay calm. Sinemet works well for me.

@ricksuvanto5009 Жыл бұрын

I like Ban Gar and A Little Bit Shaky self diagnosed. For me. I found this easier because there really was no denial. I'm the one who told myself I had it. This helped me right out of the starting gate

@SDWP Жыл бұрын

The joys of doctor hopping. The Sinimet worked right away for me too. Congrats on the upcoming interview! I’m looking forward to it.

@Cabmaker Жыл бұрын

I had similar symptoms to you, small handwriting and intentional tremor. I am 4 years in now with my battle with pd. Thank you for your channel and sharing your story. God bless