What your HANDS say about your HEALTH: Doctor Explains

[@ViolinMD]

What do your NAILS say about your health? kzbin.info/www/bejne/kImvfqGIqdedq7c Is KNUCKLE CRACKING good or bad? kzbin.info/www/bejne/a4CXoouHn5Kib9E

[@shorty38]

What about traumatic arthritis in the fingers?

[@catsnguitars]

I’d be interested in a video about what your face says about your health and include rosacea. A lot of people have it, and I’m curious what you think of it as a rheumatologist. Thanks!

[@marielg9143]

good stuff thank you

[@amygreenberg7027]

Please address fibromyalgia and best treatment for it. Thanks

[@ADB-zf5zr]

As you only have one ring on your finger, I assume that I still have some small chance... Which is your closest international airport.?

[@kathyn1343]

As someone with multiple types of arthritis, who has had not so positive interactions with rheumatologists, you must be such a ray of sunshine for your patients. Never lose your passion and kindness, it is sorely lacking in medicine and in rheumatology in particular.

[@lukewalker1051]

change your diet to Keto...no carbs. Intermittently fast. Move into longer fasting sessions to reset your immune system. Google: Autophagy. Carbs = sugar = inflammation. The American diet cripples and kills people.

[@kwimms]

It's an act to draw you in... arthritis is caused by eating a crap diet. She won't tell you that.

[@bradleybarnett9545]

Ignore the pain-shamer. Arthritis has many causes in millions of different cases. I hope you find better health professionals to help.

[@emmyo6678]

Agreed.

[@emmyo6678]

@@kwimmsit was not the topic and there are other reasons. Be nice.

[@kim9477]

I am a nurse and I LOVE your videos! They are educational, engaging, informative, and creative. You have a gift!

[@howetuck1627]

As card carrying hypochondriac, I am somewhat disappointed that I have none of those issues you mentioned 😂

[@beverlyhayshouston2770]

🤣🤣🤣

[@natt5909]

😅

[@M_SC]

😂

[@Judykag]

😂

[@daisychain914]

Yep.. nothing to panic about here.. move along 😂

[@dm4859]

My neurologist wrote a referral letter to an ENT doctor. The ENT doctor casually mentions he notes I have Ehler Danlos. My college roommate and best friend had Ehler Danlos, so I know what it is. I'm like, "No, I don’t.. why do you say that?" He shows me the letter from the neurologist. Turns out he was talking about my excessive daytime somnolence (EDS). Having educated, trained, edited and transcribed myself for 23 years, I recognized the error that both the neurologist and his transcriptionist made. If the dictator doesn't expand the word he is expressing as an acronym, and there is no absolute reference to the actual word(s) in the report, it is up to the transcriptionist to clarify and spell the words out completely with the acronym in parentheses following it. Then the acronym can be used throughout the rest of the report. This, among many errors between dictator and transcriptionist, can cause medical errors. Just a boring comment, but I have seen way too many errors on my own medical records, and edited many that were wrong. It's a complicated relationship that creates an accurate medical report.

[@bianchaesson1441]

You are absolutely right there!!

[@Sean-h4l]

Excellent point, and well made!

[@laperryrn]

You are so correct in pointing out this one-of many-way(s) a pt’s medical record can become beleaguered with errors.

[@arlettasloan6453]

Not boring. Informative. One of the problems people have is that an acronym for something social or psychological or medical or a descriptive of it can mean something completely else in any of the rest of them and something else again if in court. AKA: I have a deviant thinking pattern. Psychologically, that just means different from the usual. In court they assume it means perversion and probably dangerous. Also, thinking pattern is vastly different from thinking. As in, a deviant thinking pattern might mean you can see both sides of every situation- and I usually do- as opposed to deviant thinking, such as that it is okay to take people out in the desert and bury them alive if they fail to return your items as soon as promised. So it is very important that anything said in a report, acronym or description, is accompanied by an explanation of meaning.

[@arlettasloan6453]

Also, EDS is sometimes Erectile Dysfunction Syndrome.

[@sheagoff6009]

Thank you for spreading a little awareness of Ehlers Danlos Syndrome. So many people don’t know about it and it’s really frustrating as a person who has the hyper mobility type.

[@abigailbaker8817]

Yes I totally agree, I have hypermobile eds and it took 10 years to get diagnosed with countless dislocations, I also have marfans syndrome that was ignored because I did not have a mitral valve abnomaly.

[@Jess-3]

My auntie has Ehlers Danilo’s, it’s not nice at all and I agree that more awareness needs to be spread. All her joints came out a lot. Her shoulders were always dislocating. I had to go take her to a&e once when I visited with my mum, you could see the difference and it’s crazy how one minute all was okay and then had to get in the car and peg it. She now has two shoulder replacements and no issues with that since luckily but it was so worrying watching her in pain even now so I have sympathy from a different point of view but I see it all the time and have done all my life. ❤

[@bingcherry2008]

Yes, agreed! I was FINALLY diagnosed with h-EDS at age 58 after many surgeries for joint problems. Even my rheumatologist dismissed my symptoms, so it’s a huge relief to see this discussed. Siobhan, now that you’re finished with your residency, can you play us a song on your violin every now and then?

[@vince1229]

Dr Dawn Leighton, has suffered from Ehlers Danlos Syndrome, her whole life-This has meant waking up ever day with multiple joints dislocated and in pain! That all went away after she adopted a carnivore diet.

[@laratheplanespotter]

🎉🎉🎉🎉 I have it! C type!

[@Dicyroller]

I have RA and I feel like I have learned more about it form you than form almost 20 years of treatment. Thank you.

[@tracyriordan7011]

Me too! ( :

[@mimibvo]

I have EDS! It’s wonderful that as a Dr. You have knowledge of it. It’s a 50-50 chance a Dr. In the USA will know about EDS.

[@froesfamily335]

For years I suffered with pain and disability and all the doctors just said, it’s not RA. I finally got into a specialist and he diagnosed me in minutes. Psoriatic arthritis. I’ve been treated for the past couple years, use nothing for pain as I don’t have any more serious plain and I got my like back!

[@cherisebeekman]

I love your passion for what you do! It doesn’t matter what a person’s profession, if they are passionate and fascinated by it, the excitement is contagious and it’s really a beautiful thing to see.

[@Lemonsmeringue]

You are the type of Dr. That everyone needs. You obviously love what you do and educating others. Thank you. I can share these gems 💎 with my family. :)

[@susanbrennan5511]

I have Raynaud syndrome. I lived in the northeast and it used to happen all the time. I’ve found cashmere lined leather gloves were my best defense. I’ve moved south 2 years ago but sometimes it still happens when it’s cold and I am taking a delivery (I’m an operations supervisor)and it takes a while to come back to normal especially when I can’t get to warm water. I sometimes shock people with my corpse fingers. And it does hurt.

[@leannecomerford8261]

Me too. I live in Northern Ontario, and have electric handwaemers that fit into my alpaca wool mitts. The pain that follows the burning as the circulation resumes is debilitating at times

[@lavenderkisses9461]

Yes-my zombie fingers 😂 They don’t like to come back to life-definitely hurts

[@kar460]

Does it happen when your in the a/c?

[@susanbrennan5511]

No air conditioning isn’t cold enough. It has to be really really cold. I depend on my gloves.

[@fredhartman1325]

I have Reynaud's every day. Yes, air conditioning is a problem. It could be 100degrees outside and I will have it happen in a place with really cold air conditioning.

[@lukewalker1051]

About 40 years ago, in my late twenties I lost one of my best friends to Marfan's syndrome. His aorta blew out. I went to visit him shortly thereafter...he didn't die initially but suffered horribly and then died a couple of months later after being badly debilitated. He had a master's degree, newly married and had his whole life in front of him but was born in the wrong time prior to genetic screening. We are still living in the stone age of medicine 40 years later with countless medical misdiagnoses and inability to cure maladies like tinnitus as just an example. I remember his body shape which was kind of like gumby. His hands were like rubber bands...and fingers were hyper flexible which is the polar opposite of my rigid digits which hardly bend at all. I remember at this funeral, the look on his parent's face as they looked around the room and thought, why wasn't it one of us who came to celebrate his short life and not their special son who was such a good person. It could have been other than for fate.

[@Atixtasy]

I empathise with you because a good friend of mine had asked his SO to marry him which, then, they were engaged for a few years, and then he was diagnosed with cancer. They sped the timing of the ceremony because the were both catholic and anyone who knows those weddings will tell you, theyre LONG, not to mention difficult to schedule at a time they could both do it with their jobs. My buddy....his cancer became stage 4 months before their wedding day. They asked their jobs to be able to move it up because they just wanted to be married when he passed. Both jobs accepted! so it was moved up I believe 3 months. I was to attend this wedding, yet....I got the horrible news that he had died literally the DAY BEFORE his wedding. .....not a day goes by where I dont feel the exact same way "WHY ME!? WHY DO I GET TO LIVE!?" It is hard, but with the right people, we both can learn to reminisce rather than be debilitated by it. :) feel free to PM me. :)

[@c.m.303]

@@Atixtasy Survivor remorse is a terrible burden to bare. I beg you to try and find a different way to reframe those thoughts. You are here because you are purposefully here and you will be off to the next world when it is your time, not sooner, not later. This life is so short...live each moment being the best you that you can be. There will be hard times, and great times...it is all part of the process. I find at my saddest and hardest times in life...I learn the most and can use those skills to help others. And turning attention to helping others is really what makes the most difference and brings a ton of value. God Bless.

[@Sean-h4l]

​@@c.m.303Thank you; what you have said is so very very true!

[@c.m.303]

@@Sean-h4l Thanks for your kind reply!

[@Maggie.can.hug.every.cat.]

I love seeing people so passionate about their jobs. You are clearly very passionate about all medicine but the way you lit up when talking about joint inflammation was just so beautiful. I honestly could watch or listen to anyone talk for hours about anything when they have that passion. I just love to see it.

[@KarrieHiggins]

I have EDS that has caused an aortic aneurysm. Thank you for mentioning it! Doctors so often know nothing about it at all or they think it is *only* "loose joints" (oof, I wish).

[@purpleheart3431]

I’ve been recently diagnosed with EDS after two years of symptoms (joint issues, migraines, POTS, gi dysmotility, and a condition called SMAS) and they did lots of tests on my hands! So facinating!

[@NZKiwi87]

Hullo, welcome fellow zebra 🦓 👋 I have EDS too

[@joylox]

I'm similar. I have arachnodactyly, wider joints than the rest of my finger (think of a ring being loose, but not falling off because the knuckle is too big, it made it hard to size, and other joints are similar), was diagnosed with POTS, hypermobility, hereditary gluten intolerance, multiple chemical sensitivity, and now I'm waiting for testing for EDS, reynaud's, and a type of pollen allergy that makes certain fruit hurt my mouth. I've been complaining for 11 years now about migraines and pain, 8 years about fatigue and dizziness, and I've been on the wait list for a connective specialist for over a year. It sure is a pain waiting, and all I can say is I'm glad I can afford to go to physio as often as I do. I subluxed a rib because I sneezed too hard, and that sure makes it hard to breathe.

[@brinagotsued]

I complained about issues for more than 25 years before I was diagnosed, the doctors kept telling me that I was exaggerating, making things up or the symptoms I were describing didn't exist. Or that I was too young to have health issues 🙄

[@nicholascrow8133]

You're passion and excitement for what you do is infectious! Would love to see a collab with you and Dr Mike!

[@melaniebinasco7040]

Hand therapist (OT) here ✋ Love this video, there were even some things mentioned here that I had never heard of. Thanks for always making your content so informative and interesting!! 👍

[@leticiazaragozafitnessinst1805]

Wow! You are amazing and you're giving me hope for the future of having quality doctors who don't seem to be connecting any dots and looking deeper . Big hugs! Thank you!!!

[@lololololol1111]

My college boyfriend had Marfan syndrome. We were hanging out on my bed one day and he suddenly had a really sharp pain in his chest that wouldn't go away. We went to the ER and it turned out his lung had collapsed and the doctor at the ER diagnosed him with Marfan's. Didn't even know it existed until then!

[@arianejackson4349]

How is he now is he ok

[@Heroesinahalfshellturtlepower]

I have ankylosing spondylitis and osteoarthritis. I feel like my hands are exactly like the grapes! I love to hear other rheumatologist thoughts on this subject. Especially that neither one of my doctors ever looked at my hands.

[@dixiewade8373]

You are an excellent educator. Thank you.

[@m.p1120]

this video really further confirms my suspicions… i’ve been dealing with raynauds and also symptoms of EDS for as long as i can remember but anytime i bring up EDS to my doctors they excuse it as something else. i was a gymnast for many many years which somewhat explains the mobility i still have, but i’ve always had freakishly flexible and hyper mobile joints which has always been dismissed. i don’t do gymnastics anymore, i haven’t for a couple years now, and i still have the same hyper mobility issues and a lot of pain along with it.

[@x.5364]

Same with EDS suspicions. My joint are not dislocating all the time, but I've been flexible all of my life too (I did ballet in childhood but my flexibility is still there after 12 years). I can bend elbow joints in opposite direction, kinda do this fingers twisting and stuff, and I am scared now if it turns out as it is some form of EDS 😭😭, bc I was experiencing some knee problems and I don't remember hurting it at the gym (like it just randomly and gradually got to the point that it is hurting all the time), so I just sit there hoping that it is some usual ligament injury and not EDS. Will have my MRI soon tho 🤞

[@c.m.303]

@@x.5364 How did it turn out, have you found out if you have EDS?

[@c.m.303]

If your doctor won't take you seriously, fire him/her and find a better one. EDS and Marfan's have some issues that need to be paid attention to before it goes south.

[@bturner3471]

Wonderful vidoes. A suggestion to you from a Certified Hand Therapist. If you teach Phalen's test for carpal tunnel to residents/ med students, I would NOT suggest doing it this way. When you press backs of hands together, especially if you have stiffer wrists, you will raise your shoulders way up, flex the elbows a lot which could provoke numbness from TOS or cubital tunnel syndrome that also cause numbness - and confuse your results. Recommend passive wrist flexion with arms relaxed to sides, elbows at 90 degrees or more. Keep up the great information videos!

[@jaysjournal6001]

love your content and me and my mom absolutely adore your vlogs in the hospital. whenever my mom catches me watching you she's like "oh, it's siobhan!" and sits down and watches whatever it is with me. 💕

[@ViolinMD]

aw that makes me so happy to hear! i'm planning to film in the hospital next week if i'm not too swamped - looking forward to getting back to the vlogs, I've missed it!

[@laurawilliams5363]

A pt who has you to receive care, is a lucky one! Your thoroughness and positive attitude is wonderful. You will have a very successful career in this field!

[@karrisajoss4271]

You have the most positive, energetic, fun personality/temperament.😊😊😊

[@gamergirlmars]

I have Marfan Syndrome! My hands are HUGE for a girl lol. I used to photoshop them as a kid when I took mirror selfies bc I was self concious. I NEVERRR hear bigger channels talk on my condition! Thank you!! I almost died from it since it is so rare.

[@clintpotts5799]

Please do one on feet, I have seen so many patients with diabetic neuropathy, unfortunately it affects First Nations 5x more than other groups of people. I’m a nurse so I see it lots. Thanks Siobhan for your consideration of my topic.

[@elainegoad9777]

Thanks for a concise, clear explanation in layman's terms.

[@froesfamily335]

Thank you for being so clear about rheumatology

[@1959bigjohn]

Love this one, I was having numbness in my hands and my GP sent me to a Neurologist. The Neurologist did an EMG and noticed something so he referred me to another specialist. This specialist did more test and did a DNA test and I have CMT type 1A disease. I still have carpal tunnel and am dealing with the CMT as well.

[@mattnobrega6621]

I have swirls in my fingerprints. I did have hypertension on the past. Now I have type 1 diabetes but I'm very healthy now. 4 years ago I was almost dead. I am clear of all the other tests you shared. Thank you for sharing. Your super cute too . 😁👍

[@MullingInk]

I’d love more content about psoriatic arthritis. I think, out of what I know as someone who has psoriatic arthritis, the enthesitis is particularly important to talk about and so often overlooked. Many informational resources identify the dactylitis, DIP joint involvement, and nail abnormalities, but enthesitis is something I had to find in medical journals and it’s apparently quite indicative of PsA.

[@brookelynbarkley8973]

I would love to learn more about Ankylosing Spondylitis and how it’s becoming more commonly diagnosed in women now then it was before!

[@Natasha40566]

Loved how this one was interactive!

[@MullingInk]

Please keep learning and making content about EDS! My first rheumatologist was excellent except he had obviously not kept up to date on EDS and even told me I didn’t have it. He said there were three kinds (there are thirteen!) and said because my skin wasn’t super elastic and I was overweight that I couldn’t have it. I do have hEDS, POTS, and MCAS, which are a classic triad. I also have psoriatic arthritis, fibromyalgia, Reynaud’s, and a lot of related issues. Did you know that dystonia and small fiber neuropathy are common comorbidities of EDS? We are also at higher risk of getting autoimmune conditions. It sucks because by the time we see a rheumatologist, likely due to a positive ANA or high inflammatory markers, some of our hypermobility may be hidden by arthritis thanks to autoimmune issues or due to the hypermobility causing permanent damage. It sucks that the diagnostic criteria is so dependent on hand mobility! Anyway, please watch out for my zebra family. It’s such a long road to diagnosis and we very much need your help.

[@OGDMaco]

It's so cool seeing your intros evolve over the years from a medical resident to what you are now. Well done to everything.

[@heartsongsKat]

Diagnosed with Chillblains 2 years ago and it gets more severe as time goes on. I'd love to hear more about it, as most people have never heard of it!

[@verenamaharajah6082]

I was born in the late 50s and in the 60s and early 70s before most people had central heating, chilblains were a very common problem.

[@luciatheron1621]

My daughter suffers this in winter. She uses tissues to hold in her hand as it absorbs any moisture and keeps her hands dry, warm and helps the blood circulating to her fingers.

[@1234demilovatofan]

In fall 2019 I was referred to a rheumatologist and got my Raynaud's phenomenon diagnosis confirmed. It was interesting.

[@GracieValenti1]

Super interesting! I have to say though, that the arthritis in my hands prevented me from doing some of these tasks.

[@laurawilliams5363]

Thank you for this post. You always have great content. I have diffuse systemic scleroderma. Yes, Raynaud's is usually an early sign for this autoimmune. Also, Sjogren's is also an early sign. I was dx by an arthritis panel (blood test) that showed the scleroderma. I was also dealing w/ SOB just trying to walk a few 100 ft and I never smoked so I knew something wasn't right. I have a host of specialists following me and my care. This is quiet the journey from being healthy until the age of 63 and then this dx. Rheumatologists are helping me a great deal with what this autoimmune does to you. Thanks again, Dr.

[@mccoycyndi]

It is a shock!I'm 55 I've got a slew of specialist too started when I was 50. It's hard but keep your chin up and your fighting spirit! I'll keep you in my thoughts and prayers !!

[@suzanne296]

Me too and I'm 60

[@laurawilliams5363]

@@suzanne296 You were dx w/ the same thing? If so, how are you doing?

[@eandrejko]

I love your excitement, thank you for sharing your experiences and knowledge!! ❤️

[@Yupppi]

I have always been impressed by people who can put their back of the wrists together WHEN holding elbows lower than horizontal to the wrists. I actually had something akin to the carpal tunnel resulting withering away of the thumb muscle, but my issue was that in fact that hand's thumb root area was bigger than the other, slightly swollen, yet it had zero strength. I couldn't hold an exercise band under my left thumb for more than 1-3 seconds. I think it had something to do with passivity for years, playing guitar which demanded stretch and tension, and then going to play ice hockey where the stick slams your palm hard repetitively for an hour or couple. Now it's much better after exercising the thumb muscles and going to the gym regularly.

[@lindathewordlady3204]

I have recently found your channel and it's amazing. I am a75 years old lady and had always wanted to be a nurse. But life happened and nursing didn't. However I have always been fascinated with medicine. Especially the diagnostic part of medicine. Your channel feeds my curiosity. I have a puzzle for you. I have episodes of extreme cold that escalates quickly into teeth chattering shivers. No fever, no infections (that I know of) And during these episodes I get muscle cramps and my legs feel like lead. I have trouble walking and have to lie down. They last any where from an hour to 8+ hours. And the weird thing is I get this bright red streak across my lower stomach. Recovery takes hours until I am back to normal. And no, I am not making this up. My doctors have just ignored me regarding this. I bet you can't solve this puzzle. But if you run into it sometime, I'd like to know about it. Thanks for your insights. Wish you were my MD. I am in the middle of the US. So not a chance. 😥

[@netty062]

I have recently also experienced muscle cramps....have you tried a teaspoon of mustard? The isothiocyanate have something to do with it. It's instantaneous for some people the relief they get.

[@SomebodySaid...]

This is the first video I've seen of yours and I actually thought you were going to be a quack. I've known someone who had Ehlers Danlos Syndrome and another person who had osteoarthritis and you were spot on about their conditions! I'm definitely going to start watching some of your other videos. Thank you for your youtube public service!

[@lin90210]

I only learnt about ED because Martina from Eat Your Kimchi has it. I have Raynauds but all doctors say in the UK is there is nothing to worry about.

[@Tonipepper01]

Perhaps you can explain this: When I was 29 I was put on a drug that caused my joints to flare up, all but the tiny ones above the nails and my mid spine. Every other one in my body including my jaw suffered miserably and I was diagnosed with arthritis. I was practically crippled for over thirteen years, the medication was changed but the arthritis stayed. Then, when I was forty one I was sent to an immunologist who put me on an almost complete tasteless carnivore diet. No, additives, colours, flavours, preservatives and almost every vegetable was removed from my diet. In a week, all my joints were perfect again. I was in no pain at all. I suffered all those years it seems for nothing. I'm seventy-two now and still eat the same foods.

[@DARKINBLADE.]

As a spider finger haver and diagnosed with hEDS, I have to have my heart monitored every year despite not having the vascular type. Another symptom of EDS is having very smooth skin without moisturising, especially your hands and arms, and generally looking younger than your age. I am nearly 21 and get asked if I want a kids menu at restaurants.

[@joylox]

I was sitting on a bench and some 12 year boys started talking to me, thinking I was one of them, when I was already in my second year of university. When I was getting tacos for my 21st birthday, I said it was my birthday, and the cashier asked if it was my sweet 16! Even at 24 I still got asked what grade I'm in. My fiance has smooth skin and can do weird things with the tips of his fingers, but doesn't have the joint pain and long fingers like I do, so it seems to be a strange collection of symptoms. I'm waiting to get testing, but there's only one person who can diagnose it in my region of 1M people.

[@JohnSmythe-od4gk]

What a delight to have this channel pop up in recommendations again after some years!

[@RobynKole]

I’ve always loved your videos and am even more stoked to see you bring awareness to EDS thank you! 💕

[@stephanierobinson2053]

Lol looks 😂at ✋ oh I need lotion 🧴 🎉🐸

[@petemahler4784]

When I was in Junior High, I went out for wrestling and hey had us practice moving our thumb to forearm, like you were showing, to help us get limber .

[@Ok-hr1tf]

Thank you so much for mentioning EDS specifically hEDS it such an under diagnosed thing and can affect your whole body causing thing like MVP ,POTS ,CFS ,Gastroparesis , MCAS , small fibre neuropathy&more

[@terrieseverson6346]

Hello Dr. …I have both RA and osteoarthritis and I’m under a Rheumatologist care receiving prednisone, methotrexate, and IV Rituxan. So far these meds have finally enabled me to walk, cook, and do small chores without constant pain. Or course flares are a different ball game and then all bets are off.Ha! What I do have that no one seems to explain or be concerned about is an oval shaped soft squishy swelling in my palm about 3-4 mm down from the base of all four fingers . I can best describe it as looking like a water blister without the water. They’re not painful to touch or to press on , but they seem to act as another hindrance in being able to fully open my hands. Strange thing is they’re not present every single day just three or four times a week. Knowing you like the challenge of Rheumatology I thought you might find this oddity interesting. Love watching your videos and have been following you through your journey in medicine. 🥰

[@AWanderingEye]

Eventually my dear old dad had surgery to clean out calcium deposits that built up under the tendons in his palms. Seems he needed a certain level of disability before they would surgically address his condition. Too bad he used his hands for many things and that inability to close his hands coupled with arthritis made life a misery.

[@The_Missus93]

When I was in the process of getting diagnosed with AxSpA my rheumatologist looked at my hands.. I have ridges on my nails and some joint swelling, multiple episodes of Carpal tunnel and some joint swelling. I’m currently on a two week self management course at the RUH in Bath and learning about all of these different symptoms and how they are all connected is so interesting.

[@heatherholliehaller]

I have had artists for a while. I also have skin srashes. Just recently I was diagnosed with psychic arthritis. It was good to have the doctor finally listened to me

[@verenamaharajah6082]

No such thing as psychic arthritis. I think you mean psoriatic arthritis.

[@saraallen4263]

Thanks so much for your info on EDS. I was diagnosed almost 2 years ago along with POTS. It has been a very rough ride and miserable ride for sure!! Love your videos.

[@ashram12]

Hey! A video about my condition! I have Marfan syndrome. I was diagnosed before I can even remember. I used to be surprised that every doctor I met knew what Marfan syndrome was (there are so many syndromes, I assume a doctor might forget a couple). But I suppose it's memorable because it's one of the few disorders where the defective gene is dominant.

[@cathoderaytube7497]

President Lincoln was supposed to have had it.

[@FeCyndiW]

Great educational video! I got Raynauds in my late 20s (now in my 50s) and I get the reaction in both my hands and feet. Mine can trigger even in the summer when it is 70-80 degrees if I start to feel cold. It also triggers after eating sometimes, no matter the temperature, which I think is not a normal Raynauds trigger. Keeping myself warm in the winter with a good hat, jacket, and gloves helps. In the summer, I have to make sure I remove any sweaty workout clothes right away. I'm having issues now with my knees swelling and some random joint pain (mostly in my thumbs). Not sure if it is just age. Hopefully, I am not getting RA.

[@forestranger312]

I’ve had arthritis all my life and it’s got progressively worse. Yet I’ve never been referred to a doctor such as yourself. My gp has never been able to confirm anything for me and I’ve spent 35 years self diagnosing and self treating. I was referred to pain management and have regular spinal denavation to control nerve response pain and allow me to continue living as near normal life as I’m able. I’d love to have an expert explain what’s gone wrong with my body and why was I so young when it started, it’s too late for me now, retired and living a sad life just waiting for the end. I guess it’s a post code lottery thing some people are lucky sone not. My parents lived well into their 90’s but I’m resolved to get nowhere near. You have amazing zest and such energy, wonderful just to listen to you.

[@thesporadicfamily4231]

I have psoriatic arthritis, rheumatoid, and the beginnings of osteoarthritis. In my left hip/buttocks I have all 3, plus neuropathy, bursitis, tendinitis, sciatica and piriformis syndrome. Plus, 4 bad discs. Thanks to this, I’ve barely left my bed in nearly 4 years, and I just turned 42. At this point, it’s like, just take my entire tailbone, left buttocks and left leg lol!

[@M_SC]

That’s a lot

[@Gengh13]

Have you tried the carnivore diet? It has worked wonders for my autoimmune issues and I've heard similar good results from a lot of people.

[@shantishanti1949]

I find your cheerfulness very comforting and even with Boris images they seem not to be so bad !!

[@seattlesix9953]

Had metacarpal swelling for over 10 years to the point where closing the hand was difficult and that was gone after 6 months avoiding Ω6 oils and limiting carbs to 20g/day. My T2D officially went into remission as well

[@Trenchant468]

Hand therapist here. Best when doing CTS wrist flexion test to extend the elbows and avoid resting on them to eliminate ulnar nerve cubital tunnel syndrome issues. Thx for helpful video.

[@weepspace]

Can you make a video covering arthritis 101? I had no idea there were so many different kinds!

[@ViolinMD]

Ooo I like that idea - thanks!

[@katentropy]

Where does one find a rheumatologist as good as you are at differential diagnosis? Seriously, I love your videos -❤

[@DynamixWarePro]

I have slightly short fingers and thumbs (My mum has the same short fingers and thumbs), Camptodactyly in my pinkie fingers (Only slight in my right hand, worse on my left hand), hyperextension, Scleroderma (I have tight skin on my hands), Raynaud's (I get cold hands and feet and sometimes tingly thumb and pinky finger tips) and eczema (worse in winter and barely noticeable in warmer weather) on my hands which I have gotten help for all of it. Despite the issues, I can and do play piano (sometimes), Irish whistles (can't play low whistles that have wider distances between holes) and play saxophones nearly every day, but I find it a little hard to hand write .

[@ViolinMD]

Hey Dave! Love hearing how you continue to play music despite the issues you mentioned - that's amazing!

[@birdandcatlover5597]

trying to play an instrument with short fingers and thumbs is always interesting, lol. raynaud's makes practice piano tricky, but i have managed to work on guitar. for guitar...using my pinky is usually not worth it if i can use my ring finger instead, so only about 4 of the songs i play do i use my pinky for. i end up with an uncomfortable hand position if i try

[@ChubbyUnicorn]

I wish there were rhumetologists like you, curious and excited to investigate and discover a diagnosis, where I live. Rhumetologists are few & far between, and overwhelmed. So I read a lot of medical papers trying to figure out what I have. I think it's inherited from my mom, but our weird autoimmune issues remain a mystery.

[@EdChang-x4b]

Hi Siobhan: my fingers problems began in Nov. 2020, when I initially had blisters on my fingers, that spread to my other fingers, and eventually caused most of the fingers of both my hands to become arthritic and also nerve damaged. The damage on all my fingers are on the top parts, so my pain is close to all my fingertips. Yes, I've been treated by rheumatologists, and have had many blood tests done, but no solutions for my problems. Al

[@gracedelavoye4135]

You need to ask your doctor to test for scleroderma. My son had these symptoms and it took the doctors 2 years to diagnose him. Scleroderma is serious.

[@ue9r6]

Look into fasting

[@jant4741]

Hand osteoarthritis runs in my family big time. By my age my father and his mother could not clench a fist. Red painful knuckles happened when I moved up North and exposed hands to the cold. Discovered saliva/urine pH was off, (likely high uric acid) corrected diet and have beat the problem. No hand pain in the cold anymore. I quit sugar for the most part (except for an occasional European chocolate bar treat). If I slip, notice hand pain, check pH and drink fresh lemon juice that quickly raises my pH. I am not diabetic. We have somewhat flattish nail beds and thin nails too.

[@elizabethkendrick3209]

I could be wrong but can’t you also have Raynaud syndrome from repeated vibrations as well? Like regular use of a chainsaw? Not just from temperature? Love the video- didn’t know my fingers were uncommonly long, good thing I play the piano

[@dmphax]

I have Raynaud's and Behçets Disease/Multiple Sclerosis. My joints are hyper mobile like you showed. Thanks for the video!

[@jeffreypeters395]

I love these interesting medical videos. Thank you and keep it up, Dr.

[@eunicenield9631]

My doctor was looking at my hands and noticed red spots on a couple of them. She sent me for an ANA test, and it was positive for CREST. I also have had Raynaud’s since I was a teenager.

[@JessyInch]

Hi Siobhan, I tend to get severe wrinkling on the tips of my inner fingers all the way to the palm on both hands. Like when you're in water for a long time, but mine happen when I'm not around water or any form of moisture, and I'm only in my early 30's. So, I was wondering there's different forms of wrinkling in your hands and/or fingers?

[@lisaalvarez3111]

Are you absorbing you fat soluble vitamins? Is it dry?

[@JeepSolid]

20+ years in the medical field, and I learned a lot of cool things here 😯😊

[@alishasmith4358]

My sister has ehlers-danlos syndrome. Unfortunately, it comes with a lot of other complications and health problems as well.

[@raalbrecht]

I have scleroderma and rheumatoid arthritis. I really enjoyed this and learned a few things too! One of my first symptoms was excruciating carpal tunnel syndrome. I also had Raynauds for several years prior to the onset of other symptoms. I also have contractures in my hands that happened very quickly. Great to see educational stuff out there!

[@wendykeesey8494]

EDS PATIENT HERE. Thanks for addressing the disoder Beighton critria info was useful. Just one item: stretchy skin is found mostly in Classical EDS, not hypermobile.

[@junoxmusic]

as someone with psoriatic arthritis, possible EDS and Yao Syndrome, thank you for this video 💜

[@colinmccarthy7921]

I found the video very interesting to watch.I have been a Diabetic Type 1 on Insulin.I have some more Medical Problems as well. I would say my Hands have changed throughout my Life.I am 73 years of age.My Health and Well-Being in Life,depends on the Drugs I take, and also any Medical Treatment I need.❤️🙏🏻❤️.

[@AmyDakin]

Hey Siobhan, I've been watching your videos for a while. Since I think you mentioned you were still going to show some other specialities and healthcare workers etc., I wondered if you might be able to look into R-CPD (comes under ENT medicine). It's only been officially recognised since 2019 when the first paper was published (easy to access online!), and that was also the first time a treatment option was described, but it's still not widespread knowledge even within the medical field. Getting some exposure to it would be great. There are currently four doctors willing to treat the condition in Canada: Dr. Jennifer Anderson, in Toronto; Dr. Jonathan Young and Dr. Karen M. Kost, both in Montreal; and Dr. Amanda Hu, in Vancouver. Thanks!

[@ToddyTornado]

You'll get to a million! Love your vids so much! Been watching since the beginning

[@ViolinMD]

Thank you!

[@quirkyradish1559]

I'm finally happy to see a Canadian doctor on YT.

[@Jana_PalmTree]

I have Loeys-Dietz Syndrome. A connective tissue condition similar to Marfan and Ehlers Danlos, only rarer. I have positive hand signs and had my aorta replaced 3 years ago. I love your voice and energy 😊

[@salvadoroliveira6632]

Dr. Siobhan, I remember that you showed that a black nail can be a sign of melanoma. I hope that lots of people pay attention to your videos, I share them with relatives that understand english.

[@bels4116]

wow that was so interesting and what I enjoyed most was doing the hand tests as you said them and pausing the video without knowing why, I have psoriatic arthritis and raynauds and my dad had ehrlos danlos, and I have very , very stretchy skin. Then when each one was explained I was rather wowed! it took many many years to have my diagnosis, I should have just watched you🤣 I am just amazed how cool it was to watch you excitedly explained it all.

[@vpfeffer]

My husband's palms developed a hard bump under the skin. The bumps do not cause my husband any pain, but it has worried me every since they showed up in his hands. Any suggestions?

[@charlenevarada--Stargazer]

Hi--I am partially double jointed & have been this way for years. 😊

[@TheAgeofFabulous]

I have Ehlers Danlos Syndrome! Yay to see it being talked about in this video.

[@carlyeckert4670]

No numbness or tingling, i could feel a slight pulse (just barely there) in my index and pointer finger. And a little pain in my right wrist from bending my hand in the position you described to us and holding it till you told us to stop. Love your vides. I love anything when it comes to medical topics. Thank you!

[@sherlockwho5714]

All my fingers slightly bend. My SO found it so fascinating to look at them when we first met.

[@thisisme3238]

Just found you on my feed...always glad to add doctors, such as yourself, to my subscription's. Needless to say, I just subscribed. Looking forward to your videos!

[@Orwic1]

Very interesting and informative. My background’s in pathology, and there’s a lot of new information in here for me. Thanks for posting this - I’m looking forward to learning more!

[@Ffironwoman]

Love your videos, wanted to comment that i suffered for 12 years with joint pain my doctor thought i had osteoarthritis, first joint of thumb, index, and middle finger swelled. Lumbar broke down, then neck, fought Uveitis for 10 years, turned bronze. My lungs started bleeding, have a tube in right ear, and had blood coming out of ear only at night. Got to the point i couldn't spell or sleep. Liver enzymes over 150. My NP did a iron panel. DNA showed two C282Y mutated genes on chroma zone 6. I have Hemochromatosis and EDS, please watch for Iron Hands in your patients

[@crymanellie7098]

Thank you for taking the time to share this great information! Loved it!

[@user-livelife65]

I just have to say you are amazing. Love watching your videos. So helpful and interesting

[@lissyperez4299]

Healthcare provider here! This is so interesting thank you!

[@abutterfly7975]

Oh my word girl what are you on to be that super happy, you need to go be visiting people that are down and out because I’m sure you could cheer them up in a moment.

[@kedeglow2743]

I had Raynauds--pretty bad actually. I couldn't even get in the shower without having the bathroom pre-heated or my fingers would go yellow, then paste-white. It was painful. Then I got breast cancer. I had lumpectomy, balloon radiation, and chemo. I haven't had a Raynauds episode since then--that was in 2015.

[@sandrabolt6628]

I have one for you , I’m female, severe reynalds syndrome, from teen, to 30’s , stoped while 2 pregnancies back to back breast feeding,no period. 4yrs later prior to menustration hands white numb fingers except thumb as usual. Continue until premenopausal, 61 now extremely rare it occurs 🤷‍♀️