The Holy Grail of Chronic Fatigue Syndrome | The CFS Health Podcast (episode 27)

Do you struggle with consistency? In today’s podcast episode, I cried. Not out of sadness but out of gratitude for a heart felt story our general manager Ash shared on the podcast.
We talk about one of the most important topics when it comes to success in recovery and anything in life really. And that is consistency. If you want to be more consistent so you can improve your energy, health and over all life. This is the episode for you! Sit back relax and enjoy.
Here are 4 ways we can help.
1. Join our free community to meet others, be inspired, and get more recovery info - / cfshealthrecoveryhub
2. Watch the newly released past members "Guest Panel" Workshop where they share their top 5 recovery secrets - www.cfshealth.com/guestpanelr...
3. Get our free most popular recovery trainings:
-Find your baseline - Stop pushing and crashing - www.cfshealth.com/baseline
-The 3 stages of recovery and what to do in each one - www.cfshealth.com/the3stages
-The "9 do's and don’ts" PDF - to decrease symptoms and improve energy - www.cfshealth.com/pdf
4. Want help professionally with a step-by-step recovery plan specific to you? Fill out the application form and the team will send you the details - www.cfshealth.com/form

[@CFSHealth]

Thank you all for listening! I’d love for you to share your biggest takeaway from this episode below! PS - For those of you trying to book in a call. If you want help professionally with a step by step recovery plan specific to you? Fill out the application form and the team will send you the details - www.cfshealth.com/form

[@AntonyJS]

Bloody hell Toby. I was having a joint crying session with you 🤣. It’s so true that this seems to affect those of us with huge hearts. I have made such huge progress in the last 4 months. You have been a massive help for me and continue to be. My 3 amazing children are slowly getting their dad back. Their smiles tell me all I need to know as far as how I am doing with my recovery. Thank you ❤

[@CFSHealth]

Glad it's helping!! :)

[@mariamwangara3786]

I am crying too😂😂😂😂

[@juliewillis2988]

Toby Ash, ive been on my own struggling for 30 x yrs, its been so hard, ive tried sooo many things! Im 60 now ,and thank god a few months ago i found you on utube, ive just joined the program , its wonderful to feel not alone anymore. Thank you i have hope, i will do the program, im going to recover ❤. Ive had a good cry watching this, so very happy for that little boy and his family ❤❤❤ i look forward to being me again, for me and my family. I know ive only just begun, but im ready and willing, thankk you for being on utube, thank you all❤ julieXxxx

[@homemakersheart3614]

You can do this!!!

[@suzannax]

Yep, those quick fixes always seem to lead to longer recovery time or make no difference to me. I can't even count what I've tried over the years. I understand the desperation to get better, but have found that acceptance of where I'm at right now and doing what I can to slowly improve, is a better more relaxed approach which keeps me more physically stable. Letting go of time frames and schedules like what I expect to be able to do in 6 months time, just makes it a less stressful place to be, and setbacks easier to handle.

[@IridescentJen]

I've been in the program for the past year and can attest to the massive ripple effect, how far our recovery and personal healing can reach. My elderly parents across the ocean, my best friend and helper here locally with me, we are all growing and healing thanks to what I've learned from Toby and the Awesome Crew. Just from sharing my experience, all the a-ha moments and insights. I'm at the point now, after 9 years of severe illness, that I wouldn't change it for the world. I can't even imagine what amazing lives the kids in the program will have with these tools under their belt.

[@elainemartin9654]

Tears of joy are so much more relaxing and enjoyable than tears of anguish…and struggle…Thankyou so much for another priceless video….There is indeed Hope..

[@Im_Bennythebooman]

This is phenomenal information. I first severely crashed with chronic fatigue 19 years ago when I was 25. Sleeping 16-18 hrs a day. Still tired. Severe brain fog. Had to pause the MS/PhD program I was in. Couldn’t even get up a flight of stairs without sitting for breaks. Traffic lights could confuse me. Really scary. I had some rumblings years before, even as a teen, that my body was being pushed too hard with stress & strain. Never thought I would break that bad though. I chalked it up to adrenal fatigue and some borderline thyroid results. Getting on Synthroid barely helped. Then it didn’t help at all. Took 12 years and many supplements and diet changes that didn’t help very much and really struggling horribly until I realized there was a name for what I was dealing with. CFS (and also POTs) Then took another 5 years of trying to get better with various CFS programs that just didn’t work for me; (a mom with 3 little boys in my care 24/7 and no help). Now they are a bit older and more independent and the pieces have really started to come together in my head as to what exactly is going in my body & brain preventing me from recovering. This video really NAILS the most important thing about recovery which also happens to be a hard thing to do; being super consistent and committed to *slowly* digging out and learning to listen to your body. Learning to take care of yourself. For years/2 decades or more; I ignored or was oblivious to my body asking for a break & Needing to set boundaries. Thank you for sharing all this information. I’ve watched many other of your videos as well. All helpful. I like the concept of “working In” to increase energy before “working out”. CFS is beyond debilitating. Robs nearly all quality of life. I’m starting to feel like the end is in sight for me. And full recovery.

[@merielcamara7324]

This is my first listen to any of your podcasts and I was so touched and moved by your compassion and intimate understanding of the CFS recovery process. Thank you for seeing me!

[@CFSHealth]

Welcome aboard!

[@margaretwhittaker2291]

I was too exhausted to comment yesterday but today I want to say a big thank you to you both. You help me so much when I feel like I am just hanging on by my finger nails! Living alone means one sometimes can not see the wood for the trees, this is where you are worth your weight in gold. God bless

[@CFSHealth]

Sending you a bunch of love!

[@elainemartin9654]

Really like the phrase of self evolution….Never thought of it in that way…and the fork in the road….we must all choose which prong of the fork we will follow…will it be self pity?Going after every quick fix pill?Or will we choose the prong of self improvement, with an open mind….and start doing the deep internal work?And ultimately slowly improve….And thank you also for the tears…..If l would ever talk with Toby , and start crying…l know he will understand…..Thanks so much for everything….

[@jocooper94]

😢❤️ omg I’m crying.. amazing for that child and their family ❤️

[@hakantacrafter813]

i was born with a small windpope so i have had sleep apnoea and cfs my whole life. as a child i would only sleep 2 hours and would wake up choking, i wanted to sleep more and would cry myself to sleep because i just wanted to sleep. the drs said there was nothing wrong with me i did not get my diagnoses until i was over 30 i am now 41. it did make me more observant and considerate i think it is what made me able to feel people. which is not a good thing as I have to mostly stay home as it is exhausting. the main big thing i think i have learnt is it is impossible for others to properly understand what anyone else has been through unless they have been through similar. Only people who have a chronic illness can even begin to understand another with chronic illness. Don't try to get normal people to understand it is a waste of energy. i used to be good at dealing with my cfs i did good at school, went to college twice, worked various jobs i felt tired my whole life and i would get home from work and i could not go out but i did manage to work and do college. then 7 years ago i had a p.e and mini stroke and it hit me for 6 i got muscle atrophy and now i just cannot figure out my limits i have tried so hard to get better. muscle atrophy needs you to exercise to fix muscles but i cannot with the cfs it is really difficult. i have wound up with struggling to even brush my hair at time, even the smallest amount is pushing to hard. i do nothing and i get worse i work i get worse. my stamina is extremely low. what i basically do now is tiny amounts and then rest in between and it is extremely frustrating. and some days i cannot do anything at all. learning limits is the most difficult part to actually do fighting the overwhelming need to push yourself more and the frustration is the hardest part for me. I do strongly suspect that the over workers/achievers are the people that get cfs the most we push ourselves too much and exhaust ourselves just from our thoughts/expectations. ill add this in case it can help anyone else my old way of dealing with this was to work maybe an hour (physical) 3-5 hours mental then rest my new way (now i have muscle atrophy and aphasia on top) is i can do something for 5-15 minutes then i have to rest for between 20 minutes to 3 hours and now talking and mental stuff is more exhausting exhausting so needs just as much rest. its not perfect at all i still feel like i cannot figure out my limits but its what i have figured out so far after 7 years of struggles.

[@sophieann8880]

Recommended you guys to the ME/CFS Northallerton support group North Yorkshire. Many will disregard anything from other than our own support networks but thankfully I took the risk and shared and the admin willingly accepted all information and will put on their website. 🥳

[@CFSHealth]

Thank you for sharing Sophie! :)

[@MsJessyBee]

Whoa!!! Tears 😭 ❤❤❤

[@kendraweech4253]

Thank you Ash and Tobey. I was definitely crying along side with you. So grateful to hear all the wins. I think this is where I am at ….I am struggling with consistency over and intensity. It’s definitely been a program I’ve run most of my life… Which is how I got here in the first place. I have learned how to slow down quite a bit and yet there’s so much more for me to learn on the side. This one hit me right in the feels. 🙏💕Thaank you 30:35

[@catherinecunniff506]

This was an awesome podcast. Thank you!

[@CFSHealth]

Glad you enjoyed it!

[@johndolan6439]

This is the most helpful advice and support I've ever encountered, many thanks

[@Jane-pg8jv]

Thank you so much Toby for being so open and give this beautiful and helpfully content ❤💖💜

[@CFSHealth]

You're so welcome!

[@jacqueline3732]

Thank you, I was crying along 😅❤️

[@viongreen8263]

Great Session. THANK YOU:)

[@CFSHealth]

You are so welcome

[@abigaylemontgomery7715]

Brilliantly said Toby - "I basically got the best thing that you could never buy which was self-responsibility". Yep, I'd say the same for myself.

[@alexandermeyer6647]

Thanks for great inspiration!

[@tamarapalmeirat4486]

✨

[@sukule7640]

❤

[@DonNicolson]

Can someone enlighten me please I just searched for a cfs podcast and I’m watching it now is there a detailed video of the plan and does it cost anything I’m poor because I’ve lived with cfs from 18 possibly younger and I’m 45 now and just got diagnosed maybe 2 years ago and I’ve been told there’s no help whatsoever so I’ve been accepting my lot I’m used to it anyway but I’d like to be a better dad and a better husband.

[@joannabirch1152]

I just completed the 15 min chat request form, then it sent me to another page to book a slot with Erin. From there I wasn't able to do anything else. 🤷‍♀️ Does that mean there are no more slots available? Thanks.

[@CFSHealth]

Hey Joanna! Apologies for that! Please fill out our new application form and the team will send you the details - www.cfshealth.com/form

[@joannabirch1152]

@CFS Health Thank you. I have completed the form from that link above. Hope to hear from someone soon. 🙂

[@DonNicolson]

Can someone enlighten me please I just searched for a cfs podcast and I’m watching it now is there a detailed video of the plan and does it cost anything I’m poor because I’ve lived with cfs from 18 possibly younger and I’m 45 now and just got diagnosed maybe 2 years ago and I’ve been told there’s no help whatsoever so I’ve been accepting my lot I’m used to it anyway but I’d like to be a better dad and a better husband.

[@joannabirch1152]

@DonNicolson I'll be honest.... the plan IS very expensive. Like £500 a month! They say in the info pack that there is no guarantee of you recovering. I personally felt like it's too much money to take on just a chance! Hope this helps you Don.

[@DonNicolson]

@@joannabirch1152 thanks for getting back to me and absolutely for me at least it’s too much money

[@penelopesands3453]

That thing you mention that Lauren did of focussing on the one part of her body that didn't hurt is actually well known in somatic psychotherapy (that she obviously discovered spontaneously by herself. You can always fnd some part of your bodymind that feels neutral or even good. If you do a scan and find it and put your attention there, it creates a healing response and that is always accessible.

[@trishvanroggen2893]

Rome wasn’t built in a day = bit by bit becomes a lot But Rome burned down = push… crash