A day on seizure watch - after rescue medicine

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This is part two of seizure watch. Elin was with her carer for a few hours, the seizures picked up and got a lot worse, until we agreed that some rescue medicine, called buccal midazolam, was needed.
I'm a special needs mum vlogger in the UK with two daughters, one of whom is severely disabled. Elin is a girl with quadriplegic cerebral palsy, she has a feeding tube, is a wheelchair user and as she can't use the toilet independently she is in a nappy / diaper.
Apart from cerebral palsy, Elin has complex medical needs and seizure disorder. She has tonic clonic, or grand mal seizures, partial focal seizures and absence seizures. She is on multiple medications every day, for her spastic muscles, for her reflux disorder and for her epilepsy. Elin is on a blended diet, which we give her through her feeding tube, and I share tips, how to and recipes.
On this channel I share our day to day life, our morning, feeding, medication and bedtime routines, feeding techniques, how Elin communicates, etc. I also showcase the relationship between Elin and her sister Alice, and how they play and interact with each other.
Elin’s medical procedures playlist: bit.ly/2HhKFsE
Tips and tricks playlist: bit.ly/2ugfoy1
Come and join us on other social media platforms:
Instagram: / parentxp
Twitter: / parentxp
Facebook: / parentxp

Пікірлер: 7

@belindataylor2389 7 ай бұрын

I hope Elin is doing a bit better now I hope Alice is better from that day and I hope you are alright love to you all

@enistinemacrae4841 Ай бұрын

I'm very surprised that they have given Ellen those recue medications They really do make you feel out of it its very uncomfortable and off course bless her heart ❤️ being non verbal Ellen can't tell you I take baclofen and my neurologist changed my medication to epilim and they have being really good. He said if i have more than one then phone for an̈ ambulance.. What makes me angry if i go out shopping without my family then an ambulance is called anyway. I've being trying to find a lanyard for epilepsy Love ❤️ you guys so much ❤️ you're one fantastic mum ❤️