What Happened to Patrick? Crohn’s Disease and Humira Testimony

Watch my first injection video here: • My First Humira Inject...
Patrick Hall talks about his battle with Crohn's Disease, developing a perianal abscess, preparing for a colonoscopy, and treating Crohn's Disease with Humira injections.
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[@PhotographyByImran]

Wish you all the best Patrick. And well done on the video.

[@creep4415]

Don't feel too bad. Crohn's is weird. With that said you actually feel 100% like 6 out 7 days aweek. it's really not that bad. When you're a KZbinr it works out cuz youd ont have a real job

[@aaan8929]

@@creep4415 my chrohns is hell every day of the week.

[@willfink1995]

I also have Crohn’s disease, I found out through a perianal abscess when I was 23. It took 3 months and 7 surgeries, endless narcotics and so much pain, that at times I would have rather been dead. Went through narcotics withdrawals afterwards which sucked too. I am currently in remission on Remicade. Thank you for posting this video and sharing your story

[@lawandawhite8469]

I just found out Iam scared

[@ElijahTWinch]

7 open surgeries? Do you have a bag?

[@Breathoflifecorp]

I live in PR and I’ve been in humira for 8 years. It help me achieve remission and I am in absolute clinical remission today.

[@christievanblanken965]

Wow. I was confused because I was researching info on Biologics treatment for Crohn's and I'm a photographer so I was like, why does Fstoppers have a video on Crohn's? Thank you so much for sharing your story. We have had very similar disease progression and they suspect my disease is back after my resection 18 years ago. If we proceed with Biologics it will be a new experience for me. I hope you're still doing well with your treatment. Crohn's can feel very isolating at times so I appreciate hearing your story.

[@malonecustomdesigns]

After being diagnosed with Kidney Cancer at the beginning of this year, I am always compassionate with anyone experiencing health issues like this. Especially people doing their best to create content to help others! I am glad the surgery went well. I wish you all the best. Thoughts and prayers are with you for strength to carry you through! P.S. I had surgery in March, as of now the cancer is gone! I am doing great!

[@FStoppers]

Great to here Jay! Enjoy your recovery and get out to the beach! -P

[@malonecustomdesigns]

Fstoppers thank you Patrick!

[@lukazupie7220]

I wish u both the best guys!

[@baboom007]

dude, are you still kicking?

[@malonecustomdesigns]

@@baboom007 I’m doing great! I go this week for my year and half checkup. I’m expecting to still be cancer free!!!

[@manayamabry4916]

Thank you for this, Patrick. Your video was the first to pop up for my search. Today is my first day in Humira and I’m scared. I was diagnosed with ulcerative colitis pancolitis a little over a month ago. Very hard to process seeing how I appeared to be healthy all 42 years on earth. The disease hit me hard and I’ve lost 60 pounds in a month. I pray Humira is my solution. Thank you for your transparency.

[@EBMproductions1]

How has the Humira treated you my doctor has me on azamun at the moment but wants me to move to Humira by december, and i am very curious how it's been, i sadly have a severe case of chrons disease and it is back with a vengeance as we speak.

[@XxxCats-h7d]

Is your Bauhin Valve ok? I am asking as my brother Has also pancolitis reaching Bauhin Valve and 3.5cm of ileum terminale and sometimes I am not sure of doctors diagnosis

[@Greggybread]

I felt weird liking this video. All the best fella. Get well. Love you guys

[@EDHBlvd]

Greggybread well the 3 people who disliked this video are subhuman.

[@Greggybread]

@@EDHBlvd Just assholes 😉

[@BartRos1980]

Greggybread real fistulas they are

[@jamesholveck7365]

Patrick - First I just wanted to say that I am a huge fan, but even more so after this video. My wife was diagnosed with Crohn's Disease 13 years ago and at first was able to keep the symptoms in check using a combination of prescriptions. However, about 5 years ago she had a bad flare and developed a fistula as well. Her doctor put her on Humira, and it has made a tremendous difference in controlling her symptoms and has even gotten her to a state of remission. However, Humira has had its share of pitfalls (albeit minor ones), one of which you eluded to in your message, the pain of the injections. I vividly remember her calling me at work in tears having just finished her four shot loading dose. But lucking you only have to go through it once. Another shortcoming is that after the second bi-weekly injection we discovered that she is allergic to Humira. She started to get some swelling and redness around the injection site. In fact, on the third course of injections the allergic reaction reactivated the previous injection site causing her entire leg to swell and bruise. The solution for this has been to take an antihistamine starting a few days prior to the injection, which does seem to keep the reaction to a minimum. Ever since then we have been doing well, and she was even able to safely give birth to our two amazing sons (naturally I should add)!! While we both know that the odds are high that Humira will not work forever, we plan to make the most of the time that she is feeling good. Hopefully it last long enough for Helminthic Therapy to be approved by the FDA. Lastly, I do highly recommend focusing on ways to reduce stress, and don't be afraid of leaning some of the burden on that girlfriend of yours. Its actually good for both of you.

[@adriso6490]

Hi James! I would like to know if you had any concerns with the Crohn's by the time you were planning on having babies? My bf was recently diagnosed of CD and I thought it was enough for us with my celiac disease, but this is life and things just keep happening!

[@anujsahai8309]

@@adriso6490please ready comment. I will be happy to help in every way possible.

[@cosmicthought3419]

@@livintvincent6465 Humira injections are not that scary. Trust me, kids inject them themselves. I would advise you to look into the pen and syringe options. Pen option is more painful, because it is instant. The syringe option is more what kids prefer, as it is much more painless and provides them with the control of how fast to inject it. The injection itself if we want to look at simple and broad examples would be...about 20 times less scary or painful than a regular injection be it a for....Blood samples for example. I hope you feel a bit more calm now :) . Discuss all your options with your MD.

[@stefaaanilic6102]

@@cosmicthought3419 Are u still here,i have some questions about humira?

[@cosmicthought3419]

@@stefaaanilic6102 Hello Stefan, how can I help?

[@GregScratchley]

Patrick - this was a brave decision to share, and I think it's really important that you are sharing the importance of being honest with ourselves about our health. I and I'm sure the whole Fstoppers viewer family wish you well, and a speedy return to your best life!

[@BillyMizrahi]

Same situation as you but in reverse. Had perianal abscess in high school. Had it drained. Was in pain for the next six months (Vicodin worked for pain but left me constipated which is no good). Decided with my doctor to try Remicade. Worked real fast (within a couple of weeks). Have been on it for the past ten years (an infusion every 7-8 weeks). Last year had pain in lower right abdomen. Needed a resection of my ileum. Got 12 inches removed. Remicade has helped a lot but the perianal issues are the worst. Over the last ten years the stomach pain wasn’t that bad but the fistula made just living a nightmare. Sometimes I’d have weeks with my ass felling fine. Sometimes it would be months where it was a struggle to just sit for a half hour by a computer. I wish you luck with Humira my dude!

[@FStoppers]

Yeah that is exactly opposite of me! I actually preferred the hydrocodone for a little constipation...it was a nice change if you know what I mean :) -P

[@mauriceelderhorst]

It's strange how I've never met you guys... But it feels like a friend tells me about his struggles. I wish you all the best Patrick!

[@creatorsjourney6286]

maurice elderhorst same here

[@vikkipakki]

Dude you need big balls to come out with this...Huge respect and Godspeed!!

[@Cre8tiveWoman]

I'm so sorry you are experiencing such a difficult health struggle. I hope Humira will help you. Sending you good thoughts, vibes, and prayers.

[@nickcachiaras8318]

This video really hit home for me… I was first diagnosed with Crohn’s Disease at the age of 16 (I’m 36). I feel like I’ve been mostly doing fine with little things here and there with a few stronger flare ups too (much less frequent). I’ve always considered myself lucky, mostly being able to eat what I want, taking Azathiropine for a little over 12 years. Unfortunately, things have drastically changed and they’re looking to do either Remicade Infusions or Humira Injections. I’m definitely overwhelmed and even a bit scared. It can be really challenging for others to understand what people going through with this disease. I swear some people borderline think you’re making it up. Lots of “Just change your diet” and “Get some more steps in” 😔. Hearing your honest/unfiltered story helped me realize that there’s still hope, and ways to even communicate with others about my struggle. I might even consider joining a support group. I hope you’ve been able to keep up the good fight and have been able to stay in remission since you released this video a few years back.

[@CinecomCrew]

Thanks a lot for this video Patrick! I think it's great that you've shared your story here. I wish you all the best for the future!

[@punnu5997]

Man you are a brave brave person. I would have been in huge depression and locked myself in the room after so many surgeries and such constant pain. Stay strong man. You are amazing.

[@paulrobertson7650]

Unfortunately you have no choice,yes if you can be brave or not...

[@doughowell3171]

I love you guys! You two guys have helped my photography immensely. P.S. excellent catch lights Patrick!

[@benharris3949]

Doug Howell I kept noticing those too

[@murrayclown5818]

Thanks for the great video! I have Crohn's and have/use both the elimination diet and Humira. I was in and out of the hospital for 2 years before a doctor finally put me on Humira. I felt better within a week. After a few months I started working on my diet and within the year was off the Humira. Remission lasted for about 5 years. Then life changed new job, divorce, work travel and I stopped eating the right foods. I guess 5 years was long enough for me to forget how bad I felt. Luckily it didn't take long to get back on track and I am now in remission again. Please keep us updated. There are a lot of us out here and we understand what you are going through.

[@andreand548]

Hi Murray! I’m inspired by your story. Do you know how you figured what the right diet was for you?

[@IanMinnesota]

Wish you all the best! We missed you Patrick

[@MickeyClarkxD]

5 years later. thanks for making this, hope all is going well with you.

[@FabianoSilvaPhotography]

Wish you all the best Patrick, Get well soon

[@paulrobertson7650]

Unfortunately their is no cure..you can go years without a flair up on the other hand if you have constant flair ups it's just awful..

[@ScottSenior76]

Suffered from Ulcerative Colitis for many years. Removed ALL dairy from my diet and within 2 weeks felt remarkably better. It's been 10 years now without any incident - Vegan for 9 years and have been off all medication (and I was on daily meds). And it was bad enough to retire me early from the military. Yes, diet may not work for everyone, but it's the easier place to start. Cheapest too! No more sinus infections or allergy problems either. It's amazing. Good luck brother.

[@techsavvydaddy5616]

Patrick - Praying 🙏🏼 for you, your Family and Loved ones!!!!

[@Christophe_La]

Pharmacist here. Thanks for sharing your story. Humira has been such a solid treatment option for Crohn's. It's has great efficacy and side effect profile compared to other options. It's definitely the recommendation I would make to anybody with Crohn's compared to everything else. I like how you are knowledgeable about your condition and your treatment because that is the best way to stay on top of things. My one tip to you is to avoid cigarette smoke at all cost.

[@beckivan7039]

I was recently diagnosed with Crohns and had my first treatment of Remicade yesterday. Thank you for kind video as I really didn't understand what crohns was or how I got it. I just knew the pains and cramping was really unbearable.

[@NVIK5]

Thanks a lot Patrick for sharing this, I am glad that there are milder cases and you do not have to be constantly on medication. To my absolute horror my 15 year old son was diagnosed with Crohn's recently after having constant diarrhea for months. This gives me some hope.

[@scljr1987]

My wife has Crohn's. I have to give her shots for it and she has issues all the time but lives life to the fullest!

[@FStoppers]

Steve Land is she on Humira? How has life before and after the drug been? -P

[@JoseLopez-vx7hw]

Yo man, this video is so real it hit my hart. One thing I can tell you my friend, I admire you, and respect your courage and sincerity. You are a young and strong man, and I know that God will give you many more years of life. Stay positive as you have done until this moment, continue taking pictures, enjoying the life God gave us, and love and share your art with the people you love the most. God bless you. You have a new BROTHER here in GUAYAMA PUERTO RICO. Love you man.

[@FStoppers]

Thanks Jose! -P

[@MarceloLangame]

God bless you, Patrick. All of us will pray for you. 🙏🏻

[@poolboyinla]

I said a prayer for you, Patrick. I know things will work out for you in the end.

[@hatpeach1]

Thanks, Patrick. I've been in remission for 13 years. It's really thoughtful of you to make this video. Good luck!

[@tylerratwood]

Honestly I think Fstoopers have been posting a lot, and more importantly great quality videos, I dont feel the channel has stepped back that much at all -- especially in 2019. Keep it up guys!

[@MsKendricks1]

Hey Patrick, there are those who do not have Crome's disease but DO CARE. I am one of them. I have benefitted from your video instruction in the past that I have appreciated. I hope you all the best and am glad you have a good support team behind you. Get well soon.

[@zigatretjak75]

As a gastroenterologist (ret.)8-this is a great vblog on CD. All the best with Humira. You look great and ready for the tasks ahead

[@casperhedegaard1627]

He should talk to this guy:facebook.com/DrRichardSchulze/He can cure it!

[@kristiekramer6498]

I have Crohn's Disease for over 30 years, and I've been on Humira for 7 years. Currently I'm dealing with a horrible and very painful skin rash due to Humira. There are healthier options now available to treat Crohn's through functional medicine. You may consider looking into that.

[@FStoppers]

Wow interesting. Humira has been working for 7 years though right? Did the rash just recently show up? Not to be all conspiracy theory on you but did you get the "vaccine"? It's impossible to prove side effects from the vaccine but I've had some really weird stuff happen to family and friends within 18 months of taking it and perhaps if you were on Humira for 5 years with no ill effects it could be something to consider. I've taken the vaccine and 2 boosters myself and have had faith in the vaccine but now I do question things a bit. That all said, what other option are you looking at and do you feel like the "safer" alternatives are actually safer or they are just another biologic with similar risk factors? I've been told that your body will always eventually reject a biologic and so the idea of multiple alternatives might make more sense as a backup when one eventually fails vs trying to find the one perfect one for you forever. Who really knows though, I'd say most people with horrible Crohn's are willing to sacrifice some risks or even shorter lifespan if the medicine can help them live a normal life today. My disease isn't THAT bad but I have accepted the Humira drug with all its warning labels and maybe I'll regret that 20 years down the road. -P

[@sswmathews]

Thank you Patrick, I pray that God will bring you healing quickly...stay strong and be safe.

[@markbernhardt6281]

Is God going to medical school? Who knew?

[@shaynearcher6020]

Feel your struggle mate, its great to hear someone else being open about it. I have had Crohns for 12 years, have had multiple surgeries, humira courses, a fistula, (horrible seton rings and grafts) and it is still not healed after 3 years. eventually a stoma bag too, the whole nine yards. It's not an easy thing to live with, especially as a cameraman, but there is always a way through and to keep doing what we love!

[@shaynearcher6020]

I've done Remicade sitting in a comfy chair for 3 hours - pretty easy but yeah a total inconvenience. With Humira, The serum stings for about 10 seconds tops and then is fine. Definitely less painfull doing it into the top of your thigh. the booster course at the start will be helpful to ease your mind! I never had any side effects from Humira, even after getting a common cold it did hit me harder but still managed to recover fine. They can also put you on courses of mercaptopurine which is a more mellow pill form immuno-suppressant. If you have any questions at all feel free to send me a PM, i've been through it all!

[@FStoppers]

Just curious, was the fistula and everything before the Humira or did you have one after treatment?

[@shaynearcher6020]

@@FStoppers Sorry for the late reply mate. Fistula was before all of that was introduced, probably one of the main reasons why i went to the doctors and got diagnosed with Crohns in the first place!

[@sarahgalli8964]

You're awesome for sharing this- Thank You. I was diagnosed with Celiac disease (an auto immune disease) about 20 years ago. In my case it was undetected in my blood work, which left me undiagnosed and super sick. I did the elimination diet as a desperate attempt to solving my sickness - it took about 3 months and was NOT a cool experience at all, but in the end I had a full understanding how body body reacts to what I put into it and I credit that diet to my good health today. So- this is my thumbs up for doing the elimination diet on top of the other treatments you end up using. Good luck and btw, you do look great in this video.

[@birdy1352]

Thanks for your video. I got diagnosed in June 2020 and was very devasted about this until I found your video. But my doctor started me on Humira in the past few weeks and I'm starting to feel better but still not gaining any weight but after seeing your video I'm positive I will get through this. Please keep us posted on your recovery :)

[@daehxxiD]

I love how the camera is so up close and personal in this very personal video. You just know how to frame a shot ;) All the best, hope you're back to 100% soon!

[@creatorsjourney6286]

daehxxiD don’t let him fool you.... he just knows he has great eyes for the camera! 😂 he is one of my favorites.

[@bethanynoordmans7073]

Hey Patrick! Just came across this video and your channel. I’m a photographer and also have Crohn’s Disease. I was diagnosed back in 2005 with a mild to moderate case of it. After a few years of finding the right combo of medication (steroids at first, then budesonide and 6mp) and trying to gain weight on top of pushing through symptoms, I was finally in remission and relatively symptom free for years, until just a few months ago. My last colonoscopy revealed some slight inflammation, even though I felt basically symptom free. They put me on Humira, and it seems to be working well for me so far. I just wanted to thank you for sharing your story. It’s not an easy subject to talk about, and it’s difficult to explain to others if they don’t have any personal experience with it. I’m glad to hear that things are getting better for you again. I wish you the best of luck and hope things continue to clear up and that you can be back in remission again!

[@ralphgehteha9924]

Okay, here is my experience (will sound scary, but read to the end). Diagnosed with Crohn's at 19, reason was constant diarrhea. Nothing otherwise. First flare up (abdominal cramps) at 28. Slowly but steadily the number of flare ups rose to a state of constant pain, interrupted by massive pain attacks during intestinal obstructions (life threatening, which I didn't know). I got so used to pain that I just came to ignore it (this is good news). Those attacks usually lasted 3-4 days, afterwards I actually felt really well. Reason was probably that I didn't eat during those periods (involuntary fasting, fasting recommended anyway). Flare up frequency rose further and the pain eventually grew so strong that I fainted and found myself on the floor. Went to the ER 3 times in a month until the doctors decided that I HAD to do a surgery now and have the inflamed part (8 inches) of my small intestines removed. Moral of this chapter of the story: 1) You can stand a lot more than you think. You can even get used to it, if you have to. 2) Don't wait too long, though. The surgery temporarily costed me my profession (medical requirements). A few weeks later Crohn's started to eat my small intestines again. I got Remicade (works for many patients), not Humira (works for few patients). Once a week first, then every two weeks, then once a month. Remicade killed Crohn's, but it's not a permanent solution, the immune system creates antibodies against it, so after 1-2 years it is useless. Infusions are not acceptable in my profession's work schedule, so the next solution was Azathioprine pills. They take three months to take effect, they say. They didn't. The doctors wanted to go back to Remicade, but I refused. I wanted to give Aza more time, as it integrates into your genes (laymen's understanding). After six months - ta daaaa. Crohn's dormant. Blood counts every month first, then every three months. Coloscopy every three years. Done. Moral of the second chapter: 1) Don't take KZbin videos too seriously. Who would post a video about a treatment or medication that individually had no side effects on the patient? You'll only find the most dramatic cases. But some people get up in the morning, slip, bang their heads into the wall and die. 2) Don't read the information leaflet as a verdict. The manufacturers must cover their backs, legally. 3) Attenuation of the immune system does not NECESSARILY result in more infections. I never had less infections in my life than AFTER starting to take Aza. I can't even remember when I had my last infection. I didn't have ANY of the possible side effects, not even the alleged susceptibility for sun burn. I don't go tanning, though (don't dare fate too much). Had a coloscopy recently after 7 years of taking Aza. Minimal hints of activity. "Can't get any better than this", the doctor said. As for the surgery: Expect contraction of the surgical scar. Have it stretched while having the regular coloscopy. By the way, got my medical back, as well as a great job. Diarrhea will stay for good, but that's manageable. No fear 👊🏼

[@saaoun6266]

Hello, first I'm so proud of you, I would like to know how is your state right now... I'm replying after 4 years I become interested with Crohn disease since my brother got diagnosed with 1 week ago, my brother had no severe symptoms ,he got fistulas and some lose weight (not that much... not noticeable) , after he did the colonoscopy the Dr diagnosed him with crohn , and he prescribed to him cortisone and Humera .... SO i'm scared but when you look at his state at the moment, he's very healthy with healthy diet, you may never think that he's sick or something...but when I do search on google and youtube, I feel that this disease is so dangerous....

[@k4mi114]

Thank you! I got diagnosed at 12/13 and I'm now 17. I've tried humira, influximab, prednisolone and many others, going to start stelara tomorrow! My Crohn's has been pretty severe, with no time of relief. Hearing people like you talk about it so openly really helps me not feel as alone. There is really quite a lot of shame with this disease. Again, THANK YOU!

[@k4mi114]

I know this is really late, however if you are curious about someones experience with some of these medications, let me know! (infliximab (remicade), Imurel, Prednisolone, Humira, Cortiment, Pentasa, Metronidazol Actavis (antibiotics for fistula treatment)) , and some others I can't think the name of right now.

[@MichaelSalaA]

I am a surgical registrar so its rather common for me to treat people with fistulas and peri anal abscesses - it was good to just hear your perspective man. Good work.

[@kimgrasser2282]

Patrick, first let me say thank you for "putting it all out there." Your video inspired me - thanks for being so open and honest! For those of us living with Crohn's or UC, we all thank you! I'm about to start my first Humira dose today and so I watched your video - very helpful! I was diagnosed with UC when I was pregnant with my son 25 years ago. I almost had a colostomy at age 30, but, thankfully, I found my miracle drug and for 20 years, I breezed through life with no problems. Then, 3 years ago (for whatever reason) I had a flare. After being a guinea pig with all sorts of different drugs, my doc FINALLY prescribed Humira. I'm hopeful that now I can GET BACK TO LIFE! I see this video is from 2019, so I'm hopeful that you are in remission now and back enjoying your life again! Stay healthy and again, thanks so much!

[@LyndonPatrickSmith]

Wishing you a speedy recovery and blessings from Canada. Someone in our family has Chrohn’s and I learned a lot from this video. You’re always teaching - even when you are ill. Much respect.

[@scottabergermd]

Patrick, I give you a ton of credit for going public with your story. As a physician for 33 years, I’ve had Crohns since I’m 21 (I’m 58 now), and have been on IV chemotherapy (Remicade, and more recently Entyvio), and it has helped a lot. I’ve had over 10 surgeries, related to fistulas and suffered through 5 complete bowel obstructions. I give you kudos for the courage to go public on this. Please feel free to reach out to me if you wish to discuss further.

[@FStoppers]

What is your take on Remicade vs Entyvio? I really don't want an infusion but I've read that Entyvio is close to having a normal injection. That would be a game changer. -P

[@scottabergermd]

Remicade is the “big guns” and should be reserved for when nothing else helps. I was on it for about 15 years, because there was nothing else at that time, and i was really sick with fistulas and inflammation on my terminal ileum. We stopped it and switched to entyvio because i had developed severe pulmonary disease and sinus disease that we were considering may have been caused by the Remicade. Turns out it wasn’t, but I’m glad I switched becaseu Entyvio is very mild compared to Remicade, with way less side effects. 300mg, once every 8 weeks IV, and it is very helpful. Good luck, and please keep in touch, or if you have any questions, reach out to me.

[@beadierps14]

My mother, 62, treated a form of Ulcerative colitis with Humira last year, and the results are great. I say, go for it.

[@hectorsanchezzurita2302]

You are brave enough to declare all this. My admiration for you

[@AndrewWilsonOz]

Good luck with your health. Crohn's is no picnic. Hope your new treatment works for you. I have IBS, and GROD, but compared to Crohn's, I got lucky. Thanks for sharing.

[@MichaelAnthonyphoto]

You are a fighter my man! Stay strong and keep up the fight!

[@jmersits]

Patrick - Thank you sharing! Praying 🙏🏼 for you!

[@rebecascorner]

I only discovered you literally a week ago when I decided to make living off photography starting a new career at 55+ years old. I wish you the best and I am rooting for you!! This video made you feel like family.... welcome to my life. Your story just changed a total stranger's life.

[@ReelHooking]

Perfect example of how story is always king. Keep up the great work Patrick 💪🏻

[@briansmith8507]

Very brave of you to put yourself out there like that. Someone very close to me has Crohns and unless you've dealt with it first hand, it's hard to understand just how devastating it can be to a person. I know medication is a big step, and you have a lot going on, but both of my family members that have Crohns did *so* much better on medication (Humira and Entyvio). It's the right step to take - you'll come through this!

[@emorywaldrop5983]

You’re showing great courage sharing this. Stay strong brother.

[@Bobbylopezcreative]

Fuuuuck bro. So sorry you're going through this. Someone close to me has bowel issues too. It's debilitating. I wish you a speedy recovery.

[@eviem70]

I once worked with a doctor who had Crohn’s disease and it was really sad to witness. I hope you find some relief, Patrick

[@juliegill5381]

I found your video doing some research on HUMIRA. My daughter was dx when she was 12 yes old. Now she’s 18yrs old and her doctor is now recommending this drug. Thank you for this information. You’re attitude towards life is very uplifting.

[@Lexxo777]

Thanks for sharing it out Patrick, i've never heard of the condition, wishing you all the very best mate, huge fan of you guys!! Absolutely love your content, Cheers 🙏

[@ozpaul2sb]

What an extraordinary video. Took courage to share all that. As a cancer survivor and a survivor of major surgery I know where you're coming from. Good luck with journey!

[@AriePharmD]

@FStoppers Patrick I’ve been living with Crohn’s since 1991 I’ve had one resection. 1. I’d like to recommend getting your Vit D level checked. Any Vit D level below 44-50 raises your inflammation markers. If you wind up needing to supplement D, use Vit D3 with K2. Replacing D can increase calcium in the bloodstream and the Vit K helps modulate the calcium. 2. With any resection and/or malabsorption disease like Crohn’s or UC, be sure to supplement with B vitamins. The B vitamins are water soluble and are the first ones depleted when the GI tract is ulcerated (or if loose stools are frequent). Thiamine (Vit B1) is especially important for brain health and is NECESSARY to metabolize carbs and sugars into cellular energy. 3. Remicade, Humira, and Cimzia are great but your body can develop antibodies to these medications rendering them useless (you may have to change to another at some point). 4. Thalomid is another TNF-a blocker used off-label for Crohn’s but highly embryo fetal toxic (so you cannot get someone pregnant or donate blood or sperm while taking and for 30 days after stopping). 5. You should buy into the diet thing because many foods can increase inflammation (and some foods are good to reduce inflammation) for Crohn’s patients. 6. Your microbiome is your best friend and probiotics can be beneficial (also try to minimize your fungal flora). Lactobacillis species are beneficial bacteria and clove oil (available in liquid filled capsules ) can regulate the fungus. To your health, Arie

[@douglassnyder9612]

Thanks for the video.... stay positive and don't forget humor.... laughter is pretty good medicine too...

[@mrdev9843]

Nailed it when you said don't take things for granted, because you never know what is waiting for you around the next corner. But out of all of it, you will be a better, stronger human being. cheers👍👍

[@akbardonya4376]

Best Wishes, get well soon Patrick.

[@blondeinred]

Wishing you all the best, My sister has Crohns and Colitis and she is on top of her illness, through much trial and medical error. Hang in there!

[@MrZentry]

I hope you get well again PatricK

[@smithnjefferson]

I have a family member in California who now manages his Crohn’s successfully with Cannabis. Thats all I know. I don’t know how much discussion or what kind of results are typical but I thought I’d throw it out there. I am an advocate of healing, I wish you the best to find freedom from your troubles.

[@FStoppers]

Jeff Smith cannabis seems to be the answer for everything these days. I will say, with all the medical marijuana stuff, Crohns was always one of the first conditions “approved for it”. I feel like it might be more of a coping drug than something that actually helps with the disease...smoking anything isn’t good for inflammatory conditions but I guess that’s why they make edibles :) -P

[@smithnjefferson]

Fstoppers Ya, I’ve always considered most advocates for cannabis to be co-signing each other’s BS but I think the odd testimony warrants investigation.

[@roberthanusen23]

You have to read the book: "Breaking the Vicious Cycle: Intestinal Health Through Diet". All the best.

[@mikecastles]

Hang in there, Patrick. Well done and should be helpful for many. Wishing you all the best and Thanks for all you have shared. IBS has been a big part of my 65 years

[@CoreyIsTheName]

Hope all goes well with you. You da man.

[@RameshGovindarajan]

Patrick, I have close family members going through this disease. Please stay strong and my prayers are with you. Good luck on your journey!!

[@jordanbellotti3026]

Patrick, I'm sorry to hear about the autoimmune issues you've been dealing with. I had a friend who struggled with crohn's disease for several years. His story sounds a little bit like yours, he started his own business in his mid 20"s (a hot dog shop in Pittsburgh, PA where I'm from as well) and was living some of the best years of his life. Then suddenly he fell ill with zero explanation and after some time the doctors told him he was affected by Crohn's but also didn't provide him with any answers or sense of how to proceed. I knew him after he already had Crohn's and begun to take the matter into his own hands due to the lack of answers from conventional medicine. He turned to diet looking for healing and for the next 5-7 years I watched him heal his symptoms through dietary changes. At this point he has completely healed his symptoms by specifically removing foods that harm the gut and sticking to foods that fuel and nurture the gut as well as the body. His biggest trigger seemed to be gluten and for those 5-7 years he was gluten-free, but now I believe he is able to to eat gluten again in moderation. It seems like you are aware of how your diet might be affecting your symptoms, but I strongly urge you to dig deeper into the foods you regularly consume and the effects they might be having on your body as well as how your symptoms are manifesting themselves. To be clear, the drugs you spoke of in your video are merely a bandaid. They in no way shape or form will heal your symptoms, they will simply alter some of your body's processes in order to mask them. Finally, actual healing is possible and most likely the foods you choose to consume are a large part of the answer. I've attached an article from my favorite doctor regarding this sort of issue and I hope you find answers during your search. I enjoy the Fstoppers material and it has helped my photography skills thus far. Good luck my friend. chriskresser.com/diet-and-autoimmune-disease-what-you-need-to-know/

[@atoro3578]

You are a strong person for confronting this situation head on, never give up in your journey.you have many who are rooting for you. Keep your spirit up.

[@robnmiranda9301]

Wish you all the good health of life.GOD WILL DO A MIRACLE AND YOU WILL BE COMPLETELY FINE. I ASK ,BELIEVE AND RECEIVE THIS UN JESUS' MOST PRECIOUS BLOOD AND NAME. AMEN AMEN.

[@iseyopo7270]

Robn Miranda stop praying and be happy. There is no god.

[@southernlady5085]

Have UC. Just started Humira. Your symptoms sound like mine. From what I gather, it’s basically same but in different parts of bowel. It’s pretty horrendous. Refreshing to see someone speaking bluntly about these problems. For me, it became disabling. Wish you the best!

[@petersalt]

I was diagnosed with Crohn's at the age of 21 (now 47) and I am on Remicade for the last 7 years. I had a resection in 2006 of terminal ileum and secum. As a result of this and the way I healed, I have all of the symptoms of Cohn's without the negative benefits of Crohn's . I am in medical remission, but have the symptoms as if I have the disease. It's great that I am not having any of the negative affects, but it sucks that I still experience all of the symptoms. No two people experience the same things with this disease. Well spoken and nice visual. Best of luck on your journey! New sub. PeterInHalifax.

[@FStoppers]

Intresting. You say the "negative benefits of Crohn's" but I'm assuming that just means the negative side effects? You are in pain but your actual body isn't inflamed or reacting in a negative way? That's a tough situation and I hope you are able to deal with the pain. -P

[@corryvreckan_music]

Very sorry to hear about this, Patrick. You, Lee and all at FStoppers are the very reason that I became a full-time photographer. When I first started searching for photography advice around 3 years ago, I stumbled upon FStoppers and have watched every single video since. Favourites being the Peter Hurley, Mike Kelley, challenge videos and all the Critique The Community content. You made me realise that ANYONE can get into photography and ANYONE can make a living from doing it. Your videos are so accessible and your words are always encouraging. Thank you for everything. I am certain that your positive attitude and good humour will get you through this. You, Lee and all at FStoppers are well loved. Big love from Scotland.

[@FStoppers]

This makes me feel so happy. Glad we were able to help you on your journey. Yes, anyone can become a photographer...I realized that when I became a photographer myself haha. Keep up the good work! -P

[@keithsandercock1412]

Good on you Patrick. A great Public Service contribution that hopefully will benefit many.

[@ajbid805]

Praying for you! Sister has it and she is kicking butt. She manages her stress through a lot of working out. Anyways get better and don't rush it.

[@FStoppers]

Yes, working out is great for Crohns....until you slow down and then have to pick back up. I've lost all my muscle from this and have hit a 14 year low weight. Time to get back to the gym and tennis court though! -P

[@CraigZilko]

Thank you for raising awareness of chronic illness. As a sufferer of vasculitis, and like yours, my rare auto-immune disease attacks the blood vessels around the major organs, airways and kidneys. It is important to show people that while you give the outward appearance of a normal healthy person your body is in the wars and some days you can succumb to the battles being waged. All the best on your road to good health. After 6 rounds of chemotherapy and now a handful of auto-immune medication and antibiotics daily I feel pretty good. Keep fighting the good fight and hope you get back into remission soon and stay there.

[@brentmillsphotovideo1902]

Thanks for posting this Patrick! I was diagnosed with Crohn’s 7 years ago and have been putting off finding a new gastroenterologist. The anxiety, fear, and denial is a very real thing. I’ve already had one surgery and two hospitalizations. Your video is a wake up call that I need to face this and get back to a doctor. I hope you feel better soon!

[@FStoppers]

brentmillsphotovideo def stay on top of it. I regret not having a colonoscopy sooner. Maybe I would have seen if this was a fast acting relapse or if something was laying under the surface for a while. Hope you stay healthy! -P

[@lorrettaclarke709]

Having just got through a (different) but stressful health situation myself, I have learned that a big part of triggering most diseases is inflammation and a big part of triggering inflammation is stress. I have decided not to sweat the small stuff. I also meditate. I also deep breath when I feel that I getting into a loop of stressful thought. Sending you good thoughts for your remission.

[@4KLive]

Take care, Wish you all the best Patrick.

[@robwaller6123]

Huge RESPECT for owning this and sharing with the public.

[@inyangeffiong]

Stay strong. I just read about the drug regime you mentioned 2 days ago!

[@Tazech]

You have been such an inspiration in my life. I started watching Fstoppers back in 2011 when I was a family ski photographer in Steamboat, CO and you have helped me live my dream. You're such a sweet man!! I never comment on your videos but today I break my silent. Do what you love!! Please!! Best wishes, Taze Henderson P.S. Lee needs you, I feel like we all witnessed a psychotic break down in the last video challenge with PI.

[@FStoppers]

Hahah that's just Lee being overly dramatic. Honestly all our inner group was shocked Pye won that contest but what can you do? Thanks for the kind words and keep at it! -P

[@CJWestProduction]

Wow, that really sucks. I know exactly how tough a disease like that can be. Both my mom and aunt have Chron’s and it’s always present in the back of my mind that any day I could trigger something that puts me in your exact position. Good luck with your treatment, and I’m sure you’ll get better soon!

[@63MacGuy]

I was scared to hear what you had to say when I clicked play, you guys were quitting etc... Then you started talking about your Crohn’s disease and I though I didn’t need to hear the whole think. I listened to every second!!! Thoughts are with you Patrick! Can’t wait for you guys to get back to making great videos!

[@grahamleigh8398]

Hi Patrick.My wife has Lupus and what you say sounds pretty much similar disease.I wish you all the very best and although have never subscribed until now I watch a lot of the Fstoppers channel.Thanks for the reminder.We need to not take life and our loved ones for granted. Much love.Graham.(South Africa)

[@aaron-bieber]

It makes me hopeful that people are willing to share their struggles and the truth and realities of life. Just because you are a "famous" KZbin personality doesn't mean that you stop being a human, and that ultimately we all have a lot of the same struggles. I hope you feel a lot better soon, Patrick.

[@sidhup77]

Yes we do care Patrick...stay positive and it will be soon behind you as you have done it in the past...sending positive energy...

[@kirbstone111]

I wish you much strenght Patrick, i lost my sister 13th of june this year who has been battling Crohne for over 30 years. She also had a perianal abscess and they found bad cells. After that it all went downhill fast and she past away june 13. My advice from what i learned from sister keep eating! she would have made a 100% recovery if she wasnt underweight. its better to be overweight then underweight so you have reserves for battling illness. Get well and much strenght Patrick in these hard times.

[@FStoppers]

OMG John, I'm so sorry to hear that. Yes, being underweight is a major issue with Crohn's suffers. I'm at a 12 year low weight at the moment (still look healthy) but lost all my muscle weight I had been building up. Def looking forward to getting back to a healthy active lifestyle. If you don't mind me asking, what "bad cells" did they find? Does that mean colon cancer? I'm so sorry for your loss, that's awful especially at her age. -P

[@PrestigePhoto]

I have post-infection IBS and have struggled for 3 years. I get it. You have balls of steel for doing this. Be strong, love your channel, get healthy soon!

[@shawnvine4918]

Wishing a speedy and easy recovery. Take care.

[@2M-Images]

Total respect Patrick. Take care.

[@idol031808]

Several people in my family suffer from Crohns, colitis and IBS. Best to you in your treatment

[@cmaciasjimenez]

So sorry to hear all of that. Just concentrate on healing. Everything else doesn’t matter. My best wishes to you and your people

[@fotoworkshop_stuttgart]

Get well soon Patrick and take the time needed.

[@george_KC1TQF]

Patrick, thank you for being open about this. My daughter has been diagnosed with Crohn's this year (she is 21) and is now on Remicade and gets infusions every 8 weeks and she said that it has been really helping. I have shared this video with her to let her know she is not alone with the disease. Not sure if it stems from genetics as I have IBS and have been diagnosed with Diverticulitis this past year.

[@FStoppers]

Sorry to hear that George. Make sure you tell her anything is possible with this disease and to not lose home! -P

[@prifterpan]

Hi Patrick, Your case is just almost identical to mine. I've had a resection in 2008 and for 12 years I didn't take any medication and was fine. I've lived in different countries of the world and enjoyed my worry free life. Then I had a relapse in 2020 with mild symptoms when I discovered similarly to you that the disease is active (although mild). I stumbled upon your videos because humira is going to be the next step in 2022 to try and control inflammation. I am still more or less symptom free but trying to go aggressive now to avoid having another surgery. Just like you I'd imagine (our scars are also almost identical) It's been very hard accepting this now as an adult as my 18 old self thought was cured forever. Thanks for speaking up, it gives me courage that someone else is going through the same struggle.

[@saaoun6266]

Hello, I would like to know , how was you cured even tho crohn has no treatment ?