Doctors Called It Constipation-It Was Kidney Cancer! - Sonia | Kidney Cancer | The Patient Story

[@Ceerads]

You are one likable person! I love your speed and vitality! I hope your mother responds very well to her treatment, and I hope you never again have cancer of any type.

[@SoniainCyber]

I don't know why my reply isn't showing - but really appreciate this heartfelt and meaningful message! Maybe it just needs to be approved first. Hopefully it posts asap! :)

[@Ceerads]

@ Thank you so much!

[@megb9700]

Watching your loved ones suffer is waaayyy harder that suffering yourself, any day! God bless your fabulous family ❤!

[@SoniainCyber]

Thank you so much for your kind words and comment! I agree - waaaay harder to watch my mom fighting this cancer and being utterly helpless other than bringing the positive vibes which DO make a difference. I mentioned that somewhere (maybe in her interview posting next month) - but a positive attitude goes a LONG way. Again, thank you. Big hug!

[@lauraneddieable]

Wow! God bless your soul and spirit. Prayers for complete healing!🙏

[@SoniainCyber]

Really appreciate your thoughtful and kind words. Thank you!

[@debbieschultz106]

Great attitude 👏 hope you will never get cancer again. Doctors don't know everything, and everyone is different.

[@gdiup9241]

Yup that why they call it practicing medicine

[@CSIme]

Nope, most don't like using reasoning. They need to learn to think beyond the classroom and books and treat each patient individually. Cases like this helps though because now the doctor will think about her when someone else comes in pleading.

[@anniesimone]

​@@CSImeAlthough I do understand what you mean, I think it's less lacking "reasoning", in terms of finding out a patients diagnosis, but sadly, more of a money issue.

[@SoniainCyber]

Agreed. I just posted an update above - I did have two small lesions we're further investigating on this second annual scan I just had - but fingers crossed they'll be benign! Either way, I'll face whatever's ahead head-on. Thank you!!

[@gdiup9241]

@ 🤞

[@annmarie1689]

Best of health too you and your mom. I wish you could keep us updated you are very inspirational. I am also a survivor, March is 2 years post surgery.

[@SoniainCyber]

Thank you so much my fellow survivor! Happy to see you here! I will provide more cancer content and updates on my YT channel (@soniaincyber - the one I'm posting from) in the next year - just starting here. But I have lots of videos from my actual journey and many more planned for update purposes and ongoing cancer content for my mom's journey and mine!🧡

[@frankieaddams3937]

You are so upbeat I feel God will bless you with a healthy recovery!

[@alphaomega1351]

Magical wishes ✨️ to imaginary characters won't help. She's in good 👍 hands ✋🏻 with her highly trained real physicians. 🤓

[@SoniainCyber]

Thank you so much! I try my best to stay upbeat no matter what I'm facing. :)

[@salvatoreemma]

You’re so adorable when you crack yourself up 😅. You look fantastic pre and post. Hope you’re doing great today. 💥🥊

[@SoniainCyber]

Thank you so much! You're making me blush!😃 I am doing great for the most part - in the process of evaluating some things with this second annual scan, but fingers crossed it's nothing serious. I'll provide updates and more cancer content on my YT channel (the one I'm posting from here). Big hug!!!

[@lakshmimuralidharan8294]

You are a true inspiration for whoever wants to heal! My prayers and blessings for your healthy life!

[@SoniainCyber]

Thank you for your kind words and message! That means a lot!😊

[@anglophils645]

Excellent story, I wish you all the best.

[@SoniainCyber]

Thank you so much! That means a lot.

[@Tracymcgrath-p3e]

You look gorgeous 🫶🏻🙏🙏🙏 Stay healthy and happy!!!

[@SoniainCyber]

Thank you so much! You flatter me. 😃

[@tammybrewington490]

Love your positive attitude. It makes a difference. ❤

[@SoniainCyber]

It absolutely does! It's one of the top tips I share with others - your mindset and attitude can make all the difference. Thank you!!🧡

[@ClarkRichmond-z2d]

Great video. INspirational.

[@SoniainCyber]

Thank you so much for watching!❤

[@candyvigil550]

You're actually smiling and upbeat. All that you went through was beyond unacceptable when you were trying to find out what was going on with you. Unfortunately, we hear that too often in our healthcare system. I really have lost faith in our doctors. I know there are good ones out there, but I haven't found one yet. You have done so well in spite of everything you've gone through.

[@SoniainCyber]

Thank you so much! I try really hard to stay upbeat no matter what life throws at me. It's carried me through so much adversity and difficulty. I'm starting to post more on YT (this channel I'm posting from) and will focus on some of those things there. Our healthcare system can definitely be a huge disappointment and failure, but there are also some really great physicians out there - my urology oncologist was amazing at Duke, and my PCP is fantastic - I had to advocate for myself to find them, though. I hope you find one soon too!😍

[@agingsisterhood]

When I’m really concerned, I find that I act “as if” I’m fine, I’ll even put on makeup and a smile so I’m usually not taken seriously. I’m one of 23 siblings so it’s what was expected growing up and an ensuing coping mechanism. I’ve done this dog and pony show while having a non union fractured femur, a broken neck and an abscess around my esophagus after a puncture that was done during an ACDF. At least I know this about me now and can actually say to a white coat, “this is my coping mechanism and this is what was going on in the past even though I presented and looked ok”. I’m glad you spoke up girl and had someone to speak up for you. We should ALL have an advocate and know it’s important to speak up and ask questions. A Positive outlook/fake it till you make it, isn’t always your friend in our healthcare system. I’m grateful to be here and yes, living for the day like it’s your last is great advice. This isn’t a dress rehearsal!

[@SoniainCyber]

Omg yes! Thank you so much for this very personal, heartfelt, and meaningful message! Sharing so much about your own experience is amazing of you, because you never know who needs to see or hear it. You've been through so much - what a testimony!! I'm happy to still see you here too. Thank you for using your voice and personal story to help further inspire others and watching my story too. Life absolutely isn't a dress rehearsal, though some people who've been lucky enough to not experience many heartbreaks or challenges, still haven't realized that. I try hard to drive more awareness to that fact and inspire others to start living for NOW. Big hug sister!!:)🥰

[@agingsisterhood]

@ right back atcha! Sending lots of positive energy and love your way. Hugs and thank you for your response. Grateful for you. Keep being your awesome self!🦋

[@Pakalani03]

Sonia, you're incredible. You should do some TED talks; you're so inspirational. BTW, you cannot be sued or have rude talks from credit card jerks for anything medical. Pay what you can and, as my Dad always said, "Pay yourself before you pay anyone else." You need money with which to live and to love life. Your Mom looks so cool. Stay well and safe.

[@SoniainCyber]

I've definitely thought about it! Thank you for reminding me to look into it again. For now, I'm focusing on bringing more content here on YT - this channel I'm posting from. Thank you for your kind words about me and mom. She's quite the fighter too - her story will go live next month. 😄

[@elizabethdumas4147]

That haircut is adorable on you. Prayers for healing and comfort for you and your Mom.

[@bww1267]

One of those robotic arms tore up a bunch of stuff in my uncle's chest during a surgery. I would be reluctant to undergo any robotic surgery. I am so glad your bowel injury wasn't permanent.

[@candi4202]

I got a punctured uterus from one

[@roseflower4702]

The robot never is in control. Your uncle's injuries were a direct result of surgeon error. I have been working as a RNFA since 2012 and have assisted on hundreds of robotic cases.

[@SoniainCyber]

I was glad too! I'm sorry to hear about your uncle - hope he is doing ok despite that too. Appreciate your comment! :)

[@SoniainCyber]

@@candi4202 I'm sorry to hear that! Hope you're doing better now.

[@candi4202]

@@SoniainCyber thank you. I am, I had to have a hysterectomy after that. But I was getting my tubes tied when the accident happened. So I was ok with it

[@SulimanTl]

You are awesome please stay positive .. may your life always be full of joy❤

[@charlesmcglinchy1169]

You are a beautiful soul may God bless you 🙏

[@SoniainCyber]

Thank you so much! You warmed my heart with this comment.🧡

[@candi4202]

Man, I'm going thru this right now! I know something is wrong. And they can't find it. I've seen so many drs

[@SoniainCyber]

Don't give up. Keep pushing and advocating for yourself. It can get exhausting, take breaks when you need to, then keep moving forward.💯

[@candi4202]

@SoniainCyber oh I absolutely will not give up. I have sought out a motility specialist to figure out what is going on inside my bowels. Which they say now,a part of isn't working! But acted like it wasn't a big deal. I will never stop fighting for answers! I have way too many issues for it to be just nothing

[@SoniainCyber]

@@candi4202 Heck yes! That's the right attitude. And I hope you get all of your answers sooner than later!!

[@candi4202]

@@SoniainCyber me too friend, me too. Thank you for the well wishes. I pray you live long, purpose filled and thrive 🙏

[@AM-nm4oh]

I hope you made complaints to the medical board on EVERY DOCTOR WHO MISSED THIS.

[@SoniainCyber]

I did not. I'm grateful I'm here and I've chosen just to move forward with my life.🥰

[@laurawilliams5363]

Ports are great. I have infusions monthly for my Scleroderma and what a difference

[@SoniainCyber]

Neither my mom and I have needed one, but definitely know it's an option if things get worse or more difficult for either of us. I'm happy to hear your port is working great for you!!🧡

[@lizmegginson1614]

Glad to see you are doing well. My husband was diagnosed with Renal Cell Carcinoma at 56 and my daughter at 18. He lived for 6 years and she for 6 months. They died within a week of eachother, as did several of my neighbours. It was an area cancer, caused by Radon gas in the soil. I am in S Africa, but my greatest support came from a kidney online support group in the USA, run by a wonderful lady called Robin Marti nez.

[@naomisgram1]

😢

[@SoniainCyber]

Oh my goodness! I am so sorry to hear this. What stage were your husband and daughter? You're an amazing person to still be here sharing about it and I'm glad you had support from the online USA-based group. That could be helpful for others too - so thank you for posting that here! I'm so sorry for your losses - and hope you had a ton of great memories that bring you at least some comfort now.😥

[@JenniferJulie-q4q]

My sister has stage 4 Breast cancer as diagnosis with mets to lymph nodes, diabetes and later developed a rare form call Medullary thyroid cancer,she have just 2 years to live and she never been this scared to die, she just 37, i cry everyday wishing for a miracle to happen. i don't know why I'm saying this here. put me in your prayers.

[@GrantJacobs-vt4zn]

im really sorry. i've was in such situation 15 months ago. i had just 2 months to live till a friend told me about a healer who helped me. She cured me, I don't know how she did it. but i owe her my life. she's the reason i'm alive today.

[@JenniferJulie-q4q]

That's wonderful, how do i get in touch with the healer?

[@GrantJacobs-vt4zn]

Her name is Prophetess Regina Kuma,and she is a great healer who can heal you. you can look her name up online and you will find all you need.

[@JenniferJulie-q4q]

Thank you for this valuable information, i just looked her up now online. impressive

[@anniesimone]

​@GrantJacobs-vt4znI find your reply horrible. Giving a sad, desperate person, whom's sister is terminal ill, false hope that a healer could make the illness go away. It is nothing but cruel doing so. There aren't any healers that could cure terminal cancer. If you got well, you were never terminal ill as you claim, and that makes yr comment even worse.

[@chimariich3278]

Woaw. Now i know that someone with a high spirit dosen't just get dampened no matter what they face. Always had a cousin who'd be happy and chatty in every situation! Even when its evident things are going wrong and it kept me wondering. Lol. Im the worrying type though

[@SoniainCyber]

You're absolutely correct. I always tell people "try to live life and fully and happily as possible, no matter your circumstance". Positivity can carry you a long way, even when things seem hopeless. I appreciate your thoughtful comment and sounds like your cousin and I were/are kindred spirits!!🧡

[@jacquelynallen488]

Did the fatigue go away after tumor removal?

[@SoniainCyber]

It did! It was like night and day.

[@cynthiaisenberg1029]

This is exactly me with the high energy! I've always been an upbeat person to the point I had one doctor say you are a very stoic person. I still have this issue going to the doctor.

[@SoniainCyber]

Yes, it can definitely hinder proper diagnosis or attention. But insist when you have to. Advocate for yourself loudly and clearly. Don't quit. If you know something is wrong, don't stop until you get the help you deserve.💯

[@lanagrahamntx]

What an awful complicated mess that your Drs made of your initial surgery 🥴 I'm so sorry 🥺

[@SoniainCyber]

It was definitely complicated and complex - but we made it here. I'd like to think it just made me stronger and more resilient. Thank you!!!🥰

[@joelleaittama1416]

❤

[@SoniainCyber]

🧡

[@FlockingNerds]

Ridiculous…took so long to get a picture what that hell …I had the same thing I basically had to beg them …so stupid

[@SoniainCyber]

It was definitely a challenging process and I do hope others don’t have to endure the same, but even if they do, I hope hearing stories like mine help them persevere no matter what! And I hope you’re doing well despite your challenges too!😊

[@roseflower4702]

I can gaurantee you that your thermal injury was caused by the surgeon. The robot arms and cautery are directly controlled by them. I have helped start a robotic program and have been assisting on both general and gynecologic surgeries since 2012 as an RNFA. This was a surgeon error, even though your operative report will never say exactly what happened. He/she screwed up.

[@SoniainCyber]

I know it was, but my surgeon is a fantastic person - human first. For that reason and me signing a release that included this as a possible risk, plus me making a full recovery, I decided not pursue legal action. I feel ok about that decision now, just as I did then.

[@roseflower4702]

@ Good for you. Sounds like you’ve made peace with the incident and I’m sure your surgeon will be much more mindful of the location of her instruments.

[@ottocarmanjones7143]

Good on you for fighting for yourself! Cant believe what Americans have to go through to get help. Richest country in the history of humanity and the shittyist health care system ever created. I can get a free CT for mild abdominal pain in Australia with the results in 3 days.

[@SoniainCyber]

I know, it's really disheartening. I grew up in Germany so I'm used to the same medical access like you have in Australia. Coming to the United States was a huge adjustment. It's very difficult to navigate and we lose people every day due to lack of proper health coverage or care.😥

[@AM-nm4oh]

Didn't your doctors do a PET or CAT scan??

[@SoniainCyber]

Yes, I had several CAT scans following the initial one I had to fight for with my gastro's office.

[@elisamartinez3881]

Was the energy part have anything to do with anemia ??? Why is fatigue linked to your cancer ?? That's also weight gain issue and thyroid

[@SoniainCyber]

Yes, also nutritional depletion. It varies person to person. There's a few ways kidney cancer (or really any cancer) can lead to fatigue. My thyroid issues were present since my early 20s and I was medicated for it, and my weight had also been there for most of my 30s (I had PCOS too) - so I knew this fatigue was "new" fatigue - it was also a lot more severe than any I had experienced related to weight or thyroid problems. Cancer fatigue is like a whole different league of tired or exhausted.

[@elisamartinez3881]

@SoniainCyber thankyou for explaining that, while you didn't have to I appreciate it. I hear in a lot of cancer stories if not all of them that fatigue is usually a really big symptom, and sometimes it's not directly linked to anemia. I'm always curious to know if fatigue is directly linked to cancer and why. Very interesting.

[@SoniainCyber]

@@elisamartinez3881 No problem at all love!! :)