Restless Leg Syndrome evidence based treatment

[@hunnyyy1109]

who else is watching this while struggling to sleep cause of the pain ;(

[@miranassy2759]

Mine's like psychological pain

[@miranassy2759]

I still have this, just making myself tired in order to sleep, maybe mine's a joint problem cause it's making a soft crunchy sound when I flex it intensely, I remember not sleeping a whole night because of this

[@lynnthompson7395]

ggqbbie yes 😢

[@shoppekro]

I am watching coz I have RLS too😥😥

[@shoppekro]

@Susan Mason same I have this feeling 😥😭

[@user-sm2bj2ry4x]

usually, i cant sleep.. it feels like i need to go for a jog in the middle of the night..

[@niki7159]

Me too 😭

[@user-sm2bj2ry4x]

@@niki7159 try to wear socks.. 😊

[@ntanetcsstudy]

me too watching it at 2 am bcz of this

[@hollydavis06]

I literally just went and climbed stairs for 20min straight and still my legs won’t stop. This is every night. I don’t know how to live with it anymore😓

[@OO-fc4ys]

@@hollydavis06 i have the same thing!!! Did you find any solutions?

[@nadel6285]

Omg I’m so sleep deprived because of this! 😭😭😭 the creepy crawly sensation is also in my arms and happens even during the day when I’m trying to make up for the previous night sleep deprivation!

[@BellsandJess]

I get it in my hands and arms as well. Have had it ever since I can remember. It’s like silent torture.

[@miranassy2759]

I have this too, do you find a remedy now? What do you think is the cause?

[@BellsandJess]

Mirana Ssy my only remedy that works sometimes is taking a long and very hot shower but only on my hands/arms and feet/legs. That works about 70% of the time. As to the cause who knows...I speculate because of bad blood circulation and genetics.

[@miranassy2759]

I remember I have this for almost 2 and a half years now, but these passing months it's getting worst I feel it all the time, it's ony right leg, I also thought its arthritis but my doctor says that 24 yrs is too young for that but I can feel that my right leg is getting weaker but not that anyone can notice it, this comment is too long, I just want to share this cause it's really annoying and it's becoming more of a psychological pain rather

[@miranassy2759]

The doctors diagnostic is that I am low on potassium, been taking potassium tablets First we thought I am high on uric acid, but we found out that my count is just normal and only the potassium is low, but I think that's not it, anyways thanks for your recommendation

[@BellsandJess]

Mirana Ssy I’m 32 and have had it as far back as I can remember like 5 or 6 years old? I’ve never been to a doctor for it because I don’t feel like it for 1 and 2. I don’t feel like being put on any type of pharmaceutical medication. For example I’ve read that there is a Parkinson’s medication that works really well for RLS. Anyway it all good if you need to talk about it. I’m hear to listen I guess. For sure it’s psychological pain and I doubt I will ever “beat” it.

[@ilovelasagna5632]

It's 5 o'clock in the morning and I've been up for 2 hours, and no matter what I do it won't go away

[@soniaglasper5502]

Sabes I have it and the only thing that stops it is to get up and walk about for a few minutes. If I don,t, it will last half the night. I once got it while in mid flight and it was terrible. I must have driven the passenger next to me mad.

[@AUZLDY1]

@John oh no..... Mine is typed as severe... yours sound worse... hard to be upbeat with this constant pain that takes over my mind....

[@AUZLDY1]

@@soniaglasper5502 yup... I have to walk around the plane! Driving early evening for very long, I must stop the car and walk around. Stretch. Take Rx. I want to pull out my hair, chew off my nails, pinch my legs, kick my feet..... hate hate hate it...

[@tashanavarro3631]

Hey hey same its 5 am rn and ive been awake at 3 am

[@michellesovereign4564]

A good iron supplement with a complex B supplement works wonders. A can or bottle of tonic water that contains quinine settles it quickly too but the supplements work longer term. I was suicidal with this condition and have it under control now. Don't give up, there's help out there.

[@rustycrumpton8489]

Had this since childhood. Didn’t even know it was a condition until recently,just thought it was me. Doing leg lifts, pacing, massaging and slightly pinching my legs, or running freezing cold water over them are all things that help me personally. It is very annoying, especially when you are so exhausted 😩 but your legs will not let you rest. However, it is such a normal part of my life because I can never remember a time I didn’t have it.

[@abhinavdce]

Hii rusty, I also have this syndrome. There is always pain in my calf muscle and there is always urge to move my legs. If you have got any medicine/treatment for it, pls let me know. I will be highly grateful

[@OO-fc4ys]

How are you doing now? Any updates?

[@OO-fc4ys]

@@abhinavdce how are you doing now? Any updates. I have this problem too :(

[@shaheen3501]

Same as u

[@elianazz]

im going CRAZY!!! glad to her im not the only one who puts my feet on ice cubes! that in itself is torture but it helps to hell w gabipentin and everthing else ropineral makes it worse its a neron misfiring in your head that does it thats why ice works.tonic water works too.

[@euphoria1942]

I have this and I literally cannot sleep!! I feel like cutting my leg of I’m so desperate I can’t handle it 😭😭

[@Zaaxun]

I was the same way. I bought a powerfit elite vibration plate and from the first night I tried it I slept like a baby with no creepy crawly feelings. No drugs, therapies, use 10 minutes about half hour before sleep and my symptoms were gone. You might want to try it, it has 60 day trail if it doesn't work you can get your money back. If it does work like It did for me it's worth its weight in gold. Easy to use, natural no drugs.

[@rayannasir3690]

I feel your pain

[@boopsqaudd7362]

Omg SAME But do you think it’s the nerve?

[@Ghosthunting622]

I'm suffering since 13 years.

[@darnellterrance6966]

Exactly u want to cut the leg off

[@CareyGrayson]

I've suffered my whole life from this neurological disease and it's horrible. However, more recently I found a fix that works for me: 1) lo-carb diet. 2) Vitamin B1 supplements. 3) No alcohol 3 hours before bedtime. While it isn't a cure, it vastly reduces the intensity of RLS episodes, allowing me to fall and stay asleep.

[@chuckredd9131]

Might look at taking Benfotiamine (Amazon) 600mg. It is same as B1, but better absorbed. Works for me.

[@ernestoiidelacruz4252]

Thanks, after years of cluelesness, it's a relief to know that there is some people who understands this crisis within me. Huhuhu

[@empty__]

the lecture was great: clear, comprehensive, and 0 informational noise. big thanks from an rls sufferer.

[@phubblewubbphubblewubb]

Had it for 60 years, now affects my entire body not just legs. Finding mega dosing B1 aka Thiamine plus Magnesium is helping hugely.

[@ginasrog794]

It helps me also

[@ElisabethDonati]

I’m just starting to take b1. How much are you taking?

[@chuckredd9131]

Might look at taking Benfotiamine (Amazon) 600mg. It is same as B1, but better absorbed. Works for me.

[@frenchycanada]

I suffer from RLS since I can remember and in 2015 I was diagnosed with Parkinsons which worsens the RLS. I thought it was bad before but its almost out of control now. I patch up with Neupro which helps but sometimes I have to updose with ropinirole. My fellow suffers, I feel your frustration. The amount of positions I put myself in in bed, the electric feeling, the insomnia…….until the meds work, walking or doing chores around the house at 4am remains the best antidote but watch your driving….

[@gright5904]

Try putting leg on a vibrating pad

[@phubblewubbphubblewubb]

B vitamins help but you need to take masses.

[@shaahulhameed7501]

How are you now?

[@el_argent0]

RLS runs pretty deep in my family (3 generations), but we don´t get it as bad as I read below. For me, it's been more than 30 years of having it now, and sometimes I get it on my arms and chest. My top 3 last-minute "cures" have been (in decreasing order of effectiveness, drum roll) 1) Extremely hot but bearable immersion bath right before going into bed (a great night of sleep guaranteed), 2) sex (creates a 15min window to fall asleep), 3)stretching (but I´ll go with one the first two if possible).

[@m.p.6039]

My "cures" are keeping my legs as cool as possible, like never covering them up with bedsheets; and taking a teaspoon of mustard. For some reason that sometimes helps for long enough for me to go to sleep. EDIT: scratch that, I've found that giving yourself a deep tissue massage with a roller stick for an hour allows me to sleep through the night without a hitch. It's super painful but it works.

[@phubblewubbphubblewubb]

Could be a Thyroid issue, look into B vitamins.

[@meandyourmom69_]

I have RLS and it’s the w o r s t. I’m always up really late and usually when I sleep I listen to rain sounds on my phone, so by the time I’m finished with my legs either my headphones died, or the video ended. I wish it would go Away

[@SacredGeometric]

For what it's worth, here's what's made a huge difference for me... :) I've been a long time sufferer of RLS and after 12 years of research and personal trial and error, I found that toxicity... caused by drugs and the highly compromised stuff we tend to call food now... is definitely what led to a compromised digestive system and subsequently my RLS. Once I had it, it took me several year's to notice that what I was eating, was definitely effecting it. The liver, which removes toxins from the body, also makes the bile (which helps break down our food) that's then stored and concentrated in the gallbladder. The bile from the gallbladder works in conjunction with the digestive enzymes from the pancreas, to break down our food. When the liver gets overloaded with toxins, it has more difficulty making bile. The concentrated bile in the gallbladder also starts to thicken, turn into "sludge" and (many people believe) gallstones. This in turn effects the pancreas, which also becomes blocked and can't function correctly and that's definitely not a good thing because it can begin to basically dissolve itself with its own digestive enzymes if it gets blocked. A compromised gallbladder can lead to neck pain on the right side, since there is a nerve that goes from the gallbladder to the neck and when the gallbladder us swollen, it'll press on that nerve. In my experience, I also developed pain in the left side of my neck (even a lump actually) and experienced pain in the middle of my back. I also had pain, that lovely "knife in the shoulder blade" feeling as well. I went round and round with doctors, specialist and treatments to try and figure out what all my intense neck, back and shoulder pain was being caused by for years. Each doctor scratching their head, referring me to another one, or just deciding that it must be arthritis.... ie: inflammation. I also began to develop food sensitivities, which were also signs of a compromised digestive system. In fact my digestion finally got so bad... and my RLS along with it... that I couldn't eat without pain, so I went on a 3 day water fast. ....and within 3 days, almost all my pain went away, I cut my RLS in half and I began sleeping like a baby. The swelling around my eyes, my face in general (jowls, under chin, etc.) lessened dramatically. All the bloating around my middle (which I thought had been fat), went almost entirely away. In fact, I went down a whole pants size in that 3 days. There was a big improvement in my cognitive function and clarity. All my "menopause" symptoms evaporated. The list went on and on. In the end I realised that all these numerous, "different" physical symptoms, we're all being caused by the same thing. Toxicity and a compromised digestive system. The other things that made noticeable differences over the years, more than others, included liquid diets (soups, smoothies, juices) and taking potassium citrate powder (a high dose) and magnesium citrate powder. Of course, those were good because they also help reset your bodies digestive system and are excellent for your pancreas and gallbladder. One of the ironies of being put on medication for RLS, is that this also backs up and adds dramatically to the toxicity of your liver/gallbladder/pancreas. Bad fats, bad sugar's, stress and nonorganic diets are pretty much the majority of the others. Other interesting things to note... a high percentage of people with IBS, another "digestive disorder", also have RLS.... surprise. More women than men have RLS. Also twice as many women also have gallbladder issues as men. Another digestive correlation. The list goes on. Personally, after years of research, I'm convinced that toxicity (which trust me, is pretty much all of us these days!) leads to digestive issues, which causes inflammation all over the body. Since inflammation is the cause of almost every "disease" out there, it doesn't take a rocket scientist to realise what the cause of all these diseases are. Anyway, I hope this information helps others to connect the dots if their experiencing these same issues to. :)

[@judahtribe7]

3-day fast it is then

[@asunahusama]

Thank you, good information. How are you feeling now ?

[@jasonhungerford1793]

I first got RLS after opiate withdrawal, which led to disastrous eating habits, nutritional deficiency and then IBS of course. When I fast, I have no symptoms and everything you said about diet and toxins was right on.

[@tonepoet4568]

I have been connecting the dots this year to diet and my RLS and yes unfortunately they are related. I do have IBS and as of last year have food identified food sensitivities. I am menopausal and believe all of this started with those hormonal changes. Foods that trigger my RLS: anything spicy (chillie powder) anything with sugar, red and yellow food dye, and sadly wine. Beer and meat irritates my IBS which then leads to a few nights of RLS. I did an experiment the other day. Dinner: All plant food, no wheat, no sugar, eating no later than 6:30pm and no booze, and I fell asleep with no kicking. I also stayed asleep for most of the night. Oh and no diarrhea the next day! I am now going to add a magnesium supp. and see. Oh another trigger...when I have worked in the garden or gone on a long hike and my body is exhausted. Instead of relaxing and falling right to sleep, I am kicking and shaking for hours....:(

[@gailcrowe727]

My husband suffered from this, he moved his legs every 10 to 20 seconds, it drove me mad and he had to go and sleep in another bed. It started when he was about 50.

[@aahsigh8706]

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

[@lyricchesse2941]

If feel so weird when i stop moving my leg. 😔 Like i havee to move my leg. If i don’t, it feels tingly

[@YariTC]

Sameee

[@lariancroft]

I closed my eyes around 10PM to sleep earlier and now its 12:42AM here and I'm still awake because I have rls and I keep on shaking my leg and I can't fall asleep.

[@MrPurpleAnims]

Lmao I have it now somehow... wth

[@peepfan1436]

Sitting here for hours now, can’t even stop moving my legs as they’re just aching

[@beaucollins9568]

Being a 6’3 14 year old my mother used to tell me as a kid that I was having growing pains to keep me from freaking out. My legs are killing me and I can’t sleep🙄😂

[@YariTC]

@Ad The Asian 16 yrl here same boat, has anything helped?

[@yeetusyoink8211]

I’m only 14 and I’m really struggling to sleep with this :( I have school tomorrow as well, I don’t know what to do!!

[@patrickhall7884]

Something I've found that works is to get out of bed and walk around for a bit. Usually to the kitchen and back works, If not the first time, then a second walk around does the trick. Give it a try. For me I've found I only get this on the onset of sleep. If it starts there and I break it with the walking, then it doesnt occur again for the rest of the night. I also find that if i start to fall asleep on my back then I get RLS more often. Not sure why, so i always make sure to side sleep when falling asleep. Good luck

[@katiemoore0]

I do a puzzle on my phone while rubbing my legs that also works

[@AUZLDY1]

run feet under cold water, wipe with cold wash cloth, rub ice on your feet....... I have lifted my feet to the faucet when it has been really bad. good luck! Do not dispair. there will be a treatment that will help. I feel badly for you at such a young age. Take a deep breath. If nothing else, reading this will let you see that you are not alone.

[@michellesovereign4564]

An iron supplement along with a B complex supplement helps long term. For a quick fix, a bottle or can of tonic water that contains quinine will help a lot. Good luck and hope everyone feels better soon.

[@oakdeneemporium6014]

I’ve had this since I can remember. My mother claims I’ve done it since the cot. I have it in my arms as well and when it’s bad I am it such distress I cry and just want to be put out of my misery. I wish it was taken more seriously as an illness.

[@aahsigh8706]

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

[@georgecaballero5449]

I usaully get it when I don’t get much sleep the night before and it’s always my right leg. It’s more annoying than painful! 🙄

[@soapiesoap5649]

George Caballero same! Never my left I found pressure stockings sometimes work I haven’t talk about this with my dr yet to see if it’s a good idea

[@miranassy2759]

Me too, right leg, sometimes I tie a piece of cloth when I'm going to sleep, but it will not work all the time, hows.your leg doing right now? I want to believe that I have arthritis but the doctor says 24yrs old is too young for that and her.findings is that I have potassium deficiency, it's been 2yrs been taking potassium supplement and it's just getting worst, but I'm fine, it's just more of a psychological pain I say

[@georgecaballero5449]

Mirana Ssy I don’t think it’s potassium problem cuz I eat a lot of bananas and take lots of vitamins. They haven’t been to bad lately but I’ve also started drinking kratom. You do gotta be careful because it can be addicting. I only drink it when Its really bad. But other than smelling like bio freeze or icy hot it definitely works for me. And water stay hydrated.

[@ellychang634]

If anyone’s willing to answer... do you guys only feel this at night? someone I know is suffering from similar symptoms but the thing is he feels during daytimes too and it’s driving him crazy. Plus did any of you actually have a trauma to cause this to happen? Would really help if anyone answers. We don’t even know what the problem is atm and everyone’s frustrated :(

[@georgecaballero5449]

Elly Chang usually at night but it can carry on to the day. No trauma here. I’ve been having my pains since I was a teenager. I think keeping hydrated is key.

[@Kevinegan1]

People who have never had RLS cannot imagine how horrible it is. I've had my left foot smashed off and reattached and I would rather go through that ordeal again rather than suffer from RLS. God only knows how many have died due to the consequences of RLS. When the prickly feeling it's just a matter of a few seconds before it explodes with an uncontrolled leg jerk that sends shockwaves over the whole left side of my body. I get it in the right leg sometimes but usually, it's the left that I get the worst of it. The only thing that stops it is Oxycodone 10-325. I've been taking Oxycodone, Morphine Sulfate and Tinazadine for the last 7 years for the pain in my left foot, left hip replacement, and back pain. I get a bonus taking the Oxy for my foot as it helps the RLS. But if it ever starts, it's a good two to six hours for even Oxy to stop it.

[@vallmo2896]

My legs hurts so much i once almost started to cry

[@AUZLDY1]

I CRIED READING EVERYONE'S POST..... My husband came over... "I am not alone... I am not alone..." I tearfully said.

[@mrworldwide69__]

I AM CRYING LMFAO

[@k.k.k.k.k.k.k.ke.]

@@mrworldwide69__ Bruh, so I wasn't the only one who thought Pamela's comment was too much?

[@jimmykray9583]

I cry every night over it

[@aahsigh8706]

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

[@Abby-xh4od]

Massage my legs with alcohol works for me everytime.

[@elsagrace3893]

Do you drink the alcohol before or after massaging your legs?

[@ohyeahyeah6803]

You created alcoholism to a 14 yeard old kid now

[@smaronboruah1921]

@@elsagrace3893 if you drink alcohol it makes it worse

[@Joe-gu6oe]

ABBY did not say she drinks alcohol!!

[@999fieldsie]

I have it at the moment it's a nightmare 😣

[@ashadyfellow7447]

I think I have rls, sometimes I get this tingleing sensation to move my legs. It happens to me either in class, or at night :/

[@cindyk459]

I've had RLS for probably 50 years now. One thing that always triggers it is sugar. If I have sugar in the evening, I will get RLS when I go to bed or while I am watching TV. I have to avoid nightime snacks.

[@christie4378]

Mine seems to go away partially when I take an iron supplement.

[@deirdremurphy892]

What iron supplement do you take

[@christie4378]

@@deirdremurphy892 I take a cheap grocery store iron. Seems to be fine.

[@CordayDatzTuff]

Wdym it partially goes away

[@katelyn888]

Yes! My grandmother get iron infusions and it worked like a miracle for her.

[@kaylinkindacute833]

I have restless leg syndrome and I only a kid :(

[@xerinx3762]

Kaylin Kindacute sane

[@adissann333]

Kaylin Kindacute same😭

[@jaspreetkaur3986]

Same

[@MrWeareone777]

Tonic water before bed. Say goodbye to RLS.

[@hiiiyou8678]

MrWeareone777 which brand do you use

[@teasip504]

I have depression and insomnia so that’s probably why I have this too. It’s just weird because my legs feel like they’re in pain but I’m not feeling it and I just can’t stop moving them around. Sometimes I just cry it’s so bad

[@zaherrahman3159]

Try taking magnesium, that helps a lot of people

[@TheJohnCooperShow]

The worst part is the mental looping during sleep where brain gets stuck on a particular thought.

[@joa738]

I remember the first time it happened, I was on a trip with my family (I must have been around 15) and I just couldn't sleep, it was crazy... It comes in waves, I can be really OK for months and suddenly it comes back and it's awful, I just cant fall asleep, I am a doctor I am usually really tired and I fall sleep as soon as my head touches the pillow, or sooner, but this thing... Drives me mad. The worst part is that I can't help myself, sometimes it comes during consults or while I am just sitting, reading or anything, and during the "crisis" I am afraid to try to fall asleep I know I won't until I take alprazolam(as a last resource) but then it is really hard for me to wake up. The frustration makes me want to cry and after a few days of not sleeping properly I do. All I want to do is fall asleep is it really that hard? I feel like no one can help me.

[@AUZLDY1]

have you tried any of the Rx in this video? Ropiniole has worked for my, but now less effective; time to change to another Rx.

[@bhavyasrivastava8072]

I am taking Vit E and D which is actually helping me.. but i do one thing more which idk u would prefer or not.. but there are many frequencies on KZbin just type "Restless leg relief music" and there u have it... It actually helps me go to sleep pretty fast.. try that

[@omuArdeid]

Kratom will make it stop. Do not abuse it though, only use it when you need to, it can cause dependence, addiction, and withdrawal. Kratom is a natural pseudo-opiate. It mimics opioids, but isn't one, not quite.. Because of this, it will bind to the D2 site, stopping RLS. You can buy it without a prescription online. It is legal in most states.

[@lookingforlolita]

Forget medications to treat this, you only end up with more side effects. Use good supplements like iron, and Magnesium flakes (better than epsom salts) in a foot bath, as the body absorbs it better that taking a supplement. Go to a naturopath. As soon as you get your vitamin and minerals to a sufficient level and have your gut working right to supply your body with all it needs to function and replace cells, you will heal. It's how we are designed. If you cut yourself, what happens, it heals. All of your symptoms will eventually dissipate. The body is designed to heal given what it needs. I have just been working really hard these last few weeks and forgot my magnesium spray and supplements. I have become low and the restless leg syndrome came back. It's like black and white now. I know to keep myself healthy and I have managed to conquer RLS, anxiety, depression, bipolar, a tumor, low energy, all sorts.

[@miranassy2759]

This seems like a psychological disorder, sometimes I hit my legs just to get rid of the discomfort, I think it's making it worst but I just can't help it

[@margaretmitchell5827]

Have had RLS for over 40 years - you talk a lot of sense. And as for your comments on medications to treat RLS and the resultant side effects, you are spot on. I'm going to try magnesium flakes and visiting a naturopath. Thanks for your advice.

[@rolandtiiroja]

I have RLS and I'm a drummer. It's so bad combination. I do gigs but my life is so hard because of it. I usually drink a little, somehow it helps, but not always. I remember once I had a gig in Finland and I got flu, and RLS was somehow gone. This gig was so good. I felt so comfy and groovy and I played very well. I also get RLS when I drive a car but I can manage it. Motorcycle is better, I'm more upright and I don't get this fucking syndrome.

[@elianazz]

tonic water and feet on ice works most the time

[@barby0526]

I get RLS after an hour in the car while driving. I am a retired Over The Road Big Truck Driver( all 18 wheels! And total tractor and trailer is about 70 feet long. Am in the USA . I'd get it so bad driving, that I'd do sit up on the steering wheel, or leg bench presses on the Bunk ned!

[@leta_history]

My father has this condition and when he gets the flu or a cold, the symptoms disappear! They also shut down in situations of great stress.

[@cannotbeshaken7889]

Alcohol makes mine WAY worse!

[@rolandtiiroja]

Little update. It might be that restless leg syndrom is actually a stress/anxiety symptom. And cutting down stress in your life, could help resolving this. I have turned my life around completely. And right now I rarely get this syndrom. Maybe a little bit while driving a car but overall it's been better. TIP: If you drive slower with your car, you're putting less stress into your mental and physical body. And therefore feeling better and more peaceful/relaxed. And should get less RLS symptoms. At least it works for me.

[@omuArdeid]

Akathisia, otherwise known as restless legs, is actually the symptom behind motor tics in people with Tourette's. I've been battling it in varying degrees all my life, along with opioid dependency, as opioids are one of the few things that will stop severe akathisia.. The downside is, if you become opioid dependent and you suffer RLS, tourette's, or Parkinson's, or any other neurological disorder that can cause akathisia, your akathisia will be 10x worse when you go through withdrawal.. I've been on methadone ever since I had my wisdom teeth extracted at 17 and found out hydrocodone stopped the akathisia.. If you have ADHD or any other dopamine related disorder, you likely have RLS to varying degrees. Stay away from SSRI's and antipsychotics, and of course, opioids, unless you want to be on them for the rest of your life (upside to that is.. No more RLS, though.)

[@lostieaddict]

I second this, as someone with similar experience. Stay away from SSRIs as the eventual withdrawal will make akathisia 10x worse.

[@omuArdeid]

@@lostieaddict I recently found out that processed white sugar can trigger RLS in people who have it as well.. Cutting that out of my diet helped a lot. Oh and oddly enough, CELL PHONE CALLS. I found out those trigger it for me, too. At first I thought it was just coincidence, but.. I was searching all over the internet, digging deep in to pubmed records and stuff, and finally found this double blind study they did with cell phone radiation to see if it effects peoples behavior (brain wave synchronization, you know,) and they found that in average people, the frequencies put out by cellphones excite the brain and cause moderate temporary restlessness. A majority of the people tested couldn't fall asleep for an average of an hour after being exposed to the frequencies emitted by a cell phone making a call, and connecting. Weird huh? I have a big cell tower and large power lines near my neighborhood, and when I walk on the trail through the woods and pass by them, my RLS always acts up until I can get some distance. Lol, akathisia sucks.

[@cannotbeshaken7889]

So the only thing people with Tourettes can take is opioids?

[@florgodinez5410]

Thank you for your info.

[@Ricky02]

At night it get worse and i can't focus on studies at night.

[@MM-pi5zz]

Try this: press firmly on the area between your big toe and second toe on one or both feet with your thumb and index finger. You have to feel around and dig a bit to find the most tender spot and hold it firmly for several minutes. I learned this from a Chinese doctor and acupuncturist. A few times I had forgotten to take my afternoon medicine and was laying on the table full of needles. I told the Dr. That I would have to get up and move around, spoiling the session. She grasped that area between my toes and held it firmly. To my huge surprise the jumpy legs subsided. Now I use it sometimes in addition to all the other things I do, including medication. I hope this helps someone else.

[@novella_media]

I'm going to look into acupuncture for myself. Thank you for this tip. Would you mind telling me what medication has been successful for you? I'd like to do a combo of western and eastern approaches too. Thanks!

[@m.m.1241]

@@novella_media Hi Move, I am prescribed the following medication by a Neurologist who specializes in sleep disorders: Neurontin ( Gabapentin) and Requip ( Ropinirole) . My dosages are high : Neurontin 1800 mg daily split into morning, afternoon, and evening doses. Requip 1.5 mg daily also split into 3 doses. Best of luck to you!

[@novella_media]

@@m.m.1241 Thanks, M.M.! I hope to find some relief. I appreciate you helping me gather info.

[@anneanthony9134]

I'll try anything. Thanks

[@cannotbeshaken7889]

I tried this tonight, and it worked!! I hope it's not just a fluke. But I'm in shock right now!! I've tried everything!!! for 17 years now, and this worked!! Thank you so much!!!!!!!!! I'm wondering if I can do this before going to bed before the RLS comes and it will prevent it from coming? I don't know, that would be even more amazing though! I'm thinking of buying an acupuncture clip and try leaving it on while I sleep. Truly thankful you shared this! ❤❤

[@samleach3726]

I get this in my legs and sometimes arms I find doing push ups or jumping just some sort of exorcise helps but you have to go in hard or it won't work

[@MrWeareone777]

Sam Leach Yep. I skip for 3 minutes before bedtime and drink Tonic Water. RLS gone.

[@CordayDatzTuff]

You defenitely dont have rls

[@kathylongino963]

Mine was from low ferritin (iron) but still have minor problems. A SMALL amount of benadryl during the day helped me w/o causing drowsiness. Also, a heating pad in the evening calms my legs down so I can sleep.

[@elizabethluetzow2288]

I found great relief with hemp gummies.Benadryl actually made my RLS worse.

[@winniethepoohandeeyore2]

Benadryl makes mine FAR worse

[@vsvnrg3263]

i posted comments on a lot of these rls videos outlining how i've beaten it. i forgot to add something very important. stop coffee, tea, coke, pepsi, energy drinks. they contain caffeine. decaffeinated coffee still contains some caffeine. and chocolate. it contains theobromine.

[@AJ_1996]

I have rest leg syndrome since I was kid , back then it was bad , I couldn’t sleep untill I wore socks 🧦 or I put a blanket on my leg .. and I need to move my leg untill I get to sleep .. fast forward when I grew up .. it became less , I don’t move my leg a lot .. but in order to have a nice sleep I have to put some blanket or I will get like anxiety or I couldn’t even sleep .. I never let my leg naked .. I have to put something or else the feeling I feel like someone tickling me 😌😌😌😉😌😌 but now is getting better at least

[@chuckredd9131]

Will have to try my wife compression socks.

[@Zaaxun]

I just bought a powerfit elite vibration plate to try and lose weight and tone up. But unexpectedly discovered using it about 30 minutes before sleep completely got rid of the creepy crawly feelings in my legs. I now sleep like a baby it's the greatest thing ever for me. No drugs, no therapies and I'm getting toned up as well.

[@rnxpx]

Hi. Is it still working?

[@cannotbeshaken7889]

@@rnxpx A vibrating plate for weight loss. I'm guessing, "NO".. Maybe for the RLS though.

[@potentnaturals188]

Hey, is that the same as jiggling machine?

[@Softouch333]

Excellent concise summary that all practitioners should review. Good job.

[@steveath]

I have had it mildly since I was 19. Since my mid 50s, it has been absolute hell! At least 7 hours a night, every night, the crawling feeling was unbearable. A few years later, I was put on ropinerole. It stopped them after the first dose at 71, they are not doing the job as well & sometimes I have to take codeine. I would take anything that stopped them.

[@Tinyteacher1111]

Same here.

[@conwellboccia1004]

I've had fasciculations in both legs for 2 years. The neurologist diagnosed RLS and prescribed dopamine agonists, first Mirapex then Requip. There was little or no improvement with either. The agonists made me very nauseous so Transderm Scop was added. Within several weeks of steady use, I experienced new, more distracting symptoms. The large skeletal muscles in my legs would involuntarily tighten and relax, reminding me of peristalsis. It seems like the voluntary skeletal muscles are behaving like involuntary bowel muscles. Anyway, I notified the neurologist that I was weaning off the agonists with hopes of reversing this troubling development. Thanks for listening

[@haleemao4509]

sleep on flat floor

[@regalkhan562]

Conwell Boccia this works: drink tonic water with quinine in it. Also chamomile tea

[@lordofroosters3640]

I have restless legs and can’t sleep. This video is very helpful, but it is so boring that it helped put me to sleep, despite my RLS.

[@aahsigh8706]

It typically occurs at the nap hour, and if you are in an environment whereby the room conserves heat too well, then the best approach is to do a before nap time workout routine of your choice for an hour and also remember to keep the dry air out during the summer the best way you know how or winter time using the thermo control with the "fan" control setting on "auto" fan setting simultaneously and not "on". Dry fan air will dissipate at auto setting, and it's good for the lungs when you do your workout out in your room at night before bed. That's my conclusion and cure after 38+ years, too. It seems that at this age, it is the gold standard age experience I've noticed. Human evolution wasn't meant for energy saving high-tech rooms, which trap dry air in rather to the contrary outdoor experience. Who even gets cured off of restless leg syndrome on a couch rather than outdoors doing stuff and then napping in the forest somewhere. I am serious about this. It's a cure on my behalf in every season of the year and counting. My time for a workout is at the 12 mark to 1am. It is cold outside to open windows and dangerous too. unpredictable too if you live with your loved ones.

[@barby0526]

I've 5 siblings including myself. And all of us have RLS. Mine started in 6th grade. So 50+ years...the doctor and I have changed up Gabapentin 300's to the max dose. And the Ropinirole we are keeping at 1mg.. anymore, and I get a "Drug hangover". About 15 yrs ago, my arms started ...now I shave my arm pits every 2 weeks! My Legs? Haven't shaved them in years! Augmenting is terrible! OTC Iron, Magnesium, Calcium, Bit. D3, I take the maximum one can. Wish there were more studies made available Local or remotely.

[@beditz1591]

Try potassium citrate powder... Take 1st few days little amount 500mg after that...next few days increase dosage around 4700mg per day...after that decrease it daily 1000mg.... Try this technique

[@FoodNerds]

Thank you. Mine began on June 1st and I was 33. I’ve had it for over 20 years now.

[@belawood]

I take magnesium and potassium to help. I get it with medications - antihistamines are a big culprit. My husband takes lithium and always has it.

[@Axon_the_neuron]

I'm 43. I got my resless leg syndrome at 27 years old at the same time I got something called EMS or electro magnetic sensitivity. This was caused by holding a cell phone to my head while talking for long periods of time. I've tried all the suppliments, diet changes, leg hitting and working out and found very little relief. Tried something called clonidine with no luck. The only thing that has worked is half a lortab 10 before bed.. I sleep for 3 hours, wake up with restless legs, take another half, sleep for another 2 or 3 hours.. I usually have to take 3 halves every night to be normal.. Without lortabs I get anywhere from zero to 3 hours of really bad sleep.. And in that case I have to take hot baths during the night to get about 30 mins of sleep each time.. Its absolute torture.

[@serenatsukino744]

Sorry I don't understand... What Is lortabs? I speak spanish and I don't found the meaning of this word. Thanks John.

[@kittykitties4220]

@@serenatsukino744 It's a type of medication (a pill) usually prescribed for pain. It is highly addictive and something you should NOT EVER TAKE unless you are in an extreme circumstance!

[@Axon_the_neuron]

I'm 46 now.. I dont take lortabs anymore.. I found that kratom works just as well... Its similar to pain medication like lortabs.. Its cheap and abundant to find on the internet... Before taking kratom do your research.. It can cause withdrawl symptoms if taken every day

[@WinnieTheTrain]

I have this condition pretty bad sometimes. Doesn't happen daily, but it is often and more often than before and could turn into that. It's not painless at all, but it's very uncomfortable cause you feel the urge to move your legs, like they need to be exercised.I usually kick my legs while in bed over and over trying to wear them out, I should start exercising before bed or something honestly and doing leg cardio of some sort if possible like walk on the porch or in the kitchen back and forth. It's just not a pleasant condition.

[@Tinyteacher1111]

Get some Requip (Ropinerole) from your doctor!!!

[@mindymay3]

Thank you!! This is incredibly comprehensive and new information. I'm happy to hear the dopaminergic meds are no longer first line. They were horrible for me.

[@gidget9101]

Hi are dopaminergic meds cover sifrol I believe that it comes from multiple sclerosis meds and I don't have that.

[@mindymay3]

@@gidget9101 Not sure I understand your question, but sifrol is a dopaminergic agonist. I did a quick search and says it is used to treat Parkinsons and rls. Not sure about MS.

[@poof2380]

I have it in my neck and it might be starting to effect my life and its scary

[@laure400]

I’m so sorry :( I have it in the whole of my lower body it’s so horrible ! I feel you , you’re not alone

[@poof2380]

@@laure400 thanks heaps hope ur doing well

[@OhYeahCh]

I’m so sad to read this. I cry at how lucky I am to have just started experiencing this last year. I hope it gets better for you. I’m going through it now in my left leg and heading to an emergency room to get prescribed medicine immediately.

[@bruni833]

I think I’m starting to develop rls ‘ or maybe I’ve had it but didn’t notice as much as I do know. Probably because I have hbp and have had 6 stokes 3 have landed me in the emergency room, but other things are starting to develop. I know I don’t sleep all night. Was thinking it was because my time change as I used to have a full time job and now I’m home all day. Can’t go out as it’s cold and raining most of the week and have to keep track of my blood pressure so I don’t go to far, tried bike riding but feel my legs are to week to pedal and the rain doesn’t give me enough time to keep up with it. Those socks look good will keep doing more research. Thanks

[@iangpark]

I don't have this all the time but I had two antihistamines while trying to fall asleep last night due to hayfever and experienced it. I have had it in the past before too. It is absolutely horrible I don't know anyone could deal with it every night.

[@Carolina-uf2ip]

Thc oil works. Even after going off it, the symptoms took a year to come back

[@waad2835]

I HAVE IT SOMETIMES WHEN I GO TO SLEEP BUT THE WHOLE TIME IF I SIT OR STAND UP

[@boyandgirlmom]

I've gotten RLS during certain times of my life for reasons I'm not sure of. But when I am pregnant, it is 100 times worse than usual. It seems more intense and longer lasting.

[@Tinyteacher1111]

I found that, too, and my doctor didn’t want me to take any medication. Horrible!

[@barryoneill1703]

Stretching helps.

[@rousefire]

I take a puff from a vape pen of thc/cbd 1 to 1 ratio and it works great. Last night I had RLS extremely bad, took a hit and the relief was immediate. I dont know if other ratios work or gummies, have not tried them. 1 to 1 ratio does and does not blast me. I've been treating it for about a year now , it works for me, its not a placebo effect, its life changing.

[@sadcat2994]

I literally just bounce my leg in class

[@cathyphegley7848]

PLEASE listen to me…. Suffered eight months with RLS. Couldn’t sleep, was losing my memory, losing my amazing vocabulary. I was at the end of my rope! A friend recommended grounding sheets for my bed. It hooks up to the current in your wall socket ……basically grounding you back to the earth. I am free of RLS. I can sleep. I also put a pad at my feet at my work table. And a pillow slip sheet on my chair cushion. I suffer from sciatica and lower back pain. It is helping. Don’t suffer. The drugs only polllute and distort your brain. With much love💕Cathy from Montana.

[@yasmeenmalik7976]

What do you mean by grounding sheets?

[@gidget9101]

I am 71 year old female and restless legs was diagnosed about 3 years. I thought I was the only bearing this inflection. My legs won't stop moving at night. It is so painful. My go put me on Sifrol. Some times massage helps as well does cold water over my legs. Right leg more severe I think. It came from no where let's hope it goes away the same away

[@CaptainVelveeta]

I 'had' restless leg syndrome...it was annoying as HELL...I heard this was due to a potassium deficiency so I went and bought a bottle of potassium/99mg (that was the only dosage available) ...the RDA for potassium is a little over 4000 mg so i took out 10-12 tablets and took 3 about every 2 to 3 hours...that night, nothing....the next night, nothing. A year gone by now and NOTHING...ヽ(^o^)ノwoo hooo!...seriously, you need to try this.

[@conwellboccia1004]

Very interesting. Still symptom free?

[@ClayTara]

Yes yes yes he is right

[@conwellboccia1004]

So happy it worked for you. Unfortunately, I wasn't so lucky.

[@TrishTruitt]

I noticed that more potassium helps it as well but I got real relief when I combined more potassium rich foods and supplements with the herb Rhodiola Rosea

[@tibbntfui]

too much potassium can be fatal, please ask a medical professional first!

[@brandonmalone1893]

Mine goes away with potassium supplement. I used to get it real bad. Now I take potassium if I feel it coming and it works every time

[@sapporo1664]

I have this rarely but now its almost the whole day now, and it's like giant bursts of energy in my leg constantly and sometimes painful

[@YariTC]

@Khaos Sameeeeee

[@karalozdan4414]

Boredom exacerbates this condition, excitement produces endorphins and alleviates the symptoms, so cant be just basal ganglia. Thank you very nice video!

[@lostieaddict]

thats pretty interesting

[@darianf5833]

When I don’t think about it, I notice it’s not as bad, it happens during the day

[@whxite6331]

Darian F yep same

[@grammajo1889]

I’m reading comments looking for anything to help.Woke up at midnight with my legs going and it won’t let up!At least I am here with fellow sufferers.

[@allison2659]

My RLS has gotten so irritating to the point where the only way to calm it down is by punching thee area. It makes the muscle go crazy and it dies down a little. I lose so much sleep, it’s crazy. I even take sleeping pills and when I’m dozing off, my legs wake me right up and I stay in bed moving for a good two hours. It’s not fun at all

[@hydersultan87]

How you get relief

[@allison2659]

I found these over the counter tablets called “Restful Legs” at my nearest grocery store. It’s made by a company named “Hyland’s”. I usually take them before I go to bed. I also heavily use muscle relief gel, kind of like Bengay, on the areas that are the worst. Those on top of some regular sleeping pills usually do the job.

[@YesBeliever]

I use to take sleeping pills to avoid but that didn't helped and i injured myself infact, in my case having lots of water helped me. I have been there and i understand it's tough for you, hopefully you get better too

[@ROCKSLIDZ]

If you have RLS, taking Benadryl can make it much worse. I get RLS in my legs, back and arms if I take 1 Benadryl. Makes me want to crawl out of my skin!

[@sallyalwi]

Has anyone else used a weighted blanket to help with it? I have and its changed everything for me and im so happy

[@laure400]

Hey that’s awesome what kind of blanket is that ? Any recommendations

[@sallyalwi]

@@laure400 its a 11kg weighted blanket. I got it off of Amazon. Just search for pellet weighted blanket on Amazon! I can't remember the exact name so sorry.. but hope you find something

[@Nigelsmom2136]

I have been using magnesium oil on my legs at bedtime and have found relief. It really does help.

[@Tinyteacher1111]

Just found out that Lyme causes this as well! I’ve had it my entire life, and finally looked on the internet when it was available. My two sisters have it, and our dad had it. I had been on Ropinerole (long acting), until I was put on morphine sulfate for a deformed spine, AS, and other infections. It stopped it, but I tried cutting down and now I have it again. I’d rather have pain!!!

[@robertnewell5057]

I found this pretty interesting. I note you didn't discuss Involuntary limb movement disorder (which I have had for many years), where the treatment is pretty much the same as for RLS. I couldn't tolerate ropinerole and instead am maintained to some degree on a benzodiazepine (clonazepam) which you don't mention. It is of some help, but not licensed for RLS/ILMD to a level which people in other countries have found useful. Is it no longer recommended for use?

[@kevinbunn7915]

I wouldn't recommend a benzo for the long term. They cause rebound problems very quickly (restlessness, insomnia, anxiety). People will think they are helping because everything gets worse when they don't use it, but its actually the cause of the worsening. Doctors here in the US prescribe benzos for everything, but they're right up there with opioids as far as dangers. Europe probably doesn't recommend them as much because they're smarter than most docs here! Lol

[@ab-jx6xi]

Pinching for a minute between big toe and next one works 100% of the time. Pinch into the bone. I do this when i miss my magnesium dose

[@42basavarajangadi56]

My relative has the same problem He can't be able to sit for a while and it has been around 8 years since he has this condition. We have visited many hospitals and got nothing after scanning. He is good when he is asleep. It doesn't affect him in any way when he is asleep. He is not able to walk because of it 😢. It makes him regularly his left leg automatically to get kicked. If anybody has noticed solutions around you for such a condition please help by giving suggestions.

[@user-ls8is5fv9s]

Managed to cure mine 🎉🎉🎉 Tried almost everything. Even doing squats before bed, that worked for about 10 min Multiple sets of all sorts stretches also , 10 min relief . Cut down on sugar , then after day 3 , went "cold turkey" Adding no sugar on anything . Used honey to sweeten whatever needed sweetening ( can't believe how the taste of fruit changed ) Normally nice , turned into sweet and delicious No soft drinks (that was hard ) Started switching food brands and bought the brand with the lowest sugar content (it's almost impossible to find food without processed sugar ) Cut out processed (take out ) foods as well . Except for grilled chicken and Chinese take out (I'm only human) Even though it isn't a 100% sugar free life . It dropped by about 90% Than was good enough Restless leg syndrome dissipeared like magic . Withing 2 days ,just gone . If a cheat day is enjoyed and maybe a milkshake is had ( really once in a blue) Then it feels like the rls wants to start up again . Had a bit of gout and starting sighns of arthritis. That's also a memory now. Please try cutting back on the sugar and see if it helps you . Peace and good health to all . Love from south africa . ❤

[@Sophie-y3v]

I heard the name "restless leg syndrome" and thought it was a way to explain it so I searched it up. I have it.

[@ilyesdream2792]

For me it feels like electro waves going through my right leg but it's not that hard to sleep I can sleep whenever I want to is it rls that I have

[@YariTC]

Yup ig it comes in many forms I can relate to the electro waves part ☹️

[@david-rl2xx]

I was diagnosed with a sleep test in 1980 and have had it ever since, I think they called it, Periodic limb disorder then, but it's a misnomer because it affects the whole of the body, and the muscles go into spasms and cramps, terrible affliction to live with

[@robertfulkerson2696]

Also been dealing with this since I was a child. Now with Pancreatic cancer I am going through a serious bout that’s lasted more than 3-4 weeks in a row. Most common is 2-4 nights.

[@nathanclayton4153]

I’ve always had this and also didn’t know for years what it was called. I used to use Quine pills but they took them off the market. So I just had to suffer like everyone else. Someone asked me if I’d tried Calm, an over the counter supplement. I hadn’t so my wife checked the internet and found some and ordered it. God sent. I won’t leave home for overnight trip without it. I think it taste like crap, it’s an effervescent like alka seltzer but fast acting and works for me. I’m 75 and if I’ve walked 18 holes I’ll have bad leg cramps at night so out comes the Calm. Good luck to everyone. Honestly over time the taste is bearable 😊

[@AH-cy4md]

Interesting that it’s cause may be related to dopamine. I developed RLS after taking Abilify, an atypical antipsychotic, for several years. My psychiatrist said it’s a potential side effect. Even though I’ve been off all medication for several years, I still have the RLS. As a kid, I had a hard time sitting still, I was a fidgety kid, but I had no problems sleeping. I’m very very reluctant to take prescription medications for it as whatever side effects and long term effects are probably undesirable. I had been getting some relief from taking magnesium glycinate snd taurine, but it doesn’t seem to be helping anymore. I eat a whole foods plant based diet, so I think I get plenty of potassium. Tried ACV, but that didn’t help.

[@Србомбоница86]

if its dopamine related,maybe mirapex can help

[@msstephanie726]

I have anxiety problems and this makes it so much worse.

[@gabbenitez8039]

Me too :(

[@DavidD-tx6gh]

I got restless legs just a little while when I started taking antidepression med. How many of you did the same thing?

[@alwaysflying6540]

Same. Antidepressant medications mess with your dopamine levels. Low dopamine is directly connected with RLS. That's why opiates work to control them

[@DavidD-tx6gh]

@@shirleybuck6918 Thanks, Shirley, It is a shame that they destroy so any lives.

[@jordanmiles2077]

Has yours went away? I got mine from meds but it's been a month and a half and they haven't went away 😭

[@DavidD-tx6gh]

@@jordanmiles2077 I've been taking dopamine for about a year. I am just now trying to get off my meds. Hope it works. If I can remember. I'll try to get back here in a month or two.

[@jordanmiles2077]

@@DavidD-tx6gh i was only on an antidepressent for 15 days and it hasn't went away and I've been off for a month and a half. I'm miserable and so upset I even tried the dumb med at this point.

[@adissann333]

I have it and I’m 11😭😭 I have it right now

[@debbiejacobs8156]

Already have augmentation. Stopped pexola and carbilev. What was that oxy something. Perhaps should try that

[@biueoo]

Mine won’t stop feeling like a cringe constantly. It only happens every now and then but the is the second night in a row and I’m so annoyed

[@monicamestas7566]

The condition is called Restless Leg(s) Syndrome. You give a good overview of the condition but outdated. Dopamine agonists are outdated. Gabapentin Enacarbil is the new go-to treatment, along with iron infusions. I'm 68 and have suffered with this condition for 45 years. After a myriad of medications, since 2016 I am now on a medicinal dose of Methadone, which I discovered on my own and advocated for. No dr ever suggested opioids as a top tier treatment for severe RLS. They didn't actually care about relieving my suffering, when it is believed opioids were used to treat RLS as far back as the 1700s.

[@DrSimonFreilich]

Hi Monica, thanks for your comments but you've clearly not watched the video properly (5.19 to 6 mins).All the treatments you've listed appear in their correct order including opiods for those with severe refractory symptoms. If something substantially new happens, happy to update as and when. Wishing you and the RLS community the very best, Simon

[@monicamestas7566]

You are not an M.D.? What is neurophysiology? I read the definition but still am not sure. And what is a neurophysiology consultant?

[@sweetiepie4328]

I used to have RLS when i would drink heavily nightly but i stopped and im no longer experiencing this

[@jenniferholden9397]

I hear you Hunny, for me it’s like an elastic band being wound up in my legs then let’s go and the legs jump it’s the anticipation of the jump. As long as I can remember I’ve always had the stepping off the pavement dream that wakes you up, now that’s a darn pest. In fact, I’m probably more active asleep than awake. Good luck in finding a cure Hunny ❤❤❤

[@aleahead1]

I’ve had restless legs since I was 4, I’m 20 now and still have no relief

[@miranassy2759]

I have this sensation all the time, it's been more than 2 years, how do you manage to sleep?

[@sumitbasu8216]

@@miranassy2759 Mam, i do have the same problem and my Dr advised me to take Pramipexole 0.5 before sleep, it works fine for me and there are some other methods also - if interested then you can contact me through my mail ([e-mail])

[@MegaBeautifulrose]

I am now 51,have needed to move my legs and feet,nearly every night,since,i was a tiny child,feels like an uncomfortable,dry,sometimes slightly hot ,yucky feeling,don,t know why,is not fixed,often have to get up to walk around,its really annoying,even after having it all these years.

[@MrWeareone777]

rose baker Have you tried drinking plenty of Tonic Water before bedtime. Works for me.

[@hotwireman49]

whole foods diet and regular exercise. I had it really bad when I was homeless and living in a van. I didn't move around a whole lot and was eating crackers and mustard. Literally I was a walking skeleton. When I got healthy, eating a mainly whole food diet of meat and veg and healthy fruits, and started to move and work and walk and exercise, it went away.

[@carolinet6068]

Been going through this my whole life. I'm so sick of it. Agonizing

[@asthatiwari2648]

M like shaking my legs even while watching dis vedio..Nd I enjoy shaking my legs even if someone stops me I couldn't stop myself