My Recent Hospital Stay | Crohn's Disease | Story Time

[@courtno787]

I'm so glad you're home, I hope things get a little easier for you now. Spoonie power!!!

[@MarshRobyn]

I'm glad you're doing beter. Stay healthy

[@wayneallen9387]

Hope that you're feeling better soon.

[@astheticdork7456]

Entyvio worked great for me after they increased me to every 4 weeks. 2nd infusion at 4 weeks, my face and tongue swelled. I am now on stelara. I love dilaudid. It takes away all my pain. So nice.

[@Marvolo]

+J Nelson Entyvio still isn't doing anything for me. My doctor wants to take me off it already, but I've only been on it for 3-ish months. Stelara is self inject right? Or am I misremembering? Uhg I could use some dilaudid right now lol. Though last time I was hospitalized, I found that it doesn't help with all types of pain. I had a real bad IV on my wrist with a potassium infusion going, and that was excruciating pain even with the dilaudid in my system!

[@astheticdork7456]

Marvolo have they tried increasing your frequency? 3 months seems a bit of a rush to give up on it. Especially since revisiting in the future really isn't advisable. I wouldn't let him move on yet without changing it. I understand that. When I had a kidney stone stuck dilaudid didn't touch it, but toradol did. I found for belly pain, morphine is worthless and lasts about 15 minutes.

[@Marvolo]

I did tell him I'd like to keep trying. No talk of increasing frequency. My insurance will cover 9 infusions a year I guess, so I'm kind of stuck there.

[@astheticdork7456]

Check this out. They might cover the difference if he is willing to change it. www.entyvio.com/financial-support

[@epic420vision7]

Stay helthy marvalo..stay strong you got this.lol

[@brotherbrandonheterosexual4131]

Stay *HAPPY* Against all Odds

[@nawaragh]

you are so beautiful.. Stay healthy love u