Shining a light on Stevens-Johnson syndrome

3.5 million people in the UK are affected in some way by a rare condition in their lifetime. With 7,000 different conditions and new conditions regularly identified as research advances, there are real challenges in coordinating healthcare, diagnosis and treatment. One of those rare conditions is Stevens-Johnson syndrome. Marian, who lives with the syndrome, discusses her experience and the long journey to diagnosis. She is joined by Louise Fish, CEO of Genetic Alliance UK, who shares how typical these diagnosis experiences are for those living with rare conditions.
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