Sometimes the risks outweigh the possible benefits, and we just have to stop. Yesterday was filled with many tears, but we fight on!
@debbiesanderson94666 жыл бұрын
Keep fighting- you have a lot of friends all supporting you 🤗😘
@jackycook646 жыл бұрын
Thank you for sharing this. I have just had to stop my chemo infusion for Lupus.. It is benefiting the Lupus but it is causing too much damage to my liver. The only option is to increase the steroids (which can do long term damage to the body). The steroids have been the only other thing the Lupus has responded to. It is hard and frustrating.
@chaney16 жыл бұрын
keep on going as everyone here is right behind you two.Sending prayers and irish luck all the way from dublin so onwards and upwards
@Pastelcosplays216 жыл бұрын
Please keep fighting
@dorate1006 жыл бұрын
praying for u i know God will take care of u
@Darienlover9996 жыл бұрын
To anyone who wants to judge Mary for her tears or disappointed feelings... She is a terminally ill woman who has been courageous enough to put her sadness and tears and struggles on the internet for everyone to see. And your judgement is coming from someone who more than likely has no idea what it's like to live with something like CF and doesn't know all of the ins and outs. Mary has been feeling like crap for months now as well as fighting the side effects and just got told that the IVs that were her hope for feeling better have to be stopped. And as far as this being a life or death situation, I am no expert on CF, but having a lung infection that won't clear up, that is giving you cement-like mucous that is getting harder and harder to expell... It's not good. And even if you think Mary takes things too hard or gets too worked up (which, again, I totally disagree with) Peter is almost always able to take a step back and say "hold on, let's remember this..." Or "don't worry, we can try that..." And even he has been brought to tears twice in the last two weeks. This isn't a joke, it's not some little sinus infection - it's a terminal illness that Mary could very well die from one day and it's pretty gross to judge them for how they react to this news. Have some compassion.
@Kristina-zt2op6 жыл бұрын
I don't think anyone is judging her..don't really understand who you're targeting with that comment. 🤔
@mimis-girls79356 жыл бұрын
loveroforcas I have never seen a comment from anyone judging Mary, everyone loves Peter and Mary!
@pucamisc6 жыл бұрын
I appreciate your support for her, but it’s a progressive chronic illness, I don’t think they’ve said it’s terminal.
@MusicMatters_SC6 жыл бұрын
This comment seemed unnecessary 🤔
@amylerman71876 жыл бұрын
Harlequin 9 it is terminal! Most people with cf will eventually die and at a young age.
@ulaff6 жыл бұрын
Thank you for sharing your truth and your lives. Thank you for sharing the mess. You have a whole community behind you and we're here with you. I'm so sorry things aren't going the way you hoped. ❤
@Zeleiah6 жыл бұрын
I don’t even know you and my heart is breaking and I’m bawling for you. I am actually sitting in the hospital, I have a terminal disease. I’ve made the decision to stop treatment. It’s quality vs. quantity, and my qol is zilch. I will pray for you. I’m so glad you guys have each other. Again, I am praying for you, and you keep fighting!
@gayleafcampbell-palmer70396 жыл бұрын
Really sorry to hear that SSM. Thinking of you. X
@jenharts55026 жыл бұрын
Sweet Sassy Molassy I will be praying so hard for both you and Mary, I pray that as you read these comments you feel the presence of the Lord wash over you and that he gives you the peace in your heart that only he knows how to give ❤️❤️
@sisterspooky6 жыл бұрын
+Sweet Sassy Molassy : I am so sorry to hear of the health issues you are facing. Do you know Jesus? If so, you’re never alone! Cling to Him and no matter what, you’ll be okay! My father passed away on the 19th of August; before he passed he experienced something...he must have seen Jesus. He raised his hands in the air and said, “Father! You’re so beautiful! You’re taller than I thought.” It freaked the nurse and the nurses aid out, they had just come in to readjust him in his bed when this began. He was looking towards a (seemingly) empty wall. His face lit up with a smile I had never seen before. I told my Mom, I have no doubt he is with the Lord; because of what we witnessed in that room that night. Although the nurses didn’t know what to make of it, we did...we know he’s at peace. That has helped us in our loss; because we know he’s okay. If you don’t know Jesus Christ, I encourage you to get to know Him as your Savior - because He will be there for you come what may. Nothing better than that! I wish you all the best! ❤️
@Zeleiah6 жыл бұрын
Sister Spooky thank you. I’m sorry to hear about your father, but if he said that, he must be in a better place!! Yes, I know Jesus. Not personally lol but he is my comfort and gives me strength and the faith that my journey has been long and tough, but I’ll be okay 😀
@Zeleiah6 жыл бұрын
jennifer Hartsfield thank you so much for your prayers. I’m worried about Mary, too. She’s such a sweetheart 😌
@juliabade57762 жыл бұрын
It is so so great to rewatch this today, knowing how far you‘ve come and how you‘re life has changed for the better. In every dark time, there is still hope to be found!
@susanadamikova21106 жыл бұрын
I am a doctor and even though i am not fully informed i think your(and your doctor's) decisions seem logic and the best you can do in the situation as you described. I am curious about the hemoculture results... Keep fight Mary, you are one of the toughest people i know!
@oneseeker26 жыл бұрын
You are a Doctor, and that means? What?
@poppykok56 жыл бұрын
Why are you being such a smart-aleck...It's very unbecoming... "It means "THIS"... That she is thinking beyond the emotional aspects of what Mary & Peter are surely experiencing, & is also considering the scientific/medical aspects of darling Mary's current health situation & complications... K Butler...Being thoughtful & respectful feels so much better than rudeness...Try it...
@brendametube6 жыл бұрын
K Butler it means you’re a troll. Go find something useful to do.😉👍
@Vee-yc5ht6 жыл бұрын
@@oneseeker2 jealous much?
@ivyedan71836 жыл бұрын
Thank you for your service!! Don't listen to idiots like this person
@mistycgrimm6 жыл бұрын
So sorry, you guys. I can see the pain and exhaustion in both of your eyes. We love you and are praying for you daily. 🌻🌻🌻
@christinadoherty32126 жыл бұрын
Literally just spent 5 minutes trying to figure out why I couldn’t silence my IV pump alarm (your IV pump alarm) 😂
@lenalovegood82126 жыл бұрын
You're not alone 😂
@lizzyd51586 жыл бұрын
Not alone 😂
@shirleyplumer22766 жыл бұрын
Hugs guys. I have walked the walk as a parent. Grateful for everyday we had. Your parents are awesome. And they love both of you so much.
@daedae11236 жыл бұрын
Sammmmeeee
@ReineDeLaSeine146 жыл бұрын
Hahaha
@oneseeker26 жыл бұрын
Mary and Peter seem to be the sweetest sweetest people ever.
@lyndadenford62926 жыл бұрын
Such a sad day, I bet all of us on here want to be there with you to dry your tears, hug you and fill your room with hope. It makes me cry and I’m not going through anything like cf. You and Peter have always fought hard and tried every day to see a glimmer of light to hold onto, to be as positive to be thankful for anything good in the day. That is special and if the world lived with your values, your faith, your spirit then it would be the greatest ho e for all of us. I am hoping the fever goes down, that you can go home and feel well enough to be able to enjoy doing normal things. We are all accompanying you on this journey and I thank you for that and you can believe if there was anything we could do we would. Hugs to you both xxx
@janicehellzen87656 жыл бұрын
I don't even know what to say. The pain in both of your eyes is so obvious. I am praying for you and just know we are all sending our love and healing vibes your way.
@amberholcomb94606 жыл бұрын
I thank you so much for your story. Your story of how to keep praying and trusting God in the midst of your pain and suffering. Your testimony helps so many lives. I think it might help my best friend
@coachzgaming32856 жыл бұрын
We lost peewee tom he was a youtuber passed away from cancer yesterday idk if you heard of him he done updates he gave us 1 last video he was so pale an skinny from it his family posted a video telling us he passed
@nibindringiel6 жыл бұрын
So sorry to hear you had to stop treatment. Such a blow when you have been working so hard. At least you know you've done everything you can in this round of the fight. Really hope blood values, kidney function and lungs bounce back and fever goes down so you can feel better soon!
@nicolechristman40966 жыл бұрын
I'm grateful for your words tonight Mary. I am going through this with you and I think you finally used words to wake up a respiratory therapist/friend. I've been in denial about how sick you feel. I think that makes you family. So strangely marvelous. Gotta love KZbin! I pray every day. Lobe you all. Truly!
@jenniferyamamoto62266 жыл бұрын
Thank you for showing me what REAL STRENGTH is. Love and positive thoughts heading your way.
@cleoh6666 жыл бұрын
Praying for you over these next few weeks for increased lung function 🙏💕
@julieankin84276 жыл бұрын
Im so sorry Mary for what you are going through and Peter too. Before I found your channel I had heard of CF but didn’t know much about it. I would like to thank you, Peter and Ollie for giving us all an insight in how your CF affects you on a daily basis, also I admire your strength, courage and determination that gets you through each day. Sending you lots of love and respect from Exmouth in the UK ❤️XX
@PippiD6 жыл бұрын
You are both so brave, fighting daily for Mary's life and your life together. You are helping more people than you know. You can never say you didn't do everything possible to keep Mary's lung working. God bless you both.
@avidfan476 жыл бұрын
You're right...challenges CAN BE difficult. We all face them ( esp those of us who have chronic issues). I love you guys and sending all of my postive, faith filled thoughts your way!
@galentine10146 жыл бұрын
You are all so brave. The fact that your weapon against all of this is love and humility when most would have given up you are determined to enjoy life.
@esthervantuyl20916 жыл бұрын
Sending prayers!
@comienluyt6 жыл бұрын
I am not chronically ill but suffer from depression. I felt the wave coming for me and stopped. Switche d on my phone and watched you. You give me strength not to sink into the deep dark waters. You are always so strong, even when sad and faced with uncertainty. You give me strength to keep my head up. Believe God has the best plan for us!
@enneki9296 жыл бұрын
i hope you feel better soon. i have no chronical illness but i felt sick for two days now and i wasnt able to do things like i wanted to. i had to slow down eventhough i didnt want to. i thought of you alot and you helped me focussing on the small things and finding joy in what im still able to do instead of what not. thank you for sharing your story and spreading positivity eventhough things SUCK sometimes. good luck your way!
@sorayacardenas34036 жыл бұрын
I have a friend that had low platelets and her nutritionist recommended blended beats with apples celery and carrots daily and in a month the platelet number went up. Good for you you are resting your body o antibiotics for now. I am glad you are paying attention to your body. You are in the right path. Keep praying for you guys.
@KelliDiMera6 жыл бұрын
I just wanted to say that I love you guys and pray for you! You’ve encouraged me to not be ashamed of my health problems (I’ve had a heart and double lung transplant.)
@NoThisisLeia6 жыл бұрын
Just finished your last vlog and this one popped up. Stay strong guys, you are such wonderful people and you are helping to inspire and educate so many people. Sending love and support from California.
@selahhomestead-ish33166 жыл бұрын
I only just found you guys yesterday! I was watching Sid Roth Live today and a guest said there was a "mother with a child with CF." I am not your mother, duh, but I prayed and received that healing on your behalf! God is a good, good God! I am believing you are in the process of healing!
@n.m.o.v.4106 жыл бұрын
I Live in Honduras, I have followed the Frey Life for a little more than 3 yrs fell in love with your family.I am Always praying for you. I decided to drop this few letters because i live in a a tropical country we sometimes have dengue plagues and other sort of sicknesses that cause low platelets and other blood problems. Some Doctors recomend to drink fresh coconut water three times a day cause it helps raise the platelets numbers really fast it has no medical sideffects you can search online. I personally know it helps it did with my husband when he had zika and chikinguya (both mosquitoes diseases 2 yrs ago) and my uncle dengue (8yrs ago) I truly believe it might help you. Hope you feel better and your numbers get back to normal. =0)
@applejellypucci6 жыл бұрын
Cool I am from Honduras too! you are right Dengue is very common for us, my mom got chikinguya when she was in La Ceiba.
@n.m.o.v.4106 жыл бұрын
@@applejellypucci I hope she feels better because the aches stay for a very long time and tend to come and go even 2 years after the person is bitten
@olingecko6 жыл бұрын
Mary, you and Peter and Ollie are so good at concentrating on the positives. Sending hugs. 🤗
@trishab21476 жыл бұрын
Mary - You're a fighter! No matter what you do, you are pushing on through. You can do this!
@natashak33876 жыл бұрын
Continuing to keep you all in my thoughts and prayers. I have been fighting health conditions and complications since I was a baby like yourself Mary. I've also been fighting cancer for quite sometime and I took my cat to the vet on Monday because of a jaw abnormality and it turns out she has cancer too. We are all fighting this together and can do this. Love and hugs to you all!
@timberlunadeazul6 жыл бұрын
You are so brave and strong! You seem to handle all these things with such grace. Prayers, hugs and positive healthy vibes to you both! 💜
@rivkahmiri5136 жыл бұрын
Praying! You are Awesome Mary!
@ipickedjake6 жыл бұрын
Enjoy your coffee. It is the little things in life. I am certainly keeping you all in my thoughts and prayers. Hugs!
@madelinewalls85496 жыл бұрын
In the hospital after a seizure so i understand the frustration. Praying for you.
@nancieblackburn31766 жыл бұрын
I live with Lupus. I have problems with meds messing with my Liver. If I stop the meds, liver enzymes go back down but then I flare. I think you are very brave and quite the fighter. And you are blessed with a great husband who supports you 100%. God bless you both and Ollie too!!!
@kristawineburner50166 жыл бұрын
Oh Mary and Peter, I hope you are feeling better today! I am sending peace, love and healing to you! I am also sending peace love and healing to all that are having a hard time right now. Much love ❤❤❤❤
@sandyburdette50766 жыл бұрын
Praying for answers and healing. Yall are such an inspiration and bring me such joy. I know you got this Mary!!
@caitlinp43056 жыл бұрын
Thank you for continuing to see the good. I know there were tears and there probably will be more. But I've been struggling too and seeing you smile amidst your pain gives me hope. Good luck girl!
@sarahkelly52546 жыл бұрын
We are fighting with you!! Always listen to your body! We are praying for you!!
@dawnmorrow14656 жыл бұрын
I've been avoiding coming to KZbin for a few days hoping to see you two out of the hospital. I heard something that Peter said about stopping the antibiotics "It's the only thing we can do right now". I feel that you do have a "clear message". Rely on what you know, have faith in his plan, just watching the first few minutes the song "I know who holds tomorrow" came to mind. Take a minute, listen and trust he's got you in the hollow of his hand. Prayers to you both. He's gonna love you through it.
@debbieschlemmer27466 жыл бұрын
We’re all with you Mary, the big Frey Life family to send in the soldiers to help fight this infection for you and help your lungs breathe much easier. I send my prayers, love, comfort and support to both of you for better healthier days ahead. Sending my love and hugs to thee 3 of you, see you tomorrow!
@Josh-sc2fz6 жыл бұрын
So my wife also has cf and is a constant viewer of all of your videos and first and foremost i want yall to no how much yall give her hope and how much i thank the both of you and that y'alls attitude as a whole brings such light and hope to her day and i appreciate every video thats posted. I wish yall the best thank you
@cp14876 жыл бұрын
Have they ever considered sending you to the Cleveland clinic for a second opinion? My son was doctoring in North Carolina since Christmas last year. We got him into the Cleveland clinic and he was diagnosed the next day with POTS. It never hurts to seek out other answers and doctors.
@misfitfromtoyisland.99406 жыл бұрын
coni I'm sorry yaw r going through that. I've never heard of this. What is pots?
@cp14876 жыл бұрын
@@misfitfromtoyisland.9940 POTS is Postural Orthostatic Tachycardia Syndrome. He gets dizzy and he can't drive because he can pass out. He also gets seizures. He also has a pulse rate up to 160 when he stands up, 60-80 is normal. He gets extremely anxious, needs a lot of salt and has to drink 48 oz. of gatorade a day. He hasn't been able to work since Christmas.
@colormezebra28416 жыл бұрын
Oh boy, tough stuff. My brain keeps going back amd forth between "yaaaay, no more side effects!" And then, sad for stopping all attempts at giving the infection the ol' one-two-punch". These times are crazy, I'm glad God is with you. You two are very strong. PS: Ollie's ball is behind your nightstand.
@kimberlyhendrickson17426 жыл бұрын
Thank you for sharing your story and your life!! I pray for you every single day!!
@jamiesteffen45656 жыл бұрын
You are so strong! Hang in there Mary!!!!
@TheGeekMonster6 жыл бұрын
Mary, you are truly one of the most adorable people I've ever seen. Even in the midst of your pain and tiredness, you just shine with sweetness and sincerity and gentleness
@FunsizedStyle6 жыл бұрын
Honored to be cheering you on in this fight!! 💪🏻💗 Keep on keepin’ on!
@greatfulandblessed36656 жыл бұрын
Peter, you are a "SAINT" ! Mary, is so BLESSED to have you as her hubby and in her corner fighting right along with her. It shows that you are pooped out my friend ! Prayers and blessings for you both. :-)
@cortisslynnette16046 жыл бұрын
Always praying for you and your family! Thank you guys from sharing your lived with us!
@reflectionsofself40276 жыл бұрын
Free falling! I hope you feel as good as you can and just feel free and happy
@lorikiszkawoods93506 жыл бұрын
You are so strong! Keep fighting the good fight!
@thegivingheart3446 Жыл бұрын
I have so much compassion for you.
@luisa15516 жыл бұрын
Mary, Peter and Olli, my thoughts and good energies are with you guys. Hope that the blood culture gives your team useful information and they get the best idea for your treatment. Big hug!
@francesheaton9746 жыл бұрын
i ran across Christina Doughtery wearing your tee shirt you both are such warriors GOD is walking beside you
@hollyosgerby19016 жыл бұрын
Another obstacle to overcome.....I am so sorry, Mary. But what a wonderful assurance that God is walking with you, every step of the way. Hugs & continued prayer for you both and sweet Ollie boy. 🙏🏻🙏🏻🤗❤️❤️
@kneecbeau6 жыл бұрын
I’m so speechless guys sharing many tears for y’all. Lifted in prayers always for y’all Love, Denise
@sarahsrandomvideos69656 жыл бұрын
Sorry you're having a rough time Mary. Sending gentle hugs to you all, all the way from Kent UK x 🙏❤
@Julia-en5ys6 жыл бұрын
And when everything seems hard- just think about those long, beautiful summer sunsets on the boat ❣️
@brendametube6 жыл бұрын
J 23 That’s what I was going to say! They’ll be on it soon enjoying the last of the nice warm weather and then… Mary’s favorite! CHRISTMAAAAAAAS TIME!!!!!
@kimbo5006 жыл бұрын
It is the right time to stop. It's your new reality, and it is good to listen to what your body is telling you! You are both so used to plodding on with the fight, and it's not fun giving in a bit. I'll say it again, one of my nursing instructors (a nun), used to tell us, 'The body heals best at rest'. As a nurse who is now retired due to my disabling chronic illness, (and a Christian, related to the Moody's of your Alma Mater!), you WILL get to a better emotional place, as you accept this change. Your faith is strong, and sometimes I secretly wish you would just 'let go', and lean on that a bit more....rather than be in the 'fight' mode so much. I wish you more Peace about these changes, so your body can rest/heal. I'm sending all sorts of love, prayers, positive vibes, and Peace your way! Love you both!!
@jenniferclum20676 жыл бұрын
You are amazing I wish I could talk to you. You give me courage. I wish I had strength like you. I feel I give up and cry a lot. Be strong Mary.
@misfitfromtoyisland.99406 жыл бұрын
Jennifer Clum u actually sound like u want her to make u feel better instead of u wanting to make her feel better.
@denamcvaney99996 жыл бұрын
I'm so sorry, Mary. I do hope and pray you get better.
@katiegrayson45616 жыл бұрын
Feel better! As a cancer patient I felt like I was right there with you! 😷❤️
@afteil6 жыл бұрын
Anyone else think it's ironic that the side effects of one of the antibiotics is that it lowers your body's ability to fight off infection on it's own =/ hopefully you feel better soon and those fevers go away
@friends2226 жыл бұрын
I have cf and have been watching you since the very beginning. You give me hope. Thanks for the blogs and keep on keeping on I will continue praying for all three of you
@lisanorton77496 жыл бұрын
I’m so sorry for this news. Tomorrow is a new day, perhaps things will be a bit more clear and perhaps some answers will be found. I hope that for you. I know that your strong faith will see you through any of the upcoming challenges. You are a strong, faithful warrior and mighty girl, you:will prevail!
@AnAspiesPOV6 жыл бұрын
i had my bloodwork done on Tuesday, knowing i had a flare of my crohns. i called the office friday and was told my bloodwork was normal... i knew it wasn't... my doctor's office posts the results online and i noticed my inflammation markers were excessively high and i immediately called the on-call who happened to be my doctor. he was worried to make a decision because we normally use steroids but he said, knowing my body, i'd have an infection and a flare at the same time and steroids would suppress the immune system. he wanted a day to weigh the risks versus benefits. when he called back today, he called in the steroids and hopefully it was the right choice... if not, we'll soon find out. hope you're feeling better today Mary!
@kathysanders43586 жыл бұрын
Prayers coming your way sweet Mary and Peter🙏🏼
@mommyof2adventures6056 жыл бұрын
I haven’t watched a blog of you guys in a long time and you both always bring me joy and positivity. Praying for you guys
@arnolddavis12816 жыл бұрын
Awww,Mary many hugs and divine light on you..You're amazing husband and partner Peter..Yes,Oliver such a caring service dog.
@ShyAnn2916 жыл бұрын
We all support you, and I’ll be praying for you in hopes you’ll find something that will truly help!! I have to add something, it’s so crazy how much you look like my cousin!
@cherylcarlson33156 жыл бұрын
Sending hugs to both of you .Wish there was something I could do or say that would help you,heal you. Mary, my heart aches for your mother to have that phone call. Thank you for taking us on this painful, inspiring, loving journey.
@ejdoug83286 жыл бұрын
Ok, more prayers going up! I have to tell you, I'm sorta going to your church now. One of Peter's sermons came up when I opened KZbin and it was from 11 months ago. It was on paradoxes and suffering. I was riveted! Peter you were born to preach. Mary, I loved when you were talking about not comparing suffering. I have a rare auto-immune disease and a lot of times my friends will say I'm sorry for complaining I know you suffer so much worse. I'm very quick to tell them, God cares about the worst thing going on in your life the same as he cares about the worst thing going on in mine. I really needed to hear that sermon and it wound up right there when I clicked that KZbin icon. I'm also recommending it to my daughter. She is going through a lot right now and one of her friends who is waiting to find out if the lump that was taken out of her neck is cancer. She is a Christian and I know she would love to hear it. Thank you again so much for sharing all that you share. I'm praying for a better tomorrow.
@ekwrocks6 жыл бұрын
I am in your corner!!! I hope the best possible outcome will ensue!! keep swimming, just keep swimming!!
@joyinHim6 жыл бұрын
Keep up the fight, Mary! Rooting for you here!
@princess13dachshund6 жыл бұрын
You made me cry Mary with this video baby.... I am so close to you both, but especially you Mary. I have chronic illnesses, and i am grateful they are not terminal. But I relate to you and your fight so much, I had a life threatening illness, a rare autoimmune blood disorder in 2011. I was in ICU 2 days, transferred up to oncology/hematology floor for 8 more days, and then monitored 3x a week for a whole summer. I got chemo, steroids in massive (120mg prednisone a day!) doses, an anti organ rejection drug called cyclospororine... to try and turn off my overactive immune system! I got 14 blood transfusions over the course of the first 2 months, 5 of them being in the ICU .... to ensure I didn’t die of anemia. In the ICU I should have died. I had a powerful experience and I CHOSE to live. In a moment, I realized I was dying, I saw myself from the corner of the room, and I CHOSE to live. As a result of the medications, I got infections constantly, and I was on at least one antibiotic for the whole summer, off and (mostly) on. I got antibiotic creams for cuts that had become abnormally infected. I got creams for thrush on my butt cheeks, I got mouth tablets to dissolve (over an hour!) for thrush in my mouth. I got an oral medication to treat candida overgrowth from the inside out. Colds came once every two weeks or so. I was angry, irritable, and STARVING constantly from the steroids. I got terrible acne, intense insomnia, hairy back of my neck, a moon face, only 5 extra pounds, but abnormal “steroid stretchmarks” on my hips (just two GIANT marks, one on each side) and on the top of my booty. I love my stretchmarks now, they feel cool, they’ve faded completely to silver, and they remind me of my strength. But they were bright, bright, bright purple for over a year. I got that from the steroids. I got joint pain, and I still have “residual joint pain”, 7 years later. I got intense neuropathy (tingling pins and needles hands and feet) from the Vincristine chemotherapy. I couldn’t walk without wearing slippers or tennis shoes ONLY, I don’t know why but they were the only ones I could walk in. I couldn’t feel my feet for a whole summer. It slowly faded away completely thank goodness. The hands were almost worse than the feet- I could not send long, or sometimes any, text messages. Keyboard on computer was out too. I planned to color and draw etc when I went home but I could not. I would often drop things for no reason other than I couldn’t feel my fingers. This too, faded away, yet it still persists (albeit in a much more bearable amount) to this day. I got another prescription added to treat this nasty side effect - I still take that to this day for the neuropathy. I also got unbearable pain, absolute agony in my legs at night. It was nerve pain, different from neuropathy. We lost a lot of sleep and ended up in the ER at least every week or two for months. This has left me completely, and it’s the one I most grateful is gone. For this, I got a prescription for Vicodin to treat my pain, and one for Ativan to calm me down. I got a sleeping pill to knock me out during the nights. I still take that one, and the other two, I get off friends. I don’t think I’ll ever not crave opioids and Benzos for the rest of my life. Never. Vincristine also gave me the dreaded loss of hair. But that was the least of my worries. Vincristine side effects and effects of severe anemia kept me virtually bedbound for at least 1-2 months. The cyclosporine- oh, we were good pals. I was on him for a full year. He doesn’t mix well with grapefruit, so you have to avoid everything everything everywhere that involves the fruit. For over a year! Grapefruit sparkling water, grapefruit chunks in water, ripe grapefruit, grapefruit juice, grapefruit candy.. etc etc. I loved the fruit. Ahh. He also made me hairy everywhere. Black thick hair on lower back, sideburns, stomach, arm hair, tummy hair, mustache, talk about waxing! He’s a very toxic drug- comes in blister packs because no one should touch it (except me, the one INGESTING IT). My family also is not supposed to come within range of my bodily fluids at all (we were doing lots of lab work, urine tests, and I was very weak.) They were not to share utensils or cups with me (which was good as I was so vulnerable to infection). I was toxic- for a year. We needed blood work every 2 weeks to ensure my organs weren’t failing from the strain of the medication. For a year. The 14 blood transfusions gave me my life. To everyone who can Donate blood. Please. You save the lives of people like me. Mary you’re an inspiration and I love you both thank you.
@julsr58606 жыл бұрын
Mary & Peter my heart is so with you guys! My dad had lung disease all my life & it's a very hard fight every day! Stay strong & positive, God has you in His Arms! It's so hard to decide what to do as far as stopping meds, but some times they are doing more harm than good. I Pray they find the right antibiotic combination for you! Peter I know from having been there it's so hard when you feel helpless when you have a loved one going through so much. Thoughts & Prayers continued for you both & your families!
@marjielalonde38756 жыл бұрын
so sorry Mary, youve been through so much lately....I will continue to pray for you
@maryreynolds53106 жыл бұрын
Bless your heart Mar bear..and yes, what Melissa said, you have a whole whole lot of people on your side, and prayers are many. I have faith it’s all going to get better and start going in the right direction. I celebrate too the fact that God is watching over you, keeping you strong when at times you think your not so strong. He will never fail you Mary, he will hold you up and dry your tears. He loves you so. Rest sweet lady, your so very loved by many. xo
@sarahspindler29146 жыл бұрын
I'm so sorry to hear these news and I hope for as much peace in your family as possible.
@adjaques786 жыл бұрын
Aw... I'm sorry you're having a rough day. Always praying for better days ❤😇
@margenek6 жыл бұрын
God bless! You are in my prayers. Your optimism is amazing.
@thirtyflirtythriving6 жыл бұрын
her positivity is so amazing
@cindygemmill12836 жыл бұрын
It is a deliema that God is asking you all to walk this road to teach us about courage graciousness and showing and teaching us about walking with God in faith love and hope the gift is appreciated
@donnathierjung62666 жыл бұрын
Prayers! God will keep walking right along with you.
@howcanweprayforyou13296 жыл бұрын
So sorry you go through so much :'( Praying for you!!
@aaliyahmeade57856 жыл бұрын
Everything is going to be okay just keep your head up Mary and Peter keep being her big support system❤❤❤everything will be okay
@Justaroundtheriverbend6 жыл бұрын
Oh Mary and Peter I’m so sorry to hear this. I hope that your blood counts come up soon so that you can resume treatment. At least you are getting a break from the side effects!
@christytubbs32666 жыл бұрын
I'm so sorry Mary. Praying for you!
@brigitw58676 жыл бұрын
Keep fighting!! Praying for you!!!
@leisapertesis42066 жыл бұрын
Mary, your poor body has been on so much medication for the past two months it's time to give it a rest.... listen to your team AND your body... Let it rest.... you'll be back in the game in no time! God Bless you sweetie, you've got the heart of a lioness!
@stonepeoplewisdomandhealin15526 жыл бұрын
Prayers and many good thoughts being sent your way! You guys are amazing and such a positive inspiration for so many! You'll get through this!
@lizzyd51586 жыл бұрын
I am sending so many prayers your way. Words can’t heal the pain and frustration, but I hope the love and light surrounds you and holds you up. Hang in there...
@wishupondreams6 жыл бұрын
God bless you Mary. Your steadfast faith is inspiring! I pray your blood counts will raise to where they should be.
@clairecutshaw22726 жыл бұрын
Praying for y'all, Mary!
@kristinwallace65516 жыл бұрын
Sounds super miserable, hopefully this break will help your body recover! Hang in there you guys!
@gojojo666 жыл бұрын
So sorry for the set back. You are both such an inspiration!!! Praying real hard for you !! Xoxo
@shelly08016 жыл бұрын
Your videos really help me. Even though I have to have my like 27th surgery and a risky one too I try to think positive and I’m greatful that I have great doctors,family and friends there for me and an amazing husband whose always there making sure i laugh every day. We are here for you Mary and peter. And you guy both are an inspiration. 💕.
@marilan81546 жыл бұрын
I just want to say that I love and admire you both so much. I’m so sorry things are rough right now but you are both carrying this cross with grace, wisdom, courage and love. God is indeed walking with you, holding your hands. I am praying for you and will continue to do so. I wish there was more that I could do but I know in my heart that prayer is the best thing anyone can do. God bless you both and your families...including sweet Oliver.