STILL PREVENTABLE: TSW Documentary by Briana Banos

[@HouseArts-j4k]

I went through TSW ten years ago and am blessed now to be healed, this brought back SO much trauma that I endured due to the hands of a system who gaslight us into finding our own community and treating the disease ourselves. I am so happy I now see research articles mentioning TSW, ten years ago there was none. What you are doing Briana and all of us, IS WORKING. Our community is doing the job the medical community won't and i am SO proud of anyone who has had to endure and navigate this.

[@tpb1006]

I am 6years in and full on. What did you do to heal and how long did you take?

[@megansimpson77]

Now those of us who have oral steroid withdrawal syndrome are grappling with finding support and info…. There is only info on topical steroid withdrawal syndrome

[@megansimpson77]

@@tpb1006I’m about to start anti inflammatory diet snd supportive supplements. Check out prednisone pharmacist

[@KathleenLeBer-r2m]

Dr. Olivia Friedman-Traditional Chinese Medicine healed me in about 6 months. Highly recommend. Forget typical dermatology- they cause TSW and have no reasonable treatments.

[@gemmaingram8529]

I cried my heart out watching both Preventable and Still Preventable. The tears stinging my unrecognisable face. Both my daughter and I are TSW warriors, my current flare is by far my worst. Thank you so much for showing and fighting for our truth ❤️

[@THXx1138]

My daughter endured the torture of RSS/TSW for 4 years. My whole purpose for living was her care. She spent most of her time submerged in a warm bath asleep or wrapped loosely in a blood-stained down comforter. We had to build a custom platform bed with internal fans for her because mattresses were too hot and she would stick to the sheets from oozing lymph fluid. She became allergic to most foods, and we spent our weekends preparing her tailored meals for the week. Every 3rd day I washed, and blow dried her long hair. She was so exhausted we would scratch for her. She very gradually emerged and is doing quite well today but the trauma remains. We no longer put blind trust into physicians.

[@BrianaBanosPreventable]

@@THXx1138 Wow. Thank you so much for sharing this with us xx it truly is frightening what we all endure

[@THXx1138]

@@BrianaBanosPreventable These physicians need to be held accountable for all of incalculable harm they cause.

[@brennahovey8015]

15 months TSW and I cried my way through this video - the incredible accuracy of this documentary to my experience makes me feel so seen ❤ Have shared and will continue to share far and wide.

[@BrianaBanosPreventable]

@@brennahovey8015 🙏🏼🙏🏼🙏🏼🥹

[@WJSUP]

I only took topical steroids for two weeks. And after withdrawing, something felt off. My skin is only 0.5 / 100 as what you all have / are going through. I thankfully found all these documentaries and videos on the awareness of TWS. Thank you for sharing. I might have kept taking them and the outcome might have been so much more worse than right now. From the bottom of my heart, THANK YOU FOR THIS. You prevented me from potentially going through this in the future.

[@CerianBlack]

Currently 1 year in to TSW and so grateful for Briana and others like her for their dedicated, knowledgeable and informed support that I couldn't find anywhere else. Thank you for all that you do! It's been invaluable to me....

[@flemwah]

My little girl went through TSW earlier this year, she's in a better place now but we still struggle. The clips of the children crying, scratching, rubbing with their mits made me just cry and cry, it really hit home to me and bought back memories of how much distress my little girl went through and the emotional pain I went through, feeling so helpless and unsupported by the medical community. I was called a 'bit of a googler' in Dermatology for raising TSW. They could not understand that I had used steroids for so long and her skin was the worst it's ever been, so clearly there was a link there. It's so frustrating we don't have support for such a horrific condition. Thank you for this documentary, it was so powerful and emotional to watch xx

[@esthernicholls3988]

Thank you Briana, brilliant work. I cried relating to it all. You're an amazing advocate and are making a massive difference in a way that can't yet be measured. I struggle explaining what I'm going through, guilty it takes so long, guilty it impacts people I love, unable to communicate the despair and reality to my loved ones... through your work this documentary will help me do that. So thank you ❤ & Well done x

[@VPNHunting]

This was so soothing to see that we are not alone. Thank you for this. 🇨🇦

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@LONGENOUGHNAME]

Great job B Banos 👏👏 Those who aren't aware, please educate yourselves, thank you.

[@crustydiva]

TSW is the TRUTH and I can’t wait for the day that they tell us that we were right 🙏

[@timbellis5186]

Fantastic and informative documentary. It is a shame that TSW is still not given the medical attention that is so rightly deserves. Bravo 👏 well done. SHARING across all social media platforms. This needs to get out everywhere.

[@polychromicportal]

It's an opportunity for us all to spread the word within our community and help educate the medical profession.

[@bethanynorman4773]

So grateful to be a part of this! Always invaluable Bri thank you! The most validating watches for us on such an isolated journey ❤

[@rosequintieri9393]

I'm just at 2.5 years TSW. I've been great for the past 6 months but boy the triggers really set you back if you're not careful. Thank you Briana ❤

[@chiicoz]

Thanks so much for your work Briana. I am now almost 9 years steroid free and doing well. I remember you from the FB group. The withdrawal has been the biggest traumatic period in my life. I am still afraid to take showers despite doing well and no longer having to moisturize. My heart goes out to anyone dealing with this right now.

[@catherinefarrell5]

7 years in and TSW still impacts my life every day. I was prescribed steroid cream by my doctor for years before I started thinking about stopping and was shocked to fall down the TSW rabbit hole on Facebook. The horror when I realized the excruciating pain I was experiencing could last for months let alone years. Although things are so much better now I still struggle with the intense itch every day. It keeps me up at night. I try to be hopeful it will one day get better but I’ve also accepted this might be my life forever. Briana - thank you for all that you do. Your blog was something that helped me feel less alone. I would check it for updates every day. It’s hard to suffer silently from something so much and have no avenue to get support from doctors that are supposed to be there to help.

[@BrianaBanosPreventable]

@catherinefarrell5 🫂🫂 thank you for sharing. Means so much to know anything I write or share helps

[@veronikaholinkova5586]

​​@@BrianaBanosPreventableV dokumentu není český překlad bohužel. Můžu tedy vědět, jak dlouho jsi TSW.. I já ti děkuji, již za druhý dokument, kdysi i mě pomohl pochopit co je TSW/RSS.

[@Urban57621]

Perfectly put together! Bringing together all the recent research and developing experiences is AMAZING. Well done Briana, the whole community is so thankful!

[@a56kuser]

Such a well made documentary that represents everything we went/going through. Hope it gets the awareness it deserves

[@tuskaiae]

Thankyou so much Briana bringing awareness regarding TSW. You’ve done an amazing job!!! I’ve been going through it since 2021, it’s one of the most difficult things to endure but I was humbled by a recent visit with a Dermatologist who actually recognised the condition and didnt want to prescribe me steroids. Slowly but surely more and more doctors will become aware and it’s thanks to folks like you are those advocating for change. Thankyou again for shining your light.

[@dianabuhler9645]

THANK YOU Briana and everyone else for this documentary. Tsw is no joke physically and mentally and being laughed at by my dermatologist because I said I'm worried about steroids makes me furious. Thank you for spreading awareness! xx

[@sallymarriott9148]

Well done Briana, I have just finished watching your documentary. The lady dealing with deep bone itch & anxiety & the hopelessness of not knowing how long this hell is going to last for was so powerful, it took me right back to when I was in the thick of it with burning flaking skin & not knowing if I could carry on in such misery. I pray your documentary not only gives people hope but also brings about lasting change from the medical profession.

[@EleanorMorgan-fb4zq]

Amazing documentary once again! The glacial pace of the medical system waking up to patient reality is so heart breaking, but thank you for showing that it is indeed starting to happen. You've done such a incredible job of balancing the pain of your contributors with their stories of hope, love and community. Here's hoping many, many people watch this!

[@triciaross3801]

I watched your first documentary during a week long stay at the hospital with my daughter who suffered this horrendous condition. It was heartbreaking to know that we were about to go through would be so tortuous and long but knowing what was actually going on was half the battle. I'm so thankful for everyone doing their best to advocate for the voiceless.

[@BrianaBanosPreventable]

@@triciaross3801 such a big hug love. Thank you for sharing in this.

[@LaviniaMacKenzie]

A powerful documentary from Elusive Bird and the wonderful Briana. Thank you to those who contributed but hard to see how many people are still suffering.

[@triciaross3801]

Thank you so much for giving us a voice with this documentary!

[@emilyhu2968]

Thank you for creating this :) I remember years ago when I first watched preventable, I felt so understood and heard! I’m currently 6 years TSW, and this video hits the same 😭I recognize almost everyone in this documentary and so happy about everyone’s journey!

[@csencarnacao]

You are amazing! I don’t know how ypu do it, I couldn’t stop crying watching it as the ptsd is so strong, and still you are there fighting for us every day! So so grateful for having us on out community ❤❤❤❤❤

[@MrsLEngel-zb6tr]

Way to go Brianna! Thank you for doing this to spread awareness and help all of us who are truly going through this!

[@AnneHaigh-i9z]

Again, I can’t put into words how much this documentary resonates with me and makes me feel seen and heard. Briana what an amazing documentary you and everyone have put together. Your enthusiasm and effort to advocate for all of us is incredible and invaluable . Thank you so much💜

[@BrianaBanosPreventable]

@@AnneHaigh-i9z 🫶🏼🙏🏼

[@jeaninelouks5530]

As I weep, I thank you! God bless you.

[@jackiegavin9839]

What an amazingly engaging documentary which totally encapsulates the devastating effects of this preventable condition. Just magnificent and I shall be sharing in order to raise awareness ❤️

[@JulijaMlakar]

Thank you all from Russian-speaker community of TSW❤❤❤

[@BrianaBanosPreventable]

@@JulijaMlakar 🫂🫂

[@veronikaholinkova5586]

Zdravím do Ruska,ahoj 🙋🇨🇿

[@warmwings10]

Yet another incredible piece of advocacy for this highly under-recognised condition, shedding a light on the trauma it creates for us all. In awe at your ability to continue storytelling despite it all. You're a hero, Bri x

[@jemmacox]

So proud of you. I hope every dermatologist watches this. It’s so important and thank you for getting the message out there and flying the flag. Really hope one day we get to work together 💗

[@BrianaBanosPreventable]

@@jemmacox yessssss

[@gcabs15]

I’ve immediately sent to my friends and family for more awareness what we have to go through daily. Bri, I’m beyond words of gratitude for your dedication to this

[@BrianaBanosPreventable]

@@gcabs15 heart you!

[@tamyrae05]

I laughed,😅I cried😢 and most of all I am so proud of the incredible way you presented so so much information to spread awareness of a condition that has robbed you of love, time and precious moments! And yet…look where it has taken you💔❤️🤗😘

[@BrianaBanosPreventable]

@@tamyrae05 and got to shout you out xx

[@tamyrae05]

🇺🇸

[@melissaukph]

Amazing. Thank you so much for your time and efforts. Almost 3.5 years in now and still looking for my light at the tunnel end. 💕

[@lilincoopr]

If it wasn’t for your KZbin channel, I wouldn’t have known there was a light at the end of this TSW tunnel. Thank you for all your hard work, thank you for highlighting TCM (traditional Chinese medicine), thank you all participants for being vulnerable. The body can come Back from anything, even TSW!! 👊🏽💕✨ 💕👊🏽 #9yrsTSW 🙋🏻‍♀️✌🏽

[@BrianaBanosPreventable]

@@lilincoopr so much love, babe

[@alicewong396]

Thank you Briana for your amazing work filming and editing this documentary. We watched your first documentary shortly after our baby was forced onto steroids by her doctors and experiencing signs of TSA, and we're now 1 year TSW and healing. Had to fast forward over a lot of the footage of the children because it brought back such painful memories of our TSW journey. I really appreciated your research into the history of corticosteroid approval ad well. 🇺🇸🇨🇦

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@fernando651]

45:14 really sums up the tremendous thorns that TSW victims experience, well said

[@TheLoOPerMAN]

@Briana thank you for making this emotional documentary. I hope this will raise more awareness around the doctors community and in general.

[@crustydiva]

What an incredible documentary. Bri you have done it again! All the Dr’s and Derms in the world need to watch this🙏 Thank you for such an incredible vid 🫶🌟

[@polychromicportal]

Thank you for creating this documentary. I am sharing this with my local community. Thank you so much.

[@emmahancockxxx]

Thank you for being an advocate for all of us, Bri♥️ this film is beautiful and so important and you’ve worked so hard to spread awareness, THANK YOU♥️

[@lozm4877]

It's scary how alone you feel going through TSW and it's also heartbreaking yet eye opening to see so many people going through the same! Thank you Briana for making us feel seen and allowing our voices to be heard! Incredible documentary, congratulations! 💜

[@BrianaBanosPreventable]

@@lozm4877 thank you, love xx

[@lissetlopez835]

Thank you Briana for pouring so much love and time to this condition that doctors refuse to properly diagnose. My daughter is currently in Thailand getting CAP therapy. I’m very grateful to the TSW community for all the information. Good luck to you Briana! Continue this awesome journey of educating the world.

[@clairecrome1403]

A gripping documentary Bri, brilliantly filmed and edited. Hopefully we can share it far and wide to spread the word. Thank you for inviting me to participate with Megan❤

[@kyliebrennan9123]

I have physically healed from tsw. However i am sitting here in tears, the mental side , the ptsd, the acceptance of all that this took from me, I am not sure will ever heal. It has made me a different person, stronger, more greatful for the little things in life. Truly moving doco. Love your work.

[@marylouhintz944]

I understand.. your skin is healed, but your mind needs healing too.. I know.. you are my sister.. I posted here 11/1/24 mary lou lowrie Hintz

[@mariettedehaan5922]

Thank you for making this documentary. Just watched this with the focused attention only someone who went to TSW can... We will be spreading this also in the Netherlands, working on recognition...❤, a difficult path..

[@kellja5012]

This documentary makes me feel so seen. I’m almost 3 years into TSW and it has touched every single part of my life. I’ve been housebound and bed-bound, severely disfigured. It has affected my work, my relationships, destroyed my mental health. There is no end date, little research and very little support from the medical community. The one thing that has helped me through has been the wonderful community. But we need and deserve more. More support, more research, more understanding. I hope this brilliant documentary will be seen by everyone. I hope it will spark conversations and interest that can lead to more research and CHANGE. Thank you, Briana and all involved. 🇬🇧

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@eamonmcullen]

4 months TSW and watching this documentary makes me feel seen. I dont know what I would do without the awareness that Briana and others are spreading. Thank you for creating this documentary and being so brave. We will persevere! 💪

[@Wannie-r6r]

Well done Briana, and everyone who contributed. I found it very moving and powerful.

[@kjgf1234]

Bravissima Briana, 💛and thank you!!! I'm writing from Italy, where TSW is still not well recognized. It's often dismissed as severe eczema ('eczema grave'). Thankfully, I was diagnosed while living in the UK, and having that official diagnosis helped me avoid being prescribed more steroids when I returned to Italy. Instead, I was put on systemic treatments, as prescribed. Without that diagnosis, I might have faced a much harder journey. Thank you so much for your incredible effort in researching, collecting stories, and creating this documentary. Your work brings hope and much-needed awareness to a condition that deserves greater understanding, and I truly hope this awareness will soon reach Italy as well.

[@klazarowitz]

As a toddler mom experiencing this first hand it is so heartbreaking. Beyond thankful for you, for this team, and this video to promote awareness or something we never knew existed! ❤❤❤

[@louisequadrelli7961]

Wow Brianna this is amazing. I'm sharing with everyone. I'm 10 years into my journey and have been OK ish since year 3. Thank you from the whole TSW community for your hard work putting all this together. Let's hope the change is coming 🙏

[@christineboyko4106]

The tears are burning.... but so worth it! Thank you Briana Banos for all your hard work, time, and energy to help all of us ❤ I'm 2 yrs into TSW, and I know many more to come, but there is a light!

[@BrianaBanosPreventable]

@@christineboyko4106 🫂🫂

[@tswmeg]

Thank you so much for including Aiden, my mum and I in the documentary. You’re doing such incredible work for the community - you are literally the TSW queen. So educational as well, I learned so much about the history of eczema and steroids, it was super interesting to watch, and of course very emotional. You killed it Bri!!!!

[@BrianaBanosPreventable]

@@tswmeg thank you for being a part of this!!

[@GaenorBrown]

Incredible. Incredible work. What an amazing woman you are. Thank you. Thank you. You are our inspiration. ❤️

[@LisaPoppe]

This made me cry! You should be extremely proud of your journey as should all those who took part in this documentary to raise awareness. Watching my 21 year old son go through TSW has been the most horrific thing I have had to deal with. He was hospitalised on Christmas Day, rushed into intensive care as his skin had over 90% failed and was at risk of heart failure. He spent 10 days in hospital. Let’s keep raising awareness. Awesome job! ❤🇬🇧

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@simonogle204]

Yes! So awesome you have released a follow up to Preventable. Look at the amazing work you have achieved. Thank you so much for all you have done to raise awareness. Much love. Simon (3.5 years and counting)

[@JulieSommer-b6j]

I am 2,5+ years into TSW. Cried my way through this documentary. I am going through it alone for the last 1,5 years, since my divorce. I have two kids. It's just so hard with all the flares and complications.

[@BrianaBanosPreventable]

@JulieSommer-b6j sending you so much love you resilient human being xx those kids are lucky to have you

[@fionamorris9107]

Kia ora from New Zealand! Another amazing documentary, Briana, and I was so surprised to see the couple from NZ in there. I had heard about CPS in the US taking children away from their parents over their refusal to use steroids, but I had no idea it was happening here with Oranga Tamariki.

[@asuranrocks]

i had a good cry, thank you so much! it gave me strength

[@jackelineflores6612]

Amazing documentary! ❤️ I watched the first one when I was a teenager battling severe eczema and made me understand the real dangers of steroids. I was able to prevent it. Thankful for your continued awareness!

[@BrianaBanosPreventable]

@@jackelineflores6612 this makes me so happy!

[@janelleharris8470]

Brilliant Brianna!! Congratulations 💜

[@iamberj]

My 5yo is 26 months TSW. Keep spreading awareness 🙌🏽

[@marylouhintz944]

This was an excellent video.. I love you all who have survived the miserable torture of extreme skin trouble. My heart has been very moved by this.. I wish I could speak out my story of severe skin for 69 years, now I feel very validated for feeling so nasty angry with the suffering I went through with very little help. I was suicidal & hospitalized so many times.. I couldn't stand life anymore. I WAS very desperate for help & healing.. I have taken alot of prednisone.. our dog had prednisone & when she died the prednisone was mine!! I don't remember if they were 20mg, or 40mg. I didn't care.. I had alot of struggle in my life! I am on Dupixent now & doing well, Since 2019. I've been to 3 National Eczema Association Expo's.. which are great. I appreciate all in this video & care very much about each one of you ❤!

[@vanessasaucedo9267]

Thank you so much for putting this together Brianna. It’s such a hellish journey, and I appreciate you for bringing more awareness.❤

[@elleblackjack]

Absolutely amazing! One day we won’t have to fight anymore ❤

[@VickyG442]

Beautiful job Briana. Thank you for the countless hours during difficult times of your own to do this documentary. It's even better than Preventable. ❤

[@BrianaBanosPreventable]

@@VickyG442 🥹🫂 thank you Vicky

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@naturallovesong]

Watching this for the second time, and will be sharing far and wide. TSW took my child's confidence, induced bullying and isolation from peers, her ability to concentrate, her hair, and has along with other challenges revealed resilience and a fortitude truly commendable for someone her age. I am so proud of her, and thankful for the work you've done Briana, as well as the patient advocacy this community is pushing forward. No one should be put through this, especially not children, due to negligence and unwillingness of medical industry professionals to accept they need to listen more and be open to new positions. This documentary is such beautiful work. Thank you Briana! ❤❤❤

[@BrianaBanosPreventable]

Thank you for sharing, so much. Absolutely no one should go through this.

[@naturallovesong]

​@@BrianaBanosPreventable 🇬🇧

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@AproDerm]

Wow Briana. So many raw and painful stories and experiences. You and your team have done an amazing job at putting together yet another incredible and insightful documentary. Thank you for making so many people feel seen and for everything you are doing to help get Topical Steroid Withdrawal recognised.

[@BrianaBanosPreventable]

@@AproDerm thank you for being such a support!

[@AproDerm]

@@BrianaBanosPreventable Awh, you’re most welcome ❤

[@evelynrodriguez4616]

I am watching it while I am in bed ozzing and with wounds in my breast. 2 years and a half and still looking for a way out of tsw. Estoy viendo este documental mientras estoy en mi cama esperando a que mis heridas sequen después de bañarme. Sigo buscando una manera de mejorar ✨

[@louisebrumley352]

Thank you for another informative documentary. The first one helped me identify my problem. People NEED to watch this and become aware of what's at stake in using topical steroids.

[@jerredclarke7887]

Loved this video! Very informative and looking forward to all the research and advancements coming

[@moim8202]

Thank you so much I went thru TSW more than 20yrs I thought I was the only one suffering from TSW but we’re one to fight for TSW! Stay stronger!!!

[@movingcommunity1859]

Wow. I’m so grateful for the incredible work you’ve done here. I am lucky enough to have family and friends who support me but this film means I can explain TSW on a whole new level. I will share this through every opportunity … really want my gp to watch!

[@dctamayo]

I’m 3.5 years in, had two pregnancies, still flaring but doing so much better 🙏🏼 - sending love from Mexico 🇲🇽

[@peachkey2]

Ugh, I've spent my whole life hating to cry (probably because I've always had eczema around the eyes), but this made me tear up. Everything just hit so close to home. 7 years in and still scratching my face while watching this. I'm sorry i missed the premiere but this was wonderful and I'm so glad to have finally watched it after all the years of hard work you put into it.

[@BrianaBanosPreventable]

@@peachkey2 I feel you on this. I'm so sorry you're struggling and sending you a big hug

[@MsZyzyzy]

Thank you so much for this documentary! So very important to raisse awareness about this horrible condition! I*ve been going through it twice... First time in the 90's without knowing anything about it. No internet, no group support. But i got healed through homeopathic treatment. Just small ordinary rashes somtimes when i got stressed Unfortunately I did have a bad flare many years later in a very stressful time in my life. I let a person I trusted persuade me to use steroids.... and I was stuck. It is a drug! And I got addicted one more time until I stopped in 2020. Now i am soon 5 years in and this time is worse because it has been pretty much a constant flare. So exhausting. It really affects every area of ones life. But I will never ever take steroids or any other medical treatment again. I go for natural healing and trust my body. Once again thank you Briana Banos and all the participants! ❤❤❤🙏🙏🙏

[@BrianaBanosPreventable]

@@MsZyzyzy 🫂🫂🫂

[@mineshands3779]

TSW is been a nightmare that I don’t seem to wake up from. This documentary gives me hope. May god shine understanding on doctors and specialists.

[@michellebibian2299]

Beautifully done. Thank you for this. Sitting here crying because TSW has also made me into a better person. Warriors ! 🩷

[@laurieward1633]

Briana, I'm so thankful for your advocacy work. This documentary is incredible. I'm just a little ahead of you in my TSW journey (Sept. 2014) and to see so little change in the attitude and beliefs within the medical community is outrageous and absolutely infuriating. One small glimmer of hope - I live in Toronto, Canada and my daughter is in 1st year nursing school in a small city north of here. In one of her nursing classes her teacher talked about the dangers of topical steroids. It wasn't related to her experience but rather her knowledge of their dangers. Let's hope that change is coming. But for now, it's this community that's spreading the word and I'm sure you all have helped prevent people from ever touching topical steroids. ❤

[@BrianaBanosPreventable]

@laurieward1633 that's amazing to hear about your daughter!! Little by little we will prevail

[@grahamgriffiths6210]

A superbly produced, highly professional, emotionally charged, informative documentary. Well done Briana - let’s hope this documentary is a catalyst for real change in prescribing protocols, and the healthcare ‘profession’ now fully awakes to the damage they have, and are still causing by the irresponsible, misprescribing and over prescribing of topical corticosteroids. It’s rather disappointing that the documentary hasn’t at the very least given a nod to Dr Marvin Rapaport, an ITSAN founder, and a dermatologist who has done more than any other medical professional in the world to highlight this totally preventable condition and probably successfully treat more patients than any other MD. His 2024 ‘White Paper’ on TSA / TSW is the gold standard reference to this iatrogenic condition. Not mentioning Dr Rapaport in a documentary about TSW is like making a film about WWII without mentioning Winston Churchill…….! It would have been nice to have given a little more time to Mr Sean Dillnut who has done amazing work producing a video for the last three years of the ‘March in March’ TSW Awareness Day in London, an event in March every year that brings dozens of people in the TSW community together, alleviating so much isolation and creating a strong sense of camaraderie. This years event culminated in a TSW petition handed in to the front door of No.10 Downing Street. ‘Still Preventable’ - an amazing documentary for sure, ironically, left me with no real conclusion as to how to ‘prevent’ further suffering. I don’t believe big pharma really give two hoots about the continued suffering due to the misuse of their products, in fact, their business model is a patient healed is a customer lost. Big pharma is a pathalogically profit driven business. Sadly, I believe the only way to stop all this preventable suffering is for a brave law firm to step forward to represent the millions of victims of this medical negligence scandal. Legal action must be taken against healthcare professionals who have caused so much unnecessary suffering to set a legal precedent for future law suits against so many irresponsible healthcare ‘professionals’. There is evidence of TSW / side effects from topical corticosteroids since the late 1950s - this is not a new phenomenon! The USA is supposed to be a global leader in healthcare - maybe if Robert F. Kennedy Jr. has a pivotal role in the new US administration, we may see an end to the corrupt medical industrial complex that is making millions of people across the world sick for the pursuit of ever greater profit.

[@crypto_whizz]

Thank you Briana for another masterpiece. You did amazing job to gather, research and study this nasty condition. I'm one year behind you and always checking if you finally healed. We all deserve to have our normal life back! Wish you all the best!!!

[@BrianaBanosPreventable]

@@crypto_whizz we truly do. Wishing you the same 🙏🏼

[@crypto_whizz]

@@BrianaBanosPreventable Thank you so much. The whole community appreciates you 🤗

[@amandavitt2729]

Currently going through TSW, it has been without a doubt the hardest thing I have ever been through. This documentary made me feel seen, reminded me I am not alone and gave me hope that someday all of these wrongs might be made right for us❤️

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@liajohnson4841]

Congratulations. Very educational.

[@Oojellybean]

i went through a horrible painful tsw in 2016. im still struggling with my eczema now but definitely better than before. my heart goes out to eczema and tsw fighter

[@dt261]

Beautiful documentary. My heart is bursting. So proud of you all ❤

[@aki8307]

Beautifully done ☑️

[@lenkakovarova1780]

Thank you so much Briana and everybody creating this document! It means so much for us who suffer. I feel so empowered, respected and heard ❤❤❤

[@oliviareid5402]

This is amazing and so informative. Thank you for taking the time to do this. It means so much

[@TSW.healing]

Thank you for all your work Briana ❤❤❤❤❤

[@kaitlynpugh98]

I thought this documentary was amazing! You go into depth of what life is like living with TSW and I love all the information you have given about the history of the steroid creams. Amazing documentary. ❤

[@kaitlynpugh98]

I am from the UK! Forgot to put that :)

[@delphinelambese2492]

Thank you and big up from France, you made me cried and smiled 🙏🏾

[@elenadennis7861]

I'm in the UK and struggling with TSW, flaring right now. The Preventable documentary blew my mind and Still Preventable made me cry a lot, but I'm very grateful for your hard work to research this and spread awareness for the TSW community and the medical community.

[@BrianaBanosPreventable]

@@elenadennis7861 🫂🫂

[@JulijaMlakar]

I'm in TSW from March 2021. Trying Cyclo, Dupi and Rinvo. Last is nightmare rebound, like describing Cynthia 😢

[@allisongaida5337]

66-year old retiree from Pennsylvania who had to stop all steroids at 62 when my skin just kept getting worse and worse from two different dermatologists’ treatment of stronger and stronger steroids and protopic creams. When I told them I thought the steroids were making me worse and that I could be allergic to them, I was dismissed and told it was just severe atopic dermatitis! I found the online TSW community and have not looked back. 4 years of my life has been on hold much of the time. I applaud you and those who work so hard to get the word spread of the dangers of steroids and that this is a very real affliction! Thank you! May 2025 be a year of clear skin for us! 🎉

[@MrsLEngel-zb6tr]

58 year old educator from California and I feel the same! May 2025 be the final healing year for everyone!

[@Paul-qq7mh]

Great video Briana. Cheers from Melbourne Australia.

[@BrianaBanosPreventable]

Hey dear, send me an email if you can to chat ([e-mail])

[@ferwaiiano]

Thank you Briana, I hope one day you post about your full healing, that would give hope to the rest of us. Amazing work, God bless you.

[@BrianaBanosPreventable]

@@ferwaiiano me too 🙏🏼🙏🏼