Why won't they understand

[@DanaStargazerTruitt]

I have to say I got lucky and my husband got Vertigo not long after I came down with the VM, so he got a taste and said wow now I understand.

[@stephworley8253]

I have meniere's, and I have sjogrens syndrome, an auto immune disease. I'm on disability since 2018. I just turned 48. I do not look sick. Therefore, people treat me like im...well, lazy! This kills me. I am not lazy. I am a mother who raised my son alone. I'm a nurse who worked as an ob/gyn nurse for 15 plus years. I took care of my grandmother, my step dad, my dad, my brother, and my mom during their passing. So i also have prolonged grief. No one gets me. No one understands that I am exhausted mentally and physically. I fall all of the time now. I have a huge green knot now on my forehead from bouncing off steps, yet I was told I did it to myself? If there was a bit more understanding in the world, I probably wouldn't feel so much like I suck at this life now. Compared to my previous life, I feel like I just exist to hear BS and a hard time when I look lazy because I can't get up and clean. Smh, sorry, but I just needed a quick vent when I watched your video. My meniere's brings along hours of vomiting as well. If I'm spinning, I'm puking. 😢

[@JulietMartin-jb8gk]

Rare diseases are called orphan diseases because not money is raised for research and new protocol treatments. Unfortunately I suffer with more than 1. ❤

[@tprada6214]

On Christmas Day a relative told me he thinks I have selective hearing. I think it’s time to reevaluate my participation in family gatherings. I’m over it. I hope you’re doing well and making your way through the winter. 🥶

[@menieresdiseasewarrior5949]

I'm doing okay. Yeah I have limited where I go for holidays because of that.

[@scotthousman7807]

People always say maby you haven't been to the right doctor and someone told me that acupuncture will get rid of MD

[@shericlot]

My son and grandsons saw me in a Menier's Attack for the first time yesterday. I think my son was shocked.

[@menieresdiseasewarrior5949]

@@shericlot I’m sure he was. I know my kids were when they first saw one if my attacks

[@stephanieheadley6004]

My husband's family doesn't really understand how bad it gets because they have never seen me have an episode..... My husband has witnessed the attacks firsthand but I still don't think he can comprehend how bad it is.... My mom and sister on the other hand I have both witnessed the attacks and had Vertigo attacks themselves (but haven't been checked for Meniere's) so they know where I'm coming from my husband goes to all of my doctor's appointments so at least he is trying to understand the condition

[@Thatslow_B6]

I get this from a lot of people mostly my wife’s parents. Everybody thinks I’m faking it or it’s not as bad as I act.

[@menieresdiseasewarrior5949]

@@Thatslow_B6 I still get from people too