New Symptoms, Old Symptoms, and the Search for Support | Benzo Free 132

[@LanceJones-mh7tz]

Thanks D. I’m in a pretty low place right now as well. I just lost my job because I cannot perform. To be honest I’m surprised it took this long. 30 months off and I am losing everything I have worked my entire life for. I get so mad and sad when I think about what the medical and pharmaceutical industry has done to me. I just wish I could sleep. Anyway, thank you for the video and I really hope you start feeling better soon.

[@easinganx]

Hi Lance, I'm so sorry for the state you are in. I get it. I still can't go back to the work I used to do even if I wanted to. I still don't perform well when under pressure. The anger is also so common, and I too have struggled with it lately. It's all so unfair. If only others knew what this was really like. But they don't. I wish I could snap my fingers and get your life back, but I just don't have that power. Please hang in there. I still believe that there are better things on the horizon for us, and sometimes we just have to stick it out to get there. Take care my friend, D

[@garysimone4977]

D I am in Ct...just got out hospital and talked to so many Dr.and I can tell you not one Dr has a clue really of what PAWS is let alone BIND...IS !! Does everyone heal ? I once believed that, after listening to this I don't think so

[@easinganx]

@@garysimone4977 Hey Gary, I just responded briefly to your other comment before I saw this one. So sorry you are struggling with this so much. I do still believe we heal, but I'll admit it can be hard to keep the faith at times. And yes, much of the medical establishment is still pretty clueless. So sorry. We've made some progress, but it is slow and frustrating. As I've mentioned many times, my protracted state is probably due to more than just BIND. Although many of my symptoms do have a BIND source, I may have neuropathy from quinolones, I have ADHD, I don't always take good care of myself, etc., etc. I'm in the process of returning to the tools that got me here. Eating right, exercise, yoga, meditation, and slowing down a bit. Sometimes we all need a reset. Please hang in there. I know it's hard right now, but even with my ongoing issues, I'm still doing okay. And I do know this too shall pass. Take care my friend, D

[@gregrhodes9139]

You're not alone. I'm in the later stages but it's still hard trying not to be homeless.

[@katyh2599]

Hi D, I just came across you again. I don’t want to so much here. I am considering emailing you if that’s all okay? I’m very fragile and struggling badly and long-term like you. It’s very weird because Ive never had Covid, But do have a massive fear of it, So much so that I used to test all the time and even did an antibody test to reassure myself , but yet I’m still obsessing and the fear is ridiculous . I have had copious amounts of major stressors though,that I can’t handle. I have really tried to as had no choice, and also losses different ones and a pending; one If I talk about that, I will break down sub for the rest of the day. New symptoms etc. I’m so tired of this. I’m one of those unlucky ones when it has been wall-to-wall bad symptoms no let up, And I’m so beaten up, though though I’m not alone and that helps. How do you clean to hope that this will end and the others have gone through the same or similar situation and get their lives back no matter what or how long.

[@paullawrence8438]

Keep your chin up lance do what ever it takes. My journey very similar I've lost everything to. what's helped me is I've learned not to look back but look forward how ever hard it is just remain positive. I'm still in the middle of a long taper but if I dwell on the past getting through this will be impossible. Remember everything you've lost you can get back in time best wishes Paul. Top work again D really enjoyed this one

[@easinganx]

Thanks for your reply to Lance, Paul. It always helps to hear from others who are in a similar predicament. We're in this together and we will get through it the same way. Talk soon, D :)

[@garysimone4977]

I am in Ct,,,,Doctors here have no idea about PAWS let alone BIND JUST LIKE when they give a list of supplements or meds can cause setbacks Almost none evidence based.. yes frustrating But ya right pull back

[@lisasmith814]

But we will heal won't we?????

[@easinganx]

I truly believe we do heal. Unfortunately, there is a very small minority of us (yours truly included) who take a long time to heal fully. I can tell you still to this day that my symptoms were definitely worse when I first discontinued Klonopin, and that I was doing pretty well until my couple of bouts with COVID. I just think that set me back a bit. But, I have seen so man people heal that I believe I will too. Take care, D

[@garysimone4977]

​@@easinganxI now have my doubts