My Painful Experience With A Ureteral Stent

[@shannonwilkerson-of1fx]

I have my first stent in now and it’s worse than the kidney stone pain almost. It’s constant! Thanks for sharing your story with us so we don’t feel alone ❤

[@cutittaierau3128]

Was the same for me , I had op for a 7 m last 8 months, last week second one for the left side , the stent pain was egal painfully like the 7 mm stone

[@natashafleming5990]

Sick to death of Drs lying about “you will have slight discomfort”. Why do the feel the need to lie? It was the worst pain I have ever had. 14 days of being bed ridden and peeing blood, crying, taking schedule 8 drugs. 10 days sick leave, I could walk to the toilet and shower myself. Anyone I speak to about a stent, I put the fear of God in them, so they are at least prepared for what is going to come. Don’t lie to patients, it is not cool.

[@fozjun21]

so sorry to hear about you rexperience.... But is not this very variably person to person? What are the alternatives

[@natashafleming5990]

@@fozjun21no it doesn’t vary, a person might lie about it for whatever reason (I suspect a dr has asked her to do this to up his patient numbers), there is no alternative, you just have to pee blood for 2 weeks.

[@fozjun21]

@@natashafleming5990 it does vary

[@Ovrlol]

@@natashafleming5990it does vary for every person. I just had one in last week and after 48 hrs i no longer needed painkillers and my urine was back to normal colour. Im sorry that you have a bad experience with yours but dont try speaking for everybody.

[@HankdaRanger]

@@fozjun21 Yes, it varies from person to person. I had stents in both ureters for a couple months before I was able to have follow-up surgery. I had discomfort whenever I was more active (exercising, working), and I would regularly urinate blood, but I was not in excruciating pain that had me bedridden. Unfortunately, there's no way to tell how a person will respond to a stent before having one placed.

[@heidijr8287]

This is exactly what has happened with me. I have a very high pain tolerance, but this kidney stone and stent brought me to my knees. I am on day 5 of 6. Get to remove the stent with string myself tomorrow. I had a small stone 5.2mm. We waited for 10 weeks for it to pass. No luck!! So sick of taking all the meds just to get by. Can’t function. In bed or on the couch for 5 days. The day of the surgery, we could not get pain under control and bladder spasms to lessen. I had to insist they admit me to administer IV pain meds. Crazy how I was asked by every nurse and doctor I saw if I wanted to go home. 😫. I believe a lot of people just don’t understand how painful this procedure can be for some. I would put my pain higher than childbirth!!!!

[@libellula3313]

I guess they tucked the strings inside me, otherwise I would have pulled this out myself, I'm in agony. Good luck.

[@andyhammond5649]

I found this video because I'm concerned about my stent. I am having a pretty similar experience as yours. I will never get a stent ever again as the pain is unbearable at times.

[@robertsalsman9013]

I had 2 stints during 1 stone at age 79...took 2.5 months to recover. First stint removed during surgery so no pain. I am a male very scared thinking of when 2nd stint would be pulled out. Been on norco pain pills many years. Bought tube pain numbing cream numbed head of member & took 2 norco 1 hour before stint removed. DID JOB! 2 SECONDS OF PAIN. MY IDEA...FOR EACH OF THESE SO CALLED MEDICAL EXPERTS...MY SUGGESTIONS FOR EACH OF THESE ANIMAL VETS: FIND A STINT OR SOMETHING ABOUT SAME..LITE IT ON FIRE..HOLD DR. DOWN...SHOVE BURNING STINT UP HIS OR HER PUSSY CAT WHILE SAYING..OK..JUST A LITTLE PRESSURE NOW!! WITHIN A WEEK NOW I MUST HAVE CANCER SURGERY REMOVE MOST OR ALL MY NOSE. WHAT A SUMMER THIS ONE HAS BEEN!!

[@GlenVZambrano]

Thank you for your experience. I have had my stent for 35 hours and I’m dying of pain. Watching your video makes me rationalize my pain and not get desperate.

[@mfarber400]

I had the same experience with my stents. I agree with u 100%. My doctors in the hospital were telling me it shouldn't hurt & refusing to give me anything stronger than a Tylenol #3. I suffered for 2 months like that. Literally curled up in a ball crying the whole time.

[@Essentially-Ella]

It's so awful and I feel like most doctors do not understand the pain these things can cause. It's unimaginable. I hope you're feeling better now.

[@mfarber400]

@Ella yes I am better, thank you. . I'm so glad I found your post because I thought I was alone until you shared your experiences. Thank you so much for sharing!!!😁

[@michaelbaldock1682]

I've had my kidney stent in since April and now it's September..6 months..I'm finally having it removed October 12th .omg I'm counting the days..the pain when i go to the toilet his really bad .. I've got 1 kidney stone 7mm that they are taking out as well.. hope you're on the mend.. Michael

[@hardmanchristi]

I’d take a Tylenol 3. They keep giving me torodal

[@resarm5007]

​@@hardmanchristiTorodol is actually one of the best medicines for this kind of pain with kidney stones. Sadly I cannot take it because I cannot take any kind of NSAIDs. Which most pain relievers ARE.

[@libellula3313]

They said in France it's usually women who have problems with these jj stents? I will do everything to not have one fitted again! So I sympathize with you. The stent pain was definitely worse than stone pain. But I do advise everyone to keep checking for constipation, and get a very gentle laxative from the doctor. I have Lactulose in France.

[@skydancer7170]

I had a stent put in about a year ago and it was horribly painful. I am now looking at a procedure where they’re going to go in with a balloon and try to drain my kidney and then put in another stent. But I’m honestly thinking of just not doing it. When I talk to the lady on the phone, she said the stent might be a permanent thing. I can honestly say I think I would rather risk death. I don’t wanna live my whole life in that kind of pain. when I spoke to my urologist before he made it sound like it wasn’t that big a deal. But I had a feeling that was a lie and this video just confirmed it. Thank you for sharing.

[@Essentially-Ella]

Offft I totally get you. I honestly couldn't imagine living with a stent forever either.. I think I'd have the same mindset as you to be honest. Is there not another way?! 😔 So sorry to hear you are going through this. X

[@LaurenCurley-q2u]

I’m so glad I found this video, thank you for validating the awful pain I have been feeling. Absolutely awful. Thank you!

[@fkirlew]

I am on week 6 of a 7 week stent and the whole ordeal has been horrendous. The spasms, the groin pain, the kidney pain, the feeling that your bladder is bursting 24/7, peeing blood, being unable to sleep, unable to concentrate, unable to sit…….I will never, ever have a stent again! Thank you for this honest video. I feel that medical professionals underplay this procedure and I was totally unprepared for this ordeal.

[@Essentially-Ella]

@@fkirlew Ughhh I'm so sorry 😞 1 week to go... You've got this. Honestly I do not understand why they act as if stents aren't painful and it makes you feel like you're an anomaly when you suffer so much with them but all you have to do is go through the comments on this video to see that you are not alone. It's awful! Wishing you a speedy recovery once the tourtchure device is out! 💕

[@corinnelittlefield572]

@@fkirlew me too. Totally unprepared. I cried my eyes out for one solid week.

[@JediPhantom]

Why do doctors say stents are not painful, it's some of the worst pain you can have.

[@Essentially-Ella]

So painful! I can't tell you how many times I have been met with a shocked expression when I have explained how painful they are. I'm hoping some new technology will develop soon.

[@moontreelake3201]

Agreed. They are awful!

[@mitsystearman1461]

Yes!!! My PC doc told me that if they were honest with you about the pain that you’d never do the stone removal procedure. So true!

[@19530ashland]

The never tell the truth or people would not subjected themselves to the horrific pain and embarrassing positions they put you in

[@taebebe9528]

Tell me about it 😭😭😭

[@tofo6916]

Thank you for sharing-its the constant flank pain like you’re always trying to pass a stone. 😬

[@teresadekock8473]

Thank you Ella

[@misskippykat44]

I had my second attempt of kidney stone removal surgery 3 days ago since the first attempt in September was not successful because my ureter was too narrow so a stent was inserted to widen it. This was going well until about 10 days later when I suddenly had very high fever, chills, aching and not feeling good went to the hospital as my student nurse critical thinking was telling me something wasn't right & after every test possible it was discovered that I had Urosepsis from Ecoli as the stent was a foreign object that my body didn't like.

[@nancybove]

So glad I saw your video. People think I’m crazy that I’m having so much pain, stabbing and burning. No one understands.

[@pamowen3452]

Having my 6th stent removed today and I thank God, I’m tired of the flank pain and burning with urination. Wish me luck!

[@marisawoods]

God bless you with healing. Kidney stones and the pain they cause is unbelievable.

[@marisawoods]

Bless your heart. Nobody understands how PAINFUL kidney stones are, until they have it. It feels like labor pain. It's unimaginable pain. I just had my first stone at 43. I had to have a stent, and it came out a few days ago. Miserable experience. My heart breaks for you, honey. I can't imagine what you've went through. Bless your heart.

[@acstratton]

This made me cry. I had a 17mm stone and had stent put in for 2.5 months. The pain is something I’ve never experienced. I had an almost constant infection the whole time. I just had the stone and the stent removed 3 days ago and had to get another one temporarily in place. I’m bed ridden, in constant pain and can’t wait to get it taken out. Thank you for posting this. This whole experience has deeply effected my mental health.

[@Essentially-Ella]

@@acstratton I am at sorry you've been going through such an awful time. Yes, I can definitely relate to having some serious medical trauma. You are so strong and so close to being on the road to recovery. I'm glad this video gave you something to relate to xx

[@susanrocca533]

Thank you, my dear for your video you gave me complete peace of mind. I’m not the only one that has been suffering from a stent. My first one was in for three weeks after a failed kidney stone surgery did a second kidney stone removal surgery. It was successful but this stent time has to be in there for six weeks. I currently have it in with all the problems that people have been experiencing. I feel like it’s an alien in there and I just want it out! this is my first time my stone was 10 mm and impacted in my kidney would not pass on its own. Even with the best surgeon it has been a horrible, horrible experience with the stent. Even with all the pain meds, it does not help the spasms they felt exactly like labor pains. If it wasn’t for you and your video, I would’ve been in the emergency room several times thinking this was not normal but because I’m a person that analyzes everything your video made me like it was normal thank you so much for giving me that peace of mind and looking forward to Friday when this thing is out of me. I’m worried going in there fully awake I’ll be happy when it’s out. God bless you.

[@libellula3313]

I hope you are now free of the pain, my story is almost identical to yours and many others on here. I'm so glad I found this brave lady's video. I'm 75 and live on my own in a remote place 50km from the hospital in France where this Alien THING was fitted. I won't bore you with the details which are the same as many people here. I haven't slept for 4 nights, ironically they kept me overnight in the hospital as I live on my own. I am ringing the hospital in the morning. I cannot even walk to the toilet, I'm walking bent double like a witch with a walking stick. And coping on my own here is very difficult. And there are so many other people suffering. The only other symptoms I can add for others who are worried are that all my pain seems to be in my vagina, and I only have to move slightly like take a quick breath and I'm in agony, I did not even know I had a big 2cm stone 3 months ago, before I had several long urine infections and I was given a routine scan. Now I am completely disabled and incontinent on mega pain killers. I'm just waiting for daylight to ring the hospital and hopefully I can go and get it taken out later. I don't know what I'll do if they say I need to keep the stent in, I'll go to the emergency department. I hope everyone in similar pain with these instruments of torture, gets the relief they need. Wish me luck.

[@leonardolatinojkc17]

Thank you for sharing your experience. Unfortunately for me I had an extremely traumatic experience and I'm still facing the consequences of it. For me the pain was so intense, I felt like having electric shocks going up and down my spine and back of the skull, went to A&E about 5 times after having the stent put in, and kept complaining about that I couldn't cope with the pain and also that I wasn't sleeping at all. Anyway all they kept doing were blood tests and telling me that I would had to wait for an appointment for the removal of the stent. Anyway hospital didn't think it was a big deal, unfortunately when it comes to sleep they're not interested in it and every time they pretty much said that I had to cope with the pain, consequently kept unirating blood and had to wait 2months for the appointment, they then removed the stone and replaced a new stent and had to wait a further 2weeks for the complete removal of the stent. 8 months later, I lost my job, I ended up in 3 different mental hospitals, was put under section 2 and 3, can't fall to sleep without medication, suffer from anxiety and depression and even with medication some nights I don't get sleep at all. It has totally destroyed my life

[@Essentially-Ella]

Oh my god I am so heartbroken to hear this. I can honestly understand where you are coming from though, I was definitely traumatised but luckily I have now recovered fully. It's absuloutly unreal that the doctors seem to think that this is an acceptable form of treatment and I am truly hoping that with time things get better for you. Things won't be this bad forever and I am sending you so much love and healing energy. ❤️

[@Messenger4now]

I can't agree with you more! This is dehabilitating and inhumane!! My doctors refuse to even call me back and threaten that if you leave more than 1 message then it will take longer for a call back.... Well 3 days later and still no call

[@natashafleming5990]

😢 hugs, I hope you are ok now. My story not nearly as bad as yours, but have used up all my sick leave and I am worried I will lose my job. Let us know how you are.

[@brianbanks3044]

I am so glad I didn't see this before my procedure...I was a little nervous before my surgery but if I had seen your video, I may have postponed it...Luckily, my only pain was during peeing and that lasted a minute or so...THAT was strong pain but it went away...I was drinking lots of water so I was dreading having to pee every half hour or less....the pain lessened to 15 seconds or so after 12 hours after the surgery but I really feel bad for all your intense pain...lucky me, I get to do it all again for the other side...I am taking prescription potassium citrate to try and prevent future stones....no sodas or dark colas, water, water, water....thanks for sharing

[@changemymind8692]

Same here. I feel pain or discomfort when I pee only. And it's towards the end of my stream. It only lasts for a few seconds then it's gone.

[@marilynvroon5933]

Im due for a kidney stone opp and im worried 8:53

[@evalenasbabys]

Having a stent is hell! I get to pull mine out in two more days and I’m try my hardest to just relax but the pain is about unbearable. Had the last stent in forever, well over two months and I kept having Bad infection, ended up septic twice and in the hospital several times throughout the two months it was complete hell and now after getting the stone blasted I feel like I’m finally at the end of my Hell journey so to speak and your videos have been so helpful and I can relate to pretty much everything you’re describing.

[@Faceybabybaby]

1st 2 days I had that stabbing burning pain and now it's eased up. What's getting me is the frequent feeling of having to pee and full bladder. Driving me crazy!

[@pinacolada1393]

I've gained weight because the more I walk the more I want to pee. So I reduced my walking a lot.

[@hugosfan2412]

Can't they give us cather my god I want sleep

[@full_regalia8649]

Just had a stent for 2 weeks and honestly apart the first couple of days it was a smooth riding. I’m so lucky.

[@Chioma_paradise]

Awww thanks for the encouragement...am having a urethra Lithotripsy and a stent next week..scared of pain

[@strawberrygirl8572]

I think it's important for people to know what to expect from a ureteral stent and to know that it can be very irritating and, for some, even painful. But it can also be painless and often causes no real trouble. I've had a couple of friends who've had several of them and they told me it was awful, painful, pokey, stabby, etc. Well, my turn came eventually and I was so scared I argued with my doctor and tried so hard not to have a stent. But it was necessary and in the end I was grateful for it. I was in SUCH bad pain from the 9mm stone stuck in my ureter, but once the stent was placed it felt so much better. Instant pain relief. I had to have the stent for a month while I was waiting for infection to clear up and for the laser lithotripsy to blast and remove the stone. The stent was then removed with the lithotripsy procedure when they removed the stone and a new stent was then placed while still under anesthesia in the OR, but I only had to have that one in for a week. Neither of my stents hurt or caused pain. They did cause a little irritation; I knew they were there and that feels weird. Sometimes they'd poke a bit when moving around, so I did need to limit my movement. And they did cause bladder pressure, so I felt like I had to pee very often. Drinking a lot of water helps with that poking sensation, though, and you're going to be up peeing all the time anyway, so drink a lot of water. Docs always say "you should be able to resume normal activity, go to work, etc". Nah, not the case for me. I needed to limit movement, be a bit gentle with myself, grocery shopping or doing any long amount of walking was NOT comfortable because it increased the friction inside the ureter and just made me feel sore and tired. Flomax helps keep the ureter dilated and a bit more relaxed until it can be removed. But, believe me, it was FAR, FAR less pain that the stuck stone was causing, which was a 9 or 10 out of 10. This was just uncomfortable and when I was gentle with myself, it didn't hurt at all or interfere with my sleep. Same with the 2nd one. The 2nd one I was allowed to pull the string and remove myself at home, which was very quick and easy in the shower.

[@Nickilove259]

Thank you for this. No one believes me although I’m still pissing blood, and swollen on my right side😂 I wish we were friends

[@Cookingwithkawish]

I removed yesterday it was soo painfull 😢 doctor told me it is not painfull

[@WinchesterCharmed]

I hope ur feeling better 🤗🤗 Had my stent put in yesterday and it’s really painful when urinating . And the blood still in there it really sucks . I hope everyone who has this or had it or will have hope u all feel better soon.

[@sergiomedina7960]

Im in this situation now. I was in pain from the stone and i went into the ER and the plan was to put a stent in and also get the stone out,also 8mm. Instead the doctor jus put the stent in and left the stone. I went in on Oct 2 and im scheduled to have the stone removed on Nov 18. After the stent was put in the pain in my kidney when i pee was like i was being stabbed. I had to start sitting when i pee because the pain would make me flinch and move and i ended up spraying bloody pee everywhere around the toilet. Its been about a month with the stent in and the pain isnt as bad now but still hurts everytime i pee and i still get the burning afterwards. I will never allow them to do this to me again

[@missmuffet3874]

Bless you going through this rubbish at such a young age when you should be enjoying life. Anyway this video has helped me. I’m a 54 year old woman with a stent for the first time. It’s my third day with it in place and I have been told I have to have it in for four to six weeks. The first couple of days have been agony, urinating blood and just not wanting to do anything but lie in bed with a hot water bottle on my abdomen. I’m taking tramadol and paracetamol for the pain. I know this video is 12 months ago so I hope you are feeling much better. Thanks again for the video.

[@Essentially-Ella]

I am feeling much better now thank you. I hope you are able to get used to the stent enough to manage it for the neat 6 weeks 🤞 I feel your pain though, I'd like to never have one again!

[@AnaAnkica]

Hey thanks for your msg I’m also 54 and tomorrow having my first stent installed as I’ve got some rare infection which needs to be sorted before the stone surgery . I’m honestly shitting myself fear of pain that awaits me. I just wanted to ask you roughly how long before you felt less pain with it?? I’m due to have my first one in for 2wks before my 2nd surgery on the stones after the said 2wks.

[@missmuffet3874]

@@AnaAnkica I am going to be honest I had the first stent in for 6 weeks, when I returned for second surgery I had to have another one in for about a month. I didn’t have an infection but I had bladder inflammation caused by the first stent. I felt much better by the time the second stent was out within a couple of days. Don’t have a spinal anaesthetic, have general. I had the spinal anaesthetic the first time and it was a horrible experience, vomiting lots afterwards even when I got home. Off my food as well. Good luck 😉 xx

[@Shannie92]

I’m so sick of all of my kidney troubles. I’ve been hit so badly this year. I’ve had about 13 kidney stones, both sides affected, since the beginning of the year. Doctors don’t know what suddenly caused them. I was hit with another eight days ago, plus had a UTI and ended up in the hospital for a couple of days. They put in the stent and wanted me to have it two weeks, but I contested the long wait. Thankfully, the lady got me in this coming Wednesday. These things ruin my life! I can’t even walk around the grocery store properly! I’ve been so doped up on opioids and laying in bed. Don’t the doctors realize I have to work? Especially here in the USA. Healthcare isn’t free. It just annoys the heck out of me that they think these things don’t cause discomfort.

[@libellula3313]

Thanks for sharing your story. I have a Double JJ stent in again I'm 75 and couldn't understand the pain in my vagina. I cannot even sit, let alone walk. I had a stone lasered on 9 October, as it was so big they left half behind with the first JJ stent, I survived until 4 November but was in agony all the time, then I found the stone had moved down the tube and stuck to the stent. Now November 8 I've not slept since I had the the new stent put in on November 4th, since then I have all your symptoms and I cannot walk without stabbing pains in my vagina and constant burning. Considering ringing the surgeon tomorrow as I cannot bear the pain. I'm walking with a stick, bent right over trying to keep my legs apart, OK for a Wicked Witch at Halloween. You are very courageous so young to go through this, but strangely you have put my mind at rest a bit.

[@johnmcmaster1630]

Hello Ella, I would like to say that you are clearly a very intelligent young woman. Your information was very unbiased and you looked at this from all angles. I am so sorry to hear that at such a young age you are having medical challenges, and it comes across that you keep a positive attitude in life. I too have had kidney stones since the age of 15, so I have had them for 40 years. I thought I was the only one who had pain with the stent, and this video is reassuring. I agree about the pain, when you have had a stone for years you understand the pain more so are able to cope. I am booked in for Monday to remove the stone and stent and I should get around 5 years of small stones that will pass without help. I wish you good health and will have a positive thought for you. ATB john

[@annakarstens]

Same I have pain and anxiety feeling like my body wants to expel it I mean your ureter things per is in there and has peristalsis to rid it. Pain is real! Not sure why they down play that. Glad it’s over for you for now!! I have one in now for 1-2 weeks.

[@dianavalenzuela3305]

So strange that I ended up in the hospital for the same exact size of stone on my left side with the same kidney infection. I have been searching about the horrible pain I’m dealing with right now; I can’t even walk right because it hurts so much. Razor blades coming out of your urethra, exactly what I feel. They tell you Tylenol will help with the pain, but it does nothing. I called to ask if the pain was normal, and they said stents don’t cause such pain when walking. This video validates that I’m not the only one, so thank you for sharing. On a side note, for those like me who are in the process of finding answers to why all of the sudden you have kidney stones problems. My primary care provider said that Parathyroid Hormone (PTH) may be the cause why kidney stones are created. Hope this helps.

[@mixedbag172]

Your saying everything I've just been through, just got home with stent in and it's awful, I went in with a big stone I was scared because that wasn't that bad, had lithotripsy it broke up the stone into heaps of painful stones that get stuck sent me to hospital bedridden on IV pain relievers and constant pain killers. Home with the stent sux but hospital was gross

[@DomesticDad20]

I’m 4 days into a stent and wasn’t prepared for the pain I’m in. I thought my situation was different until hearing your story and reading the comments.

[@victoriaschell2225]

Im so sorry that your going thru so much pain. I have ckd and cki and ive had to deal with pyelonephritis. Put me in the hospital twice. Id rather go thru labor again and ahain then to ever go thru kidney infections..i drink organic roadted dandelion root tea twice a day. My gfr was 52. Its now up to 80. So its doing better. Finally. Stones are also very painful.. my heart and my prayers are with you.

[@cherylwaldron6886]

I had a stent placed 7 weeks ago was supposed to come out last week got a CT tomorrow as it wasn’t where is was supposed to be when I went for removal. Ngl I’m kinda scared, I’m still having stent symptoms, Hematuria on and off, bladder spasms, peeing so often and kidney pain. Thank you for sharing your experience 🙏

[@kasiesanderson8248]

Getting my first double J stent (with strings) removed in office tomorrow. They said you could work after 2 days of getting it. I've been in bed a week.

[@kasiesanderson8248]

I almost wonder if it would've been slightly more tolerable without the strings. They say I might have to get one quarterly for life!

[@libellula3313]

I'm just about to ring the hospital as I'm in constant pain, stent put in 4 days ago. § sit, walk, pee normally, and I'm 75 and live on my own, I cannot cope feeding animals in a remote area.

[@libellula3313]

I wrote earlier on here that I was having laser treatment for stones. I was in incredible pain due to the actual JJ Stent. I put up with it for a month until the second lithotripsy for the other part of stone. The stent was replaced! Even more pain, after 6 days I couldn't walk, couldn't sit due to vaginal pain. Eventually I was taken by ambulance to the hospital and put on morphine, Saturday. The doctor came round on Sunday morning at 8am! (This is France!) and within half an hour I was being prepped for theatre, my breakfast was delivered then snatched away! The offending GiGi stent was taken out under local anesthetic. So quick. I was so happy, but 2 weeks later I still gave terrible pain in my vagina, this apparently is related to constipation! So dealing with that now. Thanks for your video. I too will ask for a nephrostomie if I get another stent. I am told the pain should settle in one to 2 months? WTH, anyway I have another scan in January and another appointment with the urologist.

[@corinnelittlefield572]

I had a 10 mm blocking stone. It took the doctor one and a half hours to laser it away. I had stent placement as well for seven days with removal with me fully awake. I seriously wanted someone to run me over with a car it was so painful from start to finish. I was not given any pain meds for home use at all. After the surgery I was vomiting from the pain and bleeding like a stuck hog. I begged to be admitted to hospital and given IV pain meds. I was told to go home and take tylenol. Worst experience of my life.

[@Mcloe]

OMG! I understand exactly what you're saying and the pain is excruciating for me as well!! I've had 8 stents since July 2022 and I refuse to ever have another after I remove this last one today at home. I can't take this torture anymore. Thank you for sharing!!

[@Essentially-Ella]

Glad I have found some people who can relate! Fingers crossed for no more stents!

[@marisawoods]

God bless you with healing.

[@tara5680]

I wonder if the other people who experience so much more pain with the stent then others, like myself. If you have interstitial cystitis but are not aware of it. I think it’s one of the most undiagnosed problems that people have. I.C. Is when you have tears in your bladder. So having the stent for people who have that, the pain is a constant 10+. For me it is worse than the kidney stone itself that I had stuck in my ureter for over 4 months. I avoid kidney stone surgery like the plague. I’ve been passing kidney stones for almost 15 years. I lost count after the first few years just how many. It’s definitely like living with a curse. But to add Interstitial Cystitis on top of that is even more brutal. I hope this message finds someone looking for answers as to why they may not only be struggling with pain from a stent but also just every day life. It causes you to need to urinate often, it burns, the whole bladder aches & mimics a UTI.

[@ValerieBrown-p6u]

I had 14 weeks of absolute agony which completely disappeared the minute they took the stent out

[@patriciamamani4139]

It's very painful, I know by experience

[@mohomedfareda4362]

Thanku for sharing,I can relate 100% with what you described ..... i hate stents as well

[@lauraprendergast4378]

Oh my gosh thank you so much for sharing! I currently have a stent because of a large kidney stone blocking my ureter and have had for the last 3 weeks (it's here for 2 months until I can have my stone lasered) and unless I am lying in a certain position it is so painful and makes me feel so sick, I was feeling so pathetic as I researched and everywhere says may experience "some pain" and mine is alot more and stopping me from working and dancing (I don't normally sit still for long)... I really hope the remove it when I'm in surgery... If not can you have someone in with you for removal??? Thank you so much for sharing! Feeling a lot less alone after watching and reading the comments

[@Essentially-Ella]

Ahh I'm sorry you are currently going through this. ☹️ I have had many stents before and every single time they leave me bed-bound in pain & barely able to walk. Know that you're not alone and when google/the doctors say it's not that painful that's a load of rubbish. I'm guessing they will either take your stent out after your surgery or a few weeks later. Sometimes they leave it in to allow the fragments to pass more easily but there are ways around this (depending on your surgeon).. definitely worth asking if they can get the stent out as soon as the surgery is done. I've vowed to never consent to a stent again after my last experience. I have had many operations without stents, so I know it's possible but it's more complicated for the surgeon I believe, so they are often unwilling to do it. The positive is that once the stent is out, you'll feel so much better. Take comfort in the fact that sooner or later the pain will be gone!!

[@lauraprendergast4378]

@@Essentially-Ella thank you so much! I will absolutely be asking for it to come out ASAP and have put myself on the cancellation list for surgery too so hopefully get in ASAP! Can't wait to be back to normal!!! I hope you are well

[@jadeh2699]

80% of people who get ureteral stents experience pain and discomfort. Doctors currently don't know why some people have a terrible time and others don't. The words that come to mind when I think of having a stent are torture and barbaric!

[@tereasaekwubiri-fm6zd]

This is actually me right now constant pain with stent, 6 weeks in I’m depressed 😢

[@Essentially-Ella]

Sending you love and strength but I know how you feel and I'm sorry for the pain you are in!

[@jassimhadjinor828]

Me too.., i have double stent.. Both kidney.. 😢😢

[@hardmanchristi]

It’s very painful.

[@datamariposa]

Thanks for sharing this video. I've experienced the worst pain of my life with the stent. It was a constant cramping of my bladder. The fuller the bladder got, the better got the (cramping) pain. To everyone going through it as well what helped me (besides narcotics unfortunately): Buscopan (a antispasmodic often also used for period cramps) and heat (hot water balloon) between the legs (urethra).

[@Essentially-Ella]

Thank you for your comment. :) Honesty happy to be sharing how awful stents can be as the doctors never seem to want to admit how painful they are. I hope you are feeling better now..

[@tara5680]

You sound like me. I had undiagnosed Interstitial Cystitis for many years. I came to this thread hoping to help somebody. Having a stent on top of I.C. Is some of the worst pain you can experience. Look it up. It mimics a UTI even without the stent.

[@KAZHE63]

Have one now and Holy Cow! The pain 🥴

[@PaulaNelson-z6c]

i just had my 3rd kidney stent removed and replaced with another stent . my situation is that i have a urostomy, no bladder since 2020, I have stage 3 kidney didease, and in constant pain. thank you for telling your story, I truly appreciate it, sincerely paula nelson

[@jeltraikoby]

Hi there, is there anywhere I could chat to you at all? I found this video, searching for someone who's had stents with a urostomy, but can't find anyone. I'm due to have stents due to Hydronephrosis, and would love to talk to someone who's had them x

[@tara5680]

My heart aches for all of you.

[@resarm5007]

Stent due to blocked ureter, hydroureter and hydrokidney. This is my the stone in less than a year. I cannot bear this pain with this stent. It is nearly as bad as the flank pain from the kidney stones. The only way I'm comfortable is if I am knocked out asleep. Otherwise it is constant burning, urgency and pressure. Right now all around my belly button it feels rock hard. And I'm hoping everything is ok. I was able to lay on my side after the procedure to release the stone and the blocked up urine, but now once again I'm feeling pain while lying on my side. The emptier my bladder is, the more pain I feel. And they do NOT like to give pain meds for anything here in the US anymore. Honestly could be lying there dying and they'd be like why waste meds on a dying person?

[@franksanchez4655]

Been through many injuries and felt all kinds of pain in my lifetime but this stent pain is by far the worst pain ever bullets, and knives, don't have shit on these stents they truly are FKN HELL...

[@PeteHob]

Wow, I am so fortunate that I was not in any pain while the stent was in place. I knew what a cystoscopy was like since I had gone over 20 years before. This time after a kidney surgery, I was not told until two days afterward, that I had a stent put in.I found a urologist who would remove the stent under general anesthesia because I would never let anyone do a cystoscopy again without that I realize that for some reason the procedure is not that painful but for enough patience, it is excruciating

[@KinikoLavin]

Omg thanks for sharing this ! This stent is so much pain than kidney stone itself!i am so in pain right now

[@diomarisluzon4439]

I have the urethra stent this very painful it hurts so much I having burning pain when I pee i still have the stent for 2 more weeks, this is my worst thing I ever had done ✅

[@trishamkhabela5113]

Hi Ella. Thanks for sharing your journey with us, I've actually come across a few research articles related to the Copper IUD and how it may aggravate preexisting kidney conditions. Perhaps it may be something to look into if things don't improve. Blessings to you and keep well

[@Essentially-Ella]

Ohh really! That is interesting.. I'll have to look into this thanks for letting me know! X

[@spin1knit1]

I can empathise with you as I too have similar issues with stents and they really are a pain this being my third in the last six months again for renal calculi blocking the ureter. Can’t wait for the removal and to get back to living.😢

[@dianakeith5996]

I had had my stents for almost 3 years they have to be changed every 3 to 4 months it is extremely painful what helps me is hydrocodone I have to have my stents for the rest of my life it is horrible I know what you all are going through I have retroperitoneal fibrosis thank you

[@resarm5007]

God bless you...I'm currently laying here with a stent in for a few days and I'm ready to pull my hair out. I cannot imagine it the rest of my life. 🙏🏻😞💔🫂

[@jewelsfitforaqueen]

Do you have to wear it forever? Do you have a long term plan for retro peritoneal fibrosis?

[@collettexavier810]

I have to have a constant kidney stent exchange evey 8 weeks. I suffer from calcification so when it comes out and a new one goes in....it hurts! The pain is un describable. I can feel the stent when my ureter spasms. Every 2 weeks it will get very bloody.

[@jewelsfitforaqueen]

Are you having to wear it forever?

[@zoe2466]

I know this is two years old and I am so sorry of the pain you experienced. I too had double j stints in each kidney. Started with the neph tubes in my back for 6 months, then the stints went in. All this because of cancer and blocking my uter tubes. Was told they could control the spasms with meds, get them put in then get told we can’t give you anything because of your reduced kidney function. So, o thing in the bladder for 6 months then two stints rubbing. I have never ever experienced such agony, constant agony, worse when I pee which is like all the time. I agree, docs should be honest and tell us this could suck. These are coming out in 48 hours, I will take my chances, I have a shit life right now and cannot even walk.

[@sonjalamar0711]

WOW, hate to hear your experience and all the other peoples experience. I have had one for four weeks and the only thing I have been urinating a lot. I thank God for that. Praying if you have to have another your experience if better.

[@poppieernst17]

I also had a stent removed 2 months ago. NO pain AT ALL. South Africa🙏

[@RayMalik786]

I have had my stent in for 12 weeks now my life has been awful have not been able to do anything constantly in pain crying unable to be there for my family life at the moment is hard just basically living on painkillers and stuck in the house with the pain 😢😢

[@sunnymckay4343]

Feel the same, but my stents are in because of large fibroids blocking my uterine tube, long story short first hysterectomy didnt get done but still had major surgery now waiting for another so far stents are getting replaced every 2 months and I have them for 7 months now, aweful

[@sabahetaalek-finkelman3602]

Bless you for sharing! I've been in massive amounts of pain for the past five days and have to endure another 5 days until my stents are removed. Worse than child labor pain. I will ask about sedation during removal.

[@ashleyspencer8227]

Awful. So glad to know I’m not alone!

[@sbarlow67]

Im having a urinary stent removed tomorrow..... The pain has been unbearable, floored me! I have strings on my stent.

[@johnnyb8629]

It's so funny you say this because I'm in the same boat. I watched a video, and it made out to be so mild. This thing is killing me, can't walk away from toilet, burns like hell, and every time I urinate I get a spasm that feels like my kidney is in a vise. I'm male, so I'm to understand it's worse for men. Mines 5mm, so I can't imagine 8mm... I'm apprehensive about pulling mine out too. The first surgery was unsuccessful, they couldn't get the camera up, so they said to leave the Stent in and I have to go back under after a week or two and they said it should open up more to allow the camera up through. I need this thing out...

[@narifaalicia]

Had a ureteroscopy 2 days ago to remove a stone. Unfortunately for me, it was discovered I had a ureteral stricture so the scope couldn't pass through my ureter to get to the stone. A stent was placed. I'm dying of pain. Cannot stand straight, walk or move, nauseous at times, no appetite, peeing blood constantly and it's painful to pee, back hurts, abdomen feels full and extremely bloated, lower pelvic area in constant pain and the side with the stent is throbbing, can't get comfortable in any position, can't sleep, can't do a thing, basically bedridden. My parents are doing everything, feeding me, bathing me, changing my clothes, helping me use bathroom etc. Pure hell. I have to go at least 2 weeks with it. I don't know how to cope that long. Painkillers aren't helping much 😢 There is a chance the stent won't be enough and I have to do some sort of balloon dilation procedure in 2 weeks to try and retrieve the stone. If that doesn't work, I have to do laser to cut the stricture. All because of an unnecessary stone 😡 God help me through this! 😢 P.S: I am glad you are doing well and over this whole ordeal. God bless and thanks for the video. Thought I was having complications but it seems it's all "normal" with stents. You put my mind at ease so thanks a lot for sharing. My doctor gave me no info whatsoever about what to expect nor does he take my concerns seriously.

[@hillaryfrisbie8429]

The spasms or contractions or whatever it is doing, feels like it is trying to expel the demons, blood and all. Gas lighting from drs and nurses ... Yeah it'll be uncomfortable. No. It will be painful. Sure this pain isnt anywhere near it was that got me to the emergency room, but this isnt just "uncomfortable". Have imaging in 2 days, to see if the stone has moved, then have a procedure to breakdown the stone, and hopefully keep the stent out. This is horrific.

[@cynful66]

I could have written this video. EXACT SAME EXPERIENCE! Terrified I’ll ever need another one. Did you have pain for a few days after stent removal?

[@gwynnethsmith9226]

I've had two stents. The first wasn't bad except it caused a kidney spasm right before I had to pee. The second one I felt sometimes and it hurt while at work, but sometimes I couldn't feel it. My bladder hurt when it would rub. I'm scared about the removal today

[@okworngozika6474]

Had ureteral reconstruction because of kidney stone obstruction and hydronephrosis I don't sleep at night I can't explain this pain

[@koitvinnal6551]

I still have UPJ obstruction, feel you, had first stent about 6 months and now i got a new one few days ago(1year this time) and it's crucial. And i'm always wide awake when they but stent inside me, first time i almost broke my own fingers. They only press some numbing gel inside, but it don't help at all. Wish you best anyway!!

[@mitsystearman1461]

I’m suffering terribly as I’m watching this video searching for some relief. I’ve had 5-6 of these stents after lithotripsy to blast stones and each time I’ve gone through hell with pain. Several years ago I was on strong pain meds with one and it was not helping me AT ALL. My niece who is a RN suggested I take 800mg ibuprofen and I said to her that I’m taking strong pain meds and it wasn’t helping, what on earth could ibuprofen do? I had nothing to lose so I took it and it worked! After that I never felt it at all and had it removed days later. So…years later when another stent was implanted I thought I had the magic fix… but NOPE!!! These things are horrible! I told my doc I want to be admitted to hospital on IV pain meds. But of course they don’t do that…but they should because it’s that bad!

[@Essentially-Ella]

I'm so sorry. I hope your stent is out and you're our of pain now. It is the worst pain I can possibly imagine. X

[@elliemcwilliams3631]

getting my stent out today and i’ve been bedridden for a week and in excruciating pain and my doctor keeps telling me it’s normal but i know it is not normal to be in this much pain . i can barely walk and even lay down .. im so relieved im not the only one experiencing this 😫

[@mythu9991]

Its not easy. Its not easy at all. I have one in me right now.

[@ewills8644]

Just had a stent put in 2 days ago. Yes painful, mostly pressure. The burning stopped after the first day. A bit concerned about the bleeding tho. Anyone else?

[@greyzonee8242]

Thank you. I am having a stent... i am constantly peeing Blood every time for the past 4 weeks.. i am pretty worried.

[@PrototheDodo]

I’m suffering from one right now! Its absolutely awful. I’m supposed to get it out Tuesday or Wednesday which is good. Fingers crossed!

[@taebebe9528]

Goodluck having one in my body now and being in pain a lot sure the attacks is a pain in the ass. My pills are ready to pop in if it start to cramp up....

[@carteunu467]

2/3 of the people cannot tolerate stents and have excruciating pain

[@tara5680]

I’m glad you shared your story. It helps others to know they’re not alone or going crazy because the Doctors tell them they shouldn’t be in that much pain. I think all urologists should have to have a kidney stone & a stent before they can practice 😂 See how they feel about it then. Have you had any more troubles with stones since you posted this?

[@Essentially-Ella]

That's the aim 😊 from the age of 13 I've been made to feel like I'm not in the 'correct' amount of pain. I either don't show it enough or am told I feel it too much! Crazy how some doctors seem to think they know how it would feel without ever having had one!

[@mrboaty9427]

I had my stent removed last Tuesday. I hated the stent! It was in there for 2 weeks and I urinated blood the entire time it was in there and kidneys ached and throbbed the whole time. Every time I urinated, it felt like someone was squeezing my testicles. I felt nauseous and clammy the entire time. The removal was pretty painful, but it didn’t take but like 10 seconds or so. Once it was out, I felt like a brand new man! I was finally able to pee and feel like it all came out.

[@tennesseefix]

Thank you Ella for sharing your experience. I also have chronic kidney stones despite change of diet. I would love to talk with you sometime. Please feel free to contact me. God Bless!

[@Tearfaced]

On week 3 of stent and so far it wasn’t as bad as the first one. I have my lithotripsy on the 31st and they said it will be in for another couple of days or so and then removed. I’m really hoping for a quick recovery because although I can walk with it, there are days when it really bothers me just walking a little bit and then there’s lots of blood in my urine.

[@okworngozika6474]

I swear its very painful

[@shelbylee7280]

I’ve got one I hate it the pain is so bad it’s Constant it’s the worst pain ever

[@Sm-zq4ep]

I’ve just had two kidney stones removed last Saturday they blasted them and fitted a stent . the pain is horrendous I’ve had it a week tomorrow and I am on the verge of tears . I am also 18 weeks pregnant so went in to the assessment unit yday to see if everything was ok because I didn’t believe these stents where to cause so much pain and they are treating me for a UTI now . I am on the antibiotic from yday and I’m hoping something eases it soon I am about to pull my hair out . I want this out 😢😢😢😢😢

[@itfc88]

I'm currently on my second stent and each time it's fitted first few days I feel great. Then the sideffects slowly kick in for me constant blood and incontinence.

[@jenks458]

How long do the bladder spasms last. I’m in so much pain!

[@Essentially-Ella]

Ugh I'm so sorry, it's the worst! Mine were pretty intense for about 24 hours, then they settled down. Wishing you all the best ❤️

[@cherripaterson6066]

i dont mind about cat toy, you went thru a lot at young age , your very brave thanks for this info as my friend having this procedure done

[@Essentially-Ella]

And thank you for the lovely comments. So glad I'm feeling better and I actually finally have a diagnosis which might mean less operations and pain in the future. 🙌

[@sallyhull5093]

I have stent In now been In for 2wks and I'm miserable

[@odd_one8]

The stents are awful. They want me to get a stent even though I don’t have stones bc of how much pain I’m in. I am hate the stents

[@brewerheatingandair6509]

I have had one in for five days and minor discomfort. Probably passed 100 stones the last 38 years. Not a big deal just dont push when you urinate as it allows urine to go back in your kidney. Not a big deal for me so far

[@Essentially-Ella]

Thanks for sharing your experience! Ahh so you are the people the doctors tell me about when they say people actually get along with stents! Ha. Unfortunately they are traumatising and a big deal indeed for me. I truly wish they weren't!

[@brewerheatingandair6509]

I feel for you. KIdney stones are awful I have been dealing with them since I was 27 years old. Mine are uric acid and I just seem to make them no matter what meds I am on. Allopurinol helps but I just need to try and drink more water. Do you constantly have issues and produce them? My stint is not bad so far but I have five more days of it. Sorry you have to deal withnthis at such a young age

[@taebebe9528]

What come on man the pain is unbearable I mean my kidney hurt even more then with a stone, I almost pass out puke bcz of the pain of the stent... But mybe I am just a p ssy but for sure I had three colic pains in three nites of one that took almost 2 hours and was done with it and called emergencies and they told me to take ibrofen and in half hour it was kinda getting better bcz I was dead tired of the pain and the pills I took. I think have kind of pain tolerance but this is a little bit too much to deal with for two weeks till they get this JJ stent out of me. Any more tips when you get collic pains. Yes when you ahve to pee a lot I do feel pain but that pain is bearable I just hit the wall while peeing and all is okay but the pain attacks for the cramps of the kidney is murdering for me....

[@tara5680]

@@taebebe9528You certainly are not a p ssy or weak. Everyone has such vastly different experiences with these. I have had to learn to live with chronic severe pain for half my life with my many health issues. But stents are extremely difficult for me. I think doctors can often gaslight their patients. They obviously know that many people really struggle with the extreme pain it causes them. They’re well aware. They just don’t want to prescribe meds so they tell you it can’t be that bad. I feel like all urologists should have to have a kidney stone & stent themselves to pass medical school. 😂

[@jackiegoodwin1605]

My stent is due to come out in a week but at the minute I’m suffering with swollen upper abdomen feeling uncomfortable all the time….i have a on going calcium build up in my kidney so develop kidney stones (large) all the time is the uncomfortable feeling in tummy normal did you get it?? Can’t wait to have it out I like you really don’t like stents they are my enemy!!!!lol

[@janettepowis6434]

Thankyou for sharing this video i am going through the same, i feel your pain, what was the best pain relief for you, i have this stent in me, and i dont know what is worse the kidney pain or the stent pain, i have a staghorn kidney stone they tell me i will have the op in august i need help

[@Essentially-Ella]

Ugh I'm so sorry you're going through this! Some things that would help me are hot baths (but if you're in England you probably don't want that right now!) diclofenac suppositories & codeine were the most effective pain killers for me. You could try a tense machine? I've found them helpful in the past. Hopefully you get your operation soon, I really feel for you. X

[@knutritter461]

You might have had some trouble with your stent. I have been doing wakeboarding and kitesurfing with a stent in and I would even put in an additional one on the other side to exclude any risk to suffer that much again from another kidney stone. 😉 I can hardly feel it.

[@Essentially-Ella]

Oh you are one of the lucky ones! Count your blessings that your body doesn't reject the stent like mine does. I wish my body could handle it but I'd take a kidney stone any day over stent pain!

[@abhinavharar]

My wife had 10 mm stone in her left kidney and they removed it through lithotripsy and placed stent for 1 week. After the stent removal, she still feels a lot of pain in her flank side. Could you please tell me how long this pain symptom shows up?

[@ruralridez6165]

Im on week six with my stint and its so terrible I have to pee all the time and it burns so bad. I go in in 6 days to get my 6mm stone removed. I tested negative for a uti I thought thats why it hurt so bad.