Parkinson's Vibration gloves - How they have affected my health (full break down)

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Life with Parkinson’s

Life with Parkinson’s

Күн бұрын

Пікірлер: 102
@MinvlyMusic
@MinvlyMusic 10 ай бұрын
Thank you so much! Your videos are helping me to understand better what my mom is going through, and let me tell you that you are an inspiration for all of us, families included. Thank you for being here in youtube, showing yourself and creating content, sharing and speaking of this! Its eye opening to know that what we are going through some other people are going through the same, its not easy but speaking of this kinds of helps to not feel alone and by sharing what you are learning that helps us as well!!! God bless you
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hello Min, thank you for your kind and encouraging words. I am sorry that your Mom has to go through PD, but I am glad she has you and your family to support her as well. You are not alone here. Many understand. Bless you as well.😀😁😊
@MrDjinxbass
@MrDjinxbass 10 ай бұрын
It will be a while as I'm working full time, but I will share results!
@ParkysPlace
@ParkysPlace 7 ай бұрын
One thing you mentioned stood out for me. You rightly point out, We have Parkinson's, but I have my PD and you have your PD. This is something people without PD have difficulty understanding. They think PD is one size fits all, but no. There are different cancers, different cold viruses, and indeed different PD unique to the individual.
@LifewithParkinsons
@LifewithParkinsons 7 ай бұрын
Thanks for bringing up that point as it is a very easy one to forget. BTW I will should have my 6 month update on the PD gloves in a few weeks.😀😁😊
@MrDjinxbass
@MrDjinxbass 10 ай бұрын
I am going to build a set for my wife. I was waiting to see your results. I like the tech side of it and she's a willing patient. Thanks for the report!
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Awesome 😎 please let me know how it goes I would like to know the results thank you. 😊😃🙂
@dinapawlow1622
@dinapawlow1622 10 ай бұрын
Thanks, always helpful to hear from you.
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thank you, Dina.😀😁😊
@ellenquintero6
@ellenquintero6 10 ай бұрын
On “ no silver bullet” Tass presentation he stated vibes should b one hand at a time randomly - I think syncing is wrong, listen to it
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thanks Ellen. I will check it out. That is a surprise for sure 😀🙂😊
@janetpattison8474
@janetpattison8474 8 ай бұрын
See the YT interview w/ the older guy who did a keto diet, as he was in very bad shape, declining, and he has reversed the Parkinson’s by 90 or 95%! Incredible!
@LifewithParkinsons
@LifewithParkinsons 8 ай бұрын
Thanks for the tip Janet😁😊😀
@gv1043
@gv1043 7 ай бұрын
Have you been able to reduce your parkingsons medication
@LifewithParkinsons
@LifewithParkinsons 7 ай бұрын
I will cover all of that in the update video. A Very small reduction in my levodopa carbidopa but there is more to it than simply that 😃😄😀
@raniramalingam3373
@raniramalingam3373 9 ай бұрын
My father is affected by Parkinson. I want my father normal.Really daily i am crying about my father's condition. Where should i buy this glove? Can you guide me
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Hello, sorry to hear about your father. I hope he is able to get some symptom relief. There is no where to buy these gloves at the moment, it is a DIY project. All the instructions and information are at this KZbin channel. Thanks😀😊😁 www.youtube.com/@pdvibrationtherapy
@Girlbird111
@Girlbird111 10 ай бұрын
Hi, it seems working fantastic, great to see your improvement. I just tried the simple version of hand vibration, and I used the massage gun with a soft head. You just put the fingers on it softly, and the whole hand vibrate vigorously. You could change your fingers or hands from time to time. It does work for me.
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Great. So glad you found something that can help 😄🙂😊
@teddieryan2288
@teddieryan2288 7 ай бұрын
I am just starting this Parkinson’s journey, so am following your channel regularly. Thanks. Good luck to us both.
@LifewithParkinsons
@LifewithParkinsons 7 ай бұрын
Thanks for saying hello. Yes good luck to us both 😀😄😉
@stuartwest8836
@stuartwest8836 6 ай бұрын
Please reseàrch CHARCO DEVICE
@LifewithParkinsons
@LifewithParkinsons 6 ай бұрын
Hi Stuart, I have looked into it. It is not available in Canada at this time. Would you like a video about it? Thanks😁😊😀
@stuartwest8836
@stuartwest8836 6 ай бұрын
@@LifewithParkinsons thx. but I have one aĺready , I am77, diagnosed 3 years, no meds Ì understood CHARCO is going Global, why not check again? Best wishes from Uk
@magizh-yaazh
@magizh-yaazh 5 ай бұрын
hi sir my father affected by Parkinson tremor is in right hand only .can wear glove for right hand alone.
@LifewithParkinsons
@LifewithParkinsons 5 ай бұрын
Hello, yes you can use the glove on just one hand. Also, please look at the VILIM ball for tremors, here is the link. vilimed.com/shop/ Use code LWP50 for a $50 EUR discount.
@mattgrantham597
@mattgrantham597 4 ай бұрын
@@LifewithParkinsons Did you try it, and if you did it help if I may ask?
@kathym6603
@kathym6603 26 күн бұрын
Much admiration for your ability and willingness to communicate about this.
@LifewithParkinsons
@LifewithParkinsons 25 күн бұрын
Hi Kathy, thank you for your kind words. Will be doing another update soon.😊😁😀
@danear2
@danear2 10 ай бұрын
Thanks for your time and lets see in 10 weeks what will be 🍀🍀🍀🍀
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thank you Dane!😀😁😊
@trainman2860
@trainman2860 10 ай бұрын
Its been an amazing adventure helping you build the gloves. Really amazing to see how this treatment knocks back the Parkinsons.
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thanks Trevor. It has been an amazing journey, it's almost like blazing a trail together. We're only a few months into it, excited to see what will happen next. 😀😁😊
@teo1835
@teo1835 6 ай бұрын
@trainman2860
@yelenabrusilovsky9315
@yelenabrusilovsky9315 7 ай бұрын
I found out about gloves 15 months ago. So I did it differently. Bought vibrating ball, peanut, roller, platform and do vibration on legs, feet, and hands always with finger tips. It helps muscles to get stronger, more flexible, more energetic.
@LifewithParkinsons
@LifewithParkinsons 7 ай бұрын
Hi Yelen. Glad you found something that works for you. I tried the vibrating ball for a couple weeks also but it didn't help with any of my symptoms. 😄😀😃
@sharoncribbs7516
@sharoncribbs7516 10 ай бұрын
Glad you are having improvement with the gloves.
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thank you Sharon!😀😁😊
@PeterKavanagh-k6c
@PeterKavanagh-k6c 3 ай бұрын
Thank u david pj from ireland ure not love ure chanell i am 14 years witth p d keep up good work
@LifewithParkinsons
@LifewithParkinsons 3 ай бұрын
Thank you PJ!😊😁😀
@gregmccawley2327
@gregmccawley2327 10 ай бұрын
Well done! It's great that you are spending the time giving feedback, I'm sure that this will be appreciated by everyone in the PD community. Keep up the good work. I hope your next 10 weeks prove to be exceptionally good! All the best Greg
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Greg, thanks for the encouragement. I will keep everybody updated.😀😁😊
@SDWP
@SDWP 10 ай бұрын
Thank you for sharing. Glad to hear that you are finding some benefits from the gloves!
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thanks Michele! So far so good!😀😁😊
@judymcfarland917
@judymcfarland917 10 ай бұрын
Another great video. I will have to look into these gloves some more. It seems like there are so many ways people get PD. I know that there was no one in my husband's family who ever had it. Several years before he came down with it he developed a virus that was quite serious. I've often thought that this had something to do with him getting PD. I'm glad to hear the gloves are working and your beginning to smell things again. We always have to keep the faith.
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Judy, I feel it's worth the time looking into this technology, hopefully it helps many people who suffer.😀😁😊
@yanpaul7506
@yanpaul7506 7 ай бұрын
my wife is parkinson too and check parkinson glove in Thailand has this medical glove.is it worth to try?
@ivankos3305
@ivankos3305 9 ай бұрын
......And where did you get the instructions how to bild the gloves?.......Why Dr. Peter Tass' ones are not in production yet?
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Hello Ivan. All of the instructions on how to build the gloves can be found at this KZbin channel. www.youtube.com/@pdvibrationtherapy I do not know why the Tass ones are not in production. Thanks for the questions.😀😊😁
@ivankos3305
@ivankos3305 9 ай бұрын
@@LifewithParkinsons Thank you; unfortunatelly I am not electronically savy..I purchased European Cue1, but it is not halping any of my 14 symptoms...The whole field is rather confusing. Some reserches state too much dopamine causes PD; others blame gut bacteria and vagus nerve...etc.
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
@@ivankos3305 Yes things can get confused especially with the vibration technology. There's not much information out there and no guide
@suzanne9622
@suzanne9622 9 ай бұрын
Thank you for all you are doing to help people with Parkinsons.
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Thank you Suzanne!😀😁😊
@kevincaress4582
@kevincaress4582 9 ай бұрын
You mentioned you had tried different programs offered on the DIY site before you finally got the right one. How was “ the right one” labeled -its title?
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Hi Kevin, here is the link to the software I am using167 buzzboard github.com/pdbuzzboard/pdbuzzboard 😀😊😁
@kevincaress4582
@kevincaress4582 9 ай бұрын
I’ve had the DIY buzzboard modified by a relative and one of his buddies who are both engineers (one electrical and the other mechanical). We made some pretty cool actual gloves, but after trying the different programs, had no real results after as few as 45 hours of ‘glove’ time on those listed. Used 167 random, the 167 you use and a couple of others provided by the DIY guy. No real positive response noted, so they wrote another even more random combination of impulses and still not getting good response. Glad to hear you are sensing some positive results with the 167.
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
@@kevincaress4582 I am sorry to hear that it is not working well four you I hope you can figure something out. 😀🙂😁
@WeSearch4u
@WeSearch4u 9 ай бұрын
David, I,ve watched your glove progression from the very first video you published. It inspired me to build a pair myself. With in the first week I got my sense of smell back and was feeling my balance was a bit better but no help on the tremor. A month into it and nothing has changed. I too may simply have the wrong program. I have built a second pair and now looking for a program (I believe they call it a sketch) to use. Where did you get the program you're using on your version 3 gloves? Gratefully, Rusty
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Hi Rusty, these are the comments I look forward to. Thank you for the encouragement and I am happy you are trying something new. Here is the link to the software github.com/pdbuzzboard/pdbuzzboard I use the 167 program for the buzzboard configuration. Since my symptoms are not tremor based, I cannot speak to how the gloves will affect them.
@WeSearch4u
@WeSearch4u 9 ай бұрын
David, Thanks so much for the Response. I use the 167 program on my first set of gloves, so I'm looking for an alternate. I added B-1 therapy to my regiment and that has helped my concentration and eased my daily aches and pains. Unfortunately Nothing seems to help with my tremor so far. I'm part of a clinical drug program Which helps me measure my Parkinson's every month. I can truly see my ups and downs because of the monthly testing and they don't consider the gloves or the B-1 a drug which means in there eyes it doesn't interfere with the drugs they are pumping into my body each month. I'm still looking for something to help with my tremor. The latest path I find myself going down is focused ultrasound........kzbin.info/www/bejne/qnbLc56aeMxsgc0si=XuVSLD8Rh-bU_o4I Parkinson's8
@JohnPascale-t4x
@JohnPascale-t4x 10 ай бұрын
Hey Dave, you are an inspiration for me and my PD gloves! I did not have the correct sequence of the vibration and was doing more harm than good. But now we have installed a new program and the gloves are much better. Thank you so much for your faith in these gloves!
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
This is excellent news! So glad you retraced your steps and found the solution. Thank you for letting me know!😊🙂😎
@ellenquintero6
@ellenquintero6 10 ай бұрын
R vibes in hands synced ? I think shouldn’t b - listen to “ no silver bullet” Tass presentation
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
I found the video and the time stamp, not sure we are wrong at this point. Let me know if you find anything further. Thanks for checking into this important detail. Much appreciated.😀😁😊
@ellenquintero6
@ellenquintero6 10 ай бұрын
On newer silver bullet Tass video dr specifically declines answering the question re syncing due to patent pending its at end of video
@ellenquintero6
@ellenquintero6 10 ай бұрын
Look at 101.27
@vintagedazzle
@vintagedazzle 9 ай бұрын
You are looking and sounding better!
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Thank you so much 😃😁😊
@ellenquintero6
@ellenquintero6 10 ай бұрын
I read vibes supposed to b like cellphone vibe very mild but u sound like it’s strong. Can u describe this here again . Thanks so much
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
I like a stronger vibe, it seems to get more affect, but I wouldn't say it's overwhelming.
@ellenquintero6
@ellenquintero6 10 ай бұрын
What mm diameter r ur motors
@joecarr3337
@joecarr3337 9 ай бұрын
Thanks for your videos on the gloves. To give you some background, I was diagnosed with PD nine years ago. I had DBS about 3.5 years ago. The DBS has really helped me, along with medication, with many of my symptoms except my gait. I now need a walker to get around and have near falls everyday. The Stanford video really made an impact on me and I tried to get into a trial at Stanford and at Synergic Technologies in Eugene but was rejected because I have DBS and they don’t know yet how this might affect things. So I made 2 sets of gloves. The bottom line after a few weeks of using them is that they don’t seem to be helping. Other than some sore fingertips, they seem to not to have any affect at all so I have stopped using them. I am contemplating donating one set to see if someone else can get some relief from their PD symptoms.
@LifewithParkinsons
@LifewithParkinsons 9 ай бұрын
Hi Joe, thank you for the info. Yes I could understand that DBS interferes with the gloves. Hopefully you can find someone local to donate to.😀😊😁
@angelakindon9839
@angelakindon9839 10 ай бұрын
Thanks!
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Angela, thank you for your continued support!😀😁😊
@ellenquintero6
@ellenquintero6 10 ай бұрын
David did u get ur instructions to build from the buzzboard utube videos? Do u use program 100 or 167? Thanks so much 😊😊
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Ellen, yes I did. I use 167 and I love it!😀😊😁 Thanks for your suggestion that I was over stimulating. I have cut it back and am sleeping better. Slept 8.5hrs straight last night
@ellenquintero6
@ellenquintero6 10 ай бұрын
I also listened to Tass again he recommends cut back after 3 months I listened at all of his stuff again last night not sure which one I heard it in - ps - did h try program 100 first- did it work?
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
@@ellenquintero6 thanks for that. No I went straight to 167
@scarletjosefinacartayarios8594
@scarletjosefinacartayarios8594 10 ай бұрын
Hi David! Are the gloves mirror?
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Scarlet, mine are setup that way, but I don't know what the official word on that is. Another viewer is looking into that detail. Will let everyone know when she finds the answer.😀😁😊
@scarletjosefinacartayarios8594
@scarletjosefinacartayarios8594 10 ай бұрын
@@LifewithParkinsons Thanks, understood.
@ellenquintero6
@ellenquintero6 10 ай бұрын
David in the studies it was done both ways
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
@@ellenquintero6 hi Ellen thank you for letting me know
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
@@ellenquintero6 Hi Ellen, the motors I am using are the 10mm x 3mm, 12,000rpm
@DavidChacon-mm3id
@DavidChacon-mm3id 10 ай бұрын
I’m so happy for you keep it up
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Thanks David. Will do!😀🙂😊
@angelakindon9839
@angelakindon9839 10 ай бұрын
Have you had DBS?
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Angela, I have not had DBS. I am on the waitlist, approximately 3.5 years away if I am correct. I am thankful the gloves are helping.😊😀😁
@angelakindon9839
@angelakindon9839 10 ай бұрын
Do you think you will ever get DBS?
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
Hi Angel, I'm not sure on the DBS at this point. I would like to give the gloves more time to try and sort things out. To me, it just seems there are more options out there lately. Hope you are well.😀😁😊
@ellenquintero6
@ellenquintero6 10 ай бұрын
Do u think too much gloves can make tremor worse? Loads stuff got better I think tremor worse I’m playing with glove dose wondering about ur experience
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
@@ellenquintero6 hi Ellen Tremors aren't really part of my symptoms spectrum I don't get them very often so I don't think I can answer your question. Super glad to hear some things are getting
@ellenquintero6
@ellenquintero6 10 ай бұрын
@@LifewithParkinsonsthank you
@LifewithParkinsons
@LifewithParkinsons 10 ай бұрын
@@ellenquintero6 did you get them made? If so could you send me a picture to info@lifewithparkinsons.ca
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