Parkinson's disease: Karen's story | NHS

Usually considered an older person's disease, Karen Rose was diagnosed with Parkinson's at just 34. She talks about the impact it's had on her life over the past ten years.

[@xiawhuaidan]

My mum is diagnosed with Parkinson when she was only 38 years old too .. and we have been coping with her disease for more than 10 years now ... It is not only important for the person who suffers the disease to think positive ... it is Much More important for those around them to understand what they are going through and try to keep up .... I HATE those ppl who ACTUALLY thinks that my mum uses it as an excuse to escape hardwork! They dunno half of the truth & are being very unsupportive !!

[@utopianmind1553]

Thank you for telling your story. I am 62, diagnosed when I turned 60. I am very bent over & "impossible" to stand up straight. You have beautiful posture! Take care, & keep up what is making your neck & back aligned so well:)

[@catcow11]

I like this lady and listening to her. My father has been diagnoised and I will share this video with him and my Mom. I think a support group is a great idea. Support is what he needs! Thanks!

[@paulstar777]

Thanks for this video. Though I was diagnosed a couple of years ago it never occurred to me to search PD on KZbin until tonight. I'm going to be on here a while looking at the masses of stuff there is here. Hope you're doing ok.

[@marji889]

this runs in my family also but i don't believe anyone has it that it has been this bad. my grandma,mother, and 2 of my brothers have it.thanks for sharing this! God Bless " all who have it....

[@Foundinthewoodsbushcraft]

Thank you so much for sharing your story.

[@HandBrakeDownload]

Great to hear Karen's story on living with PD.

[@elizabethkellerman969]

Thanks for sharing your story.

[@mosulemanji]

Thank you, inspiring story and gives hope to others with this condition

[@floralvarez6]

im sorry to see this . Its so hard. I just went to the neurologist because something is wrong with me. Im 44 and Im so scare that this can happent to me. I cry for so many days . I dont even want to know. But I saw this video and I can even wash it all. Im so scared of having that. This deasease should have more studys and find the cure. I trully hope the vest for you and other. its crazy how we dont appreciate our body till it is not the same. Good bless you .

[@NHS]

@fywacia On the nhs.uk website you can find more information about the symptoms of Parkinson's Disease in the Health A-Z section. If you are concerned we would always recommend that you ask your GP for advice. Kind regards NHS Choices

[@mayaybailey4822]

Hi, how do you doing at this time? I have PD too but I got the DBS surgery two months ago and I feel great , I wonder how do you doing at this time,God bless you!

[@kebabmaniac]

Thank you for sharing this information! Could you please suggest the best medicaments and how ofthen you have to consume them ? Wish you pacience!

[@babsstapleton6616]

I agree, its an awful disease it effects everybody around the person also people need to remember that. My Dad had it for a long time. I hope they find better drugs or a cure soon

[@babsstapleton6616]

They have hinted about it being hereditory but never said it definately. My great grandmother and father had it at early ages... Im sorry you had to witness so much of it Marge

[@3695oggie]

I was diagnosed 6 yrs ago when i was 48. Like this lady simple tasks can be a challenge like getting out of bed or just getting dressed. When my medication has kicked in I'm a different person but then you get the off periods . Learning to live with it is hard, I was once asked to leave a large dept store cos i was " rocking & rolling " cos i'd forgotten to take my pills and they thought i was drunk . I have had to give up work now. You have to learn to beat it or it will beat you.

[@NHS]

@dakine2285 Hello, her consultants and GP would definitely be the best people to ask about what's happening. For general information about Parkinson's Disease, stroke, and anxiety please go to the Health A-Z section of the NHS Choices website (nhs.uk) Kind regards, NHS Choices

[@fywacia]

@oarmedt Can you please tell me what the early symptoms consisted of? Did you ever have periods of muscle stiffness and pain that last for weeks and then subsided for a short time only to return?

[@buffyslayer30]

good info right here.

[@Tns85]

My hand shakes when I walk. I have a resting tremor it's gotten worse over the last six months and it's hard for me to use my mouse for work

[@eiliyah.wahhaj]

@VixenRender bless your heart!

[@meganmose]

My moms mom had this Diease and then she lost her memory, she passed away in 2006.

[@shadowflare2255]

im so sowwy tah hear that about you and it almost made me cry .. but you can still live a normal life and its not that you can die from it ... you can still wake up in the mornin and drink a cup of coffee .. its ok .. its ok..

[@anticliche321]

At 34? oh my gosh!

[@Armstrong06punk]

i need serious help hear my dad was diagnosed with parkinsons just before cristmas 2011. it started off early 2000's whitch you dont realise at the time.and his right hand started shaking then the left.but his mood has changed so childish and angry whats going on?

[@floralvarez6]

im sorry what is gere therapy? Thank you! i have no ideas what is that.

[@myousiknlaw]

I share your symptoms and your observations. People see us when the meds are working and not often when we are brought to our knees in pain and have to crawl from room to room. PD is a cruel and expensive mistress. I do find that the creative side helps reduce the pain and symptoms, however, and have posted my performance at the Parkinson's Disease Foundation Bal du Printemps as a response to your video. All the best, Peter Thompson

[@meganmose]

@ShockingHannaH my Grandma did too ,she died in 06

[@sportshistorybuff]

Good luck with your challenge. For my education, could I please ask if people with Parkinsons Disease typically have no facial expression (mask) or a constantly changing facial expression (no motor control)?

[@vasujayaprasad6398]

Very sad people do not understand pd patient. I have heard a wife shouting at a pd patient for staring with bulging eyes. She does not know all pd patient stare due to water pressure in brain,ataxia.Pregnant woman also stare and is lazy.Same stoop! see parkinson's disease cure video you tube

[@PTH4Fun]

Is she british?