What Chronic Fatigue Syndrome Is Really like

[@graemesmith8334]

Oh Toby, that's exactly how it is, nobody knows unless they have been through it. I wish there was a pill!

[@CFSHealth]

+Graeme Smith You are the pill my friend Graeme. Don't give up!

[@KarenUrOl]

I reallyreallyreally needed to hear this, some honesty about how fucking hard this actually is. I notice I easily become fed up on all the positive, cause I feel like i'm suppressing how frustrated and sad I actually am. I need to feel those feelings too, cause it's so easy to feel like it's a fake happiness. Thank you, Toby!

[@felisebatchelor6197]

Toby…. I love your honesty and truthful presentation of CFS. Yes even talking on the phone is exhausting. Thankyou for being here with your advice and I’m so glad for you that you’re in recovery from CFS. I feel there is some hope knowing I can watch your videos.

[@hakantacrafter813]

brilliant video. its really important for people to know what cfs actually is like. i just wish more people watched this and took notice of it only 7,000 views 247 likes and 49 comments in 4 years. this kind of video where people describe how it actually feels and how its different from regular peoples tiredness and fed up low days is really important so others can be understanding when we need an off day or when we need them to be patient with us. sometimes just the thought of trying to describe to someone who wants something from you why you cant do it on that exact day or within that time is so exhausting that you just push yourself to do it even though you know you will get really ill. if anyone reading this does not have cfs trying to describe to someone else something there is no words for takes so much talking and description that its really daunting so if you know anyone with cfs please dont push them to explain just give them more time and realise that even the tiniest thing to you like talking or going to the bathroom is extremely exhausting for them, sometimes we just can't talk. i have avoided going out to my bin just because the thought of a neighbour talking to me was too daunting and then this avoiding going out leads to anxiety and makes you more ill. its just so overwhelming.

[@taddavis5347]

Hi Toby. I was an active person(athletic, artistic, go getter at work) who now has CFS. The stereotypes are unfortunately true. The paralysis on multiple levels is complex and overwhelming. I can completely relate to the experiences that you have described. Like most of us, I want to do more than cope and survive. I appreciate your honesty and validation. Seeing you on the other side lends hope. Thank you!

[@suejohn311]

This is very powerful! Thank you for sharing Toby.

[@avalon7024]

Thank you so much! As I look through the video's I am so surprised at how many young people are getting Fibro/CFS. Me, I was 45 had raised 2 kids on my own, worked as a nurse ect. Then one day in Aug. 2005 I was working psychiatric nursing and was hurt by a patient who broke my neck, shoulder however it was not diagnosed until 3 yrs later due to workman's comp. in America refusing to say I had been hurt. IAnd also at that time I was living with an abusive man. Now mind you 5 yrs before that, my doc. told me I was a time bomb ticking due to the amount of stress atItime I had been taking on, did I listen? Of course not at that point I had 5 step kids and my own 2 kids in their teens, working, and doing everything. How could I stop? I actually see the pain in your eyes as you talk of this time in your life...I am currently in a horrible flare and can believe or not hardly type do to the pain in hands. However, you know! Everyone else I know including my doctor's quite honestly don't care. They do at this point help with meds. Yes, I have tried Everything! I get concerned because to the doctor everything is Fibro. I mean what if it isn't. What if I actually have a medical problem on that occasion. I see a horrible problem here because not everything will be Fibromyalgia someday. I am 56. Quite honestly after this entire experience I don't like doctors. They scare me. As they should. Decrease Stress, Acceptance, and being very gentle with myself. In America, that is considered lazy. Thank you for the hope that as I know this flare up will not last forever because when I am in it the tendency is to fear the worst.

[@samsattick]

You are fricking awesome. This made me cry. I've been to the places you've described in such a heart felt way - both negatives and positives - and this is what we need - conversations like this from someone who's come through the other side. You're doing such important work, thank you!

[@emmablatchly1]

Thanks so much for your honesty. I had a little cry watching this but it was a happy cry because I know I can do this X

[@tjodogify]

more of us need to speak up and demand research funding for treatment..this is NO WAY to live..I cannot even pick up my grandchild and I'm living in a nightmare without any relief, EVER...thank you for speaking up, even if it took u out of your comfort zone..

[@natashawaters4855]

Thank you so much for sharing this! I think a huge amount of frustration from chronic illness is due to lack of understanding so thanks for shedding a light on just how tough cfs is :)

[@TicePatricia]

Thanks...good balance between reality and encouragement

[@CFSHealth]

+Patricia Tice Thanks!

[@blessedrochelle]

OMG- I'm so glad I found your videos it all makes so much sense now.... I have been trying so hard to figure out what's going on with me along with years of chronic stress, some pain and fatigue my whole life. I've pushed though a lot of my life and I've had a pretty good life but I always cycled: crash and burn and it takes years to come back around. Thank you so much.

[@TheCezza79]

Thank you for this ..I've only been diagnosed in December 2017 and I don't like talking about it but it's reassuring to hear your own words and it mirrors my own experience and I don't feel as alone with it. I've had to go back to work sooner than my gp wanted me to cos of the financial impact but I'm determined to manage this condition best way I can.

[@kerry-annebubb4445]

Thank you Toby, I needed to hear these words....had a few setbacks lately just when I thought I may be slowly getting somewhere...then Bam ! Back to the start can't leave the house, started researching for help and I found your advise, I'll keep trying

[@rachelculbert7948]

Thanks for this Toby. I could see how deeply and emotionally this illness has affected your life. If you can go forward and begin to improve, you don't even want to think about the lowest points. I just found your channel today. This is the first video that I felt myself finally connect with someone at a soul level. I am in Ireland and frankly we are about 20 years behind most developed countries. My GP doesn't even believe cfs exists. I started with Guillain-Barre Syndrome in 1994 when my sons were 4 and 5. I suffered for years with Post Viral Fatigue and pain. It has been given many names over the years. Finally in 2012, after a serious set back and three weeks in hospital, I was diagnosed by a neurologist with cfs. I will be 63 in a few days. I'm an acupuncturist by profession, so I am interested as far as possible with nutrition and supplements for help. I have subscribed and hit the bell for every video you put up. Thank you for your selflessness in helping all people who suffer.

[@sassi7966]

How are you now? I've had it for 9 years, now just got long covid too. Freaking out a bit..

[@maiqueashworth]

Thank you very much for sharing this. Frankly I'm losing hope and it helps to hear that you overcame it. Most stories I hear are people never properly recovering.

[@sassi7966]

How are u now x I've had it 9 years and I know I need to make changes but I don't have the energy 😕

[@sandrawheeler1521]

You have described this crap illness very acurately..I can see how much reliving this time when your life was changed forever is bringing back such bad memories. Choice for sucess is such a positive message. And in my mind the best way to recover...And not get stuck in victim mode. Thank you for sharing your experience.To help others. Toby you are doing amazing job. Inspiring others.xxx

[@julielee6144]

Watching your face as you remembered...l saw in your eyes the same solemn recognition that l felt of the dark places that CFS takes us to.One particular night during the peak of my illness l reached a point of such severe sickness that l consciously had to decide whether to stay in this world or allow myself to slip away.l chose to stay.Life has blessed me with the best it has to offer and l am forever mindful of how extraordinary everyday living really is.Thank you Toby for this video..l also remember.

[@rebeccafoster2623]

So awesome to hear you are well now!

[@thatnorachick]

this made me cry. when u said what is the one thing that is keeping u here. My children. I feel so sick and weak that i literally feel like i am dying and it would be easier to just end it. but my children need me. im a single mom and im going through hell with chronic fatigue. i am bedridden and so depressed from the loss of quality of life idk how much more i can take. thank u for ur videos they are a blessing. i really wish i could afford ur program but i cant right now and i just don't know what to do anymore. i believe mine started from black mold exposure.

[@jeannettegrondin7190]

I can relate. I also have fibromyalgia and on a healing journey for the past 3 years. It is a struggle. Sending u positive vibes

[@miikkalehtoaho6215]

Thank you Toby sharing this. Greetings from snowy northern Finland. Body is tired, but after difficult difficult years I have got to give there rest and not panicking over the condition. I see the fear is one very big factor there, have been fearing for my first 36 years. I'm not saying it with bitter. Nope. I'm just feeling how things are possible. Wasn't really realizing it before.

[@nataliepower7464]

You are a beautiful Soul Toby 💜...Thank you...for you have just changed my life and way of thinking at a time when I really felt like just giving up.( I feel quite emotional) Thank you...I appreciate your honesty and how difficult that was for you to share. I appreciate YOU and your kindness... Fantastic to see you looking well! You have given me hope 💜Sending you loving kindness and a heartfelt hug Xx

Thanks for sharing this. I feel like my symptoms have gotten worse since 2015 and people have told me to think positive, not to think about my chronic pain. From my experience I am OK when I am a Human Doing instead of a Human Being. As long as I do what others want me to do, I am interesting. If not because I am exhausted and in pain, I become the invisible person again like a vase that you put back into the closet.

[@sandrawheeler1521]

I am looking forward to life after cfs. And it will happen..xx i will never give up. Then hopefully share my recovery story..xx

[@JulietsMama]

Thank you Toby. I needed to hear this.... I needed this hope tonight.

[@84bravado]

awesome mate.Be wicked to hear the podcast you done with Lynchy.

[@CFSHealth]

+jody schuller It was on SEN radio about a year ago or so :) much love bro!

[@sandrawheeler1521]

Yes focus on the now. Each little steps of progress each day/ week. No matter how small. Its progress. And never give in..xx

[@mariamwangara3786]

Thank you for sharing your. Most of the times people CFS warriors ( yes we are warriors 💪💪💪💪) are told it's in their minds.

[@marileearnold1160]

I so appreciate your truth.thank u for the videos

[@CFSHealth]

+Marilee Arnold I appreciate you!

[@sassi7966]

Thus video is pure gold ✨ 👌 💛 Thankyou so much ❤

[@BradleyFrench]

Great video - Exact same problem here. Nobody can see it so they just assume your are fine. They always say "you look fine"... everyday I'm pretty much laying down in a conference room at work so exhausted.

[@AdrianaRodriguez-sm9oo]

It helped me... I feel sooo lonely, my mother just doesn't get, she just doesn't want to... I really really wish I had cancer instead of cfs cause people do get cancer.

[@jovas14rocks]

+Adriana Rodriguez Oh man i feel you. I had to drop out of school because of this condition. I just wake every day and try to take on my job which i got good at. But i wonder if i'm going to be stuck at that job the rest of my life cause of CFS.

[@ICanThrive]

Great job Toby brilliant share, Inspiring and so honest/heartfelt :)

[@CFSHealth]

+Healthy Body Mind Soul Thank you!

[@annaboyle1381]

Hi Toby - I can't tell you how relieved I was to stumble upon your website - I thought I was going mad but it's patently obvious from your explanations that recovery from CFS is possible (finally, I've just been diagnosed after the doctors seemed to be giving up on me) and it may sound like a cliche, but just hearing and reading what you have to say is so inspiring and has given me so much hope - when I felt hopelessly hopeless! I'll definitely be keeping up with your video clips and website. Thanks so much 😊

[@karinboyle188]

thanks Toby

[@soysir]

Great stuff man, thanks for sharing. Would love to know the Toby story from when you were just getting over CFS 4-5year mark. How you slowly got back to 9 to 5 working living. Any tips or advice that served you well maybe part 2 ;) haha

[@greigsanderson]

Some people say they have good and bad days. I've had CFS for 3 years and I've only ever had bad and really bad days. It's a horrible illness.

[@MarcBraun-tb3vu]

Chronic fatigue is usually a systemic attack but mainly of the brain/ nervous system. It is real and severe. The body is can‘t do repairs and energy supply exchange to its various cells anymore thus the fatigue.

[@paulwhitnall5893]

I needed to share something with a new partner (as I am going through a setback right now) and I remembered how much this video had affected me when I first saw it. I don't mind admitting that, for the second time, I cried all the way through it. As for my partner? Well he hasn't yet watched the video! LOL

[@clarefraser1503]

Nice one, Toby. Sorry, what is the name of Alistair the basketball player? Am interested in looking up his book.

[@CFSHealth]

+Clare Fraser Alyster lynch AFL football player! Good book!

[@torpid3667]

I feel tired and exhausted all day except when I work out in the gym. I have decent strength, can bench two plates at ease. My nutrition is on point . I'm pretty muscular too.. I think I have CFS but exercise somehow suppresses my symptoms.. After workout session, I feel energetic.. I don't know why this happens...

[@pamwhitehead6612]

Hi Toby I have cfs and fibro the bad days are getting worse I'm on nerve pain pills lyric I hope I can recover have been like this 5yrs ..been watching your clips will try to do some of theses things I don't want to give up

[@joannsomers8178]

THANK YOU

[@grahamkeil2253]

Thanks for passing on your wisdom and life experience That video obviously was not easy for you because A. Your a man B. It's personal But ultimately you shared it and helped In Australia it's tragic. If my memory serves me right,,approximately six people a day suicide The majority are men. What a complete waste! What an emotional whirlwind! It's times likes this when you are able to show That there is hope It's tough So bloody tough But at the other end!! More power to your arm and your organisation Toby!

[@CFSHealth]

+Graham Keil Thanks for your support Graham. A man of POWER!

[@maikyb7]

Thank you ❤️

[@realloreal]

Woow, this is reality for me. I just wanna tell that for me my symptoms are still mid. I don't have the swollen glands, the in balance disorders and the disabling fatigue. I also have the hair loss, does anyone have the hair loss?

[@realloreal]

I enjoy listening to him. I love it. "GOD" thank you for Toby Morrison and his strength, that gives is strength. We glorify you Oh Lord and give him more and more vitality so that he can continue your work. In Christ Jesus Amen.

[@petrakozelj1848]

I have cf and adrenals burn out and fibromialgia and ibs d nevropaties anxety.....etc now for more than 3 years. I tried a lot too fix the problem: i get in program on line to balance my hormons....after one year i didnt feel much improvement, and restrictions about diet paleo really make me anxeous. The wors think was that i had weight gain...and i was so skiny i end up in hospital. But they didnt help me a lot, just said i had lactose intolerance, malabsorbtion and past alergies .....after that i was happy they didnt find some cancer or simular , but in other hand still worried how long it will take too get better. After three and a half years, few funerals my loved ones ..many streses i am getting better every day for step by step. I try too stay positive and happy and move every day. Imovine dance , so i dance in my home sometimes dor 5 min other time for 10... And i notice children rase my energy a lot...i had no children, but i feel my sister and cousines children like my own..i wont too say i find out they need me the same like i need them; thank you Toby you inspire us all who are in same position like you were and it give us a drive not to give up....

[@gyaltsenlowa5898]

I also going thru this condition bro..its really hard,,,i can understand u,,,what to do bro..m looking for treatment ,pls help me bro if u have any idea

[@justlead1]

I have a good friend that has suffered with CFS for many years. Using your audience is it possible to gather info from sufferers via IT.? We seem to know the effect but not the cause, there may well be some common ground amongst these people to identify new knowledge on the subject?

[@tamarapalmeirat4486]

✨

[@Trobynski]

Was it caused by vaccine?