MY JOURNEY WITH ALOPECIA AREATA

[@hailstar007]

It's good that you put it into the sentence and said that steroid injection (almost only thing that works even a little) is just slowing down the inevitable. Because it's so true and this is so important for all of us with alopecia to ACCEPT that. Also in time, injection becomes completely ineffective in the end after multiple sessions over years / decades.

[@Swedishviking2]

Sheesh girl you’re gorgeous. And I love your positive outlook, this has definitely helped me ❤

[@mathildaarndt4564]

Best video I’ve ever seen. Thank you so much. You’re helping so many people with everything ❤️

[@Onameguono]

I have had this on and off all my life. Now i have lost about 30% of my hair for over a year now. This is the longest spell. I hate wigs so i went completely bald for a bit, but now i rock a fade as all my balding is on the sides and back of my head. Its good to see other people like me.

[@ket2332]

Every time I try to talk about it and I’m in my 60’s but just lost all of it I cry. So I’m pulling from your strength and attitude.. Your lucky you kept your eyebrows..

[@samankarimi8612]

Just seeing you talk about these difficult issues makes you so much more beautiful in the eyes of many. Outspoken people pave the way for others

[@ohfifi]

Wow you are so strong and thank you for talking about this

[@sunsharks]

i'm 13 and i've suffered from alopecia areata ever since I was born, and I don't think it's ever going to go away, so I've been trying to learn how to cope w/ it. I have multiple patches on my head that come and go, as well as alopecia ophiasis, so I don't have hair around the sides and back of my head. at 5:00 I really relate, I've never actually seen my hair fall out in the shower, or on my pillows, or anywhere for that matter. it's really terrifying how I can be unaware of how bad my alopecia is getting because you can't actually see it. right now, my alopecia is probably the best it's been in my life, around my entire head my hairline starts abt 2 inches higher than it should, but a couple of years ago I was at my worst, and I had lost probably 70% of my hair. I've been taking shots for my eczema, called Dupixent, and a side effect my mom and I were unaware of was hair regrowth. my eczema has completely gone away, but I'm still taking the shots for my alopecia, I'm coming up on 2 years of using Dupixent and it's the only thing that's ever worked for my alopecia ophiasis. before I started Dupixent, I had tried taking pills for hair regrowth, steroids, topical creams, the list goes on and on, yet it never worked. right now I'm getting peach fuzz and baby hairs in patches on the sides of my head, right now, about 20-30% of my hair is missing but I'm hopeful. alopecia is absolutely terrifying, and I've had so many people around me say 'it's just hair, it's not a big deal', but they haven't experienced what its like. right now I don't have the confidence to show my alopecia, but I'm hoping I'll eventually be able to not be ashamed of the way I was born. if you see this comment and have alopecia and are looking for any possible solutions if nothing else has worked, try to get your hands on dupixent if you can :) some info abt dupixent: i take the injection once every 2 weeks (it's not a steroid injection btw), in the legs. dupixent can be VERY expensive if your family isn't comfortable, I'm lucky enough to have my parents' insurance company mostly cover it. dupixent will probably take upwards of 6 months to even start seeing results, so please don't get discouraged

I had it myself in February this year and thankfully it's all back now... just wanna say that you'd be absolutely gorgeous even with a bald head! Seeing how confident you are to make a video about this while going through it makes me feel like an idiot for being so embarrassed when I had it lmao.

[@puneetmakeovers7574]

So proud of you.. you are so beautiful

[@annika_boron]

PROUD OF U MY SISTER ❤️

[@marlowemain]

i have alopecia and i wish i knew people with it in person to have a friend who understands!

[@motherlythoughts5415]

YOUR MY INSPO BABY GIRLLLLLLL 💕💕💕

[@ishasharma9643]

You are incredibly brave and really stunning for that matter too 💝💝

[@tashitobgyal8944]

I had since childhood still facing it and now totalis Alopecia I’m facing

[@vannesaelvin7352]

You are fantastic ❤️

[@torypuffer6386]

you are so amazing!

[@carolsiebert5835]

Thanks for the video!

[@muhammadraees7445]

Now I am in the same situation

[@raewhite6038]

I love you so much

[@kkww5034]

I'm having this same auto immune disease , I'll talk more later ,just read the lobate gmneo down below

[@maddieorlando]

[@StopJazz]

Thanks for sharing 💕

[@johntorres6566]

Use selsum blue redmdicated

[@localman12]

You are so cute and adorable with a great positive attitude, but I personally wish you wouldn't use the "F" word in your videos.

[@elenaramas7505]

Wow, you are amazing. Can i be my friend 😊

[@kkww5034]

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